Partnerships for Tomorrow - Almost Home Kids...2 Almost Home Kids 2012 Annual Report Liska + Associates 691008 11.07.12 Revision 2Caring for Our Children There is a growing need for

Almost Home Kids 2012 Annual Report Liska + Associates 691008 11.06.12 Revision 2

Partnerships for Tomorrow 2012 Annual Report


Our Mission at Almost Home Kids is to provide transitional care in a home-like setting to children with complicated health needs, training for their families and respite care.

Cover: Jesus, 15 months, and Jeffery, 15, with Lauren. Opposite: Skye, 9 months, hanging out in AHK Chicago (left). Christopher, 3, and Matthew, 4 , being read to by a volunteer (middle). Bryce, 15, and his sister during a respite visit at AHK Naperville (right).

AHK’s Florence shares a laugh with Karla, 2, and a friendly ghost in Naperville.

Almost Home Kids — Partnerships for Tomorrow

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Dear Friends, Fiscal year 2012 has been an exciting time for Almost Home Kids. With the completion of its new facility at 211 E. Grand Avenue in Chicago’s Streeterville neighborhood, we saw our vision for the future take shape. We believe that all children who are medically fragile and their families should have a comfortable, home-like environment where they can grow, learn and heal together. Because of the generosity of our donors and partners, AHK can now extend this opportunity to more families in the Chicago area and beyond.

Our expansion into new communities was made possible by strategic and vital partnerships with institutions, such as Lurie Children’s Hospital and the Ronald McDonald House Charities, and longtime friends, such as Gary Lee Partners and Liska + Associates. Likewise in Naperville, we celebrated our 13th anniversary of providing transitional and respite care in partnership with the individuals, corporations, groups and foundations that have helped to make our house a home for over a decade. Additionally, our partnerships with state and local officials have allowed us to impact legislation affecting children and families with special needs. We truly would not be where we are today without the collaboration and dedication of our friends, neighbors and representatives.

Won’t you be our partner in providing hope and compassion for children who are medically fragile and their families? Each donation of time, talent, items or dollars helps to make Almost Home Kids ‘Share the Care’ with the children and families we serve. We are so grateful for the partnerships that have enabled our growth, and sincerely hope that you will join us again in supporting these beautiful children and families. Sincerely,

Deborah A. Grisko, RN President & CEO

Doug Truax Chairman of the Board

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Caring for Our Children There is a growing need for facilities dedicated to the care of children who are medically fragile. These children are in a stable condition, but dependent on life-sustaining medications, treatments and equipment and have need for assistance with daily-living activities.

For each of the past two years, Almost Home Kids has been forced to turn away more than 50 children and families due to lack of space at the Naperville facility. With the addition of our new facility in Chicago which opened this September, we can now help twice as many families in need of transitional and respite care.

How We Do ItTransitional Care — A bridge from hospital to home

AHK provides a 120-day Transitional Care Program for children who are ready to be discharged from a hospital but for whom preparations at home need to be made. In a comforting environment, children receive 24-hour medical and nursing support from skilled pediatric nurses. AHK trains families on how to both care for their children who are medically fragile and how to prepare the home.

Respite Care

The Respite Care Program at AHK offers children a comfortable place to stay with access to medical

and nursing support while their parents/caregivers tend to personal or urgent family issues. The Respite Transportation Program provides roundtrip transportation for children from their home to an AHK facility.

Our model for providing transitional and short-term respite care can be replicated throughout the country. Where the need exists, the organiza-tion will help facilitate development of other Almost Home Kids locations.

Community Support

In addition to training and care, AHK provides community resources and activities that become a support system the family can depend on for years to come.

AHK Child Life Specialist Lauren with Skye, 9 months, in the Topfer Family Foundation Therapy Room.

Medically Fragile DefinedChildren who are medically fragile are in a stable condition, but dependent on life-sustaining medications, treatments and equipment and have a need for assistance with daily-living activities.

