Metastatic Breast Cancer

RESOURCE GUIDE

A collection of websites that provide information and support for patients with metastatic breast cancer and

the oncology professionals who treat them.

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Oncology with soul

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My name is Kimberly Jewett, and I’m a 36-year-old metastatic breast cancer patient. After several months of fatigue, frequent migraines, and a dull pain in my left breast, I performed a self-exam and found a lump directly underneath my left armpit. This was the beginning of my initial diagnosis of Stage 2 ER+/PR+/HER2- breast cancer, which rapidly changed my life forever in 2008. Additional diagnostic exams confirmed that the cancer had spread to my lymph nodes.

Since my initial diagnosis, I have had an opportunity to learn what it feels like to experience survivorship, as well as deal with the emotions during a recent recurrence that surprised me earlier this year. Through all of my experiences, I have learned to pay attention to what my body is telling me.

Had I not performed a self-exam, trusted the negative results of blood tests, or demanded a mammogram when my obstetrician/gynecologist suggested that I may be over-reacting due to my young age, I’m not sure which path cancer may have led me down. From the moment I became a breast cancer patient, I began researching my diagnosis over the internet which has helped me make some of my most important treatment decisions.

Being a young woman with breast cancer presents many huge challenges. In my case, my cancer is hormone receptor positive, which means any estrogen in my body can cause cancer to grow. Estrogen is an important part of a woman’s health for many reasons.

I also had to cope with losing my breasts. There is an option to reconstruct, which I took advantage of during my initial journey. However, this time I feel more comfortable having no implants so that I can better evaluate any lumps I might feel.

Another challenge women face when diagnosed is child bearing. I was so blessed and grateful that I had 2 children prior to my original diagnosis. However, now that I recurred, I have the fear, lack of control, and uncertainty of what this recurrence can bring. Will I be here to watch my children grow?

Cancer has given me so many challenges to overcome. Some, that myself, my family, and friends never could have imagined. However, cancer has taught me the strength I never knew I had, the courage to fight every day, the hope to watch new drugs continue to develop, and the ability for me to be an inspiration to other women fighting metastatic breast cancer by sharing my story.

My hope for this resource guide is to give you the hope, strength, and courage to arm yourself with the information necessary to become your own best advocate. Knowledge is power, and advocating for your health can help you fight this disease.

Patient Introduction

Trusting Instincts and Advocating For Survivorship

To download a PDF of this Resource Guide, visit www.OncLive.com.

Kim Jewett is a young, recurring patient, and loving mother. Involving herself and her children in local advocacy programs encourages her to look forward.

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Table of ContentsResources for Metastatic Breast Cancer

6 METAvivor Research and Support

8 Metastatic Breast Cancer Network

9 CancerCare

10 Cancer Support Community

11 Living Beyond Breast Cancer

12 Breastcancer.org

13 Young Survival Coalition

14 MyLifeLine.org Cancer Foundation

15 National Coalition for Cancer Survivorship

Bringing the Oncology Community Together

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Copyright © 2013 Intellisphere, LLC. All rights reserved.

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METAvivor Research and Supportwww.metavivor.org

ADDRESS:1783 Forest Drive#184Annapolis, MD 21401

CONTACT INFO:Phone: 410-353-3733E-mail: info@metavivor.org

HISTORY & MISSIONMETAvivor is a non-profit organization run entirely by volunteers, including those who are, or have been, impacted by metastatic breast cancer. Since 2009, METAvivor’s mission has been to end death caused by metastatic breast cancer.

The organization provides support options to those impacted by the disease while they continue working to increase awareness and funding toward current and future research. Ultimately, this organization hopes research will help transition metastatic breast cancer from a terminal disease to a controlled, permanently survivable condition offering a decent quality of life for patients.

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PROGRAMS & ACHIEVEMENTSMETAvivor believes that 30% of breast cancer research funds should go directly toward metastatic breast cancer research because 30% of breast cancer patients metastasize. Their 30% for 30% Campaign is an effort to emphasize that the present 2% of funding toward this specific disease is not enough and encourages the public to push for an increase in funding.

