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AISM is the only Italian organization dedicated to PwMS with a 360° approach:
• Research • Services and support • Information • Advocacy
AISM Onlus
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AISM together with its research foundation is the largest private funding body of MS research together with MS Societies in the USA, Canada and UK. Other priority areas include: 1. Local and national services and support to meet the needs of people with MS
and their families;
2. A continuing education program for health professionals (i.e. CME)
3. A comprehensive information program that ensures up-to date, unbiased and accessible information to people of MS and their families across channels.
4. Fundraising to support activities of the MS Society, through national fundraising events, legacies, direct marketing, corporate fundraising.
5. Advocacy on all levels
6. Public awareness: to raise awareness of issues related to MS and to AISM.
AISM Onlus
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AISM – The International Network IOMSN - International Organization of MS Nurses
EMSP - European Multiple Sclerosis Platform
MSIF - Multiple Sclerosis International Federation
RIMS – Rehabilitation in MS
AISM and FISM collaborate
across borders
90 delegates from 24 countries!
Albania Austria Canada Czech Rep Egypt Finland France Germany Greece Hungary Ireland Israel
Italy Latvia Lebanon Montenegro Morocco Norway Poland Portugal Slovenia Spain Switzerland UK
MS Pa&ent Summit -‐ Rome
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Friday, May 22nd, 2015 Summit Moderator: Kaz Aston (UK) 08:30
08:40
09:20
10:00
10.40
Welcome & Introduction - Antonella Moretti (AISM, It) & Anna Chiara Rossi (Novartis, It)
Plenary session
• Patient rights in research and treatment - Dr Vittorio Martinelli (It), Aliki Vrienniou (Gr)
• Influencing the direction of healthcare decision-making - Mary Baker (UK)
• The ‘Expert’ Patient - Jean Hardiman-Smith (UK)
Panel discussion
11.15 Break 11.30 Breakout sessions
• Patient rights in research and treatment (co-facilitator - Michele Messmer (It))
• Influencing the direction of healthcare decision-making (co-facilitator - Silvia Traversa (It))
• The ‘Expert’ Patient (co-facilitator - Federica Balzani (It))
12.30 MS World Café
Best Practice Sharing Fair for Patient Advocates
13.00 Buffet Lunch 14:00 Breakout sessions (continued) 15:00 Breakout group feedback to plenary
15:55 Closing Remarks – Antonella Moretti (AISM, It) & Anna Chiara Rossi (Novartis, It) 16.00 Meeting Close
Raising standards; The voice of people with MS