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Well being magazine for Haringey
Citation preview
MAGAZINE FOR WELLBEING
SPR
ING
2013
ISSU
E 48
SPRING ISSUE 48
>> Mindfulness>> Arts & Reviews>> Hearing Voices Network>> Exercise (your self-control)>> An evening of Anti-Psychiatry >> News, views and opinions
EQUILIBRIUM 2
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Equilibrium PatronDr Liz Miller Mind Champion 2008
Photo copyright remains with all individual artists and Equilibrium. All rights reserved. 2011
Equilibrium is devised, created, and produced entirely by team members with experience of the mental health system.
If you know anyone who would like to be on our mailing list and get the magazine four times a year (no spam!) please email:[email protected](www.haringey.gov.uk/equilibrium).
Design: www.parkegraphics.co.uk
Front cover:
Azure D Osborne-Lee: ‘Small Golden Blessing”
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contact usEquilibrium, Clarendon Centre, Clarendon Road, London, N8 ODJ. 02084894860, [email protected]. We are in the office on Friday afternoons 2.30-4.30, but you can leave a message at other times and we’ll get back to you.
Equilibrium is produced by service users. Reproduction in whole or in part is strictly forbidden without the prior permission of the Equilibrium team. Products, articles and services advertised in this publica-tion do not necessarily carry the endorsement of Equilibrium or any of our partners.Equilibrium is published and circulated electronically four times a year to a database of subscribers; if you do not wish to receive Equilibrium or have received it by mistake, please email unsubscribe to [email protected]
Despite the jack-in-the-box nature of this year’s spring (coming and going and taking us all by surprise!) hopefully our Spring issue of Equilibrium will channel some positivity in your direction, whether you’re browsing through it over breakfast in the garden or huddled up in bed in three blankets and a scarf! We hope you enjoy this season’s articles from both the team and guest writ-ers, and thanks to everyone who sent us their spring pictures for the front cover - we loved them all! Although it is a tempestuous time at the moment, with a new round of biting cuts taking effect, a picture of a lamb or two still puts a big smile on our faces.
editorial
disclaimer
contributionsWanted: contributions to Equilibrium! Please email us with your news, views, poems, photos, plus articles. Anonymity guaranteed if required.
the teamFacilitator/ Editor: Kate Massey-Chase. Editorial team: Pumla Kisosonkole, Angela, Dev Chatterjea, Ian StewartGraphic design: Anthony Parké.
Summer/ Issue 38EQUILIBRIUM Summer/ Issue 38
LISTENING TO...
Kate: Dilemma on Radio 4, a panel show chaired by Sue Perkins, discussing moral conundrums; some great music suggested on the blogs Yes Miss Fox (http://yesmissfox.wordpress.com/) and Creativ-ise (http://creativise.wordpress.com/) – their ‘Tuesday Tunes’ and ‘Mid-week Melodies’, respectively, have been introducing me to some new favourites Anthony: Bollywood singing – we’ve broken the car radio and it’s stuck on a random station!Ian: Mark Knofler & Emmy Lou Harris’ new CDDev: ‘80s/90s disco, classical, Indian music – all sorts! I like to mix things up and swap between genres. Polly: A lot of baroque! Marcia: ‘Adorn’ by Miguel. At first I liked it for the soul sound, and now I really like the lyrics too.
GOING TO...
Kate: I’ve been going to yoga for about 6 months now and love it! I’ve also been for a weekend in Prague with my mum, and to the theatre loads – I’ve particularly enjoyed seeing Spymonkey’s Cooped, National Theatre’s One Man Two Guvnors, and Snuff Box Theatre’s Bitch Boxer. Anthony: Life-drawing classes. Lots of naked bodies, which I obvi-ously look at in a very objective and professional way. It’s nice to keep in touch with the basics. Ian: Group meditation, run by the Meditation Trust, where I’ve been discussing experiences of meditation and enjoyed the opportunity to meditate together with others, which can result in a more profound experience. Polly: Macbeth with James Macavoy and Claire Foy, and The Trial a site-specific journey in Shoreditch by Retz Theatre Company. Marcia: The cinema to see Django Unchained, which was really good.
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TH
IS S
PR
ING
, WE
’VE
BE
EN
...
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WATCHING...
Kate: Call the Midwife, based on the memoirs of Jennifer Worth, set in East London in the 1950s. I love the combination of Jenny Agutter, Vanessa Redgrave, Pam Ferris and Miranda Hart, and also the fact that it’s so pro-NHS; I hope Jeremy hunt watches it!Anthony: I’ve been forced to watch Teen Mum and One Born Every Minute against my will, when I’d prefer to be watching Arnold Schwarzenegger! Ian: A range of arts programmes on BBC4, particularly enjoying the ones on painter’s lives. Pumla: Searching for inspiration, but finding it hard to settle with anything. Any recom-mendations for something to follow? Routine can be good for the soul!Dev: I like to watch a lot of comedy, from South Park and Family Guy, to The Two Ronnies. I recently watched a film called Sometimes in April, a historical drama about the Rwandan Genocide of 1994, which was very affecting. The only thing I can’t stand is horror movies – my brother made me watch The Day of Reckoning, which was really scary! Polly: The Challenger – a one-off drama about the enquiry into the 1986 space-shuttle disaster Marcia: I loved watching Mr Selridge – I couldn’t get enough of it! Lots of funny moments, affairs, secrets coming to light, and a bit of the history of the time.
READING...
