6370 LBJ Freeway Suite 170

Dallas, TX 75240(972) 620-7600 www.daps.us

OCTOBER 2019

INSIDEkeep moving symposium photos 3

peak performers 4get to know: erika arvizu 4

memorials, honors, donations 5group schedule 6-7

social security benefits 8

upcoming events 9upcoming meetings 10

Complimentary lunch

Sign up to attend at:

bit.ly/2019VizientRSVP*This year's Community Day is in lieu of the regular Dallas General Membership Meeting.

Tuesday, October 22, 2019*11:30 a.m. - 2:30 p.m.

OCTOBER MEETING Communities Foundation of Texas' 11th Annual North Texas Giving Day (NTGD) was again a huge success! DAPS is always excited about taking part in this event that has broadened the culture of giving in North Texas. It shouldn’t be surprising what Texans can do when they set their minds to it. This year, in an “18-hour giving

extravaganza," over $50 million was raised to help local nonprofits. In this year’s NTGD, DAPS members, families, and friends gave over $15,000. That is cause for DAPS to celebrate! It really is amazing all that DAPS is doing and the difference that we are making in the lives of so many. We couldn’t do it without YOU.

KEEP MOVING! SymposiumI hope you were among the 280 people that joined us on September 21 for DAPS' Third Annual KEEP MOVING! Symposium. What a success! The event brought to mind the movie, Field of Dreams. If you saw that movie, you may recall Shoeless Joe Jackson saying, “If you build it, he will come.” Not long ago, an annual symposium was just a dream. Well, we’ve “built it,” and people are coming. People came to this year’s symposium from as far away as Granbury (about 75 miles). It is always thrilling to see good numbers in attendance. More importantly, the symposium is helping us to fulfill our mission—DAPS is dedicated to impacting and improving the lives of those affected by Parkinson’s disease. Our new venue was wonderful. The feedback about the presenters, presentations, and breakout sessions was great. The sponsors and the increased number of exhibitors gave those in attendance a chance to learn firsthand about services and resources that are available in the Dallas area. We are already planning and looking ahead to next year’s symposium—are you?

Please check out page 3 to see pictures from this year's event!

Location:University Park

United Methodist ChurchActivity Center

4024 Caruth Blvd (at Preston) Dallas, TX 75225

We Asked and You Gave

community day

TOPICS:

Exercise (Badminton & Balloons) Non-Contact Boxing

Music Therapy with Carolyn D. Jeopardy Competition (PD Basics)

(More information on Page 2)

Dedicated to impacting and improving the lives of those affected by

Parkinson’s disease

Executive DirectorMike Miles

Board of DirectorsChad Swank, Ph.D., President

Jo Klein, Vice President Barbara Glass, Secretary

Greg Wood, Treasurer Jim Struble, Advisory Council Liaison

Advisory CouncilSarah Atwood Charlene Noe Ben Casey Sandi Pautler Carlie Dorshaw-Moe Joyce Susman Pat Goukler Barbara Taylor Shirley Hand

Medical Advisory BoardShilpa Chitnis, M.D., Ph.D. Richard B. Dewey, Jr., M.D.

Thomas D. Franklin, Jr., Ph.D. Richard L. Fulbright, Ph.D. Dwight C. German, Ph.D. Aashoo Mentreddi, M.D.

Padraig O’Suilleabhain, M.D. Nirav Pavasia, M.D.

Alexander Peralta, M.D. R. Malcolm Stewart, M.D.

Gary L. Tunell, M.D.

NewsletterJill Dominguez, Managing Editor Pam Michel, Production Editor

DAPS StaffCarrie Marquis, Administrative Assistant

Leisha Phipps, Program Director

The DAPS newsletter is published monthly as an information guide only, and does not

serve as legal or medical advice.

Martha BonillaJared CaplanChris ClausenPatty CookMartha FiddesBentley FosterHarold Kellogg

Mary Ellen MaloneChick MartinFred RansdellGreg RectorMarilyn StewartBob Vlach

Community Day is a cornerstone event between DAPS and Vizient. DAPS is honored to be chosen as one of the nonprofit charities to host Vizient Community Day. DAPS attendees will join volunteers from Vizient for Parkinson's awareness. Attendees will be paired up with a Vizient employee. That team will spend the day together as partners going through all the exhibits. Our objective is to get to know each other, learn about Parkinson's, and experience the classes that DAPS offers. Boxed lunches will be served.

PAGE 2 • DAPS • OCTOBER 2019

THANK YOU TO OUR GENEROUS SPONSORS AND EXHIBITORS!

