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Ageing – a Global Challenge: Sharing is Caring. Hägglund M. eHealth week 2010 (Barcelona: CCIB Convention Centre; 2010)
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Sharing is Caring
Integrating Health Information System to Support
Patient-Centered Care
Maria Hägglund
Ph.D. in medical informatics
Health Informatics Centre
Karolinska institutet
Stockholm, Sweden
Introduction
3-year action research project
Municipality of Hudiksvall & County primary care Hälsingland• Home help service
• Healthcare centre
• Patient still living at home
Industrial partners
PURPOSE: To facilitate cooperation in homecare of elderly through information sharing
OLD@HOME
Shared homecare of elderly patients
Complex interrelated problems; physical,
psychological and social health
• Healthcare services (basic or advanced)
• Social care/Home help services
• Family carers District
nurse
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Elderly
patients
Home
help
personnel
Relatives/
Family
carers
General
practitioner
Background
Requirements
Mobile devices
Presentation
of integrated
information
Interaction
with information
Access to
informationSharing of
information
Integration & Interoperability
OLD@HOME
Vision
Right information, in the right place, at the right time, for
the right person, presented in the right format
Virtual Health Record (VHR)
• Mobile access to patient-oriented data
• Different views for different user groups
• Support for point of care documentation
• Access to information from different feeder systems
Difficult to capture the
integrated/cooperative aspects of
shared home care!
User centred system development• Observations and interviews
• Interdisciplinary working groups
• Specification of work scenarios
• Iterative prototyping
Capturing Shared Work
Virtual Health Record
Implemented applications
Web applications for District nurse & General practitioner
District Nurses web
application
• Notification of new
prescription
• Can add further
information aimed at
the home help service
personnel
Medication: ALBYL MINOR
Preparation: Pill
Strength: 250
Dosage: 1 pill 1 time/day
Signature: JF
Date: 2007-07-31
Implemented applications
Home help service personnel’s
handheld device application
• Notification of new information
• Information about new drug from
the general practitioner
• Added instructions from the district
nurse
Implemented applications
Web application for Patients and/or family carers
Impact on participants
Patient in his home
Participates and
feels safe!General Practitioner
Reads up to date information!
Relatives
Participate and are updated!
Home helpers in action
Read, write and communicate!
District nurse at a patients home
Gets online information!
Further facilitate patient empowerment
Conclusion
Establish (better) communication between patients, research and
clinical practice
self-management and secondary prevention
Support communication through standards based information
systems
Patient centered care
Cooperative care processes
Patient empowerment
Improvements to elderly care
Current and Future work
Continue development of ICT to meet the needs
• Evaluate ICT
• User interfaces for elderly
Expand focus of collaborative
healthcare – continuity of care
• Chronic disease management
• Stroke patients
• Include hospital care and
clinical researchAcknowledge patients’
and family carers’ roles!
References
Scenarios to capture work processes in shared homecare—From analysis to applicationInternational Journal of Medical Informatics, In Press, Available online 31 August 2008Maria Hägglund, Isabella Scandurra, Sabine Koch
Studying intersection points: an analysis of information needs in shared homecare of elderly.The Journal on Information Technology in Healthcare (2009); 7(1), 23-42Maria Hägglund, Isabella Scandurra, Sabine Koch
Bridging the Gap: a Virtual Health Record for integrated HomecareInternational Journal of Integrated Care – Vol. 7, 27 June 2007, ISSN 1568-4156Maria Hägglund, Isabella Scandurra, Dennis Moström, Sabine Koch
From User Needs to System Specifications: Multi-disciplinary Thematic Seminars as a Collaborative Design Method for Development of Health Information Systems, Journal of Biomedical Informatics. 2008;41(4):557-69Isabella Scandurra, Maria Hägglund, Sabine Koch
Thank you for your attention!
Contact information
Contact Information
Maria Hägglund
postdoc
Health Informatics Centre
Karolinska institutet
Stockholm, Sweden
My thesis is available at:
http://publications.uu.se/abstract.xsql?dbid=9527
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