In memory of those who have passed on, METAvivor launched its In Memoriam awareness program in 2011. This program allows family and friends to submit photographs and stories of their loved ones to be included in the online memorial. Visitors may donate to an individual’s memorial to help support METAvivor.

Providing local support through activities around Annapolis, MD, the organization invites women and men with metastatic breast cancer the opportunity for face-to-face support.

Each year, the METAvivor organization awards metastatic breast cancer research grants to potentially transition this fatal disease to a permanently survivable condition.

METAvivor also placed first in the Patient Advocate Category at the Advanced Breast Cancer First Consensus Conference in Lisbon, Portugal, for its study on support and lifestyle needs of the metastatic breast cancer patient.

The new METAvivor BLOG, written by metastatic breast cancer patients, patients who have not metastasized, doctors, and social workers, discusses issues related to metastatic breast cancer. The BLOG also features a special section devoted to young adults with metastatic breast cancer.

METAvivor also generates awareness and funding for metastatic breast cancer research through 3 annual fund-raisers including a special Adventure Race. The race is held in the historic waterfront city of Annapolis, MD. This triathlon includes 2 miles of kayaking, 15 miles of biking, and finishes with a 3.1-mile run. An Authors Luncheon and Silent Auction in September, and a Holiday Home Tour in December, are also held annually.

The organization further assists others in organizing support programs specifically for metastatic breast cancer by offering suggestions and advice.

NAVIGATION & USEFUL LINKSThe METAvivor website includes Get Involved, Awareness, Support, and Research links on the navigation bar across the top of its home page. These links provide further information and insight to encourage public involvement in the fight toward a cure for metastatic breast cancer.

Viewers who select the Support link will find links to the METAvivor BLOG and patient stories about their recent diagnosis with metastatic breast cancer.

Enforcing public involvement, the home page includes recent News & Information, and features a link on the bottom of the page for the 30% for 30% Campaign. The updated Calendar of Events includes Fundraisers as well as information about upcoming face-to-face opportunities to hear guest speakers discuss metastatic breast cancer information.

Visitors may scroll to the bottom of the home page to submit or donate to the In Memoriam wall, or select the Store link in the navigation bar which offers merchandise to help support the organization’s cause.

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Metastatic Breast Cancer Networkwww.mbcn.org

ADDRESS:P.O. Box 1449New York, NY 10159

CONTACT INFO:Phone: 1-888-500-0370E-mail: mbcn@mbcn.org

HISTORY & MISSIONMetastatic Breast Cancer Network (MBCN) is a national, independent, non-profit advocacy group dedicated to helping men and women with metastatic breast cancer.

MBCN was founded in 2004 by Jane Soyer and Nina Schul-man. These 2 women were advanced breast cancer patients who felt isolated from their support groups. Feeling emotions of failure, they created this advocacy group with a mission to develop awareness and education to push patients to be their own best advocates. Currently, MBCN has over 1800 members in the United States and Canada. The group has members in 22 countries across the world.

PROGRAMS & ACHIEVEMENTSThe MBCN advocacy group feels that the focus of breast cancer should not be on the pink ribbon. The group argues that there is not enough specific emphasis on awareness of metastatic breast cancer and those living with it.

Each year, MBCN hosts a national conference. The 2012 MBCN 6th National Conference “Moving Forward with Metastatic Breast Cancer” took place in Chicago, IL, and offered video presentations and guest presentations discussing the latest information about treatments, coping strategies, and the future for metastatic breast cancer patients.

On September 10, 2010, MBCN participated in the entertainment industry’s Stand Up 2 Cancer telethon. Stand Up 2 Cancer encour-ages collaboration by bringing together the best and brightest in the cancer community with the entertainment community to help create awareness and build public support. In 2010, the telethon raised $80 million in funds for innovative cancer research.

