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How Can Your HIV/AIDS Organization Leverage Data To

Enhance Care Coordination?

December 16, 2014

Thank you!

This month people around the globe united to raise HIV/AIDS awareness and help empower all people, everywhere, to access services to improve their quality of life

Today’s AgendaIntroduction

National HIV/AIDS StrategyToday’s SpeakerOrganization

Data ChallengesHow AIDS Foundation of Chicago Overcame Those ChallengesClientTrack DemonstrationQuestions and Answers

National HIV/AIDS Strategy

Strategic Direction 1: Reducing HIV incidenceStrategic Direction 2: Increasing access to care and optimizing health outcomesStrategic Direction 3: Reducing HIV-related health disparities

Today’s Speaker

Joel RitsemaAssociate Director of Research, Evaluation, and Data ServicesAIDS Foundation of Chicago

• Has worked in Research and Evaluation at the AIDS Foundation of Chicago since 2008

• Provides data support for AFC’s HIV Care, Housing, and Development departments across multiple data systems

• Joel lives in Chicago with his wife, 18-month old daughter, and two yappy dogs

• Is completing his PhD in sociology at Loyola University Chicago

AIDS Foundation of Chicago

• Established in 1985• Local and national leader in

the fight against HIV/AIDS• Invested in a network of

more than 60 providers offering:

• Advocacy• Case management • Supportive housing• Prevention• Capacity Building

Challenge #1 – Constantly Changing Field• Changing Demographics

• HIV/AIDS • Homelessness

• Funder requirements• Housing Policy

• Plan to End Homelessness• HIV Care Policy

• Ryan White funding• The Affordable Care Act

Challenge #2 – Using and Coordinating Multiple Data Systems

• Funder data-collection requirements change from grant year to grant year• Data elements to be collected• How they want to see it reported• The use of funder-mandated systems

(ClientTrack, Excel, Others)

How AFC Overcame This Challenge

• Flexible data infrastructure• Maintain organizational flexibility

• Methods for collecting and disseminating data• Maintain open communication about what is

going on in the communities• Community needs• Methods/best practices

• Balancing data entry burden with needs in research and evaluation

• Case managers often have to enter data into multiple systems

• Internal reporting• Report to AFC• Report to other funders

• AFC needs clean and complete data but the case managers are more focused on caring for clients

Challenge #3 – Balancing Case Managers’ Data Entry Burden

• AFC are the evaluators and they have to report to the funders

• Working to reduce the burden so they don’t have to do double duty and can take care of the clients

• Shouldering responsibility as much as possible – don’t push it off on the case managers

How AFC Overcame This Challenge

• With 60 organizations, there is A LOT of data

• Data-driven measures of performance, and client outcomes

• How can we translate the data into “funder-friendly” measurements?

• How can we make the data usable for research and evaluation?

• How can we increase accountability for providing quality data?

Challenge #4 – Monitoring and Improving Data Quality

• Identify what it is that you want your agency to do. Set clear expectations

• Regularly monitor the data for those outcomes. Collect data to measure those outcomes. Monitor it on a regular basis

• HIV Viral Load Suppression • Client insurance status• Client engagement in case

management • Client assessments completed• Client engagement in care

How AFC Overcame This Challenge

• Provide dashboards and regular reports for our agencies• Agency and program specific dashboards – Performance ‘snapshot’

• Demographic data• Outcomes

• Case managers underperforming vs. issues with Data Entry

• Provide targeted technical assistance• Targeted/Tiered Case management interventions

How AFC Overcame This Challenge

ClientTrack DemoStacy BurdaSolutions EngineerClientTrack, Inc.

Questions

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