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Georgetown Area
Parkinson’s Support Group
Issue 2 http://georgetowntxparkinson.weebly.com/ February 2018
Mary Jane Berry [email protected] 512-240-4167 (h) 512-658-3658 (c)
Next MeetingsCaregivers/Care Partner Support Group Meeting:Thursday, February 8, 2018;(Always on the 2nd Thursday of the month!)2–3 pm2423 Williams Drive, Georgetown,Texas.Georgetown Health Foundation meeting room.All care partners/caregivers are verywelcome to join us!Parkinson’s Support Group Meeting:Thursday, February 22, 2018 (Always on 4th Thursday of the month!)
2– 4 pm2423 Williams Drive, Georgetown,Texas.Georgetown Health Foundation meeting room.
January Meeting SummaryWe had another GREAT meeting onJanuary 25th with 121 members in attendance. Dr. Salima Brillman,Movement Disorder Specialist from at theParkinson’s Institute & Clinical Center inSunnyvale, CA presented to us on the topicof “Neurogenic Orthostatic Hypotension”(nOH). She was joined by Keith and LindaHall from Boston, MA who are nOHPatient/CaregiverAmbassadors. Theyjointly presented onthis disease state withDr. Brillman sharingabout the symptoms,causes and treatment.Dr. Brillman describedOrthostatic hypoten-sion (OH) as a sus-tained drop in bloodpressure that occursafter standing, and it may happen for avariety of different reasons. When OH is associated with nervous system disorders, such as Parkinson’s disease (PD),multiple system atrophy (MSA), or pureautonomic failure (PAF), it’s called neuro-genic orthostatic hypotension (nOH).People living with nOH may experiencesymptoms when they stand, such as light-headedness, dizziness, or the feeling thatthey are about to black out. She suggestedsome lifestyle changes such as:
❖ Drinking more water
❖ Increasing salt in your diet
❖ Avoiding carbohydrate-heavy meals,caffeine, and alcohol
❖ Wearing compression stockings or anabdominal binder
❖ Avoiding standing still for prolongedperiods of time
❖ Elevating the head of your bed
❖ Slowly rising when standing
❖ Using caution when walking or changing positions if you feel dizzy
❖ Getting regular exercise
After Dr. Brillman’s presentation Keith andLinda Hall, shared how nOH had affectedthem and the impact on their life as a
patient and care partner. Keith, whohas Parkinson’s wasvery open to share hischallenges and it pro-vided an atmospherefor many questionsfrom our members. Itwas a great meetingwith again a largegroup of attendees.’The Hall’s were very
kind to stay longer after the meeting toanswer questions, along with representa-tives from Lundbeck. I would like to thankChristine Reed for the refreshments and forcoordination in bringing in the speakers.And, a BIG-O-TEXAS thank you to Dr.Brillman and to Keith and Linda Hall. Ifyou want to learn more about nOH, click on this website:https://www.nohmatters.com/orthostatic-hypotension-management
February 22, 2018Parkinson’s Wellness Program
Dr. Sara King, PT DPT
Dr. King is very passisonate about helping others achieve
the best version of themselves andbelieves in the ability of the human bodyto heal itself given the right tools.Theright combination of exercise nutrition,stress management, and sleep is very beneficial and therapeutic for Parkinson’s Disease.
February Refreshment Sponsor
All care is dedicated to the rehabilitativeneeds of all members of our community inGeorgetown,Texas and surrounding areas.Currently, offer occupational therapy physicaltherapy, and aquatic therapy.
Julie Creswel, MA, CCC-SLPOwner and Director of Speech Language Pathology
All Care Therapies of Georgetown4402 Williams Drive, Suite 115 Kieth and Linda Hall
Center three Speakers, left to right: Dr. SalimaBrillman, Keith Hall and Linda Hall.
Georgetown Area Parkinson’s Support Group Meetings 2018
Parkinson’s Caregivers
Support Group Meeting
Parkinson’s
Support Group
Meeting
SPEAKER
And TOPIC
for Parkinson’s Support Group Meeting
Refreshments
for Parkinson’s Support Group Meeting
January 11
January 25
Dr. Salima Brillman I’m Dizzy, Is It My Parkinson’s?