In 2009, the MBCN’s legislative team visited Washington, DC, and succeeded in establishing MBC Awareness Day, October 13, by obtaining House Resolution 787 and Senate Resolution 295. MBC Awareness Day encourages people to become more informed about and aware of metastatic breast cancer.

NAVIGATION & USEFUL LINKSEmphasizing advocacy, MBCN’s home page invites viewers to volunteer with MBCN by selecting the Get Involved: Volunteer with Us link directly on the home page underneath the navigation bar.

By selecting Order Brochures in the drop-down section for Education, viewers may order and read information directly related to metastatic breast cancer. Pages can also be read over the website, and pages of interest can be printed out.

By selecting Support-Resources at the top of the home page, viewers may become familiar with the different types of support groups, websites, and Retreats available to patients and caregiv-ers. Resources including clinical trials, financial assistance, and legal resources are also available in this section.

For those interested in becoming more vocal about metastatic breast cancer, a Special Events section on the home page lists Upcoming Events and discusses past conferences and programs where MBCN was involved and helped make a difference. Viewers may also Get Involved simply by volunteering, fund-raising, or donating to the organization.

Underneath the Get Involved drop-down, viewers may also select Inspirational Stories. This section offers those affected by metastatic breast cancer the opportunity to share their personal stories, or simply read others’.

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CancerCarewww.cancercare.org

ADDRESS:275 Seventh AvenueFloor 22New York, NY 10001

CONTACT INFO:Phone: 800-813-4673E-mail: info@cancercare.org

HISTORY & MISSIONCancerCare was founded in New York City in 1944 to help patients with advanced cancer. The organization provides free professional support services to anyone affected by cancer, including patients, caregivers, children, loved ones, and the bereaved.

CancerCare has provided limited financial assistance for home care and emotional and practical counseling by professional oncology social workers. Helping more than 100,000 people annually face the crisis of cancer, the website has become a leading online resource for cancer information, with more than 1 million unique visitors last year.

While the size and focus of the organization have grown tremendously since 1944, the essential work remains the same: caring for the individual, supporting loved ones, and providing help and hope to anyone affected by cancer.

PROGRAMS & ACHIEVEMENTSCancerCare programs include a toll-free counseling line, support groups, education, financial assistance, and practical help provided by professional oncology social workers free of charge.

The organization also offers CONNECT Education Workshops which are interactive and made available by telephone or live Internet stream. The programs feature oncology experts helping patients and families to better understand and cope with a specific cancer diagnosis. CancerCare offers limited financial assistance to pay for treatment-related expenses such as child care, over-the-counter medications, and transportation to and from treatment. In addition, the CancerCare Co-Payment Assistance Foundation was established in 2007 to help patients with cancer afford their insurance and drug co-payments.

NAVIGATION & USEFUL LINKSThe 3 main sections of the CancerCare website offer information For Patients and Survivors, For Caregivers and Loved Ones, and For Healthcare Professionals.

Viewers may select Our Services at the top of the home page to access information about Counseling, Support Groups, and CONNECT Education Workshops, which are free of charge. Oncology experts provide information by telephone as well as over the Internet. Publications and Financial Assistance information is also available in this drop-down.

The website features a useful Help by Diagnosis or Topic section which provides viewers direct information and resources to their topic of interest, providing specific information regarding all of the services available through CancerCare. Stories of Help and Hope features inspiring personal experiences from others who have found ways to cope with cancers such as metastatic breast cancer. The stories also offer helpful advice for caregivers.

The Ask CancerCare link features common questions and expert answers to those questions. Visitors may also submit their own question.

In the For Healthcare Professionals section, visitors may download educational materials and consult with CancerCare’s staff of professional oncology social workers.

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Cancer Support Communitywww.cancersupportcommunity.org

ADDRESS:1050 17th Street, NWSuite 500Washington, DC 20036

CONTACT INFO:Phone: 888-793-9355E-mail: help@cancersupportcommunity.org

HISTORY & MISSIONFormed in 2009, the Cancer Support Community became a global network of education and hope after The Wellness Community (TWC), founded in 1982, merged with Gilda’s Club Worldwide, originally founded in 1991. The Cancer Support Community is one of the largest providers of cancer support worldwide, encompassing 56 affiliates as well as more than 100 satellite offices worldwide.

