186
OCCUPATIONAL THERAPY PRESCRIBED MINIMUM BENEFITS FINAL DOCUMENT 1 MARCH 2007

OCCUPATIONAL THERAPY PRESCRIBED MINIMUM … · 3 ANXIETY DISORDERS Compiled by Modise J Mogotsi BSc (Occupational Therapy)-University of Cape Town, MSc (Public Health)-Umeå Universitet,

Embed Size (px)

Citation preview

OCCUPATIONAL THERAPY PRESCRIBED MINIMUM BENEFITS

FINAL DOCUMENT

1 MARCH 2007

2

CONTENTS

TOPIC

AUTHOR

CONTACT DETAILS PAGE

Cover Document Romy iContents & Contact details of authors

2

Anxiety disorders Modise Mogotsi [email protected] 3Attention deficit hyperactivity disorder

Keri-Lee Roebert [email protected] 46

Dementia Michele Nye [email protected] 62

Eating disorders Anel Grobler [email protected] 89

Zonia Weideman [email protected]

Mood disorders Enos Ramano [email protected] 106Obsessive compulsive disorder

Rose Crouch [email protected] 136

Post traumatic stress disorder

Vivyan Alers [email protected] 144

Schizophrenia Rose Crouch [email protected] 163

Substance abuse Rose Crouch [email protected] 175

Document edited by Zonia Weideman.

3

ANXIETY DISORDERS Compiled by Modise J Mogotsi BSc (Occupational Therapy)-University of Cape Town, MSc (Public Health)-

Umeå Universitet, SWEDEN

1. INTRODUCTION

Occupational therapists “use scientifically chosen meaningful activities to assist diverse

clients with a range of problems to maximise their functioning. This empowers them to be

as independent as possible to experience dignity and quality of life at work, at home and

at play.”1

Throughout occupational therapy historical development has been associated with

people not being able to manage their anxiety and stress while recovering after an

injury/disease/illness/disorder/disability. Despite this anxiety being secondary to primary

condition, there has also been identified and recognised abnormal anxiety states and

stress levels. These were all addressed holistically in occupational therapy interventions.

The unique use of occupations (any activity a person performs on a daily basis)

therapeutically to achieve the desired results of improved health and well-being. This

underpins the philosophy in occupational therapy that human beings are occupational

beings, and therefore any occupation has potential to influence their state of health and

wellbeing1,2.

In anxiety disorders, the typical feature across the spectrum is that of irrational fear of

being out of control. Despite many psychiatric disorders and/or mental illnesses having

the control as the central core of their behavioural outcome, the emphasis here is on the

fear itself being irrational.

It has been widely acceptable that pharmacotherapy has become efficient and well as

psychotherapy in combination3,4. This has been observed in the recent evidence that has

come out of various empirical studies. Often this being the conventional approach,

occupational therapy has not been extensively studied in this context. There is however,

sparse evidence illustrating the contribution of occupational therapy either as a single

medium or in combination. The current occupational therapy evidence is gradually

4

approaching the gold standard of scientific rigour, nevertheless there have been

numerous successful clinical results from occupational therapy interventions.

To indicate further, consider the following occupational performance areas; (a) Work, (b)

Activities of Daily Living, (c) Leisure and (d) Social. If individual experiences: generalised

fear or constantly worrying, fear of imperfections, fear of dying, fear of interactions, and

re-experiencing previous fearful situation as though current. All of these being irrational,

occupational therapy will focus the individual on:

(a) Work

The nature of the task at hand, what needs to be accomplished, highlighting the skills

already mastered and providing a sense of competence for skills which require

improvement, i.e. setting achievable goals which could be measured at completion of

the task. For example having a roster to plan concisely the work duties such as

important and urgent deadlines.

(b) Activities of Daily Living

The ability to take care of oneself (as well as other/s), encouraging positive habits and

useful routines, as well as enhancing the satisfaction of enjoying ones end-products

of such tasks, e.g. grooming, cooking, shopping, etc

(c) Leisure

The ability to re-engage in hobbies and interest, as well as improve current/ introduce

new fun and creative activities, etc. The daily pre-occupations are often deterrent for

individuals to connect with their sources of contentment. Occupational therapy

inculcates this in an integral manner that an individual will perform automatically e.g.

smiling/ laughing, breathing, pauses, etc

(d) Social

The capacity to experience safety and support from various interpersonal interactions.

Assertiveness training, conflict resolution, stress management and many other coping

skills are a few examples.

5

As a general note, Occupational therapy contributes on different psychic (superego, ego and

unconscious), relational (self, other and environment), insight (intellectual and emotional),

spiritually (time-out, pampering, aloneness not loneliness, etc) and most crucially practical

(i.e. doing with the individual as opposed doing for the individual).

Referral sources usually range from individuals themselves (self-referral) or by family

member (parent, sibling or spouse) through organisations (educators or employers) to

professionals (General Practitioners, and/or Medical Specialists). Most commonly are from

professionals followed by organisations and lastly self.

2. DIAGNOSIS

According to Kaplan, Sadock and Grebb (1994) normal anxiety is a sensation that is

experienced by every human being, often accompanied by physiological changes in the

body. They expressed anxiety to be different from fear in that the threatening stimulus is

unknown in the one and known in the other, respectively.

Furthermore, stress is a state of response in either situation, i.e. anxiety, fear or both. Stress

itself does not lead to either, but often is a mechanism by which a balance is sought between

the internal (personal) and external (environmental) conditions, in order to restore or

minimize the effects of threatening stimulus.

They further explained pathological anxiety is the profound state where there is an intense

experience of such threatening stimulus and/or extreme response to this; that will lead to an

individual inability to sufficiently moderate these levels. Since an individual may not have a

clear understanding of such conditioned responses, this will fluctuate often in line with their

personality characteristics.

While the above may be the case, there are many theories e.g. psychological

(psychoanalytical, behavioural, existential), biological (autonomic nervous system,

neurotransmitters, genetic, brain-imaging, neuroanatomical) and arguably sensory (tactile

and vestibular modulation) around the causes of such abnormal or pathological

consequences. There is also a recent clinical observation that people with Anxiety Disorders

6

tend to also exhibit sensory modulation disturbance, particularly in children5. This experience

would warrant further research to establish the relationship between anxiety and sensory

states.

The Anxiety Disorders are a spectrum including Generalised Anxiety Disorder, Obsessive-

Compulsive Disorder, Panic Disorder, Social Anxiety Disorder and Post-Traumatic Stress

Disorder. This chapter on Anxiety Disorders will offer description and not the diagnostic

criteria6,7 for Generalised Anxiety Disorder, Panic Disorder and Social Anxiety Disorder. For

Obsessive-Compulsive Disorder, please refer to a chapter by Rosemary Crouch and for

Post-Traumatic Stress Disorder refer to a chapter by Vivyan Alers.

For tabulation, refer to Figure 8-2 Indicators of Anxiety Disorders in Bonder (1991).

(a) Generalized Anxiety Disorder

Generalised Anxiety Disorder is characterised by an “excessive anxiety and worry …

occurring more days than not for a period of at least 6 months …”7. The relevant code

300.02 (432).

“Anxiety is generalized and persistent but not restricted to, or even strongly predominating

in, any particular environmental circumstances.”6 The relevant code is F41.1.

(b) Panic Disorder

Panic Disorder is characterized by “a discrete period of intense fear or discomfort that is

accompanied by at least 4 or 13 somatic or cognitive symptoms. The attack has a sudden

onset and builds to a peak rapidly (usually in 10 minutes or less) and is often accompanied

by a sense of imminent danger or impeding doom and an urge to escape.”7. Code 300.01

(397) and 300.21 (397) with and without agoraphobia, respectively.

Panic Disorder is distinguished by “recurrent attacks of severe anxiety (panic), which are not

restricted to any particular situation or set of circumstances and are therefore

unpredictable.”6 (F41.0)

7

(c) Social Anxiety Disorder

Social Anxiety Disorder is characterized by “a marked and persistent fear of social or

performance situations in which embarrassement may occur (Criterion A). Exposure to the

social or performance situation almost invariably provokes an immediate anxiety response

(Criterion B).”7. Code 300.23 (411)

Social Anxiety Disorder is also associated with “Fear of scrutiny by other people leading to

avoidance of social situations. More pervasive social phobias are usually associated with low

self-esteem and fear of criticism.”6 (F40.1)

According to Kaplan, Sadock and Greb (1994), anxiety disorders are associated with alcohol

use disorders and other substance-related disorders as well as other general medical

conditions. Epidemiological studies reveal the following statistics Generalized Anxiety

Disorder 3-8%, Panic Disorder 1.5-3% and Social Anxiety Disorder 2-3%.

Predisposing factors

• Temperament: inherited traits

• Early psychological trauma, particularly disrupted mother-child relationship

• Stressful life events during maturation, particularly separation

• Exposure to unfavourable environment during maturation, e.g. poor housing, lack/

surfeit of stimulation, growing up in a deprived institutional environment or a war zone

• Basic physical needs unmet: hunger/ cold

• Faulty learning of maladaptive coping styles

Current Factors

• Stressful live events, e.g. bereavement, giving birth, relocation, unemployment, legal/

criminal activity

• Stressful lifestyles: conflicting roles, e.g. “working mother”, financial problems, study/

work-related pressure

8

• Social stress: role dissatisfaction/ ambiguity, poor social status, poverty, poor

accommodation

• Relationship/ family problems, e.g. divorce, caring for sick relatives or children

• Actual/ potential physical ill health, especially terminal/ progressive illness of self/

significant other

3. IMPACT ON OCCUPATION

Out of control feeling is generalisable to many psychiatric and mental illnesses, particularly

with anxiety states. This feeling is characterized by impending disaster or looming doom

resulting in individuals being left vulnerable and abandoned as they perceive it. In addition,

preoccupation about worries and bodily ailments is often present and lead to diminished

optimal performance in life. Occupational Therapists assist people who are anxious by

guiding their performance in valued occupations, tasks and roles9,10.

3.1 Work

Work as a distant environment for individuals (usually), will magnify the perceived and/or real

feelings as experienced where individual’s productivity or standard of performance set by the

workplace could be severely reduced. Some of the responsible factors are considered

below:

Generalised Anxiety Disorder

i. Restlessness

Individual may lack focus, become bored, deeply unhappy and could lack

motivation to initiate, implement and complete the tasks. They may thus require

stimulation.

ii. Fatigue

Individual may lack energy, focus, become emotionally heavy and could lack drive

to be occupationally present. They may thus require re-orientation or change of

duties/jobs.

9

iii. Poor concentration

Individual may lack attention to details and thus affect accuracy and precision,

which will in turn affect the quality of the work produced. They may require re-

strategizing the work layout and/or adjusting the speed of performance.

iv. Irritability

Individual may be generally unapproachable and in fowl mood, thus prevent

effective communication and work interrelations. They may require communication

skills to express themselves in terms of their own personal and work related

needs.

v. Muscle tension

Individual may be uptight and lack general humour and astuteness to the familiar

tasks, which could affect their productivity (both quality and quantity of work). They

may require relaxation techniques, stress and time management, etc.

vi. Sleep disturbance

Poor quality sleep may affect quality of the waking hours directly or indirectly

depending on the expected levels of performance on a task. Provision may be

made at work for slumber pause or period of non-work related activity. Individuals

would be encourage to utilise such time out (more) effectively e.g. leisure

management.

Panic Disorder

i. Palpitations, pounding heart, or accelerated heart rate

ii. Sweating

iii. Trembling or shaking

iv. Sensation of shortness of breath or smothering

v. Feeling of chocking

vi. Chest pain or discomfort

vii. Nausea or abdominal distress

viii. Feeling dizzy, unsteady, lightheaded, or faint

10

ix. Derealisation (feeling of unreality) or depersonalisation (being detached from

oneself)

x. Fear of losing control or going crazy

xi. Fear of dying

xii. Paresthesias (numbness or tangling sensations)

xiii. Chills or hot flushes

The above may be dealt with recognizing the triggers to such responses, failing which at the

time, handling techniques may become applicable. Experiencing the above may occur with

individual shutting the world out and perceiving no way out. They may require techniques to

counteract such negative experience, e.g. counting, breathing, panic padding, etc.

Social Anxiety Disorder

i. Avoidance

Usually works for individual since they do not have to be exposed to the perceived

threat. Where compelled to confront the stimulus, individuals may require

exposure technique (e.g. desensitisation), which would happen gradually and

systematically.

ii. Anxious anticipation

Individuals may believe they have premonition to certain effects which are usually

negative and a threat to themselves. Often times they find themselves in such

situation they have ‘predicted’. They may thus require a cognitive technique (e.g.

deconstruction and reconstruction), in which negatives are replaced with positive;

and hence actions would be guided as such.

iii. Distress

Individuals may be in general disarray and disorganised; they would often have no

plan or miss the target; they could also lack precept and apt to self-fulfilling

prophecy. They may require re-organization as well as re-building self concept.

11

3.2 Activities Of Daily Living

Activities of Daily Living predominantly manifest at home as an individual’s immediate

environment, could illustrate mild functional impairment due to the perceived and/or real

feelings as experienced; individual’s would thus remain fairly independent or rather becomes

more drawn to themselves than they usually are. Some of the responsible factors are

considered below:

3.3 Leisure

Leisure could be arguably the highest occupational satisfaction status where may

occupational factors integrate and consolidate. The perceived and/or real feelings as

experience could inhibit the individual’s occupational expression and a sense of integrity.

Since leisure would replenish energy stores and revitalise spiritually, individuals would be

expected to regularly engage in this occupational performance area. In fact, much of human

existence could be lived comprehensively in this regard, i.e. life being a leisure. Some of the

responsible factors are considered below:

3.4 Social

Society at large environment is an intermediate or interphase for individual’s private and

public self. The perceived and/or real feelings experienced by the individual may result in

moderate impairment (or emotional handicap) which will depend on the amount of available

or lack of social support and network connections. Some of the responsible factors are

considered below:

For detailed impact of Anxiety Disorders on occupation, please refer to Table 19.1 (The

occupational implication of disabling anxiety and stress)9.

12

4. IMPACT ON ROLES, HABITS AND ROUTINES

Roles

Roles refer to “set of behaviours that have some socially agreed-upon functions and for

which there is an accepted code of norms.”11,12

Across the Anxiety Disorders – individuals may not be able to accomplish the worker role

due to fear of inadequacy or poor standard of performance; withdraw from being a socialite

e.g. friend, colleague, family member (sibling/partner/spouse) and social club member

fearing to embarrass themselves or maintaining the environmental expectations;

underestimate their physical appearance by minimizing their unique individual attributes

either in both verbal and non-verbal presentations; as well as deep seated fear of failure in

any activities where they may be expected to perform according to the norms or socially

acceptable and unwritten rules.

Occupational therapy provides an opportunity to experience all roles in completion as

individuals may deem important and necessary for themselves. For example, demonstrating

the effects of task completion on ones occupational disposition; stemming from a negotiated

strategy between the doer, the demander and the demand of the activity itself.

Habits

Habit refers to a performance “on an automatic, preconscious level”11,12.

In most of Anxiety Disorders, the immediate rejection of a situation which impends doom or

imminent danger, individuals often automatically avoid the threatening stimulus or shut down

completely so by not responding or pretending it does not exist. Typically individuals not only

will they ignore a challenge at the time, but they may in fact do so for an extended period of

time. This is such any current or future resembles of such situation will also be automatically

overridden.

For example, never performing certain tasks because they invoke an extreme anxiety

response. Occupational therapy may provide a strategy to reframe the stimulus especially if

it falls within ones interest or obligatory function; or to re-adjust maladaptive patterns.

13

Routines

Refer to “occupations with established sequences.”11,12 .

Every occupational being has their own routines or deeply engraved ways of doing or

performing their activities and/or occupations. These take extremely long time to solidify and

even enormously difficult to undo. However, with easier methods of alteration or adaptation,

the routines can be successfully changed. In most instances, people with Anxiety Disorders

have certain rituals and unconventional practices which render them different from the rest of

the society.

These however are geared towards alleviate their debilitating experience due to their anxiety

and/or anticipation of such. While this may be temporarily useful, they also cause the extra

expense in time and effort of execution as well as the quest to master or improve on this

learned behaviour or skill. Practice does not make better, but for them practice makes

permanent and becomes extremely challenging to reverse. Occupational therapy provides

analysis and methods towards adopting ‘healthier’ routines.

5. HEALTH CARE STRUCTURES

5.1 Pillars Of Health Care:

A. Promotion/Prevention

Strategies of Health Care directed at promoting Health (physical, social mental

occupational (activities health) spiritual etc) and wellness and “coping” as an

individual and in groups. For example this may be directed at the public at large, at

“risk” groups or at individuals whom have illness / disabilities. It looks at developing a

healthy life style to support health. Strategies of Health aimed at preventing illness

(primary) or at preventing an existing illness from getting chronic (secondary) or the

client becoming disabled from an illness (tertiary)13.

14

Occupational therapy strategies of this nature for Anxiety Disorders will focus on

occupational practices that would promote healthy adaptation and demote destructive

patterns.

B. Curative/Remedial

Strategies used to help the client to recover from illness or a traumatic event so that

no disability results and that there are few or only minor long term consequences to

function13.

Occupational therapy strategies of this nature emphasis the increased sense of

occupational independence and optimal functioning while incorporating the lived

illness experience.

C. Habilitative/ Rehabilitative

Habilitation refers to a “process of giving a person the resources, including specialized

treatment and training, to promote improvements in activities of daily living, thereby

encouraging maximum independence”. Whereas, rehabilitation refers to “helping

individuals regain skills and abilities that have been lost as a result of illness, injury or

disease, disorder, or incarceration.”12

Occupational therapy strategies in this regard, will focus on expanding support

network as well as retraining personal skills to overcome the residual impact of the

illness experience.

D. Maintenance

Refers to “the process of maintaining or being maintained. The provision of the means

to support life.”14

15

Occupational therapy strategies considered here incorporates maintaining the current

functional levels and curbing any potential deterioration.

Occupational therapy intervention is commonly evidenced in the curative and remedial

levels, since the typical presentation of anxiety and stress states are masked by other

factors. Ones the plausible explanation of the behaviour has been unravelled, the target for

intervention is commonly direct and simple.

While current intervention may halter further deterioration, there are instances where the

contribution to recovery is extremely challenged by the nature/ severity of the Anxiety

Disorders where longer term and regular revision of plan is warranted10,15. This is usually in

the rehabilitative state where the chronicity affects the individual’s capacity to successfully

re-align to their environment, whether at home, work or in relationships.

The OT would also become involved with individuals whose condition shows no further

improvement and thus have to consolidate their occupational performance16,17.

Nevertheless, the current approach for many professions and discipline is to strategize the

health promotion and preventative programmes.

5.2 Level Of Health Care System:

I. Primary

At this level, occupational therapy is concerned with overall occupational performance

and optimal functioning for individuals to independent and productive. Minor factors

are often less emphasized, nevertheless the contribution assists in ‘quick-fix’ or

‘patch-and-go’ strategies. Despite the increased demand to regain control and

strength, often home programme are also issued at this level for further self-help tool.

16

II. Secondary

Occupational therapy at this level is involved with slightly more focus or specific areas

of difficulty. While highlighting occupational performance areas (home, work, activities

of daily living), performance components (cognitive, affective, psychomotor, etc) are

also considered to compliment the intervention strategy. This also affords slightly

more time for contact that in the primary level, however not nearly as much for

intensive contribution.

III. Tertiary

Occupational therapy often employs special or sophisticated techniques5 at this level.

Often a few performance components are pivotal to turning around the debilitating

experience, which in turn presents with severe occupational performance area

functional impact. Level of expertise both clinically and empirically affords the

occupational therapy intervention to offer a highly significant contribution. This is often

evidence by an individual making the necessary changes in their lives and

transforming their innate abilities into remarkable state of occupational performance.

6. ASSESSMENT

6.1 Baseline Assessments

6.1.1 Professional Interview

A professional interview is a structured, time limited and goal directed encounter between

a professional and a client in order to gather data or to discuss an intervention

procedure19.

Interviewing has also been defined as a verbal experience shared, jointly formulated by

the interviewer and the interviewee, or arranged about the asking and answering of

questions18.

17

In addition, an interview can be used as assessment initially, and as intervention during

the course of therapy18. Reasons for interviewing include (a) understanding the client’s

story, what may be referred to as narrative reasoning; (b) building the therapeutic alliance

referred to as cultural reasoning, (c) gathering information and developing the

occupational profile referred to as scientific reasoning, (d) observing behaviour referred to

as interactive reasoning, (e) identifying client strengths and potential problem areas

referred to as conditional reasoning, (f) clarifying your role in the setting referred to as

ethical reasoning, and (g) establishing priorities for intervention referred to as pragmatic/

procedural reasoning.

Interviewing techniques and tools19 may vary in their ranges between children through to

adolescents/youth and adults. Adolescent and adults interviewing tools may include but

not limited to;

(i) The Occupational Circumstances Assessment – Interviewing Rating

Scale or OCAIRS by Hanglund, Henriksson, Crisp, Fredhiem, and

Kielhofner (2001), represent a revision of the original OCAIRS

developed by Kaplan and Kielhofner (1989), provides a method for

gathering data on a client’s occupational adaptation;

(ii) The Occupational Performance History Interview – Second version or

(OPHI-II), a historical interview that gathers information about a client’s

occupational adaptation over time and can be used with adolescents

and adults in variety of settings (Kielhofner et al., 1997).

(iii) The Worker Role Interview or WRI, a semi-structured interview that

gathers data on psychosocial and environmental factors related to work.

It is appropriate to use with an individual whose disability has had an

impact on their participation in work (Handelsman, 1994, Velozo,

Kielhofner, & Fisher, 1998);

(iv) The Work Environment Impact Scale or WEIS, a semi-structured

interview and rating scale designed to examine how individuals with

18

disabilities experience the work environment (Corner, Kielhofner, &

Olson, 1998). The WEIS is intended for use with individuals who are

currently working or are actively anticipating returning to a specific job or

type of work; and

(v) The Canadian Occupational Performance Measure or COPM, a client-

centred semi-structured interview procedure designed to measure

clients’ perceptions of their occupational performance over time (Law,

Baptise, McColl, Opzoomer, Polatajko, & Pollock, 1998).

There are also adjuncts to interview, which may be administered before or after the

interview within the session. These are usually paper-and-pencil self-report measures,

which are differentiated for children and adolescents as well as for adults. These include;

Self-Report Measures for Children and Adolescents:

(i) The Pediatric Interest Profiles or PIPs, paper-and-pencil surveys of

plays and leisure interests designed to be used with children and

adolescents (Henry, 200). The three versions include the Kid Play

Profile or KPP, for children aged 6 to 9; the Preteen Play Profile or PPP,

for children aged 9 to 12; and the Adolescent Leisure Interest Profile or

ALIP, for adolescents aged 12 to 21.

(ii) Children’s Assessment of Participation and Enjoyment and the

Preferences for Activities of Children or CAPE, a two-part self-report

measure that gathers information on children’s participation in everyday

activities outside of mandated school activities (King, Law, King, et al.,

2001)

19

Self-Report Measures for Adults

(i) Interest Checklists – the Neuro Psychiatric Institute or NPI interest

checklist (Matsutsuyu, 1969), contains 80 activity items, grouped into

five categories of daily living, manual skills, cultural and educational

activities, physical sports, and social and recreational activities.

(ii) The Role Checklist or RC, a two-part, paper-and-pencil inventory or 10

occupational roles, including worker, student, family member,

homemaker, caregiver, volunteer, and hobbyist (Oakley, Kielhofner,

Barris, & Reicher, 1986). The first part of the RC examines the client’s

past, present, and future intentions related to performance of each role.

The second part examines the value the client assigns to each role.

(iii) Occupational Self-Assessment or OSA, a self-report measure designed

to gather data on clients’ perception of their occupational competence

(21 items) and the impact of the environment on their functioning (8

items) (Baron, Kielhofner, Iyenger, Goldhammer, & Wolenski, 2001). The

OSA also asks client to indicate the importance of specific areas of

functioning and to identify priorities for change, making it particularly

useful in conjunction with an interview.

(iv) The Occupational Questionnaire or OQ, a paper-and-pencil measure

that gathers data on time-use patterns and feeling about time use

(Smith, Kielhofner, & Watts, 1986). When completing the OQ, clients

indicate their main activity during each half hour of a typical day and

classify each activity as either school, work, ADL, recreation, or rest.

Clients then rate each activity, indicating how well they do the activity,

how important the activity is, and how enjoyable the activity is.

20

6.1.2 Clinical observation

There are four factors that could distort the observation process20, namely:

(a) Perceptual – how sensory stimuli (colour of clothing, perfume) affect the

way the other person is perceived.

(b) Conceptual – the knowledge base brought to the interaction

(c) Role – the way each person perceives the role he or she is to play in the in

the interaction

(d) Self-esteem – the way each person feels about himself or herself

6.1.3 Evaluation

The following are principles of uncovering needs9. This is also termed a collaborative

inquiry; empowerment; client-centred information gathering process.

1. Observation: attending to and interpreting the meaning and purpose of

verbal and non-verbal behaviour in structured and unstructured settings.

The identification of co-morbid psychiatric conditions in patients with

somatic complaints requires astute observation.

2. Measurement: use of standardized tools to provide objective data against

which to measure extent of problem; determine priority domains of

concern, outcomes of intervention and provide feedback on progress. For

example:

(a) Battery of Anxiety Questionnaire (Powell and Enright, 1991)

(b) Occupational Self-Assessment (Baron, Kielhofner et al., 2002)

21

3. Evaluation: use of multi-axial taxonomies to diagnose disorder or ascertain

level of functioning. For example:

(a) DSM-IV-TRTM multi-axial evaluation (American Psychiatric

Association, 2002)

(b) International Classification of Functioning (World Health

Organization, 2001a)

4. Interview: semi-structured information gathering. For example:

(a) Canadian Occupational Performance Measure (Law, Baptise et al.,

1998)

(b) Occupational Performance History Interview (Kielhofner, Mallinson

et al., 1998)

5. Narrative: occupational storytelling and story-making. For example:

Stories of ‘doing’, ‘being’, and ‘becoming’ through preferred occupational

choices across the life span (Clark, Ennevor et al., 1996; Wilcock, 1998a)

6. Consultation: gathering and sharing collateral information from and with

significant others (for example family, partner, employer, teacher); team

members and role players such as community and inter-sectoral

representatives. For example:

Surveys and community forums: participatory inquiry and action methods

to determine scope of need and expectations within a group/community

(Kniepmann, 1997).

Assessment areas21 (may include):

• postural control and balance

• posture during gross motor activities

• physical fitness and endurance

• fine motor skills, manipulation, dexterity, and bilateral coordination

• perceptual skills

• attending behaviour

• attention span and concentration

22

• understanding and following direction

• memory

• problem solving and decision making

• conceptualisation

• categorization

• organizational skills – time and materials

• ability to abstract

• mood or affect

• self-concept

• independence or dependence

• goals and values

• communication

• social roles

• daily living skills

• productivity history, skills, and interests

• leisure skills and interests

Assessment Instruments (refer Table 7-1: Sampling of tests used in evaluation, Hopkins

and Smith)

* Allen Cognitive Level Test (see C.K. Allen, ed. 1985. Occupational therapy for

psychiatric diseases: Measurement and management of cognitive disabilities,

ed. C.K. Allen, 108-113. Boston: Little, Brown & Co. See also C.K. Allen.

1988. Occupational therapy: Functional assessment of the severity of mental

disorders. Hospital and Community Psychiatry 39(3):140-2.)

* Riska Object Classification Test by L.R. Williams (See C.K. Allen. 1985.

Research with a non-disabled population. In Occupational therapy for

psychiatric diseases: Measurement and management of cognitive disabilities,

ed. C.K. Allen, 315-38. Boston: Little, Brown & Co.)

23

* Occupational Therapy Assessment for Older Adults with Depression (See

J.C. Rogers. 1986. Physical and Occupational Therapy in Geriatrics 5(1):13-

33.)

* Bay Area Functional Performance Evaluation, 2nd ed., by S.L. Williams and

J.S. Bloomer, Palo Alto, CA: Consulting Psychologists Press, 1987 (See also

R. Thibeault and E. Blackmer. 1987. Validating a test of functional

performance with psychiatric patients. American Journal of Occupational

Therapy 41(8):515-21; and S.L. Williams and D. Houston. 1986. Use of the

Bay Area Functional Performance Evaluation (BAFPE) with the depressed

patient: A preliminary impression. In Depression: Assessment and treatment

update: Proceedings, 22-25. Rockville, MD: American Occupational Therapy

Association.)

* Stress Management Questionnaire (See F. Stein and J. Smith. 1989. Short-

term stress management programme with acutely depressed in-patients.

Canadian Journal of Occupational Therapy 56(4): 185-92.

* Role Performance Assessment Scale (See M. Good-Ellis. 1986. Quantitative

role performance assessment: Implications and applications to treatment of

depression. In Depression: Assessment and treatment update: Proceedings,

36-48. Rockville, MD: American Occupational Therapy Association; and M.A.

