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Epilepsy And The Elderly
Camp Oz Celebrates 30 Years!
Seizures Don’t Stop Me
Tell Us How You’re Wired
3
9
10
Camp Oz Celebrates 30 Years!Full Story on Page 7
7
A qUArTErlY pUbliCATiOn Of THE EpilEpSY fOUnDATiOn Of MinnESOTA SUMMEr 2013
WWW.EfMn.Org
M i n n E S O T A
2 | Epilepsy Minnesota www.efmn.org
The epilepsy FoundaTion oF MinnesoTa is a nonprofit organization and one of forty-eight affiliates of the National Epilepsy Foundation. Serving Minnesota and Eastern North Dakota, the Foundation works to educate, connect and empower people affected by seizures.
1600 University Avenue West | Suite 300 | St. Paul, MN 55104www.efmn.org | 800.779.0777
Mission The Epilepsy Foundation of Minnesota leads the fight to stop seizures, find a cure and overcome the challenges of living with epilepsy.
oFFicersPresident Brett BoyumPast President Ann JonesVice President Tim GallagherSecretary Kari Rosand Scanlon
Appointed MeMbersJason Engkjer – Legal CounselTabitha Fields Marcus FischerBrandon Megal Deb MeyerMike MurrayWendy OsterbergDavid QuealyJoy Rohwer Jim SilburnTom SpiczkaJessica Stoltenberg Trudi TryslaChristopher TuroskiRandy Unzicker Bill Walsh
designAted MeMbersTess Sierzant – PAB ChairMark Lenhardt –Central MN RepresentativeJosh Malnourie – Northwestern MN & Eastern ND Representative
proFessional advisory BoardChair | Tess Sierzant, MS, RN, ACNS-BC, CNRN | Saint Joseph’s HospitalAnne Barnwell, MS, CRC | Epilepsy Advocacy & Employment GroupJeannine Conway, PharmD, BCPS | University of MinnesotaArmantina Espinosa, MD | Minneapolis Clinic of NeurologyTimothy Feyma, MD | Gillette Children's Specialty HealthcareMiguel Fiol, MD | University of MinnesotaDouglas Heck, PhD | Duluth Psychological Clinic, IncThomas Henry, MD | University of MinnesotaIlo Leppik, MD | University of Minnesota & MINCEP Epilepsy CareDonna McKenny, PHN, LSN, MEd | Centennial SchoolsKatherine Nickels, MD | Mayo ClinicPatricia Penovich, MD | Minnesota Epilepsy GroupKathleen Rieke, MD | CentraCare Health SystemFrank Ritter, MD | Minnesota Epilepsy GroupJoanne Rogin, MD | Midwest Center for Seizure Disorders Elson So, MD | Division of Epilepsy, Mayo ClinicTeresa Tran, MD | Park Nicollet
The foundation launched its first-ever public awareness campaign in June - you may have heard spots on the radio, seen ads in papers across Minnesota and north Dakota and more. We’re growing new partnerships, reaching more people and you can help extend our epilepsy awareness efforts:
• SHARE–tellushowyou’rewiredandshareinyoursocialmediaspaces, bring our Seizure Smart Schools program into your child’s classroom or request our free Seizure recognition & response Training.
• EVENTS–StrollwithusonAugust8;teamsarestillforming.Golfwithuson October 7 or attend our go-pher Epilepsy Awareness game on October 26.
• GETINVOLVED–ourconnectgroupsbringpeopletogetherwhofacesimilar issues, volunteer opportunities are available year-round and our Creative Arts program is a great way to express yourself.
in this newsletter, you’ll read about the 30th anniversary of Camp Oz, our awareness campaign, seniors & epilepsy and more. Your feedback is always welcome:[email protected].
VickiKopplinExecutive Director
“We’re growing
new partnerships,
reaching more
people and you
can help extend
our epilepsy
awareness
efforts."
www.efmn.org Epilepsy Minnesota | 3
Clinicians Corner Epilepsy and the ElderlyBy Professional Advisory Board Member Ilo Leppik, M.D.
