Research & Development in the HSC

Dr Janice Bailie

Assistant Director

HSC R&D Division, Public Health Agency

NHS R&D Forum - 9 June 2014

Belfast Trust

Unique Features

• Small size - Population 1.8m

• Relatively static population

• Recruitment and participation rates good

• Integrated Health & Social Care

• Smallest R&D Budget per capita in UK

Strategic Drivers

• Transforming Your Care - Transforming

Your Care: Review of Health and Social

Care in Northern Ireland (2011)

• Quality 2020 - A 10-year Strategy To

Protect And Improve Quality In

• Health And Social Care In Northern Ireland

• HSC R&D Strategy – Research for Health &

Wellbeing 2007-2012

Angela CaldwellSupport Manager

Lesley ArmourPA to Dr Bailie and

Prof Hannigan

Cara McClureAdmin

Assistant

Dr Janice BailieAssistant Director

HSC R&D

Professor Bernie Hannigan

Director of R&D for the HSC/Chief Scientific

Advisor

Dr Gail Johnston

Kathleen RoulstonStrand

Administrator

Programme Managers

Dr Nicola Armstrong

Dr Julie McCarroll

Dr Clive Wolsley

Admin Team

Support Team

Eimear CowanStrand

Administrator

Joanne O’NeillStrand

Administrator

Michael Cunningham

Admin Assistant

Dr Ruth Carroll

HSC R&D Division

Shauna McCullagh

Admin Assistant (temp)

Governance Infrastructure in NI

DHSSPSNI DOH

HSC R&D Applications

Gateway

SHSCT

Public Health Agency –

R&D Division

NIHR

SEHSCT NHSCT

WHSCT BHSCT

NICRN

NICTN

CSP, Scotland,

Wales

NICRF NICTU

HRA

HSC R&D Application Gateway

Role & Function

• Fully operational from 01/05/2013

• Responsible for the flow & co-ordination of multi-centre studies for Northern Ireland (NI)

• Multi-centre studies which are led from sites in England, Scotland or Wales will use the Gateway for their sites in NI.

• Multi-centre studies which are led from NI will use the Gateway for co-ordination of studies with sites in NI, England, Scotland or Wales

Local Portfolio Management System

• Single system for all NI infrastructure

• Aims to allow staff from NICTN, NICRN, Trust

ROs and Gateway to access the information

on all studies running in Northern Ireland

• Piloted in NICTN, NICRN & SEHSCT –

workflows designed

• Rolling out in Belfast, about to implement in

Gateway

Universities

Patients

and

Public

HSC Trusts

RESEARCH

PROGRAMMES

RESEARCH

SYSTEMS

RESEARCH

INFRASTRUCTURE

Universities

Patients

and

Public

HSC Trusts

Dissemination

Workshops and Conferences

Cochrane (fellowships and training)

Knowledge Transfer/Exchange

Project Funding

Commissioned Awards

Opportunity-Led Awards

Enabling Awards (EU pilot Scheme, Enabling

Awards NIHR, Conference Bursary Scheme)

HSC R&D Directors Fund

Data linkage

Administrative Data Research Centre,

in partnership with ESRC

NI Longitudinal Study, in partnership

with NI Statistics & Research Authority

DHSSPS/HSC Honest Broker Service

Capacity

Doctoral Fellowship Awards for HSC

GP and Research Training Scheme

Doctoral, Postdoctoral & Career Fellowships,

in partnership with NIHR

Doctoral Fellowship Learning sets

Networks

NI Clinical Research Network (NICRN) Coordinating Centre

NI Cancer Trials Network (NICTN), in partnership CRUK

NI Public Health Research Network (NIPHRN)

HSC Innovations

Research

Management

HSC Research Support Offices (x5)

Co-ordinated system for HSC

Permission

Local Portfolio Management

System

Support for Pharmacy, Finance,

IRMER in HSC

PPI training and support

GCP, RM&G training, in

partnership with NIHR

Research

Information

Health Research Analysis and

Classification, with UKCRC partners

Research Outputs: Research Fish

AcoRD Advice

ABPI liaison

Strategic Advisory Groups & Service

Framework Groups, in partnership

with DHSSPS, HSCB, PHA, etc.

