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6/26/2014 #JACR - Healthcare Social Media Transcript http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 1/33 #JACR transcript Healthcare Social Media Transcript From: Thu Jun 26 9:00:00 PDT 2014 To: Thu Jun 26 10:30:00 PDT 2014 change time period What is #JACR? Who were the influencers during this time period? #JACR analytics Healthcare Conference - Healthcare Tweet Chats - Healthcare Analytics heckelme RT @JFreemanDaily : In 15 min, #JACR and #LCSM will co-host a tweetchat on patient's perspective of lung cancer screening. Use #JACR. http:… Thu Jun 26 9:00:04 PDT 2014 cancergeek Apologizing ahead of time. About to blow twitter feed with #JACR #LCSM chat on lung screening. Please join, your voice is important Thu Jun 26 9:00:42 PDT 2014 heckelme RT @bjh41647: #jacr looking forward to the thrill of the tweet Thu Jun 26 9:00:54 PDT 2014 matthawkinsmd Excited to talk about #LungCancer screening w/ @ellakaz & @JFreemanDaily - http://t.co/UqnYNc0umz - #JACR #LCSM Thu Jun 26 9:00:56 PDT 2014 jacrjournal It's tweet chat time! Excited to get started. #JACR Thu Jun 26 9:00:58 PDT 2014 radiologyacr RT @MattHawkinsMD Excited to talk about #LungCancer screening w/ @ellakaz & @JFreemanDaily - http://t.co/xuMyHENgg3 - #JACR #LCSM Thu Jun 26 9:01:13 PDT 2014 ruthcarlosmd Hi everyone Welcome to #JACR. Our topic today: Lung cancer screening and pt engagement. guest mods: @ellakaz @JFreemanDaily with #LCSM. Thu Jun 26 9:01:13 PDT 2014

#JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

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Page 1: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 1/33

#JACR transcript

Healthcare Social Media Transcript

From: Thu Jun 26 9:00:00 PDT 2014

To: Thu Jun 26 10:30:00 PDT 2014

change time period

What is #JACR? Who were the influencers during this time period? #JACR analytics

Healthcare Conference - Healthcare Tweet Chats - Healthcare Analytics

heckelme RT @JFreemanDaily: In 15 min, #JACR and #LCSM will co-host a tweetchat onpatient's perspective of lung cancer screening. Use #JACR. http:…

Thu Jun 26 9:00:04 PDT 2014

cancergeek Apologizing ahead of time. About to blow twitter feed with #JACR #LCSM chat on lungscreening. Please join, your voice is important

Thu Jun 26 9:00:42 PDT 2014

heckelme RT @bjh41647: #jacr looking forward to the thrill of the tweet

Thu Jun 26 9:00:54 PDT 2014

matthawkinsmd Excited to talk about #LungCancer screening w/ @ellakaz & @JFreemanDaily -http://t.co/UqnYNc0umz - #JACR #LCSM

Thu Jun 26 9:00:56 PDT 2014

jacrjournal It's tweet chat time! Excited to get started. #JACR

Thu Jun 26 9:00:58 PDT 2014

radiologyacr RT @MattHawkinsMD Excited to talk about #LungCancer screening w/ @ellakaz &@JFreemanDaily - http://t.co/xuMyHENgg3 - #JACR #LCSM

Thu Jun 26 9:01:13 PDT 2014

ruthcarlosmd Hi everyone Welcome to #JACR. Our topic today: Lung cancer screening and ptengagement. guest mods: @ellakaz @JFreemanDaily with #LCSM.

Thu Jun 26 9:01:13 PDT 2014

Page 2: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 2/33

lungcancerfaces RT @JACRJournal: It's tweet chat time! Excited to get started. #JACR

Thu Jun 26 9:01:13 PDT 2014

lungcancerfaces RT @ruthcarlosmd: Hi everyone Welcome to #JACR. Our topic today: Lung cancerscreening and pt engagement. guest mods: @ellakaz @JFreemanDa…

Thu Jun 26 9:01:22 PDT 2014

julianguitron Lung cancer screening is a hot topic currently. Please join in a chat starting now foranswers! #jacr

Thu Jun 26 9:01:29 PDT 2014

cancergeek RT @ruthcarlosmd: Hi everyone Welcome to #JACR. Our topic today: Lung cancerscreening and pt engagement. guest mods: @ellakaz @JFreemanDa…

Thu Jun 26 9:01:31 PDT 2014

heckelme #jacr So great to see folks joining the conversation! Thank you all!

Thu Jun 26 9:01:39 PDT 2014

schntrgrl RT @ruthcarlosmd: Hi everyone Welcome to #JACR. Our topic today: Lung cancerscreening and pt engagement. guest mods: @ellakaz @JFreemanDa…

Thu Jun 26 9:01:46 PDT 2014

heckelme RT @ruthcarlosmd: Hi everyone Welcome to #JACR. Our topic today: Lung cancerscreening and pt engagement. guest mods: @ellakaz @JFreemanDa…

Thu Jun 26 9:01:56 PDT 2014

coffeemommy I *KNOW* there's a game on but my tweets will be w/ #JACR & #LCSM for the nexthour. Join us or simply ignore my non-soccer/football tweets

Thu Jun 26 9:02:05 PDT 2014

ruthcarlosmd As always, please introduce yourself. I already see some familiar faces and newones @julianguitron #jacr

Thu Jun 26 9:02:10 PDT 2014

ruthcarlosmd We assume that your tweets are your own. #jacr

Thu Jun 26 9:02:24 PDT 2014

lungcancerfaces Deana Hendrickson here. Late mom would've been candidate for #LungCancer#LDCT screening. Sister currently being monitored (nodules). #jacr

Thu Jun 26 9:02:26 PDT 2014

crystaleitnier RT @RadiologyACR: 10 minutes until the #JACR and #LCSM tweetchat on lungcancer screening! Be there.

Thu Jun 26 9:02:27 PDT 2014

jfreemandaily I'm Janet -- writer, science geek, stage IV lung cancer patient, and #LCSM guestmoderator today. #jacr

Thu Jun 26 9:02:30 PDT 2014

Page 3: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 3/33

cancergeek Thank you to @ellakaz and @JFreemanDaily @ruthcarlosmd for the great topic #jacr

Thu Jun 26 9:02:31 PDT 2014

findlungcancer andrea, retired engineer, lost husband to lung cancer April 2013, now lung canceradvocate and MPH student #lcsm #jacr

Thu Jun 26 9:02:55 PDT 2014

dustywater Dusty Donaldson with Dusty Joy Foundation. Thank you all! Great topic! #jacr

Thu Jun 26 9:02:57 PDT 2014

julianguitron Julian Guitron, thoracic surgeon at Univ of Cincinnati with an active LC Screeningprogram #jacr

Thu Jun 26 9:02:59 PDT 2014

ruthcarlosmd Big topic today! let's get started #jacr

Thu Jun 26 9:03:06 PDT 2014

createbigideas RT @STS_CTsurgery: Join the conversation about lung cancer screening, starting in20 minutes! Use #JACR

Thu Jun 26 9:03:10 PDT 2014

kristinahoque Hi! Rad resident from USC - excited to join in! #JACR

Thu Jun 26 9:03:11 PDT 2014

heckelme #jacr - Martha - ACR employee (tweeting on my own behalf) - engaged in thedevelopment of the National Lung Screening Registry application.

Thu Jun 26 9:03:15 PDT 2014

cancergeek Andy in WI. Builder of cancer centers, creator of patient experiences, design servicelines. Global Marketer. Patient advocate. #jacr

Thu Jun 26 9:03:15 PDT 2014

ellakaz Hope you enjoy our conversation on lung ca screening today #JACR

Thu Jun 26 9:03:22 PDT 2014

coffeemommy Stacey from CA. 49 yo friend dx w/ Stage 4 LC; 57 yo uncle dx w/ Stage 4 LC. Neitherscreened, one should have definitely been! #jacr

Thu Jun 26 9:03:46 PDT 2014

timallenmdjd RT @ruthcarlosmd: Hi everyone Welcome to #JACR. Our topic today: Lung cancerscreening and pt engagement. guest mods: @ellakaz @JFreemanDa…

Thu Jun 26 9:03:53 PDT 2014

ruthcarlosmd T1: What clinical, psychological and cost outcomes are most important to patientswho receive lung cancer screening? #JACR

Thu Jun 26 9:03:54 PDT 2014

Page 4: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 4/33

cancergeek RT @ruthcarlosmd: T1: What clinical, psychological and cost outcomes are mostimportant to patients who receive lung cancer screening? #JA…

Thu Jun 26 9:04:09 PDT 2014

heckelme RT @ruthcarlosmd: T1: What clinical, psychological and cost outcomes are mostimportant to patients who receive lung cancer screening? #JA…

Thu Jun 26 9:04:20 PDT 2014

lungcancerfaces RT @ruthcarlosmd: T1: What clinical, psychological and cost outcomes are mostimportant to patients who receive lung cancer screening? #JA…

Thu Jun 26 9:04:35 PDT 2014

dustywater RT @ruthcarlosmd: T1: What clinical, psychological and cost outcomes are mostimportant to patients who receive lung cancer screening? #JA…

Thu Jun 26 9:04:43 PDT 2014

dustywater T1: Make screening quick, easy and free to patients. Fully brief them on high falsepositives rates, potential follow up, etc. #JACR

Thu Jun 26 9:04:52 PDT 2014

ellakaz shared decision making and setting patient and family expectations from lung cancerscreening are important to success #JACR

Thu Jun 26 9:05:03 PDT 2014

coffeemommy RT @dustywater: T1: Make screening quick, easy and free to patients. Fully brief themon high false positives rates, potential follow up, e…

Thu Jun 26 9:05:05 PDT 2014

heckelme RT @dustywater: T1: Make screening quick, easy and free to patients. Fully brief themon high false positives rates, potential follow up, e…

Thu Jun 26 9:05:18 PDT 2014

bjh41647 #JACR JACR editor in chief who was chair of ACRIN during NLST FORMATIVEYEARS

Thu Jun 26 9:05:25 PDT 2014

matthawkinsmd Here's the #USPSTF lung cancer screening guidelines -- http://t.co/NCI4fv4wko --#JACR #LCSM

Thu Jun 26 9:05:28 PDT 2014

cancergeek T1: IME I believe is the ability to get an answer as soon as possible, with next steps,& in an easy to understand message #jacr

Thu Jun 26 9:05:28 PDT 2014

jfreemandaily T1: Since targeted screening group is =>55, many will be concerned with cost. Somecan't go to dr because they can't afford copays. #jacr

Thu Jun 26 9:05:45 PDT 2014

Page 5: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 5/33

julianguitron T1: Full disclosure and education ahead of LCSP is essential #jacr

Thu Jun 26 9:05:46 PDT 2014

dustywater RT @MattHawkinsMD: Here's the #USPSTF lung cancer screening guidelines --http://t.co/NCI4fv4wko -- #JACR #LCSM

Thu Jun 26 9:05:48 PDT 2014

findlungcancer T1 high test sensitivity (low false negatives), minimal invasive fu 4 positives, low/nocost, easy std of care at annual w/PCP #jacr

Thu Jun 26 9:06:03 PDT 2014

cancergeek RT @JFreemanDaily: T1: Since targeted screening group is =>55, many will beconcerned with cost. Some can't go to dr because they can't aff…

Thu Jun 26 9:06:05 PDT 2014

dustywater T1: Ideal screening program includes cessation options for smokers trying to quit.No bullying, just encouragement and support. #JACR

Thu Jun 26 9:06:07 PDT 2014

jacrjournal RT @ellakaz: shared decision making and setting patient and family expectationsfrom lung cancer screening are important to success #JACR

Thu Jun 26 9:06:11 PDT 2014

jacrjournal RT @ruthcarlosmd: T1: What clinical, psychological and cost outcomes are mostimportant to patients who receive lung cancer screening? #JA…

Thu Jun 26 9:06:26 PDT 2014

nxtstop1 RT @dustywater T1: Make screening quick, easy &free 2 patients. Fully briefthem:high false positives rates, potential follow up, etc. #JACR

Thu Jun 26 9:06:29 PDT 2014

timallenmdjd Clinical concept is earlier dx and therefore prolonged survival, possibly cure.@ruthcarlosmd: T1: What clinical, psychological and... #JACR

Thu Jun 26 9:06:30 PDT 2014

jfreemandaily T1: Essential to help patients understand the possibility and significance of falsepositives BEFORE screening. #LCSM #jacr

Thu Jun 26 9:06:36 PDT 2014

coffeemommy EDUCATION! & access (eliminate cost barriers)RT @julianguitron: T1: Fulldisclosure and education ahead of LCSP is essential #jacr

Thu Jun 26 9:06:41 PDT 2014

sts_ctsurgery RT @ruthcarlosmd: T1: What clinical, psychological and cost outcomes are mostimportant to patients who receive lung cancer screening? #JA…

Thu Jun 26 9:06:42 PDT 2014

kristinahoque T1: bottom line- we should focus on a patient centered approach to screening #JACR

Page 6: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 6/33

Thu Jun 26 9:06:46 PDT 2014

timallenmdjd RT @MattHawkinsMD: Here's the #USPSTF lung cancer screening guidelines --http://t.co/NCI4fv4wko -- #JACR #LCSM

Thu Jun 26 9:06:46 PDT 2014

findlungcancer T1 upfront discussion w/PCP on screening & encouraging smoking cessation #jacr

Thu Jun 26 9:06:48 PDT 2014

lungcancerfaces T1: Educate patients on false positives, explain importance of follow up, smokingcessation support for active smokers #jacr

Thu Jun 26 9:06:55 PDT 2014

nxtstop1 MT @JFreemanDaily T1: Essential:help patients understand the possibility andsignificance of false positives BEFORE screening. #LCSM #jacr

Thu Jun 26 9:06:56 PDT 2014

cancergeek T1: Ideal program is multidisciplinary in nature, focused on patient, easy toaccess/follow up, & complimented w community resources #jacr

Thu Jun 26 9:07:02 PDT 2014

dustywater T1: Lung screening program is worthless without strong public service campaigninforming everyone at risk. Shout it from the rooftops! #JACR

Thu Jun 26 9:07:02 PDT 2014

julianguitron LCSP: expected 40% of "findings" expected will ease much stress on pts if warnedahead of time. It's a process not a single image! #jacr

Thu Jun 26 9:07:02 PDT 2014

cancergeek RT @findlungcancer: T1 upfront discussion w/PCP on screening & encouragingsmoking cessation #jacr

Thu Jun 26 9:07:10 PDT 2014

bjh41647 @JFreemanDaily #JACR cost is key. The first step is a big financial bite for many

Thu Jun 26 9:07:12 PDT 2014

ruthcarlosmd @JFreemanDaily ACA=screening free for private insured. BUT work-up of additionalfindings incur out of pocket costs #jacr

Thu Jun 26 9:07:18 PDT 2014

timallenmdjd RT @findlungcancer: T1 high test sensitivity (low false negatives), minimal invasivefu 4 positives, low/no cost, easy std of care at annu…

Thu Jun 26 9:07:26 PDT 2014

lungcancerfaces RT @dustywater: T1: Lung screening program is worthless without strong publicservice campaign informing everyone at risk. Shout it from th…

Thu Jun 26 9:07:26 PDT 2014

Page 7: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 7/33

sts_ctsurgery RT @ellakaz: shared decision making and setting patient and family expectationsfrom lung cancer screening are important to success #JACR

Thu Jun 26 9:07:30 PDT 2014

cibr_news Coalition for Imaging&Bioengineering Research is happy to participate in #JACRchat,we're committed to advocating for #lungcancer research

Thu Jun 26 9:07:35 PDT 2014

cancergeek RT @dustywater: T1: Lung screening program is worthless without strong publicservice campaign informing everyone at risk. Shout it from th…

Thu Jun 26 9:08:00 PDT 2014

findlungcancer upfront discussion good especially that findings are categorized via LungRADSw/assumption of continuing annual screen #jacr