Lundbeck – Northera Christine Reed 972 -896-0548
February 8
February 22
Dr. Sarah King Invigorate PT & Wellness
Care Therapies of Georgetown Julie Creswell 512-256-7627
March 8
March 22
Dr. Britt Stone Let’s Talk Parkinson’s
Abbott - DBS Beth Erwin 210 -639-3909
April 12
April 26
Social and Health Fair Ice Cream and Cookies ~ YEAH!
Members bring COOKIES!
May 10
May 24
Dr. Michael Soileau FAQ’s on Parkinson’s
Medtronic Damon & Donny 702 -354-4100
June 14
June 28
Annette Juba, LCSW, Deputy Director Dynamics of Caregiving
US World Meds - Apokyn Clint Graves 806 -672-2033
July 12
July 26
? waiting confirmation? Driving while Aging
?
August 9
August 23
Dr. Christy Khoury-Dennis, Pharmacist Medication Management
?
September 13
September 27
? waiting confirmation? Financial & Legal Considerations for PD
?
October 11
October 25
? Dr. Elizabeth Peckham? To be confirmed
?
November 8
November NO mtg.
“NO” Support Group Meeting
Happy Thanksgiving
December No mtg.
December 13
Christmas Social and LUNCH Merry Christmas 20181
Merry Christmas
Thank You toGeorgetownTriathletes!
We received a $2000 donation toward our “Movin’to Wellness” Classes
❖❖ Dancing❖❖ Chair Yoga❖❖ Singing
Capital AreaParkinson’s Society CAPS website
No meeting in February due to facilityremodel however, The Capital AreaParkinson’s Society meets on the 3rdSaturday of each month from 2 – 4 pm,in the 5th Floor Conference Room of theMedical Office Building at St. David’sMedical Center. The address is 3000 North IH-35,Austin, 78705.
Plummer Movement Disorder Foundation
and
Central Texas Advocacy for Parkinson’s (CTAP)
10th Annual Parkinson’s Gala
“A Night in White”
April 7, 2018
6pm to Midnight
Bell County Expo CenterAssembly Hall, Belton,Texas
DBS Support Group in GeorgetownWe have a DBS Support group in Georgetown — GADS! TheGeorgetown Area DBS Support with the goal to share informationregarding Deep Brain Stimulation (DBS) in a relaxed casual discussion format. This group is for those who have had DBS orthose seeking information and/or considering DBS!
February 21, 2018(Every third Wednesday ofthe month!)2 – 3 pm
104 Wild Turkey Lane,Georgetown,TX 78633
Judy Mayo [email protected] 512-943-9084
Power for Parkinson’s https://www.powerforparkinsons.org/
Power for Parkinson’s celebrated their 5th birthday with dance, song, food andcommunity! Thanks to all who joined inthe celebration and the volunteers whohelped make the event run seamlessly.Thanks to the instructors, who kept every-one moving, Nancy Bain for her tremen-dous choreography and Maggie Moore forleading our new Powerful Pipes singinggroup. CONGRATULATIONS and HappyBirthday to Power for Parkinson’s!
Fitness for Parkinson’s in Round Rock
Thursdays — “Power for Parkinson’sFitness for PD” — meets every Thursday at 1pm in Round Rock at 2111 Sam BassRoad in the N’Caliente Fitness and ZumbaStudio! This Round Rock location hasstarted a LUNCH GROUP too!
Dance for PD®:https://danceforparkinsons.org/
Dance for PD is pleased to administer class-es live from Brooklyn weekly on Fridaysfrom 2-3 pm, and proud to include theresource on our digital class archive.