Ian: Balthazar by Lawrence Durrell, the second book in the Alexandria Quartet. Anthony: Viktor Frankl, Man’s Search for MeaningKate: Dostoyevsky’s The Idiot; also enjoy my free weekly copy of Stylist on the tube, and reading the satirical articles on The Daily Mash (current favourite: ‘Spring thinks it’s too late to start now’, http://www.thedailymash.co.uk/news/environment/spring-thinks-its-too-late-to-start-now-2013040564772)Pumla: Bits of The Guardian I find on the 144 – beats the Metro!Polly: Gardens of Stone – cracking autobiography of somebody in the French Resist-ance. Marcia: Yesterday I read an interesting article in Mature Times, which is about issues that affect older people, about health risks for over 60s, including some information about Bowel Cancer Awareness Month. As more than 8 in 10 bowel cancer cases are in people over 60.
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In February, I went to an Anti-Psychiatry
evening at Nottingham Contemporary
Gallery, for a selection of excellent events
and discussion.
First, there was a film by Dora Garcia (The
Deviant Majority (From Basaglia to Brazil)
2010) flipping from Basaglia’s Triests/Gorizia
anti-asylum movement, to powerful thea-
tre sessions with ‘service users’ in Trieste,
punctuated by stark text-on-screen in the
film The Inadequate. There were interviews
with ‘70s protest leader Carmen Roll from
the SPK (Socialist Patients Collective, later
allied with the Red Army Faction). Strong
stuff. Anti-psychiatry then seemed to be
anti-asylum, anti-capitalism, grown from
the student protests and other protest
groups sweeping parts of Europe.
Then there was a fabulous discussion:
First John Foot, a UCL (University College
London) historian who has developed
a special interest in Basaglia, Turin and
Gorizia and the Italian movement to close
asylums (without much thought of what
would come after). Next, Howard Caygill
– a philosopher from Kingston inter alia –
who gave a powerful talk about a particu-
lar statue in Arezzo, Italy, commemorating
those with mental distress, closely examin-
ing where it was in the garden of the old
asylum, which way it faced, how it juxta-
posed against an old statue hidden in the
shrubbery. Next David Reggio – also from
Kingston – a Brazil expert. Well mediated
by Isobel Whitelegg.
To catch up with this and the night after
(Duncan Double and others at the core
of the critical psychiatry movement) go
to: http://www.nottinghamcontempo-
rary.org/event/anti-psychiatry-part-1 and
watch the filmed events.
An Evening of Anti-Psychiatry Nottingham Contemporary Gallery
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Polly Mortimer
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As a former professional athlete, and current service-user, my single most important piece of fitness
advice to other service users is abstinence and moderation.
The service-user community has a high level of social drug use, particularly nicotine and alcohol (as well as some prevalence of illegal drug use). Prescrip-tion medication is not yet sufficiently advanced to avoid the occurrence of debilitating – not to mention embarrassing – side effects. To overcome extrapyrami-dal side-effects such as tardive dyskinesia (involuntary movements), obesity and low mood, may I recommend or introduce service-users to moderate exercise, such as walking, cycling and low-resistance weight training, yoga, tai chi or similar; if you’re brave enough, not to mention young enough (I’m 52 years old in 2013) you can also try dancing. Mental illness can be considered to age service-users prematurely, so don’t forget the tried and tested rules of training for strength, stam-ina and suppleness (the 3Ss):
- Avoid excess in known hazardous – even socially acceptable – drugs, like nicotine and alcohol. - Maintain a well-balanced, high protein, diet, avoiding carbohydrates, the commonest source of obesity.- Try to enjoy well-prepared, regular meals; for further dietary advice contact the Institute for Optimum Nutrition (http://www.ion.ac.uk/) or speak to your GP or pharmacist.
Also remember, taking a little bit of what you like and simply enjoying eating does you good.
Vitamin supplements and secondary treatments, such as Chinese herbal medi-cine, massage, saunas, and maintaining the most achievable level of personal care in terms of clothing and self-presen-tation will also lift mood, especially if you enjoy shopping!
To end this piece, I offer this advice: if you can’t exercise your body, exercise your mind.
Image: totalhealthstartshere.wordpress.com
Exercise (your self-control)
Allan Malik Dennis-Smith is a former personal fitness instructor and employee at London Sports Forum for Disabled People.
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On 28th March, I joined a staggering
1000 other people at the Friend’s
House on the Euston Road for An
evening with John Kabat-Zinn. Famed for
bringing Mindfulness to the West, 35 years
ago, the evening was a celebration and
further investigation into this practice: ‘an
adventure into the art of conscious living’.
The event was run by Action for Happiness,
and introduced by their chair, Mark William-
son, an organisation whose prime concern
is to take action to try and create a happier
world. They do this by looking both outside
– calling on political leaders and those with
the power to change policy – and inside
at the self, in an endeavour to maximise
human wellbeing.
JKZ (as I shall call him, for ease) was
welcomed to the stage by Lord Rich-
ard Layard, the economist – and Labour
peer – who made the economic case for
IAPT (Improving Access for Psychologi-
cal Therapy) to the Labour government in
2006. I was thrilled to hear Layard had not
only been involved in JKZ’s mindfulness
course for parliamentarians (I wish they’d
make it compulsory in Whitehall!), but will
also be involved in a pilot study to reform
PSHE (Personal, Social, Health Education)
in schools, including adding mindfulness to
the curriculum. But, rather than going off on
a tangential rant about the need for cohe-
sive, consistent and relevant emotional and
social education in our schools (a matter
close to my heart), I shall try and stick to JKZ
and mindfulness for the moment – and mind-
fulness is all about the moment!