Thu Jun 26 9:08:00 PDT 2014

nxtstop1 Bernadette Keefe MD here ~Agree Re Smoking! T1 MT @findlungcancer T1 upfrontdiscussion w/PCP on screening & encourage stop smoking #jacr

Thu Jun 26 9:08:00 PDT 2014

cibr_news RT @ruthcarlosmd: Hi everyone Welcome to #JACR. Our topic today: Lung cancerscreening and pt engagement. guest mods: @ellakaz @JFreemanDa…

Thu Jun 26 9:08:11 PDT 2014

dustywater T1: Cost is huge issue. Most insurance will cover by 2015. Average cost ~$300. Ourorg provided some matching funds. #JACR

Thu Jun 26 9:08:31 PDT 2014

kristinahoque T1: not only educate about false positives but also treatment options before hand#JACR

Thu Jun 26 9:08:39 PDT 2014

lungcancerfaces RT @MattHawkinsMD: Here's the #USPSTF lung cancer screening guidelines --http://t.co/NCI4fv4wko -- #JACR #LCSM

Thu Jun 26 9:08:42 PDT 2014

ellakaz check out LungRADS reduces (+) screen rate from over 1 in 4 of NLST to 1 in 10http://t.co/xGtW2g5ao0 #JACR

Thu Jun 26 9:08:44 PDT 2014

jfreemandaily @ruthcarlosmd T1: But screening is NOT yet free for Medicare/Medicaid patients,which is a large % eligible patients. #jacr

Thu Jun 26 9:08:52 PDT 2014

heckelme Ease of access (support from PCPs?), clear understanding of potentialrisks/benefits, lack of stigmatizing of risk factors #jacr

Thu Jun 26 9:08:54 PDT 2014

ruthcarlosmd As a patient, clear communication about what I can expect (results, more tests,

Page 8: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 8/33

costs) is critical #jacr

Thu Jun 26 9:08:56 PDT 2014

radiologyacr RT @ellakaz check out LungRADS reduces (+) screen rate from over 1 in 4 of NLSTto 1 in 10 http://t.co/Fv98HwOZwc #JACR

Thu Jun 26 9:08:58 PDT 2014

jacrjournal RT @bjh41647: @JFreemanDaily #JACR cost is key. The first step is a big financialbite for many

Thu Jun 26 9:08:59 PDT 2014

lungcancerfaces RT @ellakaz: check out LungRADS reduces (+) screen rate from over 1 in 4 of NLSTto 1 in 10 http://t.co/xGtW2g5ao0 #JACR

Thu Jun 26 9:09:09 PDT 2014

nxtstop1 @ruthcarlosmd @JFreemanDaily T1 This is a HUGE issue~ Pts are going to be hurtby this~ incidentalomas are a dime a dozen. W/u $$$ #jacr

Thu Jun 26 9:09:10 PDT 2014

dustywater RT @ruthcarlosmd: As a patient, clear communication about what I can expect(results, more tests, costs) is critical #jacr

Thu Jun 26 9:09:11 PDT 2014

timallenmdjd Also concern for ppl who can afford screening but not work up, surg , etc if a lesion isfound. @JFreemanDaily: T1: Since targeted... #jacr

Thu Jun 26 9:09:24 PDT 2014

heckelme Inclusiveness -- not just smokers are at risk for lung cancer. #jacr

Thu Jun 26 9:09:24 PDT 2014

dustywater T1: Lung screening must be treated equal with other screenings, not ghettoize. 100%covered no co-pays. #JACR

Thu Jun 26 9:09:28 PDT 2014

kristinahoque RT @RadiologyACR: RT @ellakaz check out LungRADS reduces (+) screen rate fromover 1 in 4 of NLST to 1 in 10 http://t.co/Fv98HwOZwc #JACR

Thu Jun 26 9:09:30 PDT 2014

cancergeek T1: Make any and all communication simple, easy to understand. PLZ do not useLungRADS, USPSTF, NCCN acronyms w out explaining to pts #jacr

Thu Jun 26 9:09:31 PDT 2014

ellakaz ACR is working with over 40 professional organizations to help CMS do the right thingand cover lung cancer screening #JACR

Thu Jun 26 9:09:38 PDT 2014

timallenmdjd RT @nxtstop1: @ruthcarlosmd @JFreemanDaily T1 This is a HUGE issue~ Pts aregoing to be hurt by this~ incidentalomas are a dime a dozen. W/…

Thu Jun 26 9:09:49 PDT 2014

Page 9: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 9/33

findlungcancer Gr8 need to make sure people understand risk w/finding thresholds assumecontinued annual screensMT @ellakaz: check out LungRADS #jacr

Thu Jun 26 9:10:08 PDT 2014

jfreemandaily RT @ellakaz: ACR is working with over 40 professional organizations to help CMS dothe right thing and cover lung cancer screening #JACR

Thu Jun 26 9:10:13 PDT 2014

ruthcarlosmd RT @TimAllenMDJD: Also concern for ppl who can afford screening but not work up,surg , etc if a lesion is found. @JFreemanDaily: T1: Since…

Thu Jun 26 9:10:17 PDT 2014

julianguitron @nxtstop1 @ruthcarlosmd @JFreemanDaily Although in our experience (+) findingshave been much higher than the 40% reported by NLSP #jacr

Thu Jun 26 9:10:18 PDT 2014

matthawkinsmd Some opinions about the National #LungCancer screening trial --http://t.co/ZU0Pnu58wK -- #JACR

Thu Jun 26 9:10:19 PDT 2014

ellakaz we've assembled thoracic surgeons, pulmonary med groups and patient advocacygroups in our efforts with CMS #JACR

Thu Jun 26 9:10:21 PDT 2014

heckelme Engage professional patient education writers in developing communicationmaterials. Put it in writing. #jacr

Thu Jun 26 9:10:22 PDT 2014

kristinahoque RT @ellakaz: ACR is working with over 40 professional organizations to help CMS dothe right thing and cover lung cancer screening #JACR

Thu Jun 26 9:10:27 PDT 2014

cancergeek T1: Cost--> are days of loss work, travel time, cost of exam, cost of follow up,anxiety/stress factors? #jacr

Thu Jun 26 9:10:36 PDT 2014

timallenmdjd RT @ellakaz: ACR is working with over 40 professional organizations to help CMS dothe right thing and cover lung cancer screening #JACR

Thu Jun 26 9:10:46 PDT 2014

ruthcarlosmd RT @CancerGeek: T1: Ideal program is multidisciplinary in nature, focused onpatient, easy to access/follow up, & complimented w community …

Thu Jun 26 9:10:46 PDT 2014

lungcancerfaces RT @MattHawkinsMD: Some opinions about the National #LungCancer screeningtrial -- http://t.co/ZU0Pnu58wK -- #JACR

Thu Jun 26 9:10:47 PDT 2014

Page 10: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 10/33

nxtstop1 @ellakaz T1 BUT what to do about all the other work ups which may result~ Iworry.Studies:smokers w/less education,may have less money #jacr

Thu Jun 26 9:10:48 PDT 2014

coffeemommy Better yet, engage patients! MT @heckelme: Engage profl patient ed writers indeveloping communication materials. Put it in writing. #jacr

Thu Jun 26 9:10:58 PDT 2014

ellakaz we've looked at how LungRADS performs using the NLST data...by raising the size of+ screen we reduce FPs and miss very little #JACR

Thu Jun 26 9:11:10 PDT 2014

findlungcancer screening sites need to work w/social services to help MT @TimAllenMDJD: Alsoconcern for ppl who can afford screening butnot work up #jacr

Thu Jun 26 9:11:22 PDT 2014

ruthcarlosmd @coffeemommy @heckelme Hey, wanna join our patient panel on this very topic!#jacr

Thu Jun 26 9:11:35 PDT 2014

heckelme Evidence-based processes -- understanding low dose CT is not diagnostic, forexample; educate docs and pts. ACR Lung Screening Program #jacr

Thu Jun 26 9:11:40 PDT 2014

jfreemandaily T1: Patient advocate and public health groups are also actively encouraging CMS toprovide coverage for lung screening. #LCSM #jacr

Thu Jun 26 9:11:44 PDT 2014

julianguitron @ellakaz Agree, there's significant support from medical community. CMS does havevalid concerns that we need to address soon #jacr

Thu Jun 26 9:11:45 PDT 2014

nxtstop1 &Incidentals. RT @CancerGeek T1: Cost--> are days of loss work, travel time, cost ofexam, cost of follow up, anxiety/stress factors? #jacr

Thu Jun 26 9:11:52 PDT 2014

cancergeek T1: Access-->is accreditation of prog important? is it easy to find? to locate? toschedule screening? Is it free? Response timely? #jacr

Thu Jun 26 9:11:54 PDT 2014

coffeemommy *grin* Already here! RT @ruthcarlosmd: @coffeemommy @heckelme Hey, wannajoin our patient panel on this very topic! #jacr

Thu Jun 26 9:11:56 PDT 2014

lungcancerfaces RT @JFreemanDaily: T1: Patient advocate and public health groups are also activelyencouraging CMS to provide coverage for lung screening. …

Thu Jun 26 9:11:57 PDT 2014

RT @CancerGeek: T1: Access-->is accreditation of prog important? is it easy to find?

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 11/33

dustywater to locate? to schedule screening? Is it free? Response…

Thu Jun 26 9:12:10 PDT 2014

bjh41647 @nxtstop1 @ellakaz #JACR agree, especially intangible costs of time and travel forthose who can least afford

Thu Jun 26 9:12:14 PDT 2014

teaminspire RT @JFreemanDaily: T1: Since targeted screening group is =>55, many will beconcerned with cost. Some can't go to dr because they can't aff…

Thu Jun 26 9:12:14 PDT 2014

siewlee18 RT @nxtstop1: Bernadette Keefe MD here ~Agree Re Smoking! T1 MT@findlungcancer T1 upfront discussion w/PCP on screening & encourage stop s…

Thu Jun 26 9:12:23 PDT 2014

findlungcancer RT @CancerGeek: T1: Access-->is accreditation of prog important? is it easy to find?to locate? to schedule screening? Is it free? Response…

Thu Jun 26 9:12:28 PDT 2014

nxtstop1 MT @julianguitron @ellakaz Agree,there's significant support by medicalcommunity.CMS does have valid concerns: we need 2 address soon #jacr

Thu Jun 26 9:12:29 PDT 2014

ellakaz less (+) screens mean less tests & anxiety - but we have to educate PCPs andpatients about what to worry about and what not to! #JACR

Thu Jun 26 9:12:34 PDT 2014

ruthcarlosmd RT @CancerGeek: T1: Access-->is accreditation of prog important? is it easy to find?to locate? to schedule screening? Is it free? Response…

Thu Jun 26 9:12:41 PDT 2014

dustywater T1: Advocates working for Medicare coverage. Need everyone’s support to make thishappen. Look for call to action and please take it! #JACR

Thu Jun 26 9:12:42 PDT 2014

heckelme @ruthcarlosmd @coffeemommy Pretty sure I am already engaged in thedevelopment process. (From, Martha) #jacr

Thu Jun 26 9:12:43 PDT 2014

timallenmdjd RT @heckelme: Evidence-based processes -- understanding low dose CT is notdiagnostic, for example; educate docs and pts. ACR Lung Screenin…

Thu Jun 26 9:12:43 PDT 2014

lungcancerfaces Often ignored! RT @bjh41647: @nxtstop1 @ellakaz #JACR agree, especiallyintangible costs of time and travel for those who can least afford

Thu Jun 26 9:12:43 PDT 2014

coffeemommy T1: Education needs to include benefits of screening/early detection. Denial & cost

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 12/33

avoidance are big barriers with many. #jacr

Thu Jun 26 9:13:02 PDT 2014

jfreemandaily T1: Access by location is also a concern. Patient may not be willing to travel to get to"large academic center" for screening. #jacr

Thu Jun 26 9:13:14 PDT 2014

cancergeek T1: Quality-->is there a team in place (PCP, Rad, Pulmonologist, SW, etc) Is itaccredited? Are they benchmarked versus other hosp? #jacr

Thu Jun 26 9:13:16 PDT 2014

cancergeek RT @coffeemommy: T1: Education needs to include benefits of screening/earlydetection. Denial & cost avoidance are big barriers with many. …

Thu Jun 26 9:13:32 PDT 2014

ruthcarlosmd RT @CancerGeek: T1: Quality-->is there a team in place (PCP, Rad, Pulmonologist,SW, etc) Is it accredited? Are they benchmarked versus oth…

Thu Jun 26 9:13:40 PDT 2014

findlungcancer Agree fu key MT @ellakaz: less (+) screens mean less tests & anxiety - but we haveto educate PCPs and patients #jacr

Thu Jun 26 9:13:42 PDT 2014

nxtstop1 @bjh41647 @ellakaz T1 Yes.& you know there are going to be other lesions>"requiring" further evaluation>potentially Sx (adren/Kids) #jacr

Thu Jun 26 9:13:45 PDT 2014

julianguitron @ellakaz (+) findings are not a significant problem if approached throughmultidisciplinary discussion. NLSP reports 40% + findings #jacr

Thu Jun 26 9:13:49 PDT 2014

radiologyacr MT @ellakaz less (+)screens mean less tests&anxiety-but we have to educate PCPs& patients about what to worry about and what not to! #JACR

Thu Jun 26 9:13:53 PDT 2014

aboutdunne RT @ellakaz: ACR is working with over 40 professional organizations to help CMS dothe right thing and cover lung cancer screening #JACR

Thu Jun 26 9:14:00 PDT 2014

ellakaz we're working on quality reporting metrics to help benchmark how practicesperformed #JACR

Thu Jun 26 9:14:13 PDT 2014

heckelme How do we address denial and fear? Focus on the life-saving benefits in messagesto pts; offer cessation programs. Telehealth #jacr

Thu Jun 26 9:14:14 PDT 2014

jacrjournal RT @CancerGeek: T1: Make any and all communication simple, easy to understand.PLZ do not use LungRADS, USPSTF, NCCN acronyms w out explain…

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 13/33

Thu Jun 26 9:14:32 PDT 2014

jfreemandaily T1: Patients will want to know how experienced doctors/facility is with screening.Want to compare "accuracy rate" for sites. #LCSM #jacr

Thu Jun 26 9:14:48 PDT 2014

julianguitron @JFreemanDaily Although MANY hospitals in town offer the screen as a single regCT scan, not following criteria. A Big problem. #jacr

Thu Jun 26 9:14:49 PDT 2014

cancergeek T1: @coffeemommy @JFreemanDaily @findlungcancer How does educ need to beperformed, disseminated, shared to amplify message/adoption? #jacr

Thu Jun 26 9:14:57 PDT 2014

coffeemommy Education & empathy allay much of that. But fear is a given w/ any 'cancer' screen MT@heckelme: How do we address denial and fear? #jacr

Thu Jun 26 9:15:05 PDT 2014

heckelme Make sure access reaches to rural and underserved populations; how do we make"national" lung screening? #jacr

Thu Jun 26 9:15:06 PDT 2014

cancergeek RT @JFreemanDaily: T1: Patients will want to know how experienced doctors/facilityis with screening. Want to compare "accuracy rate" for s…

Thu Jun 26 9:15:09 PDT 2014

jacrjournal RT @ruthcarlosmd: As a patient, clear communication about what I can expect(results, more tests, costs) is critical #jacr

Thu Jun 26 9:15:09 PDT 2014

ellakaz we've seen many patients who meet screening eligibility not want to bescreened...we have a lot of work to educated them #JACR

Thu Jun 26 9:15:12 PDT 2014

timallenmdjd Shouldnt have to @JFreemanDaily T1 Location a concern. Pt may not be willing totravel to get to "large academic center" for screening #jacr

Thu Jun 26 9:15:23 PDT 2014

findlungcancer discuss early diagnosis leads to cure w/non invasive procedures;T1 MT @heckelme:How do we address denial and fear? #jacr

Thu Jun 26 9:15:24 PDT 2014

nxtstop1 T1 Does anyone think that smoking cessation should occur pre screening ? I knowsevere but just to ask~ #jacr

Thu Jun 26 9:15:26 PDT 2014

findlungcancer Why? MT @ellakaz: we've seen many patients who meet screening eligibility not wantto be screened...w #jacr

Thu Jun 26 9:15:49 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 14/33

timallenmdjd RT @julianguitron: @JFreemanDaily Although MANY hospitals in town offer thescreen as a single reg CT scan, not following criteria. A Big …

Thu Jun 26 9:15:57 PDT 2014

ellakaz there may be psychological barries for some people to come forward to be screened- idea of shame and self induced cancer #JACR

Thu Jun 26 9:16:09 PDT 2014

coffeemommy @CancerGeek As w/ any strong edu program. Multiple modalities + the rightverbiage, right language, right level at the right time! #jacr

Thu Jun 26 9:16:15 PDT 2014

heckelme @nxtstop1 I don't think we should be limiting the life saving potential of the screeningdue to an addiction difficult to overcome. #jacr

Thu Jun 26 9:16:22 PDT 2014

cancergeek @nxtstop1 T1: IMO cessation should already be part of the plan within the care team.If it isn't, miss for health system #jacr

Thu Jun 26 9:16:22 PDT 2014

julianguitron @nxtstop1 Smoking cessation should be discussed pre-screen but not required toenroll. #jacr

Thu Jun 26 9:16:23 PDT 2014

dustywater RT @ellakaz: there may be psychological barries for some people to come forward tobe screened - idea of shame and self induced cancer #JA…

Thu Jun 26 9:16:27 PDT 2014

cancergeek RT @coffeemommy: @CancerGeek As w/ any strong edu program. Multiplemodalities + the right verbiage, right language, right level at the ri…

Thu Jun 26 9:16:30 PDT 2014

jeamessailor RT @heckelme: Engage professional patient education writers in developingcommunication materials. Put it in writing. #jacr

Thu Jun 26 9:16:34 PDT 2014

nxtstop1 T1 Stopping smoking plus finding small operable tumor >>oh gosh > how great.O/wyou have pts that go round& round w/oral tumors & lung #jacr

Thu Jun 26 9:16:42 PDT 2014

nursefriendly RT @nxtstop1: T1 Does anyone think that smoking cessation should occur prescreening ? I know severe but just to ask~ #jacr

Thu Jun 26 9:16:43 PDT 2014

lungcancerfaces Agree. No barriers to screen RT @julianguitron: @nxtstop1 Smoking cessationshould be discussed pre-screen but not required to enroll. #jacr

Thu Jun 26 9:16:50 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 15/33

jfreemandaily @findlungcancer @ellakaz T1: Some pts with smoking history may not want to knowif they have lung cancer, see it as "hopeless." #jacr

Thu Jun 26 9:16:52 PDT 2014

findlungcancer No will just stop smokers. Already hesitant to screen bc think lots of pressure to quitMT @nxtstop1: T1 smoking cessation pre screen #jacr

Thu Jun 26 9:16:59 PDT 2014

jacrjournal RT @ellakaz: less (+) screens mean less tests & anxiety - but we have to educatePCPs and patients about what to worry about and what not t…

Thu Jun 26 9:17:02 PDT 2014

ellakaz and not want to be told yet again they should quit smoking...even thpugh that is thebest way to prevent lung cancer #JACR

Thu Jun 26 9:17:10 PDT 2014

ruthcarlosmd @julianguitron @JFreemanDaily Program standardization needed to decreasevariation in care received from screening to workup #jacr

Thu Jun 26 9:17:24 PDT 2014

heckelme Have you or a loved one been screened for #lungcancer? Please complete oursurvey! #JACR #LCSM #patientengagement https://t.co/vIBRqnCspU

Thu Jun 26 9:17:29 PDT 2014

ellakaz EDUCATE EDUCATE EDUCATE we have a lot to do #JACR

Thu Jun 26 9:17:33 PDT 2014

bjh41647 @ellakaz #jacr may be difference between doctors and patients. Latter fearfulsomething will be found

Thu Jun 26 9:17:35 PDT 2014

nxtstop1 Seen to Many MT @CancerGeek @nxtstop1 T1:IMO cessation should be part of theplan within care team.If it isn't, miss for health system #jacr

Thu Jun 26 9:17:37 PDT 2014

dustywater T1: Many at risk do not know they are at risk, mostly former smokers. #jacr

Thu Jun 26 9:17:50 PDT 2014

ellakaz agree smoking cessation should be part of ALL lung cancerf screening programs#JACR

Thu Jun 26 9:17:58 PDT 2014

radiologyacr RT @dustywater T1: Many at risk do not know they are at risk, mostly former smokers.#jacr

Thu Jun 26 9:18:08 PDT 2014

coffeemommy Anytime = good time. As uncle died of LC, aunt smoked more - stress. MT @nxtstop1:T1 should smoking cessation occur pre screening? #jacr

Thu Jun 26 9:18:10 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 16/33

findlungcancer agree focus on early diagnosis leading to high cure w/minimal surgery MT@JFreemanDaily: @ellakaz T1: smokers see LC as hopeless #jacr

Thu Jun 26 9:18:11 PDT 2014

cancergeek T1: @ellakaz If there was an ideal care pathway/MDC in place + communication,shouldn't it alleviate anxiety w support/resources? #jacr

Thu Jun 26 9:18:13 PDT 2014

julianguitron @ruthcarlosmd @JFreemanDaily Absolutely, but regional variations (model ofscanners, etc.) are a significant challenge. #jacr

Thu Jun 26 9:18:24 PDT 2014

timallenmdjd Shame again; hate that. Molecular changes cause lung cancer. Not lung ca pts@ellakaz: there may be psychological barries for some... #JACR

Thu Jun 26 9:18:29 PDT 2014

nxtstop1 T1 Would like to see us get MUCH better with the education before imaging~ IMHO@ellakaz EDUCATE EDUCATE EDUCATE we have a lot to do #JACR

Thu Jun 26 9:18:29 PDT 2014

cancergeek RT @dustywater: T1: Many at risk do not know they are at risk, mostly formersmokers. #jacr

Thu Jun 26 9:18:34 PDT 2014

jfreemandaily T1: Few people choose to attend a lecture about smoking cessation. If they MUSTstop smoking before screening, they won't go. #LCSM #jacr

Thu Jun 26 9:18:37 PDT 2014

lungcancerfaces Myth that all goes back to normal after cessation RT @dustywater: T1: Many at risk donot know they are at risk, mostly former smokers #jacr

Thu Jun 26 9:18:41 PDT 2014

cancergeek RT @JFreemanDaily: T1: Few people choose to attend a lecture about smokingcessation. If they MUST stop smoking before screening, they won'…

Thu Jun 26 9:18:52 PDT 2014

heckelme @RadiologyACR @dustywater Not just former smokers -- environmental exposureneeds to be addressed, too, esp in Veteran pops. #jacr

Thu Jun 26 9:19:00 PDT 2014

ellakaz LungRADS helps radiologists categorize findings by risk, and has standardmanagement recommendations #JACR

Thu Jun 26 9:19:06 PDT 2014

ruthcarlosmd Shared decision making needs to respect pt choice incl an informed "no"--as long asdecision is "informed" @JFreemanDaily @ellakaz #jacr

Thu Jun 26 9:19:12 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 17/33

findlungcancer AGREE MT @JFreemanDaily: T1: Few people choose to attend a lecture aboutsmoking cessation. If they MUST stop smoking b4 won't go #jacr

Thu Jun 26 9:19:14 PDT 2014

heckelme RT @ellakaz: LungRADS helps radiologists categorize findings by risk, and hasstandard management recommendations #JACR

Thu Jun 26 9:19:18 PDT 2014

cancergeek RT @heckelme: @RadiologyACR @dustywater Not just former smokers --environmental exposure needs to be addressed, too, esp in Veteran pops. …

Thu Jun 26 9:19:20 PDT 2014

cancergeek RT @ruthcarlosmd: Shared decision making needs to respect pt choice incl aninformed "no"--as long as decision is "informed" @JFreemanDaily…

Thu Jun 26 9:19:33 PDT 2014

radiologyacr MT @ruthcarlosmd Shared decision making needs to respect pt choice incl aninformed "no"--as long as decision is "informed" #jacr

Thu Jun 26 9:19:38 PDT 2014

lungcancerfaces +1000 MT @TimAllenMDJD: Shame again; hate that. Molecular changes cause lungcancer. Not lung ca pts #JACR

Thu Jun 26 9:19:39 PDT 2014

heckelme RT @ruthcarlosmd: Shared decision making needs to respect pt choice incl aninformed "no"--as long as decision is "informed" @JFreemanDaily…

Thu Jun 26 9:19:46 PDT 2014

findlungcancer agree huge awareness challenge think if stop ok RT @dustywater: T1: Many at riskdo not know they are at risk, mostly former smokers. #jacr

Thu Jun 26 9:19:48 PDT 2014

jfreemandaily @ellakaz The fact that LungRADS standardization exists needs to be part of patienteducation. #LCSm #jacr

Thu Jun 26 9:19:52 PDT 2014

ellakaz we have to approach smoking cessation in a non shaming, helpful manner #JACR

Thu Jun 26 9:19:57 PDT 2014

ruthcarlosmd Time for T2: Some lung nodules detected by lung screening are “false positives” (notcancer). What effect would this have on you? #JACR

Thu Jun 26 9:20:08 PDT 2014

nxtstop1 Multi CA Risk MT @JFreemanDaily: T1: Few people choose to attend a lecture resmoking cessation. If they MUST stop smoking b4 won't go #jacr

Thu Jun 26 9:20:08 PDT 2014

lungcancerfaces RT @heckelme: Have you or a loved one been screened for #lungcancer? Pleasecomplete our survey! #JACR #LCSM #patientengagement https://t.c…

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 18/33

Thu Jun 26 9:20:11 PDT 2014

heckelme RT @ellakaz: we have to approach smoking cessation in a non shaming, helpfulmanner #JACR

Thu Jun 26 9:20:12 PDT 2014

timallenmdjd But it's not! @JFreemanDaily: @findlungcancer @ellakaz T1: Some pts may not wantto know if they have lung ca, see it as "hopeless." #jacr

Thu Jun 26 9:20:13 PDT 2014

jacrjournal RT @findlungcancer: AGREE MT @JFreemanDaily: T1: Few people choose to attenda lecture about smoking cessation. If they MUST stop smoking …

Thu Jun 26 9:20:20 PDT 2014

dustywater RT @ellakaz: we have to approach smoking cessation in a non shaming, helpfulmanner #JACR

Thu Jun 26 9:20:27 PDT 2014

coffeemommy YES! Educate & Empower! MT @ruthcarlosmd: Shared decision making needs torespect pt choice incl an informed "no" #jacr

Thu Jun 26 9:20:28 PDT 2014

kristinahoque RT @ruthcarlosmd: Time for T2: Some lung nodules detected by lung screening are“false positives” (not cancer). What effect would this hav…

Thu Jun 26 9:20:40 PDT 2014

heckelme @JFreemanDaily @ellakaz Is ACR working on a patient-friendly translation ofLungRADS to help with education as part of LSPrograms? #jacr

Thu Jun 26 9:20:53 PDT 2014

cancergeek T1: IME message should come from Rads + pulmonologist, w f/u by NP/PA to ensureengagement, adherence, and address anxiety #jacr

Thu Jun 26 9:20:55 PDT 2014

dustywater T2: We do have a lot of false positives with LDCT. But LDCT is best we have to datefor saving lives. #JACR

Thu Jun 26 9:21:03 PDT 2014

heckelme RT @ruthcarlosmd: Time for T2: Some lung nodules detected by lung screening are“false positives” (not cancer). What effect would this hav…

Thu Jun 26 9:21:04 PDT 2014

jfreemandaily @TimAllenMDJD I know lung cancer is not hopeless (I'm a great example), butstudies show many patients feel that way. #lcsm #jacr

Thu Jun 26 9:21:07 PDT 2014

ellakaz DEFINATELY NOT A HOPELESS DIAGNOSIS IF FOUND EARLY which is the point ofscreening - need to educate to this point heavily #JACR

Thu Jun 26 9:21:07 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 19/33

cancergeek RT @ruthcarlosmd: Time for T2: Some lung nodules detected by lung screening are“false positives” (not cancer). What effect would this hav…

Thu Jun 26 9:21:15 PDT 2014

nxtstop1 Yes,Smartest, Kindest Ppl To Do RT @dustywater RT @ellakaz: we have to approachsmoking cessation in a non shaming, helpful manner #JACR

Thu Jun 26 9:21:20 PDT 2014

findlungcancer discussion w/PCP post screen results MT @JFreemanDaily: @ellakaz LungRADSstandardization part of patient education.compare to BiRADS #jacr

Thu Jun 26 9:21:35 PDT 2014

bjh41647 @ruthcarlosmd #jacr biggest issue from all perspectives

Thu Jun 26 9:21:46 PDT 2014

ruthcarlosmd RT @TimAllenMDJD perception=reality. need education. T1: Some pts may not wantto know if they have lung ca, see it as "hopeless." #jacr

Thu Jun 26 9:21:47 PDT 2014

heckelme As with breast cancer screening, the technology and understanding will continue toevolve. False positives will be reduced. #jacr

Thu Jun 26 9:21:48 PDT 2014

dustywater T1: I was told my 5 cm tumor was false positive. But it turned out it was not. Lived totell. #JACR

Thu Jun 26 9:21:49 PDT 2014

coffeemommy +1 Across all cancers: nonshaming helpful manner (diet/exercise) MT @ellakaz:Approach smoking cessation in non shaming helpful manner #JACR

Thu Jun 26 9:21:59 PDT 2014

ellakaz we will have many fewer false positives with LungRADS #JACR

Thu Jun 26 9:22:06 PDT 2014

cancergeek T2: IME it can cause stress; stress can be addressed w good program, process,communication, & resources/tools for community #jacr

Thu Jun 26 9:22:22 PDT 2014

heckelme T2: Is anxiety related to a false positive better than death from a true positive unknownand untreated? #jacr

Thu Jun 26 9:22:23 PDT 2014

nxtstop1 @ellakaz T1 Prognosis totally changes w respect to future new oro pharyngeal andlung cancers for those who continue to smoke~seen it #jacr

Thu Jun 26 9:22:28 PDT 2014

dustywater T2: Understanding there are many false positives BEFORE screening is key. Lesslikely to freak out when a nodule is found. #JACR

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 20/33

Thu Jun 26 9:22:31 PDT 2014

julianguitron T2: Positive fings expected at >40% (80% in histoplasmosis belt) and still provide fullbenefits of LCSP #jacr

Thu Jun 26 9:22:35 PDT 2014

heckelme RT @ellakaz: we will have many fewer false positives with LungRADS #JACR

Thu Jun 26 9:22:38 PDT 2014

heckelme RT @dustywater: T2: Understanding there are many false positives BEFOREscreening is key. Less likely to freak out when a nodule is found. …

Thu Jun 26 9:22:48 PDT 2014

nxtstop1 MT @dustywater T2: Understanding there R many false positives BEFORE screeningis key.Less likely 2 freak out when a nodule is found. #JACR

Thu Jun 26 9:22:56 PDT 2014

heckelme RT @CancerGeek: T2: IME it can cause stress; stress can be addressed w goodprogram, process, communication, & resources/tools for communit…

Thu Jun 26 9:23:01 PDT 2014

findlungcancer focus on big tobacco targeting kids & addictiveness MT @nxtstop1 @dustywater@ellakaz: approach smoking cessation in a non shaming #jacr

Thu Jun 26 9:23:08 PDT 2014

radiologyacr RT @heckelme T2: Is anxiety related to a false positive better than death from a truepositive unknown and untreated? #jacr

Thu Jun 26 9:23:14 PDT 2014

ellakaz agree we MIUST let patients know what to expect BEFORE they get the result, and toknow that most + screens are NOT cancer #JACR

Thu Jun 26 9:23:19 PDT 2014

jacrjournal RT @ellakaz agree we MIUST let patients know what to expect BEFORE they get theresult, and to know that most + screens are NOT cancer #JACR

Thu Jun 26 9:23:26 PDT 2014

timallenmdjd #WhyWeTweet @JFreemanDaily @TimAllenMDJD Know LungCa is not hopeless(I'ma great example)but studies show many pts feel that way #lcsm #jacr

Thu Jun 26 9:23:36 PDT 2014

heckelme RT @ellakaz: agree we MIUST let patients know what to expect BEFORE they get theresult, and to know that most + screens are NOT cancer #JA…

Thu Jun 26 9:23:39 PDT 2014

kristinahoque RT @JACRJournal: RT @ellakaz agree we MIUST let patients know what to expectBEFORE they get the result, and to know that most + screens ar…

Thu Jun 26 9:23:42 PDT 2014

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 21/33

dustywater T1: Best link to learn about LungRADS? #JACR

Thu Jun 26 9:23:47 PDT 2014

lungcancerfaces Not according to MEDCAC... MT @heckelme: T2: Is anxiety related to a false positivebetter than death from a true positive untreated? #jacr

Thu Jun 26 9:23:51 PDT 2014

jfreemandaily T2: I had "atypical cells" on annual PAP Smear, several f/u tests showed it was falsepositive. Some anxiety, not earthshaking. #lcsm #jacr

Thu Jun 26 9:23:51 PDT 2014

findlungcancer T2 false positives need to be put in context; compare to mammo follow-up discuss96% of nodules not cancer #jacr

Thu Jun 26 9:23:57 PDT 2014

timallenmdjd RT @ruthcarlosmd: RT @TimAllenMDJD perception=reality. need education. T1:Some pts may not want to know if they have lung ca, see it as "h…

Thu Jun 26 9:24:02 PDT 2014

julianguitron T2: To patient: "we expect >40% chance of (+) findings and that's why we have a MDCapproach to intervene only when needed" #jacr

Thu Jun 26 9:24:02 PDT 2014

radsdoc82 RT @RadiologyACR: RT @heckelme T2: Is anxiety related to a false positive betterthan death from a true positive unknown and untreated? #ja…

Thu Jun 26 9:24:05 PDT 2014

ellakaz http://t.co/xGtW2g5ao0 #JACR

Thu Jun 26 9:24:09 PDT 2014

jacrjournal @dustywater http://t.co/1gb5McQkxv #jacr

Thu Jun 26 9:24:29 PDT 2014

heckelme #LungRADS #lungscreening http://t.co/NOnnN1u2IZ #jacr

Thu Jun 26 9:24:36 PDT 2014

roguerad @ruthcarlosmd A nodule, a potentially deadly dot that doesn't change. Cause forcelebration is it not? #JACR

Thu Jun 26 9:24:48 PDT 2014

findlungcancer T2 put false positives in context, compare to mammo follow-up, tell folks 96% notcancer #jacr

Thu Jun 26 9:24:48 PDT 2014

timallenmdjd RT @julianguitron: T2: To patient: "we expect >40% chance of (+) findings and that'swhy we have a MDC approach to intervene only when need…

Thu Jun 26 9:24:51 PDT 2014

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cancergeek RT @JFreemanDaily: T2: I had "atypical cells" on annual PAP Smear, several f/u testsshowed it was false positive. Some anxiety, not earths…

Thu Jun 26 9:24:53 PDT 2014

lungcancerfaces T2: I've had biopsies due to several false positives for cancer in various body parts.So happy to have had the chance to KNOW. #jacr

Thu Jun 26 9:25:06 PDT 2014

jfreemandaily T2: Is someone developing standard education materials for lung screening toexplain false positives, LungRads, etc? #lcsm #jacr

Thu Jun 26 9:25:09 PDT 2014

timallenmdjd RT @ellakaz: agree we MIUST let patients know what to expect BEFORE they get theresult, and to know that most + screens are NOT cancer #JA…

Thu Jun 26 9:25:09 PDT 2014

dustywater T2: I had lumpectomy for "false positive" breast nodule. Better than lung cancer. #jacr

Thu Jun 26 9:25:19 PDT 2014

ellakaz google ACR lung cancer screening resources for LungRADS and a lot more #JACR

Thu Jun 26 9:25:24 PDT 2014

nxtstop1 T2 Work up of a solitary nodule >not cancer still can be expensive~ Who pays forthat? Ok U don't have CA =good news but there's this> #jacr

Thu Jun 26 9:25:34 PDT 2014

findlungcancer T2 put false positives in context, compare to mammo, tell folks 96% not cancer #jacr

Thu Jun 26 9:25:36 PDT 2014

ruthcarlosmd Any lingering issues/change in QOL? @JFreemanDaily T2: I had "atypical cells" onPAP, false (+).Some anxiety, not earthshaking. #lcsm #jacr

Thu Jun 26 9:25:38 PDT 2014

heckelme People need to understand how "20% reduced risk of death" from NLST translatesinto actual people--their spouses, friends, family. #jacr

Thu Jun 26 9:25:44 PDT 2014

dustywater RT @heckelme: #LungRADS #lungscreening http://t.co/NOnnN1u2IZ #jacr

Thu Jun 26 9:25:52 PDT 2014

jacrjournal RT @findlungcancer T2 put false positives in context, compare to mammo, tell folks96% not cancer #jacr

Thu Jun 26 9:25:58 PDT 2014

nxtstop1 Oh dear, but Mammo has issues RT @findlungcancer T2 put false positives incontext, compare to mammo, tell folks 96% not cancer #jacr

Thu Jun 26 9:26:06 PDT 2014

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cancergeek T2: Is the fear of a false positive for pts the barrier, or is it the fear of incidentalfindings, lose in f/u, & potential liability? #jacr

Thu Jun 26 9:26:24 PDT 2014

ruthcarlosmd @nxtstop1 Cost of addl work-up covered by insurance + out of pocketcopays/coinsurance #jacr

Thu Jun 26 9:26:40 PDT 2014

roguerad @ruthcarlosmd @JFreemanDaily There is, of course, the paradoxical reassurance ofthe false positive. Sort of like Stockholm Syndrome. #JACR

Thu Jun 26 9:26:50 PDT 2014

heckelme @CancerGeek And cost of true positive finding? #jacr

Thu Jun 26 9:26:54 PDT 2014

julianguitron @nxtstop1 Once (+) findings on LCS insurances do kick in for further managementas any other condition. Issue is INITIAL LDCT #jacr

Thu Jun 26 9:26:57 PDT 2014

findlungcancer mammo fu well know; compare LDCT follow up to mammo; tell folks 96% not cancerMT @ruthcarlosmd: issues/change in QOL? @JFreemanDaily #jacr

Thu Jun 26 9:26:58 PDT 2014

jfreemandaily @ruthcarlosmd False positive caused me 1-2 days anxious waiting. After that, didn'tthink about it. Far easier than LC diagnosis! #jacr

Thu Jun 26 9:27:06 PDT 2014

ellakaz many incidental findings need managing like COPD emphysema and coronary arterydisease - smokers are at risk for these too #JACR

Thu Jun 26 9:27:09 PDT 2014

cancergeek RT @heckelme: @CancerGeek And cost of true positive finding? #jacr

Thu Jun 26 9:27:13 PDT 2014

coffeemommy T2: My only "we're sure it's nothing" experience turned out to be cancer so I don't knowwhat false+ workup/letdown looks like. #jacr

Thu Jun 26 9:27:14 PDT 2014

nxtstop1 @CancerGeek T2 Its the FEAR OF THE PANDORA'S BOX....& SEQUELAE #jacr

Thu Jun 26 9:27:28 PDT 2014

heckelme RT @ellakaz: many incidental findings need managing like COPD emphysema andcoronary artery disease - smokers are at risk for these too #JA…

Thu Jun 26 9:27:30 PDT 2014

dustywater T1: People don;t fear false positive. They fear cancer. #jacr

Thu Jun 26 9:27:32 PDT 2014

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 24/33

cancergeek @JFreemanDaily What additional support could have relieved or helped w anxiety?#jacr

Thu Jun 26 9:27:43 PDT 2014

bjh41647 @CancerGeek #jacr fear of true positives greater than fear of any other result andbiggest obstacle

Thu Jun 26 9:27:48 PDT 2014

cancergeek RT @dustywater: T1: People don;t fear false positive. They fear cancer. #jacr

Thu Jun 26 9:27:51 PDT 2014

coffeemommy A-flipping men! Well said. RT @dustywater: T1: People don;t fear false positive. Theyfear cancer. #jacr

Thu Jun 26 9:27:56 PDT 2014

cancergeek RT @nxtstop1: @CancerGeek T2 Its the FEAR OF THE PANDORA'S BOX....&SEQUELAE #jacr

Thu Jun 26 9:28:00 PDT 2014

heckelme Plus, incidental findings can save lives, too--the unknown Abdominal AorticAneurysm ... #jacr

Thu Jun 26 9:28:02 PDT 2014

julianguitron @heckelme @CancerGeek Like any other condition (huge issues for another chat!)#jacr

Thu Jun 26 9:28:08 PDT 2014

ruthcarlosmd Barriers multifactorial, pt specific. Educ must be tailored MT @CancerGeek: T2: Is thefear of a false (+) for pts the barrier, ? #jacr

Thu Jun 26 9:28:09 PDT 2014

findlungcancer agree compare followup to mammo; tell folks 96% not cancerRT @dustywater: T1:People don;t fear false positive. They fear cancer. #jacr

Thu Jun 26 9:28:10 PDT 2014

heckelme RT @nxtstop1: @CancerGeek T2 Its the FEAR OF THE PANDORA'S BOX....&SEQUELAE #jacr

Thu Jun 26 9:28:12 PDT 2014

nxtstop1 Agree RT @bjh41647 @CancerGeek #jacr fear of true positives greater than fear ofany other result and biggest obstacle

Thu Jun 26 9:28:14 PDT 2014

cancergeek RT @coffeemommy: T2: My only "we're sure it's nothing" experience turned out to becancer so I don't know what false+ workup/letdown looks …

Thu Jun 26 9:28:19 PDT 2014

lungcancerfaces T2: My sister certainly doesn't lose sleep over her 3 nodules. She's glad to have thechance our mother didn't have IF it's LC. #jacr

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Thu Jun 26 9:28:19 PDT 2014

timallenmdjd Big concern that excision of lg no. of benign nodules is unsustainably expensive@nxtstop1: T2 Work up of a solitary nodule >not ca... #jacr

Thu Jun 26 9:28:32 PDT 2014

ruthcarlosmd RT @dustywater: T1: People don;t fear false positive. They fear cancer. #jacr

Thu Jun 26 9:28:48 PDT 2014

geekoncoffee @CancerGeek Do tests have known false positive %s? Indicators of likelihood offalse positive? Honest conversation with patient’d help #jacr

Thu Jun 26 9:28:53 PDT 2014

jfreemandaily @CancerGeek Info about potential false positives and typical follow-up tests wouldhave reduced my anxiety. #jacr

Thu Jun 26 9:28:54 PDT 2014

lungcancerfaces T2: AND the incidental finding of her very early stage emphysema caused her to quitsmoking on the spot. Added benefit. #jacr

Thu Jun 26 9:29:03 PDT 2014

theriskybody RT @dustywater: T1: People don;t fear false positive. They fear cancer. #jacr

Thu Jun 26 9:29:14 PDT 2014

dustywater T2: Screening greatly increases survival. Catch it early and live! Easy choice. #JACR

Thu Jun 26 9:29:26 PDT 2014

heckelme Ongoing work associated with ACR will find accompanying ways to define truth.#DECAMP #jacr

Thu Jun 26 9:29:42 PDT 2014

ellakaz The Lung Cancer Alliance has great resources for patients and family support onlung cancer screening and if have lung cancer #JACR

Thu Jun 26 9:29:45 PDT 2014

findlungcancer NLST & Lahey experience only 2% invasive and benign MT @TimAllenMDJD: concernexcision of of benign nodules expensive @nxtstop1: #jacr

Thu Jun 26 9:29:50 PDT 2014

lungcancerfaces THIS>>> RT @coffeemommy: A-flipping men! Well said. RT @dustywater: T1: Peopledon;t fear false positive. They fear cancer. #jacr

Thu Jun 26 9:29:55 PDT 2014

heckelme RT @ellakaz: The Lung Cancer Alliance has great resources for patients and familysupport on lung cancer screening and if have lung cancer …

Thu Jun 26 9:29:57 PDT 2014

nxtstop1 @TimAllenMDJD T2 You bet it is &the ppl being screened >>it's large copays and

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high deductibles.MDs must look at financial risk to pt. #jacr

Thu Jun 26 9:30:08 PDT 2014

timallenmdjd #realtalk @dustywater: T1: People don;t fear false positive. They fear cancer. #jacr

Thu Jun 26 9:30:10 PDT 2014

ellakaz Lung Cancer Alliance http://t.co/kvQ45bIKKg #JACR

Thu Jun 26 9:30:21 PDT 2014

sts_ctsurgery RT @ellakaz: The Lung Cancer Alliance has great resources for patients and familysupport on lung cancer screening and if have lung cancer …

Thu Jun 26 9:30:48 PDT 2014

findlungcancer RT @TimAllenMDJD: #realtalk @dustywater: T1: People don;t fear false positive.They fear cancer. #jacr

Thu Jun 26 9:30:51 PDT 2014

cancergeek @bjh41647 Is it? IME 2 problems: Pts not understanding pro/con, access info &facility; Hospitals lack process to handle incidentals #jacr

Thu Jun 26 9:30:54 PDT 2014

jfreemandaily T2: One patient told me sister had LDCT due to family history of LC. Thought of it as aroutine test like bone density. No anxiety. #jacr

Thu Jun 26 9:30:56 PDT 2014

cancergeek RT @JFreemanDaily: T2: One patient told me sister had LDCT due to family history ofLC. Thought of it as a routine test like bone density. …

Thu Jun 26 9:31:19 PDT 2014

heckelme RT @JFreemanDaily: T2: One patient told me sister had LDCT due to family history ofLC. Thought of it as a routine test like bone density. …

Thu Jun 26 9:31:30 PDT 2014

geekoncoffee @JFreemanDaily @CancerGeek I’d take honest information& compassion aboutworst case over hesitation about sharing from doctor any day #jacr

Thu Jun 26 9:31:32 PDT 2014

ellakaz CANCER KILLS...FALSE POSITIVES ONLY NEED TO BE MANAGED (nost with oneadditional chest CT before the next annual screening CT) #JACR

Thu Jun 26 9:31:37 PDT 2014

cancergeek RT @dustywater: T2: Screening greatly increases survival. Catch it early and live!Easy choice. #JACR

Thu Jun 26 9:31:40 PDT 2014

nxtstop1 @JFreemanDaily T2 Well, but oh dear ~ the study was NOT explained to the patient.What if multiple findings? #jacr

Thu Jun 26 9:31:52 PDT 2014

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 27/33

montefiorenyc Our high-risk #lungcancer screening uses low-dose CT scans to detect lung #cancerat its most treatable stage. http://t.co/QQJViDfbu4 #JACR

Thu Jun 26 9:31:54 PDT 2014

cancergeek RT @GeekOnCoffee: @JFreemanDaily @CancerGeek I’d take honest information&compassion about worst case over hesitation about sharing from do…

Thu Jun 26 9:31:57 PDT 2014

kristinahoque RT @GeekOnCoffee: @JFreemanDaily @CancerGeek I’d take honest information&compassion about worst case over hesitation about sharing from do…

Thu Jun 26 9:32:03 PDT 2014

heckelme @JFreemanDaily Shows importance of reducing stigma around smoking as a RISKFACTOR, not a judgment or something to make shameful. #jacr

