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Leveraging the Latest Social Tools and Networks to Enhance Clinical Trial
Recruitment
Lee Aase (LeeAase) amp Julia Thebiay (jthebiay)
July 21 2016
Agendabull The role of social networking in Mayo Clinicrsquos
development bull The evolution of media in the last 60 years bull Perceived barriers to use of social media in
clinical trials bull Bringing social networking and media together bull Research Applications HLHS and SCAD bull Developing your strategic social media plan -
platforms and best practices
US News Best Hospitals Metro Populations
6
Every US state More than 140 countries One in Five travels more than
500 miles for care
Each year Mayo Clinic patients come from
Why is this the case
Social Networking in the Origins and Development of Mayo Clinic
Mayo Clinicrsquos First Social Networkers
Countries Dr William Mayo Visited
Austria Denmark Ireland Scotland
Australia England Italy Sweden
Argentina Fiji Mexico Switzerland
Belgium Finland New Zealand Uruguay
Canada France Norway
Chile Germany Peru
Cuba Holland Russia
Countries Dr Will Mayo Visited
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Agendabull The role of social networking in Mayo Clinicrsquos
development bull The evolution of media in the last 60 years bull Perceived barriers to use of social media in
clinical trials bull Bringing social networking and media together bull Research Applications HLHS and SCAD bull Developing your strategic social media plan -
platforms and best practices
US News Best Hospitals Metro Populations
6
Every US state More than 140 countries One in Five travels more than
500 miles for care
Each year Mayo Clinic patients come from
Why is this the case
Social Networking in the Origins and Development of Mayo Clinic
Mayo Clinicrsquos First Social Networkers
Countries Dr William Mayo Visited
Austria Denmark Ireland Scotland
Australia England Italy Sweden
Argentina Fiji Mexico Switzerland
Belgium Finland New Zealand Uruguay
Canada France Norway
Chile Germany Peru
Cuba Holland Russia
Countries Dr Will Mayo Visited
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
US News Best Hospitals Metro Populations
6
Every US state More than 140 countries One in Five travels more than
500 miles for care
Each year Mayo Clinic patients come from
Why is this the case
Social Networking in the Origins and Development of Mayo Clinic
Mayo Clinicrsquos First Social Networkers
Countries Dr William Mayo Visited
Austria Denmark Ireland Scotland
Australia England Italy Sweden
Argentina Fiji Mexico Switzerland
Belgium Finland New Zealand Uruguay
Canada France Norway
Chile Germany Peru
Cuba Holland Russia
Countries Dr Will Mayo Visited
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
6
Every US state More than 140 countries One in Five travels more than
500 miles for care
Each year Mayo Clinic patients come from
Why is this the case
Social Networking in the Origins and Development of Mayo Clinic
Mayo Clinicrsquos First Social Networkers
Countries Dr William Mayo Visited
Austria Denmark Ireland Scotland
Australia England Italy Sweden
Argentina Fiji Mexico Switzerland
Belgium Finland New Zealand Uruguay
Canada France Norway
Chile Germany Peru
Cuba Holland Russia
Countries Dr Will Mayo Visited
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Social Networking in the Origins and Development of Mayo Clinic
Mayo Clinicrsquos First Social Networkers
Countries Dr William Mayo Visited
Austria Denmark Ireland Scotland
Australia England Italy Sweden
Argentina Fiji Mexico Switzerland
Belgium Finland New Zealand Uruguay
Canada France Norway
Chile Germany Peru
Cuba Holland Russia
Countries Dr Will Mayo Visited
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Mayo Clinicrsquos First Social Networkers
Countries Dr William Mayo Visited
Austria Denmark Ireland Scotland
Australia England Italy Sweden
Argentina Fiji Mexico Switzerland
Belgium Finland New Zealand Uruguay
Canada France Norway
Chile Germany Peru
Cuba Holland Russia
Countries Dr Will Mayo Visited
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Countries Dr William Mayo Visited
Austria Denmark Ireland Scotland
Australia England Italy Sweden
Argentina Fiji Mexico Switzerland
Belgium Finland New Zealand Uruguay
Canada France Norway
Chile Germany Peru
Cuba Holland Russia
Countries Dr Will Mayo Visited
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Austria Denmark Ireland Scotland
Australia England Italy Sweden
Argentina Fiji Mexico Switzerland
Belgium Finland New Zealand Uruguay
Canada France Norway
Chile Germany Peru
Cuba Holland Russia
Countries Dr Will Mayo Visited
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Visiting Dr Hugh Devinersquos OR in Melbourne
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
How Mayo Clinic got its Namehellip
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Social Networking is part of Mayo Clinicrsquos DNA
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Once upon a time three networks dominated the media landscape in the United States
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Every day these guys would define the news
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
while local affiliates and newspapers sold scarce audience
access at monopoly prices
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Then one day Ted Turner launched the cable TV revolution
