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University Hospitals of Morecambe Bay NHS Trust Women’s Health Directorate 1 The Management of Screening and Diagnostic Test Results during Pregnancy, Childbirth and the Puerperium During pregnancy there are a number of screening tests offered to women to enable the health professionals to detect any potential problems, and monitor their pregnancy to achieve a satisfactory outcome. These tests may include blood tests for the mother, Ultrasound Scans (USS) to exclude anomalies and monitor fetal well being, and screening tests for the baby before and after birth to exclude certain rare conditions. (see Appendix ‘NHS Screening Timeline’) This protocol is informed by National Guidance on screening for Cystic Fibrosis, Haemaglobinopathies and Blood Spot Screening. It covers any specimen taken from a patient for haematology, biochemistry, microbiology or histology to be sent to the laboratory. It includes results of Ultrasound Scans, Amniocentesis and Screening tests from the mother and baby, and diagnostic investigations in pregnancy and the early postnatal period. A ‘National Screening Leaflet’ is given to women at booking. It is important that these tests are performed at the appropriate times, and that the results of these tests are reported back to the appropriate health professional, and to the women. This Trust offers Consultant Care, Shared care and Midwife Led care, so it is important there is a system in place that ensures all results are performed by, and reported to the relevant person. AIM During a woman’s episode of care, continuity can be difficult to assure as care may be given in a variety of places and by different professionals who can be involved at any stage. This protocol aims to promote responsibility and accountability for results of investigations, as well as giving guidance to the process. It will aid communication between professionals providing care and the woman. It will identify a process that ensures that results of investigations are followed up and actioned by the appropriate health professional within an acceptable time- scale. CONSENT AND RECORD KEEPING The woman is reminded to present her ‘patient-held’ pregnancy records for all appointments with all health professionals to facilitate recording of essential data. At the booking interview the midwife must confirm that the woman has, read and understood the information regarding ‘Routine blood tests in pregnancy’ or the information in the patient-held records

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Page 1: The Management of Screening and Diagnostic Test Results ... · PDF fileThe Management of Screening and Diagnostic Test Results during Pregnancy, Childbirth and the Puerperium ... -

University Hospitals of Morecambe Bay NHS Trust

Women’s Health Directorate

1

The Management of Screening and Diagnostic Test Results

during Pregnancy, Childbirth and the Puerperium

During pregnancy there are a number of screening tests offered to women to enable the health

professionals to detect any potential problems, and monitor their pregnancy to achieve a

satisfactory outcome.

These tests may include blood tests for the mother, Ultrasound Scans (USS) to exclude

anomalies and monitor fetal well being, and screening tests for the baby before and after birth to

exclude certain rare conditions. (see Appendix ‘NHS Screening Timeline’)

This protocol is informed by National Guidance on screening for Cystic Fibrosis,

Haemaglobinopathies and Blood Spot Screening. It covers any specimen taken from a patient

for haematology, biochemistry, microbiology or histology to be sent to the laboratory.

It includes results of Ultrasound Scans, Amniocentesis and Screening tests from the mother and

baby, and diagnostic investigations in pregnancy and the early postnatal period. A ‘National

Screening Leaflet’ is given to women at booking.

It is important that these tests are performed at the appropriate times, and that the results of these

tests are reported back to the appropriate health professional, and to the women.

This Trust offers Consultant Care, Shared care and Midwife Led care, so it is important there is a

system in place that ensures all results are performed by, and reported to the relevant person.

AIM

During a woman’s episode of care, continuity can be difficult to assure as care may be given in a

variety of places and by different professionals who can be involved at any stage.

This protocol aims to promote responsibility and accountability for results of investigations, as

well as giving guidance to the process. It will aid communication between professionals

providing care and the woman. It will identify a process that ensures that results of investigations

are followed up and actioned by the appropriate health professional within an acceptable time-

scale.

CONSENT AND RECORD KEEPING

The woman is reminded to present her ‘patient-held’ pregnancy records for all appointments

with all health professionals to facilitate recording of essential data.

At the booking interview the midwife must confirm that the woman has, read and understood the

information regarding ‘Routine blood tests in pregnancy’ or the information in the patient-held

records

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University Hospitals of Morecambe Bay NHS Trust

Women’s Health Directorate

2

The Audit Form for viral studies must be completed by the midwife, which confirms which

blood tests have been agreed and taken.