Thu Jun 26 9:32:14 PDT 2014

jfreemandaily American Lung Association @LungAssociation is also strong supporter of lungscreening. #lcsm #jacr

Thu Jun 26 9:32:19 PDT 2014

ruthcarlosmd RT @GeekOnCoffee: @JFreemanDaily @CancerGeek I’d take honest information&compassion about worst case over hesitation about sharing from do…

Thu Jun 26 9:32:20 PDT 2014

coffeemommy RT @GeekOnCoffee: @JFreemanDaily @CancerGeek I’d take honest information&compassion about worst case over hesitation about sharing from do…

Thu Jun 26 9:32:22 PDT 2014

findlungcancer T2 people w/lung cancer experience welcome screening/understand LC lowsurvivability Others we need to educate -- PCP's need to help #jacr

Thu Jun 26 9:32:24 PDT 2014

heckelme RT @GeekOnCoffee: @JFreemanDaily @CancerGeek I’d take honest information&compassion about worst case over hesitation about sharing from do…

Thu Jun 26 9:32:31 PDT 2014

jacrjournal RT @heckelme @JFreemanDaily Shows importance of reducing stigma aroundsmoking as a RISK FACTOR, not a judgment. #jacr

Thu Jun 26 9:32:34 PDT 2014

nxtstop1 MT @heckelme @JFreemanDaily Shows importance of reducing stigma @ smokingas a RISK FACTOR, not a judgment or issue to make shameful. #jacr

Thu Jun 26 9:32:45 PDT 2014

kristinahoque @ellakaz careful- false positives can lead to invasive procedures with their owninherent risks #JACR

Thu Jun 26 9:32:54 PDT 2014

THIS! MT @heckelme: @JFreemanDaily Shows importance of reducing stigma

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 28/33

coffeemommy around smoking as a RISK FACTOR, not a judgment or shameful. #jacr

Thu Jun 26 9:32:59 PDT 2014

findlungcancer Patients trust PCP, right discussion will frame screening & help with uptake andrescreen compliance and smoking cessation #jacr

Thu Jun 26 9:33:23 PDT 2014

timallenmdjd But MDs poorly prepared to do that. Like molecular-based therapy. @nxtstop1:@TimAllenMDJD T2 You bet it is &the ppl being screened... #jacr

Thu Jun 26 9:33:28 PDT 2014

jfreemandaily @nxtstop1 Screening was explained. Her sister was diagnosed with stage IV LC,and she was a heavy smoker. Just not anxious about it. #jacr

Thu Jun 26 9:33:30 PDT 2014

ellakaz MOST (+) screened patients should never end up with an invasive procedure,generally only 2-4% max JACR #JACR

Thu Jun 26 9:33:38 PDT 2014

nxtstop1 @JFreemanDaily T2 Agree. #jacr

Thu Jun 26 9:33:45 PDT 2014

cancergeek @GeekOnCoffee I have a startup idea for you & the other people I met in GB toaddress topic being discussed. Let's follow up. #jacr

Thu Jun 26 9:33:57 PDT 2014

heckelme Interested in continuing the conversation? Please complete our survey! #JACR#LCSM #patientengagement https://t.co/vIBRqnCspU #jacr

Thu Jun 26 9:33:58 PDT 2014

cancergeek RT @heckelme: Interested in continuing the conversation? Please complete oursurvey! #JACR #LCSM #patientengagement https://t.co/vIBRqnCspU…

Thu Jun 26 9:34:23 PDT 2014

ellakaz If your PCP offered you a lung cancer screening what would you want the to tell ouabout the test #JACR

Thu Jun 26 9:34:32 PDT 2014

cancergeek RT @KristinaHoque: @ellakaz careful- false positives can lead to invasiveprocedures with their own inherent risks #JACR

Thu Jun 26 9:34:45 PDT 2014

nxtstop1 @JFreemanDaily T2 Thanks so much for telling me. Really glad. So terrible whenpatients are blindsighted (albeit well-meaningly) #jacr

Thu Jun 26 9:34:46 PDT 2014

ruthcarlosmd Time for T3:: Lung screening might detect other conditions (e.g., thyroid and heart)needing more tests. What concerns you about this? #JACR

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Thu Jun 26 9:35:02 PDT 2014

nxtstop1 YES RT @CancerGeek RT @KristinaHoque: @ellakaz careful- false positives canlead to invasive procedures with their own inherent risks #JACR

Thu Jun 26 9:35:07 PDT 2014

ihbercha RT @RadiologyACR: RT @heckelme T2: Is anxiety related to a false positive betterthan death from a true positive unknown and untreated? #ja…

Thu Jun 26 9:35:18 PDT 2014

roguerad @nxtstop1 @heckelme @JFreemanDaily Smokers don't have a lobby in DC. #JACR

Thu Jun 26 9:35:20 PDT 2014

fhrttnklc RT @KristinaHoque: @ellakaz careful- false positives can lead to invasiveprocedures with their own inherent risks #JACR

Thu Jun 26 9:35:31 PDT 2014

lungcancerfaces RT @ruthcarlosmd: Time for T3:: Lung screening might detect other conditions (e.g.,thyroid and heart) needing more tests. What concerns yo…

Thu Jun 26 9:35:36 PDT 2014

heckelme Without PCP support of lung screening, it must be the empowered patient who asksfor screening. #patientsfirst #jacr

Thu Jun 26 9:35:37 PDT 2014

cancergeek T2: People want to be communicated, kept in the loop, easy to understand, andtimely updates. Tough for MD's to articulate simply #jacr

Thu Jun 26 9:35:42 PDT 2014

dustywater T3: It’s a benefit. Lung cancer screening detects other health issues. It reducesdeaths from lung cancer PLUS other health issues. #JACR

Thu Jun 26 9:35:48 PDT 2014

radsdoc82 RT @RogueRad: @ruthcarlosmd @JFreemanDaily There is, of course, theparadoxical reassurance of the false positive. Sort of like Stockholm S…

Thu Jun 26 9:35:49 PDT 2014

cancergeek RT @ruthcarlosmd: Time for T3:: Lung screening might detect other conditions (e.g.,thyroid and heart) needing more tests. What concerns yo…

Thu Jun 26 9:35:52 PDT 2014

ruthcarlosmd RT @heckelme: Without PCP support of lung screening, it must be the empoweredpatient who asks for screening. #patientsfirst #jacr

Thu Jun 26 9:35:54 PDT 2014

heckelme RT @ruthcarlosmd: Time for T3:: Lung screening might detect other conditions (e.g.,thyroid and heart) needing more tests. What concerns yo…

Thu Jun 26 9:35:56 PDT 2014

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ihbercha RT @RadiologyACR: MT @ruthcarlosmd Shared decision making needs to respectpt choice incl an informed "no"--as long as decision is "informe…

Thu Jun 26 9:35:59 PDT 2014

cancergeek RT @RogueRad: @ruthcarlosmd @JFreemanDaily There is, of course, theparadoxical reassurance of the false positive. Sort of like Stockholm S…

Thu Jun 26 9:36:02 PDT 2014

radiologyacr RT @heckelme Without PCP support of lung screening, it must be the empoweredpatient who asks for screening. #patientsfirst #jacr

Thu Jun 26 9:36:02 PDT 2014

ihbercha RT @RadiologyACR: RT @dustywater T1: Many at risk do not know they are at risk,mostly former smokers. #jacr

Thu Jun 26 9:36:09 PDT 2014

timallenmdjd 9 of10 smokers don't develop lung ca @heckelme: @JFreemanDaily Showsimportance of reducing stigma around smoking as a RISK FACTOR... #jacr

Thu Jun 26 9:36:13 PDT 2014

dustywater RT @ruthcarlosmd: Time for T3:: Lung screening might detect other conditions (e.g.,thyroid and heart) needing more tests. What concerns yo…

Thu Jun 26 9:36:23 PDT 2014

lungcancerfaces T3: Why should it be a concern? Will show other issues that may have to beaddressed. No downside. #jacr

Thu Jun 26 9:36:26 PDT 2014

findlungcancer yes but experience says not many invasive w/benign nodules - 2%MT@nxtstop1:@CancerGeek RT @KristinaHoque: @ellakaz risk of invasive #jacr

Thu Jun 26 9:36:48 PDT 2014

coffeemommy If looking for A but find B & B gets tx needed, still WIN health wise MT @ruthcarlosmd:T3: Lung screening may detect other conditions #jacr

Thu Jun 26 9:36:49 PDT 2014

geekoncoffee @ruthcarlosmd @CancerGeek T3: Detecting real issues is ALWAYS a good thing;screener just needs to be prepared to properly inform #JACR

Thu Jun 26 9:36:54 PDT 2014

bjh41647 @dustywater #JACR too simple. Usually what is found is unimportant. Stilldownstream risk and cost

Thu Jun 26 9:37:07 PDT 2014

jfreemandaily T3: One of my f/u CTs for #lungcancer detected thyroid nodules. Started to panic, untildoc explained how common they were. #LCSM #jacr

Thu Jun 26 9:37:07 PDT 2014

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heckelme T3: May lead to additional cost or work-up, potentially around issues already knownand being followed. More needs to be understood. #jacr

Thu Jun 26 9:37:13 PDT 2014

timallenmdjd RT @RadiologyACR: RT @heckelme Without PCP support of lung screening, it mustbe the empowered patient who asks for screening. #patientsfir…

Thu Jun 26 9:37:22 PDT 2014

findlungcancer key fact for reducing stigma MT @TimAllenMDJD: 9 of10 smokers don't develop lungca @heckelme: @JFreemanDaily #jacr

Thu Jun 26 9:37:25 PDT 2014

ruthcarlosmd CA scare=more compliant pt? MT @RogueRad:@JFreemanDaily paradoxicalreassurance of the false (+). Sort of like Stockholm Syndrome. #JACR

Thu Jun 26 9:37:25 PDT 2014

cancergeek T3: Perhaps we need to rebrand lung screening to "Check under the hood" let's takea look inside & see what may be wrong #jacr

Thu Jun 26 9:37:29 PDT 2014

heckelme RT @ruthcarlosmd: CA scare=more compliant pt? MT@RogueRad:@JFreemanDaily paradoxical reassurance of the false (+). Sort of likeStockholm …

Thu Jun 26 9:37:37 PDT 2014

lungcancerfaces Genetics RT @TimAllenMDJD: 9 of10 smokers don't develop lung cancer #LCSM#jacr

Thu Jun 26 9:37:43 PDT 2014

ellakaz ACR is also working on guidelines for incidental findings to help standardizemanagement and explaining them #JACR

Thu Jun 26 9:38:00 PDT 2014

nxtstop1 MT @CancerGeek T3: Perhaps we need 2 rebrand lung screening to "Check underthe hood" let's take a look inside & see what may be wrong #jacr

Thu Jun 26 9:38:02 PDT 2014

heckelme @CancerGeek Or as "chest screening" and not just the lungs. Like Chest X-Ray.#jacr

Thu Jun 26 9:38:06 PDT 2014

heckelme RT @CancerGeek: T3: Perhaps we need to rebrand lung screening to "Check underthe hood" let's take a look inside & see what may be wrong #j…

Thu Jun 26 9:38:17 PDT 2014

cancergeek RT @heckelme: @CancerGeek Or as "chest screening" and not just the lungs. LikeChest X-Ray. #jacr

Thu Jun 26 9:38:22 PDT 2014

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 32/33

kristinahoque RT @ellakaz: ACR is also working on guidelines for incidental findings to helpstandardize management and explaining them #JACR

Thu Jun 26 9:38:30 PDT 2014

bjh41647 @heckelme #jacr future research focus on determining biological aggressiveness isthe key

Thu Jun 26 9:38:31 PDT 2014

lungcancerfaces Good idea. RT @heckelme: @CancerGeek Or as "chest screening" and not just thelungs. Like Chest X-Ray. #jacr

Thu Jun 26 9:38:35 PDT 2014

heckelme RT @ellakaz: ACR is also working on guidelines for incidental findings to helpstandardize management and explaining them #JACR

Thu Jun 26 9:38:38 PDT 2014

findlungcancer T3 upfront PCP discussions need to include possibility of incidental findings as agood thing #jacr

Thu Jun 26 9:38:55 PDT 2014

timallenmdjd #NoShame #NoGuilt @LungCancerFaces: Genetics RT @TimAllenMDJD: 9 of10smokers don't develop lung cancer #LCSM #jacr

Thu Jun 26 9:38:55 PDT 2014

jfreemandaily T3: Rebranding LDCT as something light-hearted might imply EVERYONE should bescreened. Leads to unnecessary tests for low risk pts. #jacr

Thu Jun 26 9:39:22 PDT 2014

lungcancerfaces @JFreemanDaily I can attest to that... #jacr

Thu Jun 26 9:39:24 PDT 2014

nxtstop1 @CancerGeek T3 What people are frightened of ~ already know by now that studiesreveal way more info than "inquired"~Then what to do? #jacr

Thu Jun 26 9:39:40 PDT 2014

lungcancerfaces YES RT @TimAllenMDJD: #NoShame #NoGuilt @LungCancerFaces: Genetics RT@TimAllenMDJD: 9 of10 smokers don't develop lung cancer #LCSM #jacr

Thu Jun 26 9:39:40 PDT 2014

ruthcarlosmd Package w/ a "latte while you wait" to destigmatize. MT @CancerGeek: T3: Perhapsrebrand lung screening to "Check under the hood" #jacr

Thu Jun 26 9:39:40 PDT 2014

heckelme @bjh41647 Amen. Ongoing within our own offices, Dr. Hillman. --> future researchfocus determining biological aggressiveness the key #jacr

Thu Jun 26 9:39:42 PDT 2014

radsdoc82 T3: Need resources like ACR white paper for incidental findings to help manage.Then we need to track data for outcomes. #JACR

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 33/33

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Thu Jun 26 9:39:44 PDT 2014

bjh41647 @nxtstop1 #JACR need to keep the idea of screening not "what is wrong"

Thu Jun 26 9:39:47 PDT 2014

findlungcancer this is key MT @ellakaz: ACR is also working on guidelines for incidental findings tohelp standardize management and explaining them #JACR

Thu Jun 26 9:39:51 PDT 2014

geekoncoffee @heckelme @CancerGeek As a patient I expect any test done might revealsomething that wasn’t what the test was expecting to find #jacr

Thu Jun 26 9:39:52 PDT 2014

cancergeek RT @nxtstop1: @CancerGeek T3 What people are frightened of ~ already know bynow that studies reveal way more info than "inquired"~Then wha…

Thu Jun 26 9:39:55 PDT 2014

timallenmdjd 2d that. Must differentiate bad actors @bjh41647: @heckelme #jacr future researchfocus on determining biological aggressiveness is the key

Thu Jun 26 9:40:00 PDT 2014

lungcancerfaces RT @findlungcancer: this is key MT @ellakaz: ACR is also working on guidelines forincidental findings to help standardize management and e…

Thu Jun 26 9:40:00 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 1/21

#JACR transcript

Healthcare Social Media Transcript

From: Thu Jun 26 9:00:00 PDT 2014

To: Thu Jun 26 10:30:00 PDT 2014

change time period

What is #JACR? Who were the influencers during this time period? #JACR analytics

Healthcare Conference - Healthcare Tweet Chats - Healthcare Analytics

cancergeek RT @GeekOnCoffee: @heckelme @CancerGeek As a patient I expect any test donemight reveal something that wasn’t what the test was expecting …

Thu Jun 26 9:40:07 PDT 2014

coffeemommy Yes @CancerGeek! If LC screening were included as part of routine for high risk, itwould be just part of 'check under the hood' appt #jacr

Thu Jun 26 9:40:12 PDT 2014

heckelme RT @GeekOnCoffee: @heckelme @CancerGeek As a patient I expect any test donemight reveal something that wasn’t what the test was expecting …

Thu Jun 26 9:40:17 PDT 2014

dustywater RT @LungCancerFaces: Good idea. RT @heckelme: @CancerGeek Or as "chestscreening" and not just the lungs. Like Chest X-Ray. #jacr

Thu Jun 26 9:40:29 PDT 2014

cancergeek RT @Radsdoc82: T3: Need resources like ACR white paper for incidental findings tohelp manage. Then we need to track data for outcomes. #…

Thu Jun 26 9:40:30 PDT 2014

ellakaz looking at biomarkers (blood, breath, sputum etc) coupled with CT findings mayreduce false positives even more in the future #JACR

Thu Jun 26 9:40:33 PDT 2014

kristinahoque RT @Radsdoc82: T3: Need resources like ACR white paper for incidental findings to

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 2/21

help manage. Then we need to track data for outcomes. #…

Thu Jun 26 9:40:36 PDT 2014

wesleywilson hey all, just saw this tag #JACR , what does it stand for?

