Embed Size (px)
Citation preview
INTERNATIONAL CONFERENCE
EUROPEAN ASSOCIATION OF CENTRES OF MEDICAL ETHICS
(EACME)
CENTRE FOR BIOMEDICAL ETHICS AND LAW
September 8–10, 2016
Leuven, Belgium
“30 YEARS OF EUROPEAN BIOETHICS”
FINAL PROGRAM
2
Thursday, September 8, 2016
12.00 – 13.00
Board of directors EACME
University Hall
Room: Kolommenzaal
12.00 – 13.45
Registration
University Hall
13.45 – 14.00
Opening Session
Chair: Chris Gastmans
Ruud ter Meulen (President EACME)
Promotion Room
14.00 – 15.00
Organizational Ethics in Health Care: Principles, Cases and Practical Solutions
Chair: Yvonne Denier
Keynote Lecture: “Organizational Virtue Ethics in Health Care: The Centrality of Care”
Maureen Sander-Staudt (Southwest Minnesota State University, USA)
Promotion Room
15.00 – 15.15
Short break
Music
15.15 – 17.00
30th Anniversary Celebration Session
Interactive Panel Debate: “Past, Present and Future Challenges of European Bioethics”
Inauguration new Master of Bioethics
Fellowships Fund Professor Roger Borghgraef
EACME Prizes Professor Paul Schotsmans
Promotion Room
17.00
Reception
Jubilee Room
3
Friday, September 9, 2016
09.00 –
10.00
Ethical, Legal and Social Developments in Human Genomics
Chair: Pascal Borry
Keynote Lecture: “Citizen Science for Health: Ethical Challenges and Opportunities”
Effy Vayena (University of Zurich, Switzerland)
Room: Infirmerie
10.00 –
10.30
Break
Salon
Screening and reproductive decision-making
Consumer genomics, public health genomics and citizen’s science
Ethics in dementia care
Ethics in end-of-life care
Ethics in mental health
Teaching integrity and preventing misconduct
Organizational identity, choices & access to care
Evaluation of clinical ethics support in mental health care
Reproductive technologies and bio-technology
Chair: Borry, Pascal
Chair: Shabani, Mahsa
Chair: Jox, Ralf
Chair: Lemmens, Wim
Chair: Hens, Kristien
Chair: Yi, Nannan
Chair: Degrie, Liesbeth
Chair: Schotsmans, Paul
Chair: Vanermen, Ellen
Room: St. Barbara
Room: Bisschops-kamer
Room: Anna de Paepe
Room: Grill
Room: St. Gommarius
Room: Heilige Geest tafel
Room: M.M. van Hamaele
Room: Lemaire
Room: Florquin
4
Room: St. Barbara
Room: Bisschops-kamer
Room: Anna de Paepe
Room: Grill
Room: St. Gommarius
Room: Heilige-Geest tafel
Room: M.M. van Hamaele
Room: Lemaire
Room: Florquin
10.30 –
10.50
Chokoshvili, Davit et al. (Belgium)
“Population carrier screening for recessive genetic disorders: interview study with European geneticists”
Kerasidou, Angeliki et al. (UK)
“Scientific responsibility in investigating societal and political changes in the genomic era”
Davis, Dena (USA)
“Getting out while the getting’s good: preemptive suicide in the face of impending dementia”
Arruego, Gonzalo (Spain)
“The evolution of the normative framework on ‘matters of life and death’: the case of the Spanish law”
Ritzenthaler, Daniela (Switzerland)
“Shared decision making by physicians and close family members on beyond of people with intellectual disabilities: three models”
Zwart, Hub (The Netherlands)
“Misconduct in the era of big science: a marginal or a symptomatic challenge?”
Choong, Kartina et al. (UK)
“Management of PVS patients in the (UK) national health service and the challenges for faith communities”
Kremer, Swanny et al. (The Netherlands)
“(How) can one measure moral sensitivity?”
Segers, Seppe et al. (Belgium)
“Does anyone ‘need’ stem cell derived sperm cells and egg cells?”
10.50 –
11.10
Henneman, Lidewij et al. (The Netherlands)
“Responsible implementation of expanded carrier screening: recommendation of the European Society of Human Genetics”
Kalokairinou, Louiza et al. (Belgium)
“Experiences and attitudes of European clinical geneticists towards direct-to-consumer genetic testing: interview study”
Fox, Susan (USA)
“Dignity and dementia from a different perspective”
Huxtable, Richard et al. (UK)
“Best interests in medical ethics and law: judging the welfare of minimally conscious patients”
Sterckx, Sigrid (Belgium)
“Euthanasia for psychological suffering in Belgium: recent developments”
Deans, Zuzana et al. (UK)
“Why research integrity matters to you”
Cutas, Daniela (Sweden)
“Infertility and ‘the family’: who and in what circumstances should have access to reproductive technologies?”