Eligibility Requirements■ Ages from Birth to 21■ Children who are Medically Fragile■ Children who are Technology Dependent

Services■ Medical Home Provider■ 24/7 care by Pediatric Advance Life

Support (PALS) and Ventilator Certified Registered Nurses

■ On-site Pediatric Medical Director■ Speech Therapy■ Occupational Therapy■ Physical Therapy■ Development Therapy■ Nutrition Consultation■ Weekly Care Conferences■ Discharge Coordination Meetings■ Individual Educational Coordination■ Fully Accessible Playground (Naperville)■ Beautifully Landscaped Grounds with

Wheelchair Accessible Paths (Naperville)■ On-site Respite■ Emergency Respite■ Respite Transportation Services■ Case Management ■ Parent Advocacy Assistance■ Case Coordination — Medical Team

Community of SupportFrom navigating the healthcare system to providing emotional support, Almost Home Kids introduces families to a continuum of care that is community based.

Opposite: Cory, 21, and AHK Nurse Nick in the garden at AHK Naperville.



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Medical Home Model

Hospital is ready to discharge the child, but parents and other caregivers need to continue learning their child’s care and home support needs to be established.

Child is diagnosed with complicated health care needs during acute phase at hospital.

Transitional Care offers short-term care for the child, care coordination and training for caregivers.

Respite Care offers a safety net in the continuum of care.

Trained caregiver takes the child back home.

Parent needs to take a short break.

Almost Home KidsHospital Home Environment

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Financial Review April 1, 2011 to March 31, 2012Statement of Operations 2012 2011

Program Services 2,162,795 1,625,096

Contributions & Other Support* 731,235 660,521

Change in Value of Beneficial Interests -33,420 110,765

Expense 2,647,040 1,987,739

Change in Net Assets 972,727 1,200,425

Balance Sheet

Assets

Current Assets 1,330,886 853,975

Property and Equipment 1,541,682 989,502

Beneficial Interests 1,616,834 1,480,254

Total Assets 4,489,402 3,323,731

Liabilities

Current Liabilities 17,182 95,579

Long-Term Liabilities 1,090,678 819,337

Net Assets 3,381,542 2,408,815

Total Liabilities 4,489,402 3,323,731

54% Foundations and Corporations

30% Individuals

14% In-kind Gifts

2% Civic and Religious Groups

Almost Home Kids Private Donations: $1,403,380

Days of Care

54%30%

14%

2%

2,4462,639

3,366

FY 2009

2,110

FY 2008 FY 2010 FY 2012FY 2011

2,728

*Does not include In-Kind Gifts nor Temporarily Restricted Funds.



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Our Fiscal ImpactEach day of care at Almost Home Kids costs $850 per child. Three out of four families we serve live at or below the federal poverty level, and most qualify for government assistance to help cover some of the costs of their care, including round-the-clock nursing, physician care, medication and medical equipment costs. Since insurance and government programs do not begin to cover all of the costs associated with our compre-hensive level of care, we rely on philanthropy to make up the difference. Your support allows us to provide transitional and respite care for children in need.

Did you know?■ Almost Home Kids saves taxpayers $3,265 a day per child, compared to what it costs the State of Illinois

for children receiving continuous clinical care at a hospital. That’s a 500% savings!

■ There are currently more than 6,000 children in Illinois who are medically fragile and dependant on technology.

■ Children with special healthcare needs represent an estimated 12 – 18% of children in Illinois.

■ Since opening their doors in 1999, Almost Home Kids has served more than 800 children.

■ Almost Home Kids expansion to Chicago is projected to provide an additional 3,500 days of care per year. This translates to an estimated $16 million in cost savings to Illinois taxpayers with the two locations.

Daily Savings of $3,265

$4,115$850

Hospital

AlmostHome Kids

Average Cost per Day

Clockwise from left: Caiden, 2, with Nurse Mary. Natalia, 16, with a volunteer. Volunteers help with landscaping at AHK Naperville.

