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Welcome

Welcome to the Fifth edition of the Mornington Peninsula

Volunteer Team newsletter.

The team has been plenty busy this last month getting the

Trivia Night organised. We are looking forward to the event

and trust that it will be successful. We do need more

attendees, so for more information on the trivia night and how

you can help support it please see page 3.

I am also pleased to see the interest in the support groups

growing. So much so that we now have enough participants

to begin new support groups in Rye and Frankston in the near

future. We also have a list of the tentative Mornington

meeting dates for 2015 on page 7.

Don’t forget we also have our own Facebook Group open to

anyone on the peninsula who has been diagnosed with

Crohn’s and/or Colitis, their families or carers. So to keep up to

date with news and events from the Mornington Peninsula

Team or even just to stop by and chat, please visit Crohn's &

Colitis Australia - Mornington Peninsula Volunteer Team.

www.facebook.com/groups/1536932353196480/

September 2014

Mornington Peninsula

Volunteer Team Newsletter Issue 05

About Crohn’s &

Colitis Australia™

(CCA)

For those of you that

aren’t familiar with the

organisation, CCA was

formed in 1985 and is the

national peak body

representing people with

Crohn’s disease and

ulcerative colitis in Australia.

Its mission is to support the

Crohn’s and colitis

community with a

focus on confidential

support programs,

including education,

advocacy, counselling,

increasing awareness and

generating and utilising

funds for research and

programs.

CCA is a registered

not-for-profit national

organisation funded

entirely through

membership fees,

donations and

fundraising activities.

CCA carries out its work

with help of generous

supporters and wonderful

volunteers.

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Word Search…

This appeared in a previous Crohn’s and Colitis Australia magazine

some time back. Can you find the words listed at the bottom of the

page?

t c m z a m e t n r k u

s q c z w h s e t q v l

i v j m a g a i o b h c

g x x k r n e d o r e e

o b l s e i s d c w f r

l x n v n s i t c r l a

o s a k e i d w v i f t

r u g n s a s y o z b i

e p a i s r n s v j v v

t p z z b d h h j b o e

n o x k h n o w d g n c

e r a g a u r z k r y o

o t u r m f c d p y a l

r g n o i s s i m e r i

t r u d f m r k r q r t

s o g z d y u c l z b i

a u k g x p v h u y r s

g p i n f l i x i m a b

awareness humira

Crohn's disease infliximab

diet remission

fundraising support group

gastroenterologist ulcerative colitis

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Fundraising

Fundraising is an important part of what the volunteer team do.

Some money we raise, either from our collection boxes or other

fundraising events, will be retained by the group allowing us to hold

events such as our trivia night again in the future.

However, we do have a long term goal for monies raised. This goal

is to be able to assist by sponsoring kids with Crohn’s and/or Colitis

that may be less fortunate than some, allowing them to attend the

camps that are run yearly by Crohn’s & Colitis Australia.

This great idea was put forward by one of our Support Group

members – Mr Shaun Gledhill, so we will be doing all we can to

make it happen.

There is plenty on our list of fundraising ideas…

Bunnings Sausage Sizzle

Christmas Family Day

Wine and Cheese Tasting

Fundraising Ball

All our efforts are being concentrated on our Trivia night,

which is happening on Saturday 18th October, at the

Studio@PCT, 91 Wilsons Rd, Mornington.

Tickets are priced at $25 per head and are available now.

To purchase your tickets, please call or email myself. All of the

details are on the flyer on page 4.

The trivia night will be interactive audio/visual quiz presented

by Awesome 80’s Trivia. http://awesome80strivia.com/

We will also have raffles and silent auctions during the night.

We are also in the process of

sourcing prizes for the

evening. So if you know of

anyone that cannot attend

but is willing to donate prizes

or cash to purchase prizes,

all donations will be

gratefully received.

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Last day for tickets is Friday 3rd October.

Drag your best 80’s gear out of the

closet and join in the fun! Bring some

friends, BYO drinks and nibbles and

enjoy a fun night.

*Please note: There is no glassware,

crockery or cutlery available at the

venue.

Mornington Peninsula Crohn’s & Colitis Volunteer Group brings you a fun-filled

When: Saturday 18th Oct 7pm – 11.30pm Where: Studio@PCT 91 Wilsons Road, Mornington

Cost: $25, BYO alcohol & snacks (some nibbles will be provided)

For tickets contact: Geoff: 0437 914 270 email: mornpen@crohnsandcolitis.com.au

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Collection Boxes

While concentrating on the Trivia night, we have not had

much opportunity to get out and find some new businesses to

take on our collection boxes. We will be out again soon

looking for new opportunities to increase the number of

collection boxes across the Peninsula.

In the meantime, our collection boxes remain in the local

businesses listed below. Please support them if you can.

Scribes Newsagency – Mornington

Trims Café – McCrae

Café Modi – Mornington

Active Boxing – Frankston

HBT Beauty Therapy - Mornington

Any businesses supporting us will be listed here in our

newsletter and also in the quarterly CCA magazine, Inside

Insight. If you would like to be involved in distributing our

collection boxes please do not hesitate to contact me.

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Fast Facts About IBD

Inflammatory Bowel Disease (IBD) is the collective term for

Crohn’s Disease and Ulcerative Colitis.

Over 75,000 Australians have IBD (more than 5 million

worldwide) and approximately 18 people are diagnosed in

Australia each day.

Crohn’s Disease is incurable and is associated with a 47%

increase in the mortality risk.