Mindfulness – a practice rather than a tech-
nique, as it is something you cannot simply
learn and store away somewhere, but more
a way of living in the world, ideally a way of
living that is practised and observed daily – is
drawn from the principles of Buddhist medi-
tation, and is essentially the act of being with
our experience as it is unfolding, moment
by moment. JKZ described it as ‘the aware-
ness that arises intentionally, in the present
moment, non-judgementally’. Or something
MindfulnessKate Massey-Chase
Photo: Sarah Lines
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like that – it was quite hard to be in the
moment, listen, and frantically scribble
notes all at the same time! But breaking it
down into its necessary components, it is:
Awareness: This is not ‘doing nothing’,
but ‘non-doing’: waking up to the world
around us; being present without an
agenda.
Intentional: Interestingly, he described it as
‘a radical act to wake up early and take
your seat every morning’, particularly in a
world where distractions seem everywhere;
intentionally being in the moment, rather
than the past or future.
Present: Right now, this very moment.
Non-judgemental: He talked about the
importance of cultivating an ‘affectionate
attention’; ‘putting the welcome mat out
for things as they are’.
Mindfulness is essentially being fully mind-
ful, physically, emotionally, mentally of the
now; my favourite thing he said was ‘Now
is the now. Check your watch – it’s now
again’. As a group of over 1000 individu-
als we all came together in a moment of
formal meditation, quite early on in the
evening, which JKZ instigated by rolling his
sleeves up and saying, ‘Let’s arrive’. Mind-
fulness is complex in its simplicity and very
hard to explain in a few
paragraphs or pages, and
thus actually doing it was
important to the discus-
sion. I found myself repeat-
edly trying to explain it in
my head throughout the
evening, knowing my part-
ner would ask when I go
home what it had been
about. And, pre-emptive
of her questioning, trying to
answer: But what purpose
does it serve? And, as I was
trying to be mindful, my
thoughts were going: Yes,
it’s all very nice to have some quiet time, to
reflect, but… although, hang on, we’re in
the now, aren’t we? So, we’re not reflect-
ing, we’re….what are we doing again? Oh
yes, trying not to think. Eek, I’ve ruined it:
I’m thinking. And now I’m worrying about
thinking. Which is even worse! Arghhh, I’m
really bad at this! So goes the mind chatter.
JKZ says: ‘We need to get out of our own
way, to the silence underneath and
between every sound’. But, as a rela-
tive novice, it’s hard not to want to shout:
‘How?!!’ Yet – and as an educationalist, this
is something I hold true for many things – he
says we should covet a beginner’s mind,
the place where we see things newly,
freshly, and non-judgmentally. He also
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repeatedly reinforced that
you can’t develop muscles
without resistance, so the
fact that trying to be a
human being, rather than a
human doing, is hard is part
of the process. And part of
why this is a practice, rather
than a technique. He used
the analogy of thoughts
as weather patterns in the
mind, drifting across, which is
a metaphor I find really help-
ful, and will certainly use to
calm my chattering mind.
I worried that it could be seen as ego-
centric and self-absorbed to dedicate
that much time to yourself (which is indic-
ative of both my own hang ups regard-
ing guilt over self-compassion, and that
I find any talk of ‘cultivating the garden
of the heart’ flips my sceptical switch
on). But – and really there doesn’t need
to be a ‘but’ to justify it, but I’ll slip one in
for other sceptics out there – mindfulness
looks out as well as in, and is also about
‘being in wise relationship with the suffer-
ing and happiness around us’, learning
self-compassion and compassion for
others. JKZ also highlighted the urgency
of it: destruction is woven into our human
nature, and we need to take action –
radical, sitting down in silence action it
may be – to transform the world we live
it. And although he told us, ‘You’re fine
the way you are’, none of us would be
worse for being mindful of the world in
which we live, at this moment, exactly as
it is and we are. Interestingly, in all Asian
languages the word for heart and mind is
the same thing; mindfulness is also heart-
fulness.
If you need more convincing to take a
quiet seat every morning and attune
yourself to the cosmos, there is also some
amazing sciencey stuff to do with epi-
genetics, biochemistry, enzymes and
things, which I’m probably not clever
enough to explain, so you might want to
google. Although the crux of it was that
daily practice of mindfulness leads to
greater emotional balance, caused by
more left than right brain activation in the
pre-frontal cortex, and greater anti-body
production.
If mindfulness is therefore an ‘act of love,
sanity and self-compassion’, which has a
positive impact on not just my emotional
but also my physical wellbeing, and
which also builds compassion for others,
then I’m sold. And you can do it sitting
down – brilliant!
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EQUILIBRIUM GALLERY SPACE: PHOTOS
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IMAGES BY: Leigh Johnstone, Alyssa Grace Sorresso, Tom Leman, Sarah Lines and Emily.J.Barrow
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A PORTRAIT OF JAMES A Submissions to the BP Portrait Awards, 2013 - AGAIN!
Anthony J. Parke
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I’ve always been interested in painting
people, mainly because I’ve always
been awe-struck by the capabilities
of so many portrait artists I’ve come
across over the years. My initial attempts
at portraits (reaching back some twenty
years or so), were what I harshly regard as
second-rate; but over the years I’ve gradu-
ally improved and this is mainly due to
researching a myriad of techniques until
I found one that suited. So with gradual
improvements I find myself entering the BP
Portrait Awards for the third consecutive
year (all previous submissions rejected).
