Organizations - Friends of NCBDDD · Organizations Organization Last ... Aschman Diane President...

Updated January 2015

Organizations

Organization Last Name First Name Title Phone Number Email

Adult Congenital Heart

Association

Schaefer Terri Communications Manager 215-849-1260

888-921-2242

info@achaheart.org

Tringali Glenn National Executive Director 215-849-1260 gtringali@acha.org

Alpha-1 Foundation Campbell Bob Communications Director 877-228-7321 ext.

230

305-567-9888

rcampbell@alpha1.org

American Academy of Audiology Tolpegin Tanya Executive Director 703-790-8466 ttolpegin@audiology.org

Thomas Kate Director of Payment Policy

and Legislative Affairs

703-790-8466 kthomas@audiology.org

American Academy of Child and

Adolescent Psychiatry

Communications 202-966-7300 communications@aacap.

org

American Academy of Nurse

Practitioners

Towers Jan Senior Policy Advisor 202-966-6414

703-740-2529

jtowers@aanp.org

American Academy of Pediatrics Johnson Pat Assistant Director, AAP

Department of Federal

Affairs

202-347-8600 pjohnson@aap.org

Esquivel Michelle Director, Division of

Children with Special Needs

847-434-4989 mesquivel@aap.org

Daskalov Rachel Manager, Screening and

Public Health Prevention

Programs

847-434-7863 rdaskalov@aap.org

Gerndt Krysta Program Manager kgerndt@aap.org

Stob Heather Program Coordinator,

Technical Assistance

hstop@aap.org

American Academy of Physical

Medicine and Rehabilitation

Stautzenbach Thomas Executive Director 847-737-6000 tstautzenbach@aapmr.or

g

American Association on Health

and Disability

Carlin Roberta Executive Director 301-545-6140 rcarlin@aahd.us

Cooper Karl Project Manager 215-803-6542 kcooper@aahd.us

American Cleft Palate-

Craniofacial Association

Toyama Wendy-Jo Executive Director 919-933-9044 wendy.toyama@acpa-

cpf.org

American College of

Obstetricians & Gynecologists

Hawks Debra Senior Director, Practice

Activities & Strategic

Initiatives

202-863-2445 dhawks@acog.org

Mahoney Jeanne Director, Provider's

Partnership

202-314-2352 jmahoney@acog.org

American College of Preventive

Medicine

Bonta Paul Associate Executive

Director, Policy and

Government

202-466-2044 ext.

110

pbonta@acpm.org

American Music Therapy

Association

Preddie Rebecca Federal Programs Analyst 301-589-3300 preddie@musictherapy.o

rg

American Psychological

Association

Gordon Moore Nancy Executive Director,

Governance Affairs

202-336-5585 kstudwell@apa.org

American Society of Hematology Leous Suzy Director of Government

Relations, Practice and

Scientific Affairs

202-776-0544 sleous@hematology.org

Kaplan Stephanie Government Relations

Manager

202-776-0544 skaplan@hematology.org

Riker Ellen Consultant 202-484-1100 eriker@dc-crd.org

American Society of Human

Genetics

Dougherty Michael Director of Education 301-634-7300 mdougherty@ashg.org

Padmanabhan Nalini Communications Manager 301-634-7346 npadmanabhan@ashg.or

g

American Speech-Language-

Hearing Association

Paul Diane Director, Clinical Issues in

Speech Language Pathology

301-296-5688 dpaul@asha.org

American Thrombosis and

Hemostasis Network

Aschman Diane President and CEO 847-607-9479 dashman@athn.org

Amputee Coalition of America Stout Susan President and CEO 612-518-2603 sstout@amputee-

coalition.org

Izgnaszewski Dan Director of Government

Relations and Marketing

703-330-1699 dan@amputee-

coalition.org

Hogarth Abra Director of Communications ahogarth@amputee-

coalition.org

Gondo George Director of Research and

Grants

ggondo@amputee-

coalition.org

Association of Maternal and Child

Health Programs

Ewig Brent Director Public Policy and

Government Affairs

202-266-3041 bewig@amchp.org

Haddad Amy Associate Director

Government Affairs

202-266-3045 ahaddad@amchp.org

Arguello, Jr. Julio Digital Communications

Manager

202-266-3055 jarguello@amchp.org

McCoy Carolyn Senior Policy Manager 202-266-3042 cmccoy@amchp.org

Taft Kate Senior Program Manager 202-266-3056 ktaft@amchp.org

Association of Public Health

Laboratories

Ojodu Jelili Director, Newborn

Screening and Genetics

Program

240-485-2772

240-485-2745

(general #)