Ulcerative Colitis is only curable’ through radical surgery and

if untreated may also lead to death.

IBD is commonly diagnosed between the ages of 15 and 35

years, and can cause significant disability and lengthy absences

from school and workplace.

It is a chronic and largely hidden disease affecting 1 in 250

people aged 5 - 49 nationally.

Australia has one of the highest rates of prevalence and

incidence in the world and each year more and more young

people are being diagnosed

It is not contagious or caused by stress or diet, but a proper

diet can help relieve symptoms and replace lost nutrients.

Medications can reduce inflammation, but surgery is often

required to remove diseased portions of the intestine or treat

complications.

Research estimates that national total hospital costs for IBD

are approximately $100 million per annum

(PwC, ‘Improving inflammatory Bowel disease care across Australia’, March 2013)

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Support Group

Our fourth Support Group meeting was held on Tuesday 9th

September at 7.30pm.

Our Mornington group is now very much established. We

have a great group of people who attend regularly and do

not hesitate to make any new members to the group feel

welcome. We keep the meetings informal but there is always

good discussion, and always good laughs.

Our next meeting is on Tuesday 14th October. Hope to see

you all there.

The venue: St Peter’s Anglican Church

3 Queen St, Mornington.

(enter via Parish Office entrance - Octavia St)

Parking is available in Queen St and Albert St. Limited parking

is available in Octavia St.

The Mornington meetings are held on the second Tuesday of

the month.

Dates for 2014:

Tuesday 10th June

Tuesday 8th July

Tuesday 12th August

Tuesday 9th September

Tuesday 14th October

Tuesday 11th November

Tuesday 9th December

Recently, letters and emails were sent out asking people to

express their interest in joining Support Groups in Frankston

and Rye. There has been a good response from people

seeking to join a group in both the Rye and Frankston areas.

I am now looking at suitable venues for the new groups to

meet at and still hope to have both groups begin in

November.

CCA support group

meetings provide a

safe and supportive

environment where

individuals impacted

by IBD can express

themselves openly

and receive support

and understanding

from others with similar

experiences.

All members, including

the facilitator are

impacted by Crohn’s

or ulcerative colitis

(IBD) in some way.

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Tentative dates for 2015 Mornington Support Group meetings

Tuesday 13th January

Tuesday 10th February

Tuesday 10th March

Tuesday 14th April

Tuesday 12th May

Tuesday 9th June

Tuesday 14th July

Tuesday 11th August

Tuesday 8th September

Tuesday 13th October

Tuesday 10th November

Tuesday 8th December

We may need to look for an alternate venue for the

first couple of meetings next year. There will be some

serious renovation work carried out at St Peters that

does involve our meeting room. We will decide that

as the work progresses. We will only use the meeting

room providing it is 100% safe for us to do so while the

renovation work is in progress.

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Support Group Questions.

Q: Am I required to be a member of the Australian Crohn’s and

Colitis Association to attend a Support Group Meeting?

A: No, you do not have to be a member.

Q: I am a carer or family member of a person who has Crohn’s

disease or ulcerative colitis. Can I attend the meetings?

A: Yes, you are most welcome to attend.

Q: Does it cost anything to attend?

A: No, attendance is free. (Gold coin donations may be asked for

depending on venue)

Q: Do I have to attend every meeting?

A: No, you can attend as many or as few meetings as you wish.

Q: Do I need to live in Mornington to attend?

A: No. People who live outside the area are most welcome to

attend.

Support Groups are / are not…

Can’t Wait

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Again we have been focusing on other things this month. We

will be back out soon, working to increase this number of

Can’t Wait members covering the Mornington Peninsula.

Our aim is to form a network of members from

Seaford/Frankston through to Portsea. If you know of a

business that would be willing to support the Can’t Wait

Campaign, please contact the volunteer team.

There are no costs involved for the business, if anything they

will benefit as their business name will appear in our

newsletter, the quarterly Inside Insight magazine and of

course on the Can’t Wait website.

A full list of current members is available on the Can’t Wait

website. http://www.cantwait.net.au/

The ‘Can’t Wait’ card

Program is a campaign

to improve national

recognition of the

urgency of Crohn's

Disease and ulcerative

colitis, and when

presented with a ‘Can’t

Wait’ card, to allow the

bearer of the card to go

to the toilet URGENTLY.

The ‘Can’t Wait’ card is

issued to members of

CCA who have been

formally diagnosed with

Crohn's or colitis (IBD)

See the CCA website for

more details.

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Contact Details

If you have any questions regarding the Mornington Peninsula

Volunteer Team, Support Groups or Can’t Wait program….

Call : 0437 914 270 (Geoff O’Hare – Mornington Peninsula

Team Leader)

Email : mornpen@crohnsandcolitis.com.au

Facebook : Crohn's & Colitis Australia - Mornington Peninsula

Volunteer Team.

www.facebook.com/groups/1536932353196480/

Call : 1800 138 029 Crohn’s & Colitis Australia

Web : www.crohnsandcolitis.com.au

Recently Crohn’s & Colitis Australia moved to a new office in

Camberwell. The new address and contact details are:

Crohn’s & Colitis Australia Head Office

Level 1, Suite 4, 363 Camberwell Road

Camberwell, VIC. 3124

Postal Address:

CCA

PO Box 777

South Camberwell, VIC. 3124

Phone: 03 9815 1266

Fax: 03 9815 1299

Email: info@crohnsandcolitis.com.au