On previous occasions I’d submitted quite
conventional portraits, usually female, look-
ing quite classical, and tightly cropped to
the head. I noticed what I took to be a
difference between my paintings and those
being selected. It was by no means some-
thing which appeared across the board,
but certainly in many instances: a) many
portraits had a narrative element, some-
times subtle, sometimes prominent, and
b) the portraits were usually three-quarter
length or full length.
The setup for the narrative was the environ-
ment, usually a living room, a work place,
an outdoor backdrop. It could be the
way the sitter was seated or standing, the
clothes they were wearing. In some way
these aspects added to the understand-
ing of the sitter, offered a gateway into
that person’s life. Of course this gateway
can be found by many other means too,
through the features (though I don’t believe
mine ever did), something about the way
the paint is handled, the colour, the line, in
fact the list is endless. But those two aspects
mentioned above, for me at least, stood
out.
Of course there are always exceptions
to the rule (and this may not even be the
rule!): notably Michael Gaskell’s tempera
portraits which are free of any narra-
tive element. One could hardly say that
anything in his exceptional portraits offered
an overt insight into the sitter’s psyche;
there is no narrative at play. However the
majority of submissions seem to me to both
carry a narrative and be three-quarter or
full length.
This is not an exact science, and nor should
it be. But considering these aspects at least
allowed me to come up with what I now
regard as my most successful portrait. (Am I
allowed to say that?)
This years portrait of my brother James is by
no means a choreographed painting solely
A PORTRAIT OF JAMES A Submissions to the BP Portrait Awards, 2013 - AGAIN!
kate wants inro how ot into paint-
ing
EQUILIBRIUM 16
cont.
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designed to cynically meet some covert
criteria of the BP Awards. No doubt many
artists to some degree tailor their work to try
and ‘fit’ the awards. And why not. I simply
felt a narrative context and three-quarter
size pose would allow me a greater prospect
of selection. This is of course an international
stage for portrait artists, and commissions can
come off the back of exhibiting here.
I knew a portrait of James would generate an
image which would be striking, which would
have that narrative element; and of course,
I wanted to ensure it would be three-quarter
length. I also wanted it to be a painting which
represented the journey I’m currently on as
a painter, which is one of not limiting myself.
And having completed this submission I feel
my painterly toolkit is far broader than it was
prior to the submission.
My submission this year is of my brother,
James. Now James was diagnosed with a
severe mental illness at the ridiculously young
age of fourteen. He is now 51. Suffering from
Schizophrenia for that length of time, all
the various drugs that have been pumped
through his system, takes a toll, and that
history becomes evident and etched into
the features. His face stands out as being the
face that belongs to a life that has been less
than ordinary. But I guess it’s not enough to
paint a face that is different. It’s about paint-
ing that person’s life, sensing their life through
their features and posture and physical
context – and in doing so striving to come
closer to capturing a fairer, more rounded
representation that person.
Whether the portrait gets in this year is
perhaps not the important thing. Perhaps the
real award for this year’s submission has been
stepping outside of a very comfortable way
of painting portraits, and exploring some-
thing a little more provocative. It’s essentially
the difference between paintings done
for commission, and paintings which I may
choose to do for myself. I now have a clearer
understanding of what I might like to paint for
myself. Which is a small reward in itself.
cont.
Contact:www.parkepaintings.comwww.anthonyparke.blogspot.co.uk
Summer/ Issue 38Summer/ Issue 38 www.haringey.gov.uk/equilibrium EQUILIBRIUM
Brain synchronicity and the Neanderthals
There is a theory that Neanderthals, ‘who flourished between
200,000 and 30,000 years ago and who share 99.84% of their
DNA with us’, may have had some sort of language which
they used to enable themselves to hunt together; indeed it
would have been difficult without it. Living in groups of four
or five and having to deal with the technology they had
of shaping stone heads for their spears or dealing with the
incidents of being injured during their hunting, communica-
tion would have been vital. They therefore could have been
exposed to ‘problems that modern humans face, such as
schizophrenia’. Interestingly, the theory ‘puts the disease
down to brain coordination problems between the brains
left and right hemispheres’ (The Inner Neanderthal: New
Scientist 14 January 2012). This draws an interesting parallel
with a point I picked up on in a previous article that illustrated the way that people who prac-
tise Transcendental Meditation techniques have shown increased brain synchronicity and a
decrease in stress levels. This in turn is an example of the utility of becoming more aware of our
individual evolutionary paths and how nature allows for a solution that helps man reach ever
upwards to the potential he has for greater happiness. Ian Stewart
Literature and the Brain
According to research, so an article in the Telegraph reports (Julie
Henry, 17/01/13), reading the classics can give the brain a boost in
terms of producing more electrical activity.
Reading more challenging subjects such as the poetry of Words-
worth or the work of Shakespeare caused the monitoring of brain
activity to light up, more so than less challenging material. An
English professor working on the study is quoted as saying: “Serious
literature acts like a rocket booster to the brain. The research shows the power of literature to
shift mental pathways, to create new thoughts, shapes and connections in the young and
staid alike.”
The research involving 30 volunteers showed that unfamiliar words caused brain activity to
peak and primed the brain “for more attention.” Later the researchers intend to try to under-
stand how psychology can be affected and whether or not there is any therapeutic benefit.
Ian Stewart
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A Funding Fog Kate Massey-Chase
From September to July last year,
CoolTan Arts, a charity run by and
for adults with mental distress, ran
a women’s poetry group which I facili-
tated. With a strong belief that mental
wellbeing is enhanced by the power of
creativity, their chief executive Michelle
Baharier identified two reasons in particu-
lar to set up a women’s poetry group:
“The cathartic nature of words and
because in a male-dominated society
women’s spaces remain important.” At
the end of the project they published
an anthology of the participants’ work,
a platform for the women’s voices and
recognition of their talent.
