First Nations Health Authority  

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  Healthy, self-determining and vibrant

First Nations children, families and communities

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Heading

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Text  

3  October  2011  

Seven Directives

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1.   Community-­‐Driven,  Na4on-­‐Based  2.   Increase  First  Na4ons  Decision-­‐Making  and  Control  3.   Improve  Services  4.   Foster  Meaningful  Collabora4on  and  Partnership  5.   Develop  Human  and  Economic  Capacity  6.   Be  Without  Prejudice  to  First  Na4ons  Interests  7.   Func4on  at  a  High  Opera4onal  Standard      

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Data, Information and Planning Committee

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Responsible  for  the  administra7on  of  the  First  Na7ons  Client  File    

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§  Data collected from Aboriginal Affairs and Northern Development is being matched annually against BC’s databases to create a new data file -the First Nations Client File (FNCF).

§  The FNCF contains the BC Care Card PHN numbers used by Registered Indians and entitled children

§  The FNCF is currently held in a secure environment at the BC Ministry of Health until such time that the future FNHA has the capacity to take over stewardship of the file.

First  Na7ons  Client  File  (FNCF)  

     

Vital  Events  

AANDC    BC  Client  Registry  

First  N

a7on

s  Client  File   • BC  Client  Registry  PHN  

• AANDC  Indian  Registry  Band  Number  

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1)  Applicants  fill  out  one  of  three  forms      

     

Accessing  the  FNCF  

First Nations Client File DAR – Public Health Partners First Nations Client File (FNCF) Data Access Request (DAR)

Public Health Partners Form This form is for Health Authorities (including PHSA and its subsidiaries) and other provincial government ministries to request access to the FNCF.

1. Requester

Requesting Organization Individual Authoring the Request Email Phone

2. Project Overview 2.1 Project Title 2.2 Project Purpose Yes 2.3 What TDQSA Initiative or

TFN Health Plan Priority does the project align with?

2.4 Who are the Tripartite Partners and Committees supporting the project

2.5 Will these data be used to assist with program or policy review?

Please tick one: Yes No Other

______________________________________________ 2.6 Timelines

General  conditions  for  the  use  of  the  First  Nations  Client  File  

Involvement  of  appropriate  community  and/or  Tripartite  Staff  

The  design  and  delivery  of  public  health  and  health  care  services  for  First  Nations  in  BC  is  changing.    Since  2005,  a  new  relationship  has  been  evolving  between  First  Nations  leadership  and  provincial  and  federal  governments.    The  2006  Transformative  Change  Accord:  First  Nations  Health  Plan  set  out  a  number  of  action  items  meant  to  facilitate  closing  the  gap  in  health  outcomes  between  First  Nations  and  the  general  population.    At  the  Gathering  Wisdom  forum  in  May  2011,  87%  of  the  Chiefs  and  representatives  in  attendance    voted  in  favour  of  the  resolution  which  will  make  BC  First  Nations  the  first  in  Canada  to  take  over  health  service  delivery  from  the  federal  government.    The  signing  of  the  

First Nations Client File Proposal Submission First Nations Client File Data Access Request (DAR)

External Research Request Form

1. Researchers and Collaborators  Author of DAR Name Position Organization FN

Community Email Phone

☐ ☐ ☐ ☐

General  conditions  for  the  use  of  the  First  Nations  Client  File  

Involvement  of  appropriate  community  and/or  Tripartite  Staff  

The  design  and  delivery  of  public  health  and  health  care  services  for  First  Nations  in  BC  is  changing.    Since  2005,  a  new  relationship  has  been  evolving  between  First  Nations  leadership  and  provincial  and  federal  governments.    The  2006  Transformative  Change  Accord:  First  Nations  Health  Plan  set  out  a  number  of  action  items  meant  to  facilitate  closing  the  gap  in  health  outcomes  between  First  Nations  and  the  general  population.    At  the  Gathering  Wisdom  forum  in  May  2011,  87%  of  the  Chiefs  and  representatives  in  attendance    voted  in  favour  of  the  resolution  which  will  make  BC  First  Nations  the  first  in  Canada  to  take  over  health  service  delivery  from  the  federal  government.    The  signing  of  the  British  Columbia  Tripartite  Framework  Agreement  on  First  Nation  Health  Governance  in  October  2011  has  set  the  stage  for  the  creation  of  a  new  First  Nations  Health  Authority  in  BC.  

With  all  of  these  changes,  First  Nations  and  their  partners  will  require  high  quality  information  and  data  to  support  community,  regional,  provincial  and  national  action.      

The  First  Nations  Client  File  (FNCF)  is  a  valuable  tool  that  will  empower  public  health  professionals,  policy-­‐makers,  clinicians,  community  leaders  and  researchers  with  accurate,  quality  data  to  answer  any  number  of  broad  health  and  social  questions  and  inform  key  program  and  policy  decisions.  

It  is  critical  that  the  use  of  the  FNCF  be  aligned  with  the  overarching  principles  guiding  the  changes  occurring  in  BC’s  health  care  system  with  respect  to  First  Nations.    The  Consensus  Paper:  British  Columbia  First  Nations  Perspectives  on  a  new  health  governance  arrangement  lays  out  seven  directives  to  guide  the  development  of  a  new  health  governance  arrangement1.  These  directives  were  developed  over  the  course  of  three  years  by  First  Nations  in  over  120  regional  and  sub-­‐regional  meetings  and  thus                                                                                                                        1  Select statements taken from the Consensus Paper. For the full document please see: First Nations Health Society. Consensus Paper: British Columbia First Nations Perspectives on a new health governance arrangement. Available from: http://www.fnhc.ca/pdf/Consensus_Paper-_BC_First_Nations_perspectives_on_a_new_Health_Governance_Arrangement-_FIN.pdf  

First Nations Client File DAR – Tripartite Partners First Nations Client File Data Access Request (DAR)

Tripartite Partners Form Tripartite Partners include requests from within the BC Ministry of Health, First Nations and Inuit Health, BC Region and the interim First Nations Health Authority. Health Authorities (including PHSA and its subsidiaries) and other provincial government ministries can request access to the FNCF by filling out the public health partners form.

1. Requester Requesting Tripartite

Partner Individual Authoring the

Request Email Phone

 

General  conditions  for  the  use  of  the  First  Nations  Client  File  

Involvement  of  appropriate  community  and/or  Tripartite  Staff  

The  design  and  delivery  of  public  health  and  health  care  services  for  First  Nations  in  BC  is  changing.    Since  2005,  a  new  relationship  has  been  evolving  between  First  Nations  leadership  and  provincial  and  federal  governments.    The  2006  Transformative  Change  Accord:  First  Nations  Health  Plan  set  out  a  number  of  action  items  meant  to  facilitate  closing  the  gap  in  health  outcomes  between  First  Nations  and  the  general  population.    At  the  Gathering  Wisdom  forum  in  May  2011,  87%  of  the  Chiefs  and  representatives  in  attendance    voted  in  favour  of  the  resolution  which  will  make  BC  First  Nations  the  first  in  Canada  to  take  over  health  service  delivery  from  the  federal  government.    The  signing  of  the  British  Columbia  Tripartite  Framework  Agreement  on  First  Nation  Health  Governance  in  October  2011  has  set  the  stage  for  the  creation  of  a  new  First  Nations  Health  Authority  in  BC.  

With  all  of  these  changes,  First  Nations  and  their  partners  will  require  high  quality  information  and  data  to  support  community,  regional,  provincial  and  national  action.      

The  First  Nations  Client  File  (FNCF)  is  a  valuable  tool  that  will  empower  public  health  professionals,  policy-­‐makers,  clinicians,  community  leaders  and  researchers  with  accurate,  quality  data  to  answer  any  number  of  broad  health  and  social  questions  and  inform  key  program  and  policy  decisions.  

It  is  critical  that  the  use  of  the  FNCF  be  aligned  with  the  overarching  principles  guiding  the  changes  occurring  in  BC’s  health  care  system  with  respect  to  First  Nations.    The  Consensus  Paper:  British  Columbia  First  Nations  Perspectives  on  a  new  health  governance  arrangement  lays  out  seven  directives  to  guide  the  development  of  a  new  health  governance  arrangement1.  These  directives  were  developed  over  the  course  of  three  years  by  First  Nations  in  over  120  regional  and  sub-­‐regional  meetings  and  thus  

                                                                                                                     1  Select statements taken from the Consensus Paper. For the full document please see: First Nations Health Society. Consensus Paper: British Columbia First Nations Perspectives on a new health governance arrangement. Available from: http://www.fnhc.ca/pdf/Consensus_Paper-_BC_First_Nations_perspectives_on_a_new_Health_Governance_Arrangement-_FIN.pdf  

www.fnha.ca

2) Applications are reviewed by the Data Information and Planning Committee (DIPC)

§  The committee is made up of representatives from the Ministry of Health and the First Nations Health Authority

§  Decisions are made via a consensus between the two parties

Access  the  FNCF  

www.fnha.ca

3) Applications are reviewed based on both their objectives and methods. Success applicants:

§  Are planning for programs and services to tangibly improve health services for First Nations

§  Are improving the availability and quality of health information §  Involve First Nations in the review and interpretation of results §  Focus on key health topics of priority as laid out in the TDQSA

Access  the  FNCF  

www.fnha.ca

4) The Ministry of Health’s Chief Data Steward also reviews the request to ensure individual privacy is protected. If a request is approved, the applicants will receive anonymized information.

Access  the  FNCF  

www.fnha.ca

§  The TDIP committee meets monthly to review data access requests

§  Since November 2011, 14 data access requests have been considered

Use  of  the  FNCF  

Knowing  where  first  7me  mom’s  live  in  order  to  plan  for  the  rollout  of  a  nursing  program  

Looking  at  injuries  and  how  they  relate  to  cultural  safety  

A  project  looking  at  factors  that  determine  whether  children  become  placed  in  care  

Looking  at  injuries  and  how  they  relate  to  consumer  products  

Producing  na7onal  vital  sta7s7cs  and  hospital  u7liza7on  data  

Looking  at  infant  mortality  as  it  relates  to  distance  to  care  

Understanding  depression  and  alcohol  use   Planning  for  a  vaccine  roll-­‐out  

Understanding  communicable  diseases     Understanding  cancer  

Repor7ng  on  the  health  of  Aboriginal  women   Understanding  HIV/AIDS  

www.fnha.ca

Other Works

§  Actively engaged in data advocacy §  Committees which provide context to various health reports §  Investigating other Indigenous models regarding data governance

such as Epi Centres §  Health Indicator development from a strenghs-based indigenous

wellness perspective

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Questions & Discussion

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