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7/29/2019 ALC Orientation Call 4 18
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative
AgendaName Activity Time
Myra Rosen Reynoso/Treeby Brown Introduction to ALC 1:00-1:05
Melody Cherny Introduction to AMCHP and ALC
model/Icebreaker
1:05-1:10
Marilyn Hartzell (Oregon) Lead State -- Oregon 1:10-1:15
Norma Marti (North Carolina) Lead State -- North Carolina 1:15-1:20
Indiana Program description 1:20-1:25
New Hampshire Program description 1:25-1:30
New Mexico Program description 1:35-1:40
Rhode Island Program description 1:40-1:45
Myra Rosen Reynoso/Treeby Brown Next steps
Planning of onsite meetings
Other ALC activities
Payment and contracts
Contact information
1:45-2:00
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care NeedsAction Learning Collaborative
ALC Model
Used by AMCHP since 1996 to address various issues (e.g. Medicaid &
SCHIP reform, smoking cessation, perinatal HIV transmission, perinatal
disparities)
Strengthens partnerships/promotes collaboration at state level and
improves family health programs
Brings together multidisciplinary teams for an 18-24 month period to:
Analyze a problem in MCH
Identify resources
Apply problem-solving techniques to an issue
Review promising practices from other teams
Create plans to address specific public-health issues
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Introduction to the Latino ALC
Increase awareness and knowledge of the ease-of-use of services
for Latino families and role of Title V CYSHCN implementation
Build capacity of state health, parent and education agencies to
collaborate to strengthen ease-of-use for Latino families efforts
Build capacity of state health agencies to integrate efforts to makeservices easier to navigate for Latino families
Help build capacity to enable states to more effectively address the
ease-of-use of services for Latino families;
Facilitate change in knowledge, attitudes, practices and policies
Present lessons learned
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Oregon
Team Lead
Marilyn Hartzell
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
North Carolina
Team Lead
Norma Marti
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
North Carolina NC DHHS-Division of Public HealthWCHS
Children & Youth Branch (4 Units)
Best Practices Unit
Child Health Data Collection and Management
Commission on Children with Special Health Care Needs
Disability and Health
Local Child Fatality Prevention Teams - Part of NCs Child FatalityPrevention System
Quality Assurance - Child Health Program Review and Sub recipientMonitoring
Children with Special Health Care Needs Help Line Innovative Approaches: Systems of Care for CSHCN
http://www.ccofsp.com/innovative-approaches
Branch-Family Partnership
http://www.ccofsp.com/innovative-approacheshttp://www.ccofsp.com/innovative-approacheshttp://www.ccofsp.com/innovative-approacheshttp://www.ccofsp.com/innovative-approaches7/29/2019 ALC Orientation Call 4 18
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
North Carolina NC DHHS-Division of Public HealthWCHS
Children & Youth Branch (4 Units)
Genetics and Newborn Screening Unit
Clinic Services for Children with Special Health Care Needs(Craniofacial and Cochlear Implants for CSHCN)
Early Hearing Detection and Intervention Services
Genetic Counseling Services
Newborn Metabolic Screening Services
Maternal Serum Alpha Feta Protein Screening
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
North Carolina
NC DHHS-Division of Public HealthWCHS
Children & Youth Branch
Health and Wellness Unit
Childcare Health Consultation
Maternal, Infant, and Early Childhood Home Visiting Program
Health Check & NC Health Choice Outreach
N.C. Child Fatality Task Force - Part of NCs Child Fatality
Prevention System Newborn Home Visit Services
Parenting Education Consultation
Child Health Care: Exams and Treatment for Children
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
North Carolina
NC DHHS-Division of Public HealthWCHS
Children & Youth Branch
School Health Unit
Kindergarten Health Assessment
School Nurse Consultation and Support
School Health Center Consultation and Support
School Nutrition Consultation and Support
Transitioning Children with Special Health Care Needs fromPediatric to Adult Care
Policy and Reporting by School Health Centers
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Some of Our Partners Across NC
Exceptional Childrens Assistance Centerhttp://www.ecac-parentcenter.org
NC Family to Family Health Information Center
Autism Society of NChttp://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644
Spanish-speaking Parents Support Groups
Mexican Consulate: Ventanilla de Salud
Office of Minority Health and Health Disparities
BEGINNINGS, INC.
NC Pediatric Society
Community Care of North Carolina
http://www.ecac-parentcenter.org/http://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644http://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644http://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644http://www.autismsociety-nc.org/index.php?option=com_content&view=article&id=105&Itemid=644http://www.ecac-parentcenter.org/http://www.ecac-parentcenter.org/http://www.ecac-parentcenter.org/7/29/2019 ALC Orientation Call 4 18
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Successes to Date
Views of a Medical HomeSix Families Share their Stories
Kikche-Spanish-English-speaking family with daughter who is deaf
Spanish-Language Parent Directory
EHDI team
Autism Society of NC
Training of C&Y staff
Updates on HC/NCHC
Branch Family Partnership
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Barriers
Involving Spanish-speaking families in
boards/meetings for families with CSHCN
Language
Transportation
Understanding state systems
Documentation
Silos Turf-doms
Sharing Resources
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Action Learning Collaborative
Brainstorming about ALC
Share Francisco, Ilda and Stephanies
Medical Home story with more providers
across the state?
