To err is human, bullet proofing data displays

Sept. 16, 2014

Bradford W. Hesse, PhDChief, Health Communication and InformaticsNational Cancer Institute

To Err is Human: How to Bullet-Proof Data Displays

Institute of Medicine, 1999

Tuesday, September 16, 14

National Data Strategy for Health

source: National Committee on Vital and Health Statistics. Information for Health: A Strategy for Building the National Health Information Infrastructure. Washington, DC: Department of Health and Human Services; 2001 November 15, 2001.


Data for Public Good


Personal Health Dimension

Apple “Health Kit”Sept. 9, 2014

Kaiser’s Personal Health Record

27% Reduction in Costs for Unnecessary Office

Visits

Rise in Home-Based, Mobile Monitoring


Population Health Dimension

“Asthmapolis:” Data for public health awareness

Public Access for Community Surveillance


Clinical Dimension Electronic Health Records, Data in Individual Patients

Dashboards for Decisions across Patients


Fact

s pe

r Dec

isio

n1000

10

100

5Human Cognitive Capacity

2000 20101990 2020

Structural Genetics: e.g. SNPs, haplotypes

Functional Genetics: Gene expression

profiles

Proteomics and othereffector molecules

Decisions by Clinical Phenotype

William Stead, IOM Meeting, 8 October 2007. Growth in facts affecting provider decisions versus human cognitive capacity.

Cognitive Load in Medicine


Data smog

• Decisional paralysis

• Confusion

• Risky behaviors

• Frequent errors

• Avoidance

Source: Shenk, David. (1997). Data smog : surviving the information glut (1st ed.). San Francisco, Calif.: Harper Edge.

Consequences


Making Data Talk

Inform Support Decisions

Educate Persuade

Adapting to a World of Ubiquitous Data Systems


Making Data Talk


Educate Persuade



Making Data Talk


Educate Persuade



Making Data Talk


Educate Persuade



Knowledge in The World*

Knowledge in the Head*

Task Relevant Schemata

Cognitive Model


SOURCE: http://alleydog.com/topics/sensation_and_perception.php

Perceptual Basics


http://alleydog.com/topics/sensation_and_perception.php

http://alleydog.com/topics/sensation_and_perception.php

source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702.

• Constructive process

• Gaze goes to center for pattern

• Contiguous labels for meaning

• Left to right tendency in western culture

• Perceptual rules guide meaning


source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702.












Hans Rosling, BBC


Applying Concepts for Clinical Decision Support

Aging In Place, IntelRule of Thumb* for “Big Data” Systems

•Overview

•Zoom / filter

•Details on demand

*Ben Shneiderman


Empowering Individuals

Robert Wood Johnson Founda1on: Personal Data for the Public Good (2014)

Apple Watch, Expected 2015


Portraying trends to policy makersChoropleth Maps: CDC Obesity Trends, BRFSS 1985


Press Release

Media Outreach

UpdatedWeb

Presence

PersonalMedia

Example: Health Data Release Physician Outreach

OPT-IN: Organize, Plan, Test & Integrate


Bottom Line


Data: New “Intel Inside*”

Source: O'Reilly, Tim. (2005). What Is Web 2.0? Design Patterns and Business Models for the Next Generation of Software.

Tim O’Reilly


Data = Power(by itself)


Data = PowerUser Centered*

*i.e., made understandable, actionable, accessible DHHS: 2004CDC Community Commons


Resources: Vetted Tools www.vizhealth.org


http://www.vizhealth.org/gallery/

http://www.vizhealth.org/gallery/

www.slideshare.net/BradfordHesseThis slide deck

Thank you!


http://www.slideshare.net/BradfordHesse

http://www.slideshare.net/BradfordHesse

Data & Analytics

To err is human, bullet proofing data displays