Team HBV High School Chapters Manual

Team HBV High School Chapters Manual

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2010-2011 Manual

Released by Asian Liver Center at Stanford University

Version 1.3


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Table of Contents !

I. Background Information on Hepatitis B and Liver Cancer 3

II. Overview of Team HBV 4

A. About the Global Jade Ribbon Campaign 4 B. About the Asian Liver Center at Stanford University 4 C. About Team HBV 4 D. About Team HBV High School Chapters 5

III. Team HBV High School Chapters Overview 6

A. Internal Communication 6 B. Sample Projects on Campus & Community 7 C. Sample Event Calendar 8 D. How to Order JRC Materials 9 E. Branding and Logo Guidelines 10

IV. Team HBV High School Chapters Board 11

A. General Overview 11 B. Board Responsibilities 11 C. Internal Communication 12 D. Qualifications 12 E. Yearly Cycle 13 F. The Application 13 G. Day-to-Day Routine 14

V. Guideline for New Clubs 15

A. How to Start a New Club 15

VI. Sample Constitution 18 A. Overview 14 B. Constitution 14

VII. Additional Information for Facilitating Events 23

A. Statistics About HBV and Liver Cancer 23 B. Sample Spiels 24 C. How to Target Non-Asian Audiences 25

VIII. Appendix 27

A. World Epidemiology Chart 27 B. World Prevalence Figure 28 C. HBV Plush Tutorial 29 D. Jade Ribbon Chocolate Lollipops Tutorial 33


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Burden of Disease Viral hepatitis represents one of the most neglected pandemics in the world. Without global attention, 1 in 20 people (400 million) in the world have become chronically infected with the hepatitis B virus (HBV). HBV causes 60-80% of primary liver cancer and takes 700,000 to 1 million lives a year. Liver cancer is the sixth most common newly diagnosed cancer and the third most common cause of cancer mortality in the world, with an estimated 626,000 new cases and 598,000 deaths per year. The nearly equal numbers of incident cases and deaths reflect the high fatality rate of the disease, which only has a 3-5% overall survival rate. According to the Ministry of Health (MOH) of the Government of the People’s Republic of China, approximately 9% of the Chinese population is chronically infected. Even with the high prevalence of hepatitis B, there remains a failure among many to understand that it cannot spread through casual contact. In addition, discrimination against people who are chronically infected with the hepatitis B virus is widespread in work employment and school admissions. Students play a vital role in educating and promoting the correct information about hepatitis B prevention and control and working to reduce hepatitis B discrimination either in the school setting or local communities. Learning the correct information about hepatitis B transmission and passing this information on to others will help to reduce misunderstandings and subsequent discrimination. Chronic hepatitis B infection disproportionately affects the Asian community in the U.S. Approximately 1 in 10 Asian Pacific Islander (API) Americans have chronic hepatitis B infection compared with 1 in 1,000 Caucasian Americans. An estimated 1.25 million Americans are chronically infected with HBV, over half of which are API Americans. 130,000 Americans become infected with HBV each year, and 5,000 people die from HBV-related liver cancer or cirrhosis with liver failure each year. Even though HBV is vaccine-preventable and treatable, liver cancer remains one of the greatest health disparities for API Americans.


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A. About the Global Jade Ribbon Campaign The Jade Ribbon Campaign (JRC) was launched by the Asian Liver Center (ALC) at Stanford University in May 2001 during Asian Pacific American Heritage Month to help spread global awareness about hepatitis B and liver cancer specifically in Asian and Pacific Islander (API) communities. The JRC is a universal campaign that anyone can use as a platform for action towards eradicating hepatitis B and to consequently reduce the incidence and mortality associated with liver cancer. B. About the Asian Liver Center at Stanford University

The Asian Liver Center (ALC) is the first non-profit organization in the United States that addresses the high incidence of hepatitis B and liver cancer in Asians and Asian Americans.

Founded in 1996, the center approaches fighting hepatitis B through outreach & education, and research. Specifically, the ALC spearheads educational outreach in the areas of hepatitis B and liver cancer prevention and treatment, serves as a resource for both the general public and health practitioners, and implements clinical and research programs. C. About Team HBV The ALC has actively engaged in and encouraged youth participation and leadership in outreach and education for many years. They have motivated many young people to become active leaders in their schools and communities through the annual Youth Leadership Conference for high school students, the Jade Ribbon Youth Council, internship programs, Team HBV Collegiate Chapters, the Team HBV Collegiate Conference, and Team HBV High School Chapters. Team HBV was formed in 2006 with a mission to raise awareness of the disproportionately high incidence of HBV and liver cancer in the API community through community outreach and the global Jade Ribbon Campaign (JRC). Team HBV is the outreach arm of the ALC; it comprises its volunteer network, collegiate chapters, high school chapters, as well as the clubs and organizations at schools and universities nationwide and worldwide who further the ALC’s mission. More broadly, it includes all of those groups and individuals who toil endlessly under the noble cause of the JRC: to increase awareness and provide ethnic-sensitive health information to the API community and health professionals in an effort to reduce this major health disparity and improve API health. In essence, Team HBV is the human network of those on the frontlines working to educate their communities about hepatitis B and liver cancer.


