EDS UK
Using social media to support our members
Erin Simons [email protected]
ContentsAdding members to the groupCreating eventsPinning
postsTagging membersCreating conversationFacebook group
featuresFinding & sharing contentWhat online support do EDS UK
offer?What can be shared from the EDS UK website?Working
togetherNext stepsAdding membersTo add new members to a group:Go to
the groupClick the + Add People to Group field in the right
column.Click invite by email to add their email addressCheck
members list to see if those requested are membersConfirm with
[email protected] if concerned
Creating an eventAs an admin you can create an event for your
meeting. This will then automatically invite all of the people who
are in your Facebook group.
To create an event:Click Events on the top of your group
page.Click Create in the top right.Fill in the event name details,
location & timeClick Create.
Creating an eventEnsure your event has the correct start time
and finish time and date. Update this if it must change prior to
the event all those who have accepted will be notified but please
post on the wall and tag all members to ensure they have seen
it.
Tagging membersTo tag a member simply write @ followed by their
name. It should appear automatically as you are writing, simply
select and click to add their name to your post. If you can no
longer select a members name it means they have left the Facebook
group.
Example: Hello @fionaedden @caitrionagraham just to let you know
that the event will now be held at 1:15pm. Adding a cover imageAdd
a cover image to make your event stand out. Standard cover images
are available from [email protected] These can be kept on your
desktop to upload.
Pinning PostsPin events to the top of the page or important
posts to inform new members and remind those visiting the page. To
pin a post click on the right hand side v on the selected post.
Select pin post from the dropdown list.
Uploading a fileMeeting notes, fundraising posters and any file
can be uploaded to the group all members can download these.
To add a file to a group:Go to a group and clickAdd Fileat the
topClickChoose Fileto select a file from your computer or
DropboxChoose to say something about your file and then
clickPostKeep in mind links to Dropbox files can be shared outside
of the group.
Creating conversationIt can often be hard to think of ideas!
Monthly topics will be provided to help you know what the
discuss.
We have a number of resources on pain, self management of EDS
and are happy to help you source ideas each month.
Alongside the monthly topics each month we will send a number of
websites and links to get you started! Creating a pollUseful for
finding suitable meeting dates or for generating ideas for meetings
or fundraisers.
How to Publish a PollAdd Questions. Type your question and then
add answers. From this point you can simply hit create poll. Set
Options. On the Themes tab select one of our default themes or
create your own.Share with your group.
Finding & sharing contentThe main EDS UK Facebook page
www.facebook.com/ehlersdanlosuk is updated on a daily basis. All
posts on this page can be shared into your groups. To do this click
share on the post then select share in a group and select your
group from the list of groups you are part of.
Finding & sharing contentThe fact photos have been added to
one album to allow you to share these with your groups:
http://bit.ly/EDSfacts
What online support does EDS UK offer?We have a number of
support groups for members. Alongside the local groups we also
have:
ParentsPartnersMensRarer types of EDS (commencing
November)Siblings (commencing November)Young people (13-18)What can
be shared from the EDS UK website?Conference Videos from the
Residential conferences from 2012-2014Managing your EDS
presentations from StanmoreYour child and EDS presentationsManaging
your EDS section what resources can we add to this?Medical
information what resources have members requested?Living with EDS
storiesWorking togetherI would love to hear all of the latest news
from you and your members! I am contactable on
[email protected] and am always keen to share:
Positive achievementsFundraising effortsShort stories and blog
style posts on EDS and life at school, university and workDetails
on your local services, what is offered in your area for patients
with all types of EDSFAQs from your members, any suggestions on
resources