A copy is forwarded to the HIV midwife once the results are obtained, and a copy is filed in the

notes.

PROCESS

The professional taking the routine blood tests must complete, date and sign the relevant section

in the patient-held record.

The professional at the next appointment is responsible for ensuring that the results have been

returned, entered into the appropriate section, dated and signed, and that the woman is informed.

Antenatal Care / Reporting Results

Full / Shared Care – reports are returned to the antenatal clinic (ANC) with a copy to GP

- abnormal results are dealt with by the ANC as

appropriate (See relevant Flow Charts)

Community Led Care – reports are returned to GP surgery with a copy to ANC. Depending on

test, GP or MW will action or ANC will liaise with Consultant as appropriate (see relevant flow

charts).

When completing pathology forms, if copy to GP required the name and surgery must be

entered on the form.

Triple Test Results

When a woman opts for this test a date is given following a ‘Dating USS’ to ensure the test is

taken at the most appropriate time. The woman will be informed of the results within 7-14 days.

Full / Shared care results are reported to ANC,

‘Low’ risk results are:

- reported to the woman and documented in a register in ANC ~ FGH

- reported to the woman and filed in the notes at WGH

- reported to the woman by letter at RLI

‘High’ risk results are telephoned directly to the senior midwife in ANC, who will inform the

woman via the telephone / community midwife. Amniocentesis is offered and arranged within

one week.

Community Care results are sent directly to GP Surgery.

Low risk results: - the woman will be informed by letter.

High risk results: - results received by ANC - the community midwife is notified and will

inform the woman directly, either by a home visit or by telephone. Amniocentesis is then

offered; the community midwife will inform the ANC of the result and the woman’s decision

regarding amniocentesis. This will be arranged within one week

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Women’s Health Directorate

3

Amniocentesis Results

Normal results:

FGH – results to ANC and the woman informed by telephone. Full report is filed in the health

records.

At WGH – results are sent by letter and / or telephoned directly to the woman

Abnormal results are faxed from Bolton directly to relevant consultant’s secretary: The

consultant is informed and confirms results by phone. The secretary / midwife contacts the

woman directly to arrange an appointment with the consultant – usually the same day / ASAP. If

unable to contact the woman the community midwife will be asked to make direct contact to

arrange the appointment.

Acute inpatient test results

Diagnostic tests results performed whilst an in-patient are returned to the maternity unit. It is the

responsibility of the obstetric / midwifery team to ensure these results are actioned and filed in

the notes. Results can also be obtained via the INDIGO system. If results need actioning after

discharge the GP is informed and / or the woman contacted directly.

The discharging midwife is responsible for ensuring all test results are completed prior to

transferring care to the community team. Any results pending prior to discharge should be

highlighted in the discharge summary.

Community Care (ante and postnatal )

The named midwife is responsible for ensuring incomplete inpatient test results are followed up.

The Blood Spot Screening is performed on the baby on day 5. Details of the test will be entered

into the patient-held record (red book) for Health Visitor information, and documented in

personal care plan

The Blood spot Screening test must be sent immediately by first class post to Willink, and must

arrive within 48 hours of the test being taken.

The mother will be informed that the Health Visitor and GP will receive the results within 6

weeks. Positive results will be sent to the Community Child Health Team for follow-up

arrangements.

AUDIT

Records will be audited on an annual basis to ensure compliance with this protocol.

Willink also perform their own Audit of Blood Spot Screening.

JULY : REVIEW DATE 2010 JAP/SK

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University Hospitals of Morecambe Bay NHS Trust

Women’s Health Directorate

4

Sreening Tests MATRIX

In pregnancy Results reported to

Gestation

Test /s

Consultant / Shared

Care

Community Care

Action

Booking

8 – 15 weeks

10 -14 weeks

Full Blood Count

ABO Group

Rhesus Status

Haemaglobinopathies

Antibody Screen

Rubella Antibodies

Syphilis

Hepatitis

HIV / HEP

Dating USS

Blood for early Downs

Copy to

ANC GP

ANC GP

ANC GP

ANC GP

ANC GP

ANC GP

ANC GP

ANC GP +

HIV MW

ANC GP +

HIV MW

Copy to GP

Copy filed in health

records

ANC

Copy to

GP / MW ANC

GP / MW ANC

GP / MW ANC

GP / MW ANC

GP / MW

GP / MW

GP / MW

GP / MW + HIV MW

GP / MW + HIV MW

ANC GP +

HIV MW

GP / MW

GP

Rh Neg –women informed personally and a Leaflet given - added to register in ANC –