Thu Jun 26 9:40:39 PDT 2014

ruthcarlosmd RT @Radsdoc82: T3: Need resources like ACR white paper for incidental findings tohelp manage. Then we need to track data for outcomes. #…

Thu Jun 26 9:40:46 PDT 2014

cancergeek RT @JFreemanDaily: T3: Rebranding LDCT as something light-hearted might implyEVERYONE should be screened. Leads to unnecessary tests for l…

Thu Jun 26 9:40:47 PDT 2014

timallenmdjd RT @bjh41647: @nxtstop1 #JACR need to keep the idea of screening not "what iswrong"

Thu Jun 26 9:40:55 PDT 2014

nxtstop1 @bjh41647 T3 Yes, I agree . I was thinking that @cancergeek was being fascetious(sp)~ Targeted screening if there is such a thing~ #jacr

Thu Jun 26 9:41:00 PDT 2014

heckelme Journal of the American College of Radiology #jacr

Thu Jun 26 9:41:03 PDT 2014

lungcancerfaces RT @ellakaz: looking at biomarkers (blood, breath, sputum etc) coupled with CTfindings may reduce false positives even more in the future …

Thu Jun 26 9:41:04 PDT 2014

jacrjournal @WesleyWilson Hi there. It's a health care tweet chat. Today we're talking about lungcancer screening. #jacr

Thu Jun 26 9:41:14 PDT 2014

ruthcarlosmd Journal of the American College of Radiology RT @WesleyWilson: hey all, just sawthis tag #JACR , what does it stand for?

Thu Jun 26 9:41:14 PDT 2014

findlungcancer T3 incidental findings happen on other screening. #LDCT is being singled out. Needto compare to others in PCP patient discussion #jacr

Thu Jun 26 9:41:17 PDT 2014

jfreemandaily @ellakaz Hope some of the #lungcancer blood and breath tests will gain acceptancesoon and be used with LDCT. #jacr

Thu Jun 26 9:41:27 PDT 2014

cancergeek T3: @ellakaz As ACR builds out the methodology for communication, are theybuilding the voice of the patient into it? #jacr

Thu Jun 26 9:41:27 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 3/21

coffeemommy Journal of the American College of Radiology (join in!) RT @WesleyWilson: hey all,just saw this tag #JACR , what does it stand for?

Thu Jun 26 9:41:34 PDT 2014

cancergeek RT @JACRJournal: @WesleyWilson Hi there. It's a health care tweet chat. Todaywe're talking about lung cancer screening. #jacr

Thu Jun 26 9:41:41 PDT 2014

nxtstop1 Oh YES RT @JFreemanDaily @ellakaz Hope some of the #lungcancer blood andbreath tests will gain acceptance soon and be used with LDCT. #jacr

Thu Jun 26 9:41:58 PDT 2014

jeamessailor @ruthcarlosmd @heckelme T3 Other findings from lung cancer screeningsintroduce other concerns about treatment; especially for rural #JACR

Thu Jun 26 9:41:59 PDT 2014

jfreemandaily Having LDCT that finds nodules coupled with blood test that says "NOT cancer"would be wonderful! #lcsm #jacr

Thu Jun 26 9:42:00 PDT 2014

heckelme @ellakaz Ongoing in league with ACR re: blood/sputum/bronchoscopy: DECAMPConsortium #jacr

Thu Jun 26 9:42:03 PDT 2014

julianguitron Please remember: LCS is a PROCESS not a simple TEST #jacr

Thu Jun 26 9:42:14 PDT 2014

heckelme RT @JeamesSailor: @ruthcarlosmd @heckelme T3 Other findings from lung cancerscreenings introduce other concerns about treatment; especiall…

Thu Jun 26 9:42:16 PDT 2014

findlungcancer MT @CancerGeek: T3: @ellakaz As ACR builds out the methodology 4communication, are they building the voice of the patient into it? #jacr

Thu Jun 26 9:42:19 PDT 2014

heckelme RT @julianguitron: Please remember: LCS is a PROCESS not a simple TEST #jacr

Thu Jun 26 9:42:26 PDT 2014

timallenmdjd Circulating tumor cell biomarkers show promise @ellakaz: looking at biomarkers(blood, breath, sputum etc) coupled with CT findings... #JACR

Thu Jun 26 9:42:32 PDT 2014

dustywater RT @julianguitron: Please remember: LCS is a PROCESS not a simple TEST #jacr

Thu Jun 26 9:42:38 PDT 2014

cancergeek @nxtstop1 Isn't it about explanations upfront, during, and post w continued touches?#jacr

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 4/21

Thu Jun 26 9:42:49 PDT 2014

jfreemandaily @CancerGeek Funny you should ask ... #jacr

Thu Jun 26 9:42:53 PDT 2014

cancergeek MT *1M @julianguitron: Please remember: LCS is a PROCESS not a simple TEST#jacr

Thu Jun 26 9:43:07 PDT 2014

ellakaz @julianguitron VERY KEY lung cancer screening is indeed a process withmanagement before and after, not just a CT test in isolation #JACR

Thu Jun 26 9:43:15 PDT 2014

cancergeek RT @JFreemanDaily: @CancerGeek Funny you should ask ... #jacr

Thu Jun 26 9:43:16 PDT 2014

findlungcancer yes continuum of care inc smoking cessation, fu 4 findings and repeat annual screenMT @julianguitron: remember: LCS is a PROCESS #jacr

Thu Jun 26 9:43:25 PDT 2014

coffeemommy Side question: Anyone know where research is on the efficacy of CTC (circulatingtumor cells) as a screening tool for LC? #jacr

Thu Jun 26 9:43:36 PDT 2014

nxtstop1 4 + About That~ RT @CancerGeek @nxtstop1 Isn't it about explanations upfront,during, and post w continued touches? #jacr

Thu Jun 26 9:43:40 PDT 2014

cancergeek @JFreemanDaily Irony!! #jacr

Thu Jun 26 9:43:44 PDT 2014

heckelme RT @CancerGeek: @nxtstop1 Isn't it about explanations upfront, during, and post wcontinued touches? #jacr

Thu Jun 26 9:43:46 PDT 2014

jeamessailor @CancerGeek @heckelme T3 "checking under the hood" also means DRs havediscretion about what news to tell patients #patientengagement #JACR

Thu Jun 26 9:43:52 PDT 2014

montefiorenyc The high-risk #lungcancer screening program we offer here allows for the opportunityto capture lung #cancer at an early stage. #JACR

Thu Jun 26 9:43:59 PDT 2014

findlungcancer RT @nxtstop1: 4 + About That~ RT @CancerGeek @nxtstop1 Isn't it aboutexplanations upfront, during, and post w continued touches? #jacr

Thu Jun 26 9:44:01 PDT 2014

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 5/21

kristinahoque RT @ellakaz: @julianguitron VERY KEY lung cancer screening is indeed a processwith management before and after, not just a CT test in isol…

Thu Jun 26 9:44:11 PDT 2014

findlungcancer tRT @nxtstop1: 4 + About That~ RT @CancerGeek @nxtstop1 Isn't it aboutexplanations upfront, during, and post w continued touches? #jacr

Thu Jun 26 9:44:13 PDT 2014

ellakaz @CancerGeek YES - Lung Cancer Alliance is a great partner for us in the voice of thepatient #JACR

Thu Jun 26 9:44:26 PDT 2014

coffeemommy RT @nxtstop1: 4 + About That~ RT @CancerGeek @nxtstop1 Isn't it aboutexplanations upfront, during, and post w continued touches? #jacr

Thu Jun 26 9:44:36 PDT 2014

heckelme RT @MontefioreNYC: The high-risk #lungcancer screening program we offer hereallows for the opportunity to capture lung #cancer at an early…

Thu Jun 26 9:44:37 PDT 2014

timallenmdjd Must make sure pt isn't given the results and abandoned @ellakaz: @julianguitronVERY KEY lung cancer screening is indeed a process... #JACR

Thu Jun 26 9:44:58 PDT 2014

ruthcarlosmd Time for T4: What aspects of lung screening benefits and harms are difficult tounderstand? How might understanding be improved? #JACR

Thu Jun 26 9:45:05 PDT 2014

jeamessailor @GeekOnCoffee @heckelme @CancerGeek Just ensure all "new" findings areexplained fully. #patienteducation #JACR #patientengagement

Thu Jun 26 9:45:07 PDT 2014

lungcancerfaces RT @TimAllenMDJD: Must make sure pt isn't given the results and abandoned@ellakaz: @julianguitron VERY KEY lung cancer screening is indeed…

Thu Jun 26 9:45:16 PDT 2014

coffeemommy RT @TimAllenMDJD: Must make sure pt isn't given the results and abandoned@ellakaz: @julianguitron VERY KEY lung cancer screening is indeed…

Thu Jun 26 9:45:17 PDT 2014

julianguitron RT @TimAllenMDJD: Must make sure pt isn't given the results and abandoned@ellakaz: @julianguitron VERY KEY lung cancer screening is indeed…

Thu Jun 26 9:45:21 PDT 2014

geekoncoffee RT @JeamesSailor: @GeekOnCoffee @heckelme @CancerGeek Just ensure all"new" findings are explained fully. #patienteducation #JACR #patiente…

Thu Jun 26 9:45:24 PDT 2014

heckelme RT @TimAllenMDJD: Must make sure pt isn't given the results and abandoned

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 6/21

@ellakaz: @julianguitron VERY KEY lung cancer screening is indeed…

Thu Jun 26 9:45:24 PDT 2014

lungcancerfaces RT @ruthcarlosmd: Time for T4: What aspects of lung screening benefits and harmsare difficult to understand? How might understanding be im…

Thu Jun 26 9:45:30 PDT 2014

dustywater T4: Screening has its limits but it works for many. Uninformed people stop criticizingLDCT because it doesn’t include never smokers. #JACR

Thu Jun 26 9:45:33 PDT 2014

cancergeek @JeamesSailor I nicely disagree. Expectation should be set by pt that I am coming toMD to do this exam. Info/data/report are pts. #jacr

Thu Jun 26 9:45:34 PDT 2014

ellakaz @JeamesSailor @GeekOnCoffee @heckelme @CancerGeek agree, a must do#JACR

Thu Jun 26 9:45:37 PDT 2014

jfreemandaily @coffeemommy CTC LC tests are in development, but not early detection--can onlydetect after tumor is shedding cells to metastatsize. #jacr

Thu Jun 26 9:45:48 PDT 2014

cancergeek RT @ruthcarlosmd: Time for T4: What aspects of lung screening benefits and harmsare difficult to understand? How might understanding be im…

Thu Jun 26 9:45:55 PDT 2014

findlungcancer need PCP buy-in & multdiscp team fu MT @TimAllenMDJD: make sure pt isn't giventhe results and abandoned @ellakaz: @julianguitron #jacr

Thu Jun 26 9:45:55 PDT 2014

dustywater T4: Let’s celebrate what we have and press on to discover a way to screenEVERYONE. #JACR

Thu Jun 26 9:45:56 PDT 2014

coffeemommy TY! MT @JFreemanDaily: @coffeemommy CTC LC tests are in development, --canonly detect after tumor is shedding cells to metastatsize. #jacr

Thu Jun 26 9:46:17 PDT 2014

heckelme RT @ruthcarlosmd: Time for T4: What aspects of lung screening benefits and harmsare difficult to understand? How might understanding be im…

Thu Jun 26 9:46:17 PDT 2014

timallenmdjd Research ongoing. Not there yet. @coffeemommy Where research is on the efficacyof CTC (circ tumor cells) as a screening tool for LC? #jacr

Thu Jun 26 9:46:19 PDT 2014

heckelme RT @findlungcancer: need PCP buy-in & multdiscp team fu MT @TimAllenMDJD:make sure pt isn't given the results and abandoned @ellakaz: @jul…

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 7/21

Thu Jun 26 9:46:27 PDT 2014

dustywater RT @ruthcarlosmd: Time for T4: What aspects of lung screening benefits and harmsare difficult to understand? How might understanding be im…

Thu Jun 26 9:46:34 PDT 2014

heckelme RT @dustywater: T4: Let’s celebrate what we have and press on to discover a way toscreen EVERYONE. #JACR

Thu Jun 26 9:46:36 PDT 2014

ellakaz @CancerGeek @JeamesSailor SHARED decision making means patient andprovider come to a health care discussion with different info #JACR

Thu Jun 26 9:46:46 PDT 2014

findlungcancer T4 several month delay for some fu re-imaging vs mammo #jacr

Thu Jun 26 9:46:56 PDT 2014

nxtstop1 MT @TimAllenMDJD Research ongoing. Not there yet. @coffeemommy Research reefficacy of CTC (circ tumor cells) as screening tool 4 LC? #jacr

Thu Jun 26 9:47:14 PDT 2014

findlungcancer T4 importance of annual screening, not just once and done #jacr

Thu Jun 26 9:47:30 PDT 2014

coffeemommy TY, love prospect of minimally invasive screening for all cancers... MT@TimAllenMDJD: Research ongoing. Not there yet. #jacr

Thu Jun 26 9:47:35 PDT 2014

cancergeek LDCT results should be complimented w additional f/u's. Like NP/PA atCVS/Walgreens/Walmart. Call plans. Community resources. #jacr

Thu Jun 26 9:47:48 PDT 2014

nxtstop1 MT @findlungcancer T4 importance of annual screening, not just once and done#jacr

Thu Jun 26 9:47:50 PDT 2014

dustywater RT @findlungcancer: T4 importance of annual screening, not just once and done#jacr

Thu Jun 26 9:47:59 PDT 2014

coffeemommy RT @findlungcancer: T4 importance of annual screening, not just once and done#jacr

Thu Jun 26 9:48:25 PDT 2014

cancergeek CT: I would recommend that screening is not just a process associated with ahospital. Its a community program. Extension = success #jacr

Thu Jun 26 9:48:35 PDT 2014

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 8/21

ruthcarlosmd RT @CancerGeek: LDCT results should be complimented w additional f/u's. LikeNP/PA at CVS/Walgreens/Walmart. Call plans. Community resource…

Thu Jun 26 9:48:36 PDT 2014

ellakaz @findlungcancer agree - CT lung ca screening is not one CT and done...it's annualCT screening that has been shown to reduce death #JACR

Thu Jun 26 9:48:44 PDT 2014

lungcancerfaces Can't be overstated. Have to counter human nature. RT @findlungcancer: T4importance of annual screening, not just once and done #jacr

Thu Jun 26 9:48:45 PDT 2014

bjh41647 @coffeemommy @TimAllenMDJD #JACR great idea but only with great care. Alreadyan era of false hope with whole body CT

Thu Jun 26 9:48:54 PDT 2014

heckelme T4: Continuum of care; clear, person-appropriate education; again, PCP buy-in tohelp coordinate care ... #jacr

Thu Jun 26 9:48:56 PDT 2014

heckelme RT @LungCancerFaces: Can't be overstated. Have to counter human nature. RT@findlungcancer: T4 importance of annual screening, not just onc…

Thu Jun 26 9:49:04 PDT 2014

ellakaz @CancerGeek screening is a PUBLIC health tool...engaging communities isimportant #JACR

