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Patients, carers, professionals and the public working together across the South of England

Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

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Page 1: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

Patients, carers, professionals and the public working

together across the South of England

Page 2: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

• What we have done and why • What people said • What next

Page 3: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

Why work together?

Page 4: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together
Page 5: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

The Tokenism Cycle

Invovlement under-valued

it is done badly…

and further devalued…

it makes little impact…

Adapted from Jenny Popey

Page 6: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

Why do we work together?

A desire to make a difference and a belief

that it will

Page 7: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

Our strategy and model of involvement

Page 8: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together
Page 9: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together
Page 10: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together
Page 11: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

• Pilot and independent evaluation • Co-designed and delivered • Participants - equal lay and professional • Seldom heard groups • Across care, research and education • South of England defined geographies

Page 12: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

• equal dialogue • skills to support leading together • innovative, co-produced solutions • sustainable partnerships • routine, creative use of experience

Programme Aims

Page 13: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

Structure of

the Programme

• Joint project

Action

• Day 3 System Leadership

• Day 2 Relational Leadership

• Day 1 Personal Leadership

Structure of Programme

Page 14: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

What people said to us

Page 15: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together

What people said to the evaluators

Majority useful and significant learning: • New skills and concepts • Revisited ideas & related to partnership working • Gained confidence • Challenged assumptions • importance of ‘bringing people along with you’

rather than ‘imposing your ideas and values on others’

• Related to people as people first and roles second • New networks, different kinds of connections

Page 16: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together
Page 17: Patients, carers, professionals and the public working ...tvscn.nhs.uk/wp-content/uploads/2017/06/28-Sian-Rees.pdf · Patients, carers, professionals and the public working together
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What we learnt and what next

• Values based recruitment – develop further

• Seldom heard groups – learning disabilities cohort in development

• Expectations and iterative design • Scalability – train the trainer • Embed in localities