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D. About Team HBV High School Chapters The mission of Team HBV High School Chapters is to educate campus and local communities about hepatitis B and liver cancer. By focusing on education, Team HBV raises awareness about the dangers of hepatitis B, liver cancer, and their prevention and treatment options. Our hope is that by working with the student body and surrounding communities, we can empower individuals to get themselves and their loved ones screened and vaccinated in a timely manner. In addition to our central objective of education, we aim to:

• Support the global Jade Ribbon Campaign • Promote awareness through innovative outreach events • Build partnerships with other student clubs and with local groups in the community


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A. Internal Communication Conference Calls The Board Chair will help schedule hour-long small group conference calls once every two months. High schools are divided up into groups of 2-4 based on location; all officers are expected to attend to debrief about their past and future activities. They are also a way to generate ideas and connect various Team HBV clubs from neighboring high schools in order to collaborate on events. Semester Progress Reports One mid-year report and one year-end report are expected from each Team HBV Chapter. You should include all the events the chapter hosted, where they took place, and a short description for each. You also should include a reflection and several pictures, including a picture of the entire club in the year-end report. The report should be in a .doc or .docx file. At the end of the year, we will try to put together the progress reports into a year-end publication, which will include all the Team HBV High School Chapters. Model Progress Report High School Name: Your Name: Your Email: Event Reflection #1 “Title of Event” Location: Time/Date: Description of event (approx. 50 words): Measure of success (number of people involved, money raised or people impacted, etc.): Improvements for next time (2 or more improvements): Picture[s] (1-3): Event Reflection #2 “Title of Event” Location: Time/Date: Description of event (approx. 50 words): Measure of success (number of people involved, money raised or people impacted, etc.): Improvements for next time (2 or more improvements): Picture[s] (1-3): Etc. for events 3, 4, and so on. End of Semester/End of Year Reflection: (around 150 words):


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Possible questions to address: Did you meet your goals? What events were successful and what were less successful? What was your favorite event? What do you look forward to for the next year? For the end of the year semester report, include a club photo. Internal Website – https://sites.google.com/site/insideteamhbvhighschool This site has been created as a central location where files and information that may be useful for HS chapters can be easily accessible for use. Here is a partial list of what may be found on the internal site:

• Brochures in all languages • ALC, JRC, and Team HBV logos • Powerpoint presentations (“Hepatitis B Basics”, “HBV Jeopardy Game”, “Event

Planning”, “Gaining Members”) • Link to youtube video “End of the World: Hepatitis B Remix” • Past group emails, Skype call notes, semester reports • Contact information

B. Sample Projects on Campus & Community Educational Outreach

• Give a presentation about HBV during lunch, for health classes, health fairs, and churches using brochures, “Hepatitis B Basics” powerpoint, “End of the World: Hepatitis B Remix” youtube video, and “HBV Jeopardy game” powerpoint

• As part of a larger event or a meeting, show the documentary: Another Life, Across Qinghai

• Invite guest speakers—hepatologists, gastroenterologists, public health experts, patients and families affected by HBV—to speak at a school-wide assembly

• Conduct 20-question campus HBV Knowledge Assessment Survey or 6-questions ALC survey, and discuss questions with your audience afterwards (can be during a meeting)

• Direct people to the website at teamhbv.org to learn about HBV. You should include the URL on all publications.

• Distribute educational brochures to the community by building partnership with student health clinic, community churches, restaurants, supermarkets, health departments, clinics, refuge centers, and other nonprofit organizations working with high-risk patients

• Plan a flash mob on campus; every 30 seconds, someone “dies” from HBV to reflect the statistic

• Educate young children with the “Peter and the Wolf” skit. Go to < https://sites.google.com/site/insidejryc/projects/peter-and-the-wolf> for full information.

• Tie jade ribbons to campus tree branches, tie jade ribbons on chopsticks and stick them on the ground in the shape of larger jade ribbon, paint a campus bridge or wall with JRC logo and message, or decorate the campus with jade in some other unique and eye-catching way

• Serve moon cake using toothpicks with HBV facts attached during the Moon Festival


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Art Projects

• Create an awareness video or song • Make virus plushies as part of an educational meeting (see appendix for instruction) • Make jade ribbon chocolate lollipops (see appendix for instruction) • Perform a “Jade Ribbon” dance during Lunar New Year cultural show or talent show • Rock a Jade Charity Fashion Show, where students create and display jade color outfits • Perform a silent skit of a physician physically battling the HBV virus

Fundraisers

• Sell pearl milk tea with HBV fact stickers on the cup or give them with a discount if the buyer answers an HBV question correctly

• Partner with other student groups (a capella groups, fraternities, sororities) and receive a portion of the proceeds from ticket sales or benefit dinners

• Organize a class competition, game night, karaoke night, movie night, B-B-Q, picnic, study breaks, mahjong tournament using “HBV money” with HBV facts, basketball tournament, or food booth

• Hold an open mic night in a school auditorium complete with raffles, prizes, and a donation jar

• Sell “jaces” or jade colored shoelaces (or another adaptation of this) to your classmates • Contact a local restaurant, ice-skating rink, bowling alley, etc. to donate part of its

proceeds during a time slot and hold a “Hep B Free” event

Clinical Outreach • Volunteer at a local free, private, or community clinics that cater to high risk patients

C. Sample Event Calendar

SEPTEMBER Monday Tuesday Wednesday Thursday Friday Saturday Sunday

1 2 3 4

5

6

7

8 9 10 4pm-7pm Activity Fair Member Recruitment

11

12 13

14

15 First day of class

16 17

18 Lunchtime 1st Meeting in Room 1001; member meet and greet

19 20

21

22 23 24

25 Lunchtime 2nd Meeting; Info Session

26 27

28

29

30

31

Other notes: Update website and email list, check student group mail box,


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attend student leadership meeting, apply for event grants, check in with the club advisors and inform them of weekly meeting schedule

