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Ethics Outside of Inpatient Care: The Needfor Alliances Between Clinical and OrganizationalEthics
Rachelle Barina
� Springer Science+Business Media Dordrecht 2014
Abstract The norms and practices of clinical ethics took form relative to the
environment and relationships of hospital care. These practices do not easily
translate into the outpatient context because the environment and relational
dynamics differ. Yet, as outpatient care becomes the center of health care delivery,
the experiences of ethical tension for outpatient clinicians warrant greater responses.
Although a substantial body of literature on the nature of the doctor–physician
relationship has been developed and could provide theoretical groundwork for an
outpatient ethics, this literature is not sufficient to support outpatient caregivers in
practical dilemmas. For physicians who are employed by or affiliated with a larger
organization, a stronger alliance between clinical ethics and organizational ethics,
identity, and mission will promote expansion of ethics resources in outpatient set-
tings and address structural constraints in outpatient clinical care.
Keywords Outpatient ethics � Organizational ethics � Goals of medicine �Clinical ethics
Introduction
Yaseen is a 34-year-old man with multiple sclerosis. Following a suicide attempt
wherein he sustained several minutes of anoxic brain injury, his group home called
an ambulance and he arrived in an emergency department in a United States
hospital. Previously, Yaseen conveyed through family conversation and a living will
that he wishes to refuse all life-sustaining treatment at all times. In fact, he had his
living will next to him as he attempted suicide. In spite of Yaseen’s poor prognosis,
R. Barina (&)
Albert Gnaegi Center for Health Care Ethics, St. Louis University, 3545 Lafayette Ave, Salus
Center, 5th Floor, Saint Louis, MO 63104, USA
e-mail: [email protected]
123
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DOI 10.1007/s10730-014-9238-4
caregivers in the emergency department began to initiate life-sustaining care.
Several minutes later, the family barged into the emergency department and
demanded that life-sustaining measures be stopped and withdrawn. The mother of
the patient threatened to sue for battery if any invasive treatment was initiated or
continued. The attending physician attempted to delay an escalation of explosive
interaction as the resident called the clinical ethicist. The bedside dilemma
surrounding Yaseen exemplifies a quintessential clinical ethics case. Historically,
clinical ethics has proven helpful in situations like this one, which is why caregivers
may choose to call the ethicist in a moment like this.
Consider another case in a different context: Dr. Lopez is an internist who sees
Jan, a 29-year-old Medicaid patient with diabetes, chronic depression, and
schizophrenia. Jan lives alone, cannot maintain a job, and does not have family
in the area. Although he struggles to be compliant with his medications, he usually
gets himself to his appointments and promises to try to be more responsible. Dr.
Lopez has several noncompliant Medicaid and private pay patients like Jan.
Struggling with how to adequately care for them, he has become frustrated by their
noncompliance and dissatisfied with the reimbursement his practice receives for the
Medicaid patients relative to the amount of his time and energy they consume. The
amount of time he spends trying to promote compliance has not led to
improvements in their outcomes and has negatively impacted his quality metrics.
In the back of his mind, Dr. Lopez wonders if perhaps he should cap the number of
Medicaid patients seen to 5 %, or even stop seeing noncompliant Medicaid patients
altogether. He wants to take care of the disadvantaged and avoid discriminating
based on compliance, but he also wants to promote his practice and spend his time
with patients who follow through with medical guidance. Dr. Lopez feels
uncomfortable and does not know how to proceed.
Whereas ethicists have found a way to contribute their skills in the hospital
setting, they have shown relatively less interest and involvement in outpatient care
and its ethical challenges. Because the hospital ethicist has historically been
accessible throughout the hospital, she has been present in the epicenter of clinical
encounters. Today, however, the hospital ethicist is no longer in the center of care,
because outpatient settings are rapidly becoming the epicenter of health care
delivery in the US. As economic and legal realities encourage shifts in health care, a
smaller proportion of health care delivery will occur in hospital settings. Already,
outpatient volume amongst Medicaid beneficiaries has grown by an average of
4.2 % from 2004 to 2010 while inpatient admissions have declined 1 % during the
same time; these shifts involve a cumulative increase of 28 % in outpatient care and
a cumulative reduction of 6 % in inpatient care (Medicare Payment Advisory
Commission 2012, pp. 46-7, 51). Not only is outpatient care becoming increasingly
central to health care delivery, but it is quickly becoming the place where the
majority of clinical encounters will occur. Although outpatient clinicians may
pursue ethics literature and education on their own, many outpatient clinicians do
not have access to sufficient educational or consultative ethics resources. Thus, in a
2002 article, Potter and Kaiser write, ‘‘Outpatient ethics is the next stage of
evolution of bioethics…Outpatient ethics is a way to bring moral order to the
ordinary’’ (p. 274). Papanikitas and Toon add, ‘‘Ethical decisions in primary (and all
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outpatient) care may seem less dramatic than those in high-tech medicine, but their
cumulative impact is profound because there are far more of them’’ (2011). Ethics in
the outpatient context should be a high concern in health care ethics today.
