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What happens when you listen?The Scottish Experience of self-directed support and user involvement
Dee FraserProviders & Personalisation
Coalition of Care and Support Providers in Scotland
Today• A very short overview of
service change• How well did we listen
in the past? • Self-directed support
and listening• Scottish provider
experiences • Faye’s story- from
tradition to fully user led day services (video)
• What now?
1990: from institution to community
• Moved out of institutions • Mixed economy of care • Person centred
planning/care developing in learning disability
• Recovery model • Independent Living
Movement (physical disability) lobbying for Direct Payments.
2000: is it real community?
• Transition to community positive
• More visible in society• Some people still
isolated (individualism)• re-create the
institution?• “Service land”
2010: choice and control?
• Changing Lives: review of social work
• Personalisation• Low take- up of direct
payments- why?• Self-directed support
strategy • Self-directed support
legislation (2013)
About the SDS Act
Person to be offered four options• Direct payment• Individual budget• Arrange service• Mixture of the above
Applies to • all care and support groups**• Children• Young People• Carers
Principles based:• Involvement, collaboration and
assistance• Participation and Dignity
What it means for user involvement• Person becomes
the purchaser• ‘Consumer’ levers• Outcomes focus • Support provider
will market to the person (not the local authority)
The Provider Conundrum
“Managing yesterday’s services today whilst developing new ways
of listening and responding to
tomorrow’s customer – and accepting (far) less money for doing
it.”
Types of “involvement”
• Tell: this your service-take it or leave it…
• Sell: this is your service- it’s great!
• Consult: what do you think of the service?
• Involve: tell us what you need…and we’ll listen
• Empower: we’ll work with you to help you find your voice
• Lead: over to you…tell us what you want/need and we’ll act…
So what’s an outcome?
• The change or difference made by the support a person receives.
• Input: support worker + time + funding
• Activity: going to the local gym
• Outcomes: increased physical fitness; increased connection to the community
Peer to Peer Quality Checkers at Inclusion
User- led strategic
planning at CrossReach
User led mental health recovery – Penumbra
User- led day activities at Key Community Supports
(In Faye’s words)
And most of your actions are based on incomplete knowledge and you really don't know what it is all about, or what the purpose of the world is, or know a great deal of other things. It is possible to live and not know.
Richard Fenyman
What will happen next?
Any Questions?
Credits…• Signed Act, Inclusion, Crossreach and Key ©2013 Matt Gregorig
Photography• Smiling artist ©2012 “There’s No Place Like Home Photo Competition”
Housing Support Enabling Unit (HSEU)• The Social Worker I would not like to meet from “Working together in Adult
Support and Protection” Thistle/Altrum- A user-led research project and guide to working with people at risk of harm and abuse available at: http://www.thistle.org.uk/riskresearchproject/adultprotectionresources
• Recovery quote from “Journeys of Recovery” (2008) A narrative research project exploring individual people’s experience of recovery from mental ill health available at www.scottishrecovery.net
• quote from The Pleasure of Finding Things Out: The Best Short Works of Richard P. Feynman (edited by Jeffrey Robbins), 1999
• All other images iStockPhoto
P&P is a four year policy and practice change programme supporting providers to prepare for, and
showcase good practice in the journey to Self-directed Support.
P&P is hosted by CCPS with financial support from the Scottish Government
Policy-Information-Events-Practice Exchange-Facilitation- Personalisation leads- Change projects- Action Learning- Research-
Capacity building
Contact us@PPProgramme Dee Fraser, Programme [email protected] Catherine Garrod, Programme Officer [email protected] Kenny Pentland, Programme Officer [email protected]