SEPTEMBER

Monday Tuesday Wednesday Thursday Friday Saturday Sunday 1 6pm-8pm

Another Life Film & Dinner for members

2

3

4

5

6

7

8 Lunchtime Meeting

9

10

11

12 silent read period Visit health classes and give hep B presentation



15 Lunchtime Meeting

16

17 9am-5pm Distribute Brochures at local church

18

19

20

21

22 Lunchtime Meeting

23

24 9am-noon Contact local restaurants, supermarkets, churches, clinics, and other nonprofit organizations to put Know HBV brochures there

25 9am-noon Contact local restaurants, supermarkets, churches, clinics, and other nonprofit organizations to put Know HBV brochures there

26

27

28

Other Notes: Refill Know HBV brochures at student health clinics, churches, restaurants, supermarkets, health departments, clinics, refuge centers, and other nonprofit organizations

D. How to Order JRC Materials Materials and Costs Order brochures or Physician’s Guides at http://liver.stanford.edu/Public/brochureorder.html

• Know HBV Brochures – FREE! Available in different languages. o Online at http://liver.stanford.edu/Public/brochures.html

• Hepatitis B and Moms Brochures – FREE! Available in different languages. o Online at http://liver.stanford.edu/Public/brochures.html

• Physician's Guide to Hepatitis B – FREE! o Online at http://liver.stanford.edu/Public/pguide.html

• Another Life and Across Qinghai and other videos- free to watch on (http://liver.stanford.edu/Media/documentaries.html)

Order Team HBV materials at http://liver.stanford.edu/Public/order.html Note: There is no link from the liver.stanford.edu website to this page!

• Team HBV T-Shirts – $6.50 each


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• LIVERight Bracelets – $1 each (to be sold at events for $3 each) • Jade Ribbon Pins – $0.70 each • JRC Stickers – 20/$1 • Jade Ninja Tattoos – 20/$1 • JRC Pens – 10/$3.60 • JRC Balloons – 4/$1

Ordering Brochures and JRC Materials

• Allow 2-4 weeks for the brochures and JRC materials to reach you. • You should plan to order once a semester, and make the order at the beginning of your

semester so that it will be shipped to you in a timely manner. • If you plan to place a large order, please notify the ALC liaison a month ahead because

the ALC may need to order some from the manufacturer. To Make a Payment or to Donate

• Make check payable to “Stanford University”, with “Asian Liver Center” on the memo line.

• Mail to: Asian Liver Center at Stanford University 490 S. California Ave, Suite 300 Palo Alto, CA 94306

• Please check with the ALC liaison about the order before writing a check.! E. Branding and Logo Guidelines Branding: Please use the naming structure "Team HBV at XYZ." For example, "Team HBV at Gunn" Please use the tagline "Teaming Up Against HBV" whenever appropriate. Logo:

Please stick with the brand color palette: Jade (49B8A9); Black (141414); Grey (999999); Aqua (00CC99); White (ffffff), and Pink (FF0066) Please do not create logos specific to your chapter without notifying the ALC liaison.


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A. General Overview High School Chapters Board Starting in April 2011, Team HS Chapters will be implementing an overarching leadership board similar to the Collegiate Chapters Advisory Board.

B. Board Responsibilities

ALC: ALC Advisers (2) – Diana and Catherine/ALC HS intern

• Assigns projects and keeps board core on task • Has the “final say” in decisions and go-to person for the board members • Present on all email correspondences and core board weekly Skype meetings • Responsible for choosing board core members

Board Core: Board Chair –

• Holds small group Skype meetings once every two months for club officers • Contacts clubs individually on a weekly or bi-monthly basis (mostly by email),

keeping an online log of their progress


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• Helps Outreach, Finance, and Web & Media Board Members communicate with chapters for event planning, fundraising, and directly responsible for how Outreach, Finance, and Web & Media projects are going

• Answers questions from any board member, or defers to ALC advisers • Schedules bi-monthly Skype meetings for the board members

Events Board Member – • Keeps track of fundraising and outreach activities of high school chapters and

continues updating a list of fundraising and outreach activities that have worked well in the past

• Also gives specific advice to various high school chapters on their event planning • Creates new event ideas or puts together event kits

Interchapter Board Member – • Plans and coordinates Hepatitis B Awareness Week and other collaborative

outreach events that all local high school chapters can participate in • Responsible for contacting press and local media

Resources Board Member – • Responsible for recruitment and training tasks i.e. giving them advice about

recruiting members; tries establishing new Team HBV chapters • Ensures competent hepatitis B knowledge among Team HBV chapter members

and officers Web & Media Board Member –

• Updates teamhbv.org website on a weekly or bi-monthly basis; coordinates forum • Makes promotional videos/flyers for events and logo designs for each qualified