Although the ethical issues that arise in outpatient settings may not involve the
same degree of bedside urgency as the hospital, they still produce difficult moral
issues that lead practitioners to experiences of moral uncertainty. As more care
shifts to the outpatient setting, the patients seen outside the hospital actually become
sicker patients on average and require more challenging decisions and conversations
(Felder 2002). Refining the theory of John La Puma and Schiedermayer (1989),
Fetters and Brody (1999) argue that there are seven main categories of outpatient
clinical ethics areas: conflicts of dual loyalty, communication, professional and
social responsibility, behavior, sexual attraction, personal space, and patient/
guardian conflicts. Illustrating this taxonomy, a fair amount of literature has
provided qualitative and quantitative descriptions of the kinds of ethical issues that
outpatient practitioners experience. For example, in primary care, common moral
issues involve deciding how much time to spend with each patient, financial
constraints due to noncompliance, inappropriate use of services, requests for
unneeded services, and inadequate follow-up, to name a few (Robillard et al. 1989).
Controversial topics such as genetic testing and aid in dying pertain to outpatient
care (Young 1997). In pediatrics, issues involve responding to unstable home
settings, managing frustration with parents, and adolescent care such as sexual
health (Moon et al. 2009). Systemically, replication of services between health care
professionals and lack of coordination of care between practitioners also raise
ethical issues.
In this paper, I will show that current clinical ethics trends are most applicable to
the hospital because they arose in a context that attributed normative priority to the
hospital. Then, I will argue that as more physicians are employed by or affiliated
with larger health care organizations in the US context, a stronger alliance between
clinical ethics and organizational ethics, identity, and mission will enable the
expansion of ethics resources into outpatient settings and address structural
constraints in outpatient clinical care. To make this argument, I will first discuss the
historical context out of which bioethics emerged and the ways in which the hospital
shaped practices of clinical ethics. Second, I will show that these practices do not
conform to the context of outpatient care. Finally, I will illustrate that the doctor–
patient relationships of outpatient care warrant a commitment to supporting
outpatient clinicians in ethical issues. Rather than a clinical ethics modeled after that
which is practiced in the hospital, I will suggest that organizations make greater
efforts in reaching out to their outpatient clinicians to foster solutions to ethical
distress outside of the hospital.
The Origin of Secular Bioethics
Bioethics emerged as a response to the context of the mid-twentieth century.
Engelhardt (2002) argues that although disease has classificatory and pathological
meanings, disease—and therefore medicine—also has a profoundly social character.
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The social character of medicine creates the most foundational condition for the
possibility of the need for a discipline of moral expertise, which Engelhardt believes
characterizes bioethics.1 Engelhardt (2013, p. 55) argues that several developments
in the twentieth century created an ‘‘intellectual vacuum’’ that invoked the efforts
that became bioethics. The ‘‘intellectual vacuum’’ emerged for several reasons.
First, Engelhardt (2002, p. 63) argues that medicine became a technologically
innovative as well as an institution socially supported by government and business.
Technologies such as dialysis, organ transplantation, and the ventilator raised moral
questions. Moreover, technologies like prenatal genetic testing became available
and abortion became safer, thus becoming a consideration for more people. As
technology developed at challenging speeds, the practice of medicine gained
profound power to shape, destroy, and create human life. Yet, the expansion of the
social nature of medicine through governmental and employer payment structures
and health care institutions meant that the moral questions surrounding medicine’s
ability to control human life became shared moral questions not easily definable
through the moral claims of a particular tradition.
Second, the authority for self-regulation was both mismanaged by and removed
from the medical profession. As Engelhardt (2002, p. 63) shows, medicine was
forced out of its guild-like status and its ability to self-govern. Medicine had been
able to direct ethics practices and police these practices. Engelhardt emphasizes that
this trend changes in the mid-twentieth century when federal courts began to apply
antitrust practices to medicine, such that it could no longer self-regulate or resist
third-party payers. Subsequently, third-party payers gained a subtle governance
power within certain medical practices. With rising costs, physicians also came to
be governed by third party forces. As a result, the patient–physician relationship was
no longer a bond that could be interpreted exclusively through medicine. Engelhardt
writes, ‘‘The rising importance in medicine of external third parties created a need
for medical-moral norms that were independent of the health-care professions’’ (p.
