Children’s Heart Surgery Centres1. Freeman’s Hospital1. Freeman’s Hospital

2. Leeds2. Leeds

3. Alder Hey Children's Hospital3. Alder Hey Children's Hospital

4. University Hospitals Of Leicester NHS Trust4. University Hospitals Of Leicester NHS Trust

5. Birmingham Children's Hospital5. Birmingham Children's Hospital

6. Great Ormond Street Hospital6. Great Ormond Street Hospital

7.Royal Brompton7.Royal Brompton

8.Guy's And St Thomas'8.Guy's And St Thomas'

9. Oxford Radcliffe Hospital9. Oxford Radcliffe Hospital

10. University Hospitals Bristol10. University Hospitals Bristol

11. Southampton University Hospital11. Southampton University Hospital

Most agree with changes

Changes

31%

42%

12%

5%6%

Need

27%

38%

17%

6%5%

5%

% Neither / norI don’t understand the changes

% Tend to agree% Strongly agree% Strongly disagree % Tend to disagree

Not stated

1% 3% 1%

29%

48%

10%

7%5%

Good for clinical outcomes

Neither/norVery Positive

Don’t know/Not stated

Negative

Positive

Very negative = 2%

23%

49%

9%

7%11%

Reasonable to travel

Neither/nor

Very reasonable

Fairly unreasonable

Fairly reasonable

Very unreasonable Don’t know/not stated

= 2%

Biggest problems

Overnight stay for parent

Overnight stay for families

Childcare

Cost of travel

Time off work

Top 5

67%

50%

35%

32%

29%

54%

29%

Accommodation - biggest single problem

No accommodation for parent overnight

No accommodation for families overnight

Priorities around surgeryMean

Survival and quality of life 9.7

Experienced team 9.5

Suitable accommodation 9.3

24 hour, 7 days a week surgical service 8.8

Facilities for mothers of newborn babies 8.3

Other specialists on hand 8.3

Environment suits child’s age 8.3

Surgical centre close to home 5.9

Priorities after surgery

Mean

Surgical centres and local units share information and communicate well

9.3

For older children, centres work jointly with adult cardiologists to ease transition to adult services

9.0

Follow up care close to child’s home 8.4

Healthcare professional talks to child’s school 7.4

Other important issues %

Good links between local services/ parents/children and centres

5

Support/counselling for family 3Better sharing/receiving of information 3Travel stress 3Contact number for nurse support 3Continuity of care 3Accommodation affordable and close 2Larger centres impersonal 2Good aftercare 2

18%Evelina14%G.O.S.H.

12%Leicester11%Brompton

7%Birmingham

Main Treatment Centre

7%Bristol5%Southampton5%Leeds5%Alder Hey

4%Other

5%Oxford4%Freeman

Most parents/carers satisfied with care

Treatment the child received at this centre

% Neither / norDon't know/not stated

% Fairly satisfied% Very satisfied% Fairly dissatisfied % Very dissatisfied

85%

12%

Way that the centre met the other needs of you and your family?

62%

30%

Base: All parents/carers (972)

How satisfied were you with the:

1% 1%1%3%

3% 1% 1%

Discussion Groups

What a good service looks likeAntenatal Screening

Maternity

Social care

Multi-disciplinaryspecialist

Affordable forparents

Surgery

Adult Services

ExperiencedSurgical team

Accommodation

24/7 care

Postnatal care

Education