To err is human, bullet proofing data displays

Sept. 16, 2014

Bradford W. Hesse, PhDChief, Health Communication and InformaticsNational Cancer Institute

To Err is Human: How to Bullet-Proof Data Displays

Institute of Medicine, 1999

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National Data Strategy for Health

source: National Committee on Vital and Health Statistics. Information for Health: A Strategy for Building the National Health Information Infrastructure. Washington, DC: Department of Health and Human Services; 2001 November 15, 2001.

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Data for Public Good

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Personal Health Dimension

Apple “Health Kit”Sept. 9, 2014

Kaiser’s Personal Health Record

27% Reduction in Costs for Unnecessary Office

Visits

Rise in Home-Based, Mobile Monitoring

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Population Health Dimension

“Asthmapolis:” Data for public health awareness

Public Access for Community Surveillance

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Clinical Dimension Electronic Health Records, Data in Individual Patients

Dashboards for Decisions across Patients

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Fact

s pe

r Dec

isio

n1000

10

100

5Human Cognitive Capacity

2000 20101990 2020

Structural Genetics: e.g. SNPs, haplotypes

Functional Genetics: Gene expression

profiles

Proteomics and othereffector molecules

Decisions by Clinical Phenotype

William Stead, IOM Meeting, 8 October 2007. Growth in facts affecting provider decisions versus human cognitive capacity.

Cognitive Load in Medicine

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Data smog

• Decisional paralysis

• Confusion

• Risky behaviors

• Frequent errors

• Avoidance

Source: Shenk, David. (1997). Data smog : surviving the information glut (1st ed.). San Francisco, Calif.: Harper Edge.

Consequences

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Making Data Talk

Inform Support Decisions

Educate Persuade

Adapting to a World of Ubiquitous Data Systems

Tuesday, September 16, 14

Making Data Talk

Inform Support Decisions

Educate Persuade

Adapting to a World of Ubiquitous Data Systems

Tuesday, September 16, 14

Making Data Talk

Inform Support Decisions

Educate Persuade

Adapting to a World of Ubiquitous Data Systems

Tuesday, September 16, 14

Making Data Talk

Inform Support Decisions

Educate Persuade

Adapting to a World of Ubiquitous Data Systems

Tuesday, September 16, 14

Knowledge in The World*

Knowledge in the Head*

Task Relevant Schemata

Cognitive Model

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SOURCE: http://alleydog.com/topics/sensation_and_perception.php

Perceptual Basics

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source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702.

• Constructive process

• Gaze goes to center for pattern

• Contiguous labels for meaning

• Left to right tendency in western culture

• Perceptual rules guide meaning

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source: Carpenter PA, Shah P. A model of the perceptual and conceptual processes in graph comprehension. J Educ Psychol. 1999, 91(4): 690-702.

• Constructive process

• Gaze goes to center for pattern

• Contiguous labels for meaning

• Left to right tendency in western culture

• Perceptual rules guide meaning

Tuesday, September 16, 14

• Constructive process

• Gaze goes to center for pattern

• Contiguous labels for meaning

• Left to right tendency in western culture

• Perceptual rules guide meaning

Hans Rosling, BBC

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Applying Concepts for Clinical Decision Support

Aging In Place, IntelRule of Thumb* for “Big Data” Systems

•Overview

•Zoom / filter

•Details on demand

*Ben Shneiderman

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Empowering Individuals

Robert  Wood  Johnson  Founda1on:  Personal  Data  for  the  Public  Good  (2014)

Apple  Watch,  Expected  2015

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Portraying trends to policy makersChoropleth Maps: CDC Obesity Trends, BRFSS 1985

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Press Release

Media Outreach

UpdatedWeb

Presence

PersonalMedia

Example: Health Data Release Physician Outreach

OPT-IN: Organize, Plan, Test & Integrate

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Bottom Line

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Data: New “Intel Inside*”

Source: O'Reilly, Tim. (2005). What Is Web 2.0? Design Patterns and Business Models for the Next Generation of Software.

Tim O’Reilly

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Data = Power(by itself)

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Data = PowerUser Centered*

*i.e., made understandable, actionable, accessible DHHS: 2004CDC Community Commons

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Resources: Vetted Tools www.vizhealth.org

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www.slideshare.net/BradfordHesseThis slide deck

Thank you!

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