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Giving In-Kind Donations from individuals and organizations in our community make up a critical piece of our annual budget. While we rely on fundraising to underwrite our operating costs, we also could not function without the generous donations of goods and services from individuals, groups and corporations. We extend our deepest gratitude to our in-kind donors for bringing much needed supplies or gifts for the children, providing labor and materials to upkeep our home, contributing to our silent auctions and donating time and talent to advance our mission. Below are a few examples of the difference made at Almost Home Kids by in-kind donors this year:

■ Gary Lee Partners (GLP) donated interior design and architectural services for our new AHK Chicago facility at 211 E. Grand Avenue. GLP collaborated with Herman Miller, Design Within Reach and Desks Inc. on furnishings and fixtures for our urban facility.

■ LexisNexis partnered with Home Depot employees to fund and implement patio improvements at our Naperville home.

■ Hill-Rom partnered with us to help bring in their state-of-the-art beds for our new facility.

■ The DreamHome at the Merchandise Mart donated their space to host Parties for a Purpose benefitting Almost Home Kids.

■ Hundreds of businesses and service providers in our community donated items for our silent auctions, raising over $35,000 this year!

Clockwise from top left: AHK’s new Chicago offices. Designers from Gary Lee Partners, Herman Miller, Design Within Reach and Desks Inc. are pictured in the Topfer Family Foundation Therapy Room at the Chicago facility. The improved patio at AHK Naperville. Jarrisa, 11, in a Hill-Rom bed.


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We Need Your Support

AHK relies on philanthropy to deliver critical care to children and their families. Support comes from individuals, civic groups, government, corporate and philanthropic partners. Together, we “share the care” by providing medical care and compassion for children with complicated medical needs.

While the funds have been raised to construct, furnish and equip the new facility in Chicago, operational costs for both locations and rent costs for Chicago are ever present.

Approximately $1.5 million is needed from the private sector to balance the annual budget.

To make a gift please visit www.AlmostHomeKids.org or call Raeann Olsen-Jackson at 630.786.1765.

“Almost Home Kids helped our family improve the quality of life, especially for our Scarlett. We hope that this Chicago facility offers other families the same opportunity.” Maria Gallegos, Scarlett’s Cousin and Caregiver

Clockwise from top left: Christopher, 3, with volunteer Kara. Kailyn, 14, with nurse Danielle. Quentin, 15, with tutor Michelle. Zain, 18 months, and Lauren. Jasper, 7, with his mom.

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Individual Donors

$25,000 and greaterMary and Bill NeustadtNicole and Doug Truax The Euan McLean Memorial Fund

$10,000 - $24,999 Maureen M. and Robert J. Bingle, Esq.Michael G. BusseCyrese and Peter EricksonJeni and Ryan MurphySusan J. Schwartz

$5,000 - $9,999Marcia Glenn and James HoagTheresa Gorman and Bob DankoDeborah A. and Steven E. GriskoErica and Dr. Michael HoffmanCarolyn and Joe JohnsonNancy M. and Edward A. KarasekDr. Mary Keen and Mr. Charles KirchoffJayme and Robert Muriel

$1,000 - $4,999Leslie and Joseph AntunovichSuzanne and David AugustynLisa and Jeffrey BlackJoyce and John CipollaJoan CloleryDona and Howard CohenJulie and John F. Cox JoAnn Crowe and James EnglishMichael CushingJoan and Joseph DotoliElizabeth and Martin DugganNicole and Blair FarwellDeb FiddelkeJayme and Peter FlowersAndrea and Michael FlynnMarlene FrankeHugh Franklin Carolyn and Sinon GalvinBernard GlossyDaniel L. GreiweSusan and John GrierJoanne and Travis HaldemanBrenda and Gary HolterJen and Daniel HorsleyJackie and Steve HynekBetty Johnson and Elizabeth Bork-JohnsonWinslow JonesJulie and Christian KemnitzBethany and Brad KeownCindy and James KlimaAlene KorbyKeith KummerLeann and Pat LazzariMarybeth LernihanLeslie and David MalayJudith and Ross McLeanCasey MeyerStacia Kopplin and Thomas MitchellTejal and Martin MullarkeyMatthew MullarkeyElizabeth and David NehfKathy OlechowskiRaeann Olsen-JacksonRussell J. Pass and Mindy KalchmanKarin and Joshua PrangleyLynn and Jeff RogersTherese and Mike RooneyKenneth M. RosenzweigCarmel and Daniel RothKathy and Tom Roth