Sequel? On FB? As a Podcast?
Create a resource directoryas an Intranet for
internal use across our four units.
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Action Learning Collaborative
CONTACT INFONorma Marti, Minority Outreach Consultant
[email protected] 919-707-5643
Michael Sanderson, Best Practices Unit Manager
[email protected] 919-707-5620
Marshall Tyson, Health & Wellness Unit [email protected] 919-707-5640
Carol Tant, Head, Children & Youth Branch
[email protected] 919-707-5610
NC DHHS, DPH, WCHS, Children & Youth Branch
5601 Six Forks Rd. MSC 1928
Raleigh, NC 27699-1928
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]7/29/2019 ALC Orientation Call 4 18
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Action Learning Collaborative
Indiana
Team Lead
Kimberly Minniear
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Action Learning Collaborative
Indiana Action LearningCollaborative
Childrens Special Health Care Services
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Action Learning Collaborative
Program Activities ALC Team cultural-competency training and other training opportunities
relevant to assist with planning
The IU School of Medicines Department of Public Health offers free trainings each
month on a variety of topics, including logic models and evidence-based programming
In-Depth review of the Sunny Start Initiative (ECCS Program) Program will serve as a potential blueprint for the ALC Team plan
Develop a work plan for the team to ensure efficiency
Form subcommittees to work on specific topics, if needed
Review existing resources for Latino families and data pertaining to the
population (i.e. needs assessments, reports, materials, etc.)
Identify and establish additional collaborative partnerships
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Action Learning Collaborative
Overarching Goals
Create a strategic plan for ease of use of
services for Latino families who have CYSHCN
Develop an implementation schedule for the
developed strategic plan
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Action Learning Collaborative
Short & Long Term Outcomes Increased coordination of resources that are family-centered
and linguistically and culturally competent
Expand stakeholder awareness and access to necessary
informational resources
Support public and private partnerships and create a cross
agency infrastructure for training and technical assistance
Sustainability of efforts
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Action Learning Collaborative
Partners Title V, Childrens Special Health Care Services
About Special Kids (ASK)
Family Voices Indiana
Early Childhood Comprehensive System: Sunny Start American Academy of Pediatrics (AAP), IN Chapter
IN Commission on Hispanic and Latino Affairs
IN Latino Institute Latino Coalition Against Domestic and Sexual
Violence, Inc.
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Barriers
Organizational
Initial coordination of ALC
Team schedules
Members of ALC Team are thePresidents and Directors of
their organizations
Sustaining efforts
Determining the best way to
leverage funds among eachorganization involved
Population
Reaching undocumented
Latino residents in the state
Incorporating communityhealth workers may be an
option
Gaining trust from the
Latino community
Will take time to gain with the
help of the Latino
organizations involved
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Action Learning Collaborative
Evaluation MethodsLevel 1
Monitor for completion and efficacy
and how well Indiana implemented
strategic plan
Points to consider:
Baseline data before and after
implementation on the individual
community, and state level
Are resources being used more efficiently
and without duplication?
Are services coordinated, cost effective,
and community-based? Is there more opportunity for
improvement?
Did we accomplish what the plan stated?
Level 2
Determine whether or not any
Indiana families are better off as a
result of the plan implementation
Points to consider:
Was there an increase in the number of
Latino families of CYSHCN that received
health and community-based resources?
Was there an increase in health insurance
coverage for undocumented families?
Did the activities make it possible for more
families to access quality, comprehensiveservices?
Are there fewer reports of Latino families
of CYSHCN not being satisfied with the
services they are receiving?
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Action Learning Collaborative
New Hampshire
Team Lead
Elizabeth Collins
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Action Learning Collaborative
NH Program Activities/Description
The Action Learning Collaborative team will begin to
identify the communication that is needed by families of
Latino CYSHCN to avoid lapses in coverage as major
changes are made to the NH Medicaid and CHIP programs. The Team will create the materials needed (taking into
effect factors of health literacy), arrange for appropriate
translation and plan dissemination of the materials.
Community forums will be developed and held as well to
meet families where they are at.
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Action Learning Collaborative
Goals/Outcomes To identify messages and information related to the
upcoming changes to NH Medicaid /CHIP that need to be
effectively communicated to the families of Latino CSHCN
To identify and utilize both culturally sensitive and
linguistically appropriate modalities for widespread
dissemination of this information.
Latino families of CSHCN, community providers and
health care providers will have a shared understanding ofthe changes to Medicaid and CHIP that are integral to
uninterrupted and accessible health care.
