NCI Survey Respondents Who Are Verbal and Non-Verbal: A Profile

NCI Survey Respondents Who Are Verbal and Non-Verbal: A Profile

National Core Indicators (NCI)

WHAT IS NATIONAL CORE INDICATORS (NCI)?

• Multi-state collaboration of state DD agencies• Measures performance of public systems for

people with intellectual and developmental disabilities

• Assesses performance in several areas, including: employment, community inclusion, choice, rights, and health and safety

• Launched in 1997 in 13 participating states• NASDDDS – HSRI Collaboration

NCI State Participation 2013-14

HI

WA

AZ OK

KY

AL

NC

PA

MA

TX

AR GA

NM

NJ

MO

NH

OH*IL

LA

NY

Wash DC

FL

CA*

SDOR MN

UT CO KS

MS

TNSC

WIMI

INVA

DEMD

State contract awarded in 2013-14 through AIDD fundingCA*- Includes 21 Regional CentersOH*- Also includes the Mid-East Ohio Regional Council

39 states, the District of Columbia and 22 sub-state regions

ME


Data Source:Adult Consumer Survey

• Standardized, face-to-face interview with a sample of individuals receiving services Background Information Section I (no proxies allowed) Section II (proxies allowed)

• No pre-screening procedures• Conducted with adults only (18 and over) receiving at

least one service in addition to case management• Section I and Section II together take 50 minutes (on

average)

Verbal vs. Non Verbal Respondents- Adult Consumer Survey


Methods, Measures and Sample:

• 2011-2012 data collection cycle

• 19 states, one regional council (AL, AR, AZ, CT, GA, HI, IL, KY, LA, MA, ME, MI, MO, NC, NJ, NY, OH, PA, SC and the Mid-East Ohio Regional Council)

• Total N: 12,236 individuals


Methods, Measures and Sample:Verbal vs. Non-Verbal

• Source: Item from Background Section What is this person’s primary means of expression?

• Spoken• Gestures/body language• Sign language or finger spelling• Communication aid/device• Other• Don’t know

• Recoded to create Verbal/Non-Verbal variable


Demographic Profile

23.9%

76.1%

Non-Verbal

Verbal


DemographicsAverage Age: Years Gender: Male

Non-Verbal Verbal0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

58.0% 55.6%

Non-Verbal Verbal0

10

20

30

40

50

60

70

80

90

100

43.4 43.6


Demographics: Race and Ethnicity(p<.001)

72.4%

22.0%

5.6%

Non-Verbal

White, Non-HispanicBlack, Non-HispanicHispanic

76.4%

19.2%

4.3%

Verbal


75.5%

19.9%

4.7%


Entire NCI Sample


Demographics: Other Diagnoses

*** (p<.001) ** (p<.01)

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

20.5%17.7%

25.4%

40.3%

13.0% 10.1% 8.3%

37.7%

9.5% 11.0%

20.1%

5.1% 3.8%

10.6%

Non-Verbal

Verbal


DemographicsGuardianship Status (p<.001) Mobility (p<.001)

0%

20%

40%

60%

80%

100%

54.7%

17.4% 28.0%

83.3%

13.2%3.5%

Non-VerbalVerbal

Person is in-dependent of guardianship

Limited guardianship

Full guardianship

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

33.9%

7.6%

58.5%56.8%

5.9%

37.3%

Non-VerbalVerbal


DemographicsHealth (p<.001)

Excellent or very good Fairly good Poor0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

31.3%

61.8%

6.8%

42.3%

53.6%

4.1%

Non-Verbal

Verbal


Preventive Care

At least one kind of medication for mood disorders, anxiety, behavior problems or psychotic disorders

(p<.001)

*** p<.001 ** p<.01

Phys. Exam in Past Year***

Vision Exam in Past Year**

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%93.3%

58.9%

90.2%

61.8%

Non-Verbal

Verbal

Non-Verbal Verbal0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

47.8%

55.4%


Residence Type (p<.001)

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

12.2%

41.9%

4.1%

30.8%

6.3% 4.8%2.2%

37.2%

15.2%

34.6%

6.0% 4.9%

Non-Verbal Verbal


EmploymentIn the past 2 weeks, was person engaged in….

