2019 Annual Report

We envision a day when every family, every community and every child with medical complexities has access to transitional care and the unsurpassed standards of AHK.

Lavar came to AHK Chicago for transitional care and was transferred to AHK at OSF HealthCare Children's Hospital of Illinois in Peoria. Lavar's family lives in Peoria, and being able to have Lavar closer to home has helped with their training as they wait for in-home nursing to be secured.

Lavar is pictured here having fun with a volunteer.

Almost Home Kids — 2019 Annual Report

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Dear Friends,

It’s been another banner year for Almost Home Kids!

n We provided transitional care for 100 children, respite care for 48 children and training for over 270 parents/caregivers

n All children at AHK for transitional care and respite care received physical and speech therapy

n AHK celebrated our 20-year anniversary

n AHK at OSF HealthCare Children’s Hospital of Illinois in Peoria celebrated a very successful 1-year anniversary

n Over 80 engaged community, civic and corporate groups collected and donated much needed in-kind items from our wish list

n We continue our efforts to bring our model of healthcare to multiple states and children's medical centers around the country

n Video chat at AHK allows families to remotely attend important meetings regarding their child’s health

n And much more!

We could not reach our goals, provide our critical programs to children with medical complexities or support their families without your help. Thank you for the important role you play in making Almost Home Kids a successful part of the continuum of care for children with complex healthcare needs.

Sincerely,

Debbie & Josh

Deborah A. Grisko, RN President & Executive Director

Josh Prangley Chairman, Board of Directors

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Jefferson with Mom and sister Brygethe

5,000+

recreational volunteer hours

130 learners enrolled in The Keith Veselik, M.D., Medical Education Program

80children and their families served each year per site on average

AHK at a Glance

Growth Population of children with medical complexity is growing. Nationally there are more than 3 million children with special healthcare needs accounting for 40% of Medicaid spending on children. Growing at 6% annually, they are the most rapidly growing sectors of the pediatric population. Illinois has over 14,000 children in need.

“At a time during which we were incredibly overwhelmed and fearful for the future for our daughter, Almost Home Kids and their staff were able to give us vital information, necessary skills, comfort in knowing our child was safe and, most importantly, a sense of hope.” Josie's mom

30+

civic and corporate groups came out for volunteer service days

14 days of respite care available to families

annually

12 bed maximum per site to

maintain home-like atmosphere

34% Caucasian

27% Hispanic

26% African

American

5%8%

Multi-racialAsian

Demographics

Almost Home Kids — 2019 Annual Report

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Lillian with volunteer Jane

1:3 RN to child care ratio, plus Certified Nursing

Assistant support

$5Mper year potential cost avoidance for children's medical centers utilizing our model of care

$10M annually saved for the Illinois Medicaid program by each AHK center

2,000

hours of physical therapy services annually

78days-average length of stay

AHK Medical Education Program since its inception in 2015400 nursing students, paramedics and child life specialists

500 learners in The Keith Veselik, M.D. Medical Education Program

New Coleman Foundation APRN Scholars Program launched

OutcomesWe are proud of the fact that less than 2% of children are readmitted to a hospital post 30 days of discharge from Almost Home Kids, due to a failed home health plan. This success is thanks to our unique home environment together with our community-based training.

Parents who completed the Respite Care Survey in FY 2019 reported 0% Not Satisfied, 2% Satisfied and 98% Very Satisfied.

“Thank you, Almost Home Kids staff, for all that you taught us. You will always hold a place in our hearts; we love you and all of the kids.” Tevin's mom

220% increase in monthly sustainer giving

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Total Philanthropic Giving: $1,608,620

35% Individuals

12% Corporations

29% Foundations

12% Civic

7%5%

Our Financial SummaryIn fiscal year 2019, which ran from September 1, 2018 to August 31, 2019, total AHK Program Expenses were $7.4 million, which is 2.4% over fiscal year 2018. The slight increase in expenses is primarily attributed to clinical program costs. This total includes investments toward expansion initiatives.

AHK received $3.5 million in fee-for-service revenue from the State of Illinois, third party insurance companies and cash payments. We continue to rely on philanthropy to help close the gap to support our model of care. Thanks to the generosity of our 980 donors, contributions to AHK for fiscal year 2019 totaled $1.6 million.

As the organization strives to provide critical healthcare services to children with medical complexities, we will continue to raise the necessary funds with the help of the philanthropic community.

In-Kind

Estates

Sustainer Donors

In 2018 Almost Home Kids launched a Sustainer Giving program, allowing our donors to make a prolonged impact with a monthly gift.

We started with 15 Sustainer Donors providing monthly support and have grown to 48 Sustainer Donors in 2019.

