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Patients, carers, professionals and the public working
together across the South of England
• What we have done and why • What people said • What next
Why work together?
The Tokenism Cycle
Invovlement under-valued
…
it is done badly…
and further devalued…
it makes little impact…
Adapted from Jenny Popey
Why do we work together?
A desire to make a difference and a belief
that it will
Our strategy and model of involvement
• Pilot and independent evaluation • Co-designed and delivered • Participants - equal lay and professional • Seldom heard groups • Across care, research and education • South of England defined geographies
• equal dialogue • skills to support leading together • innovative, co-produced solutions • sustainable partnerships • routine, creative use of experience
Programme Aims
Structure of
the Programme
• Joint project
Action
• Day 3 System Leadership
• Day 2 Relational Leadership
• Day 1 Personal Leadership
Structure of Programme
What people said to us
What people said to the evaluators
Majority useful and significant learning: • New skills and concepts • Revisited ideas & related to partnership working • Gained confidence • Challenged assumptions • importance of ‘bringing people along with you’
rather than ‘imposing your ideas and values on others’
• Related to people as people first and roles second • New networks, different kinds of connections
What we learnt and what next
• Values based recruitment – develop further
• Seldom heard groups – learning disabilities cohort in development
• Expectations and iterative design • Scalability – train the trainer • Embed in localities