Team HBV chapter • Creates the semester reports

C. Internal Communication All emails sent by the board members must CC the board chair and the ALC advisers. All emails sent by the board chair must CC the ALC advisers. The board chair is responsible for monitoring all activities by other board members through largely email correspondences. The board members must OK their current or future project ideas with the board chair. !"#$%&'%%()*+,&-'.*+&(/%&0.-12&'%'0%1,&3)44&0%&/%42&.*5%&-&3%%"&-*2&3)44&0%&67897&')*:(%,&)*&4%*+(/;&<)'%&3)44&0%&,$%*(&2%01)%=)*+&-0.:(&3/-(&%-5/&0.-12&'%'0%1&/-,&0%%*&2.)*+&(/1.:+/.:(&(/%&3%%";&>-5/&0.-12&'%'0%1&/-,&(/%&.$().*&.=&-,")*+&=.1&/%4$&.1&-2?)5%&=1.'&(/%&.(/%1&0.-12&'%'0%1,&2:1)*+&(/),&()'%@&(/.:+/&01-)*,(.1')*+&5-*&5.*()*:%&-=(%1&(/%&!"#$%&5-44;& D. Qualifications General Qualifications:

• Show commitment to Team HBV and eradicating HBV through past actions • Have good teamwork, communication, work ethic, and attitude


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• Preferably rising high school sophomore, junior, or senior at time of application • Be able to dedicate on average 5 hours/week

Specific Qualifications: Chair:

• Have been heavily involved to Team HBV in the past • Preferably at least one year of large leadership experience within Team HBV

Events: • Preferably have significant experience with event planning, though not required • Great organization skills

Outreach: • Have significant experience with event planning • Ability to meet deadlines • Willingness to tackle and complete large projects

Resources: • Great organization skills

Web & Media: • Preferably previous experience with website creation or upkeep, flyer design, and video

creation E. Yearly Cycle The official term starts at the beginning of September one year and ends at the end of August the next year. Applications are out in early-April and are due in 4 weeks in early May. The new board is announced 1-2 weeks after the due date in mid-May. Old board members must reapply. The ALC advisers and the old board members train the new board until the new term officially begins at the beginning of September. During the training, new board members must take on partial responsibility of tasks. They must get an event kit prepared for officers and members who want to do a local event for World Hepatitis Day. For the first pilot year of the Team HBV High School Board, applications will be out in early-February and due Early-March. The new board members will be announced by the end of March, and training will take place until Mid-June. The new board members will then be responsible for World Hepatitis Day planning, and their term will officially start in the beginning of September. F. The Application The application asks for basic information about past involvements with Team HBV or Hepatitis B eradication efforts, current activities, short essay responses, and two letters of recommendation. One letter of recommendation must be from a teacher, school counselor, coach, orchestra conductor, or other adult who is familiar with the applicant on a more personal or academic level and is not related to the applicant (no family members). The second letter of recommendation must be from a peer.


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G. Day-to-Day Routine Depending on the roles, certain board members will have projects they will work on while other board members will have long-term responsibilities they must continue to accomplish. For example, the Board Chair has the long-term responsibilities of ensuring the other four board members are on task and also contacting clubs on bi-monthly basis via email. On the other hand, the Outreach Member will have one large project he/she will be working on for weeks. Direct orders for projects or specific responsibilities come from the ALC advisers. The Board Chair also has the power to assign specific tasks to each of the board members. Individual board members are also welcome to suggest their own projects or responsibilities, but these must be approved by the ALC advisers and known to the Board Chair.


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A. How to Start a New Club

I. Learn about HBV and Liver Cancer

1. Understand the difference between acute and chronic hepatitis B, between hepatitis A, B, and C; know about liver cancer and cirrhosis, symptoms, modes of transmission, types of blood tests and interpretation, vaccination series, antiviral medication, and follow-up procedures.

2. Watch Aaron Deemer’s Another Life and Across Qinghai documentaries to understand the psychosocial burden of chronic HBV disease as well as to reinforce HBV education.

II. Understand Why Fighting Against HBV is an Important Cause

1. There remains a high prevalence of HBV, especially among APIs, despite the availability of preventive and treatment options.

2. CDC recommends (cannot require) those in high-risk groups to receive testing and vaccination.

3. Even some physicians are not fully aware that APIs are a high-risk group. 4. Since most patients have no symptoms until it is too late in liver disease

progression, HBV is known as the Silent Killer. 5. There are many misconceptions surrounding HBV due to misinformation. 6. Socioeconomic, linguistic, and cultural factors made delivery of sensitive medical

information difficult to first generation API immigrants.

III. Become Familiar With Your School’s Policy for Starting a New Student Group 1. Read the student government’s website and talk to other student leaders. 2. Find information on school funding opportunities/availability. 3. Student groups usually require a club advisor or faculty sponsor. 4. Some schools may require you to obtain a certain number of signatures from

interested member.

IV. Recruit Your Officers 1. In general, getting 1-4 other classmates who are passionate about hepatitis B to

help you makes it easier to pass the club.

V. Connect with Team HBV High School Chapters’ ALC Intern 1. Contact Catherine Lu at [email protected].

VI. Getting Approval from Student Government

1. Submit the application to your student government along with any necessary supporting documents.

2. The application may require the name and contact of club advisor or faculty sponsor along with a list of names of interested members.


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3. The founder/president may be asked to attend the student government meeting to describe their student group and justify the need to start a new student group on campus.

4. This process may take from several weeks to months, depending on the type of student group status you want to pursue, such as charter or recognition, because the status may affect how your group will be funded. However, this varies by school.

VII. Request HBV Outreach Materials 1. Request a Starter Kit from the ALC, which is composed of 10 Team HBV T-

shirts (please give size requests), 10 LIVERight bracelets, 10 JRC pins, 10 JRC pens, 25 Fight HBV tattoos, 50 JRC stickers, 25 Know HBV brochures, 25 Know HBV for Moms brochures, and 1 Physician's Guides. The Starter Kit is free only to new Team HBV chapters and may require an application process.