Since March 2011, however, CoolTan has
lost 100% of its service-level agreement
with the South London and Maudsley
NHS Foundation Trust in the wake of the
‘Personalisation’ programme of personal
budgets, introduced by the Department
of Health (DoH). Personal budgets are
an allocation of funding given to some-
one based on an assessment of their
needs, intended to help them design
a package of social care support so
that they gain more control over the support
they access. Rolled out in England since
2008, although the original target of having
all council-funded service-users on personal
budgets has now been pushed back from
April 2013 to 2015, personalisation remains
the future of social care funding. However,
although intended to empower those in
need of community care services through
greater choice and control, in practice it is
hard to determine whether personalisation is
triggering more service-user involvement or
estrangement.
Applying for a personal health budget can
be a daunting process - a 30-page assess-
ment form, with different criteria for eligibility
in different boroughs. Speaking to Edward
Omeni, a researcher from King’s College
London who ran a focus group on person-
alisation with CoolTan participants, he
suggested that the complexity of the appli-
cation process – and the problem of profes-
sionals still not knowing enough themselves
– has meant that service-users are trying to
be their own social workers, navigate the
system and ultimately lose services. As one
participant said in a podcast on the subject:
“God knows what it really does mean! With
all bureaucratic words you sometimes feel
that something is getting a bit worse or more
complicated.”
The women’s poetry group at CoolTan Arts
was partly funded by the Big Lottery’s Reach-
ing Communities fund as a provision for those
missing out on personal budgets. That has
now ended and the remaining poetry group
is only open to men and women who pay
for their participation from their personal
budget or other sources. Unfortunately several
women who attended our workshops last
year are not in receipt of this funding and are
not in a financial position to attend, despite
the benefits to their health and wellbeing.
Staying abreast of changes in policy and
provision is fundamental to preparing for
any arts work in the margins, in order to both
respond to the needs of participants and
map out where the furrows are in the ever-
changing terrain – holes and gullies through
which the vulnerable can fall, depending
on where they sit in the hierarchy of need, or
indeed which borough they live in. We know
that the arts can make a difference to the
lives of those who engage with them. After
her first workshop, one poet said: “When I
started the class today I couldn’t even read
the poem. And now, in two hours, I’ve not
only read and understood all of them, but
I’ve also written my own - and it’s going to
be published! I finally feel like the grey fog in
my brain has started to lift for the first time in
two years.” Her care support had not been
‘personalised’ by policy, and without alterna-
tive funding, she might still be in the fog.
First published by Arts Professional, in Issue
263, Thursday 11 April 2013
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Pastel Paintings by Dawn Laporte
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Created in the art class at the Clarendon Centre
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Jacqui Dillon and the Hearing Voices Network
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by Polly MortimerAt the London Philosophy Club
Jacqui took to the little platform stage
and talked ad hoc for an hour to a full
house on a snowy January night in East
London. It’s hard to summarise the pindrop
atmosphere and attentive audience at her
feet.
Starting by name-checking the great Judith
Hermann and those Dutch pioneers of the
HVN, Marius Romme and Sandra Escher, she
took us straight to the heart – voice-hearing
makes complete sense.
In the wider world voices are seen as ‘symp-
toms’ with an 80% chance of a ‘schizophre-
nia’ diagnosis, and those hearing voices who
visit a psychiatrist will be given neuroleptics to
eradicate them. It’s said this ‘works’ for 33%
of these people, and 67% ‘benefit’. Before
psychiatry voice hearing was seen very differ-
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www.haringey.gov.uk/equilibrium EQUILIBRIUMEQUILIBRIUM 24
ently. It’s a common experience with up to
10% of people hearing voices. 2/3 of these
never see psychiatrists. Jacqui explained that
hearing voices is a reaction to extreme things
happening, (PM - or which have happened),
in people’s lives. The HVN is the polar opposite
of the traditional approach; they understand
and listen and enable survival. They support
people to listen and understand the voices.
Voices are on a continuum of human experi-
ence. This supportive and person-centred
approach has spread to 26 countries with a
US network kicking off – on a continent domi-
nated by profit-driven big pharma & the stran-
glehold of the insurance companies. Different
cultural backgrounds are much more accept-
ing of voice-hearing and hearers, far from the
taboo culture which equate voices with mad
to bad to dangerous to unpredictable.
The 180 or so groups in England provide,
above all, a safe space to share experiences.
Voice-hearers talk about their voices ‘know-
ing their Achilles Heel’ and their personal
taboos. Theses groups give expertise and
share expertise. ‘You are the expert in your
own experience’. It is a process of empower-
ment – divorced from the dominant ‘expert’
doctor and passive patient model. Those who
are labeled ‘psychotic’ are frequently those
who are overwhelmed by distressing life expe-
riences, which are uncomfortable for people
to hear, often abuse, racism and/or poverty.
People need to be asked ‘what’s your story?’
‘What’s happened to you?’
HVN is not pointing the finger at the psychi-
atric profession but creating alternatives and
moving beyond the status quo. Jacqui’s own
experience of voices has led her to feel they
are ‘communications from the unconscious’ –
they talk to each other and even dictate what
she needs to write. She hears many voices:
women, children, different accents. That begs
to question: what is the difference between a
voice and a thought?