Seizures are more likely to start after age 65 than at any
other time in life. because the number of persons in this
age group is increasing rapidly, there will be an increase in
the number of persons with seizures in the coming years.
Seizures can happen for two main reasons. One is that there
is something in the brain that triggers seizures. The other is
that some other cause outside of the brain sets off a seizure.
That is why it is important to get a person who has not been
diagnosed as having epilepsy to an emergency facility after a
seizure. There it can be determined if the seizure was caused
by something like heart trouble, low blood sugar, an infection
or other conditions. A seizure caused by low oxygen to the
brain from a heart problem or other condition not directly
affecting the brain is not considered to be epilepsy. The
condition that caused the seizure needs to be treated but
antiepileptic drugs are not needed.
Many seizures in the elderly are associated with a problem
in the brain. Usually epilepsy is defined as two or more
seizures. A common cause of seizures is a previous stroke.
Overall,from30%to40%ofallseizurecasesintheelderly
are in persons who have had a stroke. The eventual risk of
experiencing seizures after suffering a stroke may be as
high as 20%. brain tumors, head injury, and Alzheimer’s
disease are other conditions of the central nervous system
Continued on page 4
4|EpilepsyMinnesota www.efmn.org
that predisposes to seizure activity in the elderly. Epilepsy
is usually diagnosed and treated after two seizures have
happened. but a committee of the international league
Against Epilepsy (ilAE) has proposed that epilepsy be
defined as a condition of the central nervous system that
predisposes one to have seizures. This means that a person
who has had a single seizure but is found to have a definite
neurological condition may begin treatment to prevent more
seizures. because most seizures in the elderly are caused
by a focal area of damage to the brain, the most common
seizure types are localization related. Complex partial seizures
are the most common seizure type, accounting for nearly
40%ofallseizuresintheelderlypopulation.Bothsimpleand
complex seizures may spread and develop into generalized
tonic-clonic seizures.
problems faced by the elderly suffering from epilepsy are
different and more complex than those faced by younger
adults also suffering from the same disorder. Unlike younger
persons who only have epilepsy, many older persons have
other medical issues. These often involve taking other
medications, which can interfere with the drugs used for
epilepsy. The liver processes many drugs and the doses
needed may change. One example is lipitor. its processing
can be speeded up a lot by some epilepsy drugs, making it
less effective. Coumadin is especially troublesome because
the dose needed to get good control over clotting can
change with the addition of an anti-seizure medication.
Another problem that arises is when a person with epilepsy
develops another medical condition that needs medical
treatment. This article is too short to list all of the medication
interactions, but in general, older persons with medical
problems may be better off using anti-seizure medications
that are not processed by the liver but are eliminated
through the kidneys. Even with these, however, one needs
to measure how the kidneys work because they may slow
down in older persons. An older person with epilepsy needs
to be sure to explain to their doctor about all of the medicines
that are taking and ask if there are any problems with them.
Today, there are many computer databases that a physician
and pharmacist can use to look for problem combinations.
in addition to prescription drugs, there are a number of
“natural” products that can interfere with medicines. St.
John’s Wort is especially troublesome because it can affect
the elimination of many drugs making them much less
effective. Some “natural” products used to improve memory,
increase energy, or help erectile dysfunction may actually
cause seizures. That is why a person with epilepsy needs to
avoid these substances.
Developing epilepsy late in life can be very troubling. it is
important therefore that one learns a lot about this disorder
and how to best deal with it. The good news is that epilepsy
that develops later in life is often easier to control with lower
doses of anti-seizure medications. However, to have the best
outcome, one should go to a doctor who has experience
dealing with this and also work with support organizations
such as the Epilepsy foundation of Minnesota and national
epilepsy groups.