Acorda Therapeutics

Assisting Hands Home Care

Belmont Village Senior Living

Brookdale Preston Senior Living

Caring With Grace

Christian Care Outpatient Therapy

CNC Home Care

First Class Caregivers

Friends Place Adult Day Services

GE Healthcare

Haiman Hogue, PLLC

HarborChase of Plano

Home Health Companions

PAM – Post Acute Medical

Rock Steady Boxing Dallas & Southlake

Senior Helpers Greater Dallas

Silverado Southlake Community

The Preston of the Park Cities

Tribe Wellness

PAGE 3 • DAPS • OCTOBER 2019

2019 KEEP MOVING! Symposium

PAGE 4 • DAPS • OCTOBER 2019

In late 2018, Tribe Wellness developed PEAK Performers (PP). The need came out of analysis of the group programs at Tribe Wellness. Tribe Wellness

was determined to find a way to get people with PD to walk and work on their walking mechanics with greater consistency. The importance of specific training as a key principle of neuroplasticity, along with the difficulty PD patients have walking, led to the birth of PEAK Performers. Founder of Tribe Wellness and PEAK Performers, Mike Braitsch notes, “We ‘climb new heights’ for Parkinson's by training through a combination of structured solo practice along with regular group hikes.”

The goals of PEAK Performers are:

1. raise awareness about PD2. create specific long-term goals for PP 3. raise money for Parkinson's-related

organizations4. show people that a diagnosis is not a death

sentence5. practice and demonstrate the value of exercise

In just one year, PEAK Performers has completed two hikes. In the fall of 2018, PP climbed the highest peak in Texas (Guadalupe Peak) as a fundraiser for DAPS. The second was held in conjunction with the Davis Phinney Foundation's Victory Summit Austin event, which involved a hike around Ladybird Lake in downtown Austin just before the conference. Proceeds from the Austin hike were donated to keep the Every Victory Counts manual in print as it is an excellent resource for people with PD.

To read the complete story on PEAK Performers’ hike in Austin, follow this link: https://www.davisphinneyfoundation.org/blog/the-holy-grail-of-living-well-with-parkinsons/

If you would like to donate to the current PEAK performers campaign, please do so here: https://daps.us/peak-performers-2019

Get to Know:Erika ArvizuDAPS Instructor

Erika has worked as a DAPS instructor at the Plano location for almost 20 years.Her interest in the medical field was peaked when her grandmother was diagnosed with Parkinson’s disease, leaving her family at a loss as to how they could help.

As an Occupational Therapist for 25 years, Erika has specialized in neurology and orthopedics. Her philosophy, “movement is medicine,” is evident through her focus on flexibility, stretching, coordination, balance and strength. While leading and instructing exercise classes, Erika aims to educate attendees on the importance of specific exercises and how they can help with everyday scenarios. Erika’s relationship with the DAPS group members has grown through both laughter and tears, leaving her inspired by those that she helps.

When she’s not instructing a DAPS class, Erika can be found working as an Occupational Therapist at Methodist Richardson Medical Center or cheering on her two kids,with her husband of 20 years.

PEAK Performers

T hank you Erikafor allyou do!

PAGE 5 • DAPS • OCTOBER 2019

Memorials • Honors • DonationsAugust 2019

In memory of Betty BohnenblustFrom: Linda Harvey

In memory of Kevin MilesFrom: Mike & Donna Miles

In memory of Marilyn HaileyFrom: Jim & Woo Woo Struble

In memory of Trevor GrimmFrom: Tignor M. Thompson

In memory of Anthony RoseFrom: Phil & Cheryl Tonge

In memory of Anthony Rose and In honor of BubbieFrom: Tim & Paula Miller Val & Bob Reed

In memory of Richard HiterFrom: Gerald & Eileen Voight

In honor of Ron EldersFrom: Anonymous

In Honor of Pam & Matt MichelFrom: Ramona Huffman

Donation to DAPSFrom: Stephen Aronson Cora Banks Gregory Buhrow Jill Dominguez Walter Hackney

Kathleen Hartless Mrs. Laurie Jackson Mrs. Margaret Madden Mrs. Jean Neil Lea Rosenthal-Bond Yolanda Russell Patricia Schindler Mr. Guy Senter Jim Stinson Susan Hipp Doyle Traylor Rita Turner Dennis Verbeek Mr. Steve Villarreal Randy Visser Steve Wintory Amazon Smile Foundation Belmont Village Senior Living BostonScientific Brookdale senior Living Caring with Grace, LLC CC Young Senior Living Christian Care Outpatient Therapy Compassionate Cultivation DAPS @ Hunters Glen (Plano) DAPS @ Preston Hollow (Dallas) DAPS @ Trinity (Duncanville) Facebook Home Health Companions Haiman Hogue Medtronic Pepsico Employee Giving Program Post Acute Medical LLC Rock Steady Boxing - Dallas & Southlake Sunovion Pharmaceuticals The Kroger Company Thrivent Choice Tom Thumb Good Neighbor Program Vizient

Due to space limitations this month,our list of GEMs is only available online.