PD Movement Lab is expanding its presence online, conveying vital informa-tion, offering resources, and delivering best practices in the management of PD to people with Parkinson’s everywhere. Learnmore by visiting www.pdmovementlab.com
Check out Parkinson’s Music too! Besidesmedications, music is an important tool touse to manage my Parkinson’s.https://pdmovementlab.com/parkinsons-music/
Dancing with Parkinson’s
Let’s Dance… this is fun and FREE! For questions, callNancy at 512-940-0148. Also, looking for volunteers tohelp our dancers!
Dancing classes are at Georgetown Palace TheatreEducation Building…please join us every Tuesday at 1:30pm for FUN and ‘Movin’ FELLOWSHIP!
Sponsors: Georgetown AreaParkinson’s Support Group andGeorgetown Triathletes.
April is Parkinson’s Awareness Month andis recognized throughout the world to raisepublic awareness about Parkinson’s disease.Although there are no official statistics,Parkinson’s disease is thought to affect over1,000,000 people in the United States with
increasednumbersworldwide!
Chair Yoga with Parkinson’s
Let’s Stretch and Meditate, it is FREE! This is a FUN and great way to start the day! Join usevery Wednesday at 9 am at our usual monthly support group meeting location, 2423Williams Drive, Georgetown, Texas. Georgetown Health Foundation meeting room.
Singing with Parkinson’s
Date: meet every Monday
Time: 11:00 am to 12 noon
Location: Room E2.103, First Baptist Church,1333 W University Ave., Georgetown
Music/Singing Facilitator:Ron Franklin, #210-392-0098 or [email protected] Fontenot 512-963-7133 or [email protected] or email for questions!
Pictures: https://youtube/be/dLJDIQ9VoLMhttps://youtube/hFEqwBimnNE
Why Singing? Singing uses the same muscles asswallowing and breathing control, two functionsaffected by Parkinson’s disease.https://medicalxpress.com/news/2017-08-good-medicine-parkinson-patients.htmlSo join us for a health benefits, for FUN and to make ‘joyful sounds!’
Tai Chi forNeurological Diseases TheGeorgetownNeuropathySupport Grouphas invited us to join them for their Tai Chiclasses. The class is on Thursday mornings9 am – 10:30 am at our same meeting loca-tion, 2423 Williams Dr., Suite 101. The costis $8 for walk-ins; $50 for 12 weeks (recommended). To learn more and register, please visit https://neuropathyal-liancetx.org/register-tai-chi/
Exercise ClassesCheck these calendars for GREAT andFREE exercise classes:➣ Georgetown Area Parkinson’s Movin’ to
Wellness: http://georgetowntxparkin-son.weebly.com/calendar.html
➣ Power for Parkinson’s http://www.powerforparkinsons.org/
Foundations Updates➣ Michael J Fox Foundation
Michael J Fox Website➣ Parkinson’s Foundation
Parkinson’s Foundation Website➣ Parkinson’s Research Foundation
Parkinson’s Research Website➣ Davis Phinney Foundation
Davis Phinney Website➣ St. Louis American Parkinson’s
Disease FoundationAmerican PD Foundation Website
➣ WOW! — a list of “world-wide”Parkinson’s Support Groups! World Wide Groups
Parkinson’s Awareness WalkApril 21, 2018; Contact Bob Gessler 512-688-3179
To bring awareness and to raise money for the Parkinson’s Foundation please joinus on: Saturday,April 21, 2018 at 10 am registration and 10:30 start walking.Wewill meet at SanGabriel Park, area 1.
Boxing with Parkinson’s
Amos Flint is January Fighter of the Monthfor 4:13 Fitness Georgetown. He was diag-nosed in January, 2017, and is a patient ofDr. Soileau. In July he began going to 4:13Fitness and has been going three days aweek since then. His favorite activity is boxing with Bob, the dummy. He says,“I like to practice my jabs, hooks, anduppercuts on Bob most of all. My leastfavorite is when we have to jump rope.”Amos’ cornerworman is his wife, Dixie.He grew up in LaGrange, Illinois, and after college graduation, took a job withLiberty Mutual Insurance Co. He subse-quently worked his way up to the DivisionFinancial Operations Manager in Texas.Amos’ favorite hobby is playing golf,although he hasn’t played in a few years.Playing again is on his to do list.“I havemade some friends at the boxing classesand I hope to associate with them aftgerclasses also. I enjoy being with Ray and thetwo Daves in our class. The coaches wehave now, Kristi and Cynthia, are bothgreat,” he says.