jelili.ojodo@aphl.org

Association of State and

Territorial Health Officials

Redolph Claire Maternal and Child Health

Senior Analyst

571-318-5429 crudolph@astho.org

Pliska Ellen Family and Child Health

Director

571-527-3187 epliska@astho.org

Karczmarczyk Diana Senior Analyst, Tobacco and

Chronic Disease Prevention

571-318-5400 dkarczmarczyk@astho.or

g

Mishra Meenoo Senior Analyst, Health

Equity

571-527-3169 mmishra@astho.org

Association of Women's Health,

Obstetric, and Neonatal Nurses

(AWHONN)

Duggan Courtney Manager, Marketing and

Social Media

202-261-2400 cduggan@awhonn.org

Association of University Centers

on Disabilities

Imparato Andy Executive Director 301-588-8252 aimparato@aucd.org

Griffen Adriane Project Director 301-588-8252 agriffen@aucd.org

Audiology HEARS Wercholuk Cindy Office Manager 678-804-8008

Autism Society Ferguson Tonia Vice President, External

Affairs

301-657-0881 tferguson@autism-

society.org

Autism Research Institute Edelson Stephen Executive Director 619-563-0915 smedelson@gmail.com

Autism Spectrum Disorder Risk

Alert

Silverman Jeremy Principal Investigator 212-659-8822 jeremy.silverman@mssm

.edu

Autism Speaks, Inc. Spielman Stuart Senior Policy Advisor and

Counsel

202-955-3312

646-385-8529

sspielman@autismspeaks

.org

Goring Lisa Executive Vice President,

Programs and Services

609-228-7346 lgoring@autismspeaks.or

g

Avery's Angels Gastroschisis

Foundation

Hall Meghan CEO 855-692-8379 meghanhall@averysange

ls.org

Baby Builders Zervas Chris co-founder 918-938-5593

918-543-5323

chris@babybuilders.com

Bazelon Center for Mental Health

Law

Barkoff Alison Director of Advocacy, Policy 202-467-5730 communications@bazelo

n.org

Faegre BD Consulting Zook David Chair 202-589-2809 dave.zook@faegreBD.co

m

Gogol David Vice Chair 202-312-7402 david.gogol@FaegreBD.c

om

Birth Defects Research &

Education Foundation, Inc.

George Bolanle President/CEO 404-819-4557 bolanlegeorge03@yahoo

.com

Brain Injury Association of

America

Ayotte Gregg Director of Consumer

Services

703-761-0750 ext.

642

gayotte@biausa.org

Breast Health Access for Women

With Disabilities

Toveg Florita Manager 510-204-4522 maikif@sutterhealth.org

Brenau University/ Essential

Therapy Services

Alvarado M. Irma Associate Professor/

Occupational Therapist/ CO-

owner

678-679-1261 ialvarado@essentialts.co

m

Bronx-Lebanon Hospital Center Arnstein Ellis Developmental-Behavioral

Pediatrician

718-579-7337 earnstei@bronxleb.org

California AgraAbility Stiles Martha Program Director 530-752-2606 mcstiles@ucdavis.edu

Cavarocchi-Ruscio-Dennis

Associates, LLC

Dennis Lyle Partner 202-484-1100 ldennis@dc-crd.com

Center for Comprehensive Care

and Inherited Blood Disorders

Baker Judith Director of Public Health 310-794-6264 judithbaker@mednet.ucl

a.edu

Centers for Disease Control and

Prevention/National Center on

Birth Defects and Developmental

Disabilities

Boyle Coleen Director 404-498-3907 cab3@cdc.gov

Peacock Georgina Acting Director, Division of

Human Development and

Disability

404-498-6743

Moore Cynthia Division Director, Division of

Birth Defects and

Developmental Disabilities

cynthia.moore@cdc.hhs.

gov

Lucido Sal Associate Director for

Policy, Planning, and

Evaluation

404-498-4031 sjl0@cdc.gov

Stevens Melody Deputy Associate Director

for Strategic Partnerships

sme1@cdc.gov

Phoenix Weir Ursula NCBDDD Communications

Office

uap3@cdc.gov

Gibbs Shields Julie Office of Policy, Planning

and Evaluation

vkb2@cdc.gov

Mitchell Betsy Associate Director for

Communication Science

bhm0@cdc.gov

Fehrenbach Nicole Deputy Director, Division of

Birth Defects and

Developmental Disabilities

ekk5@cdc.gov

Beckett Julie Consultant waivermom@earthlink.n

et

Morris Gaylon Principal 610-888-7767 gmorris@morsolutionsdc

.com

Center for Disease Control and

Prevention/Center for Emerging

& Zoonotic Infectious Diseases

Bell Beth Director 400-639-6128 bzb8@cdc.gov

Cerebral Palsy International

Research Foundation

Blackman James Medical Director 212-520-1686 jblackman@cpirf.org

CHADD Vosburgh Susan Director of the National

Resource Center on ADHD

301-306-7070 ext.

12

Susan_vosburgh@chadd.

org

Firestone Sarah Operations Manager 240-487-2329 sarah_firestone@chadd.

org

Gower-Getz April Chief Operating Officer april_gower-

getz@chadd.org

Charcot Marie Tooth Association Livney Patrick Chief Executive Officer 800-606-2682 ext.

102

pal@cmtausa.org

Christopher & Dana Reeve

Foundation

Valente Donna Director, Quality of Life

Grants

973-467-8270 dvalente@christopherree

ve.org

Sheth Niketa Senior Vice President,

Quality of life

800-539-7309 nsheth@christopherreev

e.org

City MatCH at the University of

Nebraska Medical Center

Abresch Chad Executive Director 402-552-9500 cabresch@unmc.edu

Pecha Denise Director of Programs 402-552-9500 denise.pecha@unmc.edu

Cooley's Anemia Foundation Dennis Lyle Partner, Government Affairs

Advisor

202-484-1100 ldennis@dc-crd.com

Schubert Kathryn Government Affairs Advisor 202-484-1100 kschubert@dc-crd.com

Butler Craig Communications Director c.butler@cooleysanemia.

org

Diamond Blackfan Anemia

Registry

Vlachos Adrianna Executive Director 718-470-3610 avlachos@lij.edu

Disability Section of the American

Public Health Association

Cahill Anthony 2013-2014 Chair 505-272-2990 acahill@salud.unm.edu

DuPont Hospital for Children Brent Robert Professor of Pediatrics,

Radiology, Pathology; Head,

Clinical and Environmental

Tartology Research Lab

302-651-6880 rbrent@nemours.org

Easter Seals Andrus Mary Assistant Vice President,

Government Relations

Easter Seals Office of Public

Affairs

202-347-3066 mandrus@easterseals.co

m

Musgrave Jasmine Communications

Coordinator

202-347-3066 jmusgrave@easterseals.c

om

Kavalar Reenie Vice President, Program

Services

312-551-7115 rkavalar@easterseals.co

m

Exceptional Children's Assistance

Center

Roberts Beverly Project Coordinator, NC SIP

Project

800-962-6817 ext.

323

broberts@ecacmail.org

EP Foundation for Education, Inc Murphy Frank President and CEO 404-966-9500

707-393-3738

frankjmurphy@comcast.

net

EP Global Communications,

Inc/EP Magazine

Valenzano Joseph President and CEO 201-888-8616 jvalenzano@eparent.com

Epilepsy Foundation Vitko Lacy Program Manager and Art

Therapist

301-918-3729 lvitko@efa.org

Exceptional Parent Magazine Valenzano, Jr. Joseph President, CEO & Publisher 800-372-7368 jvalenzano@eparent.com

Family Voices Inc. Wells Nora Executive Director 781-879-6309 nwells@familyvoices.org

Honberg Lynda Director, Strategic

Parnterships

301-502-1795 lhonberg@familyvoices.o

rg

Guerney Janis Co-Director Public Policy jguerney@familyvoices.o

rg

Bolden Pitre Jennifer Consultant jbpitre.nj@gmail.com

First Candle Stringfellow Fred President 443-640-1049 fred@stringfellowgroup.

net

Reno Laura Director of Marketing and

Communications Program

Director

443-640-1049 laura@firstcandle.org

First Focus Lesley Bruce President 202-657-0670 BruceL@firstfocus.net

Fitzgerald Carrie Senior Policy Advisor on

Health

202-657-0670 CarrieF@firstfocus.net

First Signs Inc Wiseman Nancy Founder and President 978-346-4380 nwiseman@firstsigns.org

Georgia Department of Education Murphy Alice Autism and Program

Specialist

404-657-9957 mmurpy@doe.k12.ga.us

Grifols Inc Uzl Nick Public Affairs Associate 202-293-1506 Nicholas.uzl@grifols.com

Hawaii MCH LEND Program Iwaishi Louise Program Director, Principal

Investigator

808-983-8387 louiei@kapiolani.org

Heart, Head, and Hand Inc. Fay Richard President & Infant Mental

Health & Development

Specialist

386-986-8662 richardfay@cfl.rr.com

Hemophilia Federation of

America

Verb Katie Policy and Advocacy

Manager

202-675-6984

Hemophilia Foundation of

Michigan

Tussing Travis Regional Coordinator 734-554-0015 travis@hfmich.org

Hemophilia of Georgia Inc. Droze Karen Regional Coordinator 770-518-8272 kadroze@hog.org

HHT Foundation Clancy Marianne Executive Director 800-448-6389 mariannes.clancy@hht.or

g

Hope and Light Foundation Miller Stephanie Chairman/CEO 678-591-8331 smiller@hopeandlight.or

g

Holland and Knight Conlin Andrew Legislative Assistant 202-469-5121 andrew.scholnick@hklaw

.com

Indiana University School of

Medicine

Diefendorf Allan Associate Professor 317-630-8979 adiefend@iupui.edu

Kennedy Krieger Institute Lipkin Paul Associate Professor of

Pediatrics

443-923-3265 lipkin@kennedykrieger.o

rg

Stone Jacqueline Director of Dissemination 443-923-2792 stone@kennedykrieger.o

rg

Lakeshore Foundation Malone Laurie Associate Director of

Research and Education

205-313-7476 lauriem@lakeshore.org

Downs Dwight Associate Director of

Development

205-313-7425 dwightd@lakeshore.org

Rauworth Amy Director of Policy and Public

Affairs

205-313-7487 amyr@lakeshore.org

Learning Disability Association of

America

Mandlawitz Myrna Policy Director 412-341-1515 mmandlawitz@ldaameric

a.org

Louisiana Maternal and Child

Health Coalition

Ward Martin Janie Executive Director 225-379-7922 janie.martin@lamch.org

Lutheran Services in America -

Disability Network

Copeland Lindsey Director of Advocacy and

Public Policy

202-499-5832 lcopeland@lutheranservi

ces.org

March of Dimes Wigode Emil Director of Federal Affairs 202-659-1800 ewigode@marchofdimes.

com

Wilkinson Diane Deputy Director, Federal

Affairs

202-292-1800 dwilkinson@marchofdim

es.org

Robertson Beverly National Director 914-997-4749 brobertson@marchofdim

es.com

Marcus Autism Center Saulnier Celine Clinical Director for

Research, Assistant

Professor

404-785-9400 celine.saulnier@emory.e

du

Pakula Amy Developmental Pediatrician 404-419-4000 amy.pakula@choa.org

Massachusetts Department of

Public Health

Higgins Cathleen Surveillance Coordinator,

Bureau of Family Health and

Nutrition

617-624-5510 cathleen.higgins@state.

ma.us

Muscular Dystrophy Association Cwick Valerie Executive VP, Research and

Medical Director

520-529-5496 vcwick@mdausa.org

Mental Health America Plotnick Debbie Senior Director of State

Policy

703-684-7722 dplotnick@mentalhealth

america.net

Metro Nashville Public Health

Dept.

Wyche Etheridge Kimberlee Director, Family, Youth, and

Infant Health

615-340-5614 kimberlee.wyche@nashvi

lle.gov

Mothers & Babies Perinatal

Network of SCNY

Chesna Sharon Executive Director 607-772-0517 schesna@mothersandba

bies.org

Mother's Milk Bank at Austin Campbell Valarie Milk Donor Coordinator 512-579-3978 valarie@milkbank.org

National Blood Clot Alliance Fenninger Randy CEO 301-825-9214 rfenninger@stoptheclot.

org

National Association of Councils

on Developmental Disabilities

Meltzer Donna Chief Executive Officer 202-506-5713 ext.

103

dmeltzer@nacdd.org

National Association of County

and City Health Officials

Snebold Laura Senior Program Analyst 202-507-4235 lsnebold@naccho.org

Runnels Laura Senior Program Analyst 202-507-4285 lrunnels@naccho.org

National Association of County

Behavioral Health and

Developmental Disability

Directors

Manderscheid Ron Executive Director 202-661-8816 rmanderscheid@nacbhd.

org

National Association of Pediatric

Nurse Practitioners

Chernis Anna Education Specialist 917-746-8294 achernis@napnap.org

National Birth Defects Prevention

Network

Kirby Russell Former President 813-396-2347 rkirby@health.usf.edu

Mason Craig Director, Center for

Research & Evaluation

207-581-2493 craig.mason@maine.edu

Thomas Kayte 919-633-3372 indigoeyes@ymail.com

National Center for Learning

Disabilities Inc.

Jones Lindsay Director of Public Policy and

Advocacy

ljones@ncld.org

National Conference of State

Legislatures

Saunders Jennifer Policy Associate, Health

Program

303-856-1440 jennifer.saunders@ncsl.o

rg

National Council for Behavioral

Health

Rosenberg Linda President/CEO lindar@thenationalcounc

il.org

Venkatesh Mohini Vice President, Practice

Improvement

202-684-7457 ext.

230

mohiniV@thenationalcou

ncil.org

Foderingham Shelina shelinaF@thenationalcou

ncil.org

National Down Syndrome

Congress

Carroll Jennifer Affiliate Relations Director 770-604-9500 jennifer@ndsccenter.org

Mora Linda Diversity Resource Manager 770-604-9500 mora@ndsccenter.org

National Fragile X Foundation Cohen Jeffrey Director of Government

Affairs and Advocacy

800-688-8765 j.cohen@fragilex.org

Walker Beth Director of Communications 248-882-3703 beth@fragilex.org

National Healthy Mothers,

Healthy Babies Coalition

Salley Rachael Program Assistant 703-837-4792 rsalley@hmhb.org

Soaterna-

Castaneda

Luisa Outreach Manager and

Multicultural Specialist,

Text4Baby

703-838-7551 luisa@hmhb.org

National Hemophilia Foundation Rice Michelle Vice President, Public Policy

and Stakeholder Relations

212-328-3700 mrice@hemophilia.org

Gray Johanna Federal Policy Advisor 202-484-1100 jgray@dc-crd.com

National Indian Justice Center Myers Raquelle Staff Attorney 707-579-5507 nijc@aol.com

National Marfan Foundation Levering Carolyn Emeritus CEO 516-883-8712

ext. 112

clevering@marfan.org

McKenzie Diane Program Associate 516-883-8712 ext.

136

dmckenzie@marfan.org

National Multiple Sclerosis

Society

Bebo Bruce Executive Vice President,

Research

212-476-0414 Bruce.Bebo@nmss.org

National Organization on Fetal

Alcohol Syndrome

Donaldson Tom President 202-785-4585 donaldson@nofas.org

New York State Department of

Health

Cross Philip Assistant Director 518-402-7950 pkcndmc@gmail.com

National Institutes of Mental

Health

Thurm Audrey Staff Scientist at191u@nih.gov;

athurm@mail.nih.gov

National Newborn Screening and

Global Resource Center

Taylor Lois Director 850-245-4670; lois_taylor@doh.state.fl.

us

Ohio Department of Health Starr Anna Genetics Section Advisor 614-995-5333 anna.starr@odh.ohio.gov

Kothari Reena Audiologist reena.kothari@odh.ohio.

gov

Ryan Norma OCCSN Coordinator 614-752-9523 norma.ryan@odh.ohio.g

ov

PACER Center Goldberg Paula Executive Director 952-838-9000 pgoldberg@pacer.org

Parent Project to End Muscular

Dystrophy

Furlong Pat Founding President and CEO 513-424-0696 pat@parentprojectmd.or

g

Fischer Ryan Vice President, Advocacy

and Community Outreach

ryan@parentprojectmd.o

rg

Parent to Parent USA Brill Kathy Executive Director 717-503-8992 ksbrill@comcast.net

Pediatric Congenital Heart

Association

Basken Amy Director of Programs 608-370-3739 abasken@conqueringchd

.org

Physician and Parent Caregivers Bhagat Santi, KM President 301-983-0406 santi@ppc-inc.org

Reaching for the Stars. A

Foundation of Hope for Children

with Cerebral Palsy

Frisina Gray Cynthia Executive Director cgray@reachingforthesta

rs.org

Rhode Island Department of

Health

Viner-Brown Samara Chief 401-222-5122 samara.viner-

brown@health.ri.gov

Rhode Island Parent Information

Network

Wardyga Dawn Director, Family Voices and

Family to Family Health

Information Center

401-270-0101 ext.