Epilepsy and the Elderly(Continued from page 3)
www.efmn.org Epilepsy Minnesota | 5
EFMN in ActionProudly serving people across MN and ND
Camp oz reunion
Camp Oz alumni met up at EfMn’s office for an open house to see old friends, share camp memories and help celebrate the 30th anniversary.
gopher Football spring game
Over80peoplejoinedEFMN,sittinginaspecial section set aside by the U of Mn to watch the gopher’s Spring game. go gophers!
st. Cloud rox game
Several families gathered in St. Cloud to cheer on the St. Cloud rox!
6 | Epilepsy Minnesota www.efmn.org
EFMN in ActionCommunity Events and Education
Artists Featured At state Capitol
Several Creative Arts participants displayed their work at the “faces of Disability Exhibit” at the State Capitol April 22-26, in partnership with the Minnesota Consortium for Citizens with Disabilities.
shining stars Join gopher practice
CoachKillinvitedallShiningStarstoaspring practice for autographs, a pep talk and football players mingled with all attendees.
www.efmn.org Epilepsy Minnesota | 7
CampOzcelebrated30yearsand108campersenjoyeda
week of swimming, arts and crafts, sports and songs by the
campfire. These photos show the many faces at Camp Oz.
The foundation would like to thank all the volunteers,
medical staff and donors who make this experience possible
for so many deserving youth with epilepsy. Special thanks to
The Wasie foundation for matching the funds raised at our
annual “light Up the night” gala in May.
Camp Oz Celebrates 30 Years
introducing the epilepsy Foundation of Minnesota's 2013/2014 Winning Kid, Alex Fischer!
Alex is 13 years-old and lives with his parents and two younger brothers in plymouth, Mn.
Alex was first diagnosed with absence seizures when he was eight years old, but had
been having them for years. Through hard work with their neurologist and despite some
breakthrough seizures, Alex has found pretty good seizure control and takes about nine
pills a day.
Alex has found great support in his family and friends, which allows him to do the things
he enjoys doing: sports, volunteering at his school and hanging out with friends. He and
his family have been involved with EfMn for several years now: Alex attended Camp Oz,
attends local family events, is a Shining Star and has a Stroll team.
8|EpilepsyMinnesota www.efmn.org
Stroll With Usover 150 teams have already formed to stroll with us
on August 8, 2013 – at five locations!
Checkoutournewvideo,featuringRebeccaKillandlearn
why she Strolls on www.efmn.org/stroll.
Here are some ideas to energize your team and maximize
fun/awareness:
• never underestimate the power of Facebook.
Thanks to social media sites like Twitter and linkedin,
people are more connected than ever before. Share
your team page’s link and ask your friends to help
raise funds for your team!
• Make a fun t-shirt or signs for the stroll. EfMn
loves seeing all the ways teams rally support for their
loved one(s) and wearing creative tees and signs at the
event.
• inspire donors. people will not donate money unless
they believe in the cause. Clearly state your story and
why people should support your Stroll team.
• do it Yourself! Getcreative–hostalemonadestand
in your neighborhood or ask your local pizza
joint to donate a percentage of one night’s proceeds to
your team. people want to help others.
• rally your troops on August 8. You’re done
fundraising, so the fun begins with hundreds of
other people on teams who all have a passion for
epilepsy awareness. bring your neighbors, pets and
anyone who will help bring energy to this awesome
event!
register at efmn.org/stroll!
www.efmn.org Epilepsy Minnesota | 9
i was 12 years old and in 6th grade when i had my first
seizure. i was in pE class and was running outside on the
track. My teacher became concerned when i wandered in
a different direction than my class and was not responding
to her. i spent the winter school holiday in the doctor's
office, having my first of many EEg and Mri exams. i was
diagnosed with epilepsy, having complex partial seizures,
and started my first medication.
