Programs Connection, Sept - Dec 2010

ProgramsConnection

September • October • November • December 2010

CogniFitness, Page 8

Getting the Best MS Care, Page 5 Advances in MS Care, Page 6

NationalMultiple SclerosisSocietySouthernCalifornia Chapter

Financial AssistanceA Helping Hand When It’s Needed Most

We offer financial assistance through the Direct Assistance Program to individuals with MS and their families to help access needed services that are not available using other resources (private insurance, Medicare, MediCal). The program is based on financial need and offers funding for the following services:

Rhoda Goetz Personal Care Fund: • Beauty/Wellness: A fund to assist individuals who are faced with

financial, logistical or physical barriers to maintaining healthy personal hygiene and care. Gain access to services such as hair, skin and nail care.

• In-Home Assistance Support: 8 consecutive days, 4 hours/day after a hospital stay or exacerbation. Must use licensed home care agency.

• Chore Service Program: Assistance for house cleaning service. Limit: up to $300 per fiscal year.

Durable Medical Equipment: Share of cost for durable medical equipment (wheelchairs, hand rails, etc.) if not covered by insurance. Limit: up to $400 per year.

Sherak Emergency Fund: Funding for unexpected one-time situations (food, rent, utilities). Official documentation demonstrating proof of emergency is required with application. Limit: up to $300 per year.

Physical/Occupational/Speech Therapy: In-home evaluation and five to six follow-up visits for a person who cannot leave home and whose insurance will not cover this service.

Grisanti Respite Fund: Provided through a licensed home care agency for the family member who is a full-time care partner and needs time off. Share-of-cost basis. Up to 6 days/year, up to 12 hours/day.

Supporting the Family: A fund to take care of special out-of-the-ordinary family needs (i.e. school pictures, sports uniforms, etc.). Limit: up to $300 per year.

Checks are made out and sent directly to the vendor. For more info about financial assistance, call 800.344.4867 or 310.479.4456 or visit nationalMSsociety.org/cal to download an application.

National Multiple Sclerosis SocietySouthern California Chapter310.479.44561.800.344.4867nationalMSsociety.org/cal

If You or Someone You Know Has MS...

Studies show that early and ongoing treatment with an FDA-approved therapy can reduce future disease activity and improve quality of life for many people with multiple sclerosis. Talk to your health care professional or contact the National MS Society (NMSS) at 800.344.4867 or www.nationalMSsociety.org to learn about ways to help manage MS and about current research that may one day reveal a cure.

Information provided by the NMSS is based upon professional advice, published experience and expert opinion. Information provided in response to questions does not constitute therapeutic recommendations or prescriptions. The NMSS recommends that all questions and information be discussed with a personal physician. The NMSS does not endorse products, services or manufacturers. Such names appear here solely because they are considered valuable information. The Society assumes no liability for the use or contents of any product or service mentioned.

© 2010 NMSS, Southern California Chapter, Issue 2 - Published Triannually

Programs Connection 3

Access these programs from homeAccessiblity Begins at Home 4Peer Support 18 Scholarships 19Book Club 19 Professional Counseling 22Caregiver Support 23

Inland Empire/Coachella ValleyServing Riverside, San Bernardino and Inyo Counties

Advances in MS Care 6 CogniFitness 8Living Well with MS 9Fall Prevention 10Active Choices 14 Community support groups 17 Who? Why? How? 20Better Therapies, Better Life 24MS Wellness Forum 25Keep Walking 26Get Involved 30

Los Angeles CountyAdvances in MS Care/Annual Meeting 6CogniFitness 8Living Well with MS 9Fall Prevention 10Optimal Living with MS 11 Active Choices 12 Intro to Qigong 15 Community support groups 16 Who? Why? How? 20 Mental Health & the Holidays 24

Keep Walking 26Help Around the House 29Get Involved 30

Channel Islands Serving Ventura, Santa Barbara and San Luis Obispo Counties

Advances in MS Care 6Living Well with MS 9 Fall Prevention 10Active Choices 13Community support groups 17 Who? Why? How? 20Keep Walking 26Stress is What You Make of It 27 MS Community Circle 27Music as Medicine 27Get Involved 30

San Joaquin Valley Serving Bakersfield, Fresno, Kings, Madera and Tulare Counties

Advances in MS Care 6CogniFitness 8Living Well with MS 9 Fall Prevention 10Optimal Living with MS 11 Active Choices 14 Community support groups 18Who? Why? How? 20Family Support Group 23Keep Walking 26Be Your Own Best Advocate 28Get Involved 30

What’s inside? Find programs near you...

Table of Contents

SIGN ME UP! You can register for all of the programs listed inside by:

Mail or fax Phone Online

4 National MS Society, Southern California Chapter

Learn from Home: Teleconference

Unsafe home configurations can lead to falls for people MS, and falls can lead to injury or further loss of independence. Take a tour around the house and learn what you can do to make your home safer.

What will I learn? • How home improvements can provide

greater accessibility • Making your home more efficient, more

effective and barrier-free • Home modification and increasing

your independence

Featured Speaker: Van Roberts has worked in construction management for the last 24 years. After being diagnosed with MS five years ago, Van brought his expertise to the National MS Society to help develop informational programs on home modification.

Cost: FRee

Tuesday, September 21 6:00 – 7:00 pmAt home, toll- free teleconference and Web-eX presentation

Accessibility Begins at Home

Sign me up! One week prior to the program you will receive the toll-free dial-in number.

Mail or fax form on page 31. Call 800.344.4867

Visit nationalMSsociety.org/CALcalendar


Getting the Best MS CareDiagnosis and treatment of a complex disease, like multiple sclerosis, is tricky. MS is varied in its symptoms and level of disability for each person, so it is critically important to know that your doctor has the right knowledge and expertise to effectively treat each individual case.

Despite how long you have been living with MS, asking the right questions of your doctor can help lead to optimal care and treatment. While living in a more urban area might afford more opportunities for seeking MS treatment from a doctor with a specialty in the disease, people in less populated regions do not have to settle for a lesser experience with their neurologist or other personal physician.

How do you know if you are getting good care? As you seek a doctor, consider asking some questions to help you better understand their practice.

1. How many patients with MS do you see a year?2. Do you favor one treatment option, or do

you consider all of them based on a person’s type of MS?

