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Page 1: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Anorexia and Cachexia Anorexia – loss of appetite, usually with

decreased intake Cachexia – lack of nutrition and wasting Offer favorite foods but educate families

about disease process Forcing intake orally or artificially may

cause additional suffering

Page 2: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Causes of Anorexia and Cachexia

Pre-maturity

Disease related

Psychological

Treatment related

Page 3: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Assessment of Anorexia and Cachexia

Physical findings

Impact on function and QOL

Calorie counts/daily weights

Laboratory tests

Page 4: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Treatment of Anorexia and Cachexia

Dietary consult/intervention Medications Parenteral/enteral nutrition Education (as artificial nutrition

at EOL may increase suffering)

Page 5: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Time with Grandfather

Page 6: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Constipation

Infrequent passage of stool Frequent symptom in palliative

care Prevention is key Discussion may be difficult with

child/adolescent

Page 7: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Causes of Constipation

Disease related (e.g. obstruction, hypercalcemia, neurolgic, inactivity)

Treatment related (e.g. opioids, other meds)

Page 8: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Assessment of Constipation

Bowel history

Abdominal assessment

Rectal assessment

Medication review

Page 9: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Treatment of Constipation

Medications Dietary/fluids

Popsicles Clear sodas Jello

Other approaches

Page 10: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Assessment of Nausea and Vomiting

Clinical/physical exam

History

Lab values

BARF scale

Minimize suffering

Page 11: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Causes of Nausea and Vomiting

Overview/ definition Gastrointestinal

causes Metabolic causes CNS causes

Page 12: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Pharmacologic Treatment of Nausea and Vomiting

Anticholinergics

Antihistamines

Steroids

Prokinetic agents

Other Hellsten & Medellin, 2010; Karwacki, 2006; Santucci & Mack, 2007

Page 13: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Non-Drug Treatment of Nausea and Vomiting

Distraction

Dietary

Small/slow feeding

Invasive therapies

Page 14: Pediatric Palliative Care C C E E N N L L E E Anorexia and Cachexia Anorexia – loss of appetite, usually with decreased intake Cachexia – lack of nutrition

Pediatric Palliative CareCCEENNLLEE

Oh, My Child


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