74). Moreover, the worldwide exposure of research abuses that took place in
hospitals and institutions exposed a vacant space wherein the medical profession
failed to monitor and enforce a level of ethics deemed acceptable. Thus, as the
image of the independently regulating physician-healer faded away and medicine
lost its self-regulatory power, physicians and physician scientists were no longer
exemplars of morality or authorities on health care policy. The values and norms of
medical ethics were neither legitimate nor sufficient in the context of the socially
sanctioned institutional health care and biomedical research. Another set of values
was necessary to support and inform decisions and policy.
Third, as values and content-full morality became increasingly necessary for
navigating contemporary health care, the traditional modes of moral reasoning had
been and were continuing to become delegitimized. Engelhardt (1996, p. 68) argues
that a moral fragmentation originating in the Reformation led to a loss of shared
moral viewpoints available both through particular religious authorities and through
rational argumentation. Subsequently, as shared moral perspectives shattered,
1 The degree to which bioethics constitutes a discipline of ‘‘moral expertise’’ and the grounding for its
‘‘moral expertise’’ are, of course, debated.
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secularization took hold and began to impede resolutions to disagreements,
including those about medicine and science. The void in moral authority entangled
with secularization and the prioritization of rationality culminated in the irresolv-
ability of moral questions raised by the conditions of medicine in the twentieth
century. Because people no longer bowed to traditional sources of moral authority
and because the physician no longer had the legitimate ability to self-regulate, an
abyss in moral guidance on new questions about life and technology appeared.2
Thus, as the quasi-guild nature of medicine faded away and secularization
reinforced the erosion of theological authority figures, the need for a secular
bioethics emerged.
Secular bioethics emerged out of the intellectual vacuum created by technological
innovation, the convergence of medicine with governmental and business structures,
the medical profession’s failures to self-regulate, the legally imposed governance of
third party payers, and the secularization of society. In the role of the bioethicist,
people gained the legitimized authority to provide guidance on ethical conduct and
policy. Generally, they considered the interests of the state and pursued a morality to
guide all health care choices rather than particular moralities arising out of particular
and mutually exclusive traditions. Those perspectives that arose out of particular
traditions made efforts to speak to a broad audience far beyond their tradition. Thus,
subsequent bioethical discourses occurred under the presumption that ‘‘a rationally
discursive reflection on the moral and public-policy choices facing health care could
produce canonical normative guidance through the use of conceptual analysis and
sound rational argument’’ (Engelhardt 2002, p. 77). That canonical normative
guidance, however, was highly reflective of the context within which clinical ethics
emerged—the spaces and relationships of the hospital. To this context we now turn.
The Content of Clinical Ethics and the Context of the Hospital
Bioethics emerged in the context of the conditions that created the intellectual
vacuum. The context was primarily the inpatient setting or the abstract setting of
policy, not the outpatient office. The challenging technologies were mostly
delivered in the hospital setting. The medical and technological innovations that
were not bedside issues for the long-term hospital patient were largely issues that
were engaged on the level of policy.3 The majority of patient volume and financial
2 This is somewhat odd, given that the original leaders in bioethics were theologians. In spite of this
irony, I still find Engelhardt’s claim to be true. The secularization of the West did lead to the need for a
kind of public morality. The need for a public and shared morality that took the secularization of the West
as a given was a primary factor in shaping the kinds of bioethical arguments that theologians made.
Although they arose out of their traditions, the early theologians commenting on medical ethics and
bioethics made arguments that were largely accessible and applicable to a wider community. Their
arguments were content-full, but the particularities of their arguments were made less explicit through a
rhetoric of non-theological argumentation.3 One major exception to this claim may appear to be dialysis. Dialysis was an ‘‘out-patient’’ procedure
that did instigate the formation of a quasi-ethics committee; however, insofar as dialysis was considered
by the quasi-ethics committee, it was a matter of abstract policy about the criterion by which dialysis was
to be rationed.
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gain occurred in the inpatient setting. Consequently, the inpatient setting was the
area of focus for third party payers. The most heinous research abuses occurred in
institutions and hospitals (which had and have remarkable similarities). The loss of
the medical profession’s exclusive privileges in self-regulation were filled by
regulations and practices aimed at the hospital ethics dilemma. The role of the
ethicist as the expert in managing moral issues replaced that of the physician or the
pastor, but the ethicist did not reach every location that the physician practiced.