Hem, Marit et al. (Norway)
“Qualitative and quantitative evaluation of ethics reflection groups in mental health care”
De Wert, Guido et al. (The Netherlands)
“Time to reconsider the time limit for human embryo-research?”
5
Room: St. Barbara
Room: Bisschops-kamer
Room: Anna de Paepe
Room: Grill
Room: St. Gommarius
Room: Heilige-Geest tafel
Room: M.M. van Hamaele
Room: Lemaire
Room: Florquin
11.10 –
11.35
van der Hout, Sanne (The Netherlands)
“The aim of reproductive screening”
Schaper, manuel (Germany)
“Ethical aspects of communication practices in web-based direct-to-consumer genetic testing”
Genske, Anna (Germany)
“Prescription of drugs: yes, dialysis: maybe, heart surgery: no? Decision-making capacity and the notion of relativity in dementia patients”
Nicoli, Federico et al. (Italy)
“Decision-making in the ICU: diverse ethical approaches”
Vatne, May et al. (Norway)
“The importance of inspiring hope in patients with suicidal ideation: patients’ experiences”
Consoli, Luca (The Netherlands)
“From codes to narratives: a virtue-ethical approach to professional conduct and research integrity”
Denier, Yvonne et al. (Belgium)
“How much is a life worth? Reflections on justice and priority setting in health care and the value of human life”
Foureur, Nicolas (France)
“How to evaluate a study about involuntary hospitalization as a clinical ethics supports and services in psychiatry”
Elger, Bernice et al. (Switzerland)
“The impact of education on the reproductive autonomy of married Nigerian women”
11.35 –
12.00
Dondorp, Wybo et al. (The Netherlands)
“Non-invasive prenatal testing for aneuploidy and beyond: ESHG/ASHG position statement”
Marin, Francesca (Italy)
“Putting health in the marketplace: ethical issues about providing online health risk information”
Vanderhaegen, Bert (Belgium)
“Who’s next in the euthanasia saga in Belgium? Euthanasia of persons with dementia and why it is ethically dangerous to take that route”
Niemeyer, Marcio et al. (Brazil)
“Biotechno-science and biopolitics as a challenge for bioethics of protection for vulnerable older persons with cancer in ICUs”
Jacobs, Delphine et al. (Belgium)
“Ethical challenges in the clinical use of the concept of autism: systematic review of empirical studies on the diagnostic experiences of parents and clinicians”
Aluas, Maria (Romania)
“Promoting integrity, trust, and responsibility against research misconduct”
Liégeois, Axel (Belgium)
“Choices in health care: a dialogical and value-based ethical model”
Bruun, H. et al. (Denmark)
“Ethics in mental healthcare: what happens when ethical reflection groups are introduced?”
Jimeno, Sonia (Spain)
“The era of biotechnology: patents as biopolitical devices and bio-precariousness”
6
Room: St. Barbara
Room: Bisschops-kamer
Room: Anna de Paepe
Room: Grill
Room: St. Gommarius
Room: Heilige-Geest tafel
Room: M.M. van Hamaele
Room: Lemaire
Room: Florquin
12:00 -
12:25
Kater, Adriana et al. (The Netherlands)
“The ethics of routine? Conceptual analysis of ‘routinisation’ in prenatal screening”
Del Savio, Lorenzo et al. (Germany)
“Motivations and views of participants in the British Gut Project and their implications for the ethical debate around personal genomics”
Vanderschaeghe
Gwendolien et al. (Belgium)
“Ethical opportunities and challenges in diagnosing the early stage of Alzheimer disease”
Zamperetti, Nereo et al. (Italy)
“Caring for elderly dying persons in an acute setting: an Italian experience”
Devolder, Katrien (UK)
“Euthanasia in detainees in Belgium”
Blom, Fenneke et al. (The Netherlands)
“Teaching research integrity to PhD students: the relevance of moral case deliberation”
Frith, Lucy (UK)
“The English NHS, market mechanism and organisational ethics”
Reiter-Theil, Stella et al. (Switzerland)
“Evaluation by case-series: the top three themes of ethics consultations in psychiatry”
Dekkers, Jan (UK)
“Animal deliberation: should the consumption of animal products be banned to safeguard human health?”
12:25 –
12:50
Rigo, Adelheid (Belgium)
“Parental freedom and prenatal tests: non-directive versus directive counselling”
Kaczmarek, Emilia (Poland)
“Health, risk and responsibility”
Aleksandrova, Silviya (Bulgaria)
“Human rights’ perspective on end-of-life care in Bulgaria”
Brand, Cordula et al. (Germany)
“An integrative model for organizational ethics”
Hendrix, Sven et al. (Belgium)
“Both whistle blowers and the scientists they accuse deserve protection”
Kavas, Volkan Mustafa (Turkey)
To choose or not to choose physicians: can it be considered a matter of ‘freedom’?”
Weidmann-Hügle, Tatjana (Switzerland)
“Clinical ethics consultation in light of chronic illness”
Henneman, Lidewij et al. (The Netherlands)
“Non-invasive prenatal testing and the changing landscape of prenatal screening: stakeholders perspectives”
7
12.50 –
14.00
Lunch
Infirmerie
Genomics and pediatrics
Data management, access and sharing
Ethics in care for older people
Technology and healthy ageing
Biobanking Organizational ethics and professional ethics
Participants and researchers: conflicting interests?
Family ethics in psychiatry
Nursing Ethics
Chair: Hansen, Bart
Chair: Kalokairinou, Louiza
Chair: Horn, Ruth
Chair: Pegoraro, Renzo
Chair: Chokoshvili, Davit
Chair: Jacobs, Delphine
Chair: Dierickx, Kris
Chair: Molewijk, Bert
Chair: Dierckx de Casterlé, Bernadette
Room: Heilige-Geest tafel
Room: Anna de Paepe
Room: M.M. van Hamaele
Room: Bisschops-kamer
Room: St. Gommarius
Room: Grill
Room: Lemaire
Room: St. Barbara
Room: Florquin
8
Room: Heilige-Geest tafel
Room: Anna de Paepe
Room: M.M. van Hamaele
Room: Bisschops-kamer
Room: St. Gommarius
Room: Grill
Room: Lemaire
Room: St. Barbara
Room: Florquin
14.00 –
14.20
Howard, Heidi et al. (Sweden)
Fernau, Sandra et al. (Germany)
Tchaneva, Galina et al. (Bulgaria)
Ehni, Hans-Jörg et al. (Germany)
Halmsted, Nana Cecilia (Denmark)
Podmore, Will (UK)
Gommel, Michael (Germany)
Landeweer, Elleke (Norway)
Adam-Paffrath, Renate (Germany)
“Whole genome sequencing in newborn screening: statement on the continued importance of targeted approaches in newborn screening programmes”
“Physicians and researchers in systems medicine: new roles and responsibili ties?”
“Supporting old people in their daily choices and decision-making”
“Is ‘successful aging’ an oxymoron? Ethical challenges for the application of bio-gerontology to ‘successful aging 2.0’”
“Should we be morally concerned about exploitation of individuals in developing countries in biobank research?”
“International recruitment and workforce migration in health care”
“Inconsistency and unawareness: two primary criteria for authorship in research institutions, and how to avoid them”
“Moral perspectives on family involvement in psychiatry”
“Dignity and humiliation in professional home care arrangement from the nurse’s perspective”
14.20 –
14.40
Esquerda, Montse et al. (Spain)
Frankova, Vera et al. (Czech Republic)
Umiastuti, Pirlina (Indonesia)
Lenca, Marcello et al. (Switzerland)
Lukow, Powel (Poland)
Zydziunaite, Vilma (Lithuania)
Hostiuc, Sorin et al. (Romania)
Forde, Reidun (Norway)
Haas, Margit (Germany)
“Genetic test of mental disorders in childhood”
“Do we really know what to give them? The request for raw data from next-generation sequencing and its implications”
“Philosophical basis for ethics in care for older persons”
“Proactice ethics for empowering technology: critical issues in technological innovation for dementia care”
“’Human dignity and ‘self-ownership’: the case of trans-plantation medicine”
“Issues related to the management of ethical dilemmas: head nurses’ experiences of ethical dilemmas in decision-making”
“ICMJE criteria for authorship: friend or foe”
“’I received cold letters’: ethical challenges concerning involvement of next of kin, during serious mental illness and coercion”
“Who decides at the end of life? Decision-making processes related to tube feeding in patients with dementia: nurses’ roles”
9
Room: Heilige-Geest tafel
Room: Anna de Paepe
Room: M.M. van Hamaele
Room: Bisschops-kamer
Room: St. Gommarius
Room: Grill
Room: Lemaire
Room: St. Barbara
Room: Florquin
14.40 –
15.00
Vears, Danya et al. (Belgium)
