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3
Agenda
• Introductions
• Personal Experience Outcomes Overview
• Your role in supporting Personal Experience Outcomes
• Moving Beyond a Good Paid Life
• Person Centered Thinking
• Community and Relationships
• Person First Language
• Valued Social Roles
• Self Evaluation
4
Learning Objectives
• The learner will recognize the three themes of Personal Experience Outcomes and how they relate to all people.
• The learner will be able to explain what Personal Experience Outcomes are to others.
• The learner will demonstrate the ability to apply Person Experience Outcomes to their own life and to the lives of the people they support.
• The learner will critique their own use of Personal Experience Outcomes and related concepts and identify ways to improve their ability to integrate into their work with people.
5
Personal Experience Outcomes
Choice
I decide where and with whom I live. The decisions reflect the
person’s lifestyle and preferences.
The homes meets the person’s needs.
The person feels safe and comfortable.
The person feels good in their home.
I make decisions regarding my supports and services. The person receives
services/supports to help in daily life.
The person receives services/supports given with respect to preferences and needs.
The person makes decisions about services/supports.
I decide how I spend my day. The person makes choices
about daily activities such as sleeping, eating, bathing and recreation.
The person decides when and how to do daily activities.
The person has the ability to choose routine or flexibility.
The person’s preferences are respected and honored.
6
Personal Experience Outcomes
Personal Experience I have relationships with family and friends that I care about. The person has family and
friends for whom she/he feels love, friendship or intimacy.
The person has friends or family involved in his/her life.
The person is receiving support from friends/family as she/he desires.
I do things that are important to me. The person does things each
day that are important to him/her (work, volunteer, hobbies, study, social time).
The person does things that are enjoyable and gives the person a sense of purpose.
I am involved in my community. The person is engaged in the
community in ways that she/he likes.
The person has a sense of belonging and connection.
The person believes that she/he is viewed by others as making a contribution.
The person has opportunities for socialization.
7
Personal Experience Outcomes
Personal Experience Continued My life is stable. The person can live within
her/his means. The person is not worried
about changes that could happen in the future.
The person feels adequately prepared for whatever changes happen in the future.
I am respected and treated fairly. The person is treated with
respect by the people who are in her/his life.
The person is treated fairly by the program that support her/him.
The person is treated fairly as a citizen.
The person believes she/he is worthy of respect and fair treatment.
I have privacy. The person has time and
space to be alone when she/he wants.
The person can talk privately with others when she/he wants.
The person controls how personal information is shared with others.
8
Personal Experience Outcomes
Health and Safety I have the best possible health. The person is comfortable
with her/his physical, mental, emotional health.
The person is getting the help that she/he wants for any health concerns.
The person has information she/he wants about her/his health concerns and options.
The person can make informed decisions about her/his health.
I feel safe. The person feels safe where
she/he lives, works and in the community.
The person is able to make her/his own decisions about what is safe for her/him.
Other people respect the person’s right to make her/his own decisions about safety and risk.
The person has help making decisions about safety, if she/he needs it.
I am free from abuse and neglect. The person is not being
abused or neglected, in person, property or finances.
The person does not feel threatened or mistreated.
The person has the help that is needed to deal with past abuse or neglect.
9
Moving Beyond a Good Paid Life
• Emphasis on services, programs, health and safety
Service Life
• Closest people are paid or family
• Few real connections
A Good Paid Life
• Active circle of support
• Focus on connecting, building relationships, and natural supports
Community Life
10
In your role, how can you use the concept of moving beyond a good
paid life to support Personal Experience Outcomes?
11
“Writing a plan without understanding what people aspire to leads to better paper, not better lives.” -Michael Smull
12
System Orientation Person OrientationPlan a lifetime of programs Craft a desirable lifestyleOptions are limited Options are maximizedFocus on slots/closures/beds Focus on outcomesFocus on labels and deficits Focus on strengths and
capacitiesOrganized to please funders, policies
Organized to support quality of life
Professional control Person-driven control and shared decision making
Protection from failure Risk is responsibly supportedLots of planning, little action Lots of action and assessment
14
Person Centered Thinking and Planning
Person Center
ed Planni
ng
Work on understanding the community
role & contribution of
people with disabilities.
Re-design of human service
culture, mission, & structure
15
In your role, how can you use the concept of person centered
thinking to support Personal Experience Outcomes?
17
Community and RelationshipsFriendship
having friends, relationships, including a “best friend”. Mostly these can be
described as “strong ties’’
AcquaintanceHaving a network of acquaintances
MembershipBeing a member of associations and
organizations
Keeping in touchWith trends and movements of interest;
subscribing to them; belonging to “social worlds”
Being part of a familyHaving an active connection with family
life
Having a partnerSomeone to whom a long-term commitment has been made
Themes which impact all relationships
TimeThe amount of time
people spend together and the
length of time they have spent
together in the past.
Intensity Some ties and
connections are invested with a lot of emotion. They mean a lot to us,
perhaps more than anything else. Others are less important, and some not very
important at all.
ReciprocityThe exchange of services between people. This may
range from simply following the rules of politeness, to
providing practical help, to sharing
major parts of our life and work.
IntimacyWe share
confidences with some people more than with others. Some of our ties and connections involve a lot of
trust.
18
In your role, how can you use relationships and community
connections to support Personal Experience Outcomes?
19
Person First LanguageSay this Instead of this
• People with disabilities. The handicapped or disabled.
• He has a cognitive disability/diagnosis. He is mentally retarded.
• She has autism (or a diagnosis of…). She’s autistic.
• He has Down Syndrome (or a diagnosis of…). He’s Down’s; a mongoloid.
• She has a learning disability (diagnosis). She’s learning disabled.
• He has a physical disability (diagnosis). He’s quadriplegic/crippled.
• She’s of short stature/she’s a little person. She’s a dwarf/midget.
• He has a mental health condition/diagnosis. He’s emotionally disturbed/mentally ill.
• She uses a wheelchair/mobility chair. She’s confined to/is wheelchair bound.
• She needs…or she uses… She has problems with…has special needs.
20
In your role, how can you use the concept of person first language (how
we talk about people) to support Personal Experience Outcomes?
22
In your role, how can you use the concept of social valued roles (how we
think about people) to support Personal Experience Outcomes?
23
Sam Berns and his philosophy for a happy life