Caring for Loved Ones With Parkinson’s Disease

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    22-May-2015

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Debbie Humphrey from Home Helpers Shares Caring for Loved Ones With Parkinsons Disease

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  • 1. Caring for Loved Ones With Parkinsons Disease

2. Caring for Loved Ones With Parkinsons Disease Objectives Overview of Parkinsons Disease Symptoms of PD Keys to Caregiving Caregiving Tips The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 3. What is it? Chronic and progressive movement disorder Involves the malfunction/death of vital nerve cells in the brain The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 4. Whos affected? Nearly one million people in the US live with PD Approximately 50,000 Americans are diagnosed each year More likely to affect men Incidence increases with age The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 5. Whats the cause? Environmental Factors Environmental toxin Traumatic brain injury The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 6. Whats the cause? Genetic Factors Not directly inherited The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 7. What are the symptoms? Primary Motor Symptoms tremor - hands, arms, legs, jaw and face bradykinesia - slowness of movement rigidity - stiffness of the limbs and trunk postural instability - impaired balance/coordination The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 8. What are the symptoms? Secondary Motor Symptoms Freezing Stooped posture Speech problems Difficulty swallowing The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 9. What are the symptoms? Non-Motor Symptoms Loss of sense of smell Sleep disorder Mood disorder The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 10. Keys to Caregiving Be educated Understand PD is unpredictable Manage the disease Acknowledge feelings The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 11. Keys to Caregiving Educate Yourself PD is complicated Symptoms and challenges vary greatly It is a progressive illness The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 12. Keys to Caregiving Understand PD is Unpredictable Symptoms of severity can vary throughout the day. Proper medical management is key to keeping the most predictable response to treatment. Report abrupt changes in a persons ability to move. The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 13. Keys to Caregiving Managing the Disease Obtain any adaptive equipment or clothing needed. Document any noticeable changes in your loved one. Modify any areas you need to within the home to promote safety. The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 14. Keys to Caregiving Acknowledge your Feelings Avoid acting on emotions with unconstructive behaviors. Talk to someone about what you are feeling. Join support groups. The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 15. Basic Caregiving Tips Learn when to help and when not to. Allow time for your loved one to do things for themselves, even if it takes longer. Good communication is very important. Watch for signs of depression. Encourage exercise. The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 16. How to Cope with Freezing Management method (STOP, THINK, PLAN, DO) Weight shift method Sound and vision methods Floor strips The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 17. How to Cope with Difficulty Swallowing Sit person upright and tilt head forward. Cut food into small bites and encourage small sips of liquid. If they tire while eating, serve smaller meals more often. Serve well-cooked, smoother textured food and more tender cuts of meat. The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 18. How to Cope with Tremors Hold the affected limb in a variety of positions Have your loved one hold on to something Press the upper arm against the body The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 19. General Meal Planning Tips Eat a nutritionally balanced diet (plenty of fruits, vegetables, and whole grains) Reduce sugar intake Reduce sodium intake The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 20. Special Challenges of Caring for Someone with PD Incidence and severity of PD symptoms varies Takes time and ongoing education to learn the multiple symptoms of PD and somewhat complicated medication regimes The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 21. Resources National Institute of Neurological Disorders and Stroke (www.ninds.nih.gov) National Parkinsons Foundation (www.parkinson.org) Parkinsons Disease Foundation (www.pdf.org) Home Helpers Caregiver Training Curriculum The information contained on these pages is of a general nature and intended to provide a public information service. The information is not intended to be a substitute for consulting with a medical care provider. 22. Questions? 23. Home Helpers:Home Helpers: Debbie Humphrey, PresidentDebbie Humphrey, President www.TarponSpringsHomeCare.cowww.TarponSpringsHomeCare.co mm

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