Good-Ellis, S.B. Fine, J.H. Spencer, et al. 1987. Developing a role activity

performance scale. American Journal of Occupational Therapy 41(4): 232-

41.)

* Occupational History (See L.C. Moorhead. 1969. The Occupational history.

American Journal of Occupational Therapy 23:329-34.)

24

Possible problems:

Motor

• The person may exhibit psychomotor retardation (difficulty initiating the

action of moving the body or parts of the body).

• The person may have psychomotor agitation with restlessness and wringing

of the hands.

• The person may have lack physical endurance and fatigue easily

• They may also have idiosyncrasies (a mode of behaviour, peculiar to a

person e.g. tics)

Sensory

* The person may have hallucinations; auditory and visual hallucinations are

the most common but occasionally tactile or olfactory hallucinations occur as

well.

Cognitive

• The person may have difficulty in attending to a task

• The person may express recurrent thoughts of death and suicide

• The person may have difficulty making decisions and solving problems

• The person may have difficulty in finding activities of interest

• [The person may have difficulty in dealing with interactions]

Intrapersonal

• The person may have a poor self-concept or be self-denigrating

• The person may express feelings of helplessness and hopelessness

• The person may be preoccupied with feelings of guilt

• The person may be unable to feel or express emotions

• The person may express fear of going insane or losing his or her mind

• The person may be irritable

• The person may appear agitated

• The person may lack self-confidence

• The person may be dependent

25

• The person may express feelings of worthlessness

• The person may cry for no apparent reason

Interpersonal

• The person may become socially withdrawn

• The person may not speak or speaks with great effort

Self-Care

• The person is usually disinterested in most activities of daily living

• The person may refuse to eat, become anorexic, or lose weight

• The person may have insomnia and awaken early in the morning

Productivity

* The person may be unable to perform job tasks

Leisure

* The person may lose interest in leisure activities formerly enjoyed

6.1.4 Collateral information

This form of inquiry is usually accessed from the source of referral, client/patient’s

immediate relations e.g. family (partner/spouse, sibling, children), friends (peers in

regular contact) and colleagues (manager/supervisor, peers, subordinates).

6.1.5 Assessment report

The report usually varies depending on the purpose and the requestor. Generally

clinical/hospital records for occupational therapy are kept alongside with the medical

records. An occupational therapy clinician also keeps copy of records from which a full

report can be drawn.

A report which may be requested by relevant stakeholders would differ significantly both

in content and format, according to its intentions. The various types of records/ report

26

may include; doctor/specialist (comprehensive medical management), medical aid

(support further treatment/ rehabilitation), insurance (incapacity, disability), attorneys,

educators (school performance, remediation), employers (recruitment, training,

productivity, boarding), individuals (personal), etc.

6.2 Ongoing Assessment

Continuous evaluation is an automatic process that takes place following initial assessment.

While this may not be conducted deliberately, inquiry often requires repetition to construct

and deconstruct as the issues are systematically and gradually delineated22,23,24. The

purpose of interview as an intervention has already been mentioned. In most instances,

parameters considered/ measured at the baseline assessment would also require review by

re-assessing. Alternatively, re-assessment could also assist to clarify the condition from one

to the other, as the therapist builds rapport, observes behaviour and client becomes at ease

to divulge.

Therefore, reasons for subsequent assessment are:

a) For comparison with previous results;

b) To plan subsequent stages of treatment; and

c) To make recommendations for the future.

In essence, the assessment process seeks to:

i) provide accurate and comprehensive information about the problems and needs

presented

ii) assist both client and therapist in setting up realistic goals of treatment

iii) guide the selection of appropriate treatment techniques

iv) measure the extent of the problem before, during and after treatment so that

change can be identified

v) provide data for treatment outcome evaluation and research.

27

Thus it could also be summarized as follows:

A. Interview procedure using internally devised, structured schedules/ questionnaires.

B. Structured observation methods, e.g. behavioural observation, role play trials.

C. Physical examinations, e.g. skin temperature, pulse and respiration rates.

D. Standardized assessment tools/ psychometric tests, e.g. the State-Trait Anxiety

Inventory (Spielberger 1983).

7. INTERVENTION

7.1 Role Of O.T:

The general purpose of occupational therapy intervention would be directed toward enable

a person to become functionally independent and productive25.

7.1 .1 Work

Occupational therapist would assist an individual to become economically viable following

period of illness; in the light of returning to work; searching for job or starting income

generation project.

7.1.2 Activities of Daily Living

Occupational therapist would assist individual to resume autonomas life as prior to

illness, such as fully by performing all their activities or partially by exercising an

opportunity to be assisted.

7.1.3 Leisure

Occupational therapist would assist an individual to re-establish their engagement in

previously enjoyed activities and/or providing a creative environment to construct new

hobbies and interests.

28

7.1.4 Social

Occupational therapist would assist an individual to re-connect with existing support

and/or provide a strategy to network to expand the support.

7.2 Theoretical Framework

7.2.1 Models

A model “is a simplified representation of the structure and content of a system that

describes or explains the complex relationships between concepts within the system and

integrates elements of theory and practice2. In occupational therapy several conceptual

generic occupational performance models have been based on occupations / activities

theory.”

There are many model used in occupational therapy some of which are generic and

most are specific to occupational therapy. A few to note amongst many are (i) Model of

Creative Ability (du Toit, 1974); (ii) Model of Human Occupation (Kielhofner et al 1985,

1997, 2002); (iii) Activities Health (Cynkin and Robinson 1990); (iv) Canadian Model of

Occupational Performance; (v) Occupational Behaviour (Reilly); (vi) Person-

Environment-Occupational Performance Model (Christiansen and Baum, 1997); (vii)

Ecology of Human Performance Model (Dunn et al., 1994); (viii) Personal-Envronment-

Occupation Model (Law et al., 1996); and (ix) Occupational Adaptation Model

(Schkade and Schultz, 1992). It is important to note that models can be used either for

assessment, treatment or in combination.

7.2.2 Frame of References/ Approach

As with the models, approaches and/or frames of references are also numerous and help

discern the application of the model26,11. According to Texeira (2006), frame of reference

is an organized body of knowledge, principles and research findings that forms the

conceptual basis of a particular aspect of practice. An inter-linking of compatible ideas

29

and themes that may be used to direct the thinking for methods of intervention, once

goals and priorities have been established. Are not unique to occupational therapy and

have been developed and used outside the profession13.

Examples of FOR include, Client Centred, Developmental, Cognitive, Behavioural,

Psychodynamic (Object Relations), Sensori-Integration, Learning, Sensory Perceptual,

Cognitive.

For further details on frames of references please refer to Conceptual foundations for

practice in Hagedorn (1997) and Table 4-1: Frames of References used in Occupational

Therapy, page 63 in Hopkins and Smith (1993).

7.3 Treatment Programs

Models of treatment include occupational behaviour (Reilly) and human occupation

(Kielhofner).

Motor

• Increase the person’s energy through participation in energizing activities,

including recreation

• Decreasing the person’s anxiety through participation in relaxing activities

Sensory

* Maintain, decrease or increase sensory stimulation through participation in activities

Cognitive

• Provide opportunities to make choices, solve problems, and make decision in the

selection or colour, type of activity, or amount of time devoted to an activity.

• Provide instruction in time management and activity scheduling.

• Provide learning groups that discuss subjects, such as problems of anxiety

30

Intrapersonal

• Increase self-concept (self-mastery, sense of competence, self-confidence)

through creative activities, such as art, crafts, drama, dance, or music, that can

result in task accomplishment.

• Provide training in stress reduction, including discussion about life stresses,

assertion, and relaxation training.

• Relate present activities to immediate feelings and goals to increase concept of

purposeful activity and goal-directed behaviour.

Interpersonal

• Provide opportunities to develop social and participate in group activities through

structured task groups, discussion groups, or information work-related groups.

• Encourage interpersonal relationships through group activities. Encourage the

person to join a group in the community.

• Increase communication skills, verbal and nonverbal, through practice in group

situations, role playing, discussion, and review

Self-Care

• Express expectations that the person will perform activities of daily living.

• Provide instruction in daily living skills, such as money management, locating living

quarters, shopping, or preparing meals

Productivity

• Encourage the person to participate in home-management tasks. The family can

be encouraged to assign specific tasks for the person to perform

• If the person is working, explore career goals and interests

• If the person is retired, explore the possibility of volunteer activities.

Leisure

* Encourage the person to explore interests and develop enjoyable leisure activities

Precautions

31

• Watch the person to avoid self-inflicted injuries and suicide attempts

• Observe for signs of overmedication, such as tremor and loss of visual acuity.

Prognosis (Functional):

Between the anxiety episodes, there is full recovery of function.

• The person is able to resume his or her previous level of participation in the

community.

• The person is able to perform activities of daily living and functional skills

independently

• The person is able to test reality and control his or her anxiety and mood as well

as activity level independently

• The person is able to perform cognitive activities, including using judgement for

personal safety, decision making, problem solving, and time management.

• The person is able to perform productive activities while setting realistic goals,

conserving or expending energy, and setting limits

• The person assumes responsibility for performing leisure activities

• The person is able to function in one-to-one and group situations.

An anxiety management programme27,28,25

This may constitute, (i) Education, (ii) Skills rehearsal and (iii) Action.

i) Education

The educational element of the course may cover the following topics:

- Physical causes and effects of anxiety and relaxation

- Recognition of physiological cues of arousal

- The benefits of regular exercise

- Negative and irrational thinking and their effects on anxiety levels. (Includes

“catastrophizing”, unhelpful assumptions, unrealistic expectations of self/others)

- Avoidance and its reinforcing properties in relation to anxiety

- Realistic goal setting

- Problem-solving techniques

32

- Social skills and assertiveness as ways of improving confidence in dealing with

relationships and social situations.

ii) Skills

The rehearsal element of the course/ programme may cover arousal reduction skills

which are demonstrated during sessions:

(a) Physical relaxation methods

- Contrast relaxation

- Mitchell method/ Simple relaxation

- Correct breathing

- Emergency relaxation

- Differential relaxation

(b) Mental relaxation methods

- Meditative relaxation (Benson’s relaxation response)

- Visualization

(c) Cognitive control activities

- Imaginal desensitisation exercises

- Role play of stressful situations

- Recognition of faulty thinking, challenging and coping with the anxiety symptoms,

cognitive control exercises

iii) Action

The action element of the course/ programme refers to application of techniques

outside the sessions by individual clients, and may include:

(a) All relaxation methods as appropriate to the situation and individual client’s needs

(b) Self-help task assignments relevant to stage of course/ programme, to consolidate

material covered

(c) Completion of daily diaries and rating scales, e.g. recording stressful situations,

personal reactions and ways of coping, progress in developing relaxation skills

33

(d) Setting and tackling behavioural goals set during the course/ programme.

Anxiety management course: the Client Packs (1,2 & 3)

Pack 1:

This may focus primarily on (a) bodily feelings, (b) thoughts and emotions, and (c) life-

style

(a) Bodily feelings

- Breathing difficulties

- Shakiness

- Pounding heart

- Headaches

- Muscle aches and pains

- Excess sweating

- Bowel and urinary problems

- “Lumps” in the throat

- Persistent tiredness

(b) Thoughts and emotions

Fear of variety of things, people or situations due to anxiety

- Going out of doors

- Meeting people

- Travelling on public transportation

- Ill-health

(c) Life-style

Life-style may be seriously curtailed by a tendency to avoid stressful situations or

escaping them wherever possible. This might include:

- Not going out

- Not meeting people

- Not using public transport

34

- Not being able to do the shopping

- Not being able to stand up for oneself

Example of solution: Contrast Muscle Relaxation, which covers each major muscle

group. Parts of the body worked on include hands and forearm; upper arms; face;

neck; chest, shoulders and back; stomach and legs.

The rest of the packs will address the following (refer Keable, 1989 for further details

on all the packs):

2 = physical tension control

3 = how to apply relaxation skills in everyday life, respectively

4 = mental tension control

5 = the stress of modern living and how to cope with it

6 = goal-setting and problem-solving techniques

7 = improving your life-style and coping with people

7.4 Time-Span An average number of sessions required informed by clinical judgement and empirical

evidence.

Total number of sessions per year for both acute and chronic:

- Assessment: 486

- Treatment: 2003

8. TABLE OF THE EVIDENCE

(See appendix)

35

9. CONCLUSION

Anxiety Disorders are common in our modern society, however not a common place in

occupational therapy. There has been a considerable improvement in intervention of such

disorders in the recent years, particularly pharmacotherapy. While this is the case,

psychotherapy has also established its role especially as augmentation to pharmacotherapy.

The two therapies have thus subsequently being studied together and substantial evidence

has been well developed. The reality is that, occupational therapy has also formed an

integral part of such intervention, despite the lack of studies which demonstrate this as a

combination with the two conventional approaches.

Nevertheless, there is sufficient proof that occupational therapy on its own has showed its

effectiveness as a single measure of progress and improvements.

Arguably occupational therapy focuses more on the practical functional aspects than on

biological and psychological functioning respectively. Hence, occupational therapy not only

identifies the problem from an empirical/ scientific point of view, it also offers artistic/ creative

solution to everyday challenges.

10. REFERENCES

1. Occupational Therapy Association of South Africa (OTASA). Internet website.

www.otasa.org.za; 2001.

2. Creek J. Occupational Therapy and Mental Health. Edinburgh, London, New York, Oxford,

Philadelphia, St Louis, Sydney, Toronto, Churchill Livingstone; 2002.

3. Mogotsi M, Kaminer D, Stein DJ. "Quality Of Life In The Anxiety Disorders." Harvard Review of

Psychiatry. 2000; 8(6): 273-282.

4. Lochner C, Mogotsi M, du Toit PL, Kaminer D, Niehaus DJ, Stein DJ. Quality of life in anxiety

disorders: a comparison of obsessive-compulsive disorder, social anxiety disorder, and panic

disorder. Psychopathology. 2003 Sep-Oct;36(5):255-62.

5. Heuer L. "The Occupational Therapy Approach To The Management Of Children With Anxiety

Disorders." Institute For Occupational Therapy In Private Practice (INSTOPP). 2006; 3: 11-13.

6. World Health Organization. International Classification of Diseases (ICD) - 10th Version. (2006).

7. American Psychiatric Association. Diagnostic And Statistical Manual of Mental Disorders.

Washington, American Psychiatric Association. (1996).

8. Kaplan HI, Sadock BJ, Grebb JA. Kaplan And Sadock's Synopsis of Psychiatry: Behavioural

Sciences Clinical Psychiatry. Baltimore, Philadelphia, Hong Kong, London, Munich, Sydney

and Tokyo, Williams & Wilkins; 1994.

9. Crouch R, Alers V. Occupational Therapy In Psychiatry And Mental Health. London &

Philadelphia, Whurr; 2005.

10. Bonder BR. Psychopathology and Function. New Jersey, SLACK Inc. (1991).

37

11. Hagedorn R. Foundations for practice in Occupational Therapy. New York, Edinburgh, London,

Madrid, Melbourne, San Fransisco and Tokyo, Churchill Livingstone; 1997.

12. Jacobs K. Quick Reference Dictionary. New Jersey, SLACK Incorporated; 1997.

13. Texeira L. Definition and Terms in Occupational Therapy, University of the Witwatersrand.

Unpublished; 2006.

14. The Concise Oxford Dictionary, Oxford University Press. (1990).

15. Mountford SW. Orientation To Occupational Therapy: A fundamental approach to Principles

and Practicalities. Cape Town, College Tutorial Press; 1992.

16. Shader RI. Manual of Psychiatric Therapeutics. Philadephia, Baltimore, New York, London,

Buenos Aires, Hong Kong, Sydney and Tokyo, Lippincott Williams & Wilkins; 2003.

17. Willson M. Occupational Therapy In Long-Term Psychiatry. Edinburgh, London, Melbourne

and New York, Churchill Livingstone; 1987.

18. Crepeau Eb, Cohn SE, Boyt BA. Willard and Spackman’s Occupational Therapy. 10th Edition.

Lippincott Publishers. 2003

19. Mogotsi MJ. Skills Laboratory: Interviewing Skills, University of the Witwatersrand.

Unpublished; 2006.

20. Willson M. Occupational Therapy in Short-term Psychiatry. Malaysia, Churchill Livingstone;

1996.

21. Reed KL. Quick Reference To Occupational Therapy. Maryland, Aspen Publishers, Inc; 1991.

38

22. Hopkins HL, Smith HD. Willard And Spackman's Occupational Therapy. Philadelphia, J.B.

Lippincott Company; 1993.

23. Howe MC, Schwartzberg SL. A Functional Approach to Group Work in Occupational Therapy.

Philadelphia, Baltimore, New York, London, Buenos Aires, Hong Kong, Sydney and Tokyo,

Lippincott Williams & Wilkins; 2001.

24. Paul S. "Culture and its influence on occupational therapy evaluation." Can J Occup Ther.

1995; 62(3): 154-61.

25. Gilkeson GE. Occupational Therapy Leadership: Marketing Yourself, Your Profession, and

Your Organization; 1997.

26. Bruce MA, Borg B. Psychosocial Occupational Therapy: Frames Of Reference For

Intervention. Thorofare, SLACK Inc. (1993).

27. Keable D. The Management of Anxiety: A Manual For Therapist. Edinburgh, London,

Melbourne and New York, Churchill Livingstone; 1989.

28. Prabst-Hunt W. Occupational Therapy Administration. Australia, Canada, Mexico, Singapore,

Spain, United Kingdom and United States, Delmar Thomson Learning; 2002.

29. Kielhofner G. Model of Human Occupation: Theory and Application. Maryland and

Pennsylvania, Lippincott Williams & Wilkins; 2002.

30. Henry AD. Introduction to Evaluation and Interviewing: The Interview Process in Occupational

Therapy; 2003.

39

APPENDIX - The Table of evidence

Author Title Source Study population

Type of design

Treatment group

Outcome variable

Findings

Larun L,

Nordheim LV,

Ekeland E,

Hagen KB,

Heian F

Exercise in

prevention

and

treatment of

anxiety and

depression

among

children and

young people

(Cochrane

review)

Cochrane

Database of

Systematic

Reviews

2006;Issue

3

systematic

review

Whilst there appears

to be a small effect in

favour of exercise in

reducing depression

and anxiety scores in

the general

population of children

and adolescents, the

small number of

studies included and

the clinical diversity

of participants,

interventions and

methods of

measurement limit

the ability to draw

conclusions. It makes

little difference

whether the exercise

is of high or low

intensity. The effect of

exercise for children

in treatment for

anxiety and

depression is

unknown as the

evidence base is

scarce.

Kirkwood G,

Rampes H,

Tuffrey V,

Richardson J,

Pilkington K

Yoga for

anxiety: a

systematic

review of the

research

evidence

British

Journal of

Sports

Medicine

2005

Dec;39(12):

884-891

systematic

review

Owing to the diversity

of conditions treated

and poor quality of

most of the studies, it

is not possible to say

that yoga is effective

in treating anxiety or

40

anxiety disorders in

general. However,

there are

encouraging results,

particularly with

obsessive

compulsive disorder.

Further well

conducted research

is necessary which

may be most

productive if focused

on specific anxiety

disorders.

Jorm AF,

Christensen

H, Griffiths

KM, Parslow

RA, Rodgers

B, Blewitt KA

Effectiveness

of

complementa

ry and self-

help

treatments

for anxiety

disorders

Medical

Journal of

Australia

2004;181(7

Suppl):S29-

S46

systematic

review

The treatments with

the best evidence of

effectiveness are

kava (for generalised

anxiety), exercise (for

generalised anxiety),

relaxation training (for

generalised anxiety,

panic disorder, dental

phobia and test

anxiety) and

bibliotherapy (for

specific phobias).

There is more limited

evidence to support

the effectiveness of

acupuncture, music,

autogenic training

and meditation for

generalised anxiety;

for inositol in the

treatment of panic

disorder and

obsessive-

compulsive disorder;

and for alcohol

41

avoidance by people

with alcohol-use

disorders to reduce a

range of anxiety

disorders.

Dunn AL,

Trivedi MH,

O'Neal HA

Physical

activity dose-

response

effects on

outcomes of

depression

and anxiety

Medicine

and Science

in Sports

and

Exercise

2001

Jun;33(6

Suppl):S587

-S597

systematic

review

All evidence for dose-

response effects of

physical activity and

exercise come from B

and C levels of

evidence. There is

little evidence for

dose-response

effects, though this is

largely because of a

lack of studies rather

than a lack of

evidence. A dose-

response relation

does, however,

remain plausible

Scaffa ME,

Gerardi S,

Herzberg G,

McColl MA.

The role of

occupational

therapy in

disaster

preparedness

, response,

and recovery.

Am J Occup

Ther. 2006

Nov-

Dec;60(6):6

42-9

Beutel ME,

Gerhard C,

Wagner S,

Bittner HR,

Bleicher F,

Schattenburg

L,

Knickenberg

R, Freiling T,

Kreher S,

Martin H.

Reduction of

technology

fears in

psychosomati

c

rehabilitation-

-concepts

and results

based on a

computer

training for

older

Z Gerontol

Geriatr.

2004

Jun;37(3):2

21-30

42

employees

Watanabe N,

Machleidt W.

Morita

therapy--a

Japanese

method for

treating

neurotic

anxiety

syndrome

Nervenarzt.

2003

Nov;74(11):

1020-4.

The treatment

consists of an initial

7-day period of strict

and isolated rest in

bed followed by step-

by-step occupational

therapy and final

reintegration into job

and family.

Simo-Algado

S,

Mehta N,

Kronenberg

F,

Cockburn L,

Kirsh B.

Occupational

therapy

intervention

with children

survivors of

war.

Can J

Occup Ther.

2002

Oct;69(4):2

05-17.

The

intervention

was based

on a

community-

centred

approach

with

spirituality as

a central

focus of the

intervention.

The Model of

Human

Occupational

and the

Occupational

Performance

Process

Model were

utilized to

guide the

identification

and

intervention

of

occupational

performance

issues.

With increasing

awareness of

populations facing

social and political

challenges, there is a

growing importance

of the concept of

occupational justice

and the need to work

against occupational

apartheid.

Lohman H,

Royeen C

Posttraumatic

stress

disorder and

traumatic

hand injuries:

a neuro-

occupational

view.

Am J Occup

Ther. 2002 Sep-

Oct;56(5):527-37

Neuro-

occupation is

an evolving

concept that

combines

knowledge

and

understandin

g of

occupation

with

knowledge

and

understandin

g of how the

human brain

functions in

environmenta

l context

a query about the

value of neuro-

occupation as a

developing

theoretical construct

is put forth.

Rosenheck

R,

Stolar M,

Fontana A.

Outcomes

monitoring

and the

testing of

new

psychiatric

treatments:

work therapy

in the

treatment of

chronic post-

traumatic

stress

disorder.

Health Serv

Res. 2000

Apr;35(1 Pt

1):133-51

Questionnair

es

documented

PTSD

symptoms,

violent

behavior,

alcohol and

drug use,

employment

status, and

medical

status at the

time of

program

entry and

four months

after

discharge

from the

hospital to

Substantively this

study suggests that

work therapy, as

currently practiced in

VA, is not an effective

intervention, at least

in the short term, for

chronic, war-related

PTSD

43

the

community.

Davis J,

Kutter CJ.

Independent

living skills

and

posttraumatic

stress

disorder in

women who

are

homeless:

implications

for future

practice.

Am J Occup

Ther. 1998

Jan;52(1):39-44.

Twenty-four

women

residing in a

supportive

housing

shelter in

Kansas City,

Missouri,

volunteered

to participate

in this study.

The

participants

were

evaluated for

independent

living skills

with the

Kohlman

Evaluation of

Living Skills.

Results suggest that

occupational

therapists have a

major role to play,

evaluating and

facilitating

independent living

skills, as members of

multidisciplinary

treatment teams in

supportive housing

programs for persons

who are homeless.

Phillips ME,

Bruehl S,

Harden RN.

Work-related

post-

traumatic

stress

disorder: use

of exposure

therapy in

work-

simulation

activities.

Am J Occup

Ther. 1997

Sep;51(8):696-

700.

Bavaro SM.

Occupational

therapy and

obsessive-

compulsive

disorder.

Am J Occup

Ther. 1991

May;45(5):456-8.

Menks F.

Behavioral

techniques in

Am J Occup

Ther. 1979

A case

history is

The results support

the effectiveness of

44

the treatment

of a writing

phobia.

Feb;33(2):102-7. presented in

which

progressive

muscle

relaxation,

diaphragmati

c breathing,

and flooding

were used to

extinguish

and

countercondit

ion a writing

phobia in a

junior-year

occupational

therapy

student.

these techniques

(systematic

desensitization and

the extinction

techniques of

implosion therapy

and flooding) in

modifying

maladaptive anxiety

or fear arising from a

situation that is not

objectively

dangerous.

Lambert RA,

Harvey I,

Poland F.

A pragmatic,

unblinded

randomised

controlled

trial

comparing an

occupational

therapy-led

lifestyle

approach and

routine GP

care for panic

disorder

treatment in

primary care.

J Affect

Disord. 2006

Sep 29

16 week

unblinded

pragmatic

randomised

controlled

trial in 15

East of

England

primary care

practices (2

Primary Care

Trusts).

Follow-up at

20 weeks

and 10

months.

Control arm,

unrestricted

routine GP

care. Trial

Arm,

Occupational

A lifestyle approach

may provide a

clinically effective

intervention at least

as effective as routine

GP care, with

significant

improvements in

anxiety compared

with routine GP care

at the end of

treatment.

45

therapy-led

lifestyle

treatment

comprising:

Beck Anxiety

Inventory.

46

ATTENTION DEFICIT HYPERACTIVITY DISORDER

Compiled by Keri-Lee Roebert BSc (Occupational Therapy) (Wits) Post-graduate Diploma in Group Activities (Pretoria)

1. INTRODUCTION

The occupational therapist has a vital role to play in the field of Psychiatry. She assists the

client to engage in more satisfying relationships and to display appropriate emotional

responses, treats specific problems, and aids in diagnosis. 1

She assesses and treats clients with visual perceptual and co-ordination difficulties. These

problems may occur in children with a variety of medical and psychiatric diagnoses. One

diagnosis in which these are frequently encountered is Attention Deficit Hyperactivity

Disorder (hereafter referred to as ADHD). 2

Referrals may come from a variety of settings and can include, but are not limited to:

• Hospitals,

• Schools and

• Private practice

2. THE DIAGNOSIS OF ADHD

According to the DSM-IV 3, ADHD can be predominantly inattentive type, or impulsive type,

or combined type. Symptoms need to cause impairment in two or more settings, e.g.

school/work and at home. There needs to be clinically significant impairment in social,

academic or occupational functioning.

There are a number of disorders associated with ADHD: 4, 5

• Specific Learning Disabilities

o Visual perceptual problems

o Auditory perceptual problems

47

o Delays in fine motor development

• Other disruptive behaviour disorders

o Oppositional Defiant Disorder

o Conduct Disorder

• Emotional difficulties

o Anxiety Disorder

o Depressive illness

• Tourette's Disorder/Syndrome

• Obsessive Compulsive Disorder

3. THE IMPACT OF ADHD ON OCCUPATION

Occupation refers to what a person "does". It refers to a person's work (or school for the

school-going child and adolescent), activities of daily living (ACTIVITIES OF DAILY LIVING),

and social and leisure activities.

Children with ADHD may experience significant functional problems, such as difficulties at

school with academic underachievement, problematic interpersonal relationships with family

members and peers, and a low self esteem. These symptoms may persist into adolescence

and adulthood. 5 As a result, the person's occupation could be negatively impacted upon at

all stages of their life, resulting in them not functioning optimally in any of the above

mentioned areas, i.e. work/school, activities of daily living, social activities and leisure

activities. 3.1 Work/School

A number of areas of academic difficulty have been identified for ADHD students: 6, 7

• Work rate

48

They do little or no independent work and must be reminded continuously to return to the

task at hand. They often procrastinate on academic tasks. Work is done extremely

rapidly, with little attention to instructions and careless errors. The work rate can also be

so slow that written work is rarely completed within the given time constraints.

• Reading

They often reverse letters, inverse the letter order in words, confuse or transpose relatively

common words, produce dysgraphic misspellings, and make frequent visual substitutions

in oral reading. They can be so inattentive and distracted while reading that their

comprehension of the material is significantly impaired, or they process the reading

material so slowly that they forget the initial part of a paragraph or even a single sentence

before coming to its end.

• Writing

They write rapidly and pay little attention to the quality and legibility of their work. The

rules of punctuation and capitalisation are often ignored. Some learners exhibit an

extremely slow handwriting rate and their work appears methodical and laborious.

• Spelling

They lack the attention and focus to memorise spelling rules and patterns.

• Mathematics

They exhibit difficulty in computational accuracy and organization. Mathematical problems

are frequently miscopied, sloppily written, and they make numerous errors due to lack of

attention.

