TRINNODD Survey Portugal February, 2009 Maria João Gonçalves, Maura Faro, Sónia Fontes FENACERCI

TRINNODD Survey

PortugalFebruary, 2009

Maria João Gonçalves, Maura Faro, Sónia Fontes

FENACERCI

Implementation

• The tool – Translated to Portuguese– Included a support document explaining

target group, delivery strategy and with Qol topics concepts and examples

– Pre-tested with one professional, family member and person with Dual Diagnosis (PDD)

– Modifications were incorporated, mainly related to language and explanations

Implementation

• Delivery strategy– The questionnaires where sent by e-mail to

the Associates– Support was requested for the fulfilment of the

questionnaires regarding DD sample– Support workers were advised to request

general data about the services to their coordinators

Implementation

• Collection of data– Among the 51

FENACERCI’s associate members

– In the total we received 128 questionnaires.

• 56 professionals• 31 families• 41 persons DD

Implementation

• Sample– Seven associates participated in this survey

• CERCIAZ (Oliveira de Azeméis)• CERCIZIMBRA (Sesimbra)• CERCISA (Corroios)• CECD (Mira Sintra)• CERCITOP (Sintra) • CERCIBEJA (Beja)• CERCIESPINHO (Espinho)

– Furthermore 5 associates are collecting questionnaires but those aren’t yet available for this report

Implementation

• Feedback– Difficulties in understanding some issues addressed

in the questionnaire – Support workers don’t have knowledge on what are

the theoretical grounds– Lack of existence of DD evidences/medical reports

Support Workers

n=56

Questionnaire for support workers

1) Gender

2) Age

Male Female Total

7 49 56

13% 88% 100%

Range Nº %

22-26 4 7%

27-31 7 13%

32-36 12 21%

37-41 8 14%

42-46 9 16%

47-51 6 11%

52-56 7 13%

57-60 2 4%

> 60 1 2%

Total 56 100%

Average: 40,39 years


3) Training Nº %

4 years of schoolariship 4 7%




High degree 25 45%

No answer 7 13%

56 100%


4) Current OccupationNº %

Psychologist 6 11%

Psychomotor Rehabilitation technician 4 7%

Monitor 11 20%

Assistant 20 36%

Social worker 3 5%

Director 2 4%

Psychopedagogue 2 4%

Occupational Therapist 3 5%

Physiotherapist 1 2%

Teacher 1 2%

Other 2 4%

No answer 1 2%

56 100%


5) How long have you being doing this job?

6) Groups of clients

Nº %

0-5 16 29%

6-10 16 29%

11-15 13 23%

16-20 8 14%

21-25 2 4%

26-30 0 0%

31-35 1 2%

Total 56 100%

Nº %

Intellectual Disability 53 95%

Intellectual Disability and Psychiatric Disorders 54 96%

Psychiatric Disorders 5 9%


8) Definition of work with DD Nº %

It is a job like any other 2 4%

It is an occupation implying great responsabilities 45 80%

It is a job of great value 32 57%


9) Topics for daily work

Physical and psychological being

Autonomy issues

Training in DD

Behavior modeling

Communication

Daily life activities

Enjoy the work

Occupational activities

Professional Development

Social Skills

Multidisciplinary work

Psychological Support

Quality of life


10) Theoretical grounds

Basic notions on DD

Psychological problems

Presentation of symptoms

Educational perspective

Multidisciplinarity

Evidence-based practice

Psychodynamic

Medication

Therapeutic methods

Life span approach

Quality of life

Ecological model

Other (specify)______________________

Yes 29 34 48 52 54 46 8 38 37 41 55 44 0

% 52% 61% 86% 93% 96% 82% 14% 68% 66% 73% 98% 79% 0%

No 10 6 3 2 0 3 30 3 4 1 0 3 0

% 18% 11% 5% 4% 0% 5% 54% 5% 7% 2% 0% 5% 0%

NA/NR 17 16 5 2 2 7 18 15 15 14 1 9 0

% 30% 29% 9% 4% 4% 13% 32% 27% 27% 25% 2% 16% 0%


11) Professionals Professionals, Services and persons Team Community

Assistant (helps the educator in activities of daily life, but has no educational function)