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
And one of these guys invented the Internet
bull Picture of Al Gore
bull Netscape Browser
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
While the Big Three didnrsquot sense the magnitude of the coming change
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Mayo Clinic did and was among the first medical centers on the Web
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Twin revolutions fragmented audiences causing major economic upheaval
bull Hundreds of cable channels exponential growth in Web sites
bull Mass media came under economic pressure
bull Demise of the TV (News) Doctor
bull Media organizations began streaming toward bankruptcy See Paper Cuts
bull Seth Godin ldquoThe problem with scarcity is that there just isnrsquot enough of it anymorerdquo
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
The means of news production and distribution were democratized
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Until finally the Big 3 TV share of audience crashed
Big Three Others
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Facebook went public at 20x WSJ valuehellip
WSJ (2007) ABC (1995) Facebook (2012)
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
hellipand has more than tripled since 2012
WSJ (2007) ABC (1995) Facebook (2012) Facebook (2016)
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Moving Mayo Clinic from Social Networking to Social Media
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
From Syndicated Mediahellip
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
hellip to ldquoNewrdquo Media (Podcasting)
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Involuntary MySpace ldquoRepresentationrdquo
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Accelerated Adoption of Free Platforms and Low-Cost Tools
bull 2007 - Facebook bull 2008 bull YouTube bull Flip Cameras bull Twitter bull Blogs
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Information Sources Influencing Preference for Mayo Clinic (2014)
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Amplifying Word of Mouth Marketing
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Sharing In-Depth Knowledge and Showcasing Expertise Empathy
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Unique Myelofibrosis Cases
MCF MCA
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Perceived Barriers to use of Social Media in Research
bull Time- We are already INCREDIBLY busyhellip
bull Itrsquos difficult to measure a true ROI Nobody directly pays you to lsquotweetrsquo
bull HIPAA IRB and FDA
bull Fear of bad comments
bull Fear of the unknown
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Time
bull Social Media does take time
bull Build a team approach
bull Time now can save you time later
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
HIPAAbull Review and understand your companyrsquos social
media policy before getting started
bull Speak in general terms about diseases or conditions
bull Do not discuss specific patient situations even in general terms
bull Donrsquot take on-line conversations off-line
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
IRBOHRP
bull Engage with your IRB BEFORE you begin to use social media platforms
bull Study specific direct advertising should be reviewed by the IRB
bull General Information doesnrsquot necessarily need to be reviewed
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
bull The FDA has issued DRAFT guidance for the use of social media
bull httpwwwfdagovdownloadsdrugsguidancecomplianceregulatoryinformationguidancesucm401087pdf
bull lsquoFDA approvedrsquo is not acceptable for drugs used under an IND
bull The FDA grants lsquopermission to proceedrsquo with a trial NOT an approval
FDA
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Hypoplastic Left Heart Syndrome (HLHS)
bull HLHS is a rare and complex congenital heart defect in which the left side of the heart is severely underdeveloped
bull HLHS affects approximately 1000 infants born in the US each year
bull Three-staged surgical palliation or heart transplant are the only options for these infants
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Todd and Karen Wanek Family Program for Hypoplastic Left Heart Syndrome
bull Integrated research program within Mayo Clinic focused on genetics imaging and finding regenerative cell-based therapies for those affected with HLHS
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Challenges in Building the HLHS Program
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
]
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Seizing Opportunities The Octogenarian Idol Example
bull Embedded in Sharing Mayo Clinic posted to Facebook Tweeted on 4709
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
The next day
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Total Views
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Six days laterTotal Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Total Views
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Total Views
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Total Views
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Total Views
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Total Views
