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SLOVAK MYELOMA SOCIETYPATIENTS CLUB
SITUATION AND ROLE OF PATIENT ORGANIZATION
MIROSLAV HRIANKASLOVAK REPUBLIC
SLOVAK MYELOMA SOCIETY
POSITION
SLOVAK MYELOMA SOCIETY
is a non-profit network organization of multiple myeloma patient groups
in Slovakia
SLOVAK MYELOMA SOCIETYPATIENT GROUPS
SLOVAK MYELOMA SOCIETYMYELOMA MEDICAL CENTERS
GOALS OF PATIENTS CLUB
The aim is to increase the quality of the patients’ life
To help the patients not to feel alone with their problems
To cooperate with family members and their relatives
SLOVAK MYELOMA SOCIETYANNUAL GENERAL MEETING – 2008
SLOVAK MYELOMA SOCIETYANNUAL GENERAL MEETING – 2008
SLOVAK MYELOMA SOCIETYANNUAL GENERAL MEETING – 2008
SLOVAK MYELOMA SOCIETYANNUAL GENERAL MEETING – 2008
SLOVAK MYELOMA SOCIETYANNUAL GENERAL MEETING – 2008
SLOVAK MYELOMA SOCIETYANNUAL GENERAL MEETING – 2008
SLOVAK MYELOMA SOCIETYLOCAL MEETING OF PATIENTS GROUP
SLOVAK MYELOMA SOCIETYLOCAL MEETING OF PATIENTS GROUP
SLOVAK MYELOMA SOCIETYLOCAL MEETING OF PATIENTS GROUP
SLOVAK MYELOMA SOCIETY PATIENTS CLUB
MULTIMEDIAL EDUCATION COURSE FOR MYELOMA
PATIENTS (CD-ROM)
TO EXPLAIN - SIMPLY, EASILY, IMAGINARY
BY VISUAL PRESENTATION
MAIN GOALS OF CD-ROM “MYELOMA EDUCATION
COURSE”
SLOVAK MYELOMA SOCIETY PATIENTS CLUB
MULTIPLE MYELOMA MULTIMEDIAL EDUCATION COURSE
MAIN ADVANTAGES
• up-to-date • effectivity• accessibility• financial frugality
MULTIPLE MYELOMA MULTIMEDIAL EDUCATION COURSE
MULTILINGUAL VIDEO ANIMATIONS
• English• German• Slovak• Czech• Spanish• Polish
REASON OF PATIENTS EDUCATION
”…none of the doctors have undergone chemotherapy or a transplant themselves
that is why a patient is a very useful source of advice for the doctor,
as the doctor is an irreplaceable consultant for the patient in the treatment
of multiple myeloma …”
PROJECT
HUMANIZATION OF AMBULANCE AND HOSPITAL
ENVIRONMENT FOR MYELOMA PATIENTS
SLOVAK MYELOMA SOCIETY
SLOVAK MYELOMA SOCIETYPROJECT OF HUMANIZATION
SLOVAK MYELOMA SOCIETYPROJECT OF HUMANIZATION
SLOVAK MYELOMA SOCIETYPROJECT OF HUMANIZATION
SLOVAK MYELOMA SOCIETYPROJECT OF HUMANIZATION
SLOVAK MYELOMA SOCIETYPROJECT OF HUMANIZATION
SLOVENSKÁ MYELÓMOVÁ SPOLOČNOSŤKLUB PACIENTOV
MY STORYMY STORY
In between the collection of stem cells and the transplant in October I climbed with a mountain
guide to the highest peak of High Tatras – Gerlach peak in Slovakia
When I stood on the top at 2,655 metres I suddenly realised that I would beat the peak
of my illness, namely - the transplantation
I was mentally and physically prepared for it and
in December I underwent my autologous transplantatiom