Thu Jun 26 9:49:35 PDT 2014

heckelme RT @ellakaz: @CancerGeek screening is a PUBLIC health tool...engagingcommunities is important #JACR

Thu Jun 26 9:49:45 PDT 2014

nxtstop1 @CancerGeek CT Agree But just today ~ articles about massive cuts to CommunityHealth Programs being considered by the US House~ #jacr

Thu Jun 26 9:49:49 PDT 2014

jfreemandaily T4: Public needs to understand LDCT is for those at high-risk, and we don't knowmany risk factors yet except age and smoking. #jacr

Thu Jun 26 9:49:51 PDT 2014

findlungcancer T4 many concerns QOL & anxiety; IMO higher anxiety worrying about having LC; tried2 get husband screened 1/11 no go diagnosed 10/11 #jacr

Thu Jun 26 9:50:00 PDT 2014

heckelme AMEN! --> @ellakaz @CancerGeek screening is a PUBLIC health tool...engagingcommunities is important #JACR #jacr

Thu Jun 26 9:50:10 PDT 2014

cancergeek @heckelme Is the PCP the "right" person in the care team to do this? Are they the

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http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&ssec… 9/21

best manned to do coordination? #jacr

Thu Jun 26 9:50:24 PDT 2014

heckelme RT @nxtstop1: @CancerGeek CT Agree But just today ~ articles about massive cutsto Community Health Programs being considered by the US Hou…

Thu Jun 26 9:50:33 PDT 2014

dustywater RT @heckelme: AMEN! --> @ellakaz @CancerGeek screening is a PUBLIC healthtool...engaging communities is important #JACR #jacr

Thu Jun 26 9:50:41 PDT 2014

heckelme Cuts to community health center programs are already a reality in the NCI reseachprogram. #jacr

Thu Jun 26 9:50:58 PDT 2014

ellakaz @JFreemanDaily while USPSTF recommends screening older high riskcurrent/former smokers there are others at risk for LC too #JACR

Thu Jun 26 9:50:59 PDT 2014

heckelme RT @CancerGeek: @heckelme Is the PCP the "right" person in the care team to dothis? Are they the best manned to do coordination? #jacr

Thu Jun 26 9:51:13 PDT 2014

findlungcancer T4 shout if from the rooftops early diagnosis = good chance cure; get screened hugebenefit #jacr

Thu Jun 26 9:51:13 PDT 2014

jfreemandaily T4: Patients eligible for screening need to know they won't be lectured aboutsmoking, and what follow-up may be required. #jacr

Thu Jun 26 9:51:15 PDT 2014

ruthcarlosmd RT @JFreemanDaily: T4: Patients eligible for screening need to know they won't belectured about smoking, and what follow-up may be require…

Thu Jun 26 9:51:22 PDT 2014

cancergeek @nxtstop1 Communities have levers we can pull on: churches, SW, support groups,etc. #jacr

Thu Jun 26 9:51:31 PDT 2014

nxtstop1 Yes~ Tragic RT @heckelme Cuts to community health center programs are already areality in the NCI reseach program. #jacr

Thu Jun 26 9:51:31 PDT 2014

coffeemommy CT: Educate patients/community of value of screening; remove stigma + costbarriers; don't just engage the pt - INCLUDE the patient! #jacr

Thu Jun 26 9:51:33 PDT 2014

pj243 RT @LungCancerFaces: Can't be overstated. Have to counter human nature. RT@findlungcancer: T4 importance of annual screening, not just onc…

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 10/21

Thu Jun 26 9:51:34 PDT 2014

bjh41647 @JFreemanDaily #JACR exactly. Only proven value for people at high risk. Greatharm possible if indication creep

Thu Jun 26 9:51:41 PDT 2014

dustywater RT @JFreemanDaily: T4: Patients eligible for screening need to know they won't belectured about smoking, and what follow-up may be require…

Thu Jun 26 9:51:49 PDT 2014

findlungcancer this is key for smokers 4 sure MT @JFreemanDaily: T4: Patients eligible forscreening need to know won't be lectured about smoking, #jacr

Thu Jun 26 9:51:51 PDT 2014

heckelme @cancergeek My personal definition of "primary care provider" goes beyond theusual internist or family doc MD to include clinicians. #jacr

Thu Jun 26 9:51:55 PDT 2014

heckelme RT @JFreemanDaily: T4: Patients eligible for screening need to know they won't belectured about smoking, and what follow-up may be require…

Thu Jun 26 9:52:06 PDT 2014

nxtstop1 @CancerGeek CT they are very very busy trying to get food and housing to people ~Huge state cuts, low wages etc #jacr

Thu Jun 26 9:52:17 PDT 2014

jfreemandaily @ellakaz Yes we do know other risk factors, but few others associated with high risk.(e.g., exposure to radon is not high risk) #jacr

Thu Jun 26 9:52:19 PDT 2014

timallenmdjd News media,every new finding hailed as potential cure,doesnt help @bjh41647@coffeemommy @TimAllenMDJD #JACR Already era of false hope wWBCT

Thu Jun 26 9:52:21 PDT 2014

heckelme Is annual screening key to reducing anxiety, do you think? What is you have negativefindings and could return less frequently? #jacr

Thu Jun 26 9:52:49 PDT 2014

cancergeek T4: Has ACR or JACR mapped out the care process, jobs to be performed, & identifybest team members to perform those jobs? #jacr

Thu Jun 26 9:52:50 PDT 2014

drgmcginty RT @coffeemommy: CT: Educate patients/community of value of screening; removestigma + cost barriers; don't just engage the pt - INCLUDE th…

Thu Jun 26 9:52:51 PDT 2014

heckelme RT @coffeemommy: CT: Educate patients/community of value of screening; removestigma + cost barriers; don't just engage the pt - INCLUDE th…

Thu Jun 26 9:53:01 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 11/21

drgmcginty RT @ellakaz: @findlungcancer agree - CT lung ca screening is not one CT anddone...it's annual CT screening that has been shown to reduce d…

Thu Jun 26 9:53:04 PDT 2014

nxtstop1 MT @CancerGeek T4: Has ACR or JACR mapped out care process, jobs to beperformed, & identify best team members to perform those jobs? #jacr

Thu Jun 26 9:53:46 PDT 2014

ellakaz @JFreemanDaily but we don't know how CT screening works for others #JACR

Thu Jun 26 9:53:50 PDT 2014

cancergeek T4: When I say care process: from pt education--intake--exam--f/u--coordination--resources--continuing education--etc #jacr

Thu Jun 26 9:53:56 PDT 2014

findlungcancer T4 raise awareness who is high risk for LC, tell them early diagnosis = good chancecure, may have a false positive; easy to manage #jacr

Thu Jun 26 9:53:58 PDT 2014

findlungcancer RT @CancerGeek: T4: When I say care process: from pt education--intake--exam--f/u--coordination--resources--continuing education--etc #jacr

Thu Jun 26 9:54:12 PDT 2014

ruthcarlosmd RT @CancerGeek: T4: When I say care process: from pt education--intake--exam--f/u--coordination--resources--continuing education--etc #jacr

Thu Jun 26 9:54:15 PDT 2014

heckelme Good question --> RT @CancerGeek: T4: Has ACR mapped out the care process,jobs to be performed, & best team members to perform jobs? #jacr

Thu Jun 26 9:54:21 PDT 2014

timallenmdjd For purposes of screening, smoking only @JFreemanDaily: @ellakaz We do knowother risk factors, but few others associated w high risk #jacr

Thu Jun 26 9:54:24 PDT 2014

dustywater RT @findlungcancer: T4 raise awareness who is high risk for LC, tell them earlydiagnosis = good chance cure, may have a false positive; e…

Thu Jun 26 9:54:25 PDT 2014

heckelme RT @CancerGeek: T4: When I say care process: from pt education--intake--exam--f/u--coordination--resources--continuing education--etc #jacr

Thu Jun 26 9:54:32 PDT 2014

ellakaz @nxtstop1 @CancerGeek this will likely vary by practice sites from small to large,primary to quarternary care centers #JACR

Thu Jun 26 9:54:34 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 12/21

heckelme RT @findlungcancer: T4 raise awareness who is high risk for LC, tell them earlydiagnosis = good chance cure, may have a false positive; e…

Thu Jun 26 9:54:49 PDT 2014

ruthcarlosmd Final thoughts: Keep convo going on lung screening. let us know what you think athttp://t.co/fH9F8ZqkOX #JACR #LCSM

Thu Jun 26 9:55:05 PDT 2014

jfreemandaily @ellakaz True, all we have is NLST data, and it's unlikely we'll get another large $$$study about risk factors like that anytime soon #jacr

Thu Jun 26 9:55:07 PDT 2014

findlungcancer T4 tell participant screening a team sport, will get continuum of care regardless offinding #jacr

Thu Jun 26 9:55:14 PDT 2014

ruthcarlosmd Final comments: Join a patient panel on lung screening. Help design betterresearch. http://t.co/fH9F8ZqkOX #JACR #LCSM @eaonc @mtmdphd...

Thu Jun 26 9:55:20 PDT 2014

lungcancerfaces RT @ruthcarlosmd: Final thoughts: Keep convo going on lung screening. let us knowwhat you think at http://t.co/fH9F8ZqkOX #JACR #LCSM

Thu Jun 26 9:55:28 PDT 2014

ellakaz @heckelme @CancerGeek some sites have a screening navigator who is the "glue"that holds the program together and plays a key role #JACR

Thu Jun 26 9:55:28 PDT 2014

lungcancerfaces RT @ruthcarlosmd: Final comments: Join a patient panel on lung screening. Helpdesign better research. http://t.co/fH9F8ZqkOX #JACR #LCSM @…

Thu Jun 26 9:55:37 PDT 2014

heckelme RT @ruthcarlosmd: Final thoughts: Keep convo going on lung screening. let us knowwhat you think at http://t.co/fH9F8ZqkOX #JACR #LCSM

Thu Jun 26 9:55:44 PDT 2014

heckelme RT @ruthcarlosmd: Final comments: Join a patient panel on lung screening. Helpdesign better research. http://t.co/fH9F8ZqkOX #JACR #LCSM @…

Thu Jun 26 9:55:57 PDT 2014

cancergeek @ellakaz The NCCCP for NCI demonstrated the sharing best practices builds aframework to decrease variability=improve quality Nat'ly #jacr

Thu Jun 26 9:56:00 PDT 2014

kristinahoque RT @ruthcarlosmd: Final thoughts: Keep convo going on lung screening. let us knowwhat you think at http://t.co/fH9F8ZqkOX #JACR #LCSM

Thu Jun 26 9:56:01 PDT 2014

mtmdphd RT @ruthcarlosmd: Final comments: Join a patient panel on lung screening. Help

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 13/21

design better research. http://t.co/fH9F8ZqkOX #JACR #LCSM @…

Thu Jun 26 9:56:05 PDT 2014

radsdoc82 T4: I think the more people who participate now will help us advance the science ofscreening and treatment for future generations #JACR

Thu Jun 26 9:56:07 PDT 2014

dustywater Target people who love people who smoke(d). #JACR

Thu Jun 26 9:56:12 PDT 2014

sts_ctsurgery RT @ruthcarlosmd: Final comments: Join a patient panel on lung screening. Helpdesign better research. http://t.co/fH9F8ZqkOX #JACR #LCSM @…

Thu Jun 26 9:56:14 PDT 2014

sts_ctsurgery RT @ruthcarlosmd: Final thoughts: Keep convo going on lung screening. let us knowwhat you think at http://t.co/fH9F8ZqkOX #JACR #LCSM

Thu Jun 26 9:56:19 PDT 2014

drgmcginty @heckelme @CancerGeek #jacr @radiologyACR working with multiple stakeholdersand @cmsgov to build program for max benefit and minimize harms

Thu Jun 26 9:56:21 PDT 2014

heckelme Have you or a loved one been screened for #lungcancer? Please complete oursurvey! #JACR #LCSM #patientengagement https://t.co/vIBRqnCspU

Thu Jun 26 9:56:28 PDT 2014

cancergeek RT @DrGMcGinty: @heckelme @CancerGeek #jacr @radiologyACR working withmultiple stakeholders and @cmsgov to build program for max benefit a…

Thu Jun 26 9:56:36 PDT 2014

bjh41647 @ruthcarlosmd @eaonc @mtmdphd #jacr as always thanks to guest moderator Ellaand mainstay Ruth. Great work

Thu Jun 26 9:56:39 PDT 2014

jfreemandaily RT @heckelme: Have you or a loved one been screened for #lungcancer? Pleasecomplete our survey! #JACR #LCSM #patientengagement https://t.c…

Thu Jun 26 9:56:41 PDT 2014

kristinahoque RT @Radsdoc82: T4: I think the more people who participate now will help usadvance the science of screening and treatment for future gener…

Thu Jun 26 9:56:42 PDT 2014

heckelme RT @DrGMcGinty: @heckelme @CancerGeek #jacr @radiologyACR working withmultiple stakeholders and @cmsgov to build program for max benefit a…

Thu Jun 26 9:56:49 PDT 2014

timallenmdjd Specialty society guidance free of COI vital here @ellakaz: @nxtstop1 @CancerGeekthis will likely vary by practice sites from sma... #JACR

Thu Jun 26 9:56:56 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 14/21

kristinahoque RT @DrGMcGinty: @heckelme @CancerGeek #jacr @radiologyACR working withmultiple stakeholders and @cmsgov to build program for max benefit a…

Thu Jun 26 9:56:59 PDT 2014

kristinahoque RT @heckelme: Have you or a loved one been screened for #lungcancer? Pleasecomplete our survey! #JACR #LCSM #patientengagement https://t.c…

Thu Jun 26 9:57:10 PDT 2014

tirathpatelmd RT @Radsdoc82: T4: I think the more people who participate now will help usadvance the science of screening and treatment for future gener…

Thu Jun 26 9:57:12 PDT 2014

heckelme RT @Radsdoc82: T4: I think the more people who participate now will help usadvance the science of screening and treatment for future gener…

Thu Jun 26 9:57:20 PDT 2014

tirathpatelmd RT @ruthcarlosmd: Final comments: Join a patient panel on lung screening. Helpdesign better research. http://t.co/fH9F8ZqkOX #JACR #LCSM @…

Thu Jun 26 9:57:24 PDT 2014

ellakaz my first tweet chat, great to see the enthusiasm and lots of engagement #JACR

Thu Jun 26 9:57:25 PDT 2014

tirathpatelmd RT @DrGMcGinty: @heckelme @CancerGeek #jacr @radiologyACR working withmultiple stakeholders and @cmsgov to build program for max benefit a…

Thu Jun 26 9:57:31 PDT 2014

findlungcancer CT Key messages #LDCT saves lives, early diagnosis = more cures, screening isprocess w/patient continuum of care from multidisc team #jacr

Thu Jun 26 9:57:36 PDT 2014

timallenmdjd RT @ruthcarlosmd: Final comments: Join a patient panel on lung screening. Helpdesign better research. http://t.co/fH9F8ZqkOX #JACR #LCSM @…

Thu Jun 26 9:57:41 PDT 2014

nxtstop1 +1 Thanks Much~RT @bjh41647 @ruthcarlosmd @eaonc @mtmdphd #jacr asalways thanks to guest moderator Ella and mainstay Ruth. Great work

Thu Jun 26 9:57:44 PDT 2014

lungcancerfaces Hope it won't be your last! We need your voice. RT @ellakaz: my first tweet chat, greatto see the enthusiasm and lots of engagement #JACR

Thu Jun 26 9:57:51 PDT 2014

tirathpatelmd RT @MattHawkinsMD: Some opinions about the National #LungCancer screeningtrial -- http://t.co/ZU0Pnu58wK -- #JACR

Thu Jun 26 9:57:52 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 15/21

findlungcancer gr8 to have you RT @ellakaz: my first tweet chat, great to see the enthusiasm and lotsof engagement #jacr

Thu Jun 26 9:57:58 PDT 2014

jacrjournal RT @ruthcarlosmd: Final comments: Join a patient panel on lung screening. Helpdesign better research. http://t.co/855u9p040O #JACR #LCSM

Thu Jun 26 9:57:59 PDT 2014

tirathpatelmd RT @JACRJournal: @WesleyWilson Hi there. It's a health care tweet chat. Todaywe're talking about lung cancer screening. #jacr

Thu Jun 26 9:58:00 PDT 2014

jfreemandaily Lots of good information and active participants in this chat. Thanks to #JACR forinviting #LCSM to join!