offered prophylactic Anti-D

Rh Pos with antibodies – community / ANC Midwife will refer woman to consultant

Pos Results – woman referred to GUM Clinic / HIV Midwife

As above

As above

Women with positive results are referred by HIV Midwife to a specialist

Women informed by Letter

11 – 13 weeks

15 - 20 Weeks

(optional)

Nuchal Translucency

USS (if performed – only

offered to women with

high risk Downs/

Multiple Pregnancy)

Serum Screening for later

Downs

ANC

ANC

Low risk results to GP /

MW

High risk results to

ANC

Informed of results by telephone – GP Surgery by letter

Low risk women informed by letter / telephone

High risk women informed by personal contact or phone

Amniocentesis offered for within one week

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Women’s Health Directorate

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18 - 20 Weeks Anomaly USS

NAD

Abnormality detected

NAD

Abnormality detected

Copy to woman and for notes

Ultrasonographer contacts ANC directly – woman seen by midwife and Obstetrician

ASAP

Gestation

Test /s

Consultant Care

Community Care

Actions

16 - 24 Weeks

Amniocentesis

Normal results by letter

/ telephone to woman

and ANC

Abnormal results faxed

directly to consultant

/ANC– confirmed by

telephone

N/A

Within one week

Woman contacted by consultant’s secretary or Midwife– see consultant asap

28 Weeks - can be

taken up to 34 weeks

Antibody Screen + FBC

ANC

GP / MW

Actioned according to results ( see flow charts)p11

Considered at 28

weeks if BMI > 35

GTT

Results to FAU

Copy to GP

FGH

GTT performed in FAU – Results to FAU – woman informed. If abnormal result FAU

midwife arranges appointment with Diabetic Nurse and / or Mr Misra

WGH – women referred to FGH or RLI

Random Tests

Random blood sugar

GTT

Kleihaur

PIH screen

LFT’s

Hepatitis C

TORCH

Antiphospholipid

Lupus screening

Haemaglobinopathies

Virology for Chickenpox

Any other non-routine

test

USS – serial / random

ANC or Maternity unit

Documented in patient-

held notes

All these test results would be reported to ANC or Maternity unit / FAU and actioned

by the midwifery / medical team

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Women’s Health Directorate

6

Pre-Op LSCS – taken

up to 5 days pre-op

FBC + G+S

Bloods taken in FAU

Results to Mat Ward

Results to maternity ward – health records for pre-op LSCS are kept on ward.

Abnormal results referred to SPR / Consultant for action

Maternal and Neonatal Postnatal Tests Results coordinated and actioned By

Test

When taken

Actions and by whom

Maternal

Kleihaur

Within 48hrs of

delivery

Results to maternity unit + Anti-D ordered and given by midwives as appropriate. Results and actions documented

in health records and care plan

Full Blood Count

FBC / G+S / Clotting

screen

Day 3 if low Hb or C/S

Pre –op / PRN for

PPH

Results to maternity unit + actioned by midwives / ward clerk. If discharged GP / Comm MW informed for action

If taken in Community midwife will FU with Pathology.

Urgent results to maternity unit, telephone or INDIGO, received and actioned by midwifery and obstetric staff

INR / APPT

PRN

Results to unit – obstetric team informed. Haematology input if changing from heparin to warfarin. If woman at

home telephoned with result + instructions on warfarin dose.

FU GTT for gestational

diabetics

6 weeks postnatal

Appointment given to woman by discharging midwife – form completed – form and appointment entered into FAU

diary.

Taken in FAU by midwife – results sent to GP and Diabetologist for action. If woman fails to keep appointment

FAU midwife will initiate contact.

Neonate

Cord bloods for Rh status

/ FBC / SBR

At Delivery

Results to maternity unit and entered into Rhesus book. Midwives arrange and administer Maternal Anti-D if

required.