As a student, i had seizures but didn't let them stop me from
doing activities i was interested in. i wore a bracelet saying i
had epilepsy, with a phone number to call if i had a seizure.
i was on the school’s volleyball and track teams, and was
second chair violin in the orchestra. i went on bike rides with
friends and educated them about what do if i had a seizure.
i took a class in high school that required 20 hours
of community service. i picked the local hospital and
transported patients and supplies all over the hospital. My 20
hours soon became four years of volunteering. As i observed
different departments in the hospital, and being a patient
myself throughout my life, i decided i wanted a career in
healthcare.
Since my first seizure, i have tried 11 different medications,
some with side effects worse than the seizures! My seizures
are visually stimulated, with flashing lights, glitter, holograms
and different patterns. A strange aura feeling always
preceded a seizure. Since i had two to three seizures every
week and many things i couldn't look at without an aura, i
never bothered learning how to drive.
in 2003, i decided to have brain surgery, to decrease or even
stop seizures all together. Mri, WADA, SpECT scans, and
electrodes glued to my head for a week long EEg were all
parts of preparing. This decision opened many doors in my
life, as i was able to graduate from college and be seizure-
free long enough to learn how to drive and get a license.
i was born and raised in Oregon with my family, but was
ready to explore job possibilities anywhere. in December
2005, i packed a trailer and moved almost 2,000 miles
from anyone i knew to rochester, Minnesota. i have met
many great people and have been enjoying my job as a
technologist at Mayo Clinic for over seven years. i've bought
a house and met many true friends. i've even been brave
enough to sky dive and have fallen in love with downhill
skiing.
i still have an occasional seizure and continue to take
medicine, but the doses are half what they were prior to
surgery. i may have epilepsy, but i don't let seizures tell me
what i can or cannot do. like having brown hair and blue
eyes, seizures are just one small part of who i am.
Seizures Don't Stop MeBy Raizel Weinberg
10 | Epilepsy Minnesota www.efmn.org
“i’m Wired to serve the public as an elected official and teach
others about the effects of epilepsy. — Jake
“i’m Wired to be really wiggly.” — nathan
“i’m Wired to support my family and help them achieve their
full potential.” — John
“i’m Wired to be a hero to my daughter, Hannah.” — Chris
Visit www.efmn.org/imwired or use #HoWiMWired to
share your story and help us raise epilepsy awareness.
Tell Us How You're Wired
Wethinkallyouthwithepilepsyarespecial–in
fact we think they are Shining Stars! The Shining
Star program, our largest youth program,
recognizes youth with epilepsy, making them feel
less isolated by connecting them with other youth
with epilepsy.
ThereisnocosttobeaShiningStarandages18
and under are welcome. Join Shining Stars at
www.efmn.org and complete the registration form,
orcall800.779.0777,ext.2310We’llhelp
you shine!
Shining Stars receive:
•Astarmedallion
•Programcertificate
•SpecialinvitationstoEFMNeventsthroughouttheyear
•BESTOFALL–opportunitiestoconnectandmeetotherShiningStarsandtheirfamilies.
www.efmn.org Epilepsy Minnesota | 11
Special Eventslight uP the night
Thanks to all who attended our annual “light Up the night”
gala in May. We raised over $220,000 to support the 60,000
people in our community with seizures. grammy-Award
winning artist billy Mclaughlin shared his story and talents,
Epilepsy foundation CEO phil gattone addressed the group
andCoachKillinspired,asusual!
these individuals, families, community organizations and businesses made the "Light Up the night" gala possible:
platinum sponsorsAllina Health
Hubbard broadcasting, inc.