0%

10%

20%

30%

40%

50%

60%

70%

1.9%

17.9%

10.5%

59.3%

16.7%

22.2%

32.0%

45.7%

Non-Verbal Verbal

***p<.001


EmploymentOf the individuals who do not have a job, the following would like a job (p<.001)

Do you go to a day program or other activity during the day? (p<.001)

Non-Verbal Verbal0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

28.4%

47.2%

Non-Verbal Verbal0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

84.3%

72.8%


Services Received

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%91.7%

28.2%

50.6%

64.9%

24.2%

94.1%

9.2%

38.8%

61.3%

19.9%

Non-VerbalVerbal

*** p<.001 ** p<.01


Home

Do you like where you live?***

Would you like to live somewhere

else?***

Do you like your neighborhood?**

Do you ever talk to your neighbors?***

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100% 95.0%

19.8%

92.9%

27.5%

89.7%

26.7%

87.8%

36.9%

Non-VerbalVerbal

*** p<.001 ** p<.01


Safety

0%

5%

10%

15%

20%

25%

30%

35%

40%

45%

50%

10.3%7.5% 8.3%

13.8%

4.4% 4.5% 3.7%5.3%

Non-Verbal Verbal

*** p<.001 ** p<.01


Relationships

Has friends who are not staff or family***

Has a best friend*** Can go on a date without restrictions***

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

54.7%

64.6%

49.7%

71.7%76.3%

65.5%

Non-VerbalVerbal

*** p<.001 ** p<.01


Community Participation I

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

80.6%76.6%

67.7%73.4%

90.9%85.9%

73.2%

87.0%

Non-Verbal Verbal

*** p<.001 ** p<.01


Community Participation II

Went to religious services in the past month***

Participated in sports in the past month***

Went on vacation in the past year***

0%

10%

20%

30%

40%

50%

60%

70%

39.6%

51.2%

34.8%

50.5%

58.6%

48.0%

Non-Verbal Verbal

*** p<.001 ** p<.01


Choice IPerson had at least some input in…..

***p<.001

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

21.3%17.2%

44.3%

59.7%

76.1%

56.7%

43.3%

63.4%

87.0%

94.5%

Non-Verbal Verbal


Choice IIPerson had at least some input in…..

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

33.9%

46.5%

66.9%

46.9%

64.9%60.9%

94.1%

58.0%

Non-VerbalVerbal

***p<.001


Rights and Respect

***p<.001

0%

10%

20%

30%

40%

50%

60%

70%

80%

90%

100%

19.4%

74.4%

86.8%

16.6%11.8%

81.4%

91.5%

27.9%

Non-Verbal

Verbal


Additional Services Needed I

***p<.001

Finding or changing jobs***

Education or training***

Finding or changing housing***

Social/relationship***0%

5%

10%

15%

20%

25%

30%

35%

40%

7.3%

14.6%

9.0%

21.2%

34.5%

22.9%20.7%

31.7%

Non-Verbal Verbal


Additional Services Needed II

0%

5%

10%

15%

20%

25%

30%

35%

40%

27.1%

21.9%

37.3%

9.7%8.2%

27.2%

Non-Verbal

Verbal

***p<.001


Conclusions- Individuals who are non-verbal are:

• Less likely to have a paid job in the community, and less likely to be doing any activities during the day

• More likely to be scared in several environments (home, neighborhood and day activity) and less likely to have someone to talk to about being scared

• Less likely to have relationships and be involved in the community

• Less likely to make choices and decisions

• More likely to not have their rights respected


Future Research…..

• It is important to continue this research and control analyses for demographic and personal characteristics that may influence outcomes.

• More detailed knowledge about the non-verbal population can lead to more targeted policies


Contacts

• HSRI Josh Engler: [email protected]

• NASDDDS Mary Lee Fay: [email protected]

• NCI website: www.nationalcoreindicators.org

mailto:[email protected]

mailto:[email protected]

http://www.nationalcoreindicators.org/

Documents

NCI Survey Respondents Who Are Verbal and Non-Verbal: A Profile