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National Dementia Conference Adelaide 2017 Re-enabling health services: Prescribing exercise for people living with cognitive decline in residential facilities Gaynor Parfitt 1 and Alison Penington 2 1 Alliance for Research in Exercise, Nutrition and Physical Activity (ARENA), Sansom Institute for Health Research. 2 Helping Hand, Adelaide, SA

Gaynor Parfitt and Alison Penington - Helping Hand

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Page 1: Gaynor Parfitt and Alison Penington - Helping Hand

National Dementia Conference Adelaide 2017

Re-enabling health services: Prescribing exercise for people living with cognitive decline in residential

facilities

Gaynor Parfitt1 and Alison Penington2 1Alliance for Research in Exercise, Nutrition and Physical Activity (ARENA), Sansom Institute for Health

Research.

2 Helping Hand, Adelaide, SA

Page 2: Gaynor Parfitt and Alison Penington - Helping Hand

Exercise Physiology

• Allied Health Professional

• Chronic Disease, injury and disability

• Lifestyle/behaviour modification

• Group based + individual exercise

• Self management support

• Exercise advice

Page 3: Gaynor Parfitt and Alison Penington - Helping Hand

The Exercise Physiology Journey

Page 4: Gaynor Parfitt and Alison Penington - Helping Hand

Exercise Physiologist (EP) in Aged Care Project:

“Improving cognitive and functional capacity in older people in residential aged care through an exercise prescription approach” A four stage project:

Design pathways

for integrating EP

interventions

Develop a model

for sustainability

and up-scaling of

these practices

within aged

Care. Promote

the model

to the

Aged Care

sector.

Explore the

impact of

targeted,

specific EP

interventions.

Page 5: Gaynor Parfitt and Alison Penington - Helping Hand

Exercise Physiology: Where do they fit in Aged Care?

‘There is no longer an evidence gap,

rather there is an implementation gap’1

1. Deloitte Access Economics. Value of accredited exercise physiologists in Australia. 2015 [cited 2016 21 October]; Available from: https://www.essa.org.au/wp-content/uploads/2015/10/Deloitte-Report-2015_Value-of-AEPs-in-Australia.pdf.

Page 6: Gaynor Parfitt and Alison Penington - Helping Hand

Development of Targeted Programs:

Who?

- HHAC Residents

- Residents living with Cognitive Decline or Dementia

- Related functional Decline

How?

- Staff recommendations/referrals

- Family referrals

- Residents EOI

- Consent

Page 7: Gaynor Parfitt and Alison Penington - Helping Hand

Level of cognition-

ACE

Functional ability-

TUG, 5 Rep sit to

stand, Hand Grip,

POMA & 2MWT

Well-being- QOL AD

Development of Targeted Programs:

Page 8: Gaynor Parfitt and Alison Penington - Helping Hand
Page 9: Gaynor Parfitt and Alison Penington - Helping Hand
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Page 11: Gaynor Parfitt and Alison Penington - Helping Hand

Program Evaluation - CDPC Activity 29: Evaluation of an

Implementation project – improving cognitive and functional capacity of older people with dementia in residential aged care through an exercise prescription approach.

CDPC Project Evaluate impact on: Resident Family Staff

Design pathways

for integrating EP

interventions

Develop a model

for sustainability

and up-scaling of

these practices

within aged

Care. Promote

the model

to the

Aged Care

sector.

Explore the

impact of

targeted,

specific EP

interventions.

Page 12: Gaynor Parfitt and Alison Penington - Helping Hand

Pre-control

measurements

Post-intervention

measurements

Post-control

(pre-intervention) measurements

12 weeks 12 weeks

CONTROL PERIOD INTERVENTION PERIOD

Level of cognition

Functional ability

Well-being

Activity – 5 day

EP Project

Page 13: Gaynor Parfitt and Alison Penington - Helping Hand

GENEActiv device

• Worn on the wrist

• Accepted by residents

• Measures activity for 24 hour blocks

Objective measurement of activity

Page 14: Gaynor Parfitt and Alison Penington - Helping Hand

MVPA

Light

Sedentary

Sleep

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• Survey

• Interviews

Perceptions and acceptability of

program from staff and family

members

https://pixabay.com/en/photos/interview/

Page 16: Gaynor Parfitt and Alison Penington - Helping Hand

Awareness of exercise benefits

20%

73.7%

6.3%

aware that thereis scientificevidence

assume thatthere arebenefits

not aware of thebenefit ofexercise

50% 50%

0, % 0, %

aware that there isscientific evidence

assume that thereare benefits

Family members Care staff

Page 17: Gaynor Parfitt and Alison Penington - Helping Hand

Exercise benefits for residents with functional decline

• 93.4% of family members, and 92.9% of care staff either agreed or strongly agreed that ambulatory residents would benefit from exercise.

