National Voices on person centred care

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Jeremy Taylor presented these slides at an integrated care workshop in Torquay, Devon, UK, on 20 March 2014.


  • 1. Being people-centred in everything we do Building the Houses of Care South Devon and Torbay integrated health and care seminar Jeremy Taylor, 20 March 2014

2. What are we talking about? Putting patients first Patients at the heart Patient focussed healthcare Person-centred healthcare Shared decision making Whole-person care Engagement Involvement Participation PPI/PPE No decision about me without me 3. Whose care is it anyway? Attend Bedblocker Case Care pathway Co-morbid Consent (vt) Demand DNA DNR Discharge Frequent flyer Inappropriate attender Risk stratify 4. What matters to us? Access Information Communication Involvement Family and friends Privacy, confidentiality and dignity Support for self-care and independence Personalised service, coordination and continuity Practical support Emotional support 5. What matters to us? I want to see a doctor I want a service I can trust I want to know whats going on I want to be treated as a person I want a say I dont want to be passed from pillar to post I dont want to repeat my story every time I want to be in control I want to be looked after Im in pain. Im exhausted Im not happy about the care my Mum is getting 6. Living with ..... People as managers 7. Out-of- Hours Doctors GP District Nurses Social Worker Malcolm & Barbara Consultant Continence Adviser Speech & Language Adviser Dietician Community Dentist Occupational Therapist Equipment Service Physiotherapist Alternating Mattress technician Wheelchair Service Oxygen serviceDirect Payments Team; Rowan Org. Alzheimers Soc outreach worker Care team 2 live-in carers (alternating weekly) Replacement carer [Some night nursing Health] Emergency carers & Barbara The Web of Care (Last 7 yrs) Dementia Advisory Nurse? 8. Person centred coordinated care I can plan my care with people who work together to understand me and my carer(s), allow me control, and bring together services to achieve the outcomes important to me. Information My goals/outcomes Communication Decision making Care planning Transitions 9. Agreed & shared care plan Goal setting and action planning Information sharing Care and support planning Persons story Professional story Year of Care Information gathering 10. The house of care 11. More than medicine Self-management Family Friends Neighbours Peer-supporters Befrienders Advocates Community health champions Patient and lay leaders Voluntary sector organisations 12. You cant do this alone! The world is too complex* The duties too onerous The money insufficient The health and care workforce too stretched The needs go beyond narrowly clinical Statutory agencies cant do this alone! * Many to Many: how the relational state will transform public services, Muir and Parker, IPPR, Feb 2014 13. Changing models of care From: To: Patients as recipients People as partners and managers of their health Primarily medical Increasingly social Professionals designing services Co-design of services Mobilising doctors, nurses and drugs Mobilising citizens and communities Treatment plans Participative care and support planning Clinical outcomes Quality of life outcomes Hospital focus Out of hospital focus 14. How much do you want let go? 15. A care system in which people matter The NHS belongs to the people We define what good looks like We are partners We are managers We are leaders We are all part of the workforce No decisions about us without us 16. References Health Foundation resources on shared decision making NHS Networks: smart guides to engagement NHS England guidance on participation National Voices guide to care and support planning National Voices narrative of coordinated care Centre for Patient Leadership School for healthcare radicals resources Many to Many: how the relational state will transform public services, Muir and Parker, IPPR, Feb 2014 Volunteering in health and care. The Kings Fund. March 2013 Altogether Better: evidence summary, community health champions 17. Thanks for listening Follow us on Twitter @NVTweeting @JeremyTaylorNV