National Voices on person centred care

Being people-centred in everything we do

Building the Houses of Care

South Devon and Torbay integrated health and care seminar

Jeremy Taylor, 20 March 2014

What are we talking about?

• Putting patients first• Patients at the heart• Patient focussed healthcare• Person-centred healthcare• Shared decision making• Whole-person care• Engagement• Involvement• Participation• PPI/PPE• No decision about me without me

Whose care is it anyway?• Attend• Bedblocker • Case• Care pathway• Co-morbid• Consent (vt)• Demand• DNA• DNR• Discharge• Frequent flyer• Inappropriate attender• Risk stratify

What matters to us?

• Access • Information• Communication• Involvement • Family and friends• Privacy, confidentiality and dignity• Support for self-care and independence• Personalised service, coordination and continuity• Practical support• Emotional support

What matters to us?

• I want to see a doctor• I want a service I can trust• I want to know what’s going on• I want to be treated as a person• I want a say• I don’t want to be passed from pillar to post• I don’t want to repeat my story every time• I want to be in control• I want to be looked after • I’m in pain. I’m exhausted• I’m not happy about the care my Mum is getting

Living with .....People as managers

Out-of-Hours Doctors

GPDistrict Nurses

Social Worker

Malcolm &Barbara

ConsultantContinence

Adviser

Speech & Language Adviser

Dietician

CommunityDentist

OccupationalTherapist

Equipment Service

PhysiotherapistAlternating

Mattress technician

Wheelchair Service

Oxygen serviceDirect

PaymentsTeam; Rowan

Org.

Alzheimer’sSoc outreach

worker

Care team2 live-in carers (alternating weekly)Replacement carer[Some night nursing – Health]Emergency carers & Barbara

The Web of Care

(Last 7 yrs)

DementiaAdvisoryNurse?

Person centred coordinated care

“I can plan my care with people who work together to understand me and my

carer(s), allow me control, and bring together services

to achieve the outcomes important to me.”

Information

My goals/outcomes

Communication Decision making

Care planning

Transitions

Agreed & shared ‘care plan’

Goal setting and action planning

Information sharing

Care and support planning

Person’s story

Professional story

Year of Care

Information gathering

The house of care

“More than medicine”

• Self-management• Family• Friends• Neighbours• Peer-supporters• Befrienders• Advocates • Community health champions• Patient and lay leaders• Voluntary sector organisations

You can’t do this alone!• The world is too complex*• The duties too onerous• The money insufficient• The health and care workforce too stretched• The needs go beyond narrowly clinical• Statutory agencies can’t do this alone!

* Many to Many: how the relational state will transform public services, Muir and Parker, IPPR, Feb 2014

Changing models of careFrom: To:

Patients as recipients People as partners and managers of their health

Primarily medical Increasingly social

Professionals designing services

Co-design of services

Mobilising doctors, nurses and drugs

Mobilising citizens and communities

Treatment plans Participative care and support planning

Clinical outcomes Quality of life outcomes

Hospital focus Out of hospital focus

How much do you want let go?

A care system in which people matter

• “The NHS belongs to the people”• We define what good looks like• We are partners• We are managers• We are leaders• We are all part of the workforce• No decisions about us without us

References• Health Foundation resources on shared decision making• NHS Networks: smart guides to engagement• NHS England guidance on participation• National Voices guide to care and support planning• National Voices narrative of coordinated care • Centre for Patient Leadership • School for healthcare radicals resources • Many to Many: how the relational state will transform public s

ervices, Muir and Parker, IPPR, Feb 2014

• Volunteering in health and care. The King’s Fund. March 2013 • Altogether Better: evidence summary, community health cha

mpions

• Thanks for listening• www.nationalvoices.org.uk• Follow us on Twitter• @NVTweeting• @JeremyTaylorNV