“On the sharing of genomic and health-related data from children”
Andanda, Pamela (South Africa)
“Big data and public health: managing ownership and intellectual property issues to facilitate public health research data sharing in low- and middle-income countries”
Van Loon, Myriam et al. (The Netherlands)
“Quality of life in older adults: putting the capability approach in practice”
Karterud, Dag et al. (Norway)
“Ethical considerations upon responsible innovations for dignified lives at home for persons with mild cognitive impairments or dementia”
D’Abramo, Flavio (Germany)
“Scrutinizing autonomy of patients through empirical research: the case of consent to biobanking”
Martinez Rodriguez, Laura et al. (Spain)
“Attitudes and behaviors connected with the institutional values in a pediatric hospital”
Helgesson, Gert (Sweden)
“Research-therapy distinction: can and should it be maintained”
Martinsen, Elin et al. (Norway)
“The silent world of young next of kin experiencing coercion and serious mental illness in the family”
Songhorian, Sarah et al. (Italy)
“Moral distress in the end-of-life nursing of oncological inpatients: a multi-method qualitative draft study”
15.00 –
15.20
Sénécal, Karine et al. (Canada)
Shabani, Mahsa (Belgium)
Xu, Hanhui (UK)
Vandemeulebroucke, Tijs et al. (Belgium)
Leitsalu, Liis et al. (Estonia)
Wallner, Jürgen (Austria)
Rozynska, Joanna (Poland)
Hem, Marit (Norway)
Storaker, Annet (Norway)
“Legal approaches regarding healthcare decisions involving minors: implications for next-generation sequencing”
“Ethical protections for research participants in sharing, use, and access to genomic research data”
“Why should adult children take responsibility for older parents and what should they do?”
“Older people’s attitudes towards and experiences of socially assistive robots in elderly care: systematic literature review of qualitative evidence”
“Reporting incidental findings of genomic disorder-associated CNVs to biobank participants”
“Dementia governance: how organizational ethics helps shaping an acute-care hospital more dementia-friendly”
“Three party model for risk analysis and the ethics of payment to research subjects”
“The patient’s history and involvement in care”
“From painful busyness to emotional immunization: nurses’ experiences of ethical challenges on hospital wards”
10
Room: Heilige-Geest tafel
Room: Anna de Paepe
Room: M.M. van Hamaele
Room: Bisschops-kamer
Room: St. Gommarius
Room: Grill
Room: Lemaire
Room: St. Barbara
Room: Florquin
15:20 –
15:40
Tozzo, Pamela (Italy)
“Ethics of paternity testing: new challenges in civil partnership parenthood”
Johnston, Carolyn (UK)
“Moral and legal analysis of proxy consent to include deceased adult’s sample in 100,000 Genomes Project”
Zasada, Magda et al. (UK)
“Challenges and opportunities of researching ethics education for caregivers in residential homes for older people”
Vedder, Anton (Belgium)
“The implementation of ethical and legal preconditions as a facilitator of eHealth”
Nobile, Helene et al. (Germany)
“Participants’ accounts on their decision to join a cohort study with an attached biobank: interview study within 2 German studies”
Klingler, Corinna (Germany)
“Migrant physicians and setting-specific knowledge: negotiating responsibility”
Manning, Joanna (New Zealand)
“Compensation for injured participants in clinical research in New Zealand”
Hens, Kristien (Belgium)
“The ethics of complexity: the ethics of autism genetics”
Degrie, Liesbet et al. (Belgium)
“How to realize dignified care for ethnic minority patients? Review of qualitative data on intercultural care experiences within the hospital”
15:40 –
16:00
Caenazzo, Luciana (Italy)
“Young people’s perspective on biobanking: pilot study on Italian university students”
Sacchini, Dario et al. (Italy)
“Whole biobank transfer between different institutions: the experience of ‘Moli-sani’ Project biobank”
Zawila-Niedzwiecki, Jakub (Poland)
“Overcoming limitations of decision-making capacity of proxy decision makers: implications for care for the elderly”
Ueland, Venke et al. (Norway)
“Longing in suffering and health”
Roussel, Landon (USA)
“Direct primary care: moral answer to the US healthcare crisis?”