The Cancer Support Community is the largest non-profit employer of psychosocial oncology mental health professionals in the United States, and offers services and education that put patients at the center of their care so that no one has to face cancer alone. This organization strives to answer the social and emotional needs of those affected by cancer, and ensures that all affected by advanced breast cancer are empowered by knowledge, strengthened by action, and sustained by their community.

PROGRAMS & ACHIEVEMENTSCancer Support Community continues to develop the Research and Training Institute. The Institute conducts peer-reviewed re-search, sponsors forums and retreats for patients and caregivers, and coordinates training programs for health care professionals.

One of Cancer Support Community’s highlight projects is The Can-cer Survivor Registry: The Breast Cancer M.A.P. (Mind Affects the Physical) Project, which is a registry first designed to understand the social, emotional, spiritual, and financial impact of the disease. The Cancer Support Community has also developed a free deci-sion support counseling program, Open to Options. Open to Options assists in the development of a personal list of questions and concerns that help patients and their doctors explore their specific situations to develop the best treatment option.

In addition to its cancer survivor registry, CSC has recently launched an advanced breast cancer registry.

NAVIGATION & USEFUL LINKSThe Cancer Support Community website is filled with content for visitors seeking information on nearly every aspect of dealing with cancer. The home page is updated with the lat-est cancer news, and provides links for connecting patients and caregivers to online support groups. Cancer patients also have the option to create a personalized website by selecting the link Create Your Own Webpage under the Get Connected section of the home page.

The navigation bar across the top of the home page includes the following clickable categories: About Cancer, Cancer Support, Family & Friends, Get Involved, Research & Training, News, and About CSC. Selecting any of these options provides a drop-down list of expandable links on topics pertaining to cancer support for patients, survivors, and their families and caregivers.

Family & Friends offers advice on Caregiving, Parenting Through Cancer, Bereavement, and Teens Touched by Cancer. Teens are redirected to GroupLoop.org, a site specifically for young people.

Accessing information specific to advanced breast cancer is simple through selecting the About Cancer category at the top of the home page. Breast Cancer may be selected through the Types of Cancer link, which further provides a link specific to Advanced Breast Cancer.

The advanced breast cancer webpage offers easy-to-navigate subsections including Understanding Advanced Breast Cancer, Managing Side Effects of Advanced Breast Cancer Treatment, Treatment Options for Advanced Breast Cancer, General Side Effects, and Emotional Wellbeing.

Free materials are available by selecting Frankly Speaking About Cancer on the right side of the advanced breast cancer webpage.

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Living Beyond Breast Cancerwww.lbbc.org

ADDRESS:354 West Lancaster AvenueSuite 224Haverford, PA 19041

CONTACT INFO:Phone: 610-645-4567E-mail: mail@lbbc.org

HISTORY & MISSIONLiving Beyond Breast Cancer (LBBC) was originally founded in 1991 by a radiation oncologist, Marisa C. Weiss, MD, in response to a woman’s need for breast cancer-related informa-tion, connection, and support after completing treatment.

Wishing to empower all women affected by breast cancer to live as long as possible with the best possible quality of life, LBBC assists women at all stages of diagnosis, treatment, and recovery of breast cancer. The organization’s mission includes offering specialized programs and services for the newly diagnosed, young women, women with advanced breast cancer, women at high risk for developing the disease, and African American and Latina women. LBBC also offers programs for caregivers and health care professionals, to help them better meet the needs of women affected by breast cancer.

PROGRAMS & ACHIEVEMENTSLBBC predicts that approximately $3 million will be generously donated to the organization this year.

The organization holds large-scale education conferences in-cluding its 2-day Annual Conference for Women Living with Metastatic Breast Cancer. Doctors, researchers, nurses, and mental health care providers speak at this event about medi-cal treatments and current clinical trials, and offer advice on managing metastatic breast cancer emotionally and practically. Special workshops and exhibits provide further information to assist those affected by metastatic breast cancer.