Psychiatrists are quick to dub voices ‘misattrib-
uted inner speech’ and pathologies the expe-
rience. This does voices a disservice. The whole
‘thought’ and ‘voice’ area is a knotty one –
which is a thought, which is a voice? She has
heard voices telling her to kill, but does not act
on them; one is responsible for one’s actions.
Treatment reduces risk.
Threatening voices need to be heard more
about and engaged with. The hearer must be
kept safe.
Her definition of a good psychiatrist is one not
subscribing to DSM, someone who does not
pathologies and recognizes distress as an ordi-
nary human reaction. Someone who listens, is
humble and curious. They are more existential
– concerned with the meaning of life. Jacqui’s
cont.
Summer/ Issue 38EQUILIBRIUM Summer/ Issue 38
voices used to tell her to cut herself; through
therapy she could untangle the cutting. It
was a shame, anger and rage release.
At the HVN meetings all explanations for
hearing voices are accepted. There is a
respect for all in the group – whether they
say their voices are aliens or neighbours or
anything. She has developed a working rela-
tionship with her voices and renegotiated
power, and punctured their omnipotence.
Where do ideas come from and what does
it mean metaphorically? She feels that those
on drugs who develop a psychosis ‘reveal’
through drugs rather than have the psycho-
sis ‘induced’. There are other things going
on that lead someone to take drugs – there
are reasons. Recovery is finding one’s own
knowledge and power.
So much has been done: creating safe
spaces, training professionals, allying with
academics and professionals, writing, speak-
ing, talking, tweeting. There is no need to
prove anything; she believes the evidence
is before our eyes. The evidence that
someone has recovered. The qualitative
evidence is the most important. ‘The Masters
tools will not dismantle the Masters House’.
The system is out of date and the training of
psychiatrists out of date. Everything needs to
be more humane.
This was such an inspiring evening and ques-
tions could have flown here and there for
hours. I greatly admire Jacqui and the work
she is doing. Here’s hoping HVN will go from
strength to strength.
As a young person, some girls are given
the talk about the facts of life (i.e.
‘Where do babies come from?’). What
I was told from home and school, emphasized
how not to have unwanted pregnancies.
At school there was a girl who got pregnant
at 15 years old. This young girl told a teacher
everything. All the teachers and children were
eventually told. She remained anonymous (they
did not say her name), but it was obvious who it
was. There was no objection to her returning to
school but she did not feel she could cope.
My best friend has a teenage daughter. When
she was about 14 the first thing I told her about
men, is not to bring an idiotic man to the house. I
also gave her a card that said ’When is the best
time to kiss a man? The card said WHEN HE’S
RICH!’ The whole family found it very funny. Is
this right or is this right? I wrote in the card ‘Make
sure you get a good man when you get big.’
Then I noticed what some black Divas were sing-
ing about men. A Diva is a celebrated female
singer. The term is used to describe a woman of
outstanding talent in the world of opera and by
extension in theatre, cinema and popular music
(Wikipedia).
There was a diva called Gwen Guthrie who sang
a song called ‘There ain’t nothing going on but
the rent’. This song is basically saying she does
not want a man with no money.
Divas
EQUILIBRIUM 25
cont.
Girly Talk
Summer/ Issue 38Summer/ Issue 38 www.haringey.gov.uk/equilibrium EQUILIBRIUM
Gloria Gaynor sang a song called ‘I will
survive’, which is very famous. This song is
basically telling the man that she does like
anymore, to get out of her life. Alesha Dixon
sang a song called ‘The boy does noth-
ing’. This song is talking about a man who
does not do the housework. Janet Jackson
sang a song called ‘What have you done for
me lately? ‘Sunshine Anderson sang a song
called ‘Heard it all before’, which is saying
that she is fed up of her man’s lies.
The above Divas are talking about the rela-
tionships they’ve had with men that are no
good. Then I had to look at the other side of
the coin and told her about some positive
examples from Divas.
The first example I told her about was the
Tina Turner song called ‘Simply the Best’. It
is a beautiful song and I like the words. I am
surprised that she did not write a song about
her former husband Ike Turner. Maybe she
was too scared to sing about what she really
thought about him. Or maybe it hurt too
much.
Chaka Khan sang a song called ‘Ain’t
nobody loves me better’. She is basically
singing a song about a man that made her
very happy.
I would like my friend’s daughter to be
choosey when it comes to
having a relationship with the opposite sex.
It’s best not to rush into things you will later
regret, especially when you are young. I was
born in the 60’s (don’t tell anyone!). If you are
not careful love can be just a four letter word.
The UK has the most under aged pregnancies
in Europe, with 2.9 out of every 100 girls aged
between 15 and 19 giving birth every year
(‘UK tops league of teenage pregnancy’,
Steve Dougherty, Daily Mail). I think this is
quite negative for all concerned. Tina Turner
asks ‘What’s Love got to do with it?’ These
under aged pregnancies must be affecting
the economy because these young girls did
not get a career, and the government has to
support mother and baby.
Has the way that men treat women changed
negatively? Maybe it’s because women are
now more career-orientated. Have the roles
reversed?
Divas
EQUILIBRIUM 26
by Angela
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Girly Talk
Since the current government being
sworn in 2011, Haringey council has
made massive cuts to the mental
health services. Within the last two
years much needed centres like the 684
(day centre), Alexandra Road Crisis Unit
(a respite care centre) and other services
have been axed. This could be due to the
double-dip recession.
Presumably, the Clarington Centre will
be left to take on some members from
those centres. This means the centre staff
will have to take on and manage larger
numbers of members. Saying this, the
centre is turning into a wellbeing college
and a café from a day centre, so things are
changing anyway. Also, as it stands, some
people may not be able to access some
services because they don’t have ‘second-
ary support’ or have a personal budget.