Because the terrain of the ethicist was primarily the hospital and policy debate, the
moral issues of non-hospital settings were sometimes overlooked or assumed
parallel to the hospital. The norms, practices, and goals most prevalent in clinical
ethics emerged in great part out of experiences and problems of the hospital setting.
Alasdair MacIntyre argues that rules ‘‘are less fundamental than roles and
relationships and that it is the context which roles and relationships provide which
alone makes sense of rules’’ (1978, pp. 44). As clinical ethics developed to fill part
of the intellectual vacuum, its content and practices reflect the spatial and relational
qualities of the hospital in several ways. First, the clinical care team holds a
tremendous degree of power in regards to the patient and the environment. These
relational dynamics conform especially well to a theoretical model of principlism.
Second, the hospital care team involves a large number of caregivers. Inevitably,
they will not only conflict with the patient and/or family, but they will also conflict
with or fail to clearly communicate with each other. Within this dynamic of a
clinical care team, the patient and/or her family is only one stakeholder at the table
seated next to other stakeholders, who are actually present. The degree of illness
common amongst hospital patients means that in many cases, the problem cannot be
indefinitely avoided. An impasse exists, conflict abounds, and a resolution and way
forward is needed. Third, the nature of the hospital environment is one of
empirically based decisions and monitoring of practices and outcomes. I will now
further explicate these three influences to show the ways in which they contribute to
the clinical ethics practices and discourses.
First, the spatiality of the hospital involves a relational dynamic wherein the
patient is often vulnerable, incapable, immobile, and less powerful and the caregiver
asserts control, expertise, and power in constituting the patient according to medical
norms (Foucault 1994). The patient’s existence is directed by the caregivers; her
schedule is subject to the affairs of the caregivers and the rules of the hospital.
Whereas the hospitalist may uphold a certain principle or action against or without
the consent of a patient (for example, in the upholding of nonmaleficence over
autonomy through the involuntary admission of a psychiatric patient or with a
unilateral Do Not Resusitate order), an outpatient practitioner can achieve very little
without the collaboration of her patient. Outpatient caregivers may encourage the
patient to make autonomous decisions in alternative ways that promote health;
however, the caregiver has little ability to override the patient’s autonomy when she
makes decisions that detract from the efficacy of her health care. In the hospital
context, the method of principlism is particularly helpful in guiding conversation
about ethical conflicts. Weighing and balancing principles fits the controlled
dynamics of the hospital, because physicians and caregivers hold the power to
prioritize principles in a way that the outpatient caregiver typically does not. For
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example, a hospitalist may frequently decide that a patient’s preference cannot be
granted in order to serve her medical benefit. Yet, it is a significantly rarer action for
an OB to attempt to force inpatient care upon a pregnant woman who is endangering
the life of her fetus (perhaps by court order). The outpatient caregiver may override
autonomy in cases such as mandatory disease reporting, but this is not an action for
deliberation but a requirement of law. The physician has less power over the patient
in the outpatient office, and instead must negotiate that which is good for the patient
in a more mutual and dependent manner.
Second, situations in the hospital context involve a large number of
stakeholders, including medical professionals and patients/families. Because
problems create impasses which cannot be ignored, clinical ethics emphasized
facilitation and mediation of conflict rather than discernment of robust goods
against a substantive metaphysical or epistemological framework. The kinds of
problems that incited the need for the ethicist (withdrawing care, determining
death, organ donation, etc.) involved many stakeholders with conflicting interests.
The ethicist emerged as a person who could help negotiate differences and
disagreements as well as move these disagreements onto an institutional or
structural level. Illustrating this aim, the American Society for Bioethics and
Humanities recommendations for clinical ethics (2011) note facilitation as a
primary (although not exclusive) role of the ethicist. A body of literature has
subsequently emerged that instructs the ethicist not how to think philosophically
about the prioritization of goods, but about the practical negotiation of complex
decisions. For example, in Bioethics Mediation, Dubler and Liebman (2011)
provide tools by which the ethicist can learn to negotiate conflict, manage tense
situations, and lead towards a consensus decision.
Because cases often involve multiple stakeholders and resolutions are often
necessary, reflection on the irreducible and plural goods of various metaphysical and
epistemological frameworks is often neglected. Instead, the need to resolve a
dilemma with a large number of stakeholders means that discussion often centers on
practical steps towards an outcome that all stakeholders can tolerate; the problem
may or may not actually be a robust moral dilemma. The ethicist may have training
in philosophy, theology, law, psychology, or ethics; however, the ethicist draws on
such training more to gauge, understand, and exclude the perspectives being
negotiated than to supply the content for decisions. Regardless of whether or not a
robust moral dilemma exists, the ethicist has her tools—of mediation, facilitation,
and consensus building—that will prove useful in tense scenarios. The point of
interest in this paper is that it is precisely the hospital context that leads clinical
ethics towards the path of mediation and facilitation of immanent conflicts in pursuit
of consensus. The large number of stakeholders and the necessity of agreeing on a
plan of action lead clinical ethics to an emphasis on coming to consensus on a way
forward rather than exploring and probing complex moral and metaphysical
commitments.