VIII. Recruit the Team 1. Reserve a room for the information session. To get students’ attention, provide

snacks and beverages if funding is available. 2. Send mass emails to any student groups that focuses on API issues, health

disparities, minority health, health policy, international health, community services, etc.

3. Post recruitment flyers with date and time of information session on bulletin boards at dorms and in academic buildings.

4. Attend school-wide activity fairs and talk to individual students. Bring a sign-up sheet to keep track of those interested in joining, and email them to follow up with a friendly reminder of the information session.

5. Constantly recruit students who are passionate about HBV cause. Aim for a core group of 20 active members, and also keep a list of up to 50 interested students to draw to volunteer during bigger events.

IX. First Meeting: Information Session 1. Bring about 20 membership folders containing the constitution, Know HBV

brochure, membership application, and calendar of potential upcoming events. 2. Bring a meeting sign-in sheet to keep track of those interested in joining. 3. Talk to students about HBV and liver cancer, how they can help eradicate HBV

on campus and in the greater community, and emphasize why their involvement is important and rewarding. Sample PowerPoints are available on the internal site.

4. Have students read the Know HBV brochure and prepare for their membership quiz at the next meeting.

5. (Optional, only if officer positions are unfilled) Discuss official positions and responsibilities. Have interested students complete officer applications by the next meeting, and then arrange a date to have a 15-minute individual interview with the founder/president.


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X. Second Meeting 1. Take the membership quiz and grade them to ensure they score >80% to pass.

Afterwards, go over the quiz to discuss any question members may have. 2. Those passed receive their Team HBV T-shirt, pin, and bracelet. 3. Collect the $3-10 membership fee for those want to join. Also collect the officer

application and schedule an interview after the meeting. 4. Show Another Life and discuss the psychosocial burden of the disease on patients

and their families in China and U.S. This helps to put faces to HBV disease and to gain insight into disease and illness experiences.

XI. Establishment on Campus and in the Greater Community 1. Be proactive about forming partnerships with other student organization or

community groups, such as a donor to JRC, as a site where Know HBV brochure can be disseminated, and/or as a partner or sponsor of chapter events.

2. Send people in the community to the website so they can learn more about our cause.

3. The more connections you form and the more events you participate in or organize, the more new amazing opportunities open up for your chapter.

XII. Preparation for Fundraisers

1. If accepting donations or are selling bracelets and pins, prepare plenty of cash ($1 bills) for change and/or reserve school’s portable cashier machine to directly charge funds from student cards so that all transactions can be routed to the group’s bank account.

2. For cash donation, find or make a cash box. 3. After the fundraiser, have the treasurer keep records of the funds and deposit to

the group’s bank account ASAP. 4. Donations can be tax-deductible because the ALC is a 501C3 nonprofit

organization. 5. All donations to the JRC should wait until the end of the semester to be compiled

and sent in one check payable to “Stanford University”, with “Asian Liver Center” on the memo line, and mail to: Asian Liver Center at Stanford University 300 Pasteur Drive, Room H3680 Stanford, CA 94305-5655 However, we encourage chapters to not focus on fundraising for the ALC as a priority. In fact, we would encourage chapters to use money they have fundraised for outreach events rather than donating it to the ALC.


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A. Overview The sample constitution below is a guideline for starting a high school chapter. It contains the objectives of Team HBV and how to complete those objectives. It may be adapted to fit the specific needs of the high school. For example, officers may be added as the club increases membership. B. Constitution

CONSTITUTION OF TEAM HBV HIGH SCHOOL CHAPTER

PREAMBLE

We, the students of [School Name], in order to raise awareness about hepatitis B and liver cancer, promote the ideals of the Jade Ribbon Campaign, and ultimately strive to better the health and general welfare of the student body and the local community as it pertains to hepatitis B and liver cancer, hereby initiate this organization.

ARTICLE I NAME

The name of this organization shall be [Club Name]. [Club Name] is a recognized student organization at [School Name] and is associated with the Asian Liver Center at Stanford University (ALC).

ARTICLE II PURPOSE

Hepatitis B is a serious infection of the liver that is responsible for up to 80% of liver cancer cases. 1 in 10 Asian and Pacific Islanders are chronically infected by hepatitis B, and 25% of those chronically infected will die of liver cancer or liver failure without proper monitoring or treatment. In fact, 1 million people die each year due to complications caused by hepatitis B. Most of those infected are not aware of their infection because there are no symptoms until it is too late. However, there are simple blood tests that can be done to detect an individual’s hepatitis B infection status, and there is a safe and effective vaccine available that can prevent individuals from contracting the virus. The mission of Team HBV is to advance the goals of the Jade Ribbon Campaign and the Asian Liver Center to raise awareness about hepatitis B and liver cancer at college and high school campuses and their surrounding communities worldwide. Team HBV exists to implement campus and community outreach by raising awareness of the disproportionately high incidence of hepatitis B and liver cancer among Asian and Pacific Islanders (APIs), as well as to


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implement global outreach by promoting the international Jade Ribbon Campaign to educate about, to vaccinate against, and to test for HBV in the U.S. and abroad. Team HBV chapters aim to train knowledgeable educators and inspire student leaders, distribute culturally sensitive and easy-to-understand educational brochures on HBV to students and local residents, organize seminars with documentary films and speakers, promote awareness through variety of campus-wide and community-wide events, conduct campus-wide hepatitis B knowledge survey before and after events to evaluate effectiveness of outreach, and build fruitful partnerships with other student organizations and with local groups in communities: churches, restaurants, supermarkets, health departments, clinics, refuge centers, and nonprofit organizations. In addition, Team HBV chapters aim to raise funds toward the international Jade Ribbon Campaign, practice political advocacy to support greater federal aid for HBV awareness and vaccination programs, and encourage Team HBV chapters to establish at every high school and undergraduate university across the nation.