When people say ‘Mental Health Problems’
they don’t mean that he or she is having a
mood swing or being moody, but is unable
to control their condition. This could be
a terrifying ordeal and have side effects.
One of the reasons why these services are
needed is because people with this condi-
tion need regular support and a place to
go where they can meet people with similar
problems and a safe place where they are
not judged as being mad or out of control.
With the cuts to the services, it makes it
more difficult to control or find places for
them to go for support on a regular basis. As
well as meaning ever-reducing support to
people with mental health conditions. This
could be due to ‘lack of service support’
and staff to handle these situations.
Haringey Cuts
The cuts and their impact on mental health services in Haringey.
Dev
EQUILIBRIUM 27
Sometimes at the emergency drop-in
centres where you come in desperately
to get help, you are sent back with some
stronger doses of medicine and assigned
to a ‘home care support team’. Sometimes
this does not work but makes it worse.
Saying that, some medicines do work and
help them feel calmer and may cause
some relief for the person or help some of
their symptoms.
According to Haringey council and central
government, GPs will have more control
over local services. To deal with mental
health conditions you would need trained
professionals, so I wonder: how would a GP
who deals primarily with physical health
deal with a non-physical condition?
The council has also suggested that other
members be involved in their care. In other
words you help yourself. This could work
two ways 1. Other people with same
difficulties help people with the same
problems, i.e. peer support. 2. Charities
might help. This might take some pres-
sure of the under-staffed and resourced
services. Charities, and any services like
Mind, Canning Crescent, provide valua-
ble support to people with mental health
problems.
I hope the existing services, including
charities, are able to support all those
who need them.
EQUILIBRIUM 28
Summer/ Issue 38EQUILIBRIUM Summer/ Issue 38EQUILIBRIUM 29
Middle of the Storm
Alyssa Grace Sorresso
Summer/ Issue 38Summer/ Issue 38 www.haringey.gov.uk/equilibrium EQUILIBRIUMEQUILIBRIUM 30
For me, 2010 was the year of The Risk. I
had uprooted myself from my home,
work and life in Chicago, Illinois to study
abroad for a year in London, England. I was
lost back in the states, not knowing who I was
or what I wanted, a result of several years of
job burn-out and multiple, drama-ridden rela-
tionships. Some of my friends had hinted that I
was actually running away from my problems;
but I knew that even if that were the case, I
wasn’t happy where I was. I had to risk every-
thing for my wellbeing or regret doing nothing.
And that attitude is what ultimately landed me
on a bike, cycling 280 miles in 3 days, in the
middle of a storm.
I am pedalling furiously on my bicycle on a
high bridge in the Netherlands. Rain is hitting
my sunglasses and soaking through the layers
of body armor and an all-weather jacket. At 30
mph, I have only one thought: do not fall.
32 other cyclists are in various positions and
speeds around me, all riding to raise money
for a non-profit theatre company called
Cardboard Citizens. I have worked for the
Citz as an intern to fulfil a requirement for my
Masters degree in London. At this moment, I
am supposed to be in London, holed up in my
flat, researching and writing my dissertation
that is due in two weeks. Instead, I have raised
£1500 to cycle to Amsterdam through a total
of 4 countries and 280 miles in 3 days. We are
on day 3. My breath is steady as I concentrate
through the droplets. I have never in my life
ridden this far on a bike.
A week before our departure, I started flip-
ping out. What the hell was I thinking? Leaving
in the middle of my dissertation for a 280-mile
bike ride? I couldn’t even conceptually under-
stand that number, much less imagine myself
completing the journey. My “training” had
consisted of cycling around London, visiting the
Notting Hill area once a week to go up what I
considered a really steep incline. I had missed
my only opportunity to do a long distance
practice ride due to illness. And despite taking
all precautions by purchasing absolutely every
item on our guide’s “to-pack” list, including 2
extra tubes of chamie cream, I was seriously
doubting myself and my sanity.
As Day 1 began, I started off in the “slow”
group (10-15 mph), as I wasn’t sure I could
keep up a higher speed. However, by the first
stop on our trip, I had moved up to the middle
or “fast” group (20-25 mph). As we travelled
down through southern England, I fought my
way up truly steep inclines that bitch-slapped
Notting Hill, and relished in the freefall of a
well-earned decline. I felt the actual purpose
Middle of the Storm
cont.
Summer/ Issue 38EQUILIBRIUM Summer/ Issue 38
Now in Day 3, we are firmly planted in the
southern Netherlands. The weather is threat-
ening rain, but we are spared for the morning.
So we fly along the Noordzee Cycle Route,
topping 36 miles an hour. I receive the gift of
a tailwind and effortlessly sail along the path.
The sun peaks out and lights up the environ-
ment around me: rolling blue ocean backed
by opulent sand and lush prairie grasses. As
I pedal, I remove a camera from the back
pocket of my jacket, hold it at arm’s length,
and snap a picture of myself. My smile is
huge. I feel great. Here I am in the home
stretch, Day 3, almost to Amsterdam. I don’t
really care that I left in the middle of my
dissertation or that I double-packed all the
suggested items; nothing of that matters here.
I gaze up at some thickening clouds in the
distance and realize I am truly content.
Within an hour, the thickening clouds turn into
a downpour, and everyone is immediately
soaked to the bone. We break for a light mid-
morning snack, but it’s quick. Our guides say
we don’t want to stop for long, but rather try
and outride the weather. I huddle inside the
food van that follows us, attempting to dry
out a little before getting back on my seat.