Please go to https://daps.us/gems to see the list of preciousGEMs who are Giving Every Month to DAPS.

PAGE 6 • DAPS • OCTOBER 2019

DALLAS

Preston Hollow UMC6315 Walnut Hill Ln, Dallas (214-363-4393)Group Exercise:Tue/Thu...10:30–11:30 amSpeech Group:Tuesday...11:30 am–12:30 pm*†South Paws Boxing:Mon/Wed...1:30–2:30 pm* Call 214-702-6559 or TribeWellnessLLC@gmail.com for info

Finley Ewing Cardiovascular & Fitness Center, Studio 35721 Phoenix Dr, Dallas (214-345-4625)Dance for Movement Disorders:Tue/Thu…2:00–3:15 pm

Edgemere8523 Thackery St, Dallas (214-265-9100)Move & Stretch:2nd & 4th Tuesday...2:00–3:00 pm

Belmont Village Turtle Creek3535 N. Hall Street, Dallas (214-559-7015)Move.Laugh.Connect.Friday…1:15–2:15 pm

Semones Family YMCA (Town North) 4332 Northaven Rd, Dallas, Rm MP2 (214-357-8431)Move.Laugh.Connect.Tue/Thu…1:00–2:00 pm

Lake Pointe Church at White Rock9150 Garland Rd, Dallas (214-324-1425)Group Exercise: Wednesday…9:30–10:30 amSpeech Group:Wednesday...10:30–11:15 amPartners-in-Care Group:Wednesday...10:15–11:15 am

HarborChase of the Park Cities5917 Sherry Lane, Dallas (469-904-1394)Move.Laugh.Connect.Wednesday…10:15–11:15 am

NORTHEAST‡St. Gabriel the Archangel Church110 St. Gabriel Way, McKinney (214-548-4357)Group Exercise:Tue/Fri...10:15–11:15 am‡In the Community Room.

Title Boxing Club of Allen:503 W McDermott Dr #100, Allen (214-644-2640)†Boxing for PD:Tue/Thu...10:30–11:30 amSat…10:15–11:15 amInfo: 214-644-2640

Hunters Glen Baptist Church4001 Custer Rd, Plano (972-867-1610)Group Exercise:Mon/Thu...9:45–10:45 amSpeech Group:Thursday...11:00–11:45 amPartners-in-Care Group:Monday...9:45–10:45 am

Arapaho United Methodist Church1400 W Arapaho Rd, Richardson (972-231-1005)Group Exercise:Tuesday...10:00–11:00 amFriday...9:45–10:45 am

Tribe Wellness Gym100 N Cottonwood Dr #108, Richardson (214-702-6559)†South Paws Boxing:Monday...9:30–10:30 amMon/Thurs...6:30–7:30 pmTues/Fri…1:30–2:30 pm†Tai Chi:Mon/Fri…10:45–11:45 am Tues…3:00–4:00 pm Wed…9:00–10:00 am

All groups and classes are free of charge to participants unless noted with an asterisk. To order the activity book ($25 each) for the Move.Laugh.Connect. classes, call 972-620-7600.

Dates/times subject to change. See daps.us/groups or call 972-620-7600 for more information.†DAPS members receive discount.

Dallas Area Parkinsonism Society exercise • speech • support groups

6370 LBJ Fwy Ste 170Dallas, TX 75240-6400

972-620-7600 • daps@daps.us

New!