3. Do you offer specialty referrals if needed, such as urology, psychology, ophthalmology, or pain management?

4. How often does your office return calls? Who will call me back when I have a question or a medical issue?

5. Are you involved in any MS research or clinical trials?

6. Are you affiliated in any way with the National MS Society? If not, are you interested in receiving some professional information from them on MS?

While this does not cover every question that might be relevant for you, these can help provide basic understanding about how well-versed and knowledgeable your doctor might be in MS. Many people with MS see primary care physicians for their MS care when a neurologist is not available nearby. If your physician does not have many patients with MS, the National MS Society can provide him/her with professional education, consultations with MS specialists, and literature specific to health care professionals.

Please call the National MS Society at 800.344.4867 for neurologist referrals, to obtain materials for your current doctor, or to helping formulate the questions that will give you the best access to care today.

MS Physician Consultation Program If you have an MS or possible MS diagnosis, have a restrictive HMO or other type of insur-ance, are having issues either getting a confirmed diagnosis or a solid treatment plan, or live in a geographic area where access to an MS specialist is not available, you might be eligible for a one-time consult with an MS specialty neurologist. Please call Audra Hindes at 800.344.4867 to learn more about this important program.


Cost: FREE program

BakersfieldSaturday, September 181:00 – 3:00 pmMercy Hospital, Clerou Lecture Center 2215 Truxton Ave.

Featured presenters: Dr. Regina Berkovich and Dr. Lilyana Amezcua from USC

Pasadena - ANNUAL MEETINGSaturday, November 69:00 am – 2:00 pmPasadena Senior Center, 85 East Holly Street includes lunchSee more details about the Pasadena Annual Meeting on page 7.

Santa BarbaraSaturday, November 131:00 – 3:00 pm Location TBAFeatured presenters: Dr. Regina Berkovich and Dr. Lilyana Amezcua from USC

Advances in MS Care The Future of MS Treatments + Walk MS kick-offs

Now is a very exciting time in the world of MS treatments and research, with oral medications nearing approval, CCSVI, and new symptom management drugs in the pipeline. Learn from leading MS experts about these advances, as well as current and future research trends.

What will I learn?

• The benefits and risks associated with current and future oral therapies

• Various symptom management therapies that provide relief to many people with MS

• What’s in the research pipeline— clinical trials and what to expect in the FDA approval process for many treatment options

With your continued support, the National MS Society has trained or funded many of the leading MS researchers making breakthroughs today. This is why fundraising events like Walk MS are so critically important. Hear from local Walk MS team captains about how they’re working to move MS research forward.

Sign me up! Mail or fax form on page 31. Call 800.344.4867.



Southern California Chapter Annual MeetingSaturday, November 6Pasadena

In addition to the research program in the morning, at the Chapter’s Annual Meeting, you will also have the opportunity to attend two different breakout groups:

• A direct look at complementary and alternative medications – are they right for you?

• Answers to questions on Medicare and general health care reform policy – what’s in store for Californians and how will it affect you?

Plus, Chapter President Leon LeBuffe will provide an Annual Update with highlights from the past year, including local programming and fundraising updates.

Featured presenters: Richard Shubin, MD has a private neurology practice in Arcadia, is Medical Co-Director of the Sleep Disorders Center at Huntington Hospital and is Principal Investigator for Neuro-Therapeutics in Pasadena.

Barbara Giesser, MD is Associate Clinical Professor of Neurology at UCLA and is the Medical Director of The Marilyn Hilton MS Achievement Center at UCLA.

Margaret Burnett, MD is the Director of the LA County/USC MS clinic, Director of the MS Clinic and MS Infusion Center at Rancho Los Amigos Medical Center, and Assistant Professor of Pathology at USC Keck School of Medicine.

Regina Berkovich, MD is Assistant Professor of Clinical Neurology at USC’s Keck School of Medicine and is currently on staff at USC University Hospital and USC/LA County MS clinic.

Advances in MS Care will also be offered this winter in the following cities:

Watch your mailbox for details.

Coming soon!

FresnoFebruary 5, 2011

Loma Linda January 23, 2011

Thousand Oaks January 29, 2011


Realize your optimal thinking skills utilizing techniques that have everyday applications.

Learn to: • Facilitate focus and concentration • Improve memory using new strategies • Improve organization, problem

solving & critical thinking skills

Cost: $25.00 per person

8-week courses enrolling now:DowneyTuesdays, October 5 – November 23 10:00 am – 12:00 pmEric Small Center for Optimal Living with MS at Rancho Los Amigos

FresnoTuesdays, October 5 – November 30 10:00 am – 12:00 pmSan Joaquin Valley Rehab, 7173 N. Sharon

PalmdaleOctober 5 – December 7, 6:00 – 8:00 pmCommunity Therapies, 861 Auto Center Drive, Suite D

PomonaFridays, October 15 – December 311:00 am – 1:00 pmCasa Colina, 255 East Bonita Ave.

Rancho MirageTuesdays, October 5 – November 23 10:30 am – 12:00 pmAnnenberg Center-Eisenhower Medical Center39000 Bob Hope Dr.

West LAMondays, October 4 – November 2210:00 am – 12:00 pmThe Marilyn Hilton MS Achievement Center at UCLA, 1000 Veteran Ave.

Sign me up!

Mail or fax form on page 31.

800.344.4867

Visit nationalMSsociety.org/CALcalcalendar

Do you find it difficult to focus on a task without getting distracted?Do you have difficulty finding words or finishing your sentences?

Do you often have a hard time keeping track of activities & appointments?If you answered yes to any of these questions, then this program is for you...

CogniFitness Keeping the Mind Moving


A life interrupted…doesn’t need to be a life deferred. Discover what you can do to positively impact your health and well-being. Living Well with MS is an extraordinary program designed to help those newly diagnosed better understand MS and develop lifestyle strategies that can help diminish the effects of the disease. In just 12 weeks you will gain the tools and knowledge you need to build your personal plan for living well with MS.A team of highly skilled medical, fitness, nutrition and behavioral health specialists in MS will help you:

develop a comprehensive personal •fitness and nutrition plan understand and better manage •MS symptoms

develop positive emotional and spiritual •health practices to use across your lifetime

increase your ability to cope with the •diagnosis and unpredictability of MS

meet others living with MS, just like you, in •a setting of shared support

Experience the online and in-person combination this course has to offer. Online you will meet all of your classmates and access up-to-date and current information in a user-friendly, highly interactive classroom. In-person you will meet fellow participants in your local area each week for the fitness component of the course.