Johnson & Johnson
Medtronic
MinCEp Epilepsy Care | U of M physicians
Minnesota Epilepsy group
Upsher-Smith
gold sponsorsDr. Michael and Janie frost
Tom and Sue Mielenhausen
Savers
• UofMNFootballCoach,JerryKillwillgreet
participants and billy Mclaughlin will perform
• GregThunderofHouston'sKILT-FM(formerlyofKS95in
the Twin Cities) is the emcee
• LexusofMaplewoodwillbegivingawayabrandnew
lexus to the first Ace on the 17th hole
• TPCTwinCitiesinBlainedonateduseofthegolfcourse
a great chance to play an excellent course with four of
your friends
• $250getsagolfer:shirt,hat,boxlunch,golfattheTPC
Twin Cities with a golf cart, a steak and chicken dinner,
free non-alcoholic beverages and access to great silent
and live auctions.
register today at www.efmn.org/golf or contact
Mike Murray for details 612.910.4776
A Charity Golf Tournament Bene�tting Children With Seizures
A Charity Golf Tournament Bene�tting Children With Seizures
12 | Epilepsy Minnesota www.efmn.org
Check “bringing hope” off your 2013 to-do listEvery year EfMn educates, connects and empowers thousands of people in Mn & nD. programs offered by the foundation bring hope to individuals and families impacted by epilepsy:
• Hopethattogetherwecanreducestigmasurrounding epilepsy.
• Hopethatbyeducatingourschoolscommunitieswillbe safer.
• Hopethateveryonewithepilepsycanraisetheirhand and not be defined by epilepsy.
As we enter the second half of 2013, take time to think about the difference you have already made, and the impact you can still have. Join the many individuals, corporations and foundations that recognize the need for EfMn in the community by making your gift today.
Make 2013:
• Ayeartobeproudof.
• Ayeartosupportpeopleinyourcommunity.
• Ayearyoucanmakeadifference.
support eFMn by:
• Mailinginthepledgeformbelow.
• Giveonlineatwww.efmn.org/giving.
• Leaveyourlegacybysupportingothersthrough planned giving.
Start the conversation about your impact. Contact [email protected].
enclosed is my tax deductible gift of: ❏ $2,500 ❏ $1,000 ❏ $500 ❏ $250 ❏ $100 ❏ Other Amount $ ________________
name(s) __________________________________________________________________________________________________
Address __________________________________________________________________________________________________
City ____________________________________________________________ s State ___________________ Zip ____________
Designate my gift to: ❏ Educate ❏ Connect ❏ Empower
❏ i would like to remain anonymous
My gift is payable by: ❏ Cash or Check (payable to: EfMn) ❏ Visa❏ MasterCard ❏ American Express ❏ Discover
Card # ___________________________________________________________________________ Exp. Date: __________Security Code # _________________
name on Card: _________________________________________________________ Signature: ___________________________________________________
Email Address: _______________________________________________________________________________________________________________________ (email address required for gifts made by credit card)
Making a difference by honoring or remembering someone special. this gift is:
❏ in honor of______________________________________❏ in memory of ___________________________________________
Make an impact – Leave a Legacy – Learn More About planned giving opportunities
❏ i would like more information, please contact me at ____________________________________________________________
✂Mailthispledgeformto:EpilepsyFoundationofMinnesota,1600UniversityAve.Ste.300,St.Paul,MN55104
www.efmn.org Epilepsy Minnesota | 13
lASt ChAnCe! MiDWeSt SeiZuRe SMARt SuMMeR COnFeRenCe
thursday, July 18 from 9:00AM – 3:30pM radisson Hotel duluth Harborview Free to people with epilepsy; $30 registration for others (includes parking, breakfast/lunch & educational materials)
KeynotespeakerLisaMoss,originallyfromtheDulutharea,will share her personal story and discuss her website, SeizureTracker.com. participants gain access to experts in the field of epilepsy and professionals can earn 5 CEUs.Visitwww.efmn.org for details.
each workshop features a local family's epilepsy
journey and offers two CeUs for professionals.
brainerd/baxter Tuesday,October8,6-8PM Central lakes College: 501 W. College Drive in brainerd
guest speaker: Timothy feyma, MD from gillette Children’s Specialty Health Care neurology.
grand rapids Tuesday,November5,6-8PM grand itasca Hospital: 1601 golf Course road
guest speaker: Douglas Heck, phD from Duluth psychological Clinic, inc.
red Wing Saturday, October 26, 9:30-11 AM SoutheastTechnical:308PioneerRoadinRedWing.
guest speaker: Michael Zaccariello, phD from Mayo Clinic.
thief river Falls Monday,October14,6-8PM northland Community & Technical College: 1 Highway 1 East
guest speaker: bala Davuluri, MD of Sanford Clinic neurology.