106

familyvoices@ripin.org

Riley Hospital for Children O'Neil Joseph Neurodevelopmental

Pediatrician

317-944-4846 joeoneil@iupui.edu

RTI International Whitehead Nedra Senior Genetic

Epidemiologist

770-986-5051 nwhitehead@rti.org

Blackwell Angela Research Public Health

Analyst

770-407-4940 ablackwell@rti.org

St. Louis University School of

Public Health

Trevathan Edwin Dean and Professor 314-977-3240 etrevath@slu.edu

Seattle Children's Hospital

Research Institute

Olson Heather Senior Lecturer 206-987-3810 quiddity@u.washington.

edu

Jensen Mark Professor 206-884-7900 mjensen@u.washington.

edu

Slippery Rock University of PA Arnhold Robert Professor and Director 724-738-2847 robert.arnhold@sru.edu

Kemeny M. Elizabeth Instructor 724-738-4306 elizabeth.kemeny@sru.e

du

Sonnenschein, Nath, and

Rosenthal

Russell John Principal 202-408-6392 john.russell@dentons.co

m

Special Olympics International Eades Ryan Senior Manager, Web

Marketing

202-824-0292 reades@specialolympics.

org

Aylward Lynn Senior Manager and

Consultant, Global Health

and Development

Communication

layward@specialolympic

s.org

Mersereau Darcie Vice President, Health

Programs

202-715-3600 dmersereau@specialoly

mpics.org

Spina Bifida Association Struwe Sara President and Chief

Executive Officer

202-944-3285 sstruwe@sbaa.org

Sumera Gretchen Communications and

Outreach Manager

800-621-3141 ext.

29

gsumera@sbaa.org

Stop CMV-The CMV Action

Network

Greenlee Janelle President/Founder 209-712-9929 janelle@stopcmv.org

TASH Alvare Bethany Advocacy Communications

Manager

202-540-8014 balvare@tash.org

TERIS/ University of Washington Polifka Janine Faculty, Co-Director CARE

Northwest

206-543-2465 polifka@u.washingon.ed

u

The Arc Cameron Williams Ann Chief Research &

Innovations Officer

202-534-3711 williams@thearc.org

Acosta Annie Director of Fiscal and Family

Support Policy

202-534-3723 acosta@thearc.org

Bal Sarah Communications Manager bal@thearc.org

The Association of Maternal &

Child Health Programs

Freeman Lori CEO 202-266-3040 lfreeman@amchp.org

The University of Iowa Romitti Paul Associate Professor 319-384-1549 paul-romitti@uiowa.edu

Tourette Syndrome Association Hewko Annetta President 718-224-2999 annetta.hewko@tsa-

usa.org

Proctor Eldride Vice President of Public

Policy

718-224-2999 elridge.proctor@tsa-

usa.org

Colletti-Flynn Tracy Manager, Public Relations

and Communications

718-224-2999 tracy.flynn@tsa-usa.org

Gary Frank Executive Vice President 718-224-2999 ext.

235

gary.frank@tsa-usa.org

Trisomy 18 Foundation Miller Victoria Executive Director 703-878-7013 vjmiller@trisomy18.org

Tuberous Sclerosis Alliance Luther Rosbeck Kari President and CEO 301-562-9890 kcarlson@tsalliance.org

Roberds Steven Chief Scientific Officer 800-225-6872 sroberds@tsaalliance.org

United Cerebral Palsy DeButts Shelly Director of Marketing and

Communications

sdebutts@ucp.org

United Spinal Association Bennewith Alexandra Vice President, Government

Relations

202-556-2076 ext.

7102

abennewith@unitedspin

al.org

University of Colorado Stredler-Brown Arlene Adjunct Faculty 303-818-1258 arelene.brown@colorado

.edu

University of Kansas, Research

and Training Center on

Independent Living

Rooney Howland Cat Project Coordinator 785-864-4095 catr@ku.edu

Nary Dot Research Assistant 785-864-4095 dotn@ku.edu

University of Maine Mason Craig Associate Professor 207-581-9059 craig.mason@maine.edu

University of Montana Rural

Institute: Center for Excellence in

Disability Education, Research,

and Service

Seekins Tom Director, Research and

Training Center on Disability

in Rural Communities

888-268-2743 tom.seekins@mso.umt.e

du

Vogelsberg R. Timm Executive Director 406-243-5467 rtvogels@ruralinstitute.u

mt.edu

Ipsen Catherine Director of Rural

Employment Research

406-243-4562 ipsen@ruralinstitute.umt

.edu

University of New Mexico Luckasson Ruth Chair, Dept. of Educational

Specialties

505-277-6510 ruthL@unm.edu

Cahill Anthony Director, Division of

Disability and Health Policy

505-272-2990 acahill@salud.unm.edu

University of Oklahoma Reiner William Professor 405-271-6900 william-

reiner@ouhsc.edu

Venous Disease Coalition Hitchcock Wendy Executive Director 303-989-0500;

sheryl.benjamin@

vdf.org

wendy.hitchcock@vdf.or

g

Virginia Board for People with

Disabilities

Lawson Katherine Community Outreach and

Program Manager

804-786-9376 katherine.lawson@vbpd.