12-week courses enrolling now:

West Los Angeles 12 Mondays, starting September 20, 6:00 - 7:30 pm The Marilyn Hilton MS Achievement Center at UCLA

Long Beach 12 Tuesdays, starting September 21, 6:00 - 7:30 pm YMCA

San Luis Obispo 12 Tuesdays, starting September 21, 6:00 - 8:00 pm San Luis Sports Therapy

Sign me up!

Call 800.344.4867

Visit livingwellwithMS.com

Living Well with MS Moving forward after an MS diagnosis

Bakersfield, Fresno, Lancaster, San Bernardino, Thousand Oaks

Call 800.344.4867 for more details.

Locations Coming Soon in January


Fall PreventionDo you have poor balance?

Have you lost your balance or fallen in the last year?

Falls are a leading cause of injury in those with MS and can result in broken bones and further disability. Don’t let the misfortune of a bad fall compromise your health or independence. Learn how to improve balance and mobility and reduce your risk of falling.

Designed for those who use a walker or a wheelchair and are able to transfer independently with or without a care partner. (Care partners are also welcome and encouraged to attend.)

You will learn:Exercises to improve balance, strength and flexibility • Where and why falls happen and safety

tips for preventing falls • Transfer techniques and equipment to

reduce your fall risk •Techniques to reduce injury from falls •Strategies to get up after a fall Cost: $25.00 per person

San Luis Obispo Saturday, November 6 1:00 - 3:00 pm Sierra Vista Regional Medical Center Auditorium 1010 Murray Ave.

Sign me up!


800.344.4867


New multi-week Fall Prevention programs being launched in

February in the following cities.

• Bakersfield • Fresno• Pomona • Riverside• San Bernardino • San Luis Obispo• Santa Barbara • West Los Angeles• Westlake Village


Coming soon!


Little changes that creep into life with MS often get swept under the rug. Over time these physical changes can accumulate and slowly erode a person’s independence and interfere with life’s everyday activities.

Optimal Living with MS helps you improve performance, regain and maintain independence, and overcome challenges. In just 12 weeks, you will learn practical tips and strategies to make life at home and in your community easier, safer and more productive.

Work with a team of rehabilitation professionals in occupational and physical therapy to:

Develop a comprehensive personal •fitness programUnderstand fatigue and integrate pacing •and energy conservation strategies into everyday activitiesEvaluate your home environment for •efficiency and safety and more!

Enroll today for upcoming sessions starting in Los Angeles and Bakersfield.

Los Angeles Fridays, September 10 - November 1910:15 am - 2:00 pm USC’s Health Science CampusOffered in collaboration with USC’s Departments of Neurology, Kinesiology & Physical Therapy, and Occupational Therapy

Bakersfield Thursdays, September 9 - December 212:30 - 2:30 pm HealthSouth Bakersfield Rehabilitation Hospital (no class on 11/25)

Sign me up!

Call Jessica Marcotte at 800.344.4867 or 310.479.4456 for Los Angeles.

Call Kim Kotrla at 661.321.9512 for Bakersfield.

Positive Changes in 12 weeks

Optimal Living with MS When MS changes


Los Angeles County

Glendale – Yoga Yoga at the Village, 1306 Sonora Ave.Thursdays, September 16 - November 187:30 - 8:30 pm

Marina Del Rey – Yoga Angel City Body Kinetics, 4143 Glencoe Ave.Thursdays, September 16 - November 186:30 - 8:00 pm

Redondo Beach – Pilates Mat & ReformerBeach Cities Pilates Center514 N. Prospect, 1st FloorSaturdays, September 16 - November 20, 11:00 am - noon5 weeks of mat work & 5 weeks of Reformer

Studio City – Feldenkrais Studio City Library, 12511 Moorpark St. Wednesdays, September 15 - November 1711:00 am - noon

Exercise is key to your overall health and wellness. So get moving—and have fun while doing it. Take advantage of a Chapter-sponsored or community-sponsored physical activity class.

The following pages highlight just a few of the many resources for physical activity classes available in your community. When noted, contact the facility or instructor directly to register. Or call 800.344.4867 for additional classes near you.

Active Choices

Eric Small Adaptive Iyengar Yoga Improve your balance, endurance, posture, flexibility, mobility and quality of life. Please bring a mat or beach towel. Cost for 10 weeks: $30.00*

FeldenkraisGentle, non-strenuous movements help improve flexibility & stability and manage stress & pain. Please bring a thick mat and beach towel to class. Cost for 10 weeks: $30.00*

PilatesImprove balance, flexibility and strength. Movements in Pilates reformer classes are done on specialized pieces of equipment and require strong seated balance and transfer skills.Cost for 10 weeks: $45.00*

Training & ConditioningImprove functional levels of fitness. A trainer will create a customized fitness program for each participant in a semi-private group setting.Cost for 10 weeks: $30.00* unless noted

Sign me up for Chapter-sponsored classes!

Mail/fax form on page 31. 800.344.4867. nationalMSsociety.org/CALcalendar


Channel IslandsSanta Barbara – Yoga Vista Del Monte, Patio Room, 3775 Modoc Rd.Mondays, September 13 - November 1511:00 am – 12:00 pm -or-Wednesdays, September 15 - November 1711:00 am – 12:00 pm

Santa Barbara – Training & ConditioningCottage Rehab Hospital, 2415 De La Vina St.Tuesdays, September 14 - November 1612:00 – 1:00 pm -or-Thursdays, September 16 - November 1812:00 – 1:00 pm

Simi Valley – Yoga Yoga Nook, 2472 Sterns StreetSpecial Yoga Mat SeriesTuesdays, September 14 - November 1611:30 am – 12:00 pm - or -

Channel Islands Community Classes

Ventura – Aquatics Ventura Aquatics Center, 901 S. Kimball Rd. Call 805.654.7511 or visit cityofventura.net/aquatics for more info about water exercise classes suitable for people with MS.

Grover Beach – Yoga Adaptive Yoga at Tullius Chiropractic & Pilates Center, 902 W. Grand Avenue. Meets each Tuesday at 11 am. Call the Center at 805.481.1566 for more information.