2013 SeiZuRe SMARt COMMunitieS - COMing tO YOuR neighBORhOOD!
CONFERENCE
Seizure Education
Eas
tern
Nor
th D
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ta
Kittson
Koochiching
Marshall
Beltrami
St. LouisLake
Cook
Polk
ThiefRiver Falls
Red Lake
Itasca
Cle
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Carlton
Hub
bar
d
Cass
AitkinCrowWingOtter Tail
Becker
Wilkin Wad
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Pine
Grant DouglasTodd Morrison
MilleLacs
Kan
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Isanti
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Pip
esto
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Benton
Sherburne
StearnsPope
Wright
Anoka
Big
Stone
Dakota
Hennepin
Carver
Scott
Meeker
Kan
diy
ohiSwift
McLeod
Renville
Chippewa
Wabasha
Winona
Housto
n
Fillmore
Olmsted
Mower
Dodge
Rice
Steele
Freeborn
Sibley
Faribault
Le Sueur
Waseca
Nicollet
BlueEarth
Jackson
Watonwan
Brown
Redwood
NoblesRock
CottonwoodMurray
Lyon
Linc
oln
Yellow Medicine
Lac QuiParle
Clay
MahnomenNorman
Trav
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Lakeof the
Woods
Roseau
3
WahpetonBreckenridge
Silver Bay
Morris
Fairmont
2
4
1
Grand Rapids
Red Wing
Brainerd/Baxter
�
Eas
tern
No
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Dak
ota
Kittson
Koochiching
Marshall
Beltrami
St. LouisLake
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Polk
Pennington
Red Lake
Itasca
Cle
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Carlton
Hub
bar
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Cass
AitkinCrowWingOtter Tail
Becker
Wilkin Wad
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Grant DouglasTodd Morrison
MilleLacs
Kan
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Pip
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Benton
Sherburne
StearnsPopeStevens
Wright
Anoka
Big
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Dakota
Hennepin
Carver
Scott
Meeker
Kan
diy
ohiSwift
McLeod
Renville
Chippewa
Goodhue
Wabasha
Winona
Housto
n
Fillmore
Olmsted
Mower
Dodge
Rice
Steele
Freeborn
Sibley
Faribault
Le Sueur
Waseca
Nicollet
BlueEarth
MartinJackson
Watonwan
Brown
Redwood
NoblesRock
CottonwoodMurray
Lyon
Linc
oln
Yellow Medicine
Lac QuiParle
Clay
MahnomenNorman
Trav
erse
Lakeof the
Woods
Roseau
Northern Minnesota
Central Minnesota
Metro Area
Southern Minnesota
Eastern North Dakota &Northwestern Minnesota
Hutchinson
Owatonna
Bemidji
Fergus Falls
1
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2
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Itasca
Cle
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Carlton
Hub
bar
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Cass
AitkinCrowWingOtter Tail
Becker
Wilkin Wad
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Grant DouglasTodd Morrison
MilleLacs
Kan
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Isanti
Chi
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Pip
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Benton
Sherburne
StearnsPopeStevens
Wright
Anoka
Big
Stone
Dakota
Hennepin
Carver
Scott
Meeker
Kan
diy
ohiSwift
McLeod
Renville
Chippewa
Goodhue
Wabasha
Winona
Housto
n
Fillmore
Olmsted