Serum Bilirubin +/or

Coombes if jaundiced /

Blood Glucose

PRN

When test performed on maternity unit results received there. Midwives will inform attending paediatrician for

action. If in community midwife will FU

Newborn Blood Spot

Day 5

Taken by community midwives on day 5. Results to Blackhall Unit Kendal. Forwarded to Child Health Services

and distributed to appropriate Health Visitor, who the relays result to parents.

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Women’s Health Directorate

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Swab screen –

PROM

Group B strep

Pyrexia etc

At delivery Responsibility of midwives to follow up results within 48 hrs – refer to paediatrician if treatment required and

inform mother. If transferred to community care ward midwife will inform community midwife of results and

required actions

Random investigations during antenatal and postnatal period

Gestation

Test

Consultant Care

Community Care

Action

Random

Ante and postnatal

MSSU

- taken as inpatient

- record on summary

sheet

- taken as outpatient

- taken in community

Results to maternity

unit

Result to ANC – copy

to GP

Results to maternity

unit – copy to GP

Results to GP

Ward midwife will inform obstetric team if treatment required, inform woman

and file report in notes

ANC midwife will inform GP and woman if treatment required

GP + community midwife will action if treatment required. Community

midwife will record in pt-held records at next visit

Antenatal / Random

HVS for –

Chlamydia

C+S

Group B Strep Inv (taken

@ 28 weeks if previous

history)

Results to maternity

unit or ANC

Copy to GP

Results to GP if taken

in community

Ward, ANC or community midwife will action if treatment required. Obstetric

team or GP will treat. Midwives will inform woman.

Results will be recorded in notes or pt-held records as appropriate

Positive Group B strep results must be highlighted in the notes for management

in labour

Positive Chlamydia Result – referred to GUM Clinic

Following a

Stillbirths / Fetal

Abnormality

Maternal and neonatal

bloods and swabs

TORCH screen etc

Results to Consultant

Health records kept by Consultant – all results to Consultant via maternity unit

and Secretary. FU appt after 6 weeks to give findings to parents

Postnatal when

previous positive

Serology

Syphilis

HIV

Hepatitis

Results to Maternity

Unit and HIV Midwife

Copy to GP

Results to GP if taken

in community

Results actioned by HIV Midwife/ Physician involved and protocol followed

Random I pregnancy

Kleihaur – if sensitising

episode suspected

Results to maternity

unit

Treatment arranged by midwives as required. Results and actions recorded in all

health records

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8

FULL BLOOD COUNT RESULTS

(IN PREGNANCY)

COMMUNITY CARE

Results to GP

Copy to ANC

FULL / SHARED CARE

Results to ANC

Copy to GP

NORMAL RESULTS

NOTES

Filed and documented in

health records

ABNORMAL RESULTS

Hb 9 – 10.5gms

Inform + Treat by GP

Hb < 9gms

Refer to Consultant for treatment and

further investigations as required

ANC to inform woman via

Community Midwife

Hb < 10.00gms after 36/40 - G+S in

labour

Taken at booking

Repeated at 28-34 weeks and as

required

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Women’s Health Directorate

9

ABO GROUP AND RUBELLA RESULTS

If Rubella non-immune

discharging midwife is

responsible for offering

/arranging postnatal period

vaccination

Must not be given within 3

months of Anti-D

Full / shared Care

Results to ANC

Filed + documented in

hospital notes

Copy to GP

Taken at Booking

Community Care

Results to GP

Filed / documented in

patient-held records

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Women’s Health Directorate

10

KLEIHAUR RESULTS AND POSTNATAL FULL BLOOD COUNT

Results reported

to maternity unit

for action by

midwives.

Document

results in notes

and care plan

Taken on day 3 if –

Low Hb in

pregnancy

Caesarean

Section

As required if –

PPH

Results returned to

maternity unit for action

Midwives refer to

obstetric team for

treatment

Community midwife

informed

Taken in pregnancy if sensitising

episode suspected in Rh Neg

women

Taken within

48hrs of delivery

for Rhesus

Negative

women

Results to maternity unit for

action. Treatment arranged

by midwives as required

Results documented in notes

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Women’s Health Directorate

11

RHESUS STATUS and ANTIBODY SCREEN RESULTS

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Taken at Booking

Repeated at 28 weeks

Rh Negative

Results to ANC + added to Register

Woman informed by community

midwife and information leaflet given

Results to GP

Rh Positive + no

antibodies

Results filed in

notes and

documented in

patient-held

records

Rh Positive –

with antibodies

Community or

ANC midwife will

refer woman to

Consultant

Antibody screen repeated @ 28

weeks prior to prophylactic Anti-

D (if accepted)

