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West of Scotland Cancer Awareness Project Bowel Cancer Campaign

West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

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Page 1: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

West of Scotland Cancer

Awareness Project

Bowel Cancer Campaign

Page 2: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Contents

Campaign contacts and details for usage

Details of scoping activities

Insights into public bowel cancer awareness

Intervention strategy and development

Pictures of the leaflets and photos from the project

exhibition

Top line results and lessons learned

Page 3: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Insight and scoping including literature review

Pre-testing

Evaluation

Institute for Social Marketing

Douglas Eadie [email protected]

Tel: 01786 467390

Web: www.ism.stir.ac.uk

Creative Agencies The Bridge (Television and radio adverts)

Margaret Byrnes

Tel: 0141 552 8384

Web: www.thebridgeuk.com

Marque Design (Leaflets and posters)

Paul Noe

Tel: 0141 332 3335

Web: www.marquecreative.com

Two Bob Rocket (Photography)

Paul Hampton

Tel: 0141 427 9111

Web: www.twobobrocket.co.uk

Ownership of materials and usage rights Campaign owned by the West of Scotland Cancer Awareness

Project

Permission to use from Emilia Crighton (Public Health

Consultant – NHS Greater Glasgow and Clyde) email:

[email protected]

Photography licensed – fee will be chargeable

If using same actor and voice over for TV and radio commercial

fee will be chargeable

Key partners NHS Greater Glasgow and Clyde, NHS Forth Valley, NHS

Ayrshire and Arran, NHS Lanarkshire

Funding via Big Lottery Fund

Bowel Cancer UK

Contacts for Campaign

Page 4: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Scoping

Page 5: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Introduction The West of Scotland Cancer Awareness Project (WoSCAP) was a

partnership between the five west of Scotland NHS Boards (Argyll and Clyde, Ayrshire and Arran, Forth Valley, Greater Glasgow and Lanarkshire)

They were awarded £1.3 million over three years by the Big Lottery Fund in 2002.

£240,000 of the grant was used to develop a public awareness campaign on the early detection of bowel cancer

£94,000 of the grant was used for research and evaluation

The project won 9 awards in total for healthcare communications, social marketing, advertising and design (3 for the bowel campaign)

Page 6: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Aim of the bowel cancer project

To encourage those ‘at risk’ of bowel

cancer to present earlier to the NHS with

signs and symptoms of the disease

Page 7: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Target group

Men and women living in the most

deprived areas within the west of Scotland

aged 50+ with signs and symptoms of

colorectal cancer

Page 8: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Our Starting Point

At baseline, (922 interviews) 46% awareness of bowel cancer Almost 50% would put up with symptoms as long as possible Symptoms such us unusual bleeding or long term constipation often

rationalised as ‘just one of these things you put up with’ Late presentation often due to lack of awareness, embarrassment,

invasive tests but fear of a diagnosis of cancer is key Epidemiology of disease – 3500 new cases every year in Scotland.

If detected early, 80% chance of cure Impact on services – fear from professionals about services being

swamped by large numbers of ‘worried well’ Service providers initially against plans due to potential impact on

secondary care which could affect diagnosis and treatment times Value for money- had the opportunity to reach target group

effectively

Page 9: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Professional Views - bowel

“A campaign of this nature is ethically

unacceptable”

“This campaign will swamp services with

the „worried well‟

“Who are you and what evidence do you

have to support the chances of a

campaign of this nature being successful”?

Page 10: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

The Challenge – health professionals

To overcome resistance and negative attitudes from health professionals

To develop communication strategy to reach 4500 internal stakeholders

To support services to deliver when campaign was ‘live’

To turn sceptics into active participants by involving them in the process and decision making

Page 11: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Insight from public research

Reasonable levels of awareness of disease, poor awareness of signs and symptoms

Low awareness of incidence levels Lack of awareness that disease can be

effectively treated if detected early Issues about embarrassment and stigma to

present but major issue is fear of diagnosis of cancer

Focus on ‘risk’ factors in communications may alienate target audience

Page 12: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

What People said - Bowel

A man’s more likely to sit there for months and say to himself,

it’ll go away

My friend died of bowel cancer. She always thought she

just had piles

Apart from bleeding, you’d have to have

symptoms for quite a while. You’d find any

excuse for it – say it was the bevy last night, or you had a dodgy meal.