San Luis Obispo – YogaSan Luis Obispo Veterans Memorial Building, 804 Grand Ave. Meets Mondays & Wednesdays, starting January 11. Beginners: 5:15 - 6:15 pm; All levels: 6:30 - 7:45 pm. Contact instructor Shoosh Crotzer, who has extensive experience with MS at 805.772.3560.

San Luis Obispo - AquaticsThe San Luis Obispo Parks and Rec Dept. offers a water exercise class which can accommodate special needs. (Note: pool temp is 88 degrees.) Call the SLO Swim Center at 805.781.7288. The Swim Center is located at Sinsheimer Park, 902 Southwood. Call San Luis Sports Therapy at 805.788.0805 if you wish to use the pool with instruction/supervision from a physical therapist.


Inland Empire/Coachella ValleyPalm Desert Tuesdays, September 14 - November 16 10:30 - 11:30 am Haberkorn Health Center, 41555 Cook St. #160

Inland Empire/Coachella Community Classes

Claremont – Yoga for people with MSMondays, 6:00 – 7:00 pmPomona Valley Health Center, 1601 Monte VistaCost: $65 for 10 classesFor more information call 951.235.1117.

Palm Springs - Adaptive Yoga Thursdays, 11:30 – 12:30pm1180 N. Indian Canyon Dr., 3rd floor of El MiradorCost: $5.00 per classFor info and to register call 760.416.4864.

Riverside – Yoga FUN Yoga studio, 75 W Blaine St. or ~ Inland Yoga, Tibbetts studio 3742 Tibbetts St., Suite 202Classes taught by Christie Hall, who has trained with Eric Small and has extensive experience with MS. For more info, please e-mail [email protected] or call 909.534.6952.

Temecula - AquaticsSW Family YMCA, 29119 Margarita Rd.Water Therapy Class in a cool pool with a lift offered twice a week. Cost: free for members; $5 non members. Call 951.677.YMCA (9622) for more info.

San Joaquin Valley

Bakersfield – YogaThursdays, September 16 - November 1810:30 - 11:30 amArthritis Adaptive Aquatics Center1800 Westwind Dr., Building 500

Bakersfield – Training & Conditioning Total Woman Fitness, 9901 HagemanTuesdays, September 14 - November 16Sessions between 10:30 am - 12:00 pmCost: $45.00

San Joaquin Community Classes

Clovis - VarietyClovis Adult School offers adaptive fitness classes: dance, Pilates, t’ai chi, yoga and much more. Call 559.327.2842 for more information.

Bakersfield - YogaCatholic Healthcare West offers free adaptive yoga classes at Mercy Hospital, Mercy Southwest Hospital, and Memorial Hospital. Contact Sally Baker at [email protected] or 661.332.5371 for day, time, and location.

Fresno - Training/StretchSan Joaquin Valley Rehabilitation Hospital has an adaptive gym with two locations, and offers circuit training classes and “Stretch It Out” classes. Cost; $100 Initiation fee and $35 monthly dues. Contact 559.431.2635 ext. 119 for more information. Hanford - Personal TrainingIn Shape Health Club, 325 N 11th Ave. Personal trainers for adaptive one-on-one training. Call 559.585.6555 for info.

Visalia1616 W. Mineral King AveYoga for MS classes offered Tuesdays, 11:00 am - 12:15 pm. Cost: $50 for 6 classes (good for 3 months). Visit www.valleyyoga.net or call 559.561.1070 for info.


Intro to Qigong

In Los Angeles County

There are many forms of Qigong. They all share the idea that we can improve our health by paying systematic attention to our breathing, physiology, and attitude. “Qi” is defined as breath, or vital energy, or life essence, and “Gong” is defined as study, exercise, or work. Thus Qigong means “the disciplined study of breath.” These are truly powerful self-healing techniques. They are easy to do, and stretch and tone the body in a very simple way.

Chinese medical theory is based on the idea that our bodies want to be healthy, that we have an innate set of mechanisms that help us resist infection, repair injury, and fight disease.

Featured presenter: Several years ago, Michael Sieverts experienced a severe illness. Under the direction of Master Wen Mei Yu at UCLA, Michael was inspired to learn and subsequently teach healing forms of Qi Gong. He experienced first-hand how the practices can improve one’s health and may restore the proper functioning of all the body’s systems, including the immune system. He currently studies with Master Tang Wei-Zhong at UCLA and teaches classes in Santa Monica to cancer survivors at the Wellness Community in West LA, weSPARK in Sherman Oaks and Cedars-Sinai.

Cost: FREE

West Los Angeles Thursday, October 28, 20106:30 – 8:30 pmNational MS Society office 2440 S. Sepulveda Blvd., Suite 115

Sign me up!


Call 800.344.4867


Michael Sieverts


Los Angeles County

Beach Cities 2nd Sunday, 10:00 am, Beach Cities Health District Call Dena at 310.376.8426 Burbank 4th Wednesday, 3:00 pm Call Nan at 818.762.5432

Central LA 4th Saturday, noon, Bilbrew Library Call Alva at 323.233.5413

GLAMS (Gay and Lesbian Support Group) 2nd Saturday, 1:00 pm, Location varies Contact Ronni at 626.392.4321 or [email protected]

Glendora 2nd & 4th Saturdays, 10:00 am Contact Laura at 626.335.0613 or [email protected]

Lakewood/Long Beach 2nd Sunday, 1:00 pm, Lakewood Youth Center Call Fran at 562.925.4405

Los Angeles 3rd Thursday, 6:00 pm, Fairfax Branch Library Call Michael at 213.804.1249

LA – Spanish Speaking Group 2nd Saturday, 10:00 am Salvation Army/Red Shield Community Center Contact Maria at 818.781.0181 or [email protected]

Monrovia/Pasadena 2nd Monday, 10:00 am, First Presbyterian Church Call Aynn at 626.303.4343

North Hollywood - Drumming Group Learn a unique way to express yourself. No musical experience needed. Second Saturday, 3:00pm Remo Drum Center Please call Beth at 818.219.1715

Santa Clarita 2nd Thursday, 6:30 pm, Blessed Katari Catholic Church Call Linda at 661.297.3040

Sherman Oaks (Social Group)3nd Saturday, 11:30 am - 2 pm, Location TBD Call Linda at 818.222.7678

Torrance 2nd Tuesday, 1:00 pm, North Torrance Library Call Pattie at 310.769.0694

West Covina 2nd & 4th Wednesdays, 11:00 am Senior Center North Building Call Tadd at 626.962.7909

West LA Last Monday, 6:30 pm, National MS Society Contact Nancy at 310.827.5714 or [email protected]

Do you ever wish you could talk with others who understand what it’s like to live with MS and the challenges the disease brings?