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University Hospitals of Morecambe Bay NHS Trust

Women’s Health Directorate

13

SYPHILIS / HEPATITIS / HIV RESULTS

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University Hospitals of Morecambe Bay NHS Trust

Women’s Health Directorate

14

Taken at Booking

Community Care

Results to GP

Negative results filed and recorded in

patient held records

Positive results to GP

Woman referred to

GUM / HIV midwife

for counselling and

treatment

Treatment coordinated

by GP+ midwife

Midwife to document

results in patient-held

records + inform ANC

Hospital care

Results to ANC

Negative results filed with

copy to GP

Positive results to ANC

Woman referred to ANC at next

appointment for discussion

Referred to GUM Clinic / HIV

Midwife for counselling

Treatment coordinated by

Consultant + ANC midwife

ANC midwife files results in

notes with copy to GP

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Women’s Health Directorate

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ULTRASOUND SCAN RESULTS

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Women’s Health Directorate

16

Routinely performed at:-

8 - 15 weeks – dating

USS

20 weeks – anomaly

USS

Serial / Random

Community Care

All USS

Normal result

Copy to woman

for patient-held

notes

Abnormal result

Referred directly to

ANC by Sonographer

Referred to Obstetrician

by Midwife in ANC

GP / MW informed

Consultant / Shared Care

All USS

Normal result

Copy filed in notes

Copy to woman for patient-

held records

Abnormal results

Referred back to ANC by

Sonographer

Seen by named Obstetric

Team

Copy of results to GP

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Women’s Health Directorate

17

MATERNAL SERUM SCREENING RESULTS

Early screening for Downs Blood

at 10-14 weeks

(date confirmed after USS when date

given to woman for test)

Later Screening for Downs Blood

at 15-20 weeks

Consultant / Shared Care and

Community Care

ANC liaises with Community

Midwife to give result or woman

informed directly by telephone

Amniocentesis arranged via ANC

within 1 week

LOW RISK

RESULTS

HIGH RISK

RESULTS

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Women’s Health Directorate

18

AMNIOCENTESIS RESULTS

Community Midwife

gives results to woman

and informs ANC

No Action – Results

filed in notes

Woman informed either

by letter or via

Community Midwife

No Action – Results filed

in notes

Community Care

Result to GP

Consultant / Shared Care

Result to ANC

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Performed between 16 and 24 weeks

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Results faxed to Obstetric

Consultant’s Secretary

Normal Karotype

Woman informed by

letter / telephone

within 2 weeks via

the consultant

secretary

Results filed in notes

Abnormal Karotype

Consultant informed

ANC informed

Consultant Secretary ANC Midwife will

contact woman and arrange an

appointment with the consultant asap to

discuss plan of care

If difficulty contacting woman the ANC

will contact woman’s community

midwife to make contact with the woman

ASAP

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21

RANDOM TEST RESULTS ( SEE MATRIX)

TAKEN AT ANY

TIME DURING

PREGNANCY

Community Care

Any tests taken by the GP or

Midwife the results will be

sent to GP surgery for

actioning

This may involve referral to

consultant

It is the responsibility of the

community midwife to file or

documented the results in

Consultant / Shared Care

Results of tests performed at the

request of the obstetric team will

return to the ANC or Maternity unit

or FAU

It is the responsibility of the

midwifery / obstetric team in either

area to ensure they are actioned and

filed in the notes and the woman

informed as required

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23

INR /APPT RESULTS

IN PREGNANCY

Woman usually an in-

patient and test taken as a

diagnostic test as part of

PIH screen, Haemorrhage or

anticoagulant therapy

Results returned to

maternity unit –

for referral by midwives to

obstetric team for action

may require input of

haematologist

POSTNATAL

May be in-patient but may

have been discharged

home

Results returned to maternity unit for

action –

results referred to obstetric

team

may require haematologist

input

if not in-pt woman should be

contacted at home with results

+ instructions on treatment if

required (eg when changing

from heparin to warfarin)

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GLUCOSE TOLERANCE TEST RESULTS