Website & distribution lists

Partnerships

Cancer Consortium, in partnership with NIH, NCI

All Ireland Institute of Hospice and Palliative Care (Doctoral Fellowships)

US-Ireland R&D Partnership, in partnership with HRB, SFI, NIH

National Prevention Research Initiative, in partnership with MRC

InvestNI

Industry

Mental health Physical activity Chronic conditions Social determinants of health Maternal and infant health Children and young people Infectious disease Nutrition Tobacco

Children Dementia Diabetes Vision Stroke Renal Primary Care Cardiovascular Respiratory Critical Care Mental Health

Interest Groups

Physical activity in older adults Social complexity and pregnancy AAA Screening Arts in Health

Research Development

Groups

Clinical Leads Research Nurses Other Research Staff

Centres, Units and

Facilities All Ireland Methodology Hub in partnership with MRC

NI Biobank, in partnership with CRUK and the Belfast Friends of the

Cancer Centre

NI Clinical Trials Unit (CTU)

NI Clinical Research Facility in partnership with Wellcome Trust

Clinical Translational Research & Innovation Centre (C-TRIC) in

partnership with WHSCT and Derry CC.

NI Cancer Trials Centre, in partnership with CRUK and Friends of the

Cancer Centre

Centre of Excellence in Public Health, with UKCRC partners

Experimental Cancer Medicine Centre in partnership with CRUK

Centre for Stratified (Personalised) Medicine (University of Ulster, Invest NI) Translational Research

Groups

Cancer

Child Health & Wellbeing

Mental Health, Aging & Learning Disability

Diabetes, Endocrinology & Nutrition

Musculoskeletal & Rehabilitation

Infection & Immunity

Critical Care

Vision

Mental Health & Intellectual

Disability

Suicide

Dementia Care (Atlantic Philanthropies)

EU pilot Scheme

Enabling Awards NIHR

Conference Bursary Scheme

PPI (Patient Client Council)

RESEARCH

SYSTEMS Research

Management

Research

Information

Networks

Centres, Units

and Facilities

Translational

Research Groups

HSC Innovations

Capacity

Dissemination

Project Funding

Data linkage

Partnerships

RESEARCH

INFRASTRUCTURE

RESEARCH

PROGRAMMES

Universities

Patients

and

Public

HSC Trusts

RESEARCH

SYSTEMS Research

Management

Research

Information

Networks

Centres, Units

and Facilities

Translational

Research Groups

HSC Innovations

Capacity

Dissemination

Project Funding

Data linkage

Partnerships

RESEARCH

INFRASTRUCTURE

RESEARCH

PROGRAMMES

Universities

Patients

and Public

HSC Trusts

NI Clinical Research Network (NICRN) Coordinating

Centre

NI Cancer Trials Network (NICTN), in partnership CRUK

NI Public Health Research Network (NIPHRN)

All Ireland Methodology Hub in partnership with

MRC

NI Biobank, in partnership with CRUK and the Belfast

Friends of the Cancer Centre

NI Clinical Trials Unit (CTU)

NI Clinical Research Facility in partnership with

Wellcome Trust

Clinical Translational Research & Innovation Centre

(C-TRIC) in partnership with WHSCT and Derry CC.

NI Cancer Trials Centre, in partnership with CRUK

and Friends of the Cancer Centre

Centre of Excellence in Public Health, with UKCRC

partners

Experimental Cancer Medicine Centre in partnership

with CRUK

Centre for Stratified (Personalised) Medicine (University of Ulster, Invest NI)

Doctoral Fellowship Awards for HSC

GP and Research Training Scheme

Doctoral, Postdoctoral & Career

Fellowships, in partnership with NIHR

Doctoral Fellowship Learning sets

Workshops and Conferences

Cochrane (fellowships and training)

Knowledge Transfer/Exchange

Commissioned Awards

Opportunity-Led Awards

Enabling Awards (EU pilot Scheme, Enabling

Awards NIHR, Conference Bursary Scheme)

HSC R&D Directors Fund

Priorities

• To increase investment in research that delivers improvements in health and social care in Northern Ireland and beyond – Direct investment from HSC R&D Fund

– Increase in HSC R&D Fund

– Increased leverage through partnership/consortia

– Increased grant acquisition by NI researchers from external sources eg NETSCC

– Increased investment from private sector in health & social care research

Early wins

• Launch of HSC R&D Strategy • Clear implementation plan flowing from HSC R&D Strategy • Effective knowledge exchange between all key stakeholders

including all HSC, Universities, industry, service users & public • Building effective partnerships with other funders of health

and social care research • Targeted, collaborative proposals for both structural and

competitive EU funding and other funding sources • Better use of routinely collected datasets for research

through Honest Broker Service, ADRC • Build on relationships with commercial sector to demonstrate

successful delivery of research in Northern Ireland

It’s OK to Ask in NI In 2013-14 HSC R&D Division will : • Tell patients and the

public that ‘It’s OK to Ask about clinical research’

• Ensure that HSC professionals know how & where to signpost those who ask the question

• Listen to feedback so that we know what response was received by people who asked