• Oral instructions

Their inattention and distractibility play a significant role in their ability to follow oral

instructions.

• Thought processing

Amongst others, they have difficulty understanding, organising and prioritising their

thoughts.

49

• Attention focusing

They have difficulty sustaining attention, refocusing attention and blocking out distractions.

• Visual and auditory memory

Their inattentiveness affects their visual and auditory memory. They have difficulty

processing short-term memory to long-term memory.

• Prioritising

They battle to select the main idea in reading, listening or writing.

• Bridging

Remembering two or more instructions and linking one fact to another is problematic for

them.

• Decoding

They do not comprehend what is read, understand abstract concepts, or connect cause-

and-effect.

• Encoding

They have difficulty finding the correct word with which to express their ideas.

• Neatness

Their work is untidy and often full of smudges.

• Recalling

They forget to bring materials and completed work to school and have difficulty recalling

isolated facts such as names and dates.

• Organizing

They have difficulty ordering things into a logical sequence, selecting important information

and leaving out unnecessary aspects.

50

• Perceiving spatial relationships

They have poor left-right discrimination, form constancy figure-ground perception and

struggle with basic concepts, such as size, colour and shape.

• Eye-hand co-ordination

They struggle with visual tracking, do not keep their place while reading and have poor

handwriting.

• Content areas

They have difficulty with note taking and organisation, they fail to follow through on oral

instructions and do not complete homework. They have difficulty structuring and

organising their study time.

Children with perceptual-motor problems (such as perceiving spatial relationships and eye-

hand co-ordination, mentioned above) may also have some additional emotional problems.

These emotional difficulties may be precipitated by the stress they experience in dealing with

their perceptual-motor problems. In many other instances, a primary emotional stress

exacerbates an underlying perceptual-motor problem. The occupational therapist working

with children referred for visual perception or co-ordination problems needs to pay attention

to these emotional needs in therapy as treatment needs to be holistic. 2

Adolescents may be inattentive, withdrawn, impatient, intellectually dependent, have

negative feelings towards school, and poor relationships with peers and teachers. They may

also have secondary emotional problems which in turn, cause a drop in school performance.

A negative cycle develops, with poor academic performance causing low self-esteem which

contributes to further emotional problems and so on. 8 As with children, the occupational

therapist also needs to pay attention to the emotional problems as the adolescent is viewed,

and therefore treated, holistically.

Adults with ADHD experience difficulty in the sphere of work as they are unable to maintain a

job. They often change jobs frequently due to impulsivity. They are unable to form stable,

appropriate interpersonal relationships with work colleagues and superiors. They often have

51

unconsolidated pre-vocational skills. This will impact on their personal presentation, social

presentation and work competency skills in the work place.

3.2 Activities of Daily Living

The person with ADHD usually has the age appropriate skills to perform activities of daily

living activities. The quality of these activities, however, is usually poor. They show little

attention to detail and their impulsivity results in them completing tasks hastily and untidily.

3.3 Leisure Activities

A person with ADHD has difficulty organising and planning. As a result, they may not be

actively engaged in constructive leisure activities as they experience difficulty in planning

their time and organising appropriate activities.

They may also be involved in inappropriate leisure activities, such as those requiring high

risk, due to their risk-taking behaviour.

If they are involved in leisure activities, e.g. team sports, their behaviour is often

inappropriate and impulsive on the sports field resulting in them receiving disciplinary action,

e.g. a yellow card.

3.4 Social Activities

A person is required to function on a social level in all areas of their life. People with ADHD

have difficulty forming and maintaining appropriate relationships, whether they are with

subordinates, colleagues or authority figures at work, their friends on an informal level or

intimate relationships.

52

4. THE IMPACT OF ADHD ON ROLES, HABITS AND ROUTINES

A person with ADHD may not form appropriate interpersonal relationships. This impacts on

their ability to fulfil their roles; such as father/mother, son/daughter, worker/scholar/student,

friend, appropriately. Due to their impulsivity and poor planning, they may also experience

difficulty in balancing their roles appropriately; for example, they may spend an inappropriate

amount of time being a volunteer when they need to be involved in full-time paid

employment.

The risk-taking behaviour of people with ADHD, especially adolescents and adults, could

result in them engaging in risk-taking habits, such as drug use. They are also more inclined

to drive under the influence of alcohol.

They have difficulty planning and adhering to a routine due to poor planning and

organisational skills. They need firmly established boundaries so they know what is

expected of them. They cope better with changes in routine when prepared in advance for

this.

5. LEVELS OF HEALTHCARE AND PILLARS OF HEALTH IN RELATION TO ADHD

5.1 The Levels of Healthcare

The treatment of ADHD is largely at a primary level as clients are usually seen on an "out

patient" basis. A client is rarely seen in a hospital (secondary level) or academic hospital

(tertiary level) for the treatment of ADHD. If this is the case it is normally for the treatment of

a co-morbid condition, such as a behavioural or emotional disorder.

5.2 The Pillars of Health

Treatment at a preventive level involves educating educators and parents in the identification

of the symptoms of ADHD so that the child can be referred to the appropriate healthcare

professional.

53

Promotive care, in the case of ADHD, takes more of a consultative role, where the

occupational therapist can assist the educator in structuring the classroom, for example, so

that optimal learning can take place for the ADHD student. The occupational therapist can

also be involved in the work place where the employer is consulted with in terms of making

reasonable accommodations for the person with ADHD at work.

Treatment of ADHD takes place largely on a curative level where the occupational therapist

treats both the internal performance components, e.g. impulsivity, and the occupational

performance area, e.g. school/work, which have been impacted upon.

At a rehabilitative level, clients are given the necessary coping skills to function as optimally

as possible, within the limitations of their ADHD, and to maintain their quality of life.

6. ASSESSMENT OF ADHD

Assessment and evaluation is an ongoing process. It needs to precede treatment, be

repeated at least once during intervention, and conclude the therapy process. 1

6.1 Referral

A referral for an occupational therapy assessment may be made by a psychologist, doctor,

physiotherapist, speech therapist or teacher. It is recommended that if long-term therapy is

required the referral comes from a doctor. 2

6.2 Interview

An interview is conducted with the parent/guardian/caregiver in the case of a child or the

client himself if an adolescent or adult. During the interview detailed background information

is gathered. Information gained during the interview often clarifies or expands on the

assessment findings1, 2, 8. If a background questionnaire has been completed by the

parent/guardian/caregiver/client prior to the interview, the interview can be expected to take

half an hour. 2 If not, a longer time will be needed.

54

6.3 Evaluation

The occupational therapy assessment evaluates the client holistically.

During evaluation the occupational therapist observes the child's: 1

• Behaviour

• Conduct

• Motor behaviour

• Attention span

• Play

• Language

• Activities

• Habitual manipulations

• Sexual behaviour

• Mood

• Relationships towards peers and staff

The adolescent's environment and community (family, culture and peer group), basic abilities

(cognition, affect and conation), task performance (school, leisure time, ACTIVITIES OF

DAILY LIVING and interpersonal relationships) and aspects specific to adolescents

(developmental tasks and values) should all be assessed. 8

The occupational therapist makes use of standardised and non-standardised assessment

tasks.

The choice of tests used depend upon factors such as the age of the child, presenting

problems, the time available for assessment and the occupational therapist's qualifications

and experience. 2

Non-standardised assessment tasks are, for example, cutting with a pair of scissors, ball

throwing and catching, and handwriting samples. 2 With adolescents, for example, activities

are used, where they are required to produce an end product, which assess their internal

55

components and functional abilities. 8 Group sessions assist in assessing a client's

dysfunction in terms of interpersonal relationships. 8

Below is a table of some of the standardised tests available to occupational therapists to

assess a client diagnosed with ADHD: 1, 2, 8

Test Age Aspects assessed

The Test of Visual Motor

Integration (3rd revision)

(Beery, K.E.)

4 years 0 months to

17 years 11 months

Visual motor integration ability:

• Visual perception

• Transducing

• Motor reproduction

Developmental Test of

Visual Perception (2nd ed)

(DTVP-2)

(Hammill,et al)

4 years to 10 years

11 months

Eye-hand co-ordination

Motor reduced visual perception

Visual motor integration

Test of Visual Perceptual

Skills (TVPS non-motor)

(Gardner, M.F.)

4 years to 12 years

11 months Visual perception (no motor skills are required)

Test of Visual Perceptual

Skills (non-motor) Upper

Level (TVPS-UL)

(Gardner, M.F.)

12 years to 17 years

11 months Visual perception (no motor skills are required)

Test of Visual Motor Skills

(TVMS)

(Gardner, M.F.)

2 years to 12 years

11 months Visual motor integration ability

Test of Visual Motor Skills

Upper Level (TVMS-UL)

(Gardner, M.F.)

12 years to 39 years

11 months Visual motor integration ability

Motor-free Visual

Perceptual Test (MVPT)

(Colarusso and Hammill)

4 years to 8 years

11 months

Screening test of visual perception (no motor skills are

required)

Test of Motor Impairment

(Stott, Moyes Henderson) 5 years to 11 years Fine and gross motor co-ordination

Pre-School Test

(Geselle Institute of

Human Development)

2 years 6 months to

6 years

Fine and gross motor co-ordination

Visual perception

Visual motor integration

Language

56

Southern California

Sensory Integration Test

(Ayres, A.J.)

4 years to 10 years

11 months

Visual perception

Somatosensory perception

Fine and gross motor co-ordination

Clinical Observations

(Ayres, A.J.)

4 years to 10 years

11 months

Gross motor co-ordination

Neurological screening

Modular Arrangement for

Predetermined Time

Standards

Adolescents and

adults

Applied to assess school and work functioning in terms of

physical tasks

The evaluation varies from 1 ½ to 3 hours, depending on the client's tolerance, attention

span and age1, 2. Sometimes an evaluation needs to be divided into two or three sessions.

6.4 Assessment Report

The assessment report is a compilation of information obtained during the interview and

evaluation. The information contained in the report is used to:

• Plan a therapy programme

• Evaluate progress after a period of treatment

• Inform other professionals involved in the client's treatment

6.5 The Feedback Interview

Finally, feedback is given on the assessment findings. Feedback is usually given to parents

to discuss the findings of the assessment and to make recommendations based on the

findings. 2

7. APPROACHES, PRINCIPLES AND TECHNIQUES USED

The occupational therapist forms part of the multi-disciplinary team. The team decides on

the best therapeutic approach and handling strategies to use for a client and all involved in

the treatment of the client are expected to adhere to the decision. 1, 8

57

7.1 Approaches

The occupational therapist uses a variety of approaches during therapy. They may use one

approach or a combination of approaches for a single client to direct therapy.

7.1.1 Client centered approach

Occupational Therapists make use of a client centered approach whereby the client is

involved in the decision making process regarding the direction of their therapy. Their

interests, roles, needs and habits are taken into consideration during therapy.

7.1.2 Analytical approach Therapy is directed at improving the client's insight and understanding of himself and their

environment. The occupational therapist does not interpret, but assists the client to reflect

on the past and their feelings. 8

7.1.3 Interactive approach

This approach is used largely during occupational group therapy where focus is on the here

and now, and on the interaction between the group members and the insight the client gains

from this. 8

7.1.4 Cognitive-behavioural approach

The client learns to solve problems more effectively, and acquires new skills in interpersonal

relationships, e.g. assertiveness training. 8

7.1.5 Behavioural approach

Therapy aims at changing dysfunctional behaviour, and learning and reinforcing appropriate

behaviour.

58

7.2 Principles and Techniques

Based on assessment findings a detailed treatment programme is planned.

Therapy with children is usually through the medium of play, and they are usually treated

individually. 1

Occupational group therapy is the therapy of choice for adolescents and adults, particularly

where their interpersonal relationships are dysfunctional. 8

As clients are treated holistically, the occupational therapist will address concurrent

emotional and behavioural problems, as well as any perceptual and co-ordination problems

so that the treatment programme can be implemented effectively. 2

Once the treatment programme has been drawn up, the occupational therapist needs to

decide on the duration and frequency of the treatment sessions. Each individual session

usually lasts from half an hour to one hour and the client could be seen once or twice a

week. Two ½ hour sessions a week are often more beneficial for the young, preschool child

than one longer session once a week. 2

If the client is treated in a group, the treatment session is usually 1 ½ hours long.

Appropriate activities are selected for therapy taking, amongst others, the following into

account: 2

• The principles of therapy

• The client's level of motivation and action 9

While a child is receiving occupational therapy, the parents need to observe and discuss the

treatment programme with the occupational therapist. These appointments need to be

arranged regularly (monthly or once a quarter). The frequency of these appointments will

depend on the nature and severity of the child's problems. 2

59

Most clients requiring occupational therapy require it for an extended period of time, i.e. 12 to

18 months. 2

6. RESEARCH EVIDENCE

Author Study population

Type of design

Treatment group

Outcome variable

Findings

Abrahams,

Creighton,

Naidoo, Parker,

Pillay and

Wegner (1999)

Adolescents in

grade 10 at a

high school in a

low socio-

economic area

of the Western

Cape, South

Africa

Qualitative

research design

Life skills

programme with

16 grade 10

learners: 7 boys

and 9 girls

whose ages

ranged from 14

to 16 years

Reflective

worksheets and

journals after

life skills groups

Life skills have

a positive effect

on adolescents

in terms of

independent

adjustment

Arnold, Clark,

Sachs, Jakim

and Smithies

Primary school

children who

met the criteria

for ADHD with

hyperactivity

Controlled

clinical trial

30 primary

school children

who met the

criteria for

ADHD with

hyperactivity

Behaviour

ratings

Behaviour

ratings showed

significant

improvement at

the end of the

last treatment

and at follow-up

1 year later

Schilling,

Washington,

Billingsley and

Deitz (2003)

Children with

attention deficit

hyperactivity

disorder

A single subject,

A-B-A-B

interrupted time

series design

American 4th

grade children

(2 boys, 1 girl)

with ADHD

In-seat

behaviour and

legible word

productivity

The use of

therapy balls for

students with

ADHD may

facilitate in-seat

behaviour and

legible word

productivity

Shaffer,

Jacokes,

Cassily,

Greenspan,

Tuchman,

Stemmer

Boys, 6-12

years old, with

attention deficit

hyperactivity

disorder

Controlled

clinical trial

56 boys, 6-12

years old

previously

diagnosed with

ADHD

Cognitive and

motor skills

The Interactive

Metronome

training appears

to facilitate a

number of

capacities;

60

including

attention, motor

control, and

selected

academic skills

in boys with

ADHD

Van Den Berg

(2001)

Children with

attention deficit

hyperactivity

disorder

Qualitative

research design

4 American

students with

ADHD

On-task

behaviour

during fine

motor activities

in the classroom

Wearing a

weighted vest

increased on-

task behaviour

by 18-25%

7. CONCLUSION

Literature shows that occupational therapy intervention has a significant impact on the

performance capacity of people with ADHD in all spheres of life. It is, therefore, clear that

the occupational therapist has a vital roe to play in the assessment, treatment and

management of this disorder.

61

8. REFERENCES 1. Crouch, R.B. Occupational Therapy in Child Psychiatry in Crouch, R.B. and Alers,

V.M. Occupational Therapy in Psychiatry and Mental Health, 3rd ed. Maskew Millar

Longman: South Africa. 1997.

2. Kitchin, L.M. Occupational Therapy for Children with Perceptual, Motor and Emotional

Difficulties in Crouch, R.B. and Alers, V.M. Occupational Therapy in Psychiatry and

Mental Health, 3rd ed. Maskew Millar Longman: South Africa. 1997.

3. American Psychiatric Association. Diagnostic and Statistical Manual of Mental

Disorders, 4th ed. American Psychiatric Association: Washington. 1994.

4. Attention Deficit Hyperactivity Booklet. Sponsored by Novartis.

5. Committee on Quality Improvement, Subcommittee on AD/HD. Clinical Practice

Guidelines: Diagnosis and Evaluation of the Child with Attention-Deficit/Hyperactivity

Disorder. American Academy of Paediatrics. Vol 105, No 5. May 2000.

6. Taylor, J.F. The ABC's of ADD and Related Conditions for Parents, Teachers,

Counsellors and Other Involved Caregivers. 2002 International Conference on

Attention Deficit Hyperactivity Disorder and Co-Morbid Disorders. Pretoria, 2002.

7. Copeland, E. Academic Problems of ADHD/ADD Students. 2002 International

Conference on Attention Deficit Hyperactivity Disorder and Co-Morbid Disorders.

Pretoria, 2002

8. Post, L. and van Antwerpen, T. Occupational Therapy with Adolescents in Crouch,

R.B. and Alers, V.M. Occupational Therapy in Psychiatry and Mental Health, 3rd ed.

Maskew Millar Longman: South Africa. 1997.

9. Du Toit, V. Patient Volition and Action in Occupational Therapy. Vona and Mariè du

Toit Foundation: South Africa. 1991.

62

DEMENTIA

Compiled by Michele Nye National Diploma Occupational Therapy(Pretoria) BSc (UNISA)

Post-graduate Diploma in Interpersonal Communication and Group Technique(Pretoria)

Post-graduate Diploma in Vocational Rehabilitation(Pretoria)

1. INTRODUCTION

Dementia has far reaching consequences for patients and their primary care givers and is

currently a major driver of costs in health care and social systems in developed countries.

Major problems are the losses in independence, initiative, and participation in social

activities, decreasing the quality of life of patients and putting pressure on both family

relationships and friendships. Care givers often experience feelings of helplessness, social

isolation, and loss of autonomy. Occupational therapy is found to be effective in treatment

and assessment of dementia. The primary focus of such a therapy is to improve patients'

ability to perform activities of daily living and hence promote independence and participation

in social activities and to reduce the burden on the care giver by increasing their sense of

competence and ability to handle the behavioural problems they encounter. These outcomes

are increasingly being considered equally or even more clinically relevant than measures of

cognitive outcome.1

Referrals may come from various sources and can include, but are not limited to:

• Other health professionals

• Hospitals

• Care givers

• Support groups

• Social workers

2. DIAGNOSIS

ICD10 Classification

F00 Dementia in Alzheimer's disease F00.0 Dementia in Alzheimer's disease with early onset

63

F00.1 Dementia in Alzheimer's disease with late onset

F00.2 Dementia in Alzheimer's disease, atypical or mixed type

F00.9 Dementia in Alzheimer's disease, unspecified

F01 Vascular dementia F01.0 Vascular dementia of acute onset

F01.1 Multi-infarct dementia

F01.2 Subcortical vascular dementia

F01.3 Mixed cortical and subcortical vascular dementia

F01.8 Other vascular dementia

F01.9 Vascular dementia, unspecified

F02 Dementia in other diseases classified elsewhere F02.0 Dementia in Pick's disease

F02.1 Dementia in Creutzfeldt-Jakob disease

F02.2 Dementia in Huntington's disease

F02.3 Dementia in Parkinson's disease

F02.4 Dementia in human immunodeficiency virus [HIV] disease

F02.8 Dementia in other specified diseases classified elsewhere

F03 Unspecified Dementia

DSM-IV Classification

290.0 Dementia of the Alzheimer’s Type, With Late Onset, Uncomplicated

290.10 Dementia due to Pick's Disease

290.10 Dementia due to Creutzfeld-Jacob disease

290.10 Dementia of the Alzheimer’s Type, With Early Onset, Uncomplicated

290.11 Dementia of the Alzheimer’s Type, With Early Onset, With Delirium

290.12 Dementia of the Alzheimer’s Type, With Early Onset, With Delusions

290.13 Dementia of the Alzheimer’s Type, With Early Onset, With Depressed Mood

290.20 Dementia of the Alzheimer’s Type, With Late Onset, With Delusions

64

290.21 Dementia of the Alzheimer’s Type, With Late Onset, With Depressed Mood

290.3 Dementia of the Alzheimer’s Type, With Late Onset, With Delirium

290.40 Vascular Dementia, Uncomplicated

290.41 Vascular Dementia, With Delirium

290.42 Vascular Dementia, With Delusions

290.43 Vascular Dementia, With Depressed Mood

3. THE IMPACT OF DEMENTIA ON OCCUPATION

Occupation refers to what a person "does". Kielhofner2 explains the "occupational

functioning of persons" as "how persons choose, order, and perform in everyday

occupational behaviour. Kielhofner focuses on both the individual's characteristics and the

environment as factors that influence choices and behaviour". Occupation, therefore, refers

to a person's work, activities of daily living, and social and leisure activities, within the

context of their environment.

The findings of the review of 23 studies indicated that occupation has an important influence

on health and well-being. Withdrawals or changes in occupation for a person have a

significant impact on a person’s self perceived and well-being. These performance

components that are experienced by clients with dementia will affect their occupation and or

performance areas as follows:4

3.1. Work

Due to the impairment of cognitive function, the person with dementia will have a decline in

their work abilities. The individual can work relatively well in familiar surroundings at routine

tasks but new tasks are difficult to execute. Colleagues will often be aware of the

deterioration. Studies show that persons with dementia who continued working in a repetitive

work environment showed less decline in daily living activities. Compared to traditional day

care activities, work activities involve sequencing skills and practice may translate to self-

care activities at home.4

65

3.2 Activities of daily living

The person with dementia shows a systematic decline in the ability to perform everyday

tasks such as self care tasks that include bathing and dressing, domestic activities such as

cooking, housework, or shopping, and community survival skills such as driving or using

public transport.5 6 8

3.3 Leisure activities

While the person may have the energy and desire to do things, they may lack the ability to

organise, plan, initiate and successfully complete even simple tasks. Sometimes it’s

impossible to get started. At other times they get into a muddle and are seen as negative and

uncooperative. They therefore have no way to express their talents and abilities5 6 8

3.4 Socialisation

Social problems occur due to decreased confidence, fear of failure, social isolation and low

self-esteem. Care givers may become less sympathetic and more intolerant. Such problems

by their very nature limit the individual’s level of independence.5 6

4. IMPACT OF DEMENTIA ON ROLES, HABITS AND ROUTINES With the deficits that occur with dementia, caregivers usually tend to concentrate on the

basic physiological needs of the individual. The roles, previous habits and routines are often

not considered and are lost. The occupational therapist may assist the patient with

identification of new roles, which will be satisfying to the individual. When established habits

and routines are not taken into consideration, the level of independence is likely to reduce at

a faster rate. There is a role reversal and the individual changes from being the caregiver to

becoming the dependant.5 6 8

66

5. HEALTH CARE STRUCTURES 5.1. Pillars of health care

5.1.1. Preventative/Promotive

Promotive care, in the case of Dementia, takes more of a consultative role, where the

occupational therapist can assist the caregiver in structuring the environment. In the case

of high-risk individuals, a healthy lifestyle, while not preventing dementia, appears to

delay the onset of dementia.

5.1.2. Rehabilitation

This is the process of giving the client the resources, including specialized treatment and

training, to promote improvements in activities of daily living, thereby encouraging

maximum independence and quality of life.

OT strategies in this regard, will focus on expanding the support network.

5.1.3. Maintenance

At a maintenance level, clients and their caregivers are given the necessary coping skills

to function as optimally as possible, within the limitations of the dementia, and to maintain

their quality of life.1 5 8

5.2. Levels of health care

5.2.1. Primary care1

The treatment of dementia is predominantly on a primary level as clients are usually seen

in the community.

67

Improvement in activities of daily living and sense of competence are associated with a

decrease in need for assistance and this could in the long term result in less need for

institutionalization.9

Mittleman reports a long term study showing that spouses of Alzheimer’s patients are less

likely to place their loved ones in a nursing home if the spouses receive enhanced

counselling and caregiver support.9

Training families to use adaptive techniques using familiar objects such as clocks and

calendars can help people in the early stages of dementia.

5.2.2. Secondary level

Initial contact is made with the patient and the caregiver and assessment is performed at

the secondary level. Based on the assessment, a care strategy is developed, with input

from the client as well as the caregiver. The client is introduced to therapeutic activities,

as an introduction to activity participation.

5.2.3. Tertiary level

Initial contact is made with the patient and the caregiver and assessment is performed at

the tertiary level. Based on the assessment, a care strategy is developed, with input from

the client as well as the caregiver.

The client is introduced to therapeutic activities, as an introduction to activity participation.

6. ASSESSMENT 6.1. Baseline assessment1

Each person has to be compared against their own previous abilities and behaviour hence

the importance of gathering information from people who have known the person prior to the

onset of deterioration and carrying out in depth baseline assessments to compare

functioning over time. 1

68

Since available assessment tools to diagnose dementia assume a previous intact level of

cognitive functioning, this poses difficulties in diagnosing people who have a learning

disability and cannot be compared against the general population.5

Research recommends that baseline assessments are carried out in all people who have

Down’s syndrome from the age of 35 years with reassessments every 5 years unless

changes in behaviour, skills or routines are noticed, when reassessment will be on an

ongoing basis.5

6.1.1. Professional Interview

An interview is conducted with the caregiver and the client. During the interview detailed

background information is gathered.

6.1.2. Clinical Observation

This is an ongoing process. During the interview the therapist will observe the client’s

non-verbal signs such as tone of voice, gestures, facial expression and personal

appearance.

The therapist will also observe the client’s performance and behaviour during

standardized and non-standardized tests and compare that with the assessment results.

The client will also be observed during participation in various activities and discussion

groups as part of on-going assessment.5 8

6.1.3. Evaluation

The following aspects should be covered during evaluation:5 8

• Core Identity

• Psychological Background

• Interests

• Cognition (level of consciousness, concept formation, memory, attention span and

concentration, judgement, planning and organisation, abstract thought, problem solving

and intellect)

69

• Emotional state (affect and mood)

• Visual perceptual skills (spatial relationship, etc)

• Senses/sensation (sensory deprivation/ sensory capacity)

• Motor skills (mobility/ambulation, motor coordination, visual motor coordination

• Social skills (lack of recollection of familiar individuals, level of interest in other people,

difficulty finding words during communication etc)

• Performance areas (activity of daily living, work, leisure, socialisation)

The following are examples of standardized tests that can be used1:

• Brief Cognitive Rating Scale (BCRS)

• Assessment of Motor and Process Skills (AMPS)

• Interview of Deterioration in Daily Activities in Dementia (IDDD)

• Canadian Occupational Performance Measurement (COPM)

• Dementia Quality of Life Instrument (DQOL)

• Sense of Competence Scale (SCQ)

• Mastery Scale.

• Interest checklist

• COTNAB

• Rivermead Behavioural Memory Test

• Role change assessment

• Cognitive Assessment of Minnesota (CAM)

Care should be taken that a client is not set up for failure.

6.1.4. Environmental Assessment 5 8

The once familiar and secure environment of home and/or day occupation can become

over stimulating and a confusing place for the person with dementia. The task of looking

at the environment from the person’s perspective and how aspects within it can be

threatening, confusing and difficult to predict is one which is crucial in assisting the

person to maintain daily routines and self esteem9.

70

6.1.5. Collateral Information5 8

Collateral information is obtained to confirm observations made and information gathered

during the assessment. Collateral information is essential from caregivers, healthcare

professionals, domestic staff, friends and other family members.

6.1.6 Assessment Report

Assessment reports are issued only to registered healthcare professionals unless

otherwise requested by permission of the caregiver. (Ethical Rules HPCSA 2006). 8

6.2. Ongoing assessment5 8

Assessment should be ongoing and formal assessment should be performed annually to

monitor progress. In cases where marked deterioration is clinically observed, assessment

should be repeated.

7. INTERVENTION 7.1 Role of Occupational therapy in the treatment of dementia9

Intervention by the occupational therapist is most effective as part of multi-disciplinary team

approach especially at secondary and tertiary level.

Key aim - To promote and maintain independence at home and in the community3

The use of environmental modifications is critical to task success and to satisfaction with

performance. Modification can be made in the client’s approach to the task, in the therapist’s

or caregiver’s approach, and in how the occupation, task, or exercise is set up or performed.

The following table lists specific modifications that may be made to the context in order to

promote occupational performance.9

71

Modifications by Therapist / Caregiver

Modifications in the Occupation, Task, & Exercise itself

Modifications by the Client

• Change verbal and body

language, concreteness of

instructions, physical cues

or reassurance

• Change tone of voice

• Change type of feedback

(verbal, written, pictures,

photos, physical)

• Change when and how

often feedback is given

• Change how feedback is

explained

• Change own expectations

biases (alter own value

judgments about ideal /

necessary performance)

• Change sensory modalities

challenged during a task

(i.e. decrease tactile,

auditory, or visual

distractions)

• Change amount of work

load (i.e. set up task to limit

number of steps, lay out

needed objects, label

cabinets and drawers)

• Change complexity of task

(i.e. simplify the number of

objects, the number of

steps, the number of

instructions, the form of

instructions, the type of

instructions or feedback)

• Change pace/speed of

task

• Change duration of task

• Change awareness levels

(arouse prior to task

performance)

• Change safety challenges

• Change need for error

detection & correction

• Change the social

environment

• Change postural readiness

prior to task performance

• Change organizational

strategies prior to task

performance

• Change medication or its

timing

Adapted from: Abreu, B. C. (1990). The quadraphonic approach: Evaluation and treatment of

the brain injured patient. New York: Therapeutic Service Systems.

