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From NACDD's 2014 annual conference
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Oregon Consortium of Family Networks
Changing demographics Dwindling budgets, including Family Support Work force can’t keep up with demand
Families are and will continue to be the primary source of support for kids with IDD throughout the lifespan Families must receive support so they have the capacity
to provide it
Why Family Networks?Trajectory
System Life Full Life in Community
Rela
tions
hip
Visio
nEm
pow
erm
ent
“I had specialists, I had therapists, I had family… I just needed another mom!”
Oregon Consortium of Family Networks
Families of children with IDD have opportunities to enhance their sense of empowerment to support child with disability – envision a beautiful future participate in community – sense of self outside of disability
Communities have opportunities to enhance their sense of empowerment to support and engage families with children with IDD
Medical
ServicesSchool
Presume Competence! No Stretch = No Growth
Dignity Of Risk
Start With A Vision For the Future
• Use a Person-centered Planning approach to discover: • Vision for the future• Strengths, gifts, and capacities• What works/what doesn’t work
• Person-centered planning challenges us to look at the Person and think beyond immediate concerns and disability.
PCP
CRITICAL ELEMENT TO CARE COORDINATION: KNOW THE CHILD/FAMILIES NORTH STAR…
•What is your goal?•What is your dream?•High expectations•Presume competence•If we don’t teach our children to dream, who will?
• Collaborating in quality measurement and improvement activities across the state;
• Supporting evidence-guided quality activities in clinical practices;
• Incorporating the patient and family voice into quality efforts; and
• Informing policies that support optimal health and development for all children and youth.
OREGON PEDIATRIC IMPROVEMENT PARTNERSHIP ~ OPIP
Empowerment + Partnership = CODSN
Dianna’s Story
Oregon Consortium of Family NetworksOregon Council on Developmental Disabilities
Oregon Consortium of Family Networks &Oregon Council on Developmental Disabilities
OCFN & OCDD Partnership• OCFN represents, and can access thousands of families and community partners around the state
• OCFN families have a different vision for the future
Questions??