virginia.gov

Vitamin Angels Gasca Sarah Digital Marketing Manager "800-564-8400 sgasca@vitaminangels.or

g

Adult Congenital Heart

Association

Schaefer Terri Communications Manager 215-849-1260

888-921-2242

info@achaheart.org

Tringali Glenn National Executive Director 215-849-1260 gtringali@acha.org

Alpha-1 Foundation Campbell Bob Communications Director 877-228-7321 ext.

230

305-567-9888

rcampbell@alpha1.org

American Academy of Audiology Tolpegin Tanya Executive Director 703-790-8466 ttolpegin@audiology.org

Thomas Kate Director of Payment Policy

and Legislative Affairs

703-790-8466 kthomas@audiology.org

American Academy of Child and

Adolescent Psychiatry

Communications 202-966-7300 communications@aacap.

org

Individuals

Last Name First Name Email

Adams Elizabeth adamse@ohsu.edu

Altman Barbara b.altman@verizon.net

Anderka Marlene marlene.anderka@state.ma.us

Anderson Lynda LLA@umn.edu

Andresen Elena andresee@ohsu.edu

Atkinson Julie juliea@alaskachd.org

Bacon Ansley abacon@wihd.org

Bain Jen vme8@cdc.gov

Becker Heather heatherbecker@mail.nur.utexas.edu

Bernier Oetzel Arielle abernier@arc-a.org

Block Sandra sblock@ico.edu

Botticello Amanda abotticello@kesslerfoundation.org

Brock Angie brockangie@uams.edu

Brown Jeanie jbrown@jccdc.com

Brune Lorenzo Susan smblorenzo@gmail.com

Callis Jeff jeff_callis@hcmstrategists.com

Campbell Margaret margaret.campbell@ed.gov

Campbell Vincent vbc6@cdc.gov

Cavenaugh Dave cott-dc@earthlink.net

Chandan Priya priya.chandan@gmail.com

Charles Jane charlesj@musc.edu

Clarke Philippa pjclarke@umich.edu

Cunniff Christopher ccunniff@peds.arizona.edu

Cwik Valerie vcwik@mdausa.org

Danielewicz Deborah deb@mac.com

Defries Bouldin Erin erinbouldin@gmail.com

Devine Mary Ann mdevine@kent.edu

Dixon Alicia alicia.dixon-ibarra@oregonstate.edu

Domoto Katherine kkdomoto@gmail.com

Dooha Susan sdooha@cidny.org

Dorfman Sally sfdorfmanmd@aol.com

Eisenberg Yochai yeisen2@uic.edu

Elias Eileen eelias@jbsinternational.com

Elliot Timothy telliott@tamu.edu

Froehlich-Grobe Katherine katherine.froehlich-grobe@utsouthwestern.edu

Gary Kelli williamsjonk@vcu.edu

George Bolanle bolanlegeorge03@yahoo.com

Gordon Wayne wayne.gordon@mssm.edu

Graff Joyce jgraff@uthsc.edu

Gray David graydb@wusm.wustl.edu

Gray Johanna jgray@dc-crd.com

Guerney Janis jguerney@familyvoices.org

Hall Jean jhall@ku.edu

Havercamp Susan susan.havercamp@osumc.edu

Heaphy Dennis dheaphy@dpcma.org

Heinemann Allen a-heinemann@northwestern.edu

Heller Tamar theller@uic.edu

Heuman Kristina kristina.heuman@porternovelli.com

Ho Pei-Shu hop2@cc.nih.gov

Hobbs Charlotte hobbscharlotte@uams.edu

Hollar David David.hollar@pfeiffer.edu

Horner-Johnson Willi hornerjo@ohsu.edu

Hsieh Jean cjean.hsieh@gmail.com

Hsieh Kelly hsieh@uic.edu

Humes Steven shumes@med.unc.edu

Hutchings B. Lynn blynnhutchings@gmail.com

Jeffress Michael michael.jeffress@nicholls.edu

Johnson Kurt kjohnson@u.washington.edu

Joice Eric ejoice@familyresourcenetwork.org

Kelly Kim kim.kelly@health.ny.gov

Kirchner Corinne c.endreny.k@gmail.com