Third, the orientation of the hospital environment towards empirically based
decisions and monitoring of outcomes has influenced clinical ethics. Jeff Bishop
(Bishop et al. 2009; Bishop 2012) and his colleagues suggest that the context of
empirically based medicine contributes to the immanent orientation of clinical
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ethics towards measurable goals, rather than less measurable goods. As the
profession has evolved in the context of empirical clinical medicine oriented
towards quantitatively and qualitatively measurable goals, the aim of the clinical
ethicist has also become to achieve certain measurable goals: securing and
implementing patient’s right to control treatment, achieving and mediating
consensus in a decision, promoting the ability of physicians to withhold non-
indicated care, reducing ICU stays, developing practices for informed consent, etc.
These goals are measures of the ethicists’ success in the same way that reduced
mortality rates are a measure of the surgeon. The qualities of the relational
encounters within which the goals are achieved is largely overlooked, because the
achievement of the outcomes themselves become attestations of good practice.
Thus, the goals of clinical ethics are not the transcendent goods that arise out of
particular moral and metaphysical traditions and commitments; rather, they are a
kind of desired outcome that is definable and measurable in the domain of the
immanent. Some goals may promote more robust goods, while others are desired
ends simply for convenience or consequence. In any case, the achievement of these
goals depends not primarily on discernment of the good from a particular moral
perspective, but on mediation aimed towards clear, immediate, and objective goals.
Ultimately, Bishop et al. (2009, pp. 277–278) argue that insofar as clinical ethics
aims at goals rather than at goods, ethics practices emphasize procedural tasks and
then become oriented toward quality improvement. In short, they show that the
evolution of clinical ethics mirrors the evidence-based decision making of medicine
through the articulation of procedural tasks oriented toward quality and efficiency.
The procedural goals of clinical ethics ultimately aim not towards the good, but
towards immanent goals defined in relationship to quality improvement. Desirable
relationships or actions are not articulated in and of themselves, but in reference to
their usefulness in achieving quality improvement. Clinical ethics itself seeks its
own defense in self-justifying ends. For example, a well-known article (Fox et al.
2007, p. 16) describes 10 primary goals evident in clinical ethics. These goals
include protecting patient rights, resolving conflict, improving quality, improving
patient satisfaction, preventing problems, education, meeting staff’s perceived
needs, supporting staff, suspending unwanted or wasteful treatment, and reducing
legal liability. Clearly, many of these goals are concerned with (the clearly desirable
goals of) safety and quality, not with discerning particular moral goods.
The goals of clinical ethics become standardized, theorized, and encoded in
institutional and disciplinary policies, rules, and codes. Alasdair MacIntyre argues
that ‘‘the kind of regulation which is concerned with the safety or the quality of
goods and services is not an expression of any particular moral standpoint, but is
rather a substitute for morality at just those points in our social fabric where we no
longer possess adequate moral resources’’ (1980, p. 31). Insofar as ethics has
become largely reducible to law, as Annas (1997, pp. 3–12) argues, and insofar as
clinical ethics aims to standardize its practices as a field in pursuit of quality,
MacIntyre’s claim applies to the tendencies of clinical ethics. If ethics has come to
serve the goal of quality improvement through the monitoring of quasi-legal or
policy based hospital regulations, ethics is largely devoid of a robust morality. In
fact, to the degree that ethical discernment is valued because it promotes quality
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improvement, such discernment shifts from virtue to vice. MacIntyre (1975, p. 106)
argues that a virtue becomes a vice when having once been valuable in and of itself,
it ‘‘comes to be valued only or primarily for its employment as part of a technique.’’
The relational power dynamics, the number of stakeholders who are presented or
often at least represented, the need for a resolution to conflicts, and the drive for
quality improvement or procedural goals are qualities of the hospital that influence
the form of clinical ethics. This context contributed to the prioritization of
facilitation and consensus, within the bounds of absolutely unacceptable options and
prima facie absolutes (such as informed consent). Clinical ethics practices tend to
aim at immanent goals, and more robust goods rise to consideration when they
promote or detract from these goals. The reticence to invoke rich moralities and
other goods may come from the necessity of paving an agreeable way forward, the
plurality of moralities amongst stakeholders, or simply because the value of quality
improvement.
