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DEMENTIA CARE MODEL IN HONG KONG Linda CW Lam Department of Psychiatry The Chinese University of Hong Kong

DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

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Page 1: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

DEMENTIA CARE MODEL IN HONG

KONG Linda CW Lam

Department of Psychiatry

The Chinese University of Hong Kong

Page 2: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Hong Kong – a Super-Aging City

65 years or above - Now- 1 in 6, In 25 years – 1 in 3

Census and Statistics Department, HKSAR

Page 3: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Hong Kong – a Super-Aging City

Super-Aging – Increasing proportion of the oldest olds Increasing number of people living with dementia

Page 4: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

What do persons with dementia need?

Mild Moderate Severe

Dementia

Cognitive decline

Function

Physical

Carer support

Neuropsychiatric

disturbances

Psycho-social

Page 5: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Severity of Dementia - Goals of

Dementia Care

Mild

Optimize cognition and functional independence

Minimize neuropsychiatric disturbances

Moderate

Stabilize remaining function

Guided and supervised activity schedule

Minimize neuropsychiatric disturbances

Severe

Stabilize physical and physiological function

Maintain social contacts

Maintain mental state

Page 6: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Goals of Dementia Care – Ageing in Place

Mild

Optimize cognition and functional independence

Minimize neuropsychiatric disturbances

Moderate

Stabilize remaining function

Guided and supervised activity schedule

Minimize neuropsychiatric disturbances

Severe

Stabilize physical and physiological function

Maintain social contacts

Maintain mental state

Community Care

Page 7: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Goals of Dementia Care – Ageing in Place

Mild

Optimize cognition and functional independence

Minimize neuropsychiatric disturbances

Moderate

Stabilize remaining function

Guided and supervised activity schedule

Minimize neuropsychiatric disturbances

Severe

Stabilize physical and physiological function

Maintain social contacts

Maintain mental state

Aging in Place versus Long Term Care

Page 8: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

WHO 7-Stage Model for Dementia

Services Planning

Pre-diagnosis Diagnosis Post-

diagnostic support

Coordination and Care

Management

Community Services

Continuing Care

End-of-Life Palliative

Care

Page 9: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Coordination and Care Management

Community Services Continuing Care

Community Care Model

Medical – Social Collaboration

Page 10: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Dementia Community Support Scheme –

DCSS, Launched in 2017

智友醫社同行計劃 A medico-social collaborative primary care model for mild dementia

Page 11: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Dementia Community Support Scheme -

DCSS

Persons with Dementia at

Hospital Authority

District Elderly Community

centre

Cognitive training

Behavioral Management

Physical Health

Carer support

Specific Day Care

Assessed for fitness in community

training

1. Community dwelling people with Mild to Moderate dementia 2. Training provided by health professionals at community centres 3. Hospital Authority provides support for referral and logistics- 4. Time-limited and structured training modules

Page 12: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Timeline of the DCSS development

Preparation 2015-16

Pilot project in 4 out of 7 clusters in Hong Kong 2017

Extension to all regions in Hong Kong from 2019

Evaluation study in 2017-18

What’s next in community care?

Page 13: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

Extension of DCSS - feasibility evaluation

in 2019?

Persons with Dementia at

Hospital Authority

District Elderly

Community centre

Neighborhood elderly centres

Maintenance program

Specific Day Care

Assessed for fitness in

community training

1. After time limited training at DCSS, elders will be referred to neighborhood elderly centres for continued maintenance program

2. Additional social workers allocated to each elderly centre for dementia care 3. Health professionals at social service centres 4. Medical input minimal

Page 14: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

A Road Map of Gaps and Challenges

Pre-diagnosis Diagnosis Post-

diagnostic support

Coordination and Care

Management

Community Services

Continuing Care

End-of-Life Palliative

Care

Prevalence estimates not updated

Early diagnoses not sufficiently

supported

Long waiting time for specialist assessment Limited primary care involvement

Among specialists and health professionals

Dementia day care, community support and residential care in huge demand

Budding phase only

Dementia Community Support Scheme

Page 15: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life

A Road Map of Gaps and Challenges

Pre-diagnosis Diagnosis Post-

diagnostic support

Coordination and Care

Management

Community Services

Continuing Care

End-of-Life Palliative

Care

Prevalence estimates not updated

Early diagnoses not sufficiently

supported

Long waiting time for specialist assessment Limited primary care involvement

Among specialists and health professionals

Dementia day care, community support and residential care in huge demand

Budding phase only

Dementia Community Support Scheme

Could we build a dementia friendly community?

Page 16: DEMENTIA CARE MODEL IN HONG KONG...Services Planning Pre-diagnosis Diagnosis Post-diagnostic support Coordination and Care Management Community Services Continuing Care End-of-Life