ARICLE III

MEMBERSHIP

Section I – The membership of Team HBV shall consist of any student enrolled at [School Name] Section II – Team HBV shall not restrict membership based upon race, color, national origin, religion, sex, physical and mental disability, medical condition, ancestry, age, sexual orientation, or citizenship.

ARTICLE IV OFFICERS

There will be 4 executive positions for each academic year-long term which constitutes the Executive Board of Team HBV: President, Vice President, Secretary, and Treasurer. Expansion of the Executive Board positions will be considered if a three-fourths majority of the current Executive Board deem it necessary.

ARTICLE V DUTIES OF OFFICERS

Section I – President shall

1. Direct all chapter activities. 2. Preside over meetings. 3. Oversee all chapter events. (includes campus and community outreach events) 4. Form partnerships with campus and community leaders. 5. Communicate with Faculty Advisor. 6. Report semester activities to ALC. 7. Organize outreach events in community

a. Reserving room and equipment b. Coordinating volunteers and transportation


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c. Directing promotion of event d. Gain other student group involvement/ partnership

Section II – Vice President

1. Organize outreach events on campus 2. Reserving room and equipment 3. Coordinating Volunteers 4. Directing promotion of event 5. Gain other student group involvement / partnership 6. Develop and maintain campus student group partnerships with monthly check-ins to

determine future collaborative efforts. 7. Distribute hepatitis B knowledge survey each semester to make sure current members'

knowledge is up-to-date.

Section III – Secretary 1. Record meeting minutes. 2. Record general meeting attendance and service hours to maintain and encourage active

membership. 3. Assist in recruitment and training of new members. 4. Order new supplies such as brochures, t-shirts, pins, and bracelets from ALC. 5. Maintain website, if applicable

Section IV – Treasurer

1. Collect new membership dues and maintain chapter finances. 2. Work with Vice President to apply for mini-grants and sponsorships for events and

projects 3. Organize and assist in fundraiser events.

. ARTICLE VI ELECTIONS

Section I – The founding semester or quarter may have less than a year-long term if the organization is founded during a Spring semester or quarter. The founders will interview and appoint all officers for the founding year.

With the exception of the founding year, the choice for officers will be determined the April before the new term by public election and majority vote of all chapter members. The President may appoint a member to fill an unexpired term of an officer. Section II - Only members are eligible to vote.


pg. 21 v.3

ARTICLE VII

FINANCES, FEES, DUES

Section I - All new members are expected to pay a $5 membership fee, which funds membership T-shirt, pin, bracelet, and folder with membership documents. An exception shall be given to those members with financial difficulties. Returning members are expected to pay a $5 fee to help maintain club activities. Section II - Treasurer will apply for funding and sponsorship from community sources for event costs. All educational materials, including educational brochures, surveys, documentary films, membership T-shirts, stickers, balloons, LIVERight bracelets, and pins will be provided by ALC. Team HBV also will receive funds from membership dues, various fundraisers, and selling food during International Week. The organization should aim to be as self-sustaining as possible.

ARTICLE VII ACTIVITIES AND PROJECTS

Section I - Team HBV shall spread awareness of the disproportionately high incidence of hepatitis B and liver cancer among APIs and shall fundraise to contribute to the international Jade Ribbon Campaign. Section II - Projects to be undertaken by Team HBV are:

- Hepatitis B Awareness Week (City Council) [Mandatory]: To help create a concerted hepatitis B and liver cancer awareness effort, the Asian Liver Center’s Jade Ribbon Youth Council and Team HBV collegiate and high school chapters will ask their local city council(s) to declare a week in May as “Hepatitis B Awareness Week” with a proclamation. This week shall be determined by the week that contains May 19, which is World Hepatitis Day, and also coincides with Asian and Pacific Islander Heritage month. This will be an effort to increase awareness among city leadership and increase recognition of this serious health threat.

- Hepatitis B Awareness Week (school) [Mandatory]: In conjunction with the city council proclamation, Team HBV chapters will also hold a week of events at their schools to raise awareness about hepatitis B and liver cancer during the week that contains May 19. The events will be at the discretion of each Team HBV club.

- Community Outreach Event (working on the “pitch”): Community outreach event where club members identify a local community where Asian and Pacific Islanders congregate (e.g. grocery store) and raise awareness about hepatitis B to community members. At these events, members can hand out “Know HBV” brochures and talk to community members about the importance of being screened and encourage them to ask their doctors about hepatitis B.

- Peter and the Wolf Story Time Hep B Adaptation at local library: Club members contact a local library to hold a Peter and the Wolf story time skit for young children. The Peter and the Wolf story time skit hepatitis B adaptation (created by the Jade Ribbon Youth Council) will be preformed by club members and educational materials will be provided to parents of children attending the story time session.