Caroline and Paul SalinaBreen SchillerDarlene and John ScottAnne and Peter Shannon, Jr.Dora and John SilviaMegan and Andy TracySarah TromansLarry TruaxErin and Brad WeltlerMary Beth and William WhiteMarlene and William Wolz

$500 - $999Maureen and Kevin MoeggenborgCathleen and Jay BloedornStacy and Paul Bogdanski, Esq.Joseph BohneSteven Bragdon and Gerald L. SherwoodTara and Rich BulgerElaine and Kevin BurkeMarilyn and Dr. Thomas CahillBrad CarlsonTammy and Terry CarterJohn Cashman, Jr.Patty and Desmond CurranSusan and John CurranJacqueline and Paul DemesAbbie and Tom DeneenJodee and Ryan DunhamSusan and Terry DunnePatricia and Howard EmberSara and Jeff FarreroKathleen and Thomas FeifarRegina and Steve GalloKevin GarveyMarie and Tim GerkenLeigh and James GibsonDorothy Gieren and Richard SullivanHarvey N. GillisMark W. HenningTim Hickey and Priti AminJim E. HohmannAnn JacksonKaren H. and Dan KardatzkeJoan and William KelleyKathryn A. and Jeffrey J. LeeH. Neal Lenhoff and Matt J. KunkelMarion LuceroCatherine and James MaddenPatricia M. and John L. MannebachMargaret M. McGurkKevin MitchellLiz and Jim MitchellHolly S. and Daniel J. MorrisKathleen and Timothy MorrisonJohn P. MorrisroeDr. and Mrs. Michael E. MsallNanako MuraPaula and Christopher MurphyMargaret M. and Dr. Gregory P. NicholsonKristen and Dirk NowkaHeather O’SheaNancy A. PacherLynn PattersonGayle and Philip PerzekDavid PikusPeter RaphaelSusan and Daniel RealAllison and Andrew RemakHilary and Jonathan P. RemijasAmy and Anthony SantiMilorad SavicDianne and Christopher SchenkenbergJoAnn Sergi

Anale ShabaConnie and Frank SullivanJan and David SwansonKelley and Ryan SwitzJulia and Sven SykesLaura and William TarnowDonald TeegenLeah and Chris ThulinLaura Z. TopelAndrea Van GelderMichele and Creighton WarrenPhyllis and David WarrickRebecca and Andrew Wells

Corporations and Foundations Allstate Giving CampaignAlvin H. Baum Family FundAmerican ExpressAmicus FoundationAntunovich AssociatesAriel InvestmentsBank of America FoundationBayer Family FoundationBlue Cross Blue Shield of IllinoisBMO Harris BankC.A.S.E. Interant ServicesCardinal Pallet Co.CB Richard EllisCentral Dupage HospitalChicago Fire FoundationChicago SoccerChicago WolvesChristopher B. Burke EngineeringCitizens Charitable FoundationClune Construction CompanyCNHColeman FoundationCommunity Bank of Downers GroveComplete InstallationsCompusystemsCorporate ConceptsCovenant Trust CompanyCrowe Horwath LLPDelta Dental of IllinoisEdelmanEdgewood School PTAEdgewood Valley Country ClubEnterprise Holdings FoundationEvviva! Bar and EateryExecutive Construction Inc.Faloona AgencyFBG CorporationField Foundation of Illinois, Inc.First Midwest BankFoote, Meyers, Mielke & Flowers, LLCGary Lee PartnersGendell Family FoundationGlobal Experience Specialists, Inc.Goldberg Executive CoachingGrant Thornton, LLPGrosvenor Capital Management, L.P.Hall-Erickson, Inc.Haworth, Inc.Helen Brach FoundationHinsdale Bank & TrustHome DepotHoward Jesilow MFG. Jewelers, Inc.Hunter Therapyigive.comING Matching Gifts ProgramJ.C. LichtJessica Jones Charitable FundJMG Financial Group Ltd.