PAGE 7 • DAPS • OCTOBER 2019

EAST

South Garland Baptist Church1330 E Centerville Rd, Garland (972-271-5428)Group Exercise:Mon/Thu...10:30–11:30 amSpeech Group: Mon/Thu… 9:30–10:15 amPartners-in-Care Group:Thursday...10:30–11:30 am

Mesquite Rehabilitation Institute1023 North Belt Line Rd, Mesquite (972-216-2400)Group Exercise:Tuesday...10:00–11:00 amSpeech Group: Tuesday...9:30–10:00 am

SOUTHWEST

Trinity United Methodist Church1302 S Clark Rd, Duncanville (972-296-2155)Group Exercise:Monday...2:00–3:00 pmNo class last Monday of the monthThursday...2:00–3:00 pmSpeech Group:Monday...1:00–1:45 pmPartners-in-Care Group: 2nd Monday...1:00–2:00 pm

Cyclone Indoor Cycling1724 Broad St, Suite 100, MansfieldWWAP Spin ClassTue/Thu…10:30–11:15 am†Cyclone membership required Small class sizes. Please call in advance to RSVP: 817-769-2723 www.cycloneindoorcycling.com

NORTHWEST

Landing at Watermere Frisco4300 Cotton Gin Rd, Frisco (972-798-7000)Move.Laugh.Connect.Tuesday...10:00–11:00 amThursday…1:00–2:00 pm

Lakeview at Josey Ranch2105 N Josey Ln, Carrollton (972-466-4433)Move.Laugh.Connect.Monday...12:30–1:30 pm

Grace Lutheran Church1200 E Hebron Pkwy, Carrollton (972-492-4474)Group Exercise:Wednesday...10:00–11:00 amSpeech Group:Wednesday…11:00 am–12:00 pm

MacArthur Hills Sr. Living1295 Kinwest Pkwy, Las Colinas (469-251-4349)Group Exercise:Tue/Fri...10:00–11:00 am

MONTHLY SUPPORT GROUPS

University Park United Methodist Church4024 Caruth Blvd, Dallas (214-368-1435)2nd Monday…1:00–3:00 pm

St. Gabriel the Archangel Church110 St. Gabriel Way, McKinney (214-548-4357)3rd Tuesday…10:00–11:00 am

Trinity United Methodist Church1302 S Clark Rd, Duncanville (972-296-2155)Last Monday...6:00–8:00 pm

Home Instead Senior Care New!580 S Denton Tap Rd Suite 280, Coppell (972-600-2309)1st Tuesday...11:00 am and 5:30 pm

Dallas Area Parkinsonism Society exercise • speech • support groups

6370 LBJ Fwy Ste 170Dallas, TX 75240-6400

972-620-7600 • daps@daps.us

NEW CLASS

COMING SOON!

HarborChase of Plano will be adding a Move.Laugh.Connect. class. Stay tuned for schedule information.

PAGE 8 • DAPS • OCTOBER 2019

There are millions of people that live with Parkinson’s disease but cannot work because of the symptoms of Parkinson’s. If you have been diagnosed with Parkinson’s disease and you cannot work, you may qualify for Social Security disability benefits. Because Parkinson’s is a progressive disease that isn’t reversible, people who have Parkinson’s can file a claim for disability benefits. The only requirement that you must meet in order to file a claim for benefits is that you expect to be unable to work for at least a year.

Medically Qualifying for Disability Benefits Due to Parkinson’s Disease

There are requirements that you must meet in order to medically qualify for Social Security disability benefits because of Parkinson’s disease. Every medical condition that qualifies for disability benefits is listed in the SSA’s Blue Book.

Each condition has a set of requirements that must be met in order for a person to be approved for benefits because of that condition. The Blue Book listing for Parkinson’s disease states that in order to be approved for disability benefits you must:

• Be unable to control the movement of at least two extremities (either an arm and a leg or two arms or two legs), despite at least three months of treatment. This must result in extreme difficulty in the ability to balance while standing or walking, to stand up from a seated position, or to use the arms.

OR• You must have “marked” physical problems

along with a "marked" limitation in any one of the following:

1. thinking (understanding, remembering, or applying information)

2. interacting with others (social problems), or3. finishing tasks (problems with concentration,

persistence, or speed).

If you can provide medical documentation showing that you meet these requirements, then you should be approved for Social Security disability benefits. However, Parkinson’s can affect people in different ways and at different speeds. You may not meet the listing requirements for Parkinson’s disease but still

be unable to work. In that case you could still qualify for benefits under a Medical Vocational Allowance.

Medical Vocational Allowance and RFC

A Medical Vocational Allowance provides disability benefits to people who don’t technically meet the Blue Book listing for their condition but cannot work because of that condition. When filing a claim for Social Security disability benefits you can ask for a Residual Functional Capacity evaluation. This is done by the SSA to determine if there is any work that you can do in your current condition and with your current skills. If there is no full-time work that you can reasonably be expected to do then your claim for disability benefits can be approved even if you don’t meet the Blue Book listing.