Results filed in notes when

actioned and results added

to investigation result sheet

Results should be filed in

notes after actioned and

warfarin book completed ad

appropriate

Copy to GP if woman in

community

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26

POSTNATAL

FU screening at 6 weeks

postnatal in women who

developed Gestational Diabetes

Test taken in FAU – woman

given a date for the test prior to

discharge home – entered into

FAU diary with a completed

pathology form

IN PREGNANCY

May be taken at any time after 28

weeks if Gestational Diabetes is

suspected

Women usually attend FAU for test

Results returned to FAU or

maternity unit if FAU closed

Midwife informs obstetric team of

results – if high informs ANC

midwife to arrange FU appt with

Obstetrician and DSN

Midwife informs woman of results

and any FU required eg. appt with

DSN / Joint Diabetic Clinic

Results directed to GP and

Diabetologist for

information and action

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Women’s Health Directorate

27

CORD BLOOD RESULTS ( Rh STATUS AND COOMBES)

Cord bloods taken at delivery from

Rh Negative women or women

with antibodies

Woman’s name entered into

Rhesus book on maternity ward

after delivery

Results phoned to maternity ward

by pathology

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Midwife on ward enters results in

Rhesus book and informs woman

of results

If baby Rh positive Anti-D

ordered and administered by

midwife

Positive Coombes tests are

reported to Paediatrician for

action

Results entered into notes, care

plan and baby notes

If woman has been discharged

the ward midwife informs

community midwife and

records results in woman’s

notes

Ward midwife orders anti-D

Community collects and

administers anti-D and records

results in personal care plan

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NEONATAL SERUM BILIRUBIN RESULTS

Taken for investigations of neonatal

jaundice Coombes +ve babies

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Taken as in-patient

on maternity ward

Taken at home by

community

midwife

The community midwife will obtain

results from the Indigo results system

If results elevated community midwife

will discuss with paediatrician

Community midwife will inform

mother and advise her of recommended

treatment from the paediatrician

Results returned to maternity ward for action

Midwife on ward will inform paediatric SHO of

results

Midwife or SHO will inform mother of results and

treatment as required

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31

NEWBORN BLOOD SPOT RESULTS

Taken from baby on day 5

Test performed by

community midwife

The bloods are sent to Willink Laboratory by the

community midwife within 48hrs of taking sample

Details should be entered in the Child Health

Records ( Red Book) and the personal care plan

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MSSU RESULTS / HVS RESULTS

The mother is informed that the

Health Visitor and GP will

receive the results within 6 weeks

Positive results will be sent to the

Community Child Health Team

for follow-up arrangements

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Taken in the

community

Result to ANC

Copy to GP

Results to GP

ANC will inform GP for

action if treatment required

and will inform woman

Results filed in notes

Taken as in-patient

Taken as out-patient

in ANC

Results to

maternity ward

Ward midwife informs

doctor if treatment

required and informs

woman

Midwife will file

results in notes and

document on summary

sheet

GP will action if

treatment required.

Surgery will inform

woman

Community midwife

will document in

patient-held records

at next visit

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POSITIVE GROUP B STREP RESULTS MUST BE HIGHLIGHTED IN THE APPROPRIATE SECTIONS OF THE PT-HELD AND

HOSPITAL NOTES FOR MANAGEMENT IN LABOUR ( YELLOW STICKER TO NOTES)

INVESTIGATIONS FOLLOWING A STILLBIRTH / FETAL ABNORMALITY

All Core and Optional Blood Tests /

swabs taken from mother and baby

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Results of tests given to

parents at pre arranged

postnatal appointment

Results sent to maternity ward

if still in-pt or to the secretary

of the named consultant who

will keep health records

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37

ULTRASOUND SCANNING PATHWAY

Document

History done

Ultrasound discussed

Scan leaflet given

Woman selected for appropriate

pathway of care

Community care

Community midwife and/or GP completes

ultrasound request “yellow” form → maternity

general office to ultrasound

Appointment made, sent to

woman by post

Dating scan @ 8-16 weeks

Normal

Report printed in

hand held notes

Verbal report to

parents

Yellow form by

sonographer to

ultrasound

department to

generate 20 week

scan appointment

Consultant care

Prior to ANC appointment

scan performed white form

complete

Dating scan

Dating abnormal

At scan appointment

transfer or continue

consultant care

Immediate consultant

Normal

Consultant booking

appointment.