Community Self-Help GroupsPlease contact the group’s facilitator(s) to learn more about a specific self-help group listed below, or contact area Chapter or 800.344.4867.

Connect with others...


West LA – Men’s Group 3rd Tuesday, 6:00 pm, National MS Society Call Larry at 310.423.3425

West Hills/Woodland Hills 1st Thursday, 7:00 pm, First United Methodist Church Call Mary Ann at 310.479.4456

Woodland Hills last Monday, 10:00 am Call Carolyn at 818.348.6628 orLinda at 818.989.6044 before attending.

Channel Islands

Arroyo Grande2nd Tuesday, 6:00 pm, United Methodist Church Call Ellen at 805.343.6094

Morro Bay last Saturday, 10:30 am St. Peters by the Sea church Call Devin at 805.772.2046

Ojai2nd Thursday, 7:00 pm Oak View Community Center or 4th Tuesday, 12:45 pm, Eggs and Things Call Donna at 805.646.3750

Santa Maria3rd Saturday, 10:30 am, Café Noir Call Devin at 805.772.2046

Simi Valley1st Monday, 10:00 am Sunrise Christian Fellowship Church Call Dennis at 805.584.2526

Thousand Oaks4th Tuesday, 11:00 am, Location varies Call Darcy at 805.368.7918

VenturaLast Friday, 11:30 am, Carrow’s Call Vincy at 805.340.9627

Inland Empire/Coachella Valley

High Desert 4th Saturday, 10:00 am, High Desert Church Contact Dorothy at 760.241.6247 or [email protected]

Lake Arrrowhead1st Friday, 4:30 pm, Mountain Community Hospital Call Joyce at 909.337.7573

Montclair 1st Saturday, 10:00 am, Montclair Community Center Call Ginny at 909.981.7035

Murrieta/Temecula 4th Saturday, 10:00 am, Chancellor Place Call Bonnie at 951.674.5959

Palm Desert2nd Wednesday, 6:00 pm, Denny’s Restaurant Call Suellen at 760.776.5740

Palm Desert2nd Thursday, 10:00 am, Denny’s Restaurant Call Richard at 760.899.4174

Rancho Cucamonga - Moms with MSRancho Cucamonga Resource Center Call AnaMaria at 909.463.0334 for dates and time.

Riverside1st Saturday, 10:00 am, Kaiser Call Gilbert at 951.544.1441 Temecula1st Wednesday, 10:00, Trinity Luthern ChurchCall Denise at 951.698.9725


UplandLast Wednesday, 10:00 am, Calvary Chapel Call Denise at 909.519.4410

Yucaipa 3rd Tuesday, 2:00 pm, Good Shepherd Church Call Clare at 909.795.5128 or Tom at 909.795.1717

San Joaquin Valley

Bakersfield – African American GroupCall Kim at 661.321.9512 Bakersfield1st Thursday, 7:00 pm Health South Rehab Hospital Call Carol at 661.363.9747

Bakersfield 2nd Wednesday, noon or 4th Wednesday, 9:30 am Lorene’s Coffee Shop Call Mary at 661.397.0489

Bakersfield - Family Support Group4th Saturday, 10:00 am, Call Kim at 661.321.9512

Fresno 1st Monday, 7:00 pm San Joaquin Valley Rehab CafeteriaCall Karen at 559.871.115

3rd Thursday, 9:30 am Call Yolanda at 559.908.4644 or Doris at 559.299.2072

Hanford -- NEW day/location! 1st Thursday, 10:00 am, First Christian Church Call Barbara at 559.584.1903 or Debra at 559.585.8054

Lake IsabellaCall Jennifer at 760.549.3838

TehachapiCall Kim at 661.321.9512 if you are interested in this group.

Visalia2nd Saturday, 10:00 am, Call Jim at 559.734.7576

LiNKIf you have been recently diagnosed with MS, you probably have many questions and concerns. The LiNK program matches people who are newly diagnosed with a peer via one-on-one phone or email correspondence. Take the opportunity to ask questions of a person who personally understands life with MS.

Please call Mary Ann Holm at 800.344.4867 for more information or to sign up.

Talk to Someone with MSChat one on one with someone else who has MS! In our Peer Support program, you are matched with a trained volunteer who has MS and is dedicated to helping you navigate the challenges of the disease. This long running program has successfully paired hundreds of clients with a peer who can truly understand what it means to live with MS. Peer Support all takes place via phone, so there is no need to travel to get the support that you need and deserve. Please call Mary Ann Holm at 1.800.344.4867 for details or to sign up.


The National MS Society provides scholarships for people with MS or children who have a parent with MS. Applicants must be planning to attend an accredited post-secondary school for the first time and to take at

least six credit hours per semester leading to a degree, license or certificate.

Recipients are selected on the basis of financial need, academic performance, compelling personal or family circumstances, and an essay (written by the applicant) on the impact of MS on their life. Awards range from $1,000–$3,000 for one year; a small number of four-year awards are also offered.

Applications are accepted between October 1, 2010 and January 14, 2011. To apply, visit www.nationalMSsociety.org/scholarship or call us at 800.344.4867.

If you are interested in funding a scholarship, please call Kate McIntosh at 310.479.4456 ext. 124.

2010 Scholarship Recipient Sarah Ohashi

Virtual Book Club

If you love to read and enjoy discussing

books with other book lovers,

join the MS Book Club!

Society Scholarships

Participate from the comfort of your own home. Book club meetings take place every other month via conference call. Group members are asked to read the selection before the meetings. Please call Tiffany Jordan at 800.344.4867 to sign up and receive the dial-in number.

You may also call Tiffany to request the club’s selection from the Chapter’s lending library. Paperback copies or the book on CD are both available. We’ll even provide a return postage-paid envelope.

The next books we’ll read and meeting dates are:

Wednesday, September 15 at noonRabbit-Proof Fence by Doris Pilkington

Wednesday, November 17 at noonThe Year of Living Biblically by A. J. Jacobs


Learn from leading medical researchers about the causes of MS and how research efforts in this area may lead to treatments and even finding a cure.