Modification to the environment 8 9

Environments should be

• Predictable

• Calm

• Make sense

• Structured

• Suitably stimulating

• Familiar

72

In addition to looking at the aspects of the environment which would assist any person with

physical and/or sensory impairment – access, layout, aids to independence there are

specific aspects to consider for someone who is experiencing cognitive decline.

Consider should be given to the lighting, reflections and images which can be misinterpreted

or be a cause of fear and uncertainty.

• Mirrors and pictures should have non glare glass to avoid reflections being

misinterpreted

• It is suggested that turning the lights on 2 hours before dusk will lessen the agitation

and confusion which happens in the latter part of the day (Sundowning)

People with Dementia find it difficult to differentiate between colours, colours at the top end

of the spectrum such as red orange and yellow should be used to emphasize triggers

• Doors can be painted to aid with recognition e.g. bedroom, toilet etc.

• Conversely walls and doors can be painted the same colour to camouflage exit

routes.

Consideration should be given to the décor of rooms

• Patterned wallpapers can over stimulate and cause anxiety

• Matching carpets, suite and curtains can blend into one another which can cause

problems for people in finding somewhere to sit

• Carpets should ideally be self coloured and run throughout the house to avoid

problems in entering different rooms – perceived as a drop or a step (depth

perception). Conversely different coloured carpets in each room can aid with

recognition of that room

• Floors should have a dull non shiny finish. A shiny floor can be perceived as a pool of

water.

Pictorial information to aid with understanding should be used

• Pictures ,symbols or objects which have meaning for the person

73

Dementia friendly design

• Accommodate wandering by securing garden area, camouflaging gates and making a

path with areas for rest and which brings the person back round to the building

• Within the home, doors should be removed from the living area to allow the person to

hear and see others which can help if the person develops paranoia, they will know

where the sounds are coming from.

• Cupboard doors should be removed from the cupboards you want the person to

access

• Consider door handles, locks and opening mechanisms. A simple change can prevent

easy access.

Occupational therapists use a variety of approaches during intervention with clients who

have dementia. The goals of therapy include maintaining, restoring, and improving

occupational performance; promoting health and quality of life; and easing caregivers’

burden 4

7.1.1. Self care tasks and community survival skills

Self care is occupation that enables the individual to survive and that promotes and

maintains health.9

The occupational therapist aims to form a partnership with the individual to help identify

important areas of everyday life that may have been affected by the condition. For

example these areas may include everyday pursuits such as leisure activities, driving or

using public transport, domestic activities such as shopping, cooking, or housework, self-

care tasks such as bathing and personal matters such as intimate relations.6

The occupational therapist works with that individual to look at possible solutions that

may help maintain or improve independence in those areas. For example the OT will

provide discrete practical help in tackling memory problems, and help the individual to

engage successfully in the activities that they wish to pursue.6

Personal history should be used to develop these activities

74

7.1.2. Leisure and or Recreational activities

It’s important that the individual suffering from dementia should engage in a wide range of

leisure activities including sports, arts and crafts, attending concerts and participating in

activities that will bring meaning and fun into their life.

7.1.3. Socialisation

The occupational therapist actively assists the individual to cope with the social and

psychological problems, which may accompany the condition, such as decreased

confidence, fear of failure, social isolation, and low self-esteem. Such problems by their

very nature limit the individual’s level of independence. The OT will help the individual to

learn coping skills by using activities and treatment techniques in a carefully measured

and graded way.

Studies show the benefits of remaining active in later life. Furthermore, an exclusive

emphasis on exercise and fitness activity may be overly narrow. While it is recognized

that all social activity has the potential to include physical activity, as has been argued by

Yates,11 the physical actions in which humans engage are inherently social in nature as

well. Social and productive activities are seen as complements to exercise. On their own,

social and productive activities have independent health benefits.

A study by Glass reports on the impact of activity on risk of all cause mortality among

elderly people. More active elderly people were less likely to die than those who were less

active. Social and productive activities were observed to confer equivalent survival

advantages compared with fitness activities. This observation is important because it

suggests that activities that entail little or no physical exertion may also be beneficial. A

wider range of mechanisms, both physiological and psychosocial, may be involved in the

association between activity and mortality than had been previously thought11.

Structured Occupational Therapy groups, taking the individuals strengths and

weaknesses into consideration, allow for positive social interaction.

75

Maintaining identity5

The client’s likes, dislikes, personal habits and interests, strengths and weaknesses need

to be part of the profile of the individual. While this forms part of the assessment process,

it is necessary to constantly incorporate these aspects into activities to ensure that the

core identity is maintained for as long as possible. These include:

• How does client prefer to be addressed? Nickname?

• Sleeping patterns

• Bath time routine

• Eating patterns

• Method of dressing

• Bladder and bowl habits

• Hobbies and interests

• Profession

• Family details

• Personal history

• Religious beliefs

• Pre-morbid personality

Promotion of awareness and orientation5 8

Promote orientation and maximize awareness through environmental modification.

Sensory stimulation5 8

Optimal level of sensory stimulation should be provided avoiding under- and overload.

Rote learning5 8

Activities based on rote learning such as old songs, poems, dances etc. contribute

towards a sense of achievement and well-being

76

Reality Orientation5 8

The emphasis is on reality assurance and should not be for repetition or recall. Feelings

should be addressed rather than focussing on accuracy - especially when the individual is

paranoid.

Awareness of e.g. Seasons, Xmas, Easter.

Reminiscence therapy5 8

Reminiscence therapy focuses on long-term memory and past experiences.

Life story work5 8

This involves compiling a record of the person’s life through pulling together photographs,

objects, and mementos which hold meaning for the person and are significant to them in

remembering their past. The process of working closely with an individual to remember

their past and share it with significant others should be as therapeutic as the use of the

product.

Cognitive5 8

Ongoing cognitive stimulation includes participation in games and making use of familiar

phrases.

Exercise A study by Larson found a potentially important effect modification between exercise and

physical functioning in relation to incident dementia as well as Alzheimer disease. There

was a greater risk reduction of dementia by exercise among persons with lower levels of

physical functioning compared with those with higher levels of physical functioning. Low

levels of physical functioning were associated with an increased risk for dementia among

persons who exercised fewer than 3 times per week; however, this increased risk

diminished among persons who exercised 3 or more times per week. The finding

77

suggests that one of the ways that exercise might reduce the risk for dementia is through

modulating the relationship between physical functioning and dementia. It is suggested

that exercise does not prevent dementia but might be associated with a delay in onset 12

Support to care-giver reduces negative effects on care-giver.

The negative effects on the primary care-giver are reduced by improving daily

performance, communication, sense of competence and quality of life of a person with

dementia and his or her primary caregiver. A combination of education, setting feasible

goals, using adaptations in physical environment, training compensatory skills, training

supervision skills, and changing dysfunctional cognitions on patient behaviour and

caregiver role are considered to be beneficial.1

7.2. Theoretical framework

7.2.1 Models

Creative Ability Model (Vona du Toit)13

This is a South African approach that was elaborated in 1962 by Vona du Toit. This

approach is used to evaluate the client’s occupational performance according to the skills

he has attained in the personal, social, work and recreational occupational performance

area 3.

It also provides guidelines for treatment by:

• Identifying treatment priorities

• Proposing principles that guide treatment so that it is appropriate to the client’s

level

• Determine expectations for performance, as well as how and when to up or

downgrade the treatment.

78

This approach also helps the occupational therapist to categorise patients efficiently in

terms of their occupational performance needs and it enables the correct treatment to be

administered at the right time and in the most cost effective manner.3.

This approach does not represent the whole of occupational therapy for the client. It has

an assessment aspect, which determines the level on which the client functions and then

provides a stratified guide to increase the client’s level of performance.

This approach accommodates clients suffering from dementia, and it assists with proper

grouping and approach during the intervention. This theory postulates that creative ability

consist of two components:

• The inner drive towards action

• The externalisation of this motivation in action, which is seen through the

creation of concrete or abstract end-products in daily life.

More research is being done by South African occupational therapists to standardize this

approach, and to evaluate its reliability and validity.16

The occupational therapist can make use of a variety of models during the treatment of a

client with Dementia.

Model of Human Occupation (Kielhofner)2

• The model addresses a person’s occupational behaviour and occupational

dysfunction.

• Occupation is essential to human self-organization. Through occupations,

persons exercise their capacities and generate on-going experiences that

affirm and shape their psyches. Therefore the order or organization of humans

depends on occupational behaviour.

• Occupational therapy engages persons in occupational behaviour that helps

maintain, restore, reorganize, or develop their capacities, motives and

lifestyles.

79

• Specific subsystems contribute to occupational behaviour and needs to be

addressed i.e. volition, habituation and mind-brain-body performance.

7.2.2. Frames of Reference/Approaches for the treatment of Dementia

The occupational therapist uses a variety of frames of reference and approaches during

therapy. These may be used in combination for a single client to direct therapy.

Some of the approaches are summarized below as follows:

Humanistic approach/Client centered approach1 16

Occupational therapists make use of a client centered approach whereby the client and

the caregiver are involved in the decision making process regarding the direction of their

therapy. The client is given the opportunity to have the capacity for self awareness and to

make their own choices. Their interests, roles, needs and habits are taken into

consideration during therapy.

The therapeutic relationship is of great importance in order to facilitate the above,

therefore the therapist should be empathetic, congruent, warm, genuine and show

unconditional positive regard for the client.20

Physiological approach 1 16

The individuals is a biological ergonomist whose behaviour depends on genetically

determined factors, combined with selective action of nervous and endocrine systems

and the ability of the body to maintain homeostasis. Performance depends on the

integrity and the interactions of all body systems (e.g. cardiovascular, musculoskeletal

etc). Examples of activities that use the physiological approach are aerobics, ball games

etc.

80

Psychosocial Interactive approach13

This approach is used largely during occupational group therapy where focus is on the

here and now, and on the interaction between the group members and the insight the

client gains from this.10

Behavioural approach

Therapy aims at changing dysfunctional behaviour, and learning and reinforcing

appropriate behaviour.

Sensory integrative approach Sensory integration is the organisation of sensation for use. Sensory integrative approach

to the treatment of dementia may include controlled sensory stimulation as reduced

senses and reduced exposure to the environment may lead to sensory deprivation.5 8

Cognitive approach

This theory tries to understand the thought process such as memory, conceptualisation,

and perceptions, and also to provide theories about how the person forms relationships

between concepts, how he interprets structure and how he makes sense of the

surrounding environment. Therefore, the emphasis lies on each person’s perception and

interpretation.5 8

Logical reasoning (also seen in problem solving) and concept formation forms part of this

approach.

The learning process is an example of the cognitive approach.

81

7.3. Time Span

As Dementia is a progressive condition, assessment and intervention would be ongoing.

Primary level - Community/Outpatient basis 1

10 x 1hr sessions

• 4 x sessions of comprehensive assessment

• 6 x individual sessions

• Weekly Occupational group therapy sessions lasting 90min.

Secondary level

6 x 1hr sessions

• 4 x sessions of comprehensive assessment

• 2 x individual sessions

10 x Occupational group therapy sessions lasting 90min

Tertiary level

6 x 1hr sessions

• 4 x sessions of comprehensive assessment

• 2 x individual sessions

Daily Occupational group therapy sessions lasting 90min

8. TABLE OF EVIDENCE

Author Study population

Type of design

Treatment group Outcome variable

Findings

Graff, Vernooij-

Dassen, Thijssen,

Dekker,

135 patients

aged ≥65 with

mild to

moderate

dementia living

Single blind

randomised

controlled

trail.

Assessors

10 sessions of

OT over 5 weeks.

Cognitive and

behavioural

interventions,

Patients' daily

functioning

assessed with the

assessment of

motor and

Scores improved

significantly relative

to baseline in

patients and care

givers in the

82

Author Study population

Type of design

Treatment group Outcome variable

Findings

Hoefnagels

& Olde

Rikkert1

in the

community and

their primary

care givers.

blinded for

treatment

allocation

training patients

in use of aids to

compensate for

cognitive decline

and care givers in

coping

behaviours and

supervision.

process skills

(AMPS) and the

performance

scale of the

interview of

deterioration in

daily activities in

dementia (IDDD).

Care giver burden

assessed with the

sense of

competence

questionnaire

(SCQ).

Participants were

evaluated at

baseline, six

weeks, and three

months.

intervention group

compared with the

controls (differences

were 1.5 (95%

confidence interval

1.3 to 1.7) for the

process scale; –11.7

(–13.6 to –9.7) for the

performance scale;

and (11.0; 9.2 to

12.8) for the

competence scale).

This improvement

was still significant at

three months. The

number needed to

treat to reach a

clinically relevant

improvement in

motor and process

skills score was 1.3

(1.2 to 1.4) at six

weeks. Effect sizes

were 2.5, 2.3, and

1.2, respectively, at

six weeks and 2.7,

2.4, and 0.8,

respectively, at 12

weeks.

Conclusions

Occupational therapy

improved patients'

daily functioning and

reduced the burden

on the care giver,

despite the patients'

83

Author Study population

Type of design

Treatment group Outcome variable

Findings

limited learning

ability. Effects were

still present at 12

weeks, which justifies

implementation of this

intervention.

Clark, Azen,

Carlson,

Mandel,

LaBree,

Hay,

Zemke,

Jackson &

Lipson. 12

Independent-

living older

adults

Randomized

trial

9-month program

in preventive

occupational

therapy (OT).

Health, function,

and quality of life

benefits

Significant health,

function, and quality

of life benefits.

Followed for an

additional 6 months

without further

intervention and re-

evaluated.

Approximately 90%

of the therapeutic

gain observed

following OT

treatment was

retained in follow-up.

Bums ,

McCarten ,

Adler,

Bauer &

Kuskowski.4

Functioning

examined when

9 veterans

were moved

from a work

program to a

traditional adult

day care

program.

Subjects were

reassessed four

months after the

move with the

Mini-Mental State

Examination

(MMSE),

Cognitive

Performance Test

(CPT), and

Geriatric

Depression Scale

(GDS). Individual

slopes were

Observed scores at

reassessment were

significantly lower

than expected

scores. The MMSE

was on average 4.9

points lower, and the

CPT. 64 points lower

than expected. The

GDS did not change.

The spouses of all

nine patients reported

declines in daily living

activities.

84

Author Study population

Type of design

Treatment group Outcome variable

Findings

calculated for

seven subjects

who had

longitudinal

scores, and

expected scores

were predicted

based on the rate

of decline.

Observed scores

at reassessment

were significantly

lower than

expected scores.

Baldelli ,

Fabbo,

Costopulos,

Carbone,

Gatti &

Zucchl .14

Health care

staff of a

nursing home

Occupational

therapy and

cognitive

rehabilitation for

demented

patients

The Maslach

burnout inventory

(MBI)

1 Year Follow-

up.These treatments

seem to have

positive effects on

both the patients,

improving their

performances, and

the nursing staff, as

an aid to reduce the

job burnout.

Clark,

Azen ,

Zemke,

Jackson

Carlson,

Mandel,

Hay,

Josephson,

Cherry,

Hessel,

Palmer &

Lipson12.

Two

government

subsidized

apartment

complexes for

independent-

living older

adults. A total

of 361 culturally

diverse

volunteers

aged 60 years

Randomized

controlled trial

An OT group, a

social activity

control group,

and a non

treatment control

group. The period

of treatment was

9 months.

A battery of self-

administered

questionnaires

designed to

measure physical

and social

function, self-

rated health, life

satisfaction, and

depressive

symptoms

Significant benefits

for the OT preventive

treatment group were

found across various

health, function, and

quality-of-life

domains. Because

the control groups

tended to decline

over the study

interval, results

suggest that

85

Author Study population

Type of design

Treatment group Outcome variable

Findings

or older. preventive health

programs based on

OT may mitigate

against the health

risks of older

adulthood.

Dooley &

Hinojosa17 Two groups of

persons with

Alzheimer's

disease in their

own homes

Pretest-

posttest

control group

design

Caregiver burden

and three

components of

quality of life,

positive affect,

activity frequency

and self-care

status

Individualized

occupational therapy

intervention based on

the person-

environment fit model

appears effective for

both caregivers and

clients

Larson ,

Wang,

Bowename

s ,

McCormick

, Teri,

Crane &

Kukull11

Population-

based,

longitudinal

study

A reduced incidence

rate of dementia for

persons who

exercised 3 or more

times a week

compared with those

who exercised fewer

than 3 times per

week Exercise

seemed to be

associated with the

greatest risk

reduction in

participants who had

poor physical

functioning at

baseline.

86

9. CONCLUSION

Ten sessions of community occupational therapy over five weeks improved the daily

functioning of patients with dementia, despite their limited learning abilities, and reduced the

burden on their informal care givers.1

The effect sizes of all primary outcomes were higher than those found in trials of drugs or

other psychosocial interventions, and these effects were still present at three months1.

The advantage of occupational therapy is that it is client-centered practice since the client,

caregiver and the occupational therapist work together, as mutual partners in order to find

the best solution for the client.

It would be inappropriate for the client to be treated without the involvement of the

occupational therapist, due to their unique contribution to their well-being and health.

87

10. REFERENCES

1. Graff M, Vernooij-Dassen JM, Thijssen M, Dekker J, Hoefnagels WH, Olde Rikkert

MGM. Community based occupational therapy for patients with dementia and their

care givers: randomised controlled trial. Br Med J. 2006;333:1196

2. Kielhofner G. Conceptual Formations of Occupational Therapy 3rd ed Philadelphia;

F.A. Davis:2004.

3. Larson KB. Activity patterns and life changes in people with depression. American

Journal of Occupational Therapy. OCT 1990, Vol 44 number 10

4. Bums T, J. R McCarten, Adler G, Bauer M, Kuskowski M A. Effects of repetitive work

on maintaining function in Alzheimer's disease patients. Am J Alzheimers Dis Other

Demen.2004;19(1):39-44

5. Zgola JM. Doing Things: A Guide to Programming Activities for Persons With

Alzheimer's Disease and Related Disorders. Johns Hopkins Univ Pr; 1987.

6. Salmon N. Occupational Therapy in Dementia. Mental Health in later Life. Available

from:http://www.mhilli.org/index.html

7. Trombly CA. Historical and Social Foundation for practice. Occupational Therapy for

physical dysfunction, 4th ed. 196-197

8. Cruz ED. Tips for occupational Therapists working with clients Who Have Dementia.

Dementia Education. Available from: http://etgec.utmb.edu/dementia/index.html

9. American Occupational Therapy Association (1994). Statement: Occupational therapy

services for persons with Alzheimer’s disease and other dementias. Am J Occup

Ther.1994; 48, 1029-1031.

88

10. Glass TA, de Leon CM, Marottoli RA, Berkman L F . Population based study of social

and productive activities as predictors of survival among elderly Americans. Br Med

J.1999;319:478-483

11. Larson EB, Wang Li J. Bowenames D, McCormick WC., Teri L, Crane P, Kukull W.

Exercise Is Associated with Reduced Risk for Incident Dementia among Persons 65

Years of Age and Older 17. Ann Intern Med. 2006 Jan; 144(2):73-81

12. Clark F , Azen SP, Carlson M, Mandel D, LaBree L, Hay J, et al. Embedding Health-

Promoting Changes Into the Daily Lives of Independent-Living Older Adults. Long-

Term Follow-Up of Occupational Therapy Intervention. J Gerontol B Psychol Sci Soc

Sci.2001;56:60-63.

13. Crouch RB and Alers VM, editors. Occupational Therapy in Psychiatry and Mental

Health, 4th ed. South Africa: Maskew Millar Longman; 1997..

14. Baldelli MV, Fabbo A, Costopulos C, Carbone G, Gatti R, Zucchl P. Is it possible to

reduce job burnout of the health care staff working with demented patients? Arch

Gerontol Geriatr Suppl. 2004;(9):51-6

15. Graff M, Vernooij-Dassen JM, Thijssen M, Dekker J, Hoefnagels WH, Olde Rikkert

MGM. How can occupational therapy improve the daily performance and

communication of an older patient with dementia and his primary caregiver. Dementia.

2006;5(4);503-532.

16. Fouche L. Occupational Therapy in the community. Masters in psychiatry assignment.

Unpublished material. University of Pretoria.

17. Dooley NR, Hinojosa J. Improving quality of life for person’s with Alzheimer’s disease

and their family caregivers: brief occupational therapy intervention. Am J Occup

Ther.2004 Sep-Oct; 58(5), 561-9.

89

EATING DISORDERS Compiled by:

Anel Grobler, B.A. Occupational Therapy (Pretoria)

Zonia Weideman, B.A. Occupational Therapy (Pretoria) Post-graduate Diploma in Vocational Rehabilitation

(Pretoria)

1. INTRODUCTION

Eating disorders are a crippling and disabling condition and if it becomes chronic, the

emotional, physical and social effects are substantial1. It is a multi factorial condition that

poses many challenges to professional care givers. The efforts should be multidisciplinary

and an occupational therapist should be included in the team2.

The prognosis of this group of disorders is a great concern. Some patients with anorexia

recover completely but the majority remains under weight, with 10% meeting the diagnostic

criteria 10 years after treatment. Bulimia often persists for at least several years and could

be chronic or intermittent3.

Apart from the emotional and psychiatric problems and often disability, Anorexia is an illness

with multiple physical complications. Apart from the physical and emotional components 12 –

20% of patients with the illness die4. Although bulimia nervosa has a smaller amount of life

threatening cases (1%), the incidence of the illness is higher than anorexia4.

Henderson (1999) states that "occupational therapists' unique contribution towards the

treatment of individuals with eating disorders, is their combined knowledge of physical,

interpersonal and psychological functioning"5.

2. DIAGNOSIS

Eating disorders are seen as a group of disorders characterized by abnormal eating

behaviours and beliefs about eating, weight, and shape. The ICD 10 classification includes

the following:

1 Barnett et al, 2006 2 Garfinkel and Garner, 1982 3 Sue, 2003 4 Murphy RMN, Manning RMN. An Introduction to anorexia nervosa and bulimia nervosa. Nursing standard. 2003 Dec 17: Vol 18: 45-52. 5 Henderson

90

F50.0 Anorexia nervosa

F50.1 Atypical anorexia nervosa

F50.2 Bulimia nervosa

F50.3 Atypical bulimia nervosa

F50.4 Overeating associated with other psychological disturbances

3. IMPACT ON PERFORMANCE

3.1 Work / School Although these patients are often highly skilled and often perfectionists with obsessional

patterns of thinking and behaving4, their functioning at work / school are often affected by

rituals and manipulative behaviours. Commonly there will be significant depression and

isolation and performance in education or employment fall below the person with eating

disorders capabilities. Their belief of ineffectiveness also often hinders them to function

optimally.

3.2 Activities Of Daily Living The most problematic activity of a person with an eating disorder is eating and cooking. This

is the core pathology of this diagnostic group. As they struggle with issues of control – their

eating habits is an extreme measure to try and control their bodies6. This does not only

interrupt a balanced lifestyle and impair functioning in other areas, but can have adverse

physical affects.

3.3 Leisure These patients often do not have healthy leisure or social interests or the ability to pursue

them and would rather for example over exercise to loose weight. A great amount of their

free time will be spent on their preoccupation and rituals in relation to eating and cooking.

6 DeLaune

91

Although exercise is conducive to a healthier body and mind, it must be carefully monitored

in individuals with eating disorders as they tend to over exercise as they believe that a loss

of weight and change in body shape will lead to an improved life4.

3.4 Social A person with eating disorders struggles to form and maintain healthy relationship and hardly

engage in any form of social leisure. DeLaune describes this client group as manipulative,

and clients that avoid intimacy by maintaining a superficial relationship. She explains that

manipulation of the anorexic, bulimic and overeater reaches extreme proportions and

maladaptive behaviour6. Murphy and Manning explains that a person with bulimia is

“generally more impulsive in nature, a thrill- or excitement-seeker with extreme feelings, who

has a low tolerance of boredom and difficult interpersonal relationships”4

4. IMPACT ON ROLES, HABITS AND ROUTINES

A person with a eating disorder “strive for perfection and become increasingly obsessional,

sticking to routines and devising ever more complex sets of `rules` by which to live their

lives. They may lie and be very secretive to protect themselves and may withdraw from

situation, particularly those which involve food, both at home an in a wider social context.

These individuals may become hostile and angry if their routines are upset or interfered with,

obviously unhappy and in difficulty, they may refuse all offers of help and maintain that they

are `fine`, even in advanced stages of malnutrition and emaciation”7.

Thus individuals with eating disorders roles, habits and routines are severely affected by

their obsessional and manipulative ways. Such patients benefit from occupational Therapy

which does not focus on recovery but rather improving their quality of life.

7 Halek BA. Anorexia nervosa. Nursing Standard. 1997 Dec 10; pp 41-47.

92

5. HEALTH CARE STRUCTURES

5.1 Pillars Of Health Care Prevention can be attempted by strengthening a person’s natural defence against what are

assumed to be primary environmental causing agents such as unrealistic media

representation of body shapes or socially sanctioned inappropriate eating related

behaviours. Another form of prevention is to look for manifestations of disorders and

intervening as soon as possible (early intervention approach)8.

Remedial treatment comes into play if an individual with eating disorders resorts to using

food and eating behaviours as maladaptive coping mechanisms, therefore it is important to

learn them alternative methods for solving problems. Treatment is most likely to be

successful in collaboration with the patient and ranges from individual, group, family therapy

and psycho educational treatment.

5.2 Level Of Health Care System

Specialist treatment can result in a better outcome for patients than non-specialist treatment 9 (Tertiary health care), but access to specialist units remains problematic and most patients

are cared for in primary and secondary care settings6.

6. ASSESSMENT

6.1 Baseline Assessments

According to Bridges10 the seven areas of the assessment are: the patient's general status,

physical status, self-image, estimation of body size, time management, interests and

activities, and balance between internal/external controls.

8 Ben-Tovim DI. Eating disorders: outcome, prevention and treatment of eating disorders. Lippincott Williams & Wilkins, Inc. 2003 Jan; Vol 16(1): pp 65-69. 9 Crisp AH, Norton K, Gowers S et al. A controlled study of the effect of therapies aimed at adolescent and family psychopathology in anorexia nervosa. British Journal of Psychiatry. 1991. Vol 159; 325-329. 10 Bridges 1993

93

The occupational therapist plans treatment approaches for and with individual patients;

these are based on the findings of the assessment.

The baseline assessment is used to monitor progress and needs to be done

comprehensively. When progress is measured from a well documented baseline, it can be

used to motivate the client through realistic praise for her/his accomplishments.

6.1.1 During the Professional interview the following could be assessed11:

o Motivation to change

o Degree of insight

o Attention and concentration span

o Personal interests and talents

o Feelings about the family

o Work / school situations

o Social and family live

The difficulties of this diagnostic group are complex and special attention should be given

to adolescents that seem very high functioning because of perfectionist traits, especially

during clinical observation.

International Classification of Functioning gives the following definition of terms:

o Activity – is the execution of a task or action by an individual

o Participation – is involvement in a life situation

o Activity Limitations – are difficulties an individual may have executing activities12

o Participation Restrictions – are problems an individual may experience in

involvement in real life situations

In most conditions activity limitations results in participation restrictions which result in

disability. However in eating disorders it is not necessarily the difficulty with task execution

but involvement in a life situation that causes impairment and possible disability.

11 Stockwell R. Duncan S. Levens M. In Scott & Katz (Eds.) Occupational Therapy in Mental Health: Principles in practice. 1988. London: Taylor and Francis, Ltd. 12 ICF Int classification

94

6.1.2 Collateral information

Collateral information should be a large part of the assessment, as these patients often

struggle under relationship strain. Collateral is also needed for a complete picture of the

patient, as (as described above) their functioning are often not impaired by a problem with

performance components but a lack of personal effectiveness.

6.2 Ongoing Assessment Assessment is an ongoing process, which needs to continue throughout treatment to monitor

progress as well as to help identify specific needs of the patient.

7. INTERVENTION 7.1 Role of Occupational therapist

7.1 .1 Work

Various programs exist which occupational therapist facilitate that helps the person with

an eating disorder to begin or continue with their work, these include:

o Supported Employment

Supported Employment is defined as placing an individual with an eating disorder in a

full or part-time job and an employment consultant then supports the individual in

order to help the worker to succeed and retain the position indefinitely13.

According to Becker, Drake and Naughton there are six principles of supported

employment that improve employment outcomes; these are14;

i.Eligibility is based on the clients choice

ii. Supported employment is integrated with mental health treatment 13 Mechanic D. Cultural and Organizational Aspects of Application of the Americans with Disabilities Act to Persons with

Psychiatric Disabilities. The Milbank Quarterly. 1998; Vol.76 No. 1. 14 Becker DR, Drake RE, Naughton WJ. Supported Employment for People with Co-Occurring Disorders. Psychiatric

Rehabilitation Journal. Spring 2005; Volume 28 Number 4.