Thu Jun 26 9:58:00 PDT 2014

tirathpatelmd RT @KristinaHoque: @ellakaz careful- false positives can lead to invasiveprocedures with their own inherent risks #JACR

Thu Jun 26 9:58:04 PDT 2014

ruthcarlosmd Thanks everyone for a great conversation as usual. Special thanks to our guestmods @ellakaz and @JFreemanDaily #LCSM #jacr

Thu Jun 26 9:58:08 PDT 2014

kristinahoque Thanks everyone for a very interesting and inspiring chat! Hope to see you all nextmonth for another chat #JACR

Thu Jun 26 9:58:16 PDT 2014

lungcancerfaces Thank you all! RT @JFreemanDaily: Lots of good information and active participantsin this chat. Thanks to #JACR for inviting #LCSM to join!

Thu Jun 26 9:58:19 PDT 2014

dustywater RT @ruthcarlosmd: Thanks everyone for a great conversation as usual. Specialthanks to our guest mods @ellakaz and @JFreemanDaily #LCSM #j…

Thu Jun 26 9:58:22 PDT 2014

jfreemandaily @ellakaz Really, your first? You did great! Hope to see you in many more tweetchats.#jacr

Thu Jun 26 9:58:33 PDT 2014

heckelme RT @ruthcarlosmd: Thanks everyone for a great conversation as usual. Specialthanks to our guest mods @ellakaz and @JFreemanDaily #LCSM #j…

Thu Jun 26 9:58:34 PDT 2014

cancergeek CT: As w all things in healthcare, screening is a team sport. Remember that thepatient is the coach. The rest of healthcare supports #jacr

Thu Jun 26 9:58:42 PDT 2014

findlungcancer agree gr8 job RT @ruthcarlosmd: Thanks everyone 4 great conversation Special

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 16/21

thanks to our guest mods @ellakaz and @JFreemanDaily #jacr

Thu Jun 26 9:58:50 PDT 2014

drgmcginty @ellakaz grest to have you in the #radiology #twitterati and of course leading ourefforts on #lingcancer screening #JACR

Thu Jun 26 9:58:53 PDT 2014

cancergeek RT @findlungcancer: agree gr8 job RT @ruthcarlosmd: Thanks everyone 4 greatconversation Special thanks to our guest mods @ellakaz and @JFr…

Thu Jun 26 9:59:00 PDT 2014

heckelme What fun! And great means of gaining better understanding of the complex#lungscreening paradigm. THANK YOU ALL! #jacr

Thu Jun 26 9:59:12 PDT 2014

crystaleitnier RT @JFreemanDaily: I'm Janet -- writer, science geek, stage IV lung cancer patient,and #LCSM guest moderator today. #jacr

Thu Jun 26 9:59:26 PDT 2014

crystaleitnier RT @findlungcancer: andrea, retired engineer, lost husband to lung cancer April2013, now lung cancer advocate and MPH student #lcsm #jacr

Thu Jun 26 9:59:27 PDT 2014

cibr_news Thanx everyone for a great discussion on #lungcancer. Lots of great points! #JACR#imaging

Thu Jun 26 9:59:27 PDT 2014

jfreemandaily @ruthcarlosmd Great chat, and great job moderating! #jacr

Thu Jun 26 9:59:29 PDT 2014

timallenmdjd Thank y'all. It has been a privilege to participate @nxtstop1: +1 Thanks Much~RT@bjh41647 @ruthcarlosmd @eaonc @mtmdphd #jacr as always...

Thu Jun 26 9:59:32 PDT 2014

heckelme RT @CancerGeek: CT: As w all things in healthcare, screening is a team sport.Remember that the patient is the coach. The rest of healthcar…

Thu Jun 26 9:59:34 PDT 2014

radsdoc82 RT @DrGMcGinty: @ellakaz grest to have you in the #radiology #twitterati and ofcourse leading our efforts on #lingcancer screening #JACR

Thu Jun 26 9:59:37 PDT 2014

drgmcginty @JFreemanDaily great to hear your perspective #patientsafety #jacr #lungcancer

Thu Jun 26 9:59:55 PDT 2014

cancergeek CT: Like to thank @ruthcarlosmd @ellakaz @JFreemandaily @HeckelME forconnecting the dots on this topic. #happy #grateful #jacr

Thu Jun 26 10:00:12 PDT 2014

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 17/21

findlungcancer Folks please use #LDCT for discussions concerning lung cancer screening, Newhealth care hashtag. Will help us track discussions #jacr

Thu Jun 26 10:00:35 PDT 2014

bjh41647 #jacr let's remember and thank especially the NLST crew, PI deni Aberle

Thu Jun 26 10:00:50 PDT 2014

ellakaz Check out ACR lung cancer screening resource website for LungRADS +morehttp://t.co/LLvjpaJZb9 #JACR

Thu Jun 26 10:00:53 PDT 2014

jeamessailor RT @CancerGeek: CT: As w all things in healthcare, screening is a team sport.Remember that the patient is the coach. The rest of healthcar…

Thu Jun 26 10:00:59 PDT 2014

jacrjournal RT @ellakaz Check out ACR lung cancer screening resource website for LungRADS+more http://t.co/31XR8E3nhR #JACR

Thu Jun 26 10:01:00 PDT 2014

kristinahoque RT @findlungcancer: Folks please use #LDCT for discussions concerning lungcancer screening, New health care hashtag. Will help us track di…

Thu Jun 26 10:01:16 PDT 2014

cancergeek Patient Engagement: A Mirror And A Story May Drive Adoption | @CancerGeekhttp://t.co/hQcAcC1tCS #hcldr #jacr

Thu Jun 26 10:01:39 PDT 2014

kristinahoque RT @ellakaz: Check out ACR lung cancer screening resource website for LungRADS+more http://t.co/LLvjpaJZb9 #JACR

Thu Jun 26 10:01:44 PDT 2014

cancergeek Top Influencers of #JACR: @ellakaz @jfreemandaily @cancergeek @ruthcarlosmd@heckelme @nxtstop1 http://t.co/9INXtCClNr via @symplur

Thu Jun 26 10:02:50 PDT 2014

cancergeek Top Influencers of #JACR: @lungcancerfaces @cancergeek @timallenmdjd@nxtstop1 @radiologyacr @coffeemommy http://t.co/9INXtCClNr @symplur

Thu Jun 26 10:03:08 PDT 2014

jfreemandaily @ellakaz In case you missed this: "Medicare Should Cover Low-Dose CT for LungCancer" http://t.co/mttUretfLp #JACR #LCSM

Thu Jun 26 10:05:26 PDT 2014

lungcancerfaces RT @JFreemanDaily: @ellakaz In case you missed this: "Medicare Should CoverLow-Dose CT for Lung Cancer" http://t.co/mttUretfLp #JACR #LCSM

Thu Jun 26 10:07:55 PDT 2014

crystaleitnier RT @findlungcancer: Folks please use #LDCT for discussions concerning lung

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 18/21

cancer screening, New health care hashtag. Will help us track di…

Thu Jun 26 10:09:14 PDT 2014

heckelme RT @JFreemanDaily: @ellakaz In case you missed this: "Medicare Should CoverLow-Dose CT for Lung Cancer" http://t.co/mttUretfLp #JACR #LCSM

Thu Jun 26 10:11:09 PDT 2014

matthawkinsmd RT @ellakaz: Check out ACR lung cancer screening resource website for LungRADS+more http://t.co/LLvjpaJZb9 #JACR

Thu Jun 26 10:12:14 PDT 2014

findlungcancer I-ELCAP data shows 85% 5 year survival with Stage 1A diagnosis @TimAllenMDJD@JFreemanDaily @ellakaz LC is not hopeless #jacr #ldct #lcsm

Thu Jun 26 10:13:20 PDT 2014

cancergeek RT @findlungcancer: yes but experience says not many invasive w/benign nodules -2%MT@nxtstop1: @CancerGeek RT @KristinaHoque: @ellakaz ris…

Thu Jun 26 10:13:39 PDT 2014

cancergeek RT @GeekOnCoffee: @ruthcarlosmd @CancerGeek T3: Detecting real issues isALWAYS a good thing; screener just needs to be prepared to properl…

Thu Jun 26 10:13:43 PDT 2014

cancergeek RT @nxtstop1: MT @CancerGeek T3: Perhaps we need 2 rebrand lung screening to"Check under the hood" let's take a look inside & see what may…

Thu Jun 26 10:13:47 PDT 2014

timallenmdjd RT @findlungcancer: I-ELCAP data shows 85% 5 year survival with Stage 1Adiagnosis @TimAllenMDJD @JFreemanDaily @ellakaz LC is not hopeless…

Thu Jun 26 10:13:59 PDT 2014

cancergeek RT @LungCancerFaces: Good idea. RT @heckelme: @CancerGeek Or as "chestscreening" and not just the lungs. Like Chest X-Ray. #jacr

Thu Jun 26 10:14:02 PDT 2014

cancergeek RT @ruthcarlosmd: Package w/ a "latte while you wait" to destigmatize. MT@CancerGeek: T3: Perhaps rebrand lung screening to "Check under …

Thu Jun 26 10:14:12 PDT 2014

cancergeek RT @coffeemommy: Yes @CancerGeek! If LC screening were included as part ofroutine for high risk, it would be just part of 'check under the…

Thu Jun 26 10:15:44 PDT 2014

cancergeek RT @nxtstop1: @bjh41647 T3 Yes, I agree . I was thinking that @cancergeek wasbeing fascetious (sp)~ Targeted screening if there is such a …

Thu Jun 26 10:15:50 PDT 2014

cancergeek RT @findlungcancer: MT @CancerGeek: T3: @ellakaz As ACR builds out themethodology 4 communication, are they building the voice of the pati…

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6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 19/21

Thu Jun 26 10:15:56 PDT 2014

cancergeek RT @nxtstop1: 4 + About That~ RT @CancerGeek @nxtstop1 Isn't it aboutexplanations upfront, during, and post w continued touches? #jacr

Thu Jun 26 10:16:04 PDT 2014

cancergeek RT @JeamesSailor: @CancerGeek @heckelme T3 "checking under the hood" alsomeans DRs have discretion about what news to tell patients #patie…

Thu Jun 26 10:16:11 PDT 2014

cancergeek RT @findlungcancer: RT @nxtstop1: 4 + About That~ RT @CancerGeek @nxtstop1Isn't it about explanations upfront, during, and post w continue…

Thu Jun 26 10:16:14 PDT 2014

cancergeek RT @ellakaz: @CancerGeek YES - Lung Cancer Alliance is a great partner for us inthe voice of the patient #JACR

Thu Jun 26 10:16:22 PDT 2014

cancergeek RT @JeamesSailor: @GeekOnCoffee @heckelme @CancerGeek Just ensure all"new" findings are explained fully. #patienteducation #JACR #patiente…

Thu Jun 26 10:16:27 PDT 2014

heckelme RT @findlungcancer: I-ELCAP data shows 85% 5 year survival with Stage 1Adiagnosis @TimAllenMDJD @JFreemanDaily @ellakaz LC is not hopeless…

Thu Jun 26 10:16:32 PDT 2014

cancergeek RT @ellakaz: @JeamesSailor @GeekOnCoffee @heckelme @CancerGeek agree, amust do #JACR

Thu Jun 26 10:16:34 PDT 2014

cancergeek RT @ellakaz: @CancerGeek @JeamesSailor SHARED decision making meanspatient and provider come to a health care discussion with different in…

Thu Jun 26 10:16:41 PDT 2014

cqdcat RT @LungCancerFaces: Genetics RT @TimAllenMDJD: 9 of10 smokers don'tdevelop lung cancer #LCSM #jacr

Thu Jun 26 10:16:52 PDT 2014

cancergeek @ellakaz @JeamesSailor Shared information, decision ultimately owned by patient.#JACR

Thu Jun 26 10:17:25 PDT 2014

cancergeek RT @ellakaz: @CancerGeek screening is a PUBLIC health tool...engagingcommunities is important #JACR

Thu Jun 26 10:17:32 PDT 2014

cancergeek RT @nxtstop1: @CancerGeek CT Agree But just today ~ articles about massive cutsto Community Health Programs being considered by the US Hou…

Thu Jun 26 10:17:36 PDT 2014

Page 53: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 20/21

cancergeek RT @heckelme: AMEN! --> @ellakaz @CancerGeek screening is a PUBLIC healthtool...engaging communities is important #JACR #jacr

Thu Jun 26 10:17:39 PDT 2014

cancergeek RT @heckelme: @cancergeek My personal definition of "primary care provider" goesbeyond the usual internist or family doc MD to include cli…

Thu Jun 26 10:17:47 PDT 2014

cancergeek RT @nxtstop1: @CancerGeek CT they are very very busy trying to get food andhousing to people ~ Huge state cuts, low wages etc #jacr

Thu Jun 26 10:17:52 PDT 2014

cancergeek RT @nxtstop1: MT @CancerGeek T4: Has ACR or JACR mapped out care process,jobs to be performed, & identify best team members to perform tho…

Thu Jun 26 10:18:13 PDT 2014

cancergeek RT @heckelme: Good question --> RT @CancerGeek: T4: Has ACR mapped out thecare process, jobs to be performed, & best team members to perfo…

Thu Jun 26 10:18:17 PDT 2014

cancergeek RT @ellakaz: @nxtstop1 @CancerGeek this will likely vary by practice sites fromsmall to large, primary to quarternary care centers #JACR

Thu Jun 26 10:18:22 PDT 2014

cancergeek RT @ellakaz: @heckelme @CancerGeek some sites have a screening navigatorwho is the "glue" that holds the program together and plays a key …

Thu Jun 26 10:18:27 PDT 2014

cancergeek RT @TimAllenMDJD: Specialty society guidance free of COI vital here @ellakaz:@nxtstop1 @CancerGeek this will likely vary by practice site…

Thu Jun 26 10:18:43 PDT 2014

heckelme RT @ellakaz: @heckelme @CancerGeek some sites have a screening navigatorwho is the "glue" that holds the program together and plays a key …

Thu Jun 26 10:24:24 PDT 2014

drgmcginty RT @CancerGeek: @ellakaz @JeamesSailor Shared information, decision ultimatelyowned by patient. #JACR

Thu Jun 26 10:24:38 PDT 2014

jfreemandaily RT @findlungcancer: I-ELCAP data shows 85% 5 year survival with Stage 1Adiagnosis @TimAllenMDJD @JFreemanDaily @ellakaz LC is not hopeless…

Thu Jun 26 10:25:34 PDT 2014

jfreemandaily @findlungcancer @TimAllenMDJD @ellakaz Yes! This is the kind of info patientsneed to hear when considering lung screening #jacr #LCSM

Thu Jun 26 10:26:47 PDT 2014

Page 54: #JACR transcript › pb... · screening and pt engagement. guest mods: @ellakaz @JFreemanDa… Thu Jun 26 9:01:22 PDT 2014 julianguitron Lung cancer screening is a hot topic currently

6/26/2014 #JACR - Healthcare Social Media Transcript

http://embed.symplur.com/twitter/transcript?hashtag=JACR&fdate=06%2F26%2F2014&shour=9&smin=0&tdate=06%2F26%2F2014&thour=10&tmin=30&sse… 21/21

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heckelme @CancerGeek @ruthcarlosmd @ellakaz @JFreemanDaily Likewise on thank you,each of you. #happy #grateful #jacr

Thu Jun 26 10:29:45 PDT 2014