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THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011 -eu.eu [email protected] aisbl 0843

THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011 [email protected] aisbl [email protected]

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Page 1: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

The beginning May second 2011

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 2: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Mission

To improve the quality of live of people living with chronic pain in Europe

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 3: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Aims of PAE1. To have chronic pain recognised as a disease in its

own rights.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 4: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Aims of PAE1. To have chronic pain recognised as a disease in its

own rights.2. To create a greater awareness of chronic pain.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 5: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Aims of PAE1. To have chronic pain recognised as a disease in its

own rights.2. To create a greater awareness of chronic pain.3. To promote a European policy on chronic pain.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 6: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Aims of PAE1. To have chronic pain recognised as a disease in its

own rights.2. To create a greater awareness of chronic pain.3. To promote a European policy on chronic pain.4. Reduce the impact of chronic pain on all areas of

European society.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 7: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Achieved by;1. Working closely with other stakeholders.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 8: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Achieved by;1. Working closely with other stakeholders.2. Gather and distribute relevant information on

chronic pain from the patients point of view.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 9: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Achieved by;1. Working closely with other stakeholders.2. Gather and distribute relevant information on

chronic pain from the patients point of view.3. Promote and/or initiate research into chronic pain.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 10: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Achievements so far

1. Launch PAE November 29th 2011. The launch of PAE in the European Parliament. Hosted by MEP Marian Harkin supported by EFIC by its President Hans Kress and DG SANCO by Albrecht Werner

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 11: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Achievements so far

1. Launch PAE November 29th 2011. 2. Official registration as AISBL January 25th 2012

registration number is 843498142. Details; http://kbopub.economie.fgov.be/kbopub/toonondernemingps.html?ondernemingsnummer=843498142

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 12: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Achievements so far

1. Launch PAE November 29th 2011. 2. Official registration as AISBL January 25th 20123. Launch website March 28th 2012. The launch took

place at the European parliament and was hosted by MEP Mr. Jim Higgins

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 13: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Achievements so far

1. Launch PAE November 29th 2011. 2. Official registration as AISBL January 25th 2012.3. Launch website March 28th 2012.4. PAE accepted by EMA April 10th 2012. From that

date PAE is eligible to be involved in the Agency’s activities.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 14: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Achievements so far

1. Launch PAE November 29th 2011. 2. Official registration as AISBL January 25th 2012.3. Launch website March 28th 2012.4. PAE accepted by EMA April 10th 2012.5. Registration transparency register April 25th 2012.

PAE received registration number 75559858669-77

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 15: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Presentations

1. Presentation EFIC board. February 24th 2012 PAE presented it selve to the EFIC board at the EFIC office.

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 16: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Presentations

1. Presentation EFIC board.2. Presentation Public Hearing April 16th 2012. The

coordination group “European Year for Active Ageing and Solidarity between Generations 2012” organised a hearing on "Growing old in good health"

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 17: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Presentations

1. Presentation EFIC board.2. Presentation Public Hearing April 16th 2012.3. Presentation 6th patients’ rights day May 15th 2012.

Presentation on “Active Healthy Ageing” in Europe. Organised by Active citizen network whit support of European Public health programme, EESC and ALDE

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 18: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Presentations

1. Presentation EFIC board.2. Presentation Public Hearing April 16th 2012.3. Presentation 6th patients’ rights day May 15th 2012.4. Presentation EFIC council meeting May 29th 2012

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 19: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Collaborations with EFIC

1. During hearing April 16th 2012

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Page 20: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Collaborations with EFIC

1. During hearing April 16th 20122. Commission public consultation on the EU Reflection

Process on Chronic Disease.3. Commitment on the European Innovation

Partnership on Active and Healthy Ageing

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 21: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Collaborations with EFIC

Future collaborations on any area we find suitable in the way to accomplish our mission

www.pae-eu.eu [email protected] aisbl 0843.498.142

Page 22: THE VOICE OF PEOPLE WITH CHRONIC PAIN The beginning May second 2011  info@pae-eu.eu aisbl 0843.498.142info@pae-eu.eu

THE VOICE OF PEOPLE WITH CHRONIC PAIN

Pain Alliance Europe [email protected]

Joop van Griensven, president PAE

www.pae-eu.eu [email protected] aisbl 0843.498.142