95

iii.Competitive employment is the goal

iv.The search for a job begins rapidly

v.Job finding is individualized

vi.Follow-along supports are continuous

o Job coaches

“A consultant serving as an agent of the employee, while also working cooperatively

with the employer, may be helpful in mediating some of the tensions involved. Such

interventions have been constructive in vocational programs when “job coaches” work

with both clients and employers to solve work problems as they arise”9.

7.1.2 Activities of Daily Living

Time Management is especially done to decrease the individual with an eating disorder’s

time spend on an overall pre-occupation with planning and preparing meals.

Healthy living is promoted by looking especially at healthy eating and sleeping habits,

this is usually done by psycho-education.

7.1.3 Leisure

The occupational therapist assess the client’s time spend on leisure and make sure the

client does not spend too much time on exercise. Treatment can be conducted through

leisure activity participation.

7.1.4 Social

Social skills training are imperative for clients with eating disorders, since social skills are

crucial in overall functioning. This is most effectively done by role-play; according to G

Moskowitz role-play is “a concrete way of transferring what one knows into what one

does”15. Role play is a tool where the client is given an opportunity to explore new

behaviour that would otherwise be foreign to him during group therapy 11.

15 Fouche L. Role Play. Class-notes: University of Pretoria, Occupational Therapy Department. Unpublished material. 2002

96

7.2 Theoretical Framework

7.2.1 Models

The following models can be applied by the occupational therapist in the treatment of

eating disorders:

o Creative Ability model,

o Model of Human Occupation,

o Canadian Occupational Performance Model,

o Model of Occupation through adaptation

7.2.2 Frame of References / Approach

Several treatment approaches are describe in literature and used in practice. A few of

these are discussed to illustrate the unique contribution the occupational therapist makes

as part of the team. (Please note: The approach is not explained or discussed in full.)

Behavioural:

Occupational Therapists do not often use the behavioural approaches in its pure form in

their treatment, but would as part of the multi disciplinary team. Patients may be allowed

to attend occupational therapy sessions of the ward and engage in craft activities, as part

of a reward or positive reinforcement behavioural programme.

This is by no means the focus of the occupational therapist's contribution. The

occupational therapist is in the excellent position to help patients recover with

engagement in 'doing'- or 'in-action' – therapy.

Cognitive behavioural approach:

Within this approach the contribution of the occupational therapist can be invaluable.

Psychotherapy alone might not help the patient with all their practical difficulties. During

activity the patient can start testing basic assumptions and practising the implications of

their insights gained in therapy16

16 Giles MG. Anorexia nervosa and Bulimia. An activity orientated approach. The American Journal of Occupational Therapy. 1985. 39(8). 510-517

97

“Despite the many advantages of the cognitive behavioural approach, practical activity is

inadequately stressed. Helping a patient work through his or her inappropriate thoughts

about cooking and eating a meal are best done while cooking and eating. ...... When

particularly negative thoughts arise, they are dealt with more spontaneously in the

relevant situation....Understanding and insight needs to be supported by activity... During

practical activities, basic assumptions may become apparent.”16

See evidence table.

Cognitive approach:

The occupational therapist helps patient to learn self-monitoring, cognitive restructuring,

measures to reduce risk of relapse as well as training in problem solving and other coping

skills11.

Activity orientated approach: Creative ability:

This approach aims to facilitate the highest creative response to increase a person’s

creative ability. It is important for eating disorder clients/patients to have a highly

individualised programme with their creative abilities as well as interests. This approach

allows for exploration and will emphasize the clients' effect on their environment to

improve the sense of personal effectiveness.

In practice it is often found that these patients has very little or no problems with

performance components. (Concentration, memory, following of instructions etc.) They

can engage in a task and produce end products of high quality. They do however struggle

with life skills such as time management and assertiveness. (Performance areas)17

In the article “When doing is not enough” the authors paint a similar picture18. Despite

excellent performance, a remark such as 'well done' after successful completion of a task

will be regarded as irrelevant or even be received with mistrust. They refer to

competencies not being the problem but a sense of effectiveness. For these

competencies (objective capacity for success) to be of value it must be accompanied by a

subjective belief. It is this belief that is lacking in the anorexic18.

17 Krasner Z. Consultation interview. 2006. Tara Hospital. 18 McColl MA, Friedland J, Kerr A (1986): When doing is not enough: The relationship between activity and effectiveness in Anorexia nervosa. Occupational Therapy in Mental Health: a journal of psychosocial practice and research, 6(1), 137-150.

98

During childhood it might be that everything is provided for these children (often from high

socio-economic backgrounds), but that they do not have sufficient opportunity to learn that

they have an effect on their environment. Therefore a sense of personal effectiveness

does not develop.

It is very important for the occupational therapist to help the patient recognise the effect

they have on the environment and so improve their sense of effectiveness. She must be

aware that she is exercising her own free will. This can only be done during activity

participation, with the skilled facilitation of carefully selected activities18.

Functional approach:

In this approach the occupational therapist helps the patient with practical learning of new

activities like cooking, shopping etc.

7.3 Treatment Programs Treatment programmes based on Stockwell11.

7.3.1 Anorexia nervosa

Multidisciplinary inpatient treatment is desirable for this diagnosis. After discharge follow-

up will happen on an outpatient basis, but outpatient treatment can also be considered

when admission is not suitable.

During the early stages (re-feeding) the occupational therapist's role would be limited as

the physical movement is discouraged and patients might be on bed rest. During this time

it is important to establish a good foundation for the therapeutic relationship.

During the middle stages treatment will work towards modifying body image, acceptance

of body shape, improving social and assertiveness skills and anxiety management. Useful

techniques include: relaxation (increase body awareness), assertiveness and social skills

training, psychodrama, movement therapy as well as crafts and creative activities

(writing)11.

99

In the latter stages the focus will move to planning and cooking meals, eating with others

as well as work or school related aims (perfectionism and effectiveness).

7.3.2 Bulimia nervosa

These patients can be treated on inpatient as well as outpatient basis11

In the early stages of treatment it is important to establish a secure therapeutic

relationship so that issues regarding control can be explore. The patient might be

ambivalent to engage as it might feel like giving up control, but have a great need to

control their emotions and behaviour. It is important to facilitate a greater sense of self.

During the middle stages the patient can be helped to address the binge-guilt-restrict

cycle and identify and addressing other needs. This can be done through drama groups,

assertion and social skills sessions and practical activities11.

During the latter stages the focus will be on consolidating experiences and preparing to

return to their lives with changed habits. Role play could be used to prepare for social

situations.

8. TIME-SPAN

8.1 Acute

• 2 sessions evaluation (including level of creative ability, collateral information and

possible family interview)

• 10 sessions individual treatment (Cognitive behavioural and activity orientated)

• 15 sessions Occupational Group Therapy (Cognitive behavioural and functional

approach.)

100

8.2 Chronic

• Ongoing evaluation

• 20 sessions individual treatment, two weekly over a year.

• 35 sessions Occupational Group Therapy, weekly over a year.

9. TABLE OF THE EVIDENCE

Author Study population

Type of design

Treatment group

Outcome variable

Findings

Garner DM,

Rockert W,

Davis R,

Garner MV,

Olmsted

MP, Eagle

M.19

60 clinical

referrals to

eating

disorder

programme.

(Bulimia

Nervosa)

Experimenta

l two group

design

Cognitive

behavioural

vs

Supportive-

Expressive

therapy

Bulimia

symptoms

(Eating

disorder

inventory)

Psychologic

al

functioning

Significant

improvement

s in both

groups with

results

moderately

in favour of

cognitive

behavioural

therapy.

Robinson A,

Kane M,

Leicht SB20

Surveys

were sent to

75 members

of the New

York State

Psychologic

al

Association

who had

self-

Self report

Questionnair

es

The results

of this study

show that

psychologist

s currently

use many of

the same

treatment

modalities

occupational

19 Garner DM, Rockert W, Davis R, Garner MV, Olmsted MP, Eagle M. (1993) Comparison of cognitive behavioural and supportive-expressive therapy for bulimia nervosa. American journal of Psychiatry, 150(1) 37-45. 20 Robinson A, Kane M Leicht SB (2005): Psychologists' perceptions of Occupational Therapy in the treatment of Eating Disorders. Occupational Therapy in Mental Health: a journal of psychosocial practice and research, 21(2) 39-53.

101

identified as

treating

eating

disorders.

therapist’s

use with

people with

eating

disorders

and view

those

techniques

as beneficial

for this

population

Kong s21 Volunteers

from an

outpatient

clinic for

eating

disorders

(n=43)

Pretest-

posttest

control

group

experimental

design

Treatment

group

(n = 21),

participating

in a modified

day

treatment

programme

Control

group

(n = 22)

receiving a

traditional

outpatient

programme

Participants

in the day

treatment

programme

showed

significantly

greater

improvement

s on most

psychologica

l symptoms

of the Eating

Disorder

Inventory-2,

frequency of

binging and

purging,

body mass

index,

depression

and self-

esteem

21 Kong S (2005): Day treatment programme for patients with eating disorders: randomized controlled trial. Journal of advanced nursing, 51 1) 5-14.

102

scores than

the control

group. They

also showed

significant

improvement

in

perfectionis

m, but the

group

difference

was not

significant.

10. CONCLUSION

In conclusion, the occupational therapist has a unique and crucial role in the rehabilitation

and care of people suffering from eating disorders. The 'doing' part of this process that is

achieved through activities facilitates the change needed.

103

11. REFERENCES

1. Barnett S, Buckroyd J, Windle K (2006): Using group therapy to support eating disordered

mothers with their children: the relevance for primary care. Primary Health Care Research

and Development, 7(1)39-49.

2. Garfinkel PE and Garner DM (1982): Anorexia Nervosa: A Multidimensional Perspective.

Brunner Mazel: New York.

3. Sue D, Sue DW, Sue S (2003): Understanding Abnormal Behaviour, 7th ed. Houghton

Mifflin.

4. Murphy RMN, Manning RMN. An Introduction to anorexia nervosa and bulimia nervosa.

Nursing standard. 2003 Dec 17: Vol 18: 45-52.

5. Henderson S (1999): Frames of reference utilized in the rehabilitation of individuals with

eating disorders. Canadian Journal of Occupational Therapy, 66(1), 43-51

6. DeLaune SC, (1991): Effective limit setting, How to avoid being manipulated. Nusing

Clinics of North America, 26(3) 757-763

7. Halek BA. Anorexia nervosa. Nursing Standard. 1997 Dec 10; pp 41-47.

8. Ben-Tovim DI. Eating disorders: outcome, prevention and treatment of eating disorders.

Lippincott Williams & Wilkins, Inc. 2003 Jan; Vol 16(1): pp 65-69.

9. Crisp AH, Norton K, Gowers S et al. A controlled study of the effect of therapies aimed at

adolescent and family psychopathology in anorexia nervosa. British Journal of Psychiatry.

1991. Vol 159; 325-329.

10. Bridges 1993

104

11. Stockwell R. Duncan S. Levens M. In Scott & Katz (Eds.) Occupational Therapy in Mental

Health: Principles in practice. 1988. London: Taylor and Francis, Ltd.

12. World Health Organisation, International statistical classification of diseases and related

health problems.10th revision. Volume 3. W.H.O. Geneva.1994.

13. Mechanic D. Cultural and Organizational Aspects of Application of the Americans with

Disabilities Act to Persons with Psychiatric Disabilities. The Milbank Quarterly. 1998;

Vol.76 No. 1.

14. Becker DR, Drake RE, Naughton WJ. Supported Employment for People with Co-

Occurring Disorders. Psychiatric Rehabilitation Journal. Spring 2005; Volume 28 Number

4.

15. Fouche L. Role Play. Class-notes: University of Pretoria, Occupational Therapy

Department. Unpublished material. 2002

16. Giles MG. Anorexia nervosa and Bulimia. An activity orientated approach. The American

Journal of Occupational Therapy. 1985. 39(8). 510-517

17. Krasner Z. Consultation interview. 2006. Tara Hospital.

18. McColl MA, Friedland J, Kerr A (1986): When doing is not enough: The relationship

between activity and effectiveness in Anorexia nervosa. Occupational Therapy in Mental

Health: a journal of psychosocial practice and research, 6(1), 137-150.

19. Garner DM, Rockert W, Davis R, Garner MV, Olmsted MP, Eagle M. (1993) Comparison

of cognitive behavioural and supportive-expressive therapy for bulimia nervosa. American

journal of Psychiatry, 150(1) 37-45.

20. Robinson A, Kane M Leicht SB (2005): Psychologists' perceptions of Occupational

Therapy in the treatment of Eating Disorders. Occupational Therapy in Mental Health: a

journal of psychosocial practice and research, 21(2) 39-53.

105

21. Kong S (2005): Day treatment programme for patients with eating disorders:

randomized controlled trial. Journal of advanced nursing, 51 1) 5-14.

106

MAJOR DEPRESSION Compiled by: Enos Ramano-Occupational Therapist

1. INTRODUCTION

The simplest and best way to explain occupational therapy is that it enables individuals of all

age groups to cope with their roles and tasks at home, social and at work, despite the

presence of some residual symptoms of their illness.

Occupation was understood narrowly as synonymous with activity.1 The use of activity as

therapy for mentally ill lay dormant for decades. Occupation in this sense denotes to

personal care activities, household activities, leisure activities, work activities and all kinds of

‘doing’ people engage in. Occupational science, the study of how people occupy their time

or as Law stated: “everything people do to occupy themselves” (Law 2002) is the theoretical

backdrop of occupational therapy. Therefore if a mental illness or any mental health problem

interferes with the normal way of how people occupy their time, occupational therapy is

indicated.

The Dunton creed of 1919 states:

“That occupation is as necessary to life as food and drink. That every human being should

have both physical and mental occupation… That sick minds, sick bodies, sick souls, may be

healed through occupation” (Creapeu, Cohn & Boyt Schell 2003: 17)

Referrals for occupational therapy service may come from various sources and can include,

but are not limited to:

• Other health professionals

• Hospitals

• Support groups

• Social workers

• Lawyers

• Insurance companies

107

2. DIAGNOSIS ACCORDING TO ICD-10 AND DSM IV Mood refers to the internal emotional state of an individual. Mood may be normal, elevated

and or depressed. Mood disorders are a group of clinical conditions characterized by a

disturbance of mood, a loss of that sense of control, and a subjective experience of great

distress,2 and it may be divided into two broad categories, namely the depressive and the

bipolar disorders.

Depressive disorder may be present and categorized in these ways: 2

• ICD10:F34.2 Adaptation disorder with depressed mood

• ICD10:F34.1 Dysthymic disorder

• ICD10:F32.2 Major depression without psychotic symptoms

• ICD10:F32.3 Major depression with psychosis

• ICD10:F32.1 Moderate depressive episode

• ICD10:F32.9 Depressive episode unspecified

• ICD10:F41.2 Mixed anxiety and depressive disorder

• Major depression with melancholia

3. THE IMPACT OF MAJOR DEPRESSION ON OCCUPATION By 2020, depressive disorders are expected to be the second biggest cause of disease

burden worldwide 3. This category of psychiatric illness is therefore of critical importance to

mental health practitioners and communities that need to collaborate in stemming the tide of

disease burden.

It is known that this feeling of depressed mood is accompanied by a loss of interest and

pleasure in life, its activities and responsibilities. Depressed patients show an inability to

perform even the simplest daily tasks. They are frequently pre-occupied with work, money,

family and their own health problems.

Childhood depression may occur in the absence of an overtly unhappy mood and manifest in

symptoms different from those seen in adult depression i.e. refusal to attend school, learning

108

difficulties, accident proneness, enuresis and encopresis, delinquency, aggressiveness and

obsessions.

The findings of the review of 23 studies indicated that occupation has an important influence

on health and well-being. Withdrawals or changes in occupation for a person have a

significant impact on a person’s self perceived and well-being. These performance

components that are experienced by depressed clients will affect their occupation and or

performance areas as follows:

3.1. Work/School

The depressed clients will show lack of energy and interest to go to work which will impact

their work habits such as poor personal presentation (untidy appearance, lack of self control,

high sick absenteeism or poor work attendance and unpunctuality at work) poor social

relationships and poor work competency (poor work planning and disorganisation, poor

concentration and poor memory, tiredness, difficulty handling a stressful job, poor frustration

tolerance and poor problem solving skills).

Depression causes impairment in work performance. Lack of drive, energy and motivation

have an adverse effect on productivity an cause an overall decline in the quantity and quality

of work; impairment of concentration is hazardous in employees responsible for driving or

operating machinery. In addition to loss of verbal fluency and impaired ability to maintain

attention, there is often a difficulty in making decisions and an increase in risk behaviours

which will have a negative impact to their relationship in the workplace. The depressed client

constantly complains of forgetfulness, tiredness, psychomotor retardation and headaches

which will affect their work speed and work endurance. A child who is attending school will

show deterioration in school performance and the dropping of his grades or marks.

3.2. Activities of daily living

A large percentage of depressed patients show loss of appetite and consequent weight loss,

increased appetite and consequent weight gain, sleep disturbances, psychomotor

disturbances (retardation and or agitation), low self esteem, lethargy and fatigue, poor

109

concentration and memory deficits, decreased libido and suicide thoughts.2,4 These will affect

their execution of activities of daily living.

Self care is completely neglected in some severe cases, and the patient shows little interest

in caring for himself and or his surroundings.

3.3. Leisure activities Most depressed client’s show lack of energy, loss of interest and poor motivation to execute

leisure activities. They experience lethargy and lack of energy to be actively involved in

leisure activities. Their activity profile is poor since they spend most of their time indoors and

or sleeping. They even show loss of interest in watching sport or listening to music.

3.4. Socialisation Most depressed clients show social withdrawal since they prefer to be alone most of the

time. A large percentage of depression suffers exhibit what is crudely called “poor social

skills” such as being less assertive, being less positive, displaying less interaction etc.

4. THE IMPACT OF DEPRESSION ON ROLES, HABITS AND ROUTINE In a large percentage of depressed clients, it is found that their work, play, friends and family

are neglected. They loose interest and or lack the motivation to perform their roles as

father/mother, son/daughter, worker/scholar and or friend appropriately.

Most of them show poor coping skills and they engage themselves in risk taking habits such

as excessive alcohol consumption and self medication as inappropriate means of handling

their issues.

Due to their lethargy, psychomotor disturbances, poor concentration and forgetfulness, lack

of energy and lack of interest, they find it difficult to engage themselves in a proper daily

routine.

110

5. HEALTH CARE STRUCTURES 5.1. Pillars of healthcare

5.1.1. Preventative/Promotive

Preventive health refers to tasks and efforts of the occupational therapist in limiting

health problems and the stress arising from them. 20 These may refer to life skills

training, as an example, either on an individual basis or within the community that can be

seen as preventative. These skills could include financial management, career planning,

social skills etc. All these skills enable the community member to deal with different

situations, which they found to be difficult to cope with previously. These will therefore

decrease the chances of developing depression. The occupational therapist can also

establish psycho-educational groups to try and improve the patient’s insight into their

depression and the importance of compliancy to medication, as a way of trying to reduce

chances of relapse and or non compliancy to treatment.

The definition of promotion reads as ‘the systematic efforts to enhance wellness through

education, behavioural change and cultural support’(20). The client’s capacity for coping is

increased and the client is encouraged and empowered to achieve well being.

In contrast to prevention that directly tries to prevent illness, promotion emphasizes

wellness. The occupational therapist can also address the environmental problems in a

work place, if needs be, as part of promotive role to help employees structure their work

areas and make use of work study principles and process charts in order to reduce

chances of a relapse.

5.1.2. Curative/Remedial programme

Occupational therapists are familiar with the curative role as this incorporates the more

traditional and known roles of occupational therapist within hospitals and institutions. The

therapist therefore strives to cure the client and place him back into his environment

without any further problems. This is also known as following a remedial programme.20

111

In this phase the occupational therapist will be strongly involved in the treatment of the

depressed patient to try and remediate or improve their specific performance

components (e.g. facilitate appropriate emotional response, improve concentration,

improve energy and physical fitness) that will in turn improve the clients occupational

performance areas (e.g. appropriate social interaction, improve proper work habits) to

the level that it was before the depression.

5.1.3. Rehabilitation

Rehabilitation implies that the patient has a remaining disability/impairment that he

needs to compensate for in order to function at his optimal level and to maintain quality

of life 20. The occupational therapists are mostly familiar and categorised with the

rehabilitation role, as it is their traditional role. This type of programme will be used

especially with patients suffering from chronic severe depression and their occupational

performance areas are permanently affected.

An example will be a patient who has developed depression after a divorce; she may

need temporary help concerning her children and her day programme to compensate for

the poor energy levels of her major depression. As soon as the mood improves, these

interim measures may no longer be necessary. Additionally, it may be the permanent

change in a work situation to prevent recurrent relapses of depression such as changing

to a new section or choosing a new job/career to try and compensate for a permanent

poor concentration and poor memory due to depression. The occupational therapist

might also need to liase with the employer of the depressed client so that they

reasonably accommodate his chronic depression by job restructuring (decreasing his

work load), flexible scheduling (allowing him to work slower, time off for consultations),

provision of job sharing/assistant etc.

112

5.1.4. Maintenance

During this phase the occupational therapist is trying to maintain the client’s impairment

or disability to try and prevent further deterioration.

This might include consolidation of life skills with the severely chronic depression

patients for their survival even though they will be showing poor prognosis for further

recovery. The occupational therapist will try and maintain their available skills in

executing performance areas. The occupational therapist might also include the family

during therapy with these patients to try and teach the family on how to cope with them.

5.2. Levels of healthcare

5.2.1. Primary care

The occupational therapists have a very important role to play at primary level of

healthcare with major depressive disorder patients. They could try to prevent depression

by helping people in the community to have a balanced life style in terms of their work,

leisure, personal management and relationships. The occupational therapist will be

involved in helping with bereavement counselling to prevent complications in

bereavement and the development of depression.

It may also include screening tests for depression in order to identify the disorder as

early as possible. They may also have insight sessions with patients suffering or in the

early stages of their depression.

Due to the hospitals limiting admissions time span, the occupational therapist will

continue with the patient’s treatment of depression in the rooms on an outpatient basis or

in their own homes to try and address their problems of the performance components

and occupational performance areas.

5.2.2. Secondary level

113

The prevention of illness on a secondary level occurs within a hospital setting. The

occupational therapist will try to prevent the client’s disorder from becoming chronic, by

engaging the client in therapeutic activities.

Life skill training could be seen as part of treatment on a secondary level, for example

assertiveness training or social skills training. Teaching the client specific work skills

could also assist the patient in coping with workload.

5.2.3. Tertiary level

The occupational therapist assists the client to compensate for the impairment in order to

function at his optimal level and to maintain quality of life. The treatment programmes

provided on this level are intense and may be very specialized. Therapy emphasises on

the occupational performance areas and helps clients to adjust and adapt their

environment in order to function optimally with their depressive illness.

Example: The occupational therapist can liase with the employer to reasonably

accommodate the client’s major depressive disorder and to assist with possible

adaptations.

6. ASSESSMENT The occupational therapy assessment evaluates the client holistically. The interview of the

client individually can last for sixty minutes. The comprehensive evaluation varies from one

to four hours, depending on the client’s psychological status, tolerance, attention span and

the reason for the assessment (4) and if whether it is for clinical intervention and or medico-

legal/insurance purposes. The compiling of the report may also last for two hours or more

depending on the information analysed and the purpose of the report.

6.1. Baseline assessment An objective assessment of the individual’s physical/mental abilities to perform a variety of

tasks related to the physical demands of work and to compare functioning over time.

114

6.1.1. Professional interview

The interview is conducted with the patient to gather detailed background information,

inquires about the patient’s feelings, previous illnesses and treatments, stressors at

home, work, financial and future are made. If the interview is too stressful for the patient,

the patient may be asked to write a story or an essay about himself.4

6.1.2. Clinical observation

During the interview the therapist will observe the client’s non-verbal signs such as tone

of voice, gestures, facial expression and personal appearance.

The therapist will also observe the client’s performance and behaviour during the use of

standardized and non-standardized tests and compare that with the assessment results.

The patient will also be observed during participation in various activities and discussion

groups as part of on-going assessment.4

6.1.3. Evaluation

The occupational therapist uses and chooses variety of standardized work samples,

questionnaires, inventories and pain scales to assess the client’s fitness to work and the

severity of the depression to the other performance areas. The occupational therapy

assessment with depressed patients will cover the following performance components

and occupational performance areas:

• Emotions (affect, mood, body image and self esteem)

• Conation/Motor behaviour (psychomotor disturbances, psychological endurance,

perseverance)

• Cognitive assessment (Orientation, Thought process, Memory, Attention and

Concentration, Decision making, Judgement, Insight and Intellect)

• Life skills (Reading, Writing and Money management)

115

• Self Management Skills (Occupational stressors/Coping skills, Time Management and

Self control)

• Occupational performance areas (Activity of daily living, Leisure, Work and

Socialisation)

The following are the examples of other tools (formal and informal) that are used for

evaluation to assess the above mentioned aspect by the occupational therapist working

with depressed clients:

• Hospital Anxiety and Depression Scale (HADS)

• Beck Depression Inventory (BDI)

• Wimbledon Self Report Scale (WSRS)

• Cognitive Assessment of Minnesota (CAM)

• Brief Cognitive Rating Scale (BCRS)

• General Health Questionnaire

• Rosenberg Self Esteem Scale

• Relevant pain Questionnaires (e.g. Borg numeric pain scale)

• Assessment of Motor and Process Skills (AMPS)

• Modular Arrangement of Pre-determined Time Standards (MODAPTS)

• Work Assessment Screening Program (WASP)

• Rivermead Behavioural Memory Test

• T/PAL

• Chessington OT Neurological Assessment Battery (COTNAB)

• Jamar hand dynamometer

It must be noted that if the evaluation tools are not suitable for the client, the

occupational therapist can perform on the job evaluation (work visit), where the client is

evaluated on site in a competitive work environment in order to determine job specific

functional capacity evaluation.

116

6.1.4. Collateral information

Each person has to be compared against their own previous abilities and behaviour,

hence the importance of gathering information from people who knew the person prior to

their depression such as close family members, the employer and colleagues and other

role players who will also be interviewed by the therapist. The occupational therapist

might also need to peruse previous medical documents and or available reports about

the patient as part of collateral information. The other treating specialists might need to

be interviewed as well to clarify the client’s condition.

6.1.5. Assessment report

During the completion of the assessment, the occupational therapist can assist with

comprehensive functional capacity evaluation reports for disability grants, medical

boarding, and recommendations for alternative occupations and to suggest possible

reasonable accommodations for major depressive disorder patients in a work place.14

6.2. Ongoing assessment Ongoing assessment is a process that needs to be repeated at least once during

intervention, and conclude the therapy process.4 .Ongoing assessment is particularly

important in the cases of patients suffering from depression due to the effect of their

medication and environmental stresses.

7. INTERVENTION

7.1. Role of Occupational therapy in the treatment of major depressive disorder

Intervention by the Occupational therapist is most effective as part of multi-disciplinary team

approach especially at secondary and tertiary level.

In 1990, a study by Karen Larson, with depressed patients, showed that activities can be

used to assess the activity level of a patient and for intervention.5 Verbal therapy and activity

117

therapy were also compared, and it was found that subjects who received activity therapy

experienced a greater reduction in symptomatology, (improvement in concentration and

memory, improvement in motivation and energy, improvement in decision making and self

esteem and improvement in social interaction abilities) than those who received verbal

therapy.

Some of the selected graded activity therapy, occupation or achievable tasks6 that are used

by occupational therapists in the treatment of depression are grouped according to our daily

performance areas as follows.7, 8

7.1.1. Self care task and community survival skills

Self care is occupation that enables the individual to survive and that promotes and

maintains health. This includes.9

• Caring for oneself to improve self-esteem.

• Cooking and baking activities to discuss the importance of balanced diet and meal

planning.

• Psycho-education to teach the patient about the effect of depression, symptoms, pre-

cursors to symptom exacerbation and the importance of compliancy to medication.

• Teach patient proper home management skills, parenting skills and money

management skills as an individual or in a group.

Each session that covers some of the above self-care activities may last for an hour (one

hour), on an individual basis and two hours during a group therapy session.

7.1.2. Leisure and or Recreational activities

• Sports and exercises (e.g. walking, aerobic exercise, volleyball, swimming or

hydrotherapy etc).

Literature shows that exercise sessions should take place at least three times a week if

both the physical and mental benefit is to be maintained. People suffering from mild to

118

moderate unipolar depression are more likely to benefit from exercise than those with

melancholia or bipolar disorders.8, 9

• Art and creative activities [e.g. flower arranging, candle making, painting, narrative or

writing therapy, collage etc]

Through these activities the depressed persons are able to express what they are

feeling towards themselves, express how they are feeling now and they also encourage

self- exploration.3,8 It must be noted that occupational group therapy focuses on the ‘here

and now’ approach.