This DVD program highlights specific studies in the areas of the causes of MS, such as:

• Immunologic

• Environmental

• Infectious

• Genetic

• Possible link between chronic cerebrospinal venous insufficiency (CCSVI) and MS

Each participant will receive a workbook full of valuable information.

Cost: FREE

Hosted by the following community self-help groups:

BakersfieldWednesday, September 22 9:15 – 11:15 am National MS Society office 1800 30th St., Suite 105

BakersfieldThursday, November 4 7:00 – 8:30 pm Health South Rehab Hospital, 5001 Commerce Dr.

FresnoThursday, October 21 9:30 – 11:30 amSan Joaquin Valley Rehab, 7173 N. Sharon

LancasterThursday, November 18 6:30 – 8:00 pm Antelope Valley Family YMCA43001 10th Street West

OjaiThursday, October 14 7:00 – 9:00 pm Oak View Community Center18 Valley Rd.

Redondo Beach Sunday, October 10 7:00 – 8:30 pm Beach Cities Health District, 514 N. Prospect

Santa BarbaraWednesday, October 20National MS Society office14 W. Valerio St.

Simi ValleyMonday, October 4 10:00 am - 12:00 pmSunrise Christian Fellowship Church 2350 Shasta Way

TemeculaWednesday, October 6 10:00 am - 12:00 pmTrinity Lutheran Church

Who? Why? How? Searching for the Cause of MS


UplandWednesday, October 27 10:00 am – 11:30 am Calvary Chapel2060 W. 11th St.

VenturaFriday, October 29 11:30 am – 1:30 pm Carrow’s2401 E. Harbor Blvd.

VisaliaSaturday, October 9 10:00 am - 12:00 pmKaweah Delta Rehabilitation Hospital 840 South Akers St.

West CovinaWedensday, November 10 11:00 am – 1:00 pm Senior Center2501 E. Cortez, Room 16

West Los AngelesMonday, September 27 6:30 – 8:30 pm National MS Society office 2440 S. Sepulveda Blvd., Suite 115

West Los Angeles - Men’s GroupTuesday, October 19 6:00 – 8:00 pm National MS Society office 2440 S. Sepulveda Blvd., Suite 115

Sign me up!


800.344.4867



The Chapter offers a wide array of individual and group counseling services. Licensed profesional therapists will help you find peace of mind as you cope with a diagnosis, changes in symptoms, stress and/or depression. What you’re feeling is common and you are not alone. We’re here to help you move forward. Please call 800.344.4867 to access any of the resources listed below. One-on-one counseling We can connect you to licensed mental health professionals who know and understand MS, as well as help with financial assistance for accessing these resources.

Our TELECOUNSELOR program offers 8-10 individualized sessions via telephone with a licensed therapist provided by the National MS Society. Improve your ability to cope with MS—with all of the comfort and ease of calling from your own home.

Group counselingSupport groups led by a licensed professional offer a place for you to connect with peers in a safe, comfortable environment. Eight-week groups are address specific issues, depending on where you are with your diagnosis.

A professional counselor facilitates an in-person evening group for people diagnosed in the last two years, who are looking for accurate MS information in addition to emotional support. Guest speakers include an MS neurologist and an employment specialist.

A convenient phone group offers professional support for those who are facing significant challenges and disability. This is a great way to connect with others who may be feeling isolated and alone, and have difficulties leaving home.


Get the Emotional Support You Need

Life is stressful enough. Family responsibilities, career obligations — even the everyday grind of battling rush-hour traffic, racing to the supermarket and getting the laundry done — can contribute to raising our anxiety level. When you add in the responsibility of caring for a loved one with a chronic illness, life can

sometimes seem overwhelming. Talking and sharing with others can alleviate some of the stress and isolation that we sometimes feel.

Join us Monday evenings via teleconference and connect with others with similar experiences, share resources and receive information that can help you support your loved one.

Monday evenings, 5:30 — 7:00 pmSupport group facilitated by caregiver and caregiver coach Jon Strum

Cost: FREE

Sign me up!

Call Mary Ann Holm at 800.344.4867 or 310.479.4456.

For the Family

Caregiver Telephone Support Group

Every member in the family lives with MS when a loved one is diagnosed. At this monthly family support group, you will meet with others who understand what it’s like to live with MS. On September 25th, Nona Tolentino, program director for Kern County’s Long-Term Care Ombudsman program, will answer your questions about long-term care.

Cost: FREE

Bakersfield Saturday, September 25 10:00 – 11:00 am National MS Society office 1800 30th Street, Ste. 105 Sign me up!


Call 800.344.4867


Family Support Group



In the Coachella Valley/ Inland Empire

In Los Angeles County

MS Specialist Dr. Daniel Bandari will discuss the latest research updates, including disease-modifying therapies slated for release in the next 2-3 years. We will also be recognizing our local community partners.

Featured presenter: Daniel S. Bandari, MD is Director, MS Center of Southern California & Research Group Clinical Assistant Professor of Neurology & Neuro-immunology in Thousand Oaks.

Cost: FREE

Palm Desert Saturday, November 20 9:00 am – 12:00 pm University of California, Riverside, Palm Desert 75080 Frank Sinatra Drive, B114-117

Better Therapies, Better LifeAdvances in treatment of MS

Your Mental Health and the Holidays

Sign me up! Mail or fax form on page 31. Call 800.344.4867.


Keeping your spirits up during holiday time can be tough especially when friends and family are away. Learn coping skills that will lift your spirits and help you make holiday cheer and be merry. Prepare yourself on a positive note welcoming in the New Year.

What will I learn?How to cope with emotional issues • surrounding holiday timeThat you are not alone during this festive • timeWhere to go for support• How to control depression and mood – be • happy!

Featured presenter:Helen G. Meek, MA, MFT is a licensed marriage & family therapist in private practice in Santa Clarita since 1987. She has worked with people who have MS and their families for many years.

Cost: FREE

Santa Clarita Wednesday, November 10 6:30 – 8:00 pm Blessed Katari Catholic Church 22508 Copper Hill Dr., Slattery Hall


In the Coachella Valley

MS Wellness ForumJoin one or more of these interactive workshops on managing MS and its related ongoing life issues. This series provides you the opportunity to interact directly with local MS specialist Dr. Elizabeth Morrison, as well as other local health care professionals and to network with others affected by MS.