Consultant signs form

for 20 week scan

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SERUM SCREENING FOR DOWNS SYNDROME AND NEURAL TUBE DEFECTS

History taken

Discuss screening test

Leaflet given

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Accept Screening Test Decline Screening Test

Screen Negative

A screen negative result

No Action is Recommended

A Screen negative result. Women informed by letter and a copy

filed in their notes

Screen Positive Fax from Birmingham to the ANC. Women informed by the ANC midwife or the CMW is asked to visit women at home.

Discuss the results with the family and offer appointment to discuss

future management. Contact name given. Increased risk of Downs Syndrome

Amniocentesis

offered,

Appointment

booked. Given

verbally to the

woman.

Raised AFP.

Verbal

invitation to the

Fetal Medicine

Clinic.

Action

Declined

Scan

Normal Scan shows

NTD

Accept Diagnostic

Test

Discuss the test results.

Verbal results by phone by FM Midwife.

Appointment to see

consultant.

Unaffected Pregnancy

Affected pregnancy Discuss options with the

consultant.

Termination of pregnancy Continue with the

pregnancy

Offer D/E or induced abortion

Consider need for fetocide

Women who … or are eligible for

a diagnostic test

Abnormal ultrasound scan

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40

NEWBORN BLOOD SPOT SCREENING DRAFT 1

Baby Born

No Complications To NNU

Leaflet given to parents

prior to day of testing

Home Post delivery Newborn blood spot test

taken on day 1

Repeated on day 5 or 5

days after blood

transfusion

Re-admitted to NNU or ward,

check if it has been taken Newborn Blood spot taken on

day 5 ideally. Not on Saturdays

Day 5-9 taken by Community

Midwife or Midwife on the

ward.

All screening cards to the central point.

Checked against birth register. Record all

samples sent to GOS

Send to GOS in pre-paid envelopes

List of all received by GOS sent to the L&D

If the sample is poor or borderline results Name of samples to be repeated to L&D.

Follow up by Community Midwife

Parents decide not

to take up offer of

newborn

screening.

Appointment to

be made to

discuss with

Paediatrician

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CF Newborn Screening Algorithm for a baby born at the

Royal Lancaster Infirmary (RLI) Westmorland General Hospital

(WGH)

Furness General Hospital (FGH)

In

(5 day limit)

If Dr Peckham is unavailable .i.e. on annual leave patient then to be referred to Royal

Manchester Children's Hospital for sweat test and diagnostic visit. Telephone number of

Regional CF screening Nurse:

Link Health Visitors – South Cumbria - Jane Scattergood telephone – 01229

827317

Lancaster and Morecambe – Julie Myers telephone 01524

405709

Dr Peckham’s Secretary telephone – 01524 583598

Date: October 2006

To be reviewed October 2007

Positive Screening Result

Information to be conveyed to Dr Peckham secretary or e-mail

[email protected]

*Local screening HV, Jane Scattergood and Julie Myers to visit home with leaflet and date and time to attend

children’s day care unit RLI the next day for sweat test am and appointment with Dr Peckham pm for diagnostic

visit and to meet with physio, dietician and Sister Fran Campion in next 48-hours

Follow up with Dr Peckham and meet regional team

If 2nd

IRT blood

spot needed

NB* sweat test can only be done Tuesday – Friday

Named nurses for doing sweat tests:

Fran Campion, Tracey Denny, Debra Dunk

Named clinician: Dr Clare Peckham

Named laboratory for processing: RLI Clinical

Chemistry – Consultant Dr Richard Neary

*HV visit to do

2nd

blood spot

test. If positive

result go to

algorithm as

above

Carrier result – link HV informs family – GP referral if clinical concerns

concerns

Refer to respiratory clinic Dr Peckham as new patient

patient in 2 to

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Document The management of Screening and Diagnostic Test Results During Pregnancy, Childbirth and the Puerperium

Purpose To give guidance to staff on the correct mechanism for reporting test results to ensure appropriate actions are taken

Location of document Maternity Risk manager

Version 2

Status Approved

Author Jeanette Parkinson, Sue Knowles and the Maternity Risk management Group

Approving Officer Maternity Risk Management Group

Approval Date June 2007

Commencement Date June 2007

Review Date June 2010