The above mentioned leisure activities may be more effective and therapeutic when they

are performed in a group therapy session that lasts for one to two hours.

7.1.3. Socialisation

Extremely common in depression sufferers is the lack of satisfaction in various

relationships: family, work and social. Depression can cause the individual to loose

access to the skills and the desire to sustain these relationships successfully.

The occupational therapist will use occupational group therapy technique as an effective

brief and reliable method for assessing and treating depressed patients (10).

Occupational group therapy sessions are found to be effective and they teach and cover

the following3, 10,11,12,13:

• Social skills - Communication skills

- Assertiveness and conflict resolution skills

- Anger management skills

• Support group [support of one another, ventilation of feelings, imparting of information]

• Projective group therapy

• Coping skills training [time management, stress management, problem solving skills,

balanced lifestyle development, money management etc].

119

• Various group therapy activities which are client centered.

For effective results and quality of service, the patients will benefit from eight to ten

consecutive group therapy sessions that last for one hour thirty minutes to two hours a

session.10, 13

7.1.4 Work related activities [Vocational Rehabilitation]

Literature has shown that one does not get better in order to work, but one works in

order to get better. Work is seen as the critical element in the recovery of depressed

patients, since it boosts their self esteem and it provides a sense of purpose and

accomplishment. Different studies in occupational therapy predict better vocational

outcome for people with mood disorders3.

The Occupational therapist plays the following roles in the vocational rehabilitation of

major depressive disorder clients:

• Vocational counselling - advising the person with depression in the light of vocational

training and employment possibilities 3.

• Advocacy – The Occupational therapist acts as an advocate for the patient and this is

backed up by the present Labour Relation Act (LRA) and Employment Equity Act

(EEA) (15).

• Work preparation and training - this provides any necessary reconditioning and

training to the mood disorder client. These may be performed by means of: 3

o Work simulation

o Work hardening

o Role-play

o Job coaching

o On the job training

o Work trial

120

o Supportive employment

• Selective Placement – the occupational therapist ensures that the client returns to his

own or alternative occupation with or without reasonable accommodations.

• Follow up – until resettlement is achieved.

The Occupational Therapist who specializes in vocational rehabilitation may provide an

estimated eight to ten sessions of vocational rehabilitation, which lasts for two to four

hours a session, on an individual or group basis. The number of sessions is mostly

determined by the severity of the client’s depression, work motivation and compliancy to

multidisciplinary intervention, support system and medical and vocational prognosis.

7.2. Theoretical Framework

The activity therapy and/or occupations that are used in occupational therapy are utilized in

conjunction with certain therapeutic techniques, approaches and equipment to build up the

abilities and skills needed for the depressed patient to enable him/her to eventually execute

their daily tasks independently.9

7.2.1. Models

Creative Ability Model (Vona du Toit)

This is a South African approach that was elaborated in 1962 by Vona du Toit. This

approach is used to evaluate the client’s occupational performance according to the

skills he has attained in the personal, social, work and recreational occupational

performance area 3.

It also provides guidelines for treatment by:

• Identifying treatment priorities

• Proposing principles that guide treatment so that it is appropriate to the client’s level

121

• Determine expectations for performance, as well as how and when to up or

downgrade the treatment.

This approach also helps the occupational therapist to categorise patients efficiently in

terms of their occupational performance needs and it enables the correct treatment to be

administered at the right time and in the most cost effective manner.3.

This approach does not represent the whole of occupational therapy for the client. It has

an assessment aspect, which determines the level on which the client functions and then

provides a stratified guide to increase the client’s level of performance.

This approach accommodates clients suffering from depression and mania, and it

assists with proper grouping and approach during their intervention.

This theory postulates that creative ability consist of two components:

• The inner drive towards action

• The externalisation of this motivation into action, which is seen through the creation of

concrete or abstract end-products in daily life.

More research is being done by South African occupational therapists to standardize this

approach, and to evaluate its reliability and validity.16

Model of Human Occupation (Kielhofner) 20

• The model addresses a person’s occupational behaviour and occupational

dysfunction.

• Occupation is essential to human self-organization. Through occupations, persons

exercise their capacities and generate on-going experiences that affirm and shape

their psyches. Therefore the order or organization of humans depends on

occupational behaviour.

• Occupational therapy engages persons in occupational behaviour that helps maintain,

restore, reorganize, or develop their capacities, motives and lifestyles.

122

• Specific subsystems contribute to occupational behaviour and needs to be addressed

i.e. volition, habituation and mind-brain-body performance.

7.2.2. Frame of Reference/Approaches for the treatment of major depression

The Occupational therapist uses a variety of frames of reference and approaches during

therapy. These may be used in combination for a single client to direct therapy.

Some of the approaches are summarized below as follows:

Psychosocial analytical approach

Therapy is directed at improving the client’s insight and understanding of themselves

and their environment. The Occupational Therapist does not interpret, but assists the

client to reflect on the past and their feelings. 4

Psychosocial interactive approach This approach is mostly used during occupational group therapy where the focus is on

the here and now and on the interaction between the group members. The interaction

can be facilitated within the therapeutic, structured group where the clients are

encouraged to achieve personal growth, insight and develop social skills by means of

feedback from others.4

Cognitive approach

Some aspects of the treatment repertoire of cognitive therapy are very familiar to

occupational therapists and are consistent with the practice of occupational therapy.

They include: 3, 8, 9

• Educator/facilitator role - teach patients new skills, ways of interacting with others and

viewing the world.

• Use of activities to facilitate change

123

- Group activities

- Role-play

• Use of images in therapy

- Role-play

- Art

- Clay

Distraction technique is also used by engaging patients in constructive activities such as

crossword puzzles, listening to music etc.

Occupational therapists help the depressed client to become proficient at identifying and

countering cognitive distortions (irrational thought, negative self-evaluation, over-

generalisation of simple mistakes, negative self talk etc) - in that way depression looses

its strength.

Evidence suggest that cognitive therapy is valid in occupational therapy for patients with

mild to moderate depression and possibly for patients with more severe depression.8, 13

Cognitive behavioural approach The occupational therapist uses the following principles of the cognitive behavioural

approach:

• Training

• Repetition

• Modelling

• Practice and

• Association

This approach suits the occupational therapist because of its focus on functional problem

solving skills which help the patient identify and practice alternative behaviours to

problem situations.3, 8

124

It can be applied successfully to teaching, relaxation techniques, prevocational skills etc:

Social modelling may also be used, especially during role-play, to train social skills to the

depressed client. 3

The Cognitive behavioural approach is strongly considered as an initial therapy for

patients with severe or chronic depression.17 Literature also shows that 35% of patients

treated with the cognitive behavioural approach experienced a relapse.18 They also

experienced fewer depressive episodes during follow up periods than did those receiving

standard clinical management.18

Behavioural approach The Occupational therapist will select a new behaviour and break it up into smaller

components and sequence. It is then explained what is expected of the client and every

time the client displays the new behaviour, a reward is given. The reward can be positive

and/or negative. The reward must be given as soon as the new behaviour is displayed.20

• Monitoring activities

The client is requested to keep a record of his/her weekly activities.

• Scheduling activities

Activities are increased according to the pleasure the client derives from performing

them, as well as grading the activities that the client has mastered.

Humanistic approach/Client centered approach

Occupational therapists make use of a client centered approach whereby the client is

involved in the decision making process regarding the direction of their therapy. The

client is given the opportunity to have the capacity for self awareness and to make their

125

own choices. Their interests, roles, needs and habits are taken into consideration during

therapy.

The therapeutic relationship is of great importance in order to facilitate the above;

therefore the therapist should be empathetic, congruent, warm, genuine and show

unconditional positive regard for the client.20

Physiological approach 3, 4, 20 Individuals are a biological ergonomist whose behaviour depends on genetically

determined factors, combined with selective action of nervous and endocrine systems

and the ability of the body to maintain homeostasis. Performance depends on the

integrity and the interactions of all body systems (e.g. cardiovascular, musculoskeletal

etc). Examples of activities that use the physiological approach are aerobics, volleyball

etc.

7.3. Contra-indication for major depressive clients:

• Relaxation therapy and psychodrama are to be avoided in the severely depressed

states.

• Grouping too many depressed patients together may present a stifling atmosphere.

7.4. The most relevant techniques for the treatment of major depression are:

• Occupational group therapy.

• Role play.

• Projective therapy.

• Psychodrama [specialized technique which requires further training].

• Relaxation therapy [Jacobson]

• Counselling

• Music and Art therapy

126

7.5. A balanced weekly treatment programme for major depression patients A balanced weekly programme, at any stage of intervention, could consist of the following

activities, which can be undertaken individually or in groups.4

• Self care activities

• Domestic activities

• Sports and leisure time pursuits should be introduced gradually. Start off with walking

and activities with a low tempo and later introduce volleyball, hydrotherapy or

swimming etc.

• Work related activities.

• Occupational group therapy: psycho-educational, task orientated groups/creative

activities, expressive group and socio-emotional groups, stress management.

At primary level, the patient may need four individual sessions of occupational therapy (one

session per week), that lasts for one hour a session. They may benefit from six to eight

occupational group therapy sessions that lasts for ninety minutes. The occupational group

therapy session may be held once or twice a week for a period of two months and if there is

no progress, then the patient will be referred to the hospital for hospitalisation.

This weekly programme at secondary level may last for a period of two to four weeks while

the patient is hospitalised during an acute phase. The patient may have five to ten

occupational group therapy sessions per week that lasts for ninety to one hundred and

eighty minutes a session, on a daily basis. The patient may be seen for one to two hours on

an individual basis at least three times a week.

For a chronic phase at tertiary level, the patient may need to be seen for an extended period

of time once a week or twice a month for a period of six to twelve months. The patient may

benefit from individual sessions and group therapy sessions that last for one to two hours.

127

7.6. Time span/ Number of Occupational Therapy treatment sessions

7.6.1. Community/outpatient basis (Primary level)

• 1x session of comprehensive assessment that lasts for 1-2 hours a session (NHPR

code 66108 and 66209)

• 4x individual session that lasts for an hour (NHPR code 66315) a day for a month

• 6-8 x occupational group therapy sessions that lasts for 90 minutes a session (NHPR

code 66305) for a period of two months.

7.6.2. Acute phase (Secondary level)

• 1x session of comprehensive assessment that lasts for one to two hours (NHPR code

66108 and 66209)

• 1x collateral information or consultation (NHPR code 66108/66109)

• 3x session of individual treatment a week that lasts for one to two hours (NHPR code

66315/66317/66319)

• 5-10x occupational group therapy sessions per week that lasts for 90 minutes to 3

hours a session (NHPR code 66305)

• 3x sessions for vocational rehabilitation clients that lasts for an hour (NHPR code

66315)

• 2x follow up session that lasts for 30 minutes to an hour (NHPR code

66108/66311/66315)

7.6.3. Chronic phase (Tertiary level)

Patient in the chronic phase require long-term intervention. A patient may be part of the

occupational group therapy and individual occupational therapy sessions for ±6-12

months.

128

• 1x session of comprehensive assessment that lasts for two to four hours (NHPR code

66108 and 66211)

• 1x collateral information or consultation (NHPR code 66108/66109)

• 1x individual session per week or two individual session per month that lasts for an

hour for a period of six to twelve months (NHPR code 66315)

• 24-50 occupational group therapy sessions for a period of six months that lasts for

ninety minutes a session. (NHPR code 66305)

• 8-10x sessions of vocational rehabilitation on an individual or group therapy sessions

that lasts for two-four hours a session a day (NHPR code 66317/66319).

• 1x reassessment session after six months (NHPR code 66108 and 66209)

8. A TABLE OF EVIDENCE OF THE RESEARCH DONE

Author Study population

Type of design Treatment group Outcome

variable

Findings

Stein &

Smith

(1989)

Acutely

depressed

psychiatric

in-patient

(ages 20-45

years)

Single-group

pretest-posttest

design

Occupational

therapy based

management

training,

including

groups

discussion,

biofeedback,

relaxation

training,

behavioural

rehearsal, and

attention to

everyday

stressors and

activities

useful in

controlling

stress (n=7)

S-Anxiety

scale of the

state-Trait

Anxiety

Inventory

Subjects were

significantly less anxious

at the conclusion of the

program than they were

prior to its initiation

(+0,8)

Good-

Ellis, fine

Recently

admitted

Single-group

pretest-posttest

Occupational

therapy

Role

performance

Unipolar and bipolar

demonstrated different

129

Haas,

Spencer,

Glick

(1986)

inpatients

with major

depressive

disorders,

including

unipolar and

bipolar

disorders

(ages 15-45

years)

design services,

based on the

occupational

behaviour

model,

featuring

emphasis on

activities of

daily living,

goal setting,

future

planning,

recreation and

prevocational

services (in

conjunction

with standard

hospital

treatment with

emphasis on

family

intervention)

(n=50)

(based on the

role Activity

Performance

Scale)

patterns of recovery.

Trajectory of

improvement during 6-

18 month period showed

social and leisure role

improvement preceding

work, school and other

primary roles. At both 6

months and 18 months

follow-up more subjects

improved that worsened

in their role activity

performance (respective

effect size estimates

=+0,1 and +0,4)

Firie

(1988)

Adult

psychiatric in

patients,

short term

acute care

setting with

bipolar or

major

depressive

disorders

(ages 18-55

yrs)

Experimental

two groups

design

Life skills

curriculum,

educational

social learning

approach to

skill acquisition

design to

enhance

community

adjustment

standard

occupational

therapy.

Problem

solving skills,

communicatio

n skills,

community

adjustment.

Preliminary results

suggested sustained

improvement in

problem-solving and

communication skills at

conclusion of treatment.

Functional gains

generally sustained in

spite of significant

increase in depressive

symptoms at 6 weeks

follow-up. All results

based on small initial

sample (n=5)

De Carlo

& Mann

Psychiatric

day

treatment

Pretest-posttest

control group

experimental

Activity group

(n=7).

Engagement

Interpersonal

communicatio

n skills (based

Activity treatment

produced significantly

higher increase in skills

130

center clients

including

persons with

depression

group. in meaningful

in-group

activities.

Verbal group

(n=6):

Engagement

in-group

discussions

control group

(n=6).

Participation in

the clinics

normal milieu

therapy.

on the

Interpersonal

Communicatio

n Inventory)

than did the verbal

treatment (+1, 3).

Activity treatment

produced non-

significantly higher

increments in skills than

did the control condition

(+0,8)

Hachey&

Mercier

(1993)

The

contribution

of rehab to

quality of life

in psychiatric

patients

Addition of

occupation

Longitudinal

N=152

Positive but modest

relationship between

occupation and quality

of life and self perceived

health not affected by

use of rehabilitation

services

Larson

(1990)

To determine

activity

patterns for 1

week and 1

month before

hospitalisat-

ion and life

changes for

the past year

Withdrawal of

occupation

Longitudinal

N=15

Because of the

small sample

size, the study

conclusion

may not be

generalisable

Activity changes were

highly correlated with

depression. As activity

changes increase,

personal care decrease

and passive recreation

increases. As financial

stress increase,

personal care increases.

As home and family

stress increases

personal care

decreases.

Mac-

Donald et

al.

(1987)

To examine

the

depression

and activity

patterns of

persons with

Withdrawal of

occupation

Cross-

sectional

N=53

Reliable and

valid

measures

used. Because

of the cross-

sectional

Severity of injury was

associated with

increased risk of

depression and

decreased activity.

Individuals with

131

spinal cord

injury in the

community

design, it is not

possible to

know if

depression led

to decreased

activity or if

decreased

activity led to

depression.

Longitudinal

studies are

needed.

depression reported

engaging in less

personal activities.

9. CONCLUSION

It is found that major depressive disorders decrease a client’s functioning in all occupational

performance areas. Therefore occupational therapists have a unique role to play during the

treatment in the acute, chronic and intermittent phases of all major depressive disorder

patients.

A good deal of theoretical and empirical work supports the notion that occupational

engagement is associated with a reduction of symptoms in major depression patients.

Because of its explicit focus on roles, behaviours and adaptive skills, occupational therapy

can play a key role in the treatment of major depression.

The advantage of occupational therapy is that it is a client-centered practice since the client

and the occupational therapist work together as mutual partners in order to find the best

solution for the client.

It will be inappropriate for the client to be treated without the involvement of the occupational

therapist, due to their unique contribution to their well-being and health.

132

10. REFERENCES:

1. Trombly CA. Historical and Social Foundation for practice. Occupational Therapy for

physical dysfunction 4th ed. 3-13

2. Kaplan, HI; Sadock BJ & Grebb, JA. “Kaplan and Sadock’s synopsis of psychiatry”. 7th

ed. Williams & Wilkins. Baltimore. 1994.

3. Crouch R; Alers V. Occupational Therapy in psychiatry and mental health. 4th Ed

4. Crouch R; Alers V. Occupational Therapy in psychiatry and mental health. 3rd Ed

5. Larson KB. Activity patterns and life changes in people with depression. American

Journal of Occupational Therapy. OCT 1990, Vol 44 number 10.

6. Cracknell E.A small achievable Task. British Journal of Occupational Therapy. Aug

1995, 58 (8). 343-344.

7. Devereaux E, Carlson M. The Role of Occupational Therapy in the management of

depression. American Journal of Occupational Therapy. Feb 1992, Volume 46 number

2.175-905.

8. Creek J. The knowledge base of Occupational Therapy. Occupational Therapy and

mental health. 3rd Ed. 29-49.

9. Brollier C, Hamrick N, Jacobson B. Arobic exercises: A potential Occupational

Therapy Modality for Adolescents with depression. Occupational Therapy in mental

Health. Vol 12(4) 1994 19-27

10. Crouch R. A study of the effectiveness of certain occupational therapeutic group

techniques in the assessment of acutely disturbed adult psychiatric patients. 1983.

Masters thesis: University of Witwatersrand.

133

11. Kopecki. AAOHN Journal. 1986. 34 (7)’ 315-322.

12. Kuenstler G.A planning group for psychiatric outpatient. AJOT. 1976. 30(10)

13. Crouch R.B. The evaluation and development of a tool for community-based stress

management. 2002-Doctoral thesis. Medical University of South Africa.

14. Mancusso LL. Reasonable accommodations for workers with psychiatric disabilities.

Psychosocial rehabilitation Journal.1990. 14(2): 3-19.

15. Code of Good Practice on key aspects of the employment of people with disabilities

(this code is attached to the employment equity act (Act no 55 of 1998 of South Africa)

www.labour.gov.za/docs/legislation/eea/codegoodpractice.htm

16. Casteleijn.J. The Measurement of Properties of an instrument to assess the level of

creative participation. 2001. Masters thesis-University of Pretoria.

17. Stuart J; Rupke MD; Blecke D. Cognitive Therapy for depression. Journal of American

family Physicians. Jan 2006.

18. Rosebaun JF; Fredman SJ. Clinical Update on the treatment of depression.

www.medscape.com/view article 441270-441275

19. Cluster V.L; Wassink K.E. Occupational therapy intervention for an adult with

depression and suicidal tendencies. American Journal of Occupational therapy Sept

1991.45(9): 845-8

20. Fouche L. Occupational Therapy in the community. Masters in psychiatry assignment.

Unpublished material. University of Pretoria.

21. Alers V; Smits B. The development and evaluation of an experiential approach to

teaching occupational therapy group work. South African Journal of Occupational

Therapy 2002:32(3).

134

22. Finlay L. The practice of psychosocial occupational therapy.2nd Ed. United Kingdom

1997.

23. Harding C. Some things we’ve learned about vocational rehabilitation of the seriously

and persistently mentally ill.

www.akmhcweb.org/ncarticles/vocational%2520 Rehab.htm.1997.

24. Corey Ms; Corey G. Groups. Process and Practice.5th Ed. New York: Brooks/Cole

Publishing Company.1997.

25. Jacobs K. Work assessment and programming. In HL Hopkins and HD Smith (Ed).

Willard and Spackmans Occupational Therapy. Philadelphia. J.B Lippincott Company,

1993, pp.226-248.

26. Yalom ID; The theory and practice of Group psychotherapy 4th Ed 1985.

27. Cara, E. Mood disorders. In Case. In Cara E. & MacRae, A (Eds.) Psychosocial

Occupational Therapy: A Clinical Practice, 1998 pp: 285-311. Albany, NY: Delmar

Publisher

28. Cooper, N. Case management. In Cara, E & MacRae, A. (Eds) Psychosocial

Occupational Therapy: A Clinical Practice 1998, pp.577-606. Albany, NY: Delmar

Publisher.

29. Macrae, A. Occupational therapy models. In Cara, E. & Macrae, A. (Eds)

Psychosocial Occupational Therapy: A Clinical Practice, 1998, pp.97-136. Albany, NY:

Delamar Publisher.

30. Van Greunen, A. “Occupational therapy with mood disorders”. Chapter 15. Edited by

Crouch, RB & Alers, VM. “Occupational therapy in psychiatry and mental health”. 3rd

ed. Maskew Miller Longman. Cape Town. 1997.

135

31. Kusznir, A; Scott, ; Cooke, RG & Young, LT. “Functional consequences of Bipolar

Affective Disorder: An Occupational therapy perceptive”. Canadian Journal of

Occupational Therapy. Vol 63 (5).

Pp 313-322. December. 1996.

32. Gallagher MR; Cariati S. The pain-depression conundrum: Bridging the body and

Mind. www.medscape.com.

33. Franklin D. Cognitive therapy for depression.

34. Westermeyer R.W. The cognitive model of depression.

35. Pollock R; Korn M. Depression; Approaches to brain and body.

36. Blatner A. Foundatons of psychodrama. Therapy and practice.3rd Ed. New York:

Springer Publishing Co: 1992.

37. Checkly S. The management of depression. Oxford: Blackwell Science Ltd. 1998.

38. Shrey DE; Larcate M. (Eds). Principle and Practice of Disability management in

industry. 1997. pp.627/55-105 Winter Park; FL: Gr Press Inc.

39. Szabo CP. Adolescent depression; continuing medical education Journal.

1995.13(11): 1329-1333.

40. Tsang H; Lam P; Leung O. Predictors of employment outcome for people with

psychiatric disabilities: A review of literature since mid 80’s; Journal of rehabilitation.

2000.66(2)’19-31.

41. Katz, R, B.F, Vallis, T.M, & Kalser, A.S. The assessment of severity and symptom

patterns in depression. In Beckham, E.E. & Leber, W.R. (Eds) Handbook of

Depression (2nd ed.), 1995, pp.61-85.New York: The Gullford Press.

136

OBSESSIVE COMPULSIVE DISORDER

Compiled by Rosemary B Crouch PhD Occupational Therapy (MEDUNSA)

1. INTRODUCTION

Occupational therapists have for many years treated clients with anxiety disorders and obsessive-

compulsive disorders in South Africa. Unfortunately very little is documented.

Undergraduate training in all 8 Universities in South Africa teach about the illness of obsessive-

compulsive disorder (OCD) and the handling principles of a person with this disorder. However most

of the focus is on anxiety disorders as such.

The main objective of occupational therapy is towards helping the client with OCD to perform in, and

adapt to his/her environment. Since this disorder is extremely debilitating in terms of participating in

the major spheres of life, intervention is aimed at restoring functioning, or at least coming to terms

with the disability, so that the person may live a purposeful and meaningful life, despite the disability.

‘Functioning’ from an occupational therapy perspective is much broader than the absence of

symptoms. Optimal functioning is linked to well-being, quality of life and the person’s self-efficacy

and mastery in choosing, organizing and performing those occupations he or she finds useful and

meaningful in various living environments. Occupational therapists are concerned with encouraging

and enabling the person to live life fully by also addressing issues such as inclusion, reasonable

accommodations and equal opportunities in the contexts where they live, work and play, despite the

presence of some residual symptoms of the illness¹.

2. DIAGNOSES

Obsessive Compulsive Disorder, treated by an occupational therapist is usually under the following

categories of the ICD-10 and DSM. IV:

ICD-10 F42.9

F41.9

F41.8

F41.3

F60.6

137

DSM. IV 301.40 Obsessive Compulsive Personality Disorder

300.30 Obsessive Compulsive Disorder

300.00 Generalised Anxiety Disorder

3. IMPACT ON OCCUPATION

3.1 Work

Work is one of the areas of life that is most disrupted with the illness of OCD. Poor concentration and

the need to engage in compulsive, repetitive behaviours may significantly hamper work performance².

Most clients with mild symptoms maintain their work, but the number of hours they work is severely

disrupted as are relationships in the work-place and actual work ability. Time management is often a

serious problem. The OCD client has rituals to perform before actually arriving at work and is often

late.

3.2 Activities of Daily Living

Often the personal presentation of the client with OCD is poor and such aspects as personal hygiene

need to be addressed by the occupational therapist. Obsession with certain aspects of cleanliness, such

a washing hands, often brings about the neglect of other parts of the body such as the hair and feet.

The ability to attend to personal hygiene, eat, dress, perform household chores, manage money and

use the telephone is often compromised².

3.3 Leisure and social

Participation in social activities is often greatly reduced in the client with OCD and leisure pursuits

may be solitary and confining. Social relationships frequently suffer due to the overriding focus on the

completion of rituals².

138

4. IMPACT ON ROLES, HABITS AND ROUTINES

OCD is known as a sensory processing disorder. In other words the person struggles to form meaning

responses to sensory stimuli. As a result these individuals often exhibit problems with coordination,

sensory-seeking or sensory-avoiding behaviours and sensory modulation3. The disorder is also

characterized by distressing, intrusive thoughts and repetitive actions that interfere with the

individual’s daily functioning, normal routine, occupational or academic functioning and usual social

activities and relationship4.

5. HEALTH CARE STRUCTURES

Patients with OCD are usually first seen by the occupational therapist during initial hospitalisation

where there is a curative/remedial approach. Rehabilitation in a community-based setting or private

practice then takes place.

6. ASSESSMENT

6.1 Baseline Assessments

• Interview with client and significant others.

• Clinical Observation takes place continually.

• Evaluation takes place by both standardised and non-standardised tests.

Standardised tests include:

o Crouch Stress Assessment 2003¹

o Hospital Anxiety and Depression Scale

o The Canadian Occupational Performance Measure (COPM)

o Occupational Performance History Interview5

o Battery of Anxiety Questionnaires.

• Collateral information is often required form significant others.

• Assessment reports are furnished to the referral agent.

139

6.2. Ongoing Assessment

Ongoing assessment takes place throughout treatment and a final assessment on discharge when the

patient’s progress can be discussed and planning for the future takes place.

7. INTERVENTION

7.1 The Role of the Occupational therapist

Occupational therapists, throughout the world, are trained in the assessment and treatment of

obsessive-compulsive disorder, helping identify how major disruptions in habituation and volition can

affect a person’s ability to perform and adapt to everyday life6. A purposeful and meaningful

treatment plan is required containing the following aspects:

7.1.1 Work

Vocational rehabilitation is often necessary for the client with OCD and often reasonable

accommodation has to be discussed by the occupational therapist with the employer7.

7.1.2 ADL (Activities of Daily Living)

Personal hygiene has to be addressed very sensitively by the occupational therapist and individual

treatment is often required. Factors which must be addressed by the occupational therapist are

home management, including visits to the home and related issues such as child and adolescent

management are also important.

7.1.3. Social Participation and Leisure

OCD as an illness is based upon high levels of anxiety and one of the most important aims of

treatment in occupational therapy is to assist the client with a balance of activities that will release

stress and anxiety. Activities such as playing bridge, joining a book club or cinema club or learning

a new skill in a small group should be encouraged. Constructive use of leisure time often cuts down

OCD behaviour and rituals. Treatment can either be in a group or individually.

140

7.2 Theoretical Framework

7.2.1 Models

The Model of Human Occupation5 is often used as a frame of reference in the assessment and

treatment of obsessive-compulsive disorder. Careful application of this model promotes a more

holistic view of intervention by the occupational therapist.

7.2.2 Frame of Reference/Approaches

THE SENSORY-BASED TREATMENT APPROACH

The concept of sensory processing disorders comes from the work of occupational therapist

Jean Ayres, Ph.D (1983). Her work has launched a sensory-based treatment approach,

primarily practiced by occupational therapists3. The efficacy of treatment has been highly

researched. “It is a fact that pathology can interfere with the process of integrating sensory

information. If sensory information cannot be integrated or is integrated in a dysfunctional

way, it will contribute to the individual makes sense of their world and this could often be

disorganizing”8. An example is the person who is continually washing their hands, who is

receiving much tactile sensory stimulation and is obsessed with it, will shut out most other

sensory information such as sound.

7.3. Treatment Programmes

7.3.1 Occupational Group Therapy and Stress Management.

The use of group-work in occupational therapy has always been an integral part of intervention,

particularly in the psychiatric field, and constitutes a major part of any programme.

Occupational therapists in South Africa are highly trained in group-work and in stress

management (stress management does not have to take place in a group but is more effective in

this way).The teaching of relaxation is essential and how to cope with stress generally. In South

Africa occupational therapists are expert in the techniques of stress management and have a very

holistic approach. Research undertaken by Crouch (occupational therapist) in 2002 shows a

significant difference in the levels of stress of participants in stress management programmes

carried in the community in South Africa.