Ethics in Outpatient Settings
A clinical ethics grounded in the needs and characteristics of the hospital fails to
translate to the outpatient setting in two primary ways. First, the clinical ethicist’s
consultation and mediation are less practical in the logistics of outpatient care. In
many large tertiary hospital contexts, the ethicist is a specialist who is available to
consult just like another physician and space permits meetings to negotiate and
mediate for the goals of consensus or resolution. In the outpatient office, however,
consulting another practitioner is a less routine action and gathering involved parties
is often an impossibility. The large care team is simply not a reality. Stakeholders
are fewer or not immediately present, and many outpatient caregivers are
geographically isolated. Moreover, the relationship of clinician and patient—a
relationship that provides the foundation for norms—is far more mutual. The
clinician does not control the environment of the patient, and the caregiver does not
hold as much power in relation to the patient. An ethics for outpatient care has to
account for the relationship of outpatient caregiver to patient.
Second, moral dilemmas in outpatient care are often subtle dilemmas or moments
of discomfort rather than impassable problems. The procedures of clinical ethics are
satisfying in the hospital because they do involve actions that make clinicians feel as
though something is done to address a major problem or conflict. Actions can be
taken to ensure problems are addressed. Quality Improvement measures can be set
to gauge ethics’ effectiveness: Have advance directives been completed? Are
patients moved out of ICU faster? Do more care conferences occur for ICU
patients? Are fewer patients dying in the ICU? In the outpatient office, the
relationship between patient and doctor is paradoxically more prolonged and
momentary and procedural ethics or quality measures are less clear. What, for
example, would be the measure to signify that Dr. Lopez has acted more
‘‘ethically’’? The best and most ethical physicians may have noncompliant patients,
and the best and most ethical physicians may choose not to see Medicaid and/or
noncompliant patients. Moreover, the structural influences on the patient cannot be
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controlled to the degree that the hospital’s environment allows. Whereas an
inpatient caregiver can consult ethics to effect real change, an outpatient clinician
may be relatively powerless to address structural elements that cause moral distress.
Overall, the clinical ethics of the hospital is grounded in the assumptions and
dynamics of the hospital physician and patient relationship. The space of the
hospital and nature of this relationship make a procedural ethics aimed at consensus
very effective in promoting quality, efficiency, and safety and minimizing cost,
waste, and harm. Moreover, theories based on the weighing of principles are
particularly suitable to this context, because the control that caregivers exercise in
terms of the environment practically allow for the prioritization of one principle
over another. Yet, the practices of clinical ethics have largely come to function as
substitutes. The rich and pluralistic goods of various moralities are set aside to
promote the task of delineating intolerable decisions (usually based on law or
regulation) and then mediating conflict within the remaining space with the aim of
quality improvement. The controlled dynamics of the hospital help ensure decisions
are enacted. These clinical ethics practices are not as helpful in the outpatient
context because they do not fill the same kind of void that existed in the hospital
space and its roles and relational dynamics. The void in the hospital arose out of
impassable questions of how to proceed in the larger context of an ‘‘intellectual
vacuum.’’ Clinical ethics continues to thrive on the remnants of these impassable
questions, facilitating a way forward when people disagree or proactively
implementing procedures through which impassable dilemmas are altogether
avoided. But the void in the outpatient office is not the same void; it is a void
wherein subtle dilemmas and conflicts between patients, professional obligations,
goods, and moral commitments leave practitioners with experiences of distress or
discomfort.
MacIntyre notes that the substitutes for morality are born at the moment where
moral resources are inadequate. In the hospital, I have suggested that clinical ethics
has evolved into a helpful substitution for rich reflection on particular moral goods
and moralities. But, when outpatient providers experience moral distress, the
clinical ethics of the hospital—substituting for morality—largely fails to provide
resources that can aid in ethical deliberation. The danger in failing to augment
outpatient care with robust tools for moral reflection and ethical action is that it will
fall into the same fate as its predecessor in the hospital: outpatient ethics too could
develop a substitute for ethics. After all, now is the moment wherein outpatient
setting is expanding as the epicenter of health care delivery and moral resources
may be inadequate as new questions are faced. An approach to outpatient ethics is
necessary before a substitute for ethics emerges in outpatient care.
Clinical Ethics and Outpatient Medicine
If we follow MacIntyre’s claim and begin with roles and relationships, a robust body
of literature already provides the foundation for ethics in outpatient clinical care.