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Action Learning Collaborative
Partners
Special Medical Services Title V CYSHCN
agency
The Office of Minority Health and Refugee
Affairs
The Office of Medicaid, Business and Policy
NH Family Voices
Child Health Services Community Health
Center
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Barriers to ease of use of services for Latino families
Nationally, 21.5% of children overall have public health insurance coveragealmost twice that percentage, 38.3%, of children of Hispanic ethnicity are
covered by public insurance.
An even higher percentage of NH CSHCN of Hispanic ethnicity rely on public
insurance for their healthcare needs: 43.9% have only public insurance and an
additional 20.9% have public and private health insurance. Reinforcing the needfor ensuring and maintaining uninterrupted access to public insurance.
In the area served by CHS, the percentage of families with children under 18
who live below poverty level has doubled in 15 years. In 2010, 717 parents had
a country of origin other than the United States. Spanish speaking families
comprise the largest group (Mexico, Central America and the Caribbean).Currently, it is anticipated that 102 CSHCN of Latino families are directly
connected to Child Health Services.
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Action Learning Collaborative
Evaluation methodsThe Action Learning Collaborative Team will evaluate success as follows:Existing tools facilitating ease of use for NH families of Latino CSHCN will
be detailed and inventoried.
New tools that are developed will be added to the inventory.
Participation in the Team meetings will be tracked and recorded.
A spectrum of resource materials will be developed and disseminated the distribution of these materials will be recorded and reported.
An evaluation tool will be developed and all Community Forum
participants will be asked to rate the impact of the forums and their level of
understanding of services based on participation in the Forums.
When surveyed community providers and other family advocates willresult in their reporting
an increased level of confidence and comfort in answering families
questions about the changes to Medicaid and CHIP.
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Action Learning Collaborative
New Mexico
Team Lead
Susan Chacon
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Action Learning Collaborative
New Mexico
Improving services for Latino families who have
children with the following conditions:
Obesity
Metabolic syndrome
Diabetes
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Action Learning Collaborative
Goals/Outcomes
To develop culturally and linguistically
competent educational material to address
the health issues we are targeting.
To distribute these materials to primary care
providers, WIC clinics, CMS clinics to be used
during counseling sessions with clients.
To improve health outcomes for Latino children
with targeted health issues.
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Action Learning Collaborative
Program Activities
Facilitate 2 focus groups in 2 different Regions
in the State with high rates of Latino children
identified with targeted health indicators to
develop educational/counseling materialsspecific to culture and language
Develop education/counseling materials
Distribute to primary care providers, CMS staff
and WIC clinics
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Action Learning Collaborative
Partners
Childrens Medical Services (CMS) the Title V
CYSHCN program-lead agency
NM AAP Chapter
Parents Reaching Out (PRO) the F2F and
Parent Training Center
MCH Collaborative-MCH funded programs in
the state
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Action Learning Collaborative
Barriers in New Mexico
High poverty rates
Rural nature of the state
5th largest state geographically (impacts
transportation)
Fragmented health care system
Pediatric specialists located in the urban metro area
in the central part of the state Issues around immigration status
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Action Learning Collaborative
Evaluation
Survey primary care providers to evaluate
effectiveness of intervention
Survey families to evaluate effectiveness of
intervention
Focus group with CMS Nutritionists to review
intervention and revise process as indicated
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Action Learning Collaborative
Rhode Island
Team Lead
Deborah Garneau
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Program Activities
Emerging leaders in community complete leadership training.
Leaders then trained in community resources to become peer
navigators.
Peer navigators will connect with parents through schools andconnect them to resources.
School personnel receive training on sustaining volunteers
and recruiting new volunteers.
A health and education resource fair will introduce peer
navigators to the community.
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Action Learning Collaborative
Goals Outcomes
Ease of use of
community resources
through the use of peer
support model. Create a system for
sustaining peer
navigators through
recruiting and trainingnew peer navigators.
Latino families will
access services more
easily as a result of peer
support. New emerging leaders
will be identified in the
community.
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Action Learning Collaborative
Partners
Rhode Island Department of Health
Central Falls School District
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Action Learning Collaborative
Barriers
Building a system of communication between
partners and parents in community.
Need to establish a level of trust.
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Action Learning Collaborative
Evaluation Methods
System will be in place for connecting families
with peer navigators.
Develop method for tracking connections to
resources.
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Action Learning Collaborative
Next Steps
Site visits
Next call
Budget/finance
Contact information
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Action Learning Collaborative
Budgets/Finance
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Ease of Use of Services for Latino Families Who Have Children and Youth With Special Health Care Needs
Contact Information
AMCHP
Treeby Brown
Melody Cherny [email protected]
(202) 266-3049
National Center for Ease ofUse
Myra Rosen-Reynoso
617-287-4370
Jackie Bialo
617-287-4349
Nerlie Ogilus (for finance
questions) [email protected]
617-287-4346
mailto:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]:[email protected]