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Involving young people in our
work
Alvin Kinch, Engagement Manager
Gavin MacGregor, Head of Network Development
18 September 2019
Involving Young People
2
Welcome and introduction
Involving Young People
AgendaTime Item
10:00 – 10:30 Refreshments on arrival
10:30 – 10:45 Welcome and introductions
Alvin Kinch, Engagement Manager and Gavin MacGregor, Head of Network
Development, Healthwatch England
10:45 – 12:45
[
Hear from the Healthwatch Cumbria team- how young people are involved in governance,
project and engagement roles. What inspired young people to join Healthwatch?Becky Knagg, Engagement Officer and Jade Ainsworth, Volunteer, Healthwatch Cumbria
It’s been a year since Young Healthwatch was set up within Healthwatch Central Bedfordshire. Learn about the various activities involved in set up, how it’s currently
delivered, its key achievements and what’s next for this group of young people?Amy Eymor, Youth Engagement and Volunteer Officer, Healthwatch Central Bedfordshire
12:45 – 13:30 Lunch and networking
13:30 – 14:15 Learn more about the work of the NHS Youth Forum from its strategic vision, purpose,
activities to the difference it has made and what are the big things coming up involving young people. Nagina Javaid, Patient and Public Partnerships Manager NHS England and Gabrielle Matthews, NHS Youth Forum Alumni Member
14:15 – 14:30 Refreshments
14:30 – 15:15 Hear about the local and national evidence on what good mental health support
looks like for children and young people. Urte Macikene, Senior Policy Analyst, Healthwatch England
15:15 – 15:30 Wrap up, next steps, close
Involving Young People
Principles for the day
• Learn from each other
• Contribute as much as you can – share your experience & skills
• Make new contacts
4
Involving Young People
So why are we here?
To learn from each other and share experiences
Hear about the different ways to involve young people in Healthwatch
Discuss what attracts young volunteers to Healthwatch
Get resources that will support your work
Work together to develop a common understanding of our objectives when
it comes to involving young people in our work
Help shape a common offer for young people that all Healthwatch can
apply
5
Involving Young People
Who is aware of us? Who is not?
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43%
40%
39%
38%
36%
35%
34%
32%
32%
31%
30%
29%
26%
24%
22%
0% 5% 10% 15% 20% 25% 30% 35% 40% 45% 50%
Work for health or care provider
Aged 45-54
Aged 55-64
Carer
Used health or care service within last month
Aged 65+
Has children under 18
White
Male
Female
Long term health condition
Non White
Aged 35-44
Aged 25-34
Aged 18-24
Involving Young People
What do we know about young people?
7
0
10
20
30
40
50
60
70
Under 18 18-24 25-34 35-44 45-54 55-64 65-74
Seen GP last 3 months Awareness of us #WhatWouldYouDo
More likely to…
• Like idea of volunteering
• share views if it benefits them, family and community
• Think services will listen
Less likely to…
• To have heard of us
Biggest barriers:
• Time
• Relevance
• Awareness
Involving Young People
What do we know about young people?
8
Involving Young People
What do we know about young people?
9
Generation Z: The Future
of Health and Wellbeing
29% of Gen Z use social media for health advice and information, compared to 4% of Baby Boomers.
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What do we know about young people?
Healthwatch network’s top 5 topics to improve people’s experiences includes
Children and Young People
Amongst the top 5 organisational development priorities: Develop and increase
volunteers
Evidence of importance: 44 reports during 2018/2019 and 2019/2020 with key
themes being:
• Mental health at schools
• Experiences with mental health services
• Enter & View visits to CYP specific facilities
• Oral health
• Health and wellbeing
Long Term Plan Findings (under 25s)
• Want to be taken seriously by healthcare professionals, not talked down to.
Especially important for young people with caring responsibilities or who had
been in care
• Health advice services should be focussed on the needs of young people
Getting Young People Involved in Healthwatch
Becky Knagg
Jade Ainsworth
18th September 2019
Why should young people get involved with Healthwatch?