Knox Michael michael.knox@rutgers.edu

Kochtitzky Chris csk3@cdc.gov

Kornblau Barbara barbaralk@aol.com

Kraus Lewis deputy@adapacific.org

Kreindel Samantha samantha@cureepilepsy.org

Krok Kristin kkrok@northpointeresources.org

Lee Jae Chul leej31@cc.nih.gov

Lenhart Anna Maria alenhart@neweditions.net

Li Carl carlli@buffalo.edu

Li Henan hli48@uic.edu

Lin Sue lin.sue@gmail.com

Lullo Carolyn carolyn.lullo@gmail.com

Rizzolo Mary Kay mrizzo3@uic.edu

Marge Michael michael.marge@comcast.net

Marshall Jennifer jmarshal@health.usf.edu

McCabe Heather hamccabe@iupui.edu

McCue Jenny jenny_mccue@hcmstrategists.com

McDermott Suzanne smcdermo@mailbox.sc.edu

Mersereau Darcie dmersereau@specialolympics.org; slin@hrsa.gov

Meyer Tina tmeyer@westernu.edu

Midgette Lynn lynnmidgette@gmail.com

Minihan Paula paula.minihan@tufts.edu

Monson Todd todd.monson@co.hennepin.mn.us

Moro Teresa moro@uchicago.edu

Mucha Stephanie smucha@aap.org

Mudrick Nancy mudrick@syr.edu

Nehus Vanessa vanessan@uark.edu

Newman Shelia snewman@neweditions.net

O'Hara David dohara@wihd.org

Packer Alan apacker@simonsfoundation.org

Paeglow Theresa tnp01@health.state.ny.us

Parish Susan slp@brandeis.edu

Patrick Donald donald@u.washington.edu

Peay Holly holly@parentprojectmd.org

Perkins Elizabeth eperkins@mail.usf.edu

Rader Anne raderan@aol.com

Rasch Elizabeth rasche@cc.nih.gov

Rauworth Amy amyr@lakeshore.org

Redmon Susan redmon@tds.net

Reeves Stefanie sreeves@apa.org

Rein Marcy marcy.rein@gci.net

Rentas Betty prettywalkingfeet@yahoo.com

Richardson Stevenson gol8@cdc.gov

Riddle Ilka ilka.riddle@cchmc.org

Simeonsson Rune rjsimeon@email.unc.edu

Sisirak Jasmina jsisirak@uic.edu

Sloan Michelle jtq4@cdc.gov

Smeltzer Suzanne suzanne.smeltzer@villanova.edu

Smith Scott scott_smith@urmc.rochester.edu

Smith Veronica smithveronicaj@uams.edu

Sparling Eileen sparling@udel.edu

Standring Alison astandring@racbsb.state.va.us

Staten Melanie mstaten@amputee-coalition.org

Stice Melinda mbstice@hotmail.com

Stuifbergen Alexa astuifbergen@mail.utexas.edu

Suzuki Rie rsuzuki@umflint.edu

Talley Ronda ronda.talley@wku.edu

Tapay Valerie vtapay@hopeservices.org

Tepp Ronnie ronnie_tepp@hcmstrategists.com

Tewey Elizabeth btewey@neweditions.net

Wheaton Demeika demeika.wheaton@porternovelli.com

Toomey Jack jtoomey@pmhcc.org

Toveg Florita toveg@sbcglobal.net

Traci Meg meg.traci@msolumt.edu

Truitt Anjali artruitt@uw.edu

Tucker Sue tuckers@wusm.wustl.edu

Tymeson Garth tymeson.gart@uwlax.edu

Uhl Monica muhl@vcu.edu

Ungar Judith judit.ungar7@gmail.com

Vanderbom Kerri kerriv@lakeshore.org

Vasudevan Vijay vvasud2@uic.edu

Verrall Aimee verrall@u.washington.edu

Volpe Charles charles.volpe@autismspeaks.org

Wade Kerri kwade@awhonn.org

Wan Kristen kwan@astho.org

Ward Julie jward@ucp.org

Watkins Kayla kayla.watkins@gmail.com

Webber Danielle dwebber@aaidd.org

Williamson Heather hwillia@health.usf.edu

Wilson Lindsay lwilson@aap.org

Wolf-Branigin Karen wolf-branigin@thearc.org

Wolf-Fordham Susan susan.wolf-fordham@umassmed.edu

Yates Sarah sarahcyates1@gmail.com

Yun Stephen bhsyun@yahoo.com