Patient Panel

Dr Henry Penn30/09/2013

Welcome

• Housekeeping

• Introductions

Why are we here?

• The early reasons– Patient ‘stakeholder’ involvement– Valid decisions on changes and improvements– Improve services– Testing ground for proposed changes

The later reasons

• Significant changes are afoot– Trust– PCT/CCG– NW London– Nationally

Frame of Reference for Patient Panel

• 1. Feedback on Arthritis Centre services• 2. Engagement with local musculoskeletal

charities and patient groups• 3. Discussion/update on NWLH service

developments• 4. Discussion/update on NW London service

developments with regards to rheumatology

What do we want from you?

• 1. Frank feedback on our service.• 2. Engagement with local

charities and other musculoskeletal user groups

• 3. Help understanding the impact of changes from a patient view

• 4. Assistance trying to influence decisions

You can expect from us

• To be listened to• To have changes explained• For us to try to use as little jargon as we can

manage!• To take your views into consideration• To leave whenever you like!

Rheumatology Specialist Activity

• 160 new/month• 1040 FU/month

• Specialist clinics– Early RA– Connective tissue

disease– Metabolic bone– Ank Spond– Hypermobility– Biologics

• Inpatient – daily input into emergency care

• Day unit– Biologics– Cytotoxics– Bisphosphonates

• Outpatient– MTX injection

Total activity

Inf lammatory65%

CTD17%

Metabolic6% OA

7%

MSK3%

Other2%

82% have inflammatory arthritis or CTD

80% of these are on DMARDS

Circa 4000 patients

Other things we do

• Training– Imperial undergraduates– Trainee doctors (3 registrars, 2 GPs, 4 juniors)– National lectures

• Research– Rheumatoid arthritis – 3 projects– Lupus – one trial– Ankylosing spondylitis

• Audit– Service improvements– National publications

Changes in Brent

• Brent CCG are taking bids to run all of rheumatology outpatients’ services creating the specification by a process called “competitive dialogue”

• Process currently on hold due to challenges• It is possible that the work may go to one or more

private firm or another hospital trust• It is unclear which doctors will run the service• It will also be predominantly community based• Our trust will bid for the work; so will Imperial and who

else?

What shall we do?

• Make sure patient voices are heard and influence any changes.

• There will be change – but let’s get engaged and make sure it is for the better.