Much has already been written on the nature of the doctor–patient relationship. For
example, Emanuel and Emanuel (2012) note four models of the physician–patient
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relationship: paternalism, informative, interpretive, and deliberative. They elucidate
these models in terms of the goals of the relationship, the physician’s obligations,
and the patient’s values and autonomy. These models provide tangible ways of
considering how physicians are to interact with patients and what the goals of the
interactions are. They propose the following goals: to ensure the patient receives
care that promotes health (paternalistic), to provide information and enact the
patient’s choices (informative), to identify the patient’s values and help discern
choices that reflect values (interpretive), and to help the patient uncover her values
in the process of decision making (deliberative). The models have significant
implications for outpatient ethical issues, such as the ways of approaching informed
consent. Quill and Brody (1996) make a similar point about doctor–patient
interactions that may prove helpful for outpatient care. They propose a decision
making model of enhanced autonomy rather than independent choice. They note
that this model encourages ‘‘patients and physicians to actively exchange ideas,
explicitly negotiate differences, and share power and influence to serve the patient’s
best interests’’ (p. 763). Similarly, many medically oriented accounts of virtue
provide insight about the duties of the physician. This literature is exceptionally
helpful in elucidating how physicians ought to approach and interact with patients.
MacIntyre emphasizes the importance of considering goods alongside relation-
ships. He notes, ‘‘…roles and relationships themselves require elucidation in terms
of goods’’ (1978, p. 44). Literature on the doctor–patient relationship like that of
Emanuel, Emanuel, Quill, and Brody makes intimations about the goods of clinical
care. A Hastings Center Report (Allert et al. 1996) further articulates four primary
aims of medicine. These aims may also be applicable to outpatient care (perhaps
most applicable to outpatient care): the prevention of disease and injury and the
promotion and maintenance of health, the relief of pain and suffering, the cure of
those with a malady and the care of those who cannot be cured, and the avoidance of
premature death and the pursuit of a peaceful death. Nevetheless, articulating goods
of medicine can be problematic insofar as they reflect a limited perspective. For
example, we might envision a more expansive view of various goods that move far
beyond these four points. The doctor–patient relationship, the cohesion of the
family, the protection of public health, or the spirituality of the person could be
recognized as goods and priorities. Perhaps equality may also be named as a good
internal to the practice of medicine (Benjamin 1992). Others have historically
understood the goods of medicine from a theological approach. The Sisters of
Providence articulated what was true for many Christian communities: ‘‘Salvation
of souls is still our most important blessing’’ (Wall and Nelson 2003, p. 325).
A second problem with attempting to name goods pertaining to medicine, as
Veatch (2001) notes, is that an intrinsic, conceptual ambiguity exists in each named
good; this ambiguity would extend to any other goods that are added to the often
cited list given by the Hastings Center. For example, some may understand merciful
pain relief as or even requiring the sanction of physician assisted suicide. That
vision of the good of merciful pain relief may be understood by others as a
deprivation of consciously experienced meaning or even as an act of killing. At
times, the various interpretations of goods may even be contradictory and mutually
exclusive. So, goods shape the form of right relationships, and right relationships
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shape moral norms and principles; but because goods are neither universally
accepted nor conceptually clear, appropriate patient–physician relationships and
subsequent norms of moral action cannot be universally discerned from reflection
on goods relevant to medicine.
If the patient–physician relationship depends upon goods and a singular vision of
the goods relevant to the practice of medicine does not exist, how and where ought
the goods to be defined such that a vision for outpatient ethics can emerge? First,
practitioners must discern the goods for themselves, and then develop an
understanding of their role as a caregiver in relationship to patients. In this
discernment, the particularities of outpatient relationships and spaces will be
presumed by outpatient practitioners and the literature on the doctor–patient
relationship is helpful. Nevertheless, depending upon the discernment of practitio-
ners is insufficient for the cultivation of ethics in outpatient care for several reasons:
ethics is not simply an individual endeavor about which people have the liberty to
choose and enact their intentions. Structural and organizational influences can both
challenge practitioners to more sophisticated ethical considerations, and structural
forces can also influence, constrain, and prohibit decisions made by a well-intended
caregiver. In other words, practitioners also need support to enact actions discerned
to be right when those actions have social, political, or volitional constraints or
consequences. And yet, in giving such support, organizations cannot be unbiased
regarding the goods of medicine. Practitioners will be limited and challenged by
certain epistemological, social, moral, and political commitments (in both negative
and positive forms) of the organization.