Older people
don’t always know
what is best for
us.
We need to target
young people and
accommodate them,
so we can promote
good health and
well-being at a
young age.
Jade’s
Story
CAMHS Model
Thrive Model
100%
000
WHAT ARE YOUR HOPES/EXPECTATIONS FROM A&E WHEN YOU ARRIVE DUE TO MENTAL HEALTH RELATED REASONS? E.G.- SELF-HARM, SUICIDAL
THOUGHTS
To be Helped And Supported In A Caring Environment
14%
48%
31%
2%5%
WHAT IS THE REALITY??Discharge Judgement/ Invalidation Long Waiting times Helpful & Caring Other
Children and Young People’s Mental Health Project
Focus Group Work
Core Engagement
Involving Young People
•Young Healthwatch as an entity
•Where to find young people to be involved
•Share results/outcomes
•Be open to change
•Why should they be involved?
•Communication
•A catalyst for the future
•Vulnerability and safeguarding
•Practicalities
What next for us?
Workshop
Q.1 Q.2
Q.3 Q.4
What could you
do differently to
improve your
involvement of
young people?
What do you see as
the barriers to
involving young
people and how
can they be
overcome?
How would you
describe your
current
involvement of
young people in
your work?
What are you
doing to involve
young people?
Share some good
and not so good
examples.
Young Healthwatch Central Bedfordshire
Amy Eymor - Youth Engagement & Volunteer Officer
18th September 2019
Introduction to Me ❖ My name is Amy Eymor
❖ I came to post Aug 2018, previous career of 13 years in
the Police.
❖ Originally post for Assistant Engagement Officer but
deemed YHW was important so created my role.
❖ Daunting with expectations
❖ Research, it doesn’t happen overnight
❖ Do not reinvent the wheel, find out what works and nick
their ideas !!
To Date …..
13 Volunteers
to date
13- 18 Year
Olds, school
and College
and now
apprenticeship
All different
levels and
abilities and
backgrounds
4 only knew
each other, all
now friends
Worked in
Partnership
with
Groundwork
East
Worked with
the CCG in
relation to the
Long Term PlanWorked with
the council on
new services
feedback
Projects we have worked on ….
Purpose of Today
4 Questions :I asked them and now, I ask you !
I only asked 4 as I have
learnt not to ask too much,
but be clear and concise to
get what you want to
achieve from the answers.
If Amy was to come into your
school/college, to do a pitch
for Young Healthwatch in an
assembly and encourage you
to Volunteer, what are the
selling points that would make
you sit up and pay attention?
Question 1
Discuss amongst yourselves and write some points down
Answers ....
If you took up the opportunity
of becoming a volunteer and
came along to a first meeting,
or even before in
communication, what would
put you off and make you
think again about volunteering
with us?
Question 2
Discuss amongst yourselves and write some points down
Answers ....
What opportunities do you
want with Young Healthwatch?
Question 3
Discuss amongst yourselves and write some points down
Answers ....
Why do you keep coming
back?
Question 4
Discuss amongst yourselves and write some points down
Answers ....
Struggles and Learning Points….For Me !!
✓ Exam Time
✓ Fun
✓ Individual
✓ Responsibility
✓ Designation
✓ Bribery
✓ Get Out There
✓ Work With People
✓ Phones
✓ Trust them
✓ Encourage
✓ Perks
✓ Be Selfish !!
The End
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Lunch
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What can we learn from others?
NHS Youth Forum
NAGINA JAVAID & GABRIELLE MATHEWS - NHS YOUTH FORUM
THE IMPORTANCE OF YOUTH PARTICIPATION AND VOICE IN HEALTHCARE DECISION MAKING
18th September 2019
Why bother with CYP?
DEVELOPING A CORPORATE VISION FOR CHILDREN AND YOUNG PEOPLE
What are you doing that connects the work around
youth participation, involvement, volunteering and
youth social action to your wider organisational
goals?