Tips for Parkinson’s➣ Most people with Parkinson’s disease
(PD) will experience change’s in speech,voice and swallowing at some pointduring the course of the disease. Thesame PD symptoms that occur in themuscles of the body — tremor, stiffnessand slow movement – can occur in the muscles used in speaking andswallowing. This can cause the following issues:
✓ Soft voice
✓ Mumbled or fast speech
✓ Loss of facial expression
✓ Problems communicating
✓ Trouble swallowing
➣ A referral to a Speech-language pathol-ogist — healthcare professionalstrained to evaluate and treat peoplewith speech, voice, language, memoryand swallowing problems— could bevery beneficial. Read more here:http://www.parkinson.org/sites/default/files/Speech-Swallowing.pdf
➣ Here are a few tips to remember while eating:✓ Sit upright at a 90-degree angle.
✓ Tilt your head slightly forward.
✓ Lessen distractions while eatingand drinking, stay focused
✓ Don't talk with food in your mouth.
✓ Eat slowly.
✓ Cut your food into small pieces, andchew it thoroughly.
✓ Keep in mind that you may need toswallow two or three times per biteor sip.
✓ If food or liquid catches in yourthroat, cough gently or clear yourthroat.
✓ Concentrate on swallowing frequently.
✓ Use thickeners is to make all liquids, including beverages andsoups, a thicker consistency that isless likely to cause aspiration.
✓ Consult/Referral to a speech thera-pist for swallowing evaluation!
Fighter of the Month for January“Famous Amos” Flint
Abundant Blessings
➣ Beats Medical — This is a mobility app for your smart phonethat you can use provides specialized cueing treatment that canhelp improve your mobility. It does cost…so, you check it outhttps://www.beatsmedical.com/ and here is another article:http://parkinsonslife.eu/ciara-clancy-beats-medical-award-win-ning-mobility-app/
➣ FREE Dinner and Hear Dr. Soileau — Yes, you are invited fora dinner program with Dr. Soileau on March 14 at 5:30 pm atthe MasFajitas Mexican Restaurant, 3010 Williams Drive,Georgetown, TX 78628. This dinner program is FREE forpatients/caregivers to attend. It will be informal and a great way to learn more about options for treating advancingParkinson’s disease.You will also learn more about Duopa.Dr. Soileau, of course, will do a fantastic job answering questions and presenting.We do ask that anyone planning toattend RSVP by March 11 so we can get a head count for therestaurant. Register: 877-261-5230
➣ Webinar on Parkinson’s Disease Psychosis: Hallucinations,Delusions and Paranoia — Have you seen the commercial?Scary! — This does not happen to all Parkinson’s patients! —As part of chronic Parkinson’s disease and its treatment,psychotic behaviors may occur in some patients. These prob-lems include illusions (perceptual errors), hallucinations (falseperceptions), delusional thinking and even suspiciousness andparanoid behaviors. Life style changes, medication adjustments,and new specifically anti-psychotic treatments are available.Learn more by registering now for a FREE Expert Briefingwebinar given by Parkinson’s Foundation taking place onTuesday, February 27, 2018 at noon. Click on this linkto register:http://event.netbriefings.com/event/pdeb/Live/psychosis/register.html
➣ Devotional — Your stuff isn’t You — When one of the wealthiest men in history, John D. Rockefeller, died his account-ant was asked by an acquaintance “How much did John D.leave?” His reply? “All of it!” No one takes anything with him!Think about the things you own, all your stuff. Then let meremind you your stuff isn’t yours. And you know what else?Your stuff isn’t you! Jesus explained in Luke 12:15 that life isn’t defined by what you have, even when you have a lot.Contentment comes when we can honestly say with the ApostlePaul,“I have learned to be satisfied with the things I have. Iknow how to live when I am poor, and I know how to live whenI have plenty.” (Philippians 4:11-12).Actually, we all have somuch! You have a God who hears you, the power of His love allaround you, the Holy Spirit within you, and all of heaven aheadof you.We have everything you need! By Max Lucado
➣ Preventing Senior Accidental Overdoses — A growing concern for family caregivers is the possibility of a loved one’saccidental overdose. preventing-accidental-overdose
➣ Alternative Pain Relief Seminar — Often the aging processbrings an assortment of ailments, maladies, diseases that couldresult in pain! There will be a seminar in Sun City to learnabout the medicinal powers of cannabis. It is open to the public. The seminar will be Thursday, February 8 from 6 to 8 pmat Sun City Atrium, 1 Texas Drive, Georgetown.