Learn more at almosthomekids.org/Sustainer

Jesus with volunteer Danielle

Diego with volunteer Kelly

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Almost Home Kids — 2019 Annual Report

Almost Home Kids announces $580,000 gift from the Harper Family Foundation to support early childhood developmentLargest gift in AHK’s 20 year history; brings the Harper Family Foundation’s total giving to nearly $750,000

The Harper Family Foundation has committed transformational support to fully fund the Physical & Speech Therapy Program and the Child Life Program at Almost Home Kids for a period of three years. AHK will enhance its supportive services to make a greater impact for families and children with medical complexities. AHK’s Physical & Speech Therapy Program brings therapies to children to remove any barriers to receiving services. Speech therapy is important as it helps maintain oral skills and develop communication abilities. Through the Child Life Program, AHK provides educational and emotional support for children, their families and their caregivers by fostering emotional, social and cognitive growth in the context of the child’s family, culture and development stage while building trusting relationships between the children and their families. In light of the Harper Family Foundation’s generous

Local Trustees Bregan and John Herrold and future twrustees Shannon and Matt McLinden are committed to family, to children’s healthcare and to wellness in general

82% directly to our community18% indirectly to achieve our mission

For each dollar contributed to Almost Home Kids:

Transitional Care 71%

Marketing & Fundraising 7%

Expansion 6%

5% Administration

2% Medical Education

1% Advocacy and Volunteer Management

support for these programs, they will be renamed—Harper Family Foundation Child Life Program and Harper Family Foundation Physical and Speech Therapy Program.

Supportive Services 8% Respite Care, Respite Transportation,

Child Life, and Physical & Speech Therapy

The bulk of our funds are used to provide a bridge from hospital to home for kids and a safety-net in the community for their families

Board of DirectorsJosh Prangley, Chair Greenhill & Co., LLC Managing Director

Theresa Danko, Vice Chair Cotter Consulting, VP of Marketing & Business Dev

Praveen Adhi McKinsey & Company, Partner

Michelle Baker Swoon, CEO

Patricia R. Bellock Retired State Representative

Julia Chappell Ethan Allen Business Dev Leader

Brenda Davis Lurie Children’s VP Budget & Financial Planning, Corporate Planning

Deborah A. Grisko, RN AHK, President & Executive Director

Yonhee Gordon JMG Financial Principal and COO

Bregan Herrold Cushman & Wakefield VP of Commercial Finance

Michael Hoffman, MD Pediatrician, Elmhurst Memorial Hospital

Jen Horsley BlueWater Technology Senior Sales Lead

Marty Koehler Assurance Principal & Board Member

Richard Mark, Retired

Matthew Mullarkey Centerpoint Properties Senior VP, Special Projects

Bill Neustadt Neuco, Inc., Former Chairman

Kyle Olson Baker & McKenzie, Associate

Christopher Schenkenberg Grant Thornton, Partner

Michelle Stephenson Lurie Children’s Chief Patient Care Services Officer/Chief Nurse Executive

Marita Sullivan JMG Financial CEO (Retired)

President’s CouncilMarty Koehler (Chair, Naperville) Assurance Principal & Board Member