Arising from a particular vision of goods and taking particular contexts into
consideration, ethics challenges and exceeds—even precedes—the individual
because ethical choices are made in social and structural contexts. The clinical
ethics of inpatient care clearly reflects the context of the hospital. In outpatient care,
a systematic kind of clinical ethics has not become commonplace. On one hand,
organizations could leave ethics to the full discretion of their physicians, who
become responsible for knowing how to navigate outpatient moral issues. The
breadth of moral perspectives within the employed physicians will necessarily
expand as the number of employed physicians expands. Although virtue ethics and
literature on the patient–physician relationship will prove helpful, concepts of virtue
and the good physician will become increasingly ambiguous and contradictory with
the articulation of differing goals of medicine. On the other hand, organizations
could facilitate an outpatient clinical ethics that builds upon the doctor–patient
relationship literature by increasing alliances with organizational ethics. Accord-
ingly, individuals would not be left alone to navigate ethical dilemmas that arise
from epistemological uncertainties, structural constraints, or social dynamics.
Organizations could take a stronger role in forming and influencing ethical
perspectives (which, of course, will be deeply biased), but physicians in turn would
gain the benefits of organizational support in addressing clinical challenges. This
paper suggests that health care organizations need to make greater efforts to extend
ethics to the outpatient context and consider how they can better support these
clinicians. Ethical decisions are always enabled or resisted through contextual
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factors that exceed the individual’s control. As more physicians are employed by
larger health care organizations, these contextual factors increase.
A clinical ethics allied with organizational ethics that reaches out to outpatient
clinicians will give input into the defining, interpreting, and prioritizing of goods as
well as power to addressing the obstacles of these goods. As such, certain
considerations will expand or contract as having moral relevance for the roles and
responsibilities of caregivers. As MacIntyre writes, ‘‘…insofar as choices between
forms of organizations have implications for role-definition, they at least partially
determine moral problems we will encounter’’ (1978, p. 46). For example, if the
goods understood by a particular organization do not involve equality, excluding
Medicaid or noncompliant patients may be permissible for the sake of fiscal stability
or spending more time with other patients. On the other hand, if the goods of
medicine for another organization involve a particular concern for the disadvan-
taged, caregivers will be encouraged to see issues they may have otherwise
overlooked. Accordingly, an outpatient ethics that allies with organizational ethics
could leverage resources for practical solutions that promote both the development
of conscience and organizational mission.
Outpatient physicians often experience ethical issues and moral dilemmas. In
discerning how to respond to the ethical issues, physicians must consider their roles
and responsibilities to various stakeholders; however, such discernment cannot occur
without discernment of goods and actions that accords with their responsibilities. In
many instances, outpatient caregivers lack the leverage and authority to promote the
goods of medicine or address the sources of ethical tension. Resources of
organizational ethics can help align ethical concerns in the clinic or nontraditional
setting with wider efforts or strategies of the organization. In this way, outpatient
ethics is not just an aspiration or a disposition of the caregiver, but holds the power to
transform the most challenging outpatient dilemmas for the sake of more robust goods.
Conclusion
Although clinical ethics has secured itself as a legitimate practice in the modern
hospital, it has failed to equally reach outpatient settings which are quickly become
the locus of health care delivery. Several reasons exist for this reality. First, the
moral issues faced in outpatient care are generally less urgent and impassable than
in the hospital. Second, the practices generated through the evolution of clinical
ethics as a subspecialty of bioethics are less applicable to outpatient care. In large
part, clinical ethics presumes the space of the hospital and the kinds of relationships
the hospital facilitates. When transferred to the outpatient office, these practices,
theories, and norms provide less help in navigating ethical issues.
In beginning an approach for the renegotiation of the underpinnings of an outpatient
ethics, this paper has relied upon MacIntyre’s claim that norms require the context of
relationships, and understanding relationships requires a robust vision of the goods of
those relationships. The procedural ends and the mediation and negotiation used by the
clinical ethicist do fulfill an important need in difficult hospital scenarios. Although
significant resources have been devoted to clinical ethics in the hospital context (by
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choice and force), outpatient practitioners sometimes lack support in addressing
challenging ethical dilemmas. I have argued that organizations need to attend more to
ethics in outpatient care and provide resources to aid outpatient clinicians in educative
and consultative ways. In these efforts, a new emphasis on the interplay between
organizational ethics and clinical ethics is necessary. This alliance may lead to the
invocation of more robust and particular moral content and a prioritization, exclusion, or
indifference relative to the goods that shape moral obligations and ethical resolutions.
Yet, an approach that augments the doctor–patient relationship with organizationally
defined goods will enable outpatient practitioners and organizations to work together to
overcome a wider realm of ethical dilemmas and overcome structural contributors to
ethical tension. Perhaps, through the enactment of a creative solution promoted on a
level far above the outpatient office, Dr. Lopez can ensure that his Medicaid patients get
care that they need or that efforts are being made on their behalf.
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