Wednesday, October 13 Q & A with Dr. MorrisonFeaturing: Elizabeth H. Morrison, MD, MSEd is Director of Faculty Development at Eisenhower Medical Center in Rancho Mirage, CA. She is an MS specialist who recently joined Eisenhower Medical Associates.

Wednesday, October 20 Stress & MeditationFeaturing: Beth Mulligan is a Certified Physician Assistant who received her Bachelors degree from Tufts University and her medical education at Duke University. She has practiced medicine for 25 years. She also has a background in, meditation, Yoga and Martial Arts. She trains physicians, nurses and therapists in stress reduction.

Wednesday, October 27 Bowel, Bladder and Sexual Dysfunction and Healthy Living with MSFeaturing: Dr. Elizabeth Morrison (see bio above) & Suellen Evavold, Chapter manager for the Coachella Valley. Suellen has worked extensively in the field of chronic illness, and holds a PhD in health policy and degrees in education and social work.

Wednesday, November 3 Benefits of ExerciseFeaturing: Danielle Meglio, COTA/L, MLD/CDT teaches at Loma Linda University in the occupational therapy department. She specializes in education, wellness & exercise classes. Danielle holds certification in arthritis classes, Tai-Chi, Ai-Chi, Pi Yo-Chi, Lebed & personal training.

Wednesday, November 10 Health Insurance Counseling & Advocacy: Understanding the many options available for their health care.Featuring: Kimberly Speigel is the Eastern Regional Coordinator for the Inland Agency HICAP program. HICAP is California’s federally mandated State Health Insurance Assistance Program for Medicare. Kimberly works in the community providing information and education about the Medicare program to beneficiaries, caregivers, and healthcare providers

Cost: FREE program, includes light refreshments

Rancho MirageWednesdays, October 13 – November 10 6:00 – 7:30 pmAnnenberg Center, Eisenhower Medical Center, 39000 Bob Hope Drive

Sign me up!


Call 800.344.4867



In the Coachella Valley/ Inland Empire

In January, the FDA approved the first therapy specifically approved to treat a symptom of MS, and it represents a big step forward for the many people who may benefit. Learn from Gail Hartley, RN, MSNP, about the latest research and advances to keep people with MS walking.

Also, hear from a Walk MS team captain about their experiences with this important fundraising event that supports critical research advances.

Learn about… • Advances around gait and walking • Ampyra™, the new FDA-approved

treatment shown to improve walking in people with any type of MS

• Functional electrical stimulation devices, such as WalkAide and Re-Walk

• Rehabilitation research

Cost: FREE program, includes lunch

TemeculaSaturday, November 13 11:00 am – 1:00 pm Pat and Oscars29375 Rancho California Rd.

Sign me up!


Call 800.344.4867.

nationalMSsociety.org/CALcalendar

Keep WalkingNew Treatments & Research

Keep Walking will also be offered in January in the following cities:

• Bakersfield• Palm Desert

• Lancaster• San Luis Obispo


Coming soon!


Stress can have a huge impact on one’s physical and psychological health. To avoid its ill effects, it is important not only to learn effective stress reduction techniques, but to also develop a keen awareness of how and when tension arises in mind and body so that the stress response can be averted or minimized. This interactive program provides valuable tools that everyone can use.

Featured presenter: Devin Wallace is the Programs Manager for the San Luis Obispo and northern Santa Barbara County areas. Devin has designed and managed therapeutic and educational programs for people with disabilities for over 12 years. Cost: FREE

Paso Robles Tuesday, September 29, 2010 10:30 am – 11:30 pmPaso Robles Senior Center, 270 Scott St.

Stress is What You Make of It

In Channel Islands

Sign me up!


Call 800.344.4867.


You know that listening to and creating music can make life more enjoyable. But did you know it also has the potential to improve coordination, walking, balance, memory and other cognitive functions? Or that it can help relieve stress and depression?

Join musician and songwriter Devin Wallace for an inspiring, interactive musical experience, where you’ll both discuss and make music.

What will I learn? • About recent research on the therapeutic

benefits of music • Some new songs (drawn from a repertoire of

more than 100 years of American music) • How music can be used on a daily basis to

enhance mental and physical functioning

Featured speaker: Devin Wallace, programs manager for the San Luis Obispo and northern Santa Barbara County areas, has been writing and performing music for 40 years.

Cost: FREE, includes light refreshments

Lompoc Saturday, December 4, 2010 2:00 – 4:00 pm Lompoc Public Library501 E. North Ave.

Music as Medicine

MS Community CircleThese groups for people with MS, and their family and friends include workshops, discussions and presentations on psychosocial topics related to personal growth, and adaptive exercise.

Meets Fridays at 10:00 am at First Presbyterian Church in San Luis Obispo. Call Devin at 805.772.2046 .

Meets 3rd Wednesday of the month at the National MS Society office in Santa Barbara.

Call Francine at 805.682.8783.


Learn to advocate for your rights and for people with disabilities in your community.

What will I learn?

• Advocacy Prep – what materials need to be organized, what information researched, and how to determine success

• Who are the government officials and policymakers that are appropriate to approach for your particular issue

• Why relationships determine results and what organizations can assist in achieving your goals

• What advocacy tools we use to be effective.

• The National MS Society’s state and federal advocacy priorities

Featured presenters: Cheryl Roberto-Lvovsky, MSW, the Chapter’s Manager of Government Relations and Individual Advocacy and Benjamin McFarland, Field Representative for Congressman Kevin McCarthy (CA-22).

Cost: FREE

Bakersfield Thursday, October 146:00 – 8:00 pm Bakersfield Community House 2020 R Street

Sign me up!


Call 800.344.4867


Be Your Own Best Advocate

In the San Joaquin Valley

In the community: Art for Healing

Art-making, music and dance can aide in a person’s physical, mental and emotional recovery, including relieving anxiety and decreasing the perception of pain. Mercy Hospitals of Bakersfield offers the “Art for Healing” program to patients (including those living with MS), their families, healthcare providers and the general public, including: • Working with clay • Mask making • Painting • Music, dance, drumming

For current program listings and more information call Mercy Hospital at

661.324.7070.


Are you or your loved one in need of some extra help around the house? Help can range from personal care services such as personal hygiene and assistance with transfers to friendly companionship for errands and projects around the house to homemaking activities such as meal preparation and light housekeeping. Learn about the advantages of in-home care in a non-medical situation and the expenses associated with these services.