- Hepatitis B “Another Life” Screening + Fundraiser: Club members will host a fundraiser through a movie screening of “Another Life,” a documentary about hepatitis B and its


pg. 22 v.3

effects on families. During this time, Club members can ask for donations for snacks or Jade Ribbon Campaign materials (e.g. bracelets).

ARTICLE IX

AMENDMENTS Amendments to this constitution may be submitted by any member throughout the year and must be approved by a majority vote of all chapter members. All amendments, additions or deletions must be filed with the Office of Student Affairs, if required by school.

ARTICLE X MEETINGS

Section I - Team HBV will meet weekly while school is in session with the exception of holidays. Executive Board meetings will be held weekly but the frequency may be altered based on consensus of the officers. Any executive officer may call an Executive Board meeting. Any 3 members who submit a request to the Executive Board together may call special meetings. A quorum consists of a simple majority of the members. Section II – Regular Team HBV meetings shall be held [room] at [time]. Executive Board and special meetings may be held before school, at lunch, or after school in [room] or in another location on campus if the original meeting room is unavailable.


pg. 23 v.3

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A. Statistics about HBV and Liver Cancer HBV Threat

• HBV can survive outside of body for 7 days, as opposed to a few hours for HIV, making HBV 50x-100x more infectious than HIV (WHO)

• As many as 2 out of 3 chronically infected are not aware of the infection due to lack of symptoms

• Those chronically infected have a 200x greater risk of developing liver cancer than uninfected (Jenkins et al., 2001)

• 1 in 4 will die from HBV-related liver cancer or cirrhosis if not treated (WHO, 2000) • If liver cancer is diagnosed late, 5-year survival rate is about 5%-7% (SEER) • Over 50% of all liver cancer is caused by chronic HBV (Global Health Epidemiologist) • Those infected via birth have a 90% chance of becoming chronic carriers, compared to

10% if infected in adulthood (ALC) • 90% of infants infected during the 1st year of life develop chronic HBV (WHO) • 30-40% of children infected during 1-4 years of life develop chronic HBV (WHO) • About 25% of children who become infected with hepatitis B would die from hepatitis B

related liver cancer or cirrhosis as adults (CDC) Worldwide Threat

• 1/3 of world population (2 billion people) have been infected with HBV (WHO) • 1/20 of world population (400 million people) have chronic HBV, which is 10x more

prevalent than HIV/AIDS (WHO) • 1 in 12 people worldwide are living with either chronic HBV or HCV (World Hepatitis

Alliances) • About 620,000- 1 million people worldwide die from HBV –related liver disease and

liver cancer each year (CDC), which is equals to 1 person dying every 30-45 seconds from the vaccine-preventable HBV (ALC)

• 1,645 people die from liver cancer worldwide each day (ALC) • Liver cancer is in the top 5 leading causes of death by cancer worldwide (WHO) • An global epidemiology of HBV infection has been studied in primary literatures. (Ex:

Global Epidemiology of Hepatitis B Virus- Custer et al, 2004; http://www.cdc.gov/hepatitis/HBV/PDFs/ChronicHepBTestingFlwUp.pdf).

Threat in Asia

• 2/3 of the chronically infected live in Asia, with 130 million in China alone • 10% Asians and Pacific Islanders worldwide have HBV • Some regions of Asia have a higher prevalence, reaching up to 15%-20% of the local

population • Compared to 10% Asians, only 0.1% Caucasians, 0.1% Hispanics, and 0.5% African

Americans are chronically infected with HBV; Asians are 100 x more likely to get HBV than whites


pg. 24 v.3

Threat in the U.S.

• About 12.5 million Americans have been infected with hepatitis B at some point in their lifetime (CDC).

• About 1.2 million Americans have chronic HBV (CDC) • One out of every 20 people in the U. S. will become infected with HBV sometime during

their lives (hep foundation international) • 10% (1 in 10) Asian Americans have chronic HBV, compared to less than 0.5% (1 in

1000) in the general U.S. population (CDC) • Liver cancer is one of the greatest health disparities in Asian Americans (SEER) • 1.4 million Americans have chronic HBV, that is 3-4 x more than HIV/AIDS • 5,000 people die from HBV-related liver cancer or cirrhosis with liver failure each year

(CDC, 2005) • Chronic HBV causes 80% of primary liver cancer, which is the 2nd leading cause of death

by cancer for Asian American men. (SEER, NIH, American Caner Association, US Statistics Working Group, 2005)

• Liver cancer is the 7th leading cause of cancer death in API women (US Statistics Working Group, 2005)

• Liver cancer in Asian American men is 9x more likely than in white men. • Among API men living in California, liver cancer ranks as a leading cause of cancer

death: #1 for Laotian Americans, #2 for Vietnamese and Cambodian Americans, #4 for Chinese and Korean Americans, and #5 for Filipino Americans (ALC).

• Medical cost and work loss cost for HBV-related conditions total more than $700 million per year in U.S. (CDC)

• The number of new infections per year has declined from an average of 450,000 in the 1980s to about 80,000 in 1999. The greatest decline has occurred among children and adolescents due to routine hepatitis B vaccination (CDC)

• About 16,000 - 20,000 hepatitis B infected women give birth each year (CDC). • About 1/3 of chronic hepatic B were infected in perinatal and early childhood (CDC) • Foreign born API American pregnant women have an estimated incidence of infection of

8.9%, whereas their white counterparts have an estimated incidence of 0.13% B. Sample Spiels Question: Why is HBV so devastating?

• HBV affects 10x more people than AIDS, and 1 in 10 APIs and Asian Americans, even though it is vaccine-preventable and treatable.