Moniteur/Instructor/Coach (helps and supervises the educator during the activity)

Educator/Teacher (manages the educational plan) Consultant Psychiatrist for adult for child and adolescent Psychologist Nurses General specialist manager Social Workers Consultant Doctors General Physician Specialist Therapist Occupational Speech and Language Physiotherapist Music, Art, Dance, etc Psychomotor Rehabilitation Technician Families of persons with DD Local Entrepreneurs City Hall professionals Other professional (specify):


12) Qol topics adopted by team

Clients

Physical being

Psychological being

Spiritual being

Physical belonging

Family connections

Social Inclusion

Practical Becoming

Leisure time

Personal Growth and Development

Advocacy/Self Representation Rights

Yes 55 55 20 50 50 43 43 55 55 41 35

% 98% 98% 36% 89% 89% 77% 77% 98% 98% 73% 63%

No 0 0 35 0 1 13 13 0 0 13 17

% 0% 0% 63% 0% 2% 23% 23% 0% 0% 23% 30%

No Answer 1 1 1 6 5 0 0 1 1 2 4

% 2% 2% 2% 11% 9% 0% 0% 2% 2% 4% 7%



Families

Physical being

Psychological being

Spiritual being

Physical belonging

Family connections

Social Inclusion

Practical Becoming

Leisure time



Yes 17 52 13 25 40 35 36 20 12 16 33

% 30% 93% 23% 45% 71% 63% 64% 36% 21% 29% 59%

No 36 0 36 21 6 14 15 29 37 30 14

% 64% 0% 64% 38% 11% 25% 27% 52% 66% 54% 25%

NA 3 4 7 10 10 7 5 7 7 10 9

% 5% 7% 13% 18% 18% 13% 9% 13% 13% 18% 16%


13) Qol topics adopted by community

Clients

Physical being

Psychological being

Spiritual being

Physical belonging

Family connections

Social Inclusion

Practical Becoming

Leisure time



Yes 31 32 23 38 32 32 25 48 25 25 30

% 55% 57% 41% 68% 57% 57% 45% 86% 45% 45% 54%

No 6 1 17 2 1 1 2 0 2 2 2

% 11% 2% 30% 4% 2% 2% 4% 0% 4% 4% 4%

No Answer 19 23 16 16 23 23 29 8 29 29 24

% 34% 41% 29% 29% 41% 41% 52% 14% 52% 52% 43%


13) Qol topics adopted by community

Families

Physical being

Psychological being

Spiritual being

Physical belonging

Family connections

Social Inclusion

Practical Becoming

Leisure time



Yes 13 12 17 19 8 28 21 31 6 4 24

% 23% 21% 30% 34% 14% 50% 38% 55% 11% 7% 43%

No 19 15 17 15 15 0 0 8 16 16 1

% 34% 27% 30% 27% 27% 0% 0% 14% 29% 29% 2%

No answer 24 29 22 22 33 28 35 17 34 36 31

% 43% 52% 39% 39% 59% 50% 63% 30% 61% 64% 55%


14) How much trainning

Basic notions on DD

Psychological problems


Educational perspective

Multidisciplinarity

Evidence-based practice

Psychodynamic

Medication

Therapeutic methods

Life span approach

Quality of life

Ecological model

not at all 25 21 26 20 22 31 32 34 25 26 21 32

% 45% 38% 46% 36% 39% 55% 57% 61% 45% 46% 38% 57%

a little 19 28 19 26 20 16 14 12 16 15 23 10

% 34% 50% 34% 46% 36% 29% 25% 21% 29% 27% 41% 18%

