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Smart Storytelling to enhance engagement in noncommunicable disease patients

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Noncommunicable DiseasesSoap operas(Telenovelas)EngagementAutonomyEudaimonic Well-beingInteractive Fiction3

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Noncommunicable DiseaseNon-contagious, long-lasting and degenerative 1Noncommunicable diseases. World Health Organization: Media Center.(January 2015). Retrieved from http://www.who.int/mediacentre/factsheets/fs355/en/World Health Organization. (2014). Global status report on noncommunicable diseases 2014. Switzerland.Sources

%Of deathsworldwide 268

ardiovasculariabetesChronic respiratory diseasesAccounting for most of the deathsancerDLow- and middle-income countries4

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Noncommunicable Disease

WHOs Global Action Plan for the prevention & control of noncommunicable diseases 2013-2020 39targets

25 indicatorsBehavior risksWorld Health Organization (2013) Global action plan for the prevention and control of noncommunicable diseases. Appendix 2: comprehensive global monitoring framework, including 25 indicators, and a set of nine voluntary global targets for the prevention and control of noncommunicable diseases. Retrieved from http://apps.who.int/iris/bitstream/10665/94384/1/9789241506236_eng.pdf .Sources5

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Eudaimonic Wellbeing

Noncommunicable DiseaseBehaviorActionsSense of selfLife-styleMotiva-tionsEngagement with meaning and fulfillment of potentials 4Calvo, R., & Peters, D. (2014). Positive computing: Technology for well-being and human potential. MIT Press.Sources6

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soap opera. 2015. telenovela. 2015. In Merriam-Webster.com. Retrieved May 10, 2016, from http://www.merriam-webster.com/dictionary/soap%20operaSinghal, A., & Rogers, E. M. (1988). Television soap operas for development in India1. International Communication Gazette, 41(2), 109-126. Retrieved March 9, 2016.SourcesSoap operas(Telenovelas)Serial dramas characterized by tangled interpersonal situations and melodramatic or sentimental treatment 5

The Sabido modelMiguel Sabido Vice President of Televisa

Pro-development soap operas: melodramatic serial that is broadcast in order to entertain and convey subtly an educational theme to promote development 6SCT from Bandura7

SCT: Social Cognitive Theory People learn from role models whose behavior they wish to emulate7

Encuesta Nacional sobre la Disponibilidad y Uso de Tecnologas en los Hogares (ENDUTIH). (2015). INEGI. Retrieved May 02, 2016, from http://www3.inegi.org.mx/sistemas/tabuladosbasicos/tabniveles.aspx?c=33734SourcesSoap operas(Telenovelas)97.5%Of households in Mexico, have a TV 7

Social

5 Hours of TV per DayCultureLife-stylea habit, a practice that requires some repetition. - L. Spence8

SCT: Social Cognitive Theory People learn from role models they wish to emulate8

Investigate the effects of interactive soap operas controlled by NCD patients and their measurements. How?

Collect thoughts about the perception of a system that provides entertainment in exchange for medical dataEvaluate engagement between patients and system in the following dimensions: social, time & narrative involvement.

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How is smart storytelling experienced by NCD patients?Which dimensions of engagement are stimulated by smart storytelling and how? Smart storytelling to enhance engagement in treatments for non-communicable disease patients

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HealthcareEntertainmentEngagementPatient Health Engagement Scale (Graffigna & Barello)Narrative Engagement (Busselle) (De Graaf) Narrative Persuasion(PCI/PMC)Pro-DevelopmentSoap operasIoTInteractive soap operas(Jibaja et al.)Positive Computing(Calvo & Peters)11

Population Communications International we are nowPCI MediaImpactPMC(Penske Media Corporation)11

Interactive fiction

Data visualization

Autonomy

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Bolu12

Just like a woman by Jeff Buckley on Eko13

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Observational Semi-structured Interviews (stories)QuestionnairesTime trackingExperimental* *Depending on number of participants2 groupsIndependent variable: Base of decisionDependent variable: Autonomy levels14

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105Participants

Measure-mentSemi-structured InterviewInteractionSession

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User ExperienceUser Experience Questionnaire(Rauschenberger et al)AutonomyPatient Health Engagement Scale (Graffigna & Barello)EngagementNet Promoter ScoreNarrative understanding & Emotional engagement (Busselle & Bilandzic)Time logs from interactionsStill pending a scale to measure only autonomy / desire to decide

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Mexican scene:DiabetesEntertainmentInteractive stories responding to measurementsChreuneBrown, T. (2008). Design thinking. Harvard business review, 86(6), 84-92. SourcesDesign thinking 17

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Storyboarding18

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Twine Open-source tool for telling interactive, nonlinear stories.

ChreuneEmpireAmerican drama that follows the struggles of a family involved in the music industry.

Why?Ratings: 87% (Rotten Tomatoes), 7.9/10 (IMDB)Content available on YoutubeNot aired on open TV in Mexico

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Normal flowPart dependent on measurement

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Risk ManagementStory not interesting enoughLow identification with characters (cultural)Dropout of participantsTechnical issues

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Scope of research -> Stick to itMeasuring psychological aspects is not easy (but still enlightening)Getting in touch with researchers = Fresh informationWriting too much, too often, was dangerous

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