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Total Views
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Early Morning May 26 2009
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Live in Studio Good Morning America
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Mayrsquos Sad News
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
In Memory of Marlow
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Break
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Mayo Clinic Social Media Networkbull The Mayo Clinic Social Media Network (MCSMN)
exists to improve health globally by accelerating effective application of social media tools throughout Mayo Clinic and spurring broader and deeper engagement in social media by hospitals medical professionals and patients
bull Our Mission Lead the social media revolution in health care contributing to health and well being for people everywhere
bull Makes resources developed for Mayo Clinic staff available to peers and generates revenue to support mission
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
A Catalyst for Social Media
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Social for Healthcare Certificate from Mayo Clinic and Hootsuite
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Mayo Clinic Connect A Community of Communities
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Visit ConnectMayoClinicorg
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Website
Pros
bull Great for static content
bull Acts as lsquohome basersquo
bull Provides contact information
bull Provides a high-level understanding about the research
bull Not much to maintain after initial roll-out
Cons
bull Not effective for time-sensitive communication
bull Photos can become lsquooutdatedrsquo
bull Does not generate lsquoconversationrsquo
bull Not always sufficient for all audiences
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Website
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Blog
Prosbull Provides information and
announcements in real-time
bull Editschanges can be made quickly
bull Assigned roles-
bull Contributor Author Editor Administrator
Consbull CONTENT CONTENT
CONTENT
bull Dedicated time
bull Dedicated personnel
bull Buy-in from the team can be difficult
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Blog
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Starting with the blog
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Pros
bull Allows direct communication with your audience
bull Allows you to address their comments or concerns
bull ldquoTweetsrdquo can be re-tweeted by your followers
bull Keyword search
Cons
bull Tweets can be lost in a userrsquos Twitter feed quickly
bull 140 character limit for a ldquotweetrdquo
bull Smaller user base but growing
bull Hard to measure impact
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Be patienthellipIt takes time
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
YouTube
Pros
bull FREE
bull High user base
bull High quality video with nothing more than a camera phone
bull Allows for easy distribution of videos
Cons
bull Unwanted advertising
bull Limited ability to customize your video
bull Related videos are not always relatedhellip
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
YouTube
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
bull Target posts by demographics and interests
bull Boosting helps you reach prospective subjects more cost-effectively than mass media
bull Live video is public accountable enhancement to informed consent process
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Final Thoughts from Julia
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
THINK BIG start small
bull People affected by rare diseases form strong online communities bull Never underestimate the power of social media to tap into these
communities
bull THINK BIG- have a clear vision of what you want to achieve and a solid plan to get there
bull Start small- one good social media platform is better than multiple subpar platforms
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Social Media is about being lsquosocialrsquo
bull Let others tell your story for you by
bull Creating meaningful content for your target audience
bull Forming timely responses to comments and questions Itrsquos what makes social media lsquosocialrsquo
bull Connecting with advocacy and support groups
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Final Thoughts from Lee
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Tweetable Truths
bull Objections to social media arenrsquot unique to clinical trials
bull Start with strategy and understand your audience before settling on particular tools
bull Failure to apply social media in your work may not be malpractice but itrsquos mispractice
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Social Media Residency
One-day advanced course Prerequisite Social for Healthcare Certificate Four remaining opportunities in 2016 Sept 29 in Jacksonville Oct 17 in Rochester Dec 8 in Scottsdale Or in conjunction withhellip
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
Helpful Links
bull Join the Mayo Clinic Social Media Network
bull Take Mayo Clinic-Hootsuite Social Media Basics for Healthcare online certification
bull Contact us by email socialmediacentermayoedu