141

Groups for clients with OCD are extremely important and allow the client to share with other

people who have the same or similar problem. Groups focused on life skills and coping skills

are very important and support groups where four or more clients can safely discuss their

problems and let go of anxieties are very important. A number of excellent support groups are

also available in the community for clients with OCD and they should be encouraged to attend.

7.3.2 Sensory Integrative Therapy

Occupational therapist train at a post-graduate level in sensory integrative therapy and have to

be qualified to use these therapies. Therapy is carried out by diminishing the OCD behaviour by

providing the person with a sensory “diet” that will provide the sensory stimulation the client

requires. Activities will be used that are in keeping with the age and sex of the individual and

may include the use of the therapy ball, the trampoline, scooter boards, sport and swinging

activities.

7.3.3 Constructive Use of Leisure Time

As previously stated, the involvement of patients in a balanced programme which includes

constructive use of leisure time is essential. Exercising regularly, joining intellectual and support

groups and learning new skills such as computer skills, pottery and ceramics

7.4 Time Span

NUMBER OF OCCUPATIONAL THERAPY SESSIONS.

• Acute Phase:

1 x session of comprehensive assessment

1 x collateral information or consultation

2 x individual treatment

5 x occupational group therapy

2 x follow up

142

• Chronic Phase:

Patients in the chronic phase require long-term intervention. A patient may be part of

occupational group therapy for as long as a year, once a week.

1 x session of comprehensive assessment

1 x collateral information or consultation

2 x programming for daily activities

50 x occupational group therapy

1 x session reassessment

8. TABLE OF EVIDENCE

Author Study

population

Type of

design

Treatment

group

Outcome

variable

Findings

Crouch,R.B. 160 random

rural pop.

Quantitative

experimental

Impoverished

low soc/eco.

Alleviation

of stress

Significant

alleviation

of stress

9. CONCLUSION

Anxiety disorders appear to becoming more frequent amongst a broader South African population.

The profession of occupational therapy is in the process of addressing the need to become more

involved in the treatment of anxiety disorders generally and to produce more evidence in respect to

the success of treatment in this area

10. REFERENCES

1. Crouch, R.B. The Evaluation and Development of a tool for Community-based Stress

Management. Ph.D Thesis Medical University of South Africa (MEDUNSA) (2002)

2. Calvoconess, L., Libman, D., Vegso, S., McDougal, C. & Price, L. Global functioning of inpatients

with obsessive compulsive disorder, schizophrenia and major depression. Psychiatric Services 49:

379-38 March 1998. Arlington: American Psychiatric Publishing Inc. (1998)

143

3. Reisman, J. Sensory Processing Disorders. Minnesota Medicine. 85 (11): 48-51, Nov. (2002)

4. American Psychiatric Association Diagnostic and Statistical Manual of Mental Disorders. 4th

Edition. (DSM IV) Washington: American psychiatric Association. (2000)

5. Kielhofner,G. Model of Human Occupation. 3rd Edition. Baltimore: Lippincott Williams and

Wilkins. (2002)

6. Bavaro, S. M. Occupational Therapy and Obsessive-compulsive Disorder. American Journal of

Occupational Therapy 45 (5): 456-8, May. (1991)

7. Strong, S. Meaningful work in supportive environments: experiences with the recovery process.

American Journal of Occupational Therapy, 52, 31-38. (1998).

8. Crouch, R., & Alers, V. Eds. Occupational therapy in psychiatry and mental health. 4th ed. London

& Philadelphia: Whurr Publishers(2005)

9. Creek,J. Occupational Therapy and mental health. London: Churchill Livingstone. (2002)

10. Kaplan, H. I., & Sadock, B. J. Comprehensive textbook of psychiatry. 7th Ed. Philadelphia:

Lippincott Williams & Wilkins. (2000)

144

POST TRAUMATIC STRESS DISORDER (PTSD)

Compiled by Vivyan Alers (B.A. Social Work, M.Sc. Occupational Therapy)

10. INTRODUCTION

Post Traumatic Stress Disorder (PTSD) is a psychiatric disorder that can occur after the

experiencing or witnessing of life-threatening events which causes people to relive the

experience through nightmares and flashbacks, insomnia, detachment and impairment of

daily life.

The occupational therapist has an important role to play to get the trauma survivor to resume

their normal lifestyle again. The occupational therapist can make a profound impression on

the emotional, practical and functional aspects that are emphasized within the roles taken on

by the trauma survivor. PTSD can be complicated with other related disorders involving

depression, substance abuse, memory and cognition problems and physical and mental

health problems. There are clear biological changes and psychological symptoms which are

associated with the impairment of functioning in social and family life, occupational instability,

marital problems, divorce, family discord, difficulty in parenting. The effects of PTSD may be

pervasive and encompass the whole being of the person’s life which may immobilize them to

varying degrees. The effects of PTSD are long term and recurrent relapses may occur.

The potential contribution of Action Methods (sociometry and psychodrama) for addressing

healing the trauma and pain of victims and perpetrators of domestic violence is largely

untapped. “Psychodrama has been less used within the field of traumatic stress than other

therapeutic approaches”7. Many symptoms of Posttraumatic Stress Disorder (PTSD) “…

are unconscious, non-verbal, right-brained experiences that cannot in fact be accessed

through talk therapy”7. Psychodrama can be used “as a powerful method of restraint and

reintegration” as well as “expression and catharsis” 7. It can serve to address the very

symptoms of PTSD, to facilitate developmental repair, to provide structures for safe re-

enactment of the horror of core trauma scenes, and to promote control, containment, and

stability.

145

Referrals may come from a variety of sources, namely medical practitioners,

physiotherapists, work employers, teachers, parents, colleagues of the trauma survivor,

family members, community members, religious counsellors or the trauma survivors

themselves seeking help.

For the purposes of this document PTSD will be mainly described.

11. DIAGNOSIS

The diagnosis according to ICD – 101, 2 relevant to occupational therapy are the following as

they are all related to a perceived stressor / trauma.

F43 Acute stress reaction

F43.1 PTSD

F43.2 Adjustment disorders

F43.8 Other reactions to severe stress

F43.9 Reaction to severs stress unspecified

F93 Separation anxiety disorder of children

F93.1 Phobic anxiety disorder of children

F93.2 Social anxiety disorder of childhood

F94 Elective mutism

F94.1 Reactive attachment disorder of childhood

F94.2 Disinhibited attachment disorder of childhood

F94.8 Other childhood disorders of social functioning

The symptoms of PTSD according to the DSM IV3 fall into 4 categories;

A Person is exposed to a traumatic event , experienced, witnessed or confronted with an

event/s involving threatened death or serious injury, or threat to physical integrity of self

146

or others. Person’s response involved intense fear, helplessness, or horror. [In children

disorganised or agitated behaviour]

B The traumatic event is persistently re-experienced with intrusive distressing recollections

and recurrent distressing dreams. There is acting/feeling that traumatic event was

recurring with intense psychological distress to internal or external cues. There is

physiological reactivity on exposure

C Persistent avoidance of the stimuli associated with trauma [minimum 3 of the following]

Avoid thoughts feeling, conversations, Avoid activities, places or people, Inability to recall

important aspects of trauma, Diminished interest and participation, Detachment /

estrangement feeling, Restricted range of affect, Sense of foreshortened future

D Persistent symptoms of increased arousal with difficulty falling/staying asleep,

Irritability / anger, difficulty concentrating, hyper vigilance and an exaggerated startle

response

With all the above symptoms the duration of disturbance >1 month and the disturbance

causes clinically significant distress / impairment in social /occupational functioning.

12. IMPACT ON OCCUPATION PTSD has a pervasive effect on all the areas of functioning.

3.1 Work The impairment in the vocational environment may be clearly marked with a lack of

concentration, inability to focus on the tasks needed, inability to set and attain goals, a

decrease in accomplishments, a decrease in the quality of tasks done and a general

decrease in performance. Absenteeism is common, and the person becomes disorganised,

unpredictable and labile in the work setting. There is often an inconsistent employment

147

history, poor interpersonal relationships, and possible drug / alcohol abuse. Executive skills

become incapacitated.

With children in the school environment there is a lack of concentration, possible attention

deficit disorder symptoms, psychosomatic disorders, withdrawal and a decrease in academic

performance.

3.2 Activities of Daily Living Hygiene aspects do not carry the same importance as before, and the client shows a

decrease in their personal care of themselves. The inability to care for others makes

parenting a problem, relationships within the family deteriorate, and irritation, depression or /

and anxiety may be shown. Children may be disorganized in all their activities of daily life

and show an irritable attitude.

3.3 Leisure There is a definite decrease in the leisure pursuits of a trauma survivor as they may withdraw

or their concentration is not long enough to pursue a hobby. Sometimes they may immerse

themselves in work and totally forget about their leisure time.

Children withdraw from active play and seek passive play.

3.4 SOCIAL There is a definite decline in their interpersonal relationships within the family and within their

social environment. Withdrawal from social activities is common.

13. IMPACT ON ROLES, HABITS AND ROUTINES Trauma challenges a person’s belief in their safety, attachment, trust / betrayal, lifestyle,

sense of belonging and ego states. This is not a transient state of unbalance, as it can have

lasting emotional effects on a person, especially when experienced during childhood. In the

latter case there are often resultant interpersonal effects in adult life. The negative effects of

148

trauma can reoccur when triggered by a situation or flashback. This may happen years after

the incident. The more complex the trauma, and the repetition of trauma, can add to the

severity of the distress.

The occupational therapist needs to address all the roles and routines that were present and

fulfilled before the traumatic incident and slowly facilitate the person to return to these roles

and to become a member of the society again. Their beliefs and values need to be

addressed and normalized and social norms need to be encouraged.

14. HEALTH CARE STRUCTURES

5.1 Pillars of Health Care Preventative /promotive

Psycho-education is an important aspect in prevention. This is especially needed to prevent

further/repeated trauma, and risky behaviour.

Curative /remedial

Occupational therapy will be involved when children’s/ students academic performance

deteriorates to enhance their abilities and apply themselves to foster achievement.

Rehabilitative

This is the biggest role of the occupational therapist to help the client to return to normal life

and to be able to resume their roles, beliefs and routines. Safety and containment of

emotions and behaviour is important together with the expression of emotions and the

participation of meaningful tasks within their home and work contexts. Rehabilitation needs

to address the self, the environment, the context and the spirituality or meaning in life.

Maintenance

The occupational therapist puts structures and support systems in place that assist the client

to maintain their mental health. Relapse or flashbacks often occur and the client needs to

have practical and supportive ways to cope. The holistic philosophy of occupational therapy

149

addresses the personal, interpersonal and transpersonal (spiritual) aspects of a client’s life in

terms of maintenance.

5.2 Level of Health Care System

Occupational therapists can be involved with clients within the primary, secondary and

tertiary levels of the health care system.

Primary level – groups within the communities addressing prevention and promotion of

mental health. These would be psycho-education groups related to the formation of support

groups and lifestyle groups. These would be community based groups on an ongoing basis

as slow-open groups. Groups addressing the secondary traumatic stress factors for the

family members are also included here.

Secondary – these groups and individual treatment may be in the community, hospital or

practice rooms. These groups would be slow- open groups or closed groups depending on

the trauma survivors / clients. These groups may vary in length of time for each session from

2 hours to workshops that could be 1 or 2 days. Treatment also involves other family

members that need to be the support system for the trauma survivor.

Tertiary - these groups and individual treatment may be in the hospital or practice rooms.

These groups would be slow- open groups or closed groups depending on the trauma

survivors / clients. These groups may vary in length of time for each session from 2 hours to

workshops that could be 1 or 2 days. Treatment also involves other family members that

need to be the support system for the trauma survivor.

15. ASSESSMENT

6.1 Baseline Assessments The initial assessment is necessary to ascertain the previous and present functioning of the

client. This needs to be documented and may be used later in comparison when relapses

occur.

150

6.1.1 Professional interview

The professional interview is necessary to obtain background information, precipitating

and predisposing factors. During this interview time is needed to develop a rapport with

the client to build trust, confidentiality, and a contained arena to be able to discuss

emotional issues. This includes a narrative of the client’s life with any significant

occurrences during their life, and ascertaining whether the client has been a victim, a

perpetrator or both. It is also important to asses the client’s perception of how the

traumatic event has affected their functioning in all the spheres of daily living.

6.1.2 Clinical observation

Clinical observations relate to the nuances and body language, together of what is said

and omitted, especially regarding the incident / traumatic event. The attachment pattern

of children to their carers is also needed to be observed.

6.1.3 Evaluation

The evaluation includes the clinical reasoning of the therapist pertaining to narrative,

conditional, pragmatic, interactive, procedural, ethical, intuitive reasoning.

6.1.4 Collateral information

This is of utmost importance as often exaggeration, misconceptions or omissions are

portrayed in the client’s story due to their stress levels being high. The family and other

professionals need to be contacted and sometimes this may involve the justice system if

there is a statement necessary.

6.1.5 Assessment report

There are some ethical considerations to be noted when compiling the reports. Due to

the stigma attached to traumatic events (e.g. Rape, diagnosis of HIV, being a perpetrator

and then a victim) the assessment report needs to be formulated and the disclosure of

this report to other professionals needs to be discussed with the client. There is also an

ethical dilemma of whether the assessment is reliable after only one session, due to

omissions or misconceptions.

151

6.2 Ongoing Assessment The occupational therapist would monitor the frequency and consistency of symptoms and

level of motivation. Ongoing assessment is of utmost importance especially in the light of

malingering to claim from insurance policies. Ongoing assessment is also imperative as

PTSD is a long term illness and has an impact on all the spheres of daily life.

16. INTERVENTION

7.1 Role of O.T:

7.1.1 Work

The executive functions at work, motivation and productivity are key aspects addressed

by the occupational therapist. Coping skills, time management skills and stress

management / life skills are part of the role of the occupational therapist in the treatment

of PTSD.

The self esteem and self confidence together with meaning attribution in the workplace is

the aim of treatment. The outcome of this process is reduced absenteeism, improved

productivity due to the client feeling competent and confident in the workplace, together

with an improved motivation.

7.1.2 Activities of Daily Living

The occupational therapist addresses all the activities of daily living namely personal care

and personal presentation, management in the home including the executive functions to

assist the client to return back to their previous functioning and make their life

meaningful.

The self esteem and self confidence together with meaning attribution in the home is the

aim of treatment. When the home and personal environment is organised then the client

will feel more in control of their life and thus be able to maintain this control and be

motivated to be productive and return to work.

152

7.1.3 Leisure

The occupational therapist is able to assess and facilitate the client’s engagement in

meaningful leisure time pursuits.

Leisure time pursuits give meaning to the client’s life and assist to balance the stress

factors from the other spheres of life.

7.1.4 Social

Occupational group therapy is the best intervention addressing the social sphere for

PTSD as it addresses support systems, interpersonal relationships and socially

acceptable behaviour. The group dynamics and the occupational group therapy

techniques of action methods engage the client and encourage spontaneity and

involvement in the healing process.

The outcome of this process is that the client will re enter into meaningful relationships

which will in turn improve self esteem and self confidence and this has a motivating effect

which will improve productivity in the home and work environment.

7.2 Theoretical Framework

7.2.1 Models

The Therapeutic Spiral Model has shown to be an effective technique for children, youth

and adults, with histories of trauma because it specifically addresses self-growth,

containment, safety and conscious transformation in a therapeutic individual or group

setting4.

The Sinani / Kwazulu-Natal Programme for survival of Violence Model shows the cycle of

violence and the cycle of peace5.

The Trauma Debriefing Model / 4 leg Model can be used for debriefing. This includes

retelling the story, normalizing the symptoms, reframing and encouraging mastery6.

Vona du Toit Model of Creative Ability applied to Paediatrics6.

153

7.2.2 Frame of References / Approach

The different phases of trauma need to guide the treatment approach. The occupational

therapist may be involved in all the phases (impact phase, recoil phase, reorganisation /

recovery phase) and needs to know what the client’s needs are in each phase.

“Cognitive behavioural therapy has long proved useful in managing the disruptive

symptoms of PTSD, but it does not directly treat the core trauma that causes these very

symptoms “.4 Success within the cognitive-behavioural and psychodynamic approaches

depends on the following: individuality and personality, other past trauma or the build up

of trauma and its cumulative effect, the reliability of the support systems and the phase of

recovery.

“As an experiential method, the Therapeutic Spiral Model increases treatment

effectiveness while decreasing treatment time with PTSD. “Practitioners discover

techniques to provide containment and safety with action methods in educational,

community or therapeutic settings“4.

7.3 Treatment Programs The occupational therapy goal is to attain maximal functional independence and the

prerequisites for this are the following: good support systems, understanding of symptoms,

stress management, stay away from drugs and alcohol and a balanced lifestyle routine.

Sinani believes that a partnership with a community affected by violence should not be a

short term project, unless there is a very specific request. But usually the relationship with

any one partner community lasts for 3-5 years5.

Programmes for secondary traumatisation of the family (including the parents, spouse and

children) are also necessary.

Psychodrama has been developed further by Dr Hudgins to treat trauma survivors. The

Therapeutic Spiral Model ™ constitutes a treatment of choice for adults and youth at risk,

with histories of trauma because it specifically addresses self growth, containment, safety

154

and conscious transformation in a therapeutic group setting4. The model has proven to be

cross cultural. The Therapeutic Spiral Model™ is a clinically driven, structured system of

psychodrama for working with trauma survivors. This model was created specifically to

prevent the uncontrolled regression that has the potential to re-traumatize clients when

experiential methods are used without an integrated clinical framework. The constructs and

methods have been validated by self-report, therapist interviews, and current single case

research. The goal of The Therapeutic Spiral is to facilitate developmental repair at all levels

of healthy functioning. Occupational therapists need specific post graduate training in the

Therapeutic Spiral Model ™ or psychodrama techniques.

Occupational group therapy workshops using the Therapeutic Spiral Model™ over weekend

time is an effective program to address the complete program over this time which effectively

enables the client to process and use the constructs demonstrated in a safe and contained

environment. This intensive therapeutic time is effective in breaking the cycle of violence to

create healing and subsequent treatment sessions are shorter.

7.4 TIME-SPAN

“Working with traumatised people requires a sensitive touch, the right timing and the use of a

variety of effective techniques. …The length of time given for the session is another

important issue. A session that deals with trauma should not be abruptly ended because of

rigid rules of time, such as the exact “therapist hour”7

7.4.1 Acute

Psycho-educational approach [Debriefing] 6 – 8 sessions of 2 hours each

7.4.2 Chronic

Cognitive –Behavioural approach long term – 20 sessions of 2 hours each

Psychodynamic approach long term – 20 sessions of 2 hours each

Occupational group therapy long term – 20 sessions of 2 hours each

155

Occupational group therapy workshop 2 days of 8 hours at a time, preferably over a

weekend.

Secondary traumatisation programmes 4 sessions of 1 hour each

17. TABLE OF THE EVIDENCE Many medical studies (anatomical and drug related) have been carried out with PTSD but

very few empirical studies have been done in experiential action methods or occupational

group therapy. Bessel van der Kolk (Harvard University) is the leader in the development of

treatment for PTSD. (See bibliography)

Author Study population

Type of design

Treatment group

Outcome variable

Findings

Hudgins K. M.

Drucker K. Metcalf

K. The “containing

double”: A clinically

effective

psychodrama

intervention for

PTSD. British

Journal of

Psychodrama and

Sociometry. 20009

.

1 client

diagnosed

with PTSD

(complex

trauma)

experiencing

a block in

long term

psychothera

py

Single

case

subject

design

3 treatment

sessions of

psychodrama

using the

containing

double from

the

Therapeutic

Spiral Model

Use of the

containing

double in

social setting

outside

therapy.

Decrease of

dissociation

and other

trauma

symptoms.

Significant change in the

Dissociation Experience

Scale after 1 session.

Analyses of PTSD

symptoms were

significantly improved at

follow up time compared

to baseline

assessments.

Discussion: Client

attended a weekend

workshop on “Surviving

Spirits”

before

agreeing to participate in

the research.

156

Wright D. C.

Woo W. L.

Muller R. T.

Fernandes C. B.

Kraftcheck E. R.

An investigation

of trauma-

centered

inpatient

treatment for

adult survivors of

abuse

Department of

Psychology, La

Marsh Centre for

Research on

Violence and

Conflict

Resolution, York

University,

Toronto, Ont.,

Canada. 2002 10

One

hundred and

thirty-two

individuals

admitted to a

PTSD

inpatient

treatment

program for

adult

survivors of

childhood

trauma

consented to

participate in

this study.

Inter-

vention

study

design,

Long-

itudinal

design

of the

study

shows

main-

tenance

of treat-

ment

gains at

1-year

post

treat-

ment.

This study

examined

whether a 6-

week

Comprehen-

sive inpatient

treatment

program can

reduce PTSD

symptoms

among adult

survivors of

child abuse.

Evaluation of

PTSD

symptom-

atology data

at admission

and

discharge

This study is

an empirical

investigation

that

quantitatively

examines

change in

symptoms

following

treatment

occurring in

a group

therapy

modality.

The question

of whether a

brief,

inpatient

group

program is

effective in

reducing

Evaluation of PTSD

symptomatology

data at

admission and

discharge:

Analyses of the CAPS-2

data

were conducted for both

the

frequency and intensity

of the

three PTSD symptom

clusters

(re-experiencing,

avoidance / numbing,

and increased

arousal) as

well as on the overall

PTSD symptoms. All

paired t-tests

with Bonferroni

corrections

were statistically

significant.

157

Carbonell D. M.

Parteleno-

Barehmi C.

Psychodrama

groups for girls

coping with

trauma.

International

Journal of Group

Psychotherapy.

49 (3) 1999. 11

Twenty-eight

cross

cultural

sixth-grade

girls.

Ages were

between 11

and 13

years.

26

completed

the study.

They

identified

traumatic life

events and

chronic

stress.

These

experiences

Inter-

vention

study

design.

The girls

were

randomly

assigned to

the

treatment

and control

conditions in

equal

proportions.

Because two

of the girls

left the

school during

the early

stages of the

intervention,

the two

treatment

groups had a

total of 12

PTSD

symptoms

in adult

survivors of

abuse and

examining

one year

post-

treatment

symptoms.

A qualitative

component

was included

to evaluate

the impact of

the

group on the

participants.

In addition to

notes kept

by the group

leader

through the

course of the

20 weeks,

and exit

interviews

were

conducted.

Significant differences

were found between the

treatment and control

groups in their change

from the pre-test to post-

test scores in two of the

eight Youth Self-Report

(YSR) subscales:

“Withdrawn” and

“Anxious / Depressed.”

Although no other

differences in pre- and

post-test subscale

scores reached

statistical significance,

the scores were

consistently indicative of

a trend toward greater

improvement among the

treatment group.

158

had to in-

clude at

least 7 of the

following 10,

1. Sexual

abuse

2. The

murder of a

family

member

3. Being the

victim of

violence or

physical

abuse

4. Drug

and/or

alcohol

abuse by

parents

5. Suicide by

a family

member

6.

Witnessing a

violent event

7. Being in

an accident

8.

Experiencing

a fire

9. Eviction or

homeless-

members, 6

in each, and

the control

group had

14.

The

experimental

(treatment)

groups met

for 20 weeks

The findings of this study

indicate that

psychodrama groups are

a potentially effective

intervention in the

treatment of trauma.

159

ness

10.

Immigration

under

hardship

conditions

(financial

and other)

18. CONCLUSION

Van der Kolk8 describes the value of experiential methods in the treatment of PTSD and

states that this is the ‘treatment of choice’ for people who have PTSD. From this premise,

occupational therapists have an invaluable contribution to make to the healing of trauma

survivors as their philosophy is holism and functionality. The occupational therapist is well

trained in individual and occupational group therapy at an undergraduate level, and other

projective techniques at a post graduate level (art therapy, psychodrama).

The impact of trauma on mental health is not to be underestimated. Many psychiatric

illnesses have a background of traumatic experiences which may influence resilience.

Resilience is dependant on personal, interpersonal and transpersonal (spiritual) strengths

and intrinsic meaning attribution of self.

Occupational therapists working in the trauma sector have described the Therapeutic Spiral

Model ™ as an invaluable tool to treat Post Traumatic Stress Disorder with individual and

occupational group therapy, and parts of the model are worthwhile in treating Compassion

Fatigue in healthcare workers4. The curative factors within the occupational group therapy

and the motivating factors within the psychodrama techniques give a unique treatment

modality for the treatment of PTSD.

160

19. REFERENCES

1. World Health Organisation, International statistical classification of diseases and

related health problems. 10th revision. Volume 1. W.H.O. Geneva. 1992.

2. World Health Organisation, International statistical classification of diseases and

related health problems.10th revision. Volume 3. W.H.O. Geneva.1994.

3. American Psychiatric Association. Diagnostic and statistical manual of mental

disorders. 4th ed. Washington, D.C.: The American Psychiatric Association. 1994.

4. Hudgins K.M. Experiential Treatment for P.T.S.D. The Therapeutic Spiral Model.

Springer Publishing Company. New York. 2002.

5. Sinani Kwazulu Natal Programmes for Survivors of Violence 2007 www.survivors.org (

cited 2007 February 22)

6. Crouch R. Alers V. eds. Occupational therapy in psychiatry and mental health. 4th ed.

London & Philadelphia: Whurr Publishers. 2005.

7. Kellerman P.F. Hudgins M. K. eds. Psychodrama with Trauma Survivors: Acting Out

Your Pain. London. Jessica Kingsley Publications. 2000.

8. van der Kolk B. The limits of talk therapy. Psychotherapy Networker. 2004

9. Hudgins K M. Drucker K. Metcalf K. The “containing double”: A clinically effective

psychodrama intervention for PTSD. British Journal of Psychodrama and Sociometry.

2000.

10. Wright D. C. Woo W. L. Muller R. T. Fernandes C. B. Kraftcheck E. R. An

investigation of trauma-centered inpatient treatment for adult survivors of abuse.

Department of Psychology, La Marsh Centre for Research on Violence and Conflict

Resolution. York University, Toronto, Ont., Canada. 2002.

161

11. Carbonell D. M. Parteleno-Barehmi C. Psychodrama groups for girls coping with

trauma. International Journal of Group Psychotherapy. 49 (3) 1999

BIBLIOGRAPHY

Kaplan H. I. Sadock B. J. Comprehensive textbook of psychiatry. 7th Ed. Philadelphia:

Lippincott Williams & Wilkins. 2000.

David Baldwin's Trauma Information Pages. Eugene, Oregon USA (cited 2007 February 25)

http://www.trauma-pages.com

Bannister A. Huntington B A. Communicating with children and adolescents. Action for

change. London. Jessica Kingsley Publishers. 2002.

Creek J. ed. Occupational therapy and mental health. 3rd Edition. Churchill Livingstone.

London 2002.

Hudnall – Stamm B. Secondary Traumatic Stress – Self Care Issues for Clinicians,

Researchers and Educators. Sidran Press. Maryland USA. 1999.

Lewis S. An adult’s guide to childhood trauma. Understanding traumatised children in South

Africa. David Philip. South Africa. 1999.

Wenar C. Cerig P. Developmental Psychopathology. From Infancy Through Adolescence.

McGraw-Hill companies Incorporated. International edition. 2000.

Western Cape Education Department. Abuse no more – Dealing effectively with child abuse.

WCED Western Cape, South Africa. 2000.

Hudgins M.K. Drucker K. The containing double as part of the Therapeutic Spiral Model for

treating trauma survivors. The International Journal of Action Methods 51, 2, 63-74. 1998

162

Hariri A.R. Bookheimer S.Y. Mazziotta J.C. Modulating emotional responses: Effects of a

neocortical network on the limbic system. Neuroreport 11:43-48. 2000.

Kipper D.A. Ritchie T.D. The effectiveness of psychodramatic techniques: A meta-analysis.

Group Dynamics 7:13-25. 2003

Teicher M.H. Scars that won't heal: The neurobiology of child abuse. Scientific American:68-

75. 2002.

van der Kolk B. McFarlane A. Weisaeth L. eds. Traumatic Stress. Guilford Press, New York.

1996.

van der Kolk B. Ogden P. et al. Movement and action in the transformation of trauma: The

role of somatic experience, purposeful action and theater in the treatment of trauma. Pre-

Conference Workshop at the annual Conference on Psychological Trauma, Boston, 29 May.

2003

Ogden P. Minton K. Pain C. Trauma and the body: A sensorimotor approach to

psychotherapy. W.W. Norton UK. 2006.

163

SCHIZOPHRENIA

Compiled by Rosemary B Crouch PhD Occupational Therapy (MEDUNSA)

1. INTRODUCTION Occupational therapists working in mental health care and rehabilitation have an important

task in supporting people with severe mental disorders such as schizophrenia, to as

satisfying a daily life as possible. The main focus of this support is the provision of

opportunities for meaningful daily occupations. Occupation in this sense denotes not only

work, but also leisure activities, household chores, and all kinds of “doing” people engage in.