• In contrast, only 66.7% of family members, and 78.6% of care staff either agreed or strongly agreed that residents in princess chairs would benefit from exercise.

Page 18: Gaynor Parfitt and Alison Penington - Helping Hand

Exercise benefits for residents with cognitive decline

• 100% of family members and care staff either agreed or strongly agreed that residents with no cognitive decline would benefit from exercise.

• In contrast, only 46.6% of family members and 57.1% of care staff either agreed or strongly agreed that residents with severe cognitive decline would benefit from exercise.

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• At baseline, family members and staff believe that

residents with high functional capacity, or high cognitive

capacity, are more likely to benefit from exercise than

residents with low functional capacity, or low cognitive

capacity.

So…….?

Page 20: Gaynor Parfitt and Alison Penington - Helping Hand

Perceptions of areas of possible improvement – Family members (% response)

0

10

20

30

40

50

60

70

80

90

Social involvement Cognitiveawareness

Physical strength Mobility andFlexibility

Pain expressed

Family members - no change

Family members - small to moderateimprovement

Family members - big change

Page 21: Gaynor Parfitt and Alison Penington - Helping Hand

Perceptions of areas of possible improvement – Care staff (% response)

0

10

20

30

40

50

60

70

80

Social involvement Cognitiveawareness

Physical strength Mobility andFlexibility

Pain expressed

Care staff - no change

Care staff - small to moderate change

Care staff - big change

Page 22: Gaynor Parfitt and Alison Penington - Helping Hand

Barriers to support exercise delivery: care staff (% response)

0

10

20

30

40

50

60

70

80

90

Lack confidence I don't have time I don't have theequipment I need

I need to besupervised

Not comfortableasking allied healthstaff for assistance

Not part of my job There are no barriers

Agree/Strongly agree Disagree/Strongly disagree

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Would EPs be of value in the Aged care setting?

100% Agree

Page 24: Gaynor Parfitt and Alison Penington - Helping Hand

Outcomes: Care Staff

“There was one resident that was doing it (the exercise) with her legs

and her arms, and we can stand transfer her, and she’s meant be a

stand transfer.... (She was)…using her legs and everything else. I

mean, after this program, I’ve seen this woman get up out of her chair

and walk, and I’m like what is she doing (laughs)….” Care worker

“Someone like [the EP] who’s got the right personality, has got these

people engaged beautifully, they’re laughing, they’re enjoying, and

it’s just fabulous.” Senior Care worker

“[the program]…should be in every single aged care facility.” Care worker

Page 25: Gaynor Parfitt and Alison Penington - Helping Hand

Outcomes: Family members

“Valuable exercise, as it helped Mum to regain strength & posture

from medical setback.” (Family member)

“I felt gratitude, reassurance and support seeing an improvement to his

mobility and overall well-being- instead of an uninterrupted path of

decline.” (Wife of resident)

“Thrilled that mum is involved in the program.” (Family member)

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Summary: Where are we?

• Completed one unit at first site. • Second unit to be completed by end of March. • Second site pre control. • Qualitative interviews have begun. • Quantitative data collection ongoing. • Developing sustainability strategies and future

recommendations

Page 27: Gaynor Parfitt and Alison Penington - Helping Hand

Acknowledgements

Funders: Department of Health (Australian Government) Cognitive Decline Partnership Centre (University of Sydney) Team: Megan Corlis (Director, Research and Development, Helping Hand) Dannielle Post (Project Assistant, UniSA) Jan Van Emden (Business Manager, Research and Development, Helping Hand). Georgia Perkins (Accredited Exercise Physiologist, Helping Hand) Sandy Jensen (Administrative Assistant, Helping Hand) A/Prof Tracey Comans (Health Economist, Griffith University) Dr Kim Nguyens (Research Fellow, Griffith University) Dr Kade Davison (Director Clinical Exercise Physiology, UniSA) Dr Ashleigh Smith (NHMRC-ARC Dementia Development Fellowship, UniSA)