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Risks of being on the Grid: the BioMedical challenge Yannick Legré CNRS/IN2P3 – EGEE Biomedical WG. GGF 12, Brussels September 21st 2004. www.eu-egee.org. EGEE is a project funded by the European Union under contract IST-2003-508833. the HealthGrid vision. HealthGRID. - PowerPoint PPT Presentation
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EGEE is a project funded by the European Union under contract IST-2003-508833
Risks of being on the Grid: the BioMedical challenge
Yannick Legré
CNRS/IN2P3 – EGEE Biomedical WG
GGF 12, Brussels September 21st 2004
www.eu-egee.org
GGF12, September 21st 2004 - 2
the HealthGrid vision
INDIVIDUALISED HEALTHCAREMOLECULAR MEDECINE
Databases
Association
Modelling
Computation
HealthGRID
Computational recommendation
Public Health
Patient
Tissue, organ
Cell
MoleculePatient
related data
Public Health
Patient
Tissue, organ
Cell
Molecule
S. NøragerY. PaindaveineEuropean CommissionDG-INFSO
In this context "Health" does not involve only clinical practice but covers the whole range of information from molecular level (genetic and proteomic information) over cells and tissues, to the individual and finally the population level (social healthcare).
GGF12, September 21st 2004 - 3
Health Grid – Security Needs
Confidentiality Integrity Availability
TraceabilityPhysical Security Access Control
Credit: Syed Naqvi
GGF12, September 21st 2004 - 4
Issues related to medical data
• Ubiquitous, Quick and Secure Transfer of Information• Medical Information is:
Multimedia, Large and Increasing in Size. Relevant on the Long-term. Medical Data is Critically Confidential. Legal Regulations at National Level is an added difficulty to the Integration of Large
Repositories of Personal Data. Nearly Impossible to:
• Store all Data Outside the Hospital Borders.• Have plain Access to whole Personal Data.
Difficult to:• Provide Access from the Internet.• Replicate Data (Even Temporally).
• Pervasive Access and Fault Tolerance Medical Healthcare is Performed All Over the Clock, 7 Days a Week. Fault Tolerance to All Other Critical Resources (Water, Light, Heating) is Considered. Difficult to:
• Guarantee an ‘Always on’ Application.• Guarantee a Quality of Service.
Credit: Ignacio Blanquer
GGF12, September 21st 2004 - 5
Risks
• No respect of data privacy policies GRID Nodes Should be Installed Within Medical Data Networks. Data Should be Stored Encrypted. Information that Flows Across the GRID Should be Filtered to Show Only the
Relevant and Authorized Data. Consider the Legal Issues of European and National Directives. Confidentiality, Integrity, Authorization and Authentication are Provided by the GRID.
• Lack of Robustness Fault Tolerant and Pervasive. High degree of Repeatability in the Results.
• Failure in protecting peoples’ privacy can have devastating consequences on business (e.g. public opinion, lawsuits)
• Health related information is very sensitive and prone to abuse Privacy impacts society as a whole (e.g. loan applications, insurance, scholarship, ...)
• Privacy violation is irreversible Confidential information can never be considered confidential again, once it was out
in the open
• Legal Violation Different regulation for different countries…
Credit: Ignacio Blanquer
GGF12, September 21st 2004 - 6
Ongoing work on biomedical requirements in Europe…
• Within the framework of EGEE, biomedical security requirements described in (http://egee-na4.ct.infn.it/requirements/)
• HealthGrid white paper publicly available on HealthGrid web site since June 15th, 2004 (http://www.healthgrid.org) Chapter 8 dedicated to Privacy, Security and Ethical issues Chapter 9 dedicated to Legal issues
GGF12, September 21st 2004 - 7
The HealthGrid initiative
• To provide a place of dialog and exchange between European and international projects Web site: www.healthgrid.org
• To produce collaborative documents HealthGrid White Paper
• To organize conferences and workshops on Health grids
Third European HealthGrid Conference
Location : Oxford (UK)
Dates: April 7th – 10th 2005
Information and registration (available soon): http://oxford2005.healthgrid.org