Held each fall in Philadelphia, the Butterfly Ball is the organization’s annual gala. This fund-raising opportunity helps raise hundreds of thousands of dollars for LBBC’s programs and services, as well as helps honor women for their courage, strength, and compassion.

In addition to offering a toll-free Survivor’s Helpline for confidential support from a specially matched peer and publishing a quarterly newsletter, the organization provides a collection of articles, transcripts, and other resources in its LBBC library, which offer further information on breast cancer concerns and medical treatment information.

NAVIGATION & USEFUL LINKSOn the home page, main links span the page from left to right. The Understanding Breast Cancer section includes helpful information regarding clinical trials and research studies. The Learning from Others section provides tips for living with breast cancer, a helpline, and an Ask-the-Expert section. Information about conferences and teleconferences is available by selecting the Events link on the home page.

LBBC’s website also offers patients and caregivers numerous links to LBBC’s social networking sites. The Community Connections section is located down at the bottom of the home page. By selecting the LBBC Library link on the lower right-hand side of the home page, viewers will find helpful resources and educational programs relative to metastatic breast cancer including an archive of past videos and articles. Those who have further questions, or just need someone to listen, have the option to select the Survivors’ Helpline link on the right side of the home page below Donate To LBBC.

Viewers also have the option to Get Involved by selecting to Volunteer their time and effort with LBBC staff in the fight to help find a cure for metastatic breast cancer.

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Breastcancer.orgwww.breastcancer.org

ADDRESS:7 East Lancaster Avenue3rd FloorArdmore, PA 19003

CONTACT INFO:E-mail: Online

HISTORY & MISSIONBreastcancer.org was founded in 1999 by Marisa Weiss, MD, a nationally renowned oncologist specializing in breast cancer. Weiss realized that when dealing with breast cancer, most wom-en feel overwhelmed by vast amounts of information and may feel terrified by the burden of having to make quick decisions.

Breastcancer.org’s mission is to help women and their loved ones make sense of the complex medical and personal information about the disease, enabling them to make the best decisions for their lives. The organization’s team consists of business development experts, medical experts, and experienced writers, editors, designers, and web producers. The organization also includes a Professional Advisory Board which includes doctors, nurses, and researchers, as well as other experts from a range of disciplines.

PROGRAMS & ACHIEVEMENTSDedicated to providing the most reliable, complete, and up-to- date information about cancer, Breastcancer.org features medical information relative to topics which include lowering risks, symptoms and diagnosis, treatment and side effects, and day-to-day matters for those affected by breast cancer. The site offers a variety of educational booklets and bro-chures which are available by mail.

Since 2004, Breastcancer.org has won a series of eHealthcare Leadership Awards, including Best Overall Internet Site, Best Health/Healthcare Content, and Best Site Design. In 2008, the organization won a Gold eHealthcare Leadership Award for Best Health Content. In 2011, The Breast Cancer Diagnosis Guide iPhone application was an official honoree at the 15th Annual Webby Awards. Weiss was also awarded Nonprofit Communica-tor of the Year by PR News.

More than 6000 pages of medical information are currently posted on the Breastcancer.org website.

NAVIGATION & USEFUL LINKSBreastcancer.org features Symptoms & Diagnosis, Treatment & Side Effects, Day-to-Day Matters, Lower Your Risk, and Community links across the top of its home page.

Viewers will learn more about screening and testing, what results mean, and information on the different types of breast cancer, including metastatic breast cancer, by selecting the Symptoms & Diagnosis section. The latest Research News on Diagnosis as well as the iPhone App: Breast Cancer Diagnosis Guide are also available in this section.

Clinical trials, therapies, surgeries, and tips for coping with treatments and choosing the correct option are all available in the Treatment & Side Effects section of the website.