Mower
Dodge
Rice
Steele
Freeborn
Sibley
Faribault
Le Sueur
Waseca
Nicollet
BlueEarth
MartinJackson
Watonwan
Brown
Redwood
NoblesRock
CottonwoodMurray
Lyon
Linc
oln
Yellow Medicine
Lac QuiParle
Clay
MahnomenNorman
Trav
erse
Lakeof the
Woods
Roseau
Northern Minnesota
Central Minnesota
Metro Area
Southern Minnesota
Eastern North Dakota &Northwestern Minnesota
Hutchinson
Owatonna
Bemidji
Fergus Falls
1
4
3
21
2
3
4
Thief River Falls
Grand Rapids
Red Wing
Brainerd/Baxter
Events Calendar
Amanda pike - Twin Citiesprogram Manager [email protected]
Twin Cities Area
Mary giese - Duluth Outreach [email protected]
rsVp :800.779.0777, ext. 2310 [email protected]
DuluthAdULt ConneCtMeets the 2nd thursday of each monthJuly 11, september 125:30-7 pMEssentia Health - SMDC400East3rdStreetinDuluth
July is the Connections group family picnic at the lincoln park picnic pavilion in Duluth from 5:30-7:30 p.m. (entrance is at 25th Ave W and 3rd Street). Potluckwithsloppyjoes;bringyour own tableware, beverage andsomethingtoshare.RSVPrequired by July 9. September’s meeting will feature a guest speaker in the Minnesota room, first floor.
WoMen ConneCtMeets the 4th Wednesday every other monthJuly 24, september 256-8 pMSt. luke’s Hospital 915 East 1st Street in Duluth
July is the Women’s group family picnic at lincoln park picnic pavilioninDuluthfrom6-8p.m.Entrance is at 25th Ave W and 3rd Street. potluck with sloppy joes;bringyourowntableware& beverage, and something to share!RSVPrequiredbyJuly22. September’s meeting will be in room 337. Take elevators to third floor, across from cafeteria entrance.
YoUng AdULt Meet-UpMill City Museumsaturday, september 1410:00 AM – 12:00 pMMill City Museum704South2ndStreetinMinneapolis
bring your friends and family! frEE for people with epilepsy, $5/additional ticket. RSVPrequiredbySeptember9.Ticketsare limited so reserve yours today!
tWin Cities eAst Metro AdULt ConneCtMeets the 1st thursday of each monthAugust 1, september 56:30-8 pMEfMn Office1600 University Ave. W., Suite 300 in St. paul(16,21,50&84buslines)
Connect with other adults affected by seizures in St. paul, or join us from the comfort of your own home via gOTO Meeting.RSVPencouraged.
tWin Cities West Metro AdULt ConneCtMeets the 2nd thursday of each monthseptember 126:30-8 pMSouthdale library7001 York Avenue South in Edina
Join us in the small conference room to connect with other adults affected by seizures.RSVPencouraged.
tWin Cities pArent ConneCt parent resource and iep Workshopthursday, september 196:30-8:30 pMpACEr Center8161NormandaleBlvd.inMinneapolis
Special guest Jody Manning from pACEr will walk you through the processes of individual Education plans (iEp’s) and Section504Plans.pArEnTS: come early at 5:30 for parent Connect. interact with other parents, talk through what’s worked with your child and learn fromothers.RSVPencouraged.
AdULt ConneCt piCniC thursday, July 116-8:30 pMMinnehaha falls park4801SouthMinnehahaParkDrive in Minneapolis
Connect with other adults affected by seizures at the annual summer adult picnic. Meet at Minnehaha pavilion #1, the shelter next to Sea Salt Eatery. (look fortheredballoons).RSVPrequiredbyJuly 9.