Applying for Social Security Disability Benefits

You can apply for Social Security disability benefits online. If you need help filling out the paperwork for your claim or if you have questions about the application, like how to ask for a Residual Functional Capacity evaluation, the best thing to do is apply in person. Make an appointment with your local SSA office and bring copies of all your medical records and paperwork with you to the appointment. A staff member will help you fill out the application and file it.

Resources:

Parkinson’s Disease Facts: https://daps.us/pd-facts

How to Qualify: https://www.disabilitybenefitscenter.org/blog/parkinsons-social-security-disability

Blue Book Parkinson’s Disease: https://www.ssa.gov/disability/professionals/bluebook/11.00-Neurological-Adult.htm#11_06

Acceptable Documents: https://www.disabilitybenefitscenter.org/blog/acceptable-documents

Medical Vocational Allowance: https://www.disabilitybenefitscenter.org/glossary/medical-vocational-allowance

Local SSA Office: https://secure.ssa.gov/ICON/main.jsp

Printed with permission from Disability Benefits Center https://www.disabilitybenefitscenter.org

How to Qualify for Social Security Disability Benefits with Parkinson's Disease

PAGE 9 • DAPS • OCTOBER 2019

The Parkinson's Foundation

MOVING DAY DFWA Walk for Parkinson's

Saturday, October 5, 2019

Lone Star Park │ Grand Prairie, TX

Registration begins 8:30 a.m. Walk starts 10:00 a.m.

Help beat Parkinson's!

Form your walk team today at MovingDayDFW.org

For more information, contact Debbie Nathan at

214-469-7661 or dnathan@parkinson.org

Senior Adult Health Fair Thursday, October 10, 2019

10:00 a.m. to 1:00 p.m.Includes:

Free LunchDoor Prize Drawings

Health Screenings (Hearing & BP)Hear information about over-medication, medical equipment, home healthcare, hospice, and other resources for seniors.

Flu shots and pneumonia shots available. (Medicare Part Bccepted—bring Medicare Card & Photo ID)

Location:

First Baptist Church Dallas Lovvorn Hall

1707 San Jacinto, Dallas, TX 75201

FREE parking across street in Horner parking garage. Enter garage on

San Jacinto past St. Paul.

Reservation line: 214-388-0088 www.firstdallas.org/events/

senior-adult-health-fair

Upcoming Events

Parkinson's Disease Panel Thursday, October 24, 2019 Noon to 2:00 p.m.

HarborChase of Plano 5340 Towne Square Dr. Plano, TX 75024

DAPS continues to make new friends and with new friends come new opportunities. One of those new friends is HarborChase of Plano. We are planning some exciting things with them. On October 24,

there will be a panel discussion about Parkinson’s disease. Among others on the panel are some names that you may recognize: Dr. Mike Braitsch, of Tribe Wellness; Pat and Barry Goukler, DAPS McKinney; and Mike Miles, Executive Director of DAPS. If you are able to join us that day, it will be a great opportunity to support DAPS and the new relationship we have with Harbor Chase while learning more about living an active and fulfilling life with Parkinson’s disease. There will be information and discussions that are beneficial for the person with Parkinson’s as well as care partners and family. Lunch will be provided and it is requested that you RSVP by calling Harbor Chase at (972) 362-1110.

THIS NEWSLETTER

SPONSORED BY…

Disclaimer: The contents or opinions expressed in this newsletter are those of the individual writers or presenters and do not constitute an endorsement or

approval by DAPS staff. Please consult your personal physician

regarding your individual medical problems.

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PAGE 10 • DAPS • OCTOBER 2019

DALLASNOVEMBER GENERAL MEMBERSHIP MEETING

Location: University Park United Methodist Church Fellowship Hall

Date: Monday, November 11, 2019

Time: 1:00 p.m.

Speaker: Michael Braitsch, PT, DPT

Topic: Movement Matters: Exercise for Parkinsonism

DUNCANVILLE GENERAL MEMBERSHIP MEETING

Location: 1302 S Clark Rd, Duncanville, TX 75137Date: Monday, October 28, 2019Time: 6:00 p.m.

Speaker: Dr. Halim Fadil Neurology and Movement Disorders Center of North Texas in Arlington

Topic: Parkinson's Disease: An UpdateCall 972-298-4556 for more information.

MCKINNEY GENERAL MEMBERSHIP MEETING

Location: St Gabriel the Archangel Church

Address: 110 St Gabriel Way, McKinney, TX 75071

Date: Tuesday, October 15, 2019Time: 10:00 a.m.

Speaker: Dr. Aashoo Mentreddi Neurology Consultants of Dallas

Topic: Counting the Journey: A Treatment Option for Advanced Parkinson Disease

Meeting sponsored by: