Internet and Social Media in Research-Tools and TipsChristina Baggott, RN, PhD, PNP-BC, CPON
Assistant Professor Department of Physiological [email protected]
September 11, 2012
My program of research..
• Symptom assessment – Demographic– Clinical – Genotypic
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My program of research..
• Symptom management
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Topics Covered• Social media research resources• REDCap• Qualtrics• CHR
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http://www.ucsf.edu/about/social-media-overview
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http://www.ucsf.edu/about/social-media-overview
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UCSF Privacy Issues
http://cpbc.ucsf.edu/how_to_buy/when_hipaa_is_involved
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Privacy and Security
• http://its.ucsf.edu/EIS/Names/MinimumStandards.html
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Pew Internet & American Life Project
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http://www.pwc.com/us/en/health-industries/publications/health-care-social-media.jhtml
pwc Report
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pwc Report
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REDCap
• Sanctioned by CTSA• Not just for data collection any more…• Easy communication with outside collaborators• If aesthetics are important, consider Qualtrics• Import data• Create graphs• Monitor usage/modifications• Validate fields• Use branching/skip logic• Create paper trail, if desired• Connect to other applications with API
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Collaborate Worldwide
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Instrument Bank
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Export Data-One Click
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Export: De-Indentified
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Export: Statistical Packages
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Report Builder
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Schedule Study Visits
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Upcoming Features
• Randomizer• Matrix responses for Likert scales
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REDCap Training
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• Intermittent courses– Register in
“Learning Center”– Visit booth at
lunch today
Qualtrics
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View Responses
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Export Data
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CHR Issues with Technology Research• REDCap and Qualtrics preferred tools
– Security– Privacy– Other platforms may be approved, but may require
additional scrutiny• TIME
• Pre-Testing is essential– Considered similar to other pilot research
• Maybe exempt if meets criteria
– Create stand alone application• Can be cloned for future research
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Exempt Research
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