How can young people support the vision for
Healthwatch England?
What difference do you want to see as a
result of youth involvement?
WORKFORCE DEVELOPMENT AND INNOVATIVE PATHWAYS INTO THE NHS
•Youth Social action and Volunteering
•Long term plan
•Interim People Plan
•Hearts and Minds
•Partnership Approaches
•Coproduction - we are on a journey
•The NHS is a leader- lets continue to build a world class movement
•Valuing CYP voice
•Sharing power
•Moving away from old practices
Building on the culture of
compassion,
inclusiveness and collaboration
Actions:
You have the power
to shift the way we
work and engage
with people – how
can we make the
most of this?
Is it possible for
young people to be
part of the culture
change?
Can young people
support us to have
facilitated
conversations in
senior spaces?
How can we build the
momentum and
interest in youth
social action,
participation and
volunteering through
blogs,
mini videos and
attending and
influencing at
national events?
REFLECTIONS/DISCUSSION
@NHSYouthForum
https://www.byc.org.uk/uk/nhs-
youth-forum
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What people told us about children and
young people’s mental health? What do people tell us about children and young people’s me
Urte Macikene, Senior Policy Analyst, Healthwatch England
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Scale of feedback / evidence to date
We reviewed all Healthwatch intelligence on experiences of mental
health care collected between January 2016 and March 2019
•Local Healthwatch heard directly from 175 people about CAMHS
•CYPMH was ranked as the second highest priority across all local
Healthwatch
•We received 108 local Healthwatch publications about CYPMH
involving data collected from 25,501 people.
We worked with an independent research agency to learn more
about what young people think of mental health service provision
•A 2.5 hour face-to-face deliberative event with 21 young people of
mixed age and demographic
•Four online groups lasting 1.5 hours with young people who have
experienced serious mental health conditions
What people tell us – key themes from our network
•When local Healthwatch receive unsolicited feedback or concerns, it usually comes from parents of young people dealing with a mental health issue.
• This is most common when it comes to the feedback we gather relating to children with a learning disability who are also experiencing mental health issues.
•To better understand how young people themselves feel about CYPMH provision and drive positive transformation, some local Healthwatch have led pioneering projects in their local area.
• Healthwatch Suffolk worked with young people to produce a survey which received responses from 14,000 young people across the county’s schools.
• Healthwatch Bristol convened a Young People’s Reference Group which played a key role in recommissioning local CAMHS services, including designing the service specification and evaluating provider bids.
What people told us – key themes from our network
1.Children experience long waits to see a specialist
2.Access to assessment services is challenging and the referral process is
complicated
3.Lack of timely and appropriate information for both young people and
parents
4.The transition from children’s to adult services is confusing and
challenging
5.There is a lack of integration between learning disability and mental
health services
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What young people told us from deliberative research – positive experiences
Listening
• Young people report positive experiences of mental health when they feel they have been truly listened to by someone who takes time to understand their personal story.
Consistency
• Those who cited positive experiences of mental health in school or university said they had a counsellor or teacher they could consistently turn to talk about their feelings.
Innovation
• Young people cited positive experiences of innovative community or online services which they could access flexibly.
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What young people would like to see
1.Better education and communications
•Young people want more personable care focussed on emotional well-being and longer-term follow-up to their treatment.
•They would like to see more mainstream media coverage of mental health to improve awareness and decrease stigma. But young people also feel poor mental health can be glorified and romanticised in TV shows and can be a trigger. They would like to see the ‘reality’ of mental health issues in the media.
•Young people would like to see mental health on school curriculums from Year 7.
•They would like to see regular mental health check-ups offered to all young people every 6 months.
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What young people would like to see
2. More options and personalised care
• Young people want as many mental health care options as possible, including different drug treatments, talking therapy, CBT, mindfulness. They would like more options for where they can be treated and timing of appointments.
• Young people want more consistent care from people who understand their journey.
