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Jeremy Taylor presented these slides at an integrated care workshop in Torquay, Devon, UK, on 20 March 2014.
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Being people-centred in everything we do
Building the Houses of Care
South Devon and Torbay integrated health and care seminar
Jeremy Taylor, 20 March 2014
What are we talking about?
• Putting patients first• Patients at the heart• Patient focussed healthcare• Person-centred healthcare• Shared decision making• Whole-person care• Engagement• Involvement• Participation• PPI/PPE• No decision about me without me
Whose care is it anyway?• Attend• Bedblocker • Case• Care pathway• Co-morbid• Consent (vt)• Demand• DNA• DNR• Discharge• Frequent flyer• Inappropriate attender• Risk stratify
What matters to us?
• Access • Information• Communication• Involvement • Family and friends• Privacy, confidentiality and dignity• Support for self-care and independence• Personalised service, coordination and continuity• Practical support• Emotional support
What matters to us?
• I want to see a doctor• I want a service I can trust• I want to know what’s going on• I want to be treated as a person• I want a say• I don’t want to be passed from pillar to post• I don’t want to repeat my story every time• I want to be in control• I want to be looked after • I’m in pain. I’m exhausted• I’m not happy about the care my Mum is getting
Living with .....People as managers
Out-of-Hours Doctors
GPDistrict Nurses
Social Worker
Malcolm &Barbara
ConsultantContinence
Adviser
Speech & Language Adviser
Dietician
CommunityDentist
OccupationalTherapist
Equipment Service
PhysiotherapistAlternating
Mattress technician
Wheelchair Service
Oxygen serviceDirect
PaymentsTeam; Rowan
Org.
Alzheimer’sSoc outreach
worker
Care team2 live-in carers (alternating weekly)Replacement carer[Some night nursing – Health]Emergency carers & Barbara
The Web of Care
(Last 7 yrs)
DementiaAdvisoryNurse?
Person centred coordinated care
“I can plan my care with people who work together to understand me and my
carer(s), allow me control, and bring together services
to achieve the outcomes important to me.”
Information
My goals/outcomes
Communication Decision making
Care planning
Transitions
Agreed & shared ‘care plan’
Goal setting and action planning
Information sharing
Care and support planning
Person’s story
Professional story
Year of Care
Information gathering
The house of care
“More than medicine”
• Self-management• Family• Friends• Neighbours• Peer-supporters• Befrienders• Advocates • Community health champions• Patient and lay leaders• Voluntary sector organisations
You can’t do this alone!• The world is too complex*• The duties too onerous• The money insufficient• The health and care workforce too stretched• The needs go beyond narrowly clinical• Statutory agencies can’t do this alone!
* Many to Many: how the relational state will transform public services, Muir and Parker, IPPR, Feb 2014
Changing models of careFrom: To:
Patients as recipients People as partners and managers of their health
Primarily medical Increasingly social
Professionals designing services
Co-design of services
Mobilising doctors, nurses and drugs
Mobilising citizens and communities
Treatment plans Participative care and support planning
Clinical outcomes Quality of life outcomes
Hospital focus Out of hospital focus
How much do you want let go?
A care system in which people matter
• “The NHS belongs to the people”• We define what good looks like• We are partners• We are managers• We are leaders• We are all part of the workforce• No decisions about us without us
References• Health Foundation resources on shared decision making• NHS Networks: smart guides to engagement• NHS England guidance on participation• National Voices guide to care and support planning• National Voices narrative of coordinated care • Centre for Patient Leadership • School for healthcare radicals resources • Many to Many: how the relational state will transform public s
ervices, Muir and Parker, IPPR, Feb 2014
• Volunteering in health and care. The King’s Fund. March 2013 • Altogether Better: evidence summary, community health cha
mpions
• Thanks for listening• www.nationalvoices.org.uk• Follow us on Twitter• @NVTweeting• @JeremyTaylorNV