AcknowledgementsAlmost Home Kids is extremely grateful for the support of donors and volunteers. We thank the following individuals, foundations, corporations and civic groups for their contributions received from April 1, 2011 through March 31, 2012.


John Buck CompanyJP Morgan Chase FoundationKardos Family FoundationKatieBug TherapyKraft Foods Foundation - Matching Gifts ProgramLee’s Auto CareLettuce Entertain You Enterprises, Inc.LexisNexisManifesto IncorporatedMarie L. Skala Living TrustMcGraw Hill CompaniesMicrosoftMicrosoft Matching Gift ProgramMidwest Promotional GroupMuch ShelistMullarkey Associates, Inc.Naperville Noon Lions FoundationNavistar InternationalNeuco, Inc.Northern Trust CompanyOffice Revolution LLCParenti & Raffaelli, LTD.Partnership Concepts Realty Mgmt, Inc.Patrick Engineering Inc.Patrick James Ryan Trust Fund

Printz Law Firm, P.C.ProAssurance (ProNational) Ins. Co.Protection Alarm North, Inc.Prudential Foundation Matching GiftsResource Brokerage, LLCRPH Mechanical Inc.Sara Lee FoundationShanahan’sSkender ConstructionSteak N ShakeStorino, Ramello & DurkinTeknion CorporationTopfer Family FoundationTrading Technologies, Inc.Tri-State Firefighters UnionTurner ConstructionTwo K ProductionsTyco Fire & SecurityUnited Way of Metropolitan ChicagoVeritas Risk ServicesWeist FoundationWhite Light GroupWindy City Coin, Inc.WLIT The LiteWolf & Company LLP

Civic and Other Non-Profit Organizations Campbeltown Inner Wheel ClubCitizens for DurkinDowners Grove Area Newcomers ClubDuPage County Human ServicesElmhurst CollegeGood Shepherd Lutheran Church of NapervilleIllinois Women’s Soccer LeagueImpact 100 ChicagoLisle Woodridge Fire DistrictNaperville Mayor’s Golf OutingPremier Soccer League of Chicagoland, Inc.Presbyterian Women Of Knox Presbyterian ChurchSt. John of the Cross Catholic Women’s ClubSt. Margaret Mary ChurchTuesday Morning Ladies League

While we greatly appreciate gifts of any amount, due to space constraints we cannot list every donor who supported us this year. Those listed here and hundreds of other partners have made a tremendous impact on the lives of the children and families we serve.

Board of DirectorsExecutive Committee Officers

Douglas Truax1 Veritas Risk Services, President Chairman/Board President

Josh Prangley2 JP Morgan, Vice President, Investment Banking Chairman/Board President

Theresa Gorman2 VOA, Sr. Vice President, Business Development Vice Chairman

Christopher Schenkenberg2 Grant Thornton, Partner

Vice Chairman Nancy Karasek1 Wintrust Financial Corporation Secretary

Matthew Mullarkey1 Centerpoint Properties Sr. VP, Special Projects Treasurer

Board of Directors Members

Maureen Bingle1 Previously Home Box Office (HBO) Special Events Coordinator

Paul Bogdanski, Esq.1 Grant Thornton, Senior Manager

Amy Egelston2 Plante Moran, Senior Director

Deb Fiddelke2 Edelman, Sr. VP, Public Affairs

Marlene Franke, CPA2 ORBA, Business Development Manager

Josette Goldberg1 Goldberg Executive Coaching President

Maureen Grzeskiewicz, Esq.2 Law Office of Maureen Grzeskiewicz

Michael Hoffman, MD1 Elmhurst Clinic, Pediatrician

Carolyn Johnson1 Continental Automotive, Senior Staff Engineer

Robert Muriel, Esq.2 Muriel Law Offices

Ryan Murphy2 PricewaterhouseCoopers, Partner, Investigations and Forensics

Bill Neustadt1 Neuco, Inc., Proprietor & CEO

Ann Reardon2 Boeing Company, Manager Strategic Benefit Plan Initiatives

Bill Rogers2 Jones Lang LaSalle, International Director

Tom Roth1 Village Bank and Trust

Susan Schwartz, Esq.2 Corboy & Demetrio, Partner

Peter J. Smith, MD, MA2 The University of Chicago, Assistant Professor of Pediatrics