Jen Horsley (Chair, Chicago) BlueWater Technology Senior Sales Lead

Dan Ault (Vice Chair, Chicago) Cabrera Capital Markets Principal

Michelle Baker Swoon, CEO

Paul Bogdanski Reed Smith, Partner

Julia Chappell Ethan Allen Business Dev Leader

Theresa Danko Cotter Consulting VP of Marketing & Business Dev

Carley Diedrich First Midwest Bank Vice President Commercial Banking Officer

Pat Donlin Bank of Montreal, Senior Manager, Corporate Dev

Angela Figg Instinet, Executive VP

Sheila Gallagher Community Volunteer

Stacie Gannon Phoenix Inc. VP of Finance

Josette Goldberg Goldberg Executive Coaching, President

Karen R. Goodman Crane, Simon, Clar & Dan Attorney

Yonhee Gordon JMG, Principal and COO Naperville Gala Co-Chair

Deborah A. Grisko, RN AHK, President and Executive Director

Kim Grove Epsilon Economics, Director of Finance & Accounting

Bregan Herrold Cushman & Wakefield VP of Commercial Finance

Michael Hoffman, MD Pediatrician, Elmhurst Memorial Hospital

Carolyn Johnson Continental Automotive Senior Staff Engineer

Ann Karch, MD Pediatrician

Bethany Keown Naperville Gala Co-Chair

Richard Mark, Retired

Angelina McNeill Relativity Inc Talent Acquisition Consultant

Matthew Mullarkey Centerpoint Properties Senior VP, Special Projects

Bill Neustadt Neuco, Inc., Chairman

Kyle Olsen Baker & McKenzie, Associate

Katie Ossman Water Street Healthcare Partners, VP

Josh Prangley Greenhill & Co., LLC Managing Director

Karin Prangley Brown Brothers Harriman Senior VP

Ryan Satterfield Rock River Capital Partners

Christopher Schenkenberg Grant Thornton, Partner

Susan Schwartz Corboy & Demetrio, Partner

Matt Szeghy Prescient Solutions Sales Manager

Marita Sullivan JMG Financial, Principal

Helen Taylor AAA, Sr. Administrative Assistant

Sarah Troman Hotel InterContinental Director of Finance

Steve Tziforos Northern Trust Senior Portfolio Manager

Kathy Wennerstrum Naperville Gala Co-Chair

Medical Advisory Committee (MAC)Mike Hoffman, M.D. MAC Chair Pediatrician, Elmhurst Memorial Hospital

Shabana Azeem, R.T. Respiratory Care Manager, Director of Clinical Services - LifeTech

Ponda Barnes, PhD AHK, Director, Sponsored Programs

Chris Bender, M.D. Pediatrician, DuPage Pediatrics

Anita Berry MSN, CNP, APN, PMHS AHK, Manager, APRN Scholars program

Cynthia Booth, RN DSCC Representative

Amy Cutshall, MSN, RN, FNP-C AHK, Director of Nursing

Brian Dacy President of LifeTech

Marte Deppermann, M.D. AHK at OSF HealthCare Children’s Hospital of Illinois Medical Director Team

Larry Desch, M.D. Developmental Pediatrics, Advocate Children's Hospital - Oak Lawn

Kelsey Forsberg, MSN, RN, CPN AHK, Clinical Educator

Joel Frader, M.D. Lurie Children’s Pediatric Palliative & End of Life Care

Eric Gantwerker, M.D. MS, MMSc Loyola Medicine Pediatric ENT Specialist

Layenie Grace, BA, RN, CCM AHK, Director of Case Management

Denise Goodman, M.D. Lurie Children’s Critical Care

Robert S. Greenberg, M.D. Lurie Children’s Chief Administrative Officer, Department of Pediatrics

Deborah A. Grisko, RN AHK President & Executive Director

Natalia Henner, M.D. Neonatology, Lurie Children’s

Ann Karch, M.D Pediatrician

Poonam Kaza, M.D. AHK at OSF HealthCare Children’s Hospital of Illinois Medical Director Team

Hyung Kim, M.D. Pediatric Emergency Medicine, Edward Hospital

Jalayne Lapke, M.D. AHK at OSF HealthCare Children’s Hospital of Illinois Medical Director Team

Camille-Kaye Libunao, RN AHK Chicago, Manager of Patient Care Operations

Heather McLauchlan, M.D. AHK at OSF HealthCare Children’s Hospital of Illinois Medical Director Team

Shannon McLinden, RN University of Chicago

Elise Mefford, APRN AHK at OSF HealthCare Children’s Hospital of Illinois Nurse Practitioner

Lisa Pierce, APRN (interim) AHK at OSF HealthCare Children’s Hospital of Illinois Nurse Practitioner

Abby Riley, APRN AHK Chicago, Nurse Practitioner

Christine Sajous, M.D. Loyola University Hospital Neonatology

Jennifer Shinnick AHK at OSF HealthCare Children’s Hospital of Illinois, Director

Lindsay Skibley, MD Lurie Children’s Attending Physician, Hospital-Based Medicine

Peter Smith, M.D. AHK Chicago, Medical Director, Behavioral Pediatrics, University of Chicago

Helene Stacy, CPNP, APRN, RN, MSN, MA AHK Naperville, Nurse Practitioner

Megan Taylor, RN AHK at OSF HealthCare Children’s Hospital of Illinois Patient Care Manager

Crystal Topcik, BSN, RN, CPN AHK Naperville, Manager of Patient Care Operations

Luis Torero, M.D. Pediatric Pulmonologist

Keith Veselik, M.D. Pediatric Internist, Loyola Physicians Partners

James Weaver EMS Coordinator, Lisle-Woodridge Fire Department

Laura Westley, BSN, MSM, RN Lurie Children’s Sr. Director Interfacility Transport, Emergency Services, and Patient Access

Our mission is to provide a bridge from hospital to home for children with medical complexities by: educating and empowering families with the training, skills and confidence needed to care for their child at home; coordinating all the community-based medical and social services the child and family will need; providing respite care when needed in a home-like setting.

Naperville Location 7 South 721 Route 53 Naperville, Illinois 60540630.271.9155

Chicago Location 211 E. Grand Avenue, 6th FloorChicago, Illinois 60611312.229.0170

AlmostHomeKids.org

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