Page 13: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Project Structure and Links

Steering Group

Project Team

Oral Sub-GroupResearch &

Evaluation Sub-Group

Colorectal Sub-Group

LocalImplementation

Teams

LocalImplementation

Teams

RCAG

Other NOFProjects

MCN’s

NHS Cancer SG’s

Project Structure & Links

ExecutiveGroup

Page 14: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Local Implementation Teams (LITs)

L.I.T.

OPERATIONALFacilitated by Project Team

SERVICE PLANNINGFacilitated by NHS Board

Remit

Communication strategy (internal –

NHS personnel; external – media,

interested bodies; physical –

distribution of resources)

Training (mapping, developing,

facilitating, evaluation)

Development and implementation of

local initiatives

Remit

Consider how services will cope

with the potential impact of the

campaign:

Structures

Referral systems

Training

Communication

Representation

Senior Campaign Manager

(WoSCAP)

LHCC Rep (PHP, GP, Nurse)

Health Promotion

Social inclusion member

Pharmacist

Primary Care (remit for training)

Community Health Project(s)

Representation

Public Health

Service Planning

Clinician

Nurse Specialist

Service Redesign

Primary Care

Pharmacy

LHCC Manager

WoSCAP

Sub-group

Research and

Evaluation

Page 15: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

DevelopmentDevelopment

Page 16: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

The strategy

Targeting a ‘hard to reach’ audience who can easily be ‘turned off’ by health prevention messages

Focus on ‘early detection’ not prevention

Promote early presentation of bowel cancer which will lead to improved outcomes and quality of life

Campaign messages had to focus on informing target group of ‘new’ information about their health in a relevant, non threatening and non patronising approach

Television was the perfect medium to reach the audience as traditionally they watch 4-5 hours television most days.

Page 17: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

The strategy

Needed key baseline evidence from which to develop objectives

Baseline study was commissioned to understand target group’s knowledge, attitudes and perceptions of bowel cancer – also had a control area

From baseline studies, developed clear objectives for advertising, research and evaluation and impact on services

Conducted needs assessment with primary and secondary care teams to assess training needs

Page 18: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

The strategy

Engagement with key professional stakeholders via comprehensive communication strategy and involving champions in decision making and local implementation teams

Finding common ground and a ‘win win’ situation with health professionals. What could we do to facilitate delivery of the service?

Development and delivery of a training programme for health professionals

Recruiting the right team with appropriate skills mix and confidence to deal with senior clinicians, primary care teams and cancer leads

Page 19: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

The Strategy

Developed high profile media campaign

Communication messages and approach based on results from research

High profile initiatives including ministerial launch

Regular proactive stories in the media

Local initiatives including working with charities, voluntary organisations, events, photographic exhibition

Page 20: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Pre-testing – Bowel Campaign

5 concepts pre-tested in 6 focus groups

‘niggling worries’ addressed real barriers to action – inertia and fear

Proved compelling and intriguing due to dialogue with man confronting his fears

It had a direct call to action – ‘go to your doctor if your bowel habits change or you have blood in your motions’

It was felt to be an empathetic way of tackling the fear that surrounds the subject area

Page 21: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Pre-testing – Bowel Campaign

Women in the west of Scotland not ready to be seen posing on the toilet!

Page 22: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Implementation

Page 23: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Integrated Approach

Research Research

Communication Communication

Training Training

Service Provision Service Provision

Local Intiative Local Initia

tive

Advertising

Page 24: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Campaign Activities for the

public Ministerial launch which was covered by national television, radio and all

regional press

Television and radio advertising – 2 phases between November 2004 –February 2005

Direct mailshot to 250,000 homes

Sponsored competition attracting over 900 entries

Clyde Action (sponsored radio promotional week of activities)

website

Bowel Cancer UK supported a work place initiative with Glasgow City Council (100,000 employees)

Mobile photographic exhibition which was supplied for community events

Community events

Programme of proactive media activities

Page 25: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Activities with health professionals

Fully accredited training programme developed with NHS Education for Scotland

Programme delivered by secondary care clinicians and primary care representatives

Focus on referral pathways and protocols, risk factors, epidemiology, investigations for diagnosis, treatment, staging and the campaign. DVD was used to create scenarios and case studies in GP surgery, pharmacy highlighting how to approach patients and what action to take

