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Bring ABA to the Community:Lessons from Ireland
Mickey KeenanUniversity of Ulster
Rotterdam, 2012
How do you help parents who have been denied access to an effective science for
dealing with autism?
1. What science are you talking about?2. How does it help parents?3. In what way are parents denied
access to it?
Comments on the effectiveness of Applied Behaviour Analysis (ABA) for helping
children with autismAmerican Association on Intellectual and Developmental Disabilities “highly recommended” (highest rating)
National Institute of Mental HealthThe National Academies PressAssociation for Science in Autism TreatmentAutism SpeaksOrganization For Autism Research
ABA-based procedures are highly effective
Surgeon General of the United States“Thirty years of research demonstrated the efficacy of applied behavioral methods in reducing inappropriate behavior and in increasing communication, learning, and appropriatesocial behavior.”
Current Opinion in Psychiatry “Interventions based on applied behavior analysis have the strongest empirical basis, although there is some evidence that other therapies have promise.” (Sturmey, 2002)
Pediatrics “The most efficacious psychosocial treatment for autism is applied behavior analysis...” (Lilienfeld, 2005)
Supreme Court of British Colombia (2000)“…It is beyond debate that the appropriate treatment is ABA or early intensive behavioural intervention.”
Government agencies supporting the use of ABA-based procedures
New York State Department of HealthMaine Administrators of Services for Children with Disabilities
U.S. Dept. of Defense
National Standards Project – 2009(http://www.nationalautismcenter.org/)
The overwhelming majority of interventions were developed in the behavioural literature.
ABA in Ireland:A parent’s perspective
ABA in Ireland:A parent’s perspective
Parents
Government officials
Cillian’s Story
Professionalswho were unable to offer practical advice to Cillian’s parents
age 3 yrs 10 mths
Cillian’s diagnosis
age 3 yrs 10 mths
Cillian’s Story
Age 3
Cillian’s Storyage 11 yrs
Welcome address to an ABA conference with a script he wrote himself!
Cillian, 2005
age 13 yrs
Age 3 Age 11
Cillian’s Story
A remarkable transformation by any standards
Cillian, 2005
Age 11Age 3
Cillian’s Storyage 13 yrs
• Skills deficit in community to achieve what Cillian’s mum and I achieved together (Local ABA Charity, P.E.A.T., has one professional and 250+ parents)• Misinformation on Applied Behaviour Analysis• Abuse of parents by some professionals who charge extortionate fees for their services
ABA is a SCIENCE It is NOT a commercial product or a therapy for autismDillenburger, K., & Keenan, M. (2009). None of the As in ABA stand for autism: Dispelling the myths. Journal of Intellectual & Developmental Disability, 34, 193–195.
Applied Behavior Analysis is the science in which tactics derived from the principles of behavior are applied systematically to improve socially significant behavior and experimentation is used to identify the variables responsible for behavior change. (Cooper, Heron, & Heward, 2007 p. 20)
Person-Centered and Holistic perspective: Evidence-based practice
Person-Centered and Holistic perspective: Evidence-based practice
Person-Centered and Holistic perspective: Evidence-based practice
Person-Centered and Holistic perspective: Evidence-based practice
Person-Centered and Holistic perspective: Evidence-based practice
Please supply a list of references from research published in peer-reviewed journal articles showing an eclectic approach to be equal to, or superior to ABA
Please supply a list of references from research published in peer-reviewed journal articles showing an eclectic approach to be equal to, or superior to ABA
Admitted they didn’t have any!! Yet, they say ECLECTIC is the way to go
The Republic of Ireland was asked the same question
Same Answer
Same Policy
Category Mistake:
Indicative of lack ofunderstanding ofbasic issues
Chemistry properties structure composition behavior reactions, interactions, changes
Science of Matter
Chemistry is the science of matter, especially its properties, structure, composition, behavior, reactions, interactions and the changes it undergoes.
Category Mistakes
Chemistry is the science of matter, especially its properties, structure, composition, behavior, reactions, interactions and the changes it undergoes.
Chemistry properties structure composition behavior reactions, interactions, changes
Science of Matter
Chemistry
ABA is the applied branch of the science of behaviour analysis incorporating an understanding of basic principles like Stimulus Control, Schedules, Shaping, ….
ABA Stimulus control schedules shaping ……. ……. …… …….
Science of Behaviour
Manualised applications of the science of behaviour in the area of autism include PECS, DTT, NET, PT, VB, Lovaas, TEACCH.
ABA PECS DTT NET PT VB Lovaas TEACCH
Application of a Science of Behaviour
Category Mistakes
This slide shows the level of antagonism towards ABA by professionals not trained in this science.
Dealing with Misrepresentation
Competence in a ScienceAs a general rule, in matters concerning physics, the Institute of Psychics in Ireland would seek to have appropriately qualified physicists represented on any review panel which might be reporting on 'findings from physics'.Institute of Physics in Ireland
ABA professionals never involved in writing Gov. sponsored reports in Ireland
International standards of training in ABA ignored
How they do it in Scotland
Scottish autism toolbox –
The Scottish Government has deleted a key section of the Autism Toolbox on its web site, which contained seriously flawed information on ABA.
… the description of ABA was inaccurate, 30 years out of date, and made no mention of recent research findings which indicate clear evidence of benefit for many children with autism.
Dealing with Misrepresentation
“Feedback was sought on the draft ASD Guideline from across the health, education, disability and social service sectors, as well as from families, ... Most of the concerns expressed by individuals or groups related to a view that the principles of ABA had been misrepresented and that ABA research had not been properly evaluated in the draft ASD Guideline.”
How they do it in New Zealand
Dealing with Misrepresentation
In response to these concerns, the Ministry commissioned a new review of literature on the effectiveness of ABA interventions for people with ASD.”
How they do it in the Netherlands
?
"Sometimes our light goes out but is blown into flame by another human being. Each of us owes deepest thanks to those who have rekindled this light."
Albert Schweitzer
Conclusion
Leonardo da Vinci programme