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Producing health information for children and young people Colleen Shannon Freelance Healthcare Writer & Editor www.healthcarewriting.co.uk

Health information for children and young people

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Page 1: Health information for children and young people

Producing health

information for children

and young people Colleen  Shannon  

 Freelance  Healthcare    Writer  &  Editor  www.healthcarewriting.co.uk    

Page 2: Health information for children and young people

About  this  presentation  

These  slides  are  from  a  talk  I  gave  at  a  Patient  Information  Forum  event:  

Creating  information  for  children  and  young  people  

London,  January  2015  

 

Page 3: Health information for children and young people

The  next  few  minutes  

• Media  trends  

•  About  the  guide:  overview  and  experts  

•  Your  information:  Making  it  work  

•  The  voice  of  experience  

•  Inspiring  case  studies    

•  Useful  resources  

•  The  future!  

Page 4: Health information for children and young people

Media  trends  (UK)  

0   20   40   60   80   100  

Age  12-­‐15  

Age  8-­‐11  

Age  5-­‐7  

Age  3-­‐4  

2011  

2014  

Source:  Ofcom.  2014.  Children  and  parents:  Media  attitudes  report.  http://stakeholders.ofcom.org.uk/binaries/research/media-­‐literacy/media-­‐use-­‐attitudes-­‐14/Charts_Section_3.pdf    

Tablet  ownership  (%)  

Page 5: Health information for children and young people

Media  use  

Source:  Ofcom.  2014.  Children  and  parents:  Media  attitudes  report.  http://stakeholders.ofcom.org.uk/binaries/research/media-­‐literacy/media-­‐use-­‐attitudes-­‐14/Charts_Section_3.pdf    

•  35%  of  children  aged  5-­‐15  read  nearly  every  day:  so  print  is  still  an  important  format  

•  77%  use  a  games  console  every  day:  so  if  you  want  the  widest  reach,  this  might  be  the  way  to  go  

Page 6: Health information for children and young people

About  the  guide  

Guide  to  producing  health  information  for  children  and  young  people    July  2014        

Patient  Information  Forum  www.pif.org.uk    

Page 7: Health information for children and young people

Expert  advisers  •  Children’s  author  :  Camilla  de  la  Bedoyere  

•  Reviewers  •  Professor  Sue  Ablett,  Children’s  Cancer  and  Leukaemia  Group    •  Cassie  Davis,  CLIC  Sargent  •  Kath  Evans,  NHS  England  •  Beki  Moult,  GOSH  •  Professor  Nisha  Dogra,  University  of    Leicester  •  Dr  Knut  Schroeder,  GP  

•  Additional  advice    •  Jenny  Frank,  Children’s  Society    (young  carers)  •  Vicki  Kirwin,  National  Deaf  Children’s  Society  (accessibility)    

Page 8: Health information for children and young people

Inside  the  guide  

•  Foreword  by  Kath  Evans  

• Writing  tips  

• Why  the  right  information  matters  

•  Involving  children  &  young  people  

•  Communication  approaches  

•  How  to  create  high  quality  information  

•  Case  studies;  Resources;  Bibliography  

Page 9: Health information for children and young people

Making  it  work  Ask  the  kids!  

Involve  their  families  and  teachers  

Be  inclusive  

Seek  educational  

input  

Ask  clinicians  Work  with  authors  &  artists  

Make  best  use  of  media  

Reach  your  audience  

Evaluate  and  report  

Page 10: Health information for children and young people

The  voice  of  experience    “Get  information  across  in  stories…”        

 “User  test  at  every  stage  …”    

 “Get  input  from  the  people  who  you’ll  be  relying  on  to  distribute  your  resources…”      

 “Be  flexible  and  never  say  no.  Be  really  open  to  lots  of  different  ideas.”    

 “Enjoy  your  work!”  

 “Know  your  audience,  check  you  know,  and  then  ask  again!”    

Page 11: Health information for children and young people

Inspiring  case  studies  

Many  of  our  case  study  contributors  are  speaking  today:  

• Monkey  Wellbeing  

•  Breast  Cancer  Care  

•  Northumberland  Tyne  &  Wear  NHS  Foundation  Trust  

•   Diabetes  UK  

•  National  Children’s  Bureau  

Page 12: Health information for children and young people

Inspiring  case  studies  

Newham  Council  &  Resonant  Media  

Play  your  way  to  60  a  day  

Campaign  with  schools  to  reduce  obesity  and  increase  physical  activity  among  7  -­‐  11  year  olds  

www.resonantmedia.co.uk    

Page 13: Health information for children and young people

Inspiring  case  studies  

British  Heart  Foundation  

yHeart  

 

Website  and  social  media  for  young  people  

www.yheart.net    

Page 14: Health information for children and young people

Other  inspiring  work  

National  Deaf  Children’s  Society  

My  life,  my  health  

 

Campaign  to  improve  deaf  young  people’s  experiences  of  GP  services.  

youngpeople.ndcsbuzz.org.uk/mylifemyhealth    

Page 15: Health information for children and young people

Other  inspiring  work  

Best  Beginnings  

Baby  buddy  

App  for  young  parents  

www.bestbeginnings.org.uk/babybuddy    

 

Page 16: Health information for children and young people

Useful  resources  

•  Ofcom.  Children  and  parents:  Media  attitudes  report.  stakeholders.ofcom.org.uk/  

•  General  Medical  Council.  2007.  0-­‐18  years  guidance.  www.gmc-­‐uk.org    

•   Joan  Ganz  Cooney  Centre  www.joanganzcooneycenter.org    

•  O’Reilly,  Dogra  &  Ronzoni.  Research  with  children:  Theory  and  practice.  Sage  Publications,  2013.    

Page 17: Health information for children and young people

Looking forward to the

future!