Day-to-Day Matters offers helpful tips for managing nonmedical is-sues related to breast cancer such as Paying for Your Care, Breast Cancer and Your Job, and Managing Your Medical Records. The section also offers helpful information related to topics including Nutrition and Ways to Prepare for a Natural Disaster.

Viewers who select the Community link on the home page will be directed to links featuring Discussion Boards, Chat Rooms, and a Blog to hear others’ stories and tips. Recommended Links and Recommended Books offer resources to further answer the questions of those affected by breast cancer.

Visitors may also view Breastcancer.org in Spanish by selecting En Español at the top of the website.

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Young Survival Coalitionwww.youngsurvival.org

ADDRESS:61 BroadwaySuite 2235New York, NY 10006

CONTACT INFO:Phone: 1-877-972-1011

646-257-3000E-mail: Online

HISTORY & MISSIONYoung Survival Coalition (YSC) was founded by 3 young women all diagnosed with breast cancer before the age of 35. These women saw the need for better information, support, and research for young women facing breast cancer. YSC advocates for more studies about young women and breast cancer, educates young women about the importance of breast self-awareness and knowledge, and serves as a community of support for young women with breast cancer.

PROGRAMS & ACHIEVEMENTSYSC’s educational programs are designed to reach young women affected by breast cancer, members of the medical community, friends, family members, caregivers, the breast health community, healthy young women, and the general public.

YSC hosts a monthly Metastatic Telephone Support Call, which provides an opportunity for young women living with metastatic breast cancer to connect. YSC offers this telephone networking session to bring young women together to share experiences, personal stories, and support. Please visit the MetsLink section on the YSC’s website for a schedule of upcoming calls. Additionally, YSC’s SurvivorLink program allows young women living with metastatic disease of all background to speak one-on-one with other survivors.

Each year, YSC partners with Living Beyond Breast Cancer (LBBC) and hosts an annual Conference for Young Women Affected by Breast Cancer (C4YW). During the conference, leading professionals who have dedicated their lives to caring for young women with breast cancer discuss new scientific research and clinical care breakthroughs, and empower women to make the best choices for their health. Young women also have the opportunity to collect a wealth of educational resources to help them face breast cancer with knowledge, hope, and courage, and network with other survivors.

NAVIGATION & USEFUL LINKSThe navigation bar across the top of the YSC website includes a Programs tab, where young women can learn more about joining programs such as SurvivorLink and MetsLink, or order free educational resources such as the “Metastatic Resource Kit,” “Newly Diagnosed Resource Kit,” or the “Post Treatment Navigator.”

Viewers who select the Breast Cancer in Young Women tab will find information on metastatic breast cancer, treatments, and tips for handling a diagnosis. Links to Survivor Stories and information For Caregivers and Healthcare Professionals can also be found in this section.

The YSC Community tab on the website directs viewers to a page filled with blogs, breast cancer forums, and photos. In this section, viewers can register to create an online profile and begin connecting with other young breast cancer survivors and share information relevant to their specific diagnosis, treatment protocol, and stage of life.

The Ask An Expert section on the home page features responses to common questions of young women who face challenges during their journey with metastatic breast cancer. Those seeking support and face-to-face networking in their local community can obtain information by selecting Find Locations at the bottom of YSC’s website and can visit their corresponding regional page.

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MyLifeLine.org Cancer Foundationwww.mylifeline.org

ADDRESS:55 Madison StreetSuite 750Denver, CO 80206

CONTACT INFO:Phone: 720-883-8715E-mail: support@mylifeline.org

HISTORY & MISSIONMyLifeLine.org was founded in 2007 by Marcia Donziger, a young ovarian cancer patient. Inspired by another young woman who harnessed the tools available to stay in touch with her family and friends during her cancer diagnosis, Donziger learned the tremendous benefit for cancer patients to communicate via a personal website.

MyLifeLine.org encourages cancer patients and caregivers to create free, customized websites. Each personalized page helps build an online support community of family and friends to foster connection, inspiration, and healing.