• Many people think vaccination protects them from HBV infection, but the vaccine can’t protect them if they are already are infected; they should get tested before vaccination.

• It is passed silently from one generation to the next because most people are unaware of the infection until they show symptoms, which is usually after they have had a chance to transmit the virus (through birth, blood, and/or unprotected sex). Symptoms usually indicate a severe level of active liver damage.

• One positive aspect is that if you tested negative for HBV and received 3-shot vaccine series, then you are protected for life.


pg. 25 v.3

• Also, if you test positive early on, the disease can be monitored and treated quite effectively.

Question: How can I protect my family and myself?

• Annual exams don’t usually include HBV antibody and antigen tests, but you may request your primary care physician for it.

• If you are not protected, you should get the 3-shot vaccine series within a 6 month period. • Vaccines are free for children under 18 at local health departments, but at a cost for

adults at health departments and clinics. • If you do have HBV, then you should get regular monitoring through blood tests (ALT

for liver damage, AFP for liver cancer) every 6 months, and ultrasound every 12 months. You should also avoid drinking alcohol or taking anything that can further damage your liver.

• You should also get your family tested and vaccinated. • If you have a high viral count and active liver damage, then you may need to take anti-

virals for life.

Question: Why is HBV so prevalent in Asians? • There is no genetic disposition to get hepatitis B virus. • Infection is mostly due to vertical transmission, with asymptomatic mothers passing HBV

to her children. • Babies born to infected mother can still be fine if they receive HBIG (Hepatitis B

Immunoglobulin) and the 1st dose of the vaccine within 12-24 hours of birth. • Otherwise, they have a 90% chance of developing chronic hepatitis B. • Misconceptions and discrimination at school and workplace, lack of knowledge, and lack

of financial means further discourage people from seeking the preventative care and treatment they need.

Question: What can I do to help?

• You can share what you have learned about hepatitis B with your family and friends. • You can potentially save a life by donating $3. In exchange for a LIVERight bracelet

against hepatitis B and liver cancer, your money will fund vaccination for a child in China.

• You can join our group to help us promote awareness of HBV on campus and in the community.

C. How to Target Non-Asian Audiences

While HBV is a major issue for APIs, it affects non-APIs as well. We should target as many people as we can to maximize our impact. Below are some examples of why non-APIs should also be educated about HBV and liver cancer, and how you can approach students with different interests and backgrounds. Medicine/Health This is the most obvious interest group to target since HBV is a cause of high mortality in America, Asia, and worldwide. Patients suffer from devastating HBV-related complications.


pg. 26 v.3

Since HBV is both vaccine-preventable and treatable, it can be eradicated over time with patient education, screening, vaccination, early treatment and monitoring, and protecting yourself and loved ones. Economics From an economic standpoint, practicing preventative medicine is much more cost-effective than treatment-based medicine. Medical and work loss costs for HBV-related conditions total more than $700 million per year in the U.S. (ALC). The cost of hospitalization for symptomatic hepatitis B infection is $8,080 per occurrence (in year 2000 dollars) (Chesson 2000). Patients who require a liver transplant can have first-year billed charges of up to $244,600 (in year 1999 dollars) (Hauboldt 1999). To further complicate the financial issue, HBV disproportionally targets foreign-born Americans, who are less likely to be able to afford the care because they are more likely to have low-paying jobs, jobs without work insurance, lack English proficiency to apply for health insurance, or other reasons. When these patients use Emergency Rooms and can’t afford it, some of the expenses will be covered through tax, affecting everyone. Thus, it makes more economic sense to emphasize educational outreach and to provide vaccination and screening than to treat after the fact. Politics/Law Despite the fact that HIV is more prevalent, more infectious, more preventable and treatable than HIV, it does not catch the eye of media nearly as often. One of the reasons why HBV is not as politically charged may be because less than 0.5% of the U.S. general population is chronically infected. However, it makes more economic sense to the society as a whole to implement the preventative medical measures of the National Hepatitis B Acts (H.R. 4550 and S.3558). Both acts were introduced to Congress in 2005/2006, but were never passed. We need to rally our Congressmen by sending them letters in support of these bills. Health Disparity/Social Injustice Eliminating racial/ethnic health disparities is a top priority in U.S. (USDHHS, 2000). HBV is one of the greatest health disparities between API Americans and Caucasian Americans. Even though the law has mandated that school children get the HBV vaccine, they are not tested beforehand to see if they are already infected. While law has recommended that high-risk immigrants and pregnant mothers get tested for HBV, it is neither mandatory nor sufficiently funded. Because of this health inequity, patients may also suffer from different forms of social injustice. Patients range from being unable to obtain health insurance in U.S. to being discriminated against at school and workplaces in China. Public Health/Epidemiology In 2007, the US Census Bureau recorded that Asian Americans constitute 4.3% of the U.S. population (12.5 million), but it is projected that Asian Americans will grow to become 8% of the population (33.4 million) people by 2050. If the HBV epidemic is not addressed appropriately, the changing demographics will further deteriorate public health and magnify this health disparity. A similar issue applies to migrants from other countries, such as certain African countries where there is also a very high prevalence of HBV. It is important to keep in mind that as our world becomes increasingly smaller with mass migration and globalization, the prevalence of HBV in different countries may also change over time.


pg. 27 v.3

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B. World Prevalence Figure

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Documents

Team HBV High School Chapters Manual