• More school/university counsellors who are trained in several types of therapy and can offer a range of treatment. Young people also noted that they are sometimes discouraged from talking to counsellors if they fear their disclosures will be passed on to parents.
• There is no consensus on the best time to transition from CAMHS to adult care. Ideally this would be personalised and dependant on the stage each person’s journey.
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What young people would like to see
3. Peer support
• Young people support casual meet-ups where they can help each other and talk about their issues.
• The would also like provision of mentors and life coaches who have been through similar issues themselves.
• Young people would like to see shorter waiting times for CAMHS specialists, but they understand this is not always a possibility, and would like to see interim options for peer or online support while waiting for a referral.
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Social media and mental healthIn the group sessions, social media was
consistently mentioned by young
people as a perceived trigger for many
who suffered from mental health
conditions.
However, when we asked young people
about their personal experiences, they
also cited the positive effects of social
media, including building online
communities, raising awareness, and
reducing stigma.
It may be useful to investigate the
effects of media narratives about social
media and mental health to establish
whether they are consistent with young
people’s real experiences.
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What young people told us – notable findings from deliberative sessions Gender-specific triggers• ‘Toxic masculinity’ was cited as a trigger by the older male group, with many
boys not feeling able to reach out for help due to societal expectations. Drugs and alcohol were reported as a coping mechanism. The female group also mentioned pressures relating to body image.
School-based awareness-raising
• Young people were very supportive of
mental health ‘relief days’ where money is
raised to support mental health charities
and schools get involved in awareness-
raising.
Taking young people seriously
• Many young people feel patronised by the communications they are given, and
want to be taken more seriously. This included both the tone of written
communications, and feeling like adults dismissed their concerns as “just a
phase” or “normal for teenagers”.
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Innovative solutions – mental health appYoung people who had experienced a
serious mental health issue emphasised
that they would like a reputable and
moderated mental health app, including
chatrooms, advice and tips, mindfulness
techniques, etc.
The broader group of young people were
more ambivalent about using mental
health apps.
It may be interesting to investigate
awareness, uptake, and benefits of
existing apps like Big White Wall, BlueIce,
and MeeToo among different groups,
keeping in mind that this should not be
considered a replacement for specialist
services. We could also ask whether young
people perceive existing apps to be
limited and what more they would like to
see.
“What I’d like to have is a free app with
tutorials, group chats and 1-1
counselling services built into it all
designed for mental health.”
Female, 16-18
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Innovative solutions – community or online supportYoung people cite long waiting times and
insufficient counselling sessions as
negative experiences, but they
understand that the system is under
pressure.
It was notable that young people were
fully accustomed to a situation where
CAMHS services cannot meet everyone’s
needs.
They appreciated opportunities for drop-
in community support while waiting for
treatment. They also accessed other
online chat/consultation services like
Babylon.
Peer support was cited as a desirable
complement to specialist treatment.
“They could do with a walk-in centre
sort of thing. Even just like the NHS
have the health checker, and you can
speak to someone like 111.”
“Groups for people going through
the same stuff, in order to have
people to relate to and people to
talk to who understand what you’re
going through.”
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What next?
• Share the intelligence we currently have
• Use what we already know, alongside additional engagement
with local Healthwatch, to formulate set of ideas about
what young people want from good mental health support
• Work with Young Healthwatch and partner organisations to
test these findings
• Identify examples of good practice and work to understand
how successful and innovative mental health support
services are developed and delivered
• Share this info with local Healthwatch, commissioners and
professionals to help them drive development and
improvement
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Questions for discussion
•Do the findings of our focus group research ring true for what you’ve heard in your area? Is there anything missing?
•Have you seen evidence of additional investment and focus on CYPMH in your area? If so, how is service development being approached?
•What steps can you take to ensure the young person’s voice is involved in service developments locally?
•How should Healthwatch England work with the network and young volunteers to ensure service development is based on what young people want? How can we involve the young people you work with in this project?
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What’s our offer to young
people?
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What next?