As our group takes off, I realize that I hate
cycling in the rain more than anything.
Getting ahead of the weather starts to seem
like an impossible task. The showers won’t let
of energy bars, gels and drinks coursing through
my body, and swore never again to just eat them
because I was hungry at 3 p.m. By the end of the
first day, I was knackered, refusing to climb the
last hill in the middle of lush Dover foliage, instead
opting for a ride to our accommodations. But I
had made it through the first day of cycling about
80 miles. London and my doubts seemed so much
smaller.
Our agenda for the Day 2 was at least 100 miles
through three countries: starting in Dunkerque,
France (to which we took a ferry from Dover in the
morning), through Belgium, and ending in Middel-
burg, The Netherlands. The journey was expected
to be grueling, but the near-perfect weather
softened the miles. We cycled along Belgium’s
canals with a surprise pub stop by a picturesque
windmill. We sang Beatles songs while enjoying the
ease of our slipstreams. We even laughed at carry-
ing our bikes through the mud and darkness to the
hotel, where we finished off the last of our 120 miles
with wine and chicken dinner.
EQUILIBRIUM 31
cont.
Summer/ Issue 38Summer/ Issue 38 www.haringey.gov.uk/equilibrium EQUILIBRIUM
up, and we approach a long stretch of a tram
bridge. The rain has made the concrete slick
like glass. Deeply embedded tracks run down
the middle of the bridge. I feel anxiety rise up
in my chest. I bring my concentration back
to pedalling and breath, settling into a tense,
meditative state. The rain starts coming down
harder as I work to keep pace. With each spin
of my feet I chant, Do not fall, Do not fall, Do
not fall.
Everyone around me is struggling. We should
stop, but there is no cover. One of our guides
has ridden further up and doubled back, shout-
ing to let us know that the rain is clearing near
the end of the bridge. Only a couple miles or so
to go. I register his words with a slight nod of my
head. I don’t want to chance any unnecessary
movement.
I watch our guide position himself in front to
lead our group to safety when I feel my handle-
bars twist sharply out of my hands. In mere
seconds I realize my front tire is caught in the
tram tracks, and that I am hurtling towards the
hard, wet cement. Then there is no more think-
ing. The left side of my body hits the ground,
chest first, with a jarring impact. The bouncing
of my helmet follows as I slide a few feet from
my bike and lay motionless.
I cannot breathe. My first coherent thought is
that I’m having a heart attack. The second is
that a rib has punctured my lung. I am para-
lyzed. Our guide and several other cyclemates
surround me, asking if I can hear them. I lie
there telling them I am having trouble breath-
ing and they say the doctor is on the way. They
tell me to stay with them, talking to me about
anything. I learn I was the first of four cyclists to
fall independently; we went down, one after
the other, like dominos.
The doctor comes. I am able to breathe a little
more easily, but still feel numb. Shock and disas-
sociation are strong, and I only respond with
mumbles and nods, staring up at the clouded
sky. Rain falls silently on my face and it is cold.
After a few minutes, my fellow cyclists carefully
move me to the side of the bridge where I can
sit and be further evaluated. The doctor finds
some bloodied scrapes on my legs and arms,
but not many. My layers of clothing saved my
skin from being shorn off. There are no broken
bones or unbearable pains when moving my
limbs. I just feel stiff and achy. The doctor says
EQUILIBRIUM 32
cont.
Summer/ Issue 38EQUILIBRIUMEQUILIBRIUM 33
the worst thing I seem to be suffering from is
shock.
They put me in the doctor’s van and wrap
me in a blanket. I shiver violently, unable to
generate any warmth. Outside the van our
guide discusses the multiple accidents with
the doctor. The other cyclists are back on
their bikes – I was the worst fall of the four.
They decide the weather has cleared up
enough, and the group should continue on. I
am told to rest as much as I need, eat a lot of
sugar and drink water.
I ride with the doctor in the passenger side
seat. Eventually, I start feeling grounded
again, back in my body, but I am exhausted.
About 3 hours go by and we arrive at a
dock where we need to take a ferry into the
northern Netherlands. I get out of the van
and slowly walk to what looks like a nearby
restaurant to change my clothes. The restau-
rant turns out to be a combination casino
and strip club, but flashing lights and naked
women are the least of my concerns. I’m
focused more on removing my clothing
that I haven’t changed since the fall. In the
bathroom I begin to peel the layers of body
armour off my skin, inspecting the newly
formed bruises and abrasions. Along with a
dry set of clothing, I brought talcum powder
to soak up any wetness. The white powder
scatters all over the bathroom floor, spilling
out from underneath the door. A woman
enters, pushes the powder suspiciously with
her foot and leaves. She must have thought it
was cocaine.
Back in the van, I fall asleep as we cross
on the ferry. When I wake up, I feel tested
but resilient. I want to get back on my bike
and ride the rest of the way to Amsterdam.
The group is taking a lunch break while the
doctor checks me over and gives me his
approval. I wander back into my cycling
group, greeted enthusiastically by my
friends. Our guide hands me a peanut butter
sandwich and a banana, both of which I
devour immediately. The food makes me
feel somewhat human again. My friends are
concerned about me riding, but I assure
them it’s ok, that I can do it. I shake off the
last of my fall and push off with 32 other bikes,
32 other comrades who had stumbled, fallen
and gotten back up again just like me. And
when we end our ride in Dam Square that
night, I cheer with everyone, ringing my bell,
knowing the risk was worth the fall.
cont.
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