Ravinetto, Raffaella et al. (Belgium)
“How to ensure ethical conduct in international clinical research: the role of the Good Clinical Practices guidelines”
Pisu, Salvatore et al. (Italy)
“Neuroethics: the new frontier of bioethics”
Vidovic, Julija (France)
“Development and perspectives of theological bioethics”
11
16.00 –
16.30
Break
Salon
16.30 –
17.30
Ethical Issues in Care for Older Persons
Chair: Chris Gastmans
Keynote lecture: “Making Treatment Decisions for Vulnerable Older Persons”
Ralf Jox (Ludwig-Maximilians University, Germany)
Infirmerie
17.30 –
18:30
General Assembly EACME
Room: Heilige Geesttafel
20:00 Conference Dinner (optional)
Infirmerie
12
Saturday, September 10, 2016
09.00 –
10.00
Ethics and Integrity in Research Chair: Kris Dierickx
Keynote Lecture: « How Can We Foster Responsible Research Practices ? » Lex Bouter (VU University Amsterdam, The Netherlands)
Infirmerie
10.00 –
10.30
Break Salon
Ethics and reproductive technologies
Ethics and clinical genetics
Ethics in care for older people
Ethics in palliative care
Individual and institutional
responsibilities in research
integrity
New perspectives on research ethics
Organizational ethics as part of
ethical organizations
Ethics in public health care and effectiveness of
clinical ethics support
Chair: Porz, Rouven
Chair: Vears, Danya
Chair: Vandemeule-broucke, Tijs
Chair: Sterckx, Sigrid
Chair: Pinxten, Wim
Chair: ter Meulen, Ruud
Chair: Denier, Yvonne
Chair: Vanderschraeghe,
Gwendolien
Room: St. Barbara
Room: Bisschopskamer
Room: Grill
Room: Lemaire
Room: Heilige-Geest tafel
Room: Infirmerie
Room: M.M. van Hamaele
Room: Anna de Paepe
13
Room: St. Barbara
Room: Bisschopskamer
Room: Grill
Room: Lemaire
Room: Heilige-Geest tafel
Room: Infirmerie
Room: M.M. van Hamaele
Room: Anna de Paepe
10.30 –
10.50
Mertes, Heidi (Belgium)
“Preimplantation genetic screening: technology-driven, commercially driven or patient-driven?”
Niemiec, Emilia et al. (Italy)
“Readability of informed consent forms for whole genome sequencing”
Le Bon, Cynthia et al. (France)
“Ethical issues revealed by relational conflicts between proxies and healthcare professionals in nursing homes”
Montaguti, Elena et al. (Italy)
“Consolation in palliative care: a philosophical, exegetical and empirical analysis”
Eriksson, Stefan (Sweden)
“A new approach for how to investigate misconduct”
Schaefer, Jamie et al. (USA)
“Current state of declaring conflict of interest in ophthalmic literature”
Gallagher, Colleen (USA)
“Adding ethics questions to traditional organizational decision-making”
Lemmens, Trudo (Canada)
“Canada’s path towards a legislative framework for ‘medical assistance in dying’ (MAID)”
10.50 –
11.10
Brunet, Laurence et al. (France)
“Genetics and termination of pregnancy”
Wöhlke, Sabine et al. (Germany)
“Between uncertainties, risk communication and biomarker research: physicians’ conversation strategies: qualitative study”
Litterst, Leona et al. (Germany)
“Discourse biogerontology: preparing medical students for dealing with age and ageing”
Pegoraro, Renzo (Italy)
“Palliative care for the elderly: from a medical to a social paradigm”
Jensen, Karsten Klint (Denmark)
“Analyzing decision-making of funders of public research as a case of information asymmetry”
Thomas, Gigesh (Belgium)
“Revictimization of the victims and the relevance of a virtue ethics approach in trauma-related research”
Hofer, Markus et al. (Switzerland)
“A survey of ethical support in a tertiary hospital: importance, accuracy of the current support and needs”
Terkamo-Moisio, Anja (Finland)
“Attitudes towards euthanasia among general public in Finland”
14
Room: St. Barbara
Room: Bisschopskamer
Room: Grill
Room: Lemaire
Room: Heilige-Geest tafel
Room: Infirmerie
Room: M.M. van Hamaele
Room: Anna de Paepe
11.10 –
11.30
Ingovska, Elena et al. (Macedonia)
“Reproductive responsibility: the evolution of humanity”
Urban, Alexander (Germany)
“Clinical implementation of genomic high-throughput sequencing: perspectives of patients and experts in Germany”
Michalowska, Monika et al. (Poland)
“Sexuality and aging: stereotypes in bioethics and audiovisual culture”
Elger, Bernice et al. (Switzerland)
“What does self-determination mean for palliative care patients?”