➣ Keep Traveling with Parkinson’s — David and Patty Lingorecently cruised to South America! We recommend — don’t letParkinson’s slow you down — travel. Go see the penguins, Pattysaid they were soooo cute!
➣ Caregiver’s also known as Care Partners — This is a GREATresource for you! http://www.ageofcentraltx.org/caregiver.php
➣ Webinar, Depression and Anxiety in Parkinson’s Disease —Michael J. Fox Foundation is replaying a popular webinar ondepression and anxiety. Discussion on Parkinson’s symptoms of depression and anxiety, and how to treat and manage thisaspect of life with the disease. Thursday, February 15 at 11 amhttps://www.michaeljfox.org/understanding-parkinsons/webinar
➣ Do you need help with Medication Expenses? There aregrants to help you! One of our members shared a source fornew funding that picks up the or the drug, after insurance pays. It is called “The Assistance Fund” (800-845-3663) ontafcares.org With their phone help, she filled out the form online and her husband was approved almost immediately. Manypeople may be in need of funding for drugs that are too expen-sive to purchase and here is a resource to help! A BIG thank youto Claire Elliott!
➣ Webinar, LSVT LOUD — How do you maintain the LOUDgains you made in LSVT LOUD treatment and stay motivatedonce treatment has concluded? Join LSVT LOUD Faculty to hearvaluable insights on post-discharge recommendations followingLSVT LOUD, including continued daily homework practice,tune-up sessions and LOUD for LIFE® maintenance groups.Opportunities will be provided for you to ask questions during the webinar through voice and chat options.Webinar — Wednesday, February 21, 2018 at 1–2 pm.Register: LSVT LOUD Webinar
Reminders and Thoughts
Don’t Forget:
Our Next Support Group MeetingThursday, February 22, 2018
Begins promptly at 2 pm
Dr. Sarah King PT, DPT
“Parkinson’s Wellness Program”
Quick Summary For Meetings and Classes Monday – “Sing with Parkinson’s” every Monday at 11 am
Location: 1st Baptist Church,1333 W University Ave, Georgetown
Tuesday – “Dancing with Parkinson’s” every Tuesday at 1:30 pm atGeorgetown’s Palace Theater Education andPerformance Center 216 W. 8th Street.
Wednesday –“Chair Yoga with Parkinson’s”every Wednesday at 9amLocation: 2423 Williams Drive, Georgetown
Wednesday – DBS Support Group Meeting on 3rd Wednesday at 2pmLocation: 104 Wild Turkey Lane, Georgetown
Thursday – Caregiver’s on 2nd Thursday at 2 pm Location: 2423 Williams Drive, Georgetown
Thursday – Parkinson’s Support Group Meeting on 4th Thursdayat 2 pm Location: 2423 Williams Drive, Georgetown
Thursday – “Power for Parkinson’s Round Rock Fitness”everyThursday at 1:30 pm at 2111 Sam Bass Road,Round Rock
Monday/Wednesday/Friday – Boxing classes start at 9:30 am
Location: 2534 Shell Rd, Georgetown, 512-695-4649
You can’t wrap lovein a box.
But, you can wrapA person in a hug.
A hug charms, warms and makes
Everyone happy.
That must be why God gave us arms.
So here is a hug for you!