Sarah Tromans2 The Drake Hotel Director of Finance

Shawn Tyrrell1 Adventist Hospitals Vice President/Chief Nursing Officer Advisory BoardSteven Cochran The Steve Cochran Show

Peter H. Erickson Hall-Erickson Inc., President Amicus Foundation

Peter J. Flowers, Esq. Foote, Meyers, Mielke & Flowers, LLC, Partner Illinois Trial Lawyers Association, Past President

Leann Lazzari Gary Lee Partners, Associate Partner

H. Garry Gardner, MD DuPage Pediatrics, Ltd. Medical Advisory CommitteeMichael Hoffman, MD Elmhurst Clinic, Pediatrician Chair, Medical Advisory Committee

Dan Anderson Lisle-Woodridge Fire Department Chief EMS

Kim Carmignane, RN Cadence Health Respiratory Therapist

Patti DeJuilio, MS, RRT-NPS Central DuPage Hospital

Larry Desch, MD Advocate Hope Children’s Hospital Division Chair, Pediatric Dev.

Ann Karch, MD Pediatrician

Mary Keen, MD Marianjoy Rehabilitation Hospital Pediatric Medical Director

Dr. H. Kim, MD Edward Hospital Director of Pediatric Emergency Room

Jen McNulty, MD Edward Hospital

Preetha Prazad, MD Pediatrician

Christine Sajous, MD Loyola University Medical Center Pediatric Neonatologist

Kitty Shannon, RN, MSN, PNP-BC Ann & Robert H. Lurie Children’s Hospital

Jaideep Singh, MD Comer Children’s Hospital at University of Chicago Professor of Pediatrics

Peter J. Smith, M.D Comer Children’s Hospital at University of Chicago Associate Professor of Pediatrics

David M. Steinhorn, MD Ann & Robert H. Lurie Children’s Hospital Medical Director, Bridges Program

Amy Sun, MD Advocate Lutheran General Hospital Physical Medicine and Rehabilitation

Keith Veselik, MD Loyola University Medical Center Loyola Primary Care Center Assistant Professor of Pediatrics

Almost Home Kids Members:

Carrie Alden, APN, NP AHK Director of Nursing – Chicago

Layenie Anderson, RN AHK Director of Case Management

Deborah A. Grisko, RN AHK President and CEO

Margaret Hano, AHK Case Manager

Tracy Kozy, AHK Case Manager

Kathy Jo Stegman, MBA, RN, BSN AHK Director of Nursing

Cherie Stellman, RN AHK Case Manager

Almost Home Kids would like to acknowledge the dedicated individuals who serve on our board, advisory board and medical advisory board committees.Their work and involvement makes an immeasurable difference in the lives of our children.

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Naperville Location 7 S 721 Route 53 Naperville, Illinois 60540

t 630.271.9155

New Chicago Location 211 E. Grand Avenue, 6th FloorChicago, Illinois 60611

www.AlmostHomeKids.org

Connect with us on Facebook for daily Almost Home Kids updates! www.facebook.com/AlmostHomeKids

“Almost Home Kids fills a very specific need in Illinois and saves taxpayers millions of dollars in health care costs. We need to continue to find ways for Illinois government to continue working with Almost Home Kids so they can continue to offer the best care for children who are medically fragile, while helping them get home, so they can be with their families.” Jack Lavin, Governor Quinn’s Chief of Staff

Documents

Partnerships for Tomorrow - Almost Home Kids...2 Almost Home Kids 2012 Annual Report Liska + Associates 691008 11.07.12 Revision 2Caring for Our Children There is a growing need for