Mertz, Marcel et al. (Germany)
“’I was told to do so’: professional academic ethos as a facet of (un)ethical research”
Kovacs, Laszlo (Germany)
“Searching for equipoise in radiotherapy: how to determine the need for RCTs before applying a new and ‘obviously beneficial’ treatment?”
Tuohey, John et al. (USA)
“The visualization of integrity in organizational ethics”
Tamin, Jacques (UK)
“Health data sharing in the UK: a proposed new privacy paradigm”
11.30 –
11.50
Botbol Baum, Mylene (Belgium)
“CRISPR 9 and the future of human editing”
Vears, Danya et al. (Belgium)
“Ethical challenges of reporting following next generation sequencing technologies: perspectives of laboratory personnel”
Mladenova, Silviya et al. (Bulgaria)
“Ethical challenges and problems of medical professionals in the work with the elderly”
Touwen, Dorothea (The Netherlands)
“Intricacy and interpersonal relationships: family relationships at the core of care in the last chapters of life”
Consentino, Marco et al. (Italy)
“Research integrity: role of the institution”
Piffer, Istvan (Italy)
“A proposal of multimedia hybrid virtual tool for disaster medicine research and bioethics training”
Van Nistelrooij, Inge et al. (The Netherlands)
“What institution do we need for care-ethical case deliberation? Plans for an international research project”
West-Oram, Peter (Germany)
“Reconceptualising obligations for public and individual health: healthful environments as meta public goods”
15
Room: St. Barbara
Room: Bisschopskamer
Room: Grill
Room: Lemaire
Room: Heilige-Geest tafel
Room: Infirmerie
Room: M.M. van Hamaele
Room: Anna de Paepe
11:50 –
12:10
Palacios-Gonzalez, César (UK)
“Ethics of Mitochondrial replacement techniques: a Habermasian perspective”
Wauters, Annet et al. (Belgium)
“Different ways of feeling responsible when carrying a BRCA mutation”
Simek, Jiri et al. (Czech Republic)
“Ethical issues in care for older persons”
Comoretto, Nunziata (Spain)
“Letters of gratitude: essentials of palliative care through the eyes of family careers”
Yi, Nannan et al. (Belgium)
“Biomedical research integrity in China: systematic review of empirical research”
Sanchez, Jesus Pineda et al. (Spain)
“Problems and challenges for the ethics committee on paediatrics and mental health clinical research”
Galvagni, Lucia et al. Italy)
“Clinical narratives and organizational ethics in an ICU”
Neitzke, Gerald et al. (Germany)
“Outcomes of clinical ethics case consultation at Hannover Medical School: results of 150 cases”
12:10 –
12:35
Cavaliere, Giulia et al. (UK)
“Assessment of the ‘appeal to eugenics’ argument in the Mitochondrial DNA replacement therapy debate”
Mahr, Dana et al. (Switzerland)
“Living the genome of chronic inflammatory bowel diseases”
Ferdousi, Nahid (Bangladesh)
“Ethical and legal issues in caring for elderly people”
De Clercq, Eva et al. (Switzerland)
“The stories of palliative patients, parents and physicians in pediatric oncology”
Sponholz, Gerlinde (Germany)
“Teaching good scientific practice in Germany: different approaches for different needs”
Nicholson, Richard (UK)
“Could climate change save the life of medical ethics?”
Vinckx, Marie-Astrid et al. (Belgium)
“The impact of time pressure on nursing care:explorative qualitative study on oncology nurses’ experiences”
Nadolny, Stephan et al. (Germany)
“Effectiveness of ethical case interventions: a mixed-methods review”
12:35 –
13:00
Dupras, Charles (Canada)
“Epigenetic responsibility: what kind of (if any) novel imperatives?”
Gaille, Marie et al. (France)
“Accompagne-ment in the French end-of-life debate: striking the right balance between solidarity and autonomy”
Mitra, Agomoni Ganguli et al. (UK)
“Reconsidering social value in research”
Nadolny, Stephan et al. (Germany)
“Ethical case interventions as complex interventions: descriptive analysis of three models and implications for outcomes research”
16
13.00 –
13.15
Closing Session Chair: Chris Gastmans
Ruud ter Meulen (President EACME)
Room: Infirmerie