What will I learn? • What in-home services are all about:

personal care, homemaking activities and companionship

• Expenses associated with in-home care • If in-home care right is for you or your

loved one

Featured presenter: Will Mulry is the Director at Griswold Special Care. An insurance specialist will answer questions regarding the financial aspects of in-home care.

Cost: FREE

Valencia Tuesday, December 7, 2010 6:30 – 8:00 pm Griswold Special Care, 27240 Turnberry Lane, Ste. 200

Sign me up!


Call 800.344.4867


Help Around the HouseIn Los Angeles County

High Desert Medical Group is celebrating its 20th anniversary by hosting this expo with 100+ vendors. There will be free prize drawings and local entertainment, as well as free health screenings and flu shots (age 65+). Stop by the Society’s booth.

LancasterAV Fairgrounds, 2551 West Avenue H Thursday, October 7, 2010 9:00 am - 3:00 pm

In the Community: Senior Expo


Get Involved!

Do you have a special talent, an excellent connection, deep resources or creative ideas which can help us raise MS awareness in our local communities? If so, we can use your help so that we can create a world free of MS! Join meetings with local volunteers and brainstorm on different ideas for raising MS awareness in our community throughout the year.

Bakersfield Contact Christine Grontkowski at 661.321.9512 or [email protected]

Fresno Contact Fotini Alfieris at 559.439.2154 or [email protected].

Inland Empire Contact Todd Eckel at 909.949.1363 or [email protected]

Santa Barbara and Thousand Oaks Contact Jaimie Quinby at 805.682.8783 or [email protected]

Santa Clarita Contact Jon May at 661.945.9111 or [email protected]

Communities United Against MS Help Wanted:

Volunteers & Participants Needed

myMSchallenge.com

bike MS: SouthernCalifornia

o C to b e r 1 6 –1 7, 2 0 1 0 / / / V e n t u r a , C aaCCept the Challenge

r e g i S t e r to day / / / b i k e M S S o C a l . o r g o r C a l l 3 1 0 4 7 9 4 4 5 6

a n u n f o r g e t ta b l e r i d ea n u n b e ata b l e d e S t i n at i o na w o r l d f r e e o f M S


Name: __________________________________

Date of diagnosis: _____________ Age: _______

Address: _________________________________

City: ___________________________________

Zip: ____________________________________

Phone: __________________________________

E-mail: __________________________________

Mobility device used (if any): ________________

________________________________________

I’d like to register for these program(s):

Accessibility at Home (teleconference – 9/21)

Active Choices (pay on next page for Chapter-sponsored exercise classes. Check p. 12 - 14 for cost.

Fitness series type:

City: _______________Day:

Advances in MS Care _______ # attending

Guest name(s): ________________________

Choose one: Bakersfield Pasadena

Santa Barbara

Best Advocate (Bakersfield – 10/14)

____ # attending

Guest name(s): _____________________

Sign Me Up! Mail or fax registration to your local National MS Society office. Or register online at


Southern California Chapter2440 S. Sepulveda Boulevard, Suite 115Los Angeles, CA 90064310.479.4436 fax

Channel Islands Office14 West Valerio StreetSanta Barbara, CA 93101805.563.1489 fax

Inland Empire Office869 E. Foothill Boulevard, Suite IUpland, CA 91786909.949.0766 fax

Coachella Valley Office73-710 Fred Waring Drive, Suite 103Palm Desert, CA 92260760.776.5742 fax

Antelope Valley & Santa Clarita Valley Office1669 West Avenue J, Suite 309Lancaster, CA 93534661.948.6875 fax

Kern County Office1800 30th Street, Suite 105Bakersfield, CA 93301661.321.9518 fax

San Joaquin Valley Office7472 N. Fresno Street, Suite 210 Fresno, CA 93720559.439.1745 fax

For more information, call 800. 344.4867 or visit nationalMSsociety.org/CALcalendar.

Registration form comtinued on next page

Total Enclosed $ _______________

Check enclosed or Charge my: Visa MasterCard AmEx Discover

Account # ___________________ Exp. Name on Card

In consideration of your acceptance of this application, I hereby, for myself, my heirs, executors and administrators, waive and release any and all rights and claims for damages I may have against the National MS Society, Southern California Chapter (NMSS) or any other people connected with this program, their agents, representatives and assign for any and all injuries suffered by, or illness to, myself resulting in participation in this program. I give the NMSS permission to use my name and my guests’ names, photograph or other media taken of us during the event for promotional materials, publications or on the NMSS Web site. Signature: _____________________________________________________Date: _______________________

Better Therapies (Palm Desert – 11/20)

_____ # attending

Guest name(s): _____________________

CogniFitness ($25/person, pay below)

City:_______________________________

Fall Prevention(SLO: $25/person, pay below)

_______ # attending

Guest name(s): ______________________

Family Support Group (Bakersfield – 9/25)

_____ # attending

Guest name(s): ______________________

Help Around House (Valencia – 12/7)

____ # attending

Guest name(s): _____________________

Keep Walking (Temecula – 11/13)

____ # attending

Guest name(s): _____________________

Mental Health/Holidays (Sta Clarita – 11/10)

____ # attending

Guest name(s): _____________________

MS Wellness Forum (Rancho Mirage)

____ # attending

Dates attending: ____________________

Guest name(s): _____________________

Music as Medicine (Lompoc – 12/4)

____ # attending

Guest name(s): ______________________

Qigong (West LA – 10/28)

____ # attending

Guest name(s): ______________________

Stress (Paso Robles – 9/29)

____ # attending

Guest name(s): _____________________

Who? Why? How? _______ # attending

City:_______________________________

Guest name(s): ______________________

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2440 S. Sepulveda Boulevard, Suite 115Los Angeles, CA 90064

Researching the Relationships Between People with MS & their Caregivers

Researchers at UC Irvine have been provided with a grant from the National MS Society to research the relationship between people with MS and their caregivers. Participants are needed for this important research study.

Study Qualifications:Have a definite diagnosis of MS• Have an MS-related disability • Have a caregiver (either a family • caregiver or a paid attendant) English-speaking • Must be 18 years of age or older •

What is involved: A research assistant will conduct a one-time home visit to your place of residence that will last approximately 1.5 hours. Compensation is $30.

For more information or to sign up, call Wendy Beattie at UC Irvine at 714.456.8697.

Documents

Programs Connection, Sept - Dec 2010