It is widely recognized that people with severe mental disorders have a right to meaningful

daily occupations, and in some countries it is even stated in the legislation.

‘Functioning’ from an occupational therapy perspective is much broader than the absence of

symptoms. Optimal functioning is linked to well-being, quality of life and the person’s self-

efficacy and mastery in choosing, organising and performing those occupations he or she

finds useful and meaningful in various living environments. Occupational therapists are

concerned with encouraging and enabling the person to live life fully by also addressing

issues such as inclusion, reasonable accommodations and equal opportunities in the

contexts where they live, work and play, despite the presence of some residual symptoms of

the illness1.

Referrals to occupational therapists usually come from Psychiatrists and General

Practitioners, but also from Clinical and Educational Psychologists, Social Workers and very

occasionally Nurses. Referral is also by word of mouth.

2. DIAGNOSIS Schizophrenia treated by an occupational therapist is usually under the following categories

of the ICD-10:

• F 20

• F20.3

164

• F20.6

• F20.8

• F25.1

DSM.IV.:

• 295.1 Disorganised

• 295.3 Paranoid

• 295.9 Undifferentiated

• 295.6 Residual

3. IMPACT ON OCCUPATION 3.1 Work Most clients with schizophrenia wish to have a job, but very few have one. Having a job

brings a number of advantages, such as a better economic situation, more social contacts,

more structure to the day, and perceived better social status2.

3.2 Activities of Daily Living Often the personal presentation of the client with schizophrenia is poor and such as aspects

as personal hygiene, appropriate dress and self-awareness need to be addressed.

3.3 Leisure and social Meaningful and satisfying daily occupations are also associated with a richer social network,

with feelings of being in control of one’s own life situation, and with better self-esteem. Thus,

several links have been shown between meaningful occupations and positive and desired

aspects of people’s status. The direction of these relationships have not been solved,

however, and it might be that persons who perceive better well-being and quality of life have

more energy and motivation for participating in daily occupations and also tend to be more

satisfied with those occupations3.

165

4. IMPACT ON ROLES, HABITS AND ROUTINES Besides a hardship regarding meaningful daily occupations, people with severe mental

disorders have many other unmet needs. They often have poor life conditions, few and poor

social contacts, low self-esteem, and a bad quality of life. However, by addressing

meaningful daily occupations, some of these needs may be met as well.

5. HEALTH CARE STRUCTURES Patients with schizophrenia are usually seen initially by the occupational therapist in private

practice, on first admission or readmission to an acute clinic where there is a

curative/remedial approach. Rehabilitation and maintenance takes place after discharge and

this is where the occupational therapist has the prime responsibility and expertise.

Occupational therapists are involved in community-based projects for the treatment of the

person with schizophrenia and also in secondary and tertiary units.

6. ASSESSMENT 6.1 Baseline Assessments

6.1.1 Interview with client and care-givers, often separately.

6.1.2 Clinical observation takes place continually. Occupational therapists are experts in

clinical observations.

6.1.3. Evaluation takes place by both standardised and non-standardised tests.

Standardised tests include the Crouch Stress Assessment 2003, Hospital Anxiety and

Depression Scale (HADS1994), Canadian Occupational Performance Measure (COPM

1998)

6.1.4. Collateral information is essential from care-givers, child and adult-minders, nurses

and domestic staff, fellow health professional and sometimes teachers.

166

6.1.5. Assessment reports take time to be completed and are issued only to registered

healthcare professional unless otherwise requested by permission of the

parent/caregiver. (Ethical Rules HPCSA 2006).

6.2 Ongoing Assessment

There is often a slow recovery of the person with schizophrenia. Ongoing assessment is by

observation and formally at least once during the intervention, and on discharge.

7. INTERVENTION 7.1 The Role Of The Occupational Therapist Occupational therapists, throughout the world, are involved in the social support, prevention,

treatment and rehabilitation of the persons with schizophrenia at all levels of severity. The

intervention programmes may be implemented in psychiatric hospitals, life skills and day

centres, community clinics, in the home and in industry.

Intervention by occupational therapists is most effective as part of a multidisciplinary team

approach, but in developing countries where there is often a shortage of trained

professionals, occupational therapists are able, due to their versatile and intensive training in

the field of mental health, able to use those activities that are culturally accepted and

available in most occupations, in most conditions.

Early intervention and effective treatment of acute episodes of schizophrenia, with the

specific alleviation of symptoms, are very important for minimizing long-term disability. Short-

term or extended treatment programmes are focused on evaluating strengths, weaknesses,

skills and impairments at this early stage4.

The literature indicates that most occupational therapists base their intervention on the

following aspects of treatment:

167

7.1.1 Work

Open-market jobs and job-like daily occupations are an important target for occupational

therapists who work with people with schizophrenia. Often reasonable accommodation

has to be discussed with the occupational therapist and the employer. This makes work

rehabilitation an important area, including sheltered workshops and different types of job

training programmes.

Oka,M, Otsuka,K, et.al. in 2004 describe an excellent vocational rehabilitation

programme with 52 clients with schizophrenia which was followed up after 17 years in a

retrospective study5. The length of time spent out of hospital, social functioning improved

and the risk of hospitalisation diminished by 50%.

Since it seems unrealistic that all persons with schizophrenia will achieve working in the

open labour market, it is important to identify the rewards that having a job bring and try

to enrich other types of occupations with such rewards. For example, taking part in

planning, meetings, and customer contacts might be such job-like features that could be

implemented in day-care centres and other units that provide daily occupations that are

considered to be less job-like.

7.1.2 ADL (Activities of Daily Living)

Factors which are addressed with the person with schizophrenia, are improving the

quality of life including management of time, connecting and belonging and making

choices and maintaining control6.

Home management, including visits to the home, often needs to be addressed by the

occupational therapist. Related issues such as child and adolescent management are

also important.

7.1.3 Social Participation And Leisure

Providing opportunities for meaningful daily occupations, particularly in small groups,

where the issue of meaning can be addressed in terms of concrete, symbolic and/or self-

reward value, is extremely important. Counteracting the social isolation that occurs with

the illness is vital. Opportunities for social contact can be planned by the occupational

168

therapist and will include participation in social events such as sport, learning a new skill

in a group such a sculpture of pottery, outings to places of interest etc.

7.1.4. Occupational Group Therapy

The use of group-work in occupational therapy has always been an integral part of

intervention, particularly in the psychiatric field, and constitutes a major part of any

programme. Occupational therapists in South Africa are highly trained in group-work.

Groups specifically address the schizophrenic’s social participation and the training is

social and life skills. Focus in occupational group therapy is always on the client’s

functional problems and can also address symptoms of the illness. As can be seen in the

suggested programme below, most activities such as psycho-education, stress

management, personal care etc. take place in groups. Not only is this cost-effective

method of treatment for both client and therapist but it is has shown to be the most

effective type of treatment. Individual treatment with the schizophrenic client is only used

in aspects of a very personal nature or in the field of work.

7.2 Theoretical Framework

7.2.1. Models

Although some theorists in occupational therapy view dysfunction as a relationship

between emotion and action7, cognitive skills are the primary focus of treatment by

occupational therapists with the person with schizophrenia. The cognitive approach is

therefore employed.

An effective occupational therapy programme must contain “elements of practicality,

concrete problem-solving for everyday challenges, low-key socialisation and recreation,

engagement in attainable tasks and specific goal orientation”8

7.2.2 Frame of References/Approach

Recent research within occupational therapy internationally has shown that there is a

relationship between having meaningful and valued occupations and perceiving well-

being and a good quality of life9. Actual doing, such as being engaged in many activities

169

or having gainful employment has been found to be related to both self-ratings and

interviewer ratings of health and well-being. However, the way the doing was perceived,

in terms of satisfaction, value, and meaning, was even more consistently and strongly

related to health-related factors10.

Purposeful activity is the cornerstone and the major tool of intervention in occupational

therapy. Vona du Toit (1991) also ascribed to the belief, central to the profession’s

philosophy, that occupational therapy activity engages the mentally ill person in

meaningful occupation in order to maintain occupational performance and quality of life4.

It is therefore important that the occupational therapist can identify what kinds of

occupations are stimulating and engaging for a client. Moya Willson states that “Activities

are the major therapeutic measures used within occupational therapy11. Each activity

needs to be selected for its relevance to the functional and personal needs of the patient.’

Therefore, a client-centred practice is the current ideal for occupational therapists

working with persons with schizophrenia.

In client-centred practice the client and the occupational therapist work together as

mutual partners in order to find the best solutions for the client. However, it might be

difficult to establish communication and a relationship with persons with schizophrenia.

As a major symptom of the illness they may be unmotivated to participate in occupational

therapy and say they find most things meaningless. It is important to note also that the

illness of schizophrenia may have caused an impaired capacity and a loss of self-identity

which will affect the performance of purposeful activity. Especially in such cases, a

structure for how to identify meaning-making features of an occupation might be useful.

Persson and Colleagues proposed such a structure12, stating that for an occupation to be

perceived as meaningful, it must possess one or more of three identified value

dimensions: the concrete, the symbolic, and the self-rewarding. An occupation imprinted

with concrete value becomes meaningful because it brings tangible rewards, such as

payment, a product, or a new skill. Meaning can also spring from occupations that render

symbolic value at the personal, cultural or universal level. Occupations linked with self-

reward value are perceived as meaningful because they bring joy and excitement. These

170

types of values may serve as a checklist when communicating with a client in order to

find ways to a meaningful daily life. If none of these values can be identified for a certain

occupation, it should be abandoned.

7.3 Treatment Programmes A BALANCED WEEKLY PROGRAMME

A balanced weekly programme, at any stage of intervention, could consist of the following

activities which can be undertaken individually or in groups:

• Personal care/self independence and assistance in the family’s daily tasks

• Psycho-education

• Stress management and social skills training on a very basic level.

• Creative activity groups which can include hobby or leisure pursuits. Learning the skill

of using leisure time is very important.

• Simple exercise, walks and sport, all of which promote physical fitness.

• Sensory integrative programmes which are effective in treating the positive symptoms

of most severe mental illnesses.

• Sessions on subjects such as child and home management or budgeting where

appropriate.

• Vocational assessment and rehabilitation 7.4 Time Span NUMBER OF OCCUPATIONAL THERAPY HOURLY SESSIONS.

ACUTE PHASE:

1 x session of comprehensive assessment

1 x collateral information or consultation

2 x individual treatment

5 x occupational group therapy

2 x follow up

171

CHRONIC PHASE:

Patients in the chronic phase require long-term intervention. A patient may be part of

occupational group therapy for as long as a year, once a week.

1 x session of comprehensive assessment

1 x collateral information or consultation

2 x programming for daily activities

50 x occupational group therapy

1 x session reassessment

8. TABLE OF THE EVIDENCE

AUTHOR STUDY POPULATION

TYPE OF DESIGN

TREATMENT GROUP

OUTCOME VARIABLE

FINDINGS

Oka,

M.,Otsuka,K.

et.al. 2004

Schizophrenia Retrospective

study 52 clients

followed up

after 17

years

Vocational

rehabilitation

programme

50% drop in

risk of

hospitalisation

and

improvement

in social

functioning

9. CONCLUSION Advances in neuroleptic medication, as well as the move of the profession of occupational

therapy into the field of health sciences and psychosocial care, has provided a much more

scientifically-based, realistic, holistic and client-centred approach to the intervention of the

person with a severe mental disorder. At the same time the practical nature of the profession,

which provides expert knowledge of activities contained with our everyday occupations, has

not been lost. This is an essential part of the total rehabilitation and maintenance of the

person with schizophrenia.

172

10. REFERENCES 1. Duncan,M. (2005) Three approaches and processes in occupational therapy with mood

disorders, in Crouch & Alers Eds. Occupational therapy in psychiatry and mental health.

London & Philadelphia: Whurr Publishers. pp459-480.

2. Strong, S. (1998). Meaningful work in supportive environments: experiences with the

recovery process. American Journal of Occupational Therapy, 52, 31-38.

3. Crouch,R., & Eklund,M. (2006) Meaningful daily occupations – a central task in

occupational therapy with people with severe mental disorders. The World Association of

Psychosocial Rehabilitation (WAPR).

4. Crouch, R., & Alers, V. (2005) Eds. Occupational therapy in psychiatry and mental health.

4th ed. London & Philadelphia: Whurr Publishers.

5. Oka,M,Otsuka,K, et.al. (2004) An evaluation of hybrid occupational therapy and

supported employment progam in Japan for persons with schizophrenia. American

Journal of Occupational Therapy 58 (4) : 466-75,Jul-Aug.

6. Laliberta-Rudman,D,Yu,B. et.al. (2000) Exploration of the perspectives of persons with

schizophrenia regarding quality of life. American Journal of Occupational Therapy. 54 (2):

137-47. Mar,-Apr.

7. Chistiansen and Baum Creek,J. (2002) Occupational Therapy and mental health.

London: Churchill Livingstone.

8. Kaplan, H. I., & Sadock, B. J. (2000) Comprehensive textbook of psychiatry. 7th Ed.

Philadelphia: Lippincott Williams & Wilkins.

173

9. Aubin,G,Hachey,R & Mercier,C (1999) Meaning of daily activities and subjective quality of

life in people with severe mental illness. Scandinavian Journal of Occupational Therapy,

6,53-62

10. Eklund, M., & Leufstadius, C. (in press). Occupational factors and aspects of health and

wellbeing in individuals with persistent mental illness living in the community. Canadian

Journal of Occupational Therapy.

11. Willson,M. (1983) Occupational therapy in long-term psychiatry. Ediburgh:Churchill

Livingstone

12. Persson, D., Erlandsson, L-K, Eklund, M., & Iwarsson, S. (2001). Value dimensions,

meaning, and complexity in human occupation – A tentative structure for analysis.

Scandinavian Journal of Occupational Therapy, 8, 7-18.

13. Atkinson,JM. (1994) Schizophrenia at home: A guide to helping the family.

London:Croome Helm.

14. Boronow,JJ (1986) Rehabilitation of chronic schizophrenic patients in a long-term private

setting. Occupational Therapy in Mental Health. Vol. 6 pp 1-19.

15. Coviensky,M & Buckley,VC. (1986) Day activities programming: Serving the severely

impaired chronic client. Occupational Therapy in Mental Health. Vol. 6 pp. 21-30.

16. Evans, J.Salim, AA (1992) A cross-cultural test of the validity of occupational therapy

assessments with patients with schizophrenia. American Journal of Occupational

Therapy. 46 (8): 685-95, Aug.

17. Hachey,R,Boyer,G,& Mercier,C. (2001) perceived and valued roles of adults with severe

mental health problems. Canadian Journal of occupational Therapy 68 (2): 112-20. April.

174

18. Krupa,T&Thornton,J. (1986) The pleasure deficit in schizophrenia. Occupational Therapy

in Mental Health. V6. pp 65-77

19. Lesunyane,RA, (2005) Role performance of psychiatric clients in the community.

Research thesis for Master of Science in Occupational Therapy. University of Limpopo

(Medunsa Campus)

20. Straube,ER&Hahlweg,K. (1990) Schizophrenia: Concepts, vulnerability and intervention.

Springer-Verlag. Berlin

21. Stauffer,DL. (1986) predicting successful employment in the community for people with a

history of chronic mental illness. Occupational Therapy in mental health Vol. 6. pp 31-48.

22. Suto,M&Frank,G. (1994) Future time perspective and daily occupations of persons with

chronic schizophrenia in a board and care home. American Journal of Occupational

Therapy. 48 (1), Jan.

23. Vaccaro,JV,Young,AS,&Glynn,S. (1993) Community-based care of individuals with

schizophrenia. Psychiatric Clinics of North America. Vol. 16 (2) June.

175

SUBSTANCE USE DISORDERS.

Compiled by Rosemary B Crouch PhD Occupational Therapy (MEDUNSA)

1. INTRODUCTION

‘Alcoholism is the most treatable untreated disease’1.

Many occupational therapists in private practice are providing services to persons with

substance use disorders all over South Africa. It is unavoidable because of the high

percentages of dual diagnoses in the psychiatric field in South Africa. Occupational

therapists not only encounter these clients in specialised treatment settings, but in many

other incidences, for example in the orthopaedic or general medical unit. Here the client’s

substance use disorder may be complicated by other conditions such as multiple fractures

from a motor car accident, heart complaints, diabetes, anxiety or depression.

2. DIAGNOSIS One of the difficulties that a person with a substance use disorders has had in the past is the

attitude of the medical aids, which will not cover treatment of this disorder by an occupational

therapist or any other health professional. Consequently these patients have generally been

treated under an alternative or dual diagnosis e.g. depression, schizophrenia and bi-polar

disorder. For the sake of completeness, however, the diagnostic codes under which patients’

fall, which are treated by an occupational therapist, are usually as follows:

ICD 10 coding:

• F10.1 Mental and behaviour disorder due to use of alcohol: harmful use

• F23.9 Psychosis unspecified.

• Z 71.4 Alcohol abuse counselling and surveillance.

• T40 Poisoning cannabis

• X62 Intentional self-poisoning with narcotics.

• F32.2 Acute schizophrenia like psychotic disorder.

176

DSM IV: PSYCHOACTIVE SUBSTANCE USE DISORDERS:

• 303.90 + 305 Alcohol dependence and abuse

• 304.30 + 305.20 Cannabis dependence and abuse

• 304.20 + 305.60 Cocaine dependence and abuse

• 304.10 + 305.40 Sedative, hypnotic or anxiolytic dependence and abuse

• 304.90/305.90 Polysubstance dependence & abuse

• 298.80 Brief reactive psychosis

• 295.40 Schizophreniform disorder

• 297.30 Induced psychotic disorder

3. IMPACT ON OCCUPATION 3.1 Work

The effect of drugs and alcohol on the client’s performance at work is of major significance

and costs the country millions every year. The effects are usually on work performance,

absenteeism, accidents, excessive medical care, decreased productivity and faulty decision

making. Traditionally the alcoholic when not drinking is a hard worker but the greatest

problem is holding down the job down when he/she is drinking, denying the problem, and a

lack of understanding of most employers.

3.2 Activities Of Daily Living Often the client’s ability to cope with personal hygiene, self-care and care of the environment

is lacking in severe cases, particularly in the case of drug dependency.

Conversely female clients tend to overdress to try to disguise the fact that they have been

drinking. Their homes are often spotless and the physical needs of the family are well

attended to. However the emotional needs of the family is often sadly lacking.

Often clients have the inability to handle financial affairs and to budget adequately. This

would be a focus of treatment for the occupational therapist.

177

3.3 Leisure And Social

Most persons with substance abuse have no hobbies or pleasurable pastime activities other

than the use of the substance. Most past-times are associated with the use of alcohol or

drugs. Reintroducing, or in some cases introducing, the meaningful use of leisure time is a

primary aim for the occupational therapist.

The client’s ability to cope with the social sphere is often impaired i.e. in the area of social

awareness, communication with others and the formation of interpersonal relationships. This

is a stumbling block to the reintegration of the clients into the community after treatment. The

skills of the occupational therapist in carrying out occupational group therapy are of

importance here.

4. IMPACT ON ROLES, HABITS AND ROUTINES Substance use disorders result in a lack of balance between work, rest and play. The client

also does not use his capacities to the full, leading to an imbalance and failure to develop or

maintain normal functioning in most occupations. This leads to social withdrawal, less time at

work and with the family, breakdown of support systems and relationships2.

The possible consequences of both dependence and abuse of substances are:

• Failure to fulfil major role obligations

• Repeated situations which are physically hazardous

• Multiple legal problems

• Recurrent social and interpersonal problems e.g. divorce, physical and verbal abuse,

rape, child abuse

• Repeated absences at work/school and poor work/school performance

• Neglect of child-care and household duties

• Aggressive behaviour.

178

5. HEALTHCARE STRUCTURES Treatment of the person with substance-use disorders has long been the domain of the

social worker in South Africa to the exclusion of other disciplines such as occupational

therapy and clinical psychology. One of the reasons for this has been the legislation of the

country which dictated in the Social Services Act, that all rehabilitation centres for substance-

use disorders must have a social worker at the head. However experts in the field such as

the late Dr Sylvain de Miranda, head of the SANCA, introduced other disciplines into his

clinics, such as Phoenix House drug rehabilitation centre in Johannesburg. When he opened

Riverfield Lodge private rehabilitation centre, an occupational therapist and clinical

psychologist, with two social workers were the key staff at the centre. Although this clinic did

not survive financially, for three years it provided excellent treatment for alcoholics and drug

dependents. Today private clinics in Cape Town, Port Elizabeth, the Drakensberg and

Johannesburg all have occupational therapy services. Few SANCA clinics provide

occupational therapy services and generally the NGOs remain behind in providing services

other than social work.

6. ASSESSMENT 6.1 Base-Line Assessments

6.1.1 Interview with the client, family members and often employers. These interviews

can take place separately.

6.1.2 Clinical observations are essential from the time the client is first admitted to

treatment until he is discharged. It is an ongoing process.

6.1.3. Evaluation takes place by both standardised and non-standardised tests.

Standardized tests include the Crouch Stress Assessment 2003, Hospital Anxiety and

Depression Scale5, The Beck Depression Inventory3 and the Canadian Occupational

Performance Measure4.

179

6.1.4. Collateral information is essential from significant others, employers (where

available) and colleagues.

6.1.5. Assessment reports are issued only to the referring agent and to other health

professionals in the multidisciplinary team who are registered with the Health Professions

Council of South Africa (Ethical Rules 2006 HPCSA). This does not include unqualified

persons. In the field of rehabilitation of persons with substance use disorders there are

many volunteers and recovering addicts.

6.1.6. Ongoing assessment takes place during treatment and before discharge.

6.2 Theoretical Framework

6.2.1 Models It is important to look at the models of treatment of substance use disorders, used

throughout the world, in order to understand where occupational therapy is most

effective.

The most commonly used and fashionable model is the Minnesota Model which is used

by the AA worldwide. Chacksfield and Lancaster6 describe in detail the 12 steps to

recovery and how the occupational therapist has an important role to play in each. The

occupational therapy programme of skills fits in very well with this model.

Gorski7 describes six phases of treatment where the skills of the occupational therapist

with the cooperation of the team, are essential in each phase from pre-treatment to

maintenance8.

6.2.2 Frame Of Reference/Approach

The versatility of the training of occupational therapists worldwide makes them ideal for

taking part in the intervention within the client’s own environment, taking into

consideration the performance areas of their life i.e. the performance area, the

performance components and the performance contexts (American Occupational

Therapy Association, 1994).

180

A person engaging in substance abuse alienates him/herself from the usual activities

which he engages in. The results are frustration, boredom, unhappiness and stress.

Active, open, excessive drinking and drugging as well as solitary use of substances often

bring about these effects6.

7. INTERVENTION 7.1. The Role Of The Occupational Therapist The occupational therapist provides an invaluable service to the person with a substance

use disorder, in all clinical settings including private practice. The service today is often as an

aftercare service.

Intervention by the occupational therapist with a person with a substance use disorder is

usually on an individual level whilst he/she is still intensely ill and then group therapy is

introduced. It is recognized internationally that the dynamics of group-work are the most

successful factors in the rehabilitation of a person with these problems. Alcoholics

Anonymous (the AA) attributes its success to this fact.

7.1.1 Occupational Group Therapy

Occupational therapists all over the world have earned themselves a reputation for

excellent group work. In South Africa this is because of extensive training in occupational

group therapy at an undergraduate level and at post-graduate level.

Group therapy is the preferred method of intervention in a team approach to the

treatment of clients with substance use disorders. This is because the illness is basically

a social illness. All types of occupational group therapy are discussed below.

Of particular focus is:

• Stress management which is most effective in a group, and occupational therapists

are highly skilled in this discipline. Stress management is an integral part of the total

approach to the treatment of clients with substance use disorders.

• role-play, sociodrama and psychodrama (psychodrama is introduced to occupational

therapist at an undergraduate level and post-graduate training takes place by a

181

specialized group such as the GAPE Group(OTASA). These techniques are dynamic and

powerful in helping a client to gain insight into his problem and himself.

• Groups to encourage free time and leisure pursuits e.g. creative activities, gardening,

cooking and baking, physical fitness and sport. These pursuits are vital in introducing the

client to an alternative to his present lifestyle and providing a meaningful replacement to

drinking and drugging.

• Social skills training, in particular assertiveness training. Many clients use substances

to promote assertiveness.

• Psycho-education groups which provide information on the illness but are not the sole

domain of the occupational therapist.

7.1.2 Work

Vocational rehabilitation is a very important aspect of occupational therapy intervention

and is vitally important in rehabilitation of the client with a substance use disorder. After

rehabilitation it is important for the client to be involved in procuring his own employment

and that structures are in place where the occupational therapist is in contact with the

employers and the Employment Assistance Programmes in terms of the progress of the

client.

7.1.3. Activities Of Daily Living (ADL

It is often necessary to attend to activities of daily living (ADL) such as self-care, home

management, financial management/budgeting and childcare. These sessions can take

place individually or in small groups.

7.1.4 Physical Fitness

Physical fitness is an integral part of the occupational therapy programme. Walking,

jogging, physical training, relaxation and sport not only help to relieve stress but helps

with weight loss, tones up the body generally and provides another important facet to

living a balanced lifestyle e.g. encouraging a client to join a gym and to attend at the time

that he is most vulnerable to drinking, can be a valuable help to maintaining sobriety

182

7. 4 Time Span Number of Occupational Therapy Hourly Sessions

ACUTE PHASE:

1 x session of comprehensive assessment

1 x collateral information or consultation

2 x individual treatment for programming

6 x occupational group therapy

2 x follow up

CHRONIC PHASE:

Patients in the chronic phase require long-term intervention and support. A patient may be

part of occupational group therapy for as long as a year, once a week.

1 x session of comprehensive assessment

1 x collateral information or consultation

2 x programming for daily activities

50 x occupational group therapy (aftercare)

1 x session reassessment

183

8. TABLE OF EVIDENCE

AUTHOR STUDY POPULATION

TYPE OF DESIGN

TREATMENT GROUP

OUTCOME VARIABLE

FINDINGS

Stoffel, V C.&

Moyers, P A

2001

Occupational

therapists9,10.

Persons with

substance-

use disorders

in America

Interdisciplinary

evidence-based

review of

interventions

12 step

programme,

motivational

strategies

and cognitive

–behavioural

techniques

Outcome

primarily

related to

reduction

for alcohol;

and drug

use.

Significant

results

demonstrating

the effectiveness

of an

interdisciplinary

approach to the

problem.

9. IN CONCLUSION The move of the profession of occupational therapy into the field of health sciences and

psychosocial care, has provided a much more scientifically-based, realistic, holistic and

client-centred approach to the intervention of the person with a substance use disorder. At

the same time the practical nature of the profession, which provides expert knowledge of

activities contained within our everyday occupations, has not been lost. This is an essential

part of the total rehabilitation and maintenance of the person with a substance use disorder.

10. REFERENCES 1. Wicocks,L (1992) Alcohol Abuse. How to help someone you love. Johannesburg: Aspin Oaks

Associates.

2. Wilcock,A,A (1998) An occupational perspective of health. New Jersey: Slack Inc

3. Becks Depression Inventory (1990) Industrial Rehabilitation. American Therapeutics Inc.

184

4. Law,M.,Baptiste,S., Carswell,A., et.al. (1998) Canadian Occupational Performance Measure. 43rd

Ed. Ottawa: CAOT Publications ACE.

5. HADS. Hospital Anxiety and Depression Scale (1994)) Berkshire: The NFER-Nelson Publishing

Company Ltd.

6. Creek,J. (2002) Occupational Therapy and Mental Health. London: Churchill Livingstone.

7. Gorski,T (1989) Pages through recovery. An action plan for preventing relapse (Hazelden recovery

series). Iowa: Hazelden Information Series

8. Crouch, R., & Alers, V. (2005) Eds. Occupational therapy in psychiatry and mental health. 4th ed.

London & Philadelphia: Whurr Publishers.

9. Moyers,PA&Barrett,CA. (1992) Neurocognition and Alcoholism: Implications for Occupational

Therapy. Occupational Therapy and Psychosocial dysfunction. Pp. 87111.

10. Stoffel,VC&Moyers,PA (2004) An evidence-based and occupational perspective of interventions

for persons with substance-use disorders. American Journal of Occupational Therapy Sept-Oct: 58

(5): 570-96.

11. Kaplan, H. I., & Sadock, B. J. (2000) Comprehensive textbook of psychiatry. 7th Ed. Philadelphia:

Lippincott

12. Williams & Wilkins. In a board and care home. American Journal of Occupational Therapy. 48 (1),

Jan.

13. Miller,H. (1997) Prenatal cocaine exposure and mother –infant interaction: implications for

occupational therapy intervention. American Journal of occupational Therapy. Vol51(2). Pp119-

129. Feb.

185

186