somewhat 4 4 5 4 7 5 2 2 4 8 4 6

% 7% 7% 9% 7% 13% 9% 4% 4% 7% 14% 7% 11%

quite a lot 0 2 1 1 0 0 0 0 3 1 1 0

% 0% 4% 2% 2% 0% 0% 0% 0% 5% 2% 2% 0%

No answer 8 1 5 5 7 4 8 8 8 6 7 8

% 14% 2% 9% 9% 13% 7% 14% 14% 14% 11% 13% 14%


15) Topics for training Basic notions on DD

Sex education

Quality of life

Psychological Problems

Differential Diagnosis

Multidisciplinary work

Stress management

Behavior Modeling

Life span approach


Therapeutic methods

Psychology

Guidelines for specific interventions


16) Emotional support received

17) Training to manage work stress

n %

Not at all 35 63%

A little 16 29%

Somewhat 1 2%

Quite a lot 0 0%

NA/NR 4 7%

n %

Not at all 42 75%

A little 12 21%

Somewhat 0 0%

Quite a lot 0 0%

NA/NR 2 4%

Families

n=31

Questionnaire for families

1) Gender

2) Age– Average age: 41.72

Male Female Total

12 17 29

41% 59% 100%



Physical being

Psychological being

Spiritual being

Physical belonging

Family connections

Social Inclusion

Practical Becoming

Leisure time



Yes 29 28 14 25 28 13 24 28 19 14 9

% 94% 90% 45% 81% 90% 42% 77% 90% 61% 45% 29%

No 2 0 6 0 1 12 3 3 6 6 9

% 6% 0% 19% 0% 3% 39% 10% 10% 19% 19% 29%

NA/NR 0 3 11 6 2 6 4 0 6 11 13

% 0% 10% 35% 19% 6% 19% 13% 0% 19% 35% 42%


3) Qol topics should been adopted by team

Physical being

Psychological being

Spiritual being

Physical belonging

Family connections

Social Inclusion

Practical Becoming

Leisure time



Yes 21 18 19 16 16 20 18 22 24 15 12

% 68% 58% 61% 52% 52% 65% 58% 71% 77% 48% 39%

No 10 11 7 11 11 6 10 8 6 7 12

% 32% 35% 23% 35% 35% 19% 32% 26% 19% 23% 39%

NA/NR 0 2 5 4 4 5 3 1 1 9 7

% 0% 6% 16% 13% 13% 16% 10% 3% 3% 29% 23%

Questionnaires for PDD

n=44

Questionnaire for PDD

1) Gender

2) Age– Average age: 30.53

Male Female Total

24 17 41

59% 41% 100%



Physical being

Psychological being

Spiritual being

Physical belonging

Family connections

Social Inclusion

Practical Becoming

Leisure time



Yes 20 18 18 17 18 18 19 18 19 16 5

% 49% 44% 44% 41% 44% 44% 46% 44% 46% 39% 12%

No 1 1 1 2 1 1 0 2 0 0 2

% 2% 2% 2% 5% 2% 2% 0% 5% 0% 0% 5%

No answer 20 22 22 22 22 22 22 21 22 25 34

% 49% 54% 54% 54% 54% 54% 54% 51% 54% 61% 83%


3) Qol topics should been adopted by team

Physical being

Psychological being

Spiritual being

Physical belonging

Family connections

Social Inclusion

Practical Becoming

Leisure time



Yes 10 7 6 6 6 7 10 16 9 8 4

% 24% 17% 15% 15% 15% 17% 24% 39% 22% 20% 10%

No 11 13 13 13 13 12 9 5 12 11 13

% 27% 32% 32% 32% 32% 29% 22% 12% 29% 27% 32%

No answer 20 21 22 22 22 22 22 20 20 22 24

% 49% 51% 54% 54% 54% 54% 54% 49% 49% 54% 59%

Documents

TRINNODD Survey Portugal February, 2009 Maria João Gonçalves, Maura Faro, Sónia Fontes FENACERCI