CAdenZAs perForMAnCe Art CoLLeCtion Call for entriesMay 15 – August 1Submit your performance art via video. Details at efmn.org.
epiLogUes Writing CoLLeCtion Call for entriesseptember 1 – november 30Submit your written works. Details at efmn.org.
nikki baker - Twin CitiesSenior program [email protected]
14|EpilepsyMinnesota www.efmn.org
lori braegelmann - St. Cloud Outreach [email protected]
St. Cloud
VickiSnyder-RochesterOutreach [email protected]
Fargo
Amy Haugen - fargoOutreach [email protected]
AdULt ConneCtMeets the 3rd tuesday of each monthJuly 16, August 20 and september 17 6:30-8 pMrochester Area family Y709 1st Avenue Southwest in rochester
Adult Connect is open to all adults living with epilepsy, including parents. Join us for a time of support, conversation and information on living wellwithepilepsy.RSVPencouraged.
brAinstorMs Art reCeption tuesday, July 23 from 9:00 a.m. - 10:30 a.m. Mayo Clinic Health Systems in red Wing - Mayo Cafeteria 701 Hewitt blvd.
Join us at the brainstorms Art reception as we celebrate talented artists and launch the red Wing Seizure Smart Community initiative. refreshments will be served.
RochesterpArent ConneCtMeets the 1st tuesday of each month(no meetings in July and August due to the holiday and the stroll)september 37-9 pMpediatric Therapy partners3060 frontier Way South in fargo
September we’ll discuss back to school concerns: beginning of the school year stress, concerns and tools to help your child start the school year inapositiveway.RSVPencouraged.
AdULt ConneCtMeets the 1st Monday of each month(no meetings in July and August due to the holiday and the stroll)september 26-8 pM Sanford Health South University CampusConference room 1A-3
September we’ll discuss employment and epilepsy. bring your questions or experiences to share with the group (e.g., job skills training, discrimination, disclosing diagnosis to employer, etc). RSVPencouraged.
bACK to sCHooL tnt Fitness FUn dAYsunday, september 152-4 pM TNTKid'sFitnessandGymnastics2800MainAvenueinFargo
Celebrate back-to-school with some physical activity! Join us for an afternoon of giant trampolines, a foam pit, obstacle courses and games. Open to all ages and Shining Stars receive a special item. frEE for people with epilepsy, $5/additional ticket.RSVPrequiredbySeptember11.rsVp :
800.779.0777, ext. 2310 [email protected]
AdULt ConneCtMeets the 1st thursday of each monthAugust 1, september 5 (no July meeting)7-8:30 pMgreat river regional library, first floor meeting room1300 West St. germain Street in St. Cloud
Adult Connect is open to all adults living with epilepsy, including parents. Join us for a time of support, conversation and information on living well with epilepsy. September 5 is Seizure recognition & response Training.RSVPencouraged.
brAinstorMs Art exHibit LoCAtions:
trusight, plymouth, Mn July 1 -August 31
Keith ellison’s Minnesota Congressional office July 1 – July 30
May day Café, Minneapolis, Mn July 1-27
Mayo Clinic exhibit space, red Wing Arts Association, red Wing, Mn July 1-30
Fargo public Library, Fargo, nd July 1- August 30
www.efmn.org Epilepsy Minnesota | 15
1600 University Avenue West, Suite 300Saint Paul, MN 55104www.efmn.org
Nonprofit Org.U.S. Postage
PAIDTwin Cities MN
Permit No. 32600
Cleaning Your Closets? think of Us!The foundation collects used clothing and home items, with 100% of the proceeds supporting our programs/services. Making your donations exclusively to EfMn is an easy way to support an organization that you care about. please consider us this summer and fall as you’re cleaning closets, as nearly HALF of our budget comes from our used clothing operation!
Did you know?
• Ittakesonly300bagsofusedclothing/homeitemstosendacampertoCampOz.
• IfeveryonewhousesEFMN’sprogramsandservicesdonatedonebagofusedclothing,itwould generate over $50,000!
schedule a convenient pick up at www.efmn.org or call 651.287.2300, ext. 3 today!
Connect with us!Sign up for an email version of this newsletter and to receive the latest news and information from the Epilepsy foundation of Minnesota. Visitwww.efmn.orgtodaytoconnect with us via email.