17 Symposia on bowel cancer took place attended by 573 staff

£100,000 budget allocated to support delivery of out-patient clinics when the campaign was ‘live’

Regular newsletters both by email and hard copy

Updates and blogs on website

Page 26: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Poster

Page 27: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Poster

Page 28: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Leaflet – front and back page

Page 29: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Leaflet - contents

Page 30: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Leaflet - contents

Page 31: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Leaflet - contents

Page 32: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Competition Leaflet

Page 33: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Competition Leaflet

Page 34: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Photographic Exhibition

Page 35: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Photographic Exhibition

Page 36: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Photographic Exhibition

Page 37: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Budget

Research and evaluation £ 94,000

Production costs £ 86,350

Media costs £ 92,000

Agency fees £ 30,000

Primary/secondary care training £ 13,000

Support materials £ 50,000

Launch event £ 3,759

Supporting acute services £100,000

TOTAL £ 469,109

Page 38: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

EvaluationEvaluation

Page 39: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Topline Results

583 semi-structured interviews with target group in campaign area, 351 in control area

71% awareness of television campaign

10% awareness of materials

9% awareness of radio campaign

14% increase in awareness of blood in stools as symptom from baseline

62% reported advertising encouraged them to see their GP sooner

Page 40: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Topline Results

417 questionnaires completed by patients attending outpatient

appointments across 12 sites in the west of Scotland

65% were aware of the bowel campaign

60% presented because they were concerned about symptoms

62% said the campaign had encouraged them to go and see

their GP sooner

46% presented because of bleeding from bottom

42% presented because of a change in bowel habit

28% presented because of blood in their stools

Page 41: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Topline Results

Referral rates in Ayrshire increased by

10%

“ I was impressed by the uptake of people

who in the past would not have consulted”

GP – NHS Ayrshire and Arran

Page 42: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Topline Results

Hairmyres Fast Track Clinic

(November2004 – March 2005)

6 tumours

18 polyps

12 cases of Diverticular disease

All patients attended as a direct result of

seeing the campaign

Page 43: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Views after campaign - bowel

“Fortunately, WoSCAP was a lot more than increasing public awareness. In preparation for the campaign, many meetings were organised to increase knowledge, awareness and readiness of clinical services in the region. As well as being educational, these meetings strengthened local team working and communication. The project also provided financial support for local initiatives to streamline diagnostic services and reduce waiting times.

This may be the lasting legacy of the campaign and I now think my initial concerns were unfounded and WoSCAP has made a positive contribution to bowel cancer services in the West of Scotland”.

Bob Diament – Lead clinician for colorectal services in the West of Scotland and chair of the MCN.

Page 44: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Lessons learned

Need time to plan – clear vision

Need support of professionals and involve them at an early stage

Ensure interventions are research driven, not expert led

If you want to raise a high profile, use television as the key medium

Page 45: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Documents to access

Literature review to guide the development of the West of Scotland Cancer

Awareness Project (Centre for Social Marketing – now ISM)

Exploratory research to guide the development of the West of Scotland

Cancer Awareness Project (Centre for Social Marketing – now ISM)

West of Scotland Cancer Awareness Project – Baseline report (Centre for

Social Marketing – now ISM)

West of Scotland Cancer Awareness Project – Bowel cancer mass media

campaign – findings from the first follow up (Institute for Social Marketing)

An evaluation of the impact of the WoSCAP bowel campaign on secondary

care services

How internal communications saved lives – The story of the West of

Scotland Cancer Awareness Project bowel cancer campaign

Page 46: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Follow upFollow up

Page 47: West of Scotland Cancer Awareness Project Bowel Cancer ...nre/@… · My friend died of bowel cancer. She always thought she just had piles Apart from bleeding, you’d have to have

Follow up

The bowel project won 3 national awards

Association of Healthcare Communications Awards - 2005: Best

campaign for improving health

Scottish Marketing Society Awards – 2007: Internal Communications

Scottish Design Awards – 2005: Best Corporate Literature –

WoSCAP Final Report

National bowel screening resources in Scotland are based on

content of WoSCAP materials

The WoSCAP project is quoted locally, nationally and internationally

as one of the best examples of social marketing in the UK in recent

years