PROGRAMS & ACHIEVEMENTS MyLifeLine.org proudly supports more than 84,000 people. The organization estimates that nearly 150,000 patients, caregivers, and their supporters will be using its service by 2015.

In 2012, MyLifeLine.org hosted “Jockeys, Juleps and Jazz.” Held in conjunction with the Kentucky Derby, the reception-style event featured live and silent auctions, a live band, photo booth, and hat contest.

MyLifeLine.org is supported by Eisai, Genentech, and Celgene, among other sponsors who recognize that outcomes are better when patients are emotionally supported by friends and family.

NAVIGATION & USEFUL LINKSAt the top of MyLifeLine.org, the Cancer Patients tab provides an overview of the organization, and links to resources for General Cancer Information, Specific Cancer Types, Advocacy and Survivorship, Caregiver Support, Clinical Trials, Complementary/Integrative Therapies, Emotional Support, Humor Therapy, Financial Information, Hair Loss & Wigs, Nutrition, and more. Solutions to help ease side effects and stress during cancer treatment can be found in the ComfortCare Marketplace section of the website, also accessible through the Cancer Patients tab.

An extensive list of resources for caregivers is available by selecting the Friends & Family tab at the top of the home page. Healthcare Professionals can also utilize MyLifeLine.org to become informed about upcoming oncology healthcare conferences.

Visitors who select the orange Set Up Your Site button on the home page can follow the simplified process of creating a personalized website on MyLifeLine.org.

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National Coalition for Cancer Survivorshipwww.canceradvocacy.org

ADDRESS:1010 Wayne AvenueSuite 770Silver Spring, MD 20910

CONTACT INFO:Phone: 301-650-9127E-mail: info@canceradvocacy.org

HISTORY & MISSIONFounded by and for cancer survivors, the National Coalition for Cancer Survivorship (NCCS) advocates for quality cancer care for all people touched by cancer and provides tools that empower people to advocate for themselves.

NCCS offers free publications and resources that empower individuals to become strong advocates for their own care or the care of others. The organization believes that access to credible and accurate patient information is fundamental to understanding and receiving quality cancer care. Patients empowered with information and tools can receive optimal care by making their needs known to their doctors, care teams, health plans, and elected officials.

PROGRAMS & ACHIEVEMENTSThe award-winning NCCS Cancer Survival Toolbox program is a self-learning audio series developed by leading cancer organizations to help people develop crucial skills to understand and meet the challenges of their illness.

The NCCS is also a leader in legislative efforts. Recently, the organization helped develop and advance legislation to establish a Medicare service for cancer care treatment planning that would contribute to the delivery of coordinated cancer care. The organization continues working with members of Congress to gain further support to pass future bills.

In 2012, the NCCS hosted an annual “Rays of Hope” event. During the affair, an invited panel of experts discussed the issues confronting cancer survivors who are pursuing quality cancer care, fundamental changes in the US healthcare system through the implementation of the Affordable Care Act, and the gaps in cancer care quality and delivery.

NAVIGATION & USEFUL LINKSThe Living With Cancer tab on the top of the NCCS website includes Survivor Stories and information on Financial Issues, Planning Your Care, and Life After Cancer. A link to the Cancer Survival Toolbox program is also located in this section.

On the NCCS home page, visitors can select Download Our App to download the Pocket Cancer Care Guide iPhone app. Through this mobile app, users can create lists of practical questions used to guide conversations with healthcare professionals. Additionally, the Healthcare Professionals tab on the website provides resources for use in daily practice that cover issues for people living with, through, and beyond cancer to encourage conversation with patients.

The Take Action tab on the website encourages others to become educated and advocate in their communities. Viewers who select Advocacy Training have the option to watch NCCS Advocacy Training Webinars.

HALA0292 METASTATIC BREAST CANCER RESOURCE GUIDE02/13 © 2013 Eisai Inc.

This Resource Guide was supported by Eisai Inc. The information is designed to be a summary of

information and not an exhaustive clinical review.

Intellisphere Oncology Specialty Group was primarily responsible for selecting the content in this supplement.

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