Data Innovation and the Federal Big Data Working Group
http://www.meetup.com/Federal-Big-Data-Working-Group/
Slide 2
What if . You could meet with a dedicated team of data
scientists from the Federal government Academia and Industry To
prototype and share new BIG DATA technologies Every month For
free
Slide 3
You can! Simply join us at
http://www.meetup.com/Federal-Big-Data-Working-Group/
Slide 4
What is FBDWG? 712 + Co-hosts focus
Slide 5
Data Science for Big Data Dr. Brand Niemann Director and Senior
Data Scientist/Data Journalist Semantic Community
http://semanticommunity.info/ http://whartondcinnovation.com/ April
29, 2015 5
Slide 6
Overview Federal Big Data Working Group Meetup Silicon Valley
to Washington First White House Data Chief Discusses His Top
Priorities Precision Medicine and Natural Medicine Tech Meetup at
White House USDA Data Science MOOC 6
Slide 7
The Profit and Data Enterprises Marcus Lemonis (born November
16, 1973) is a Lebanese-born American businessman, investor,
television personality and philanthropist. He is currently the
chairman and CEO of Camping World and Good Sam Enterprises, and the
star of The Profit, a CNBC reality show about saving small
businessesthrough People, Process, and Products.
http://en.wikipedia.org/wiki/Marcus_Le monis The Federal Big Data
Working Group Meetup is also about helping government agencies
develop:Federal Big Data Working Group Meetup People Data
Scientists/Chief Data Officers Process Data Infrastructure Products
Data Publications Some examples: EPA FDA NOAA HHS USDA Eastern
Foundry And provide MOOCs/Meetups for training and networking.
7
Slide 8
Federal Big Data Working Group Meetup Federal: Supports the
Federal Big Data Initiative, but not endorsed by the Federal
Government or its Agencies; Big Data: Supports the Federal Digital
Government Strategy which is "treating all content as data", so big
data = all your content; Working Group: Data Science Teams composed
of Federal Government and Non-Federal Government experts producing
big data products; and Meetup: The world's largest network of local
groups to revitalize local community and help people around the
world self-organize like MOOCs (Massive Open On-line Courses) being
considered by the White House. 8
Slide 9
Silicon Valley to Washington Crafting Obama Administration Tech
Policy: Megan Smith, from Google Inc., to be U.S. Chief Technology
Officer (CTO) Alexander Macgillivray, from Twitter Inc., to be
Deputy CTO Tony Scott, from VMware, to U.S. Chief Information
Officer (CIO) Mikey Dickerson, from QSSI, Google, and Obama for
America, to U.S. Digital Service Administrator DJ Patil, from VP of
Product at RelateIQ and the Data Scientist in Residence at Greylock
Partners, to be Chief Data Scientist David Portnoy, Aginity LLC, to
HHS IDEA Lab Fellow, Datalytx, Inc. and Healthbox 9
Slide 10
First White House Data Chief Discusses His Top Priorities At
the top of my list right now is the Precision Medicine Initiative.
Science has enabled us to unlock the human genome. Now we want to
combine that with the power of data science, which uses new
techniques like machine learning as well as the explosion of data
now available about individual patients, whether through their
phones or other sensors in their environment. The challenge is
putting this together to come up with new ways to think about
health care and medical treatments.human genome Semantic Medline
and Natural Medicine for Disease and Wellness Meetup My second
priority is opening up more data and making it available for people
[both the government and general public] to build an ecosystem of
research, mobile apps and visualizations on top of that
information. Semantic Community and Federal Big Data Working Group
Meetup The third main priority is inserting more data capacity into
agencies throughout the government. Were seeing a rise of data
scientists and chief data officers at the National Institutes of
Health as well as within [the Department of] Health and Human
Services. The Commerce Department announced its first chief data
officer [Ian Kalin] last week. We have to decide how to use the
best of what we see in data science and statistics groups
throughout the government to develop new services.National
Institutes of HealthHealth and Human Servicesannounced its first
chief data officer Federal Big Data Working Group Meetup and
Eastern Foundry 10
http://www.scientificamerican.com/article/first-white-house-data-chief-discusses-his-top-priorities/
Slide 11
Precision Medicine and Natural Medicine Tonight, I'm launching
a new Precision Medicine Initiative to bring us closer to curing
diseases like cancer and diabetes and to give all of us access to
the personalized information we need to keep ourselves and our
families healthier. President Barack Obama, State of the Union
Address, January 20, 2015 On May 4 th, Im launching the Natural
Medicine for Disease and Wellness Meetup, Brand Niemann, Data
Scientist/Data Journalist. 11 In early 2013, our Semantic Medline
Data Science Team found that cancer immunotherapy was becoming more
successful than cancer chemotherapy. Also that certain enzymes have
been successful in schizophrenia and lithium, an element, in manic-
depression (bipolar disorder).
Slide 12
Tech Meetup at White House
https://www.whitehouse.gov/blog/2015/04/14/friday-tech-meetup-white-house-0
12
Slide 13
USDA Data Science MOOC My Note: In Process for May 18 th Meetup
13 http://semanticommunity.info/Data_Science/USDA_Data_Science_MOOC
http://www.meetup.com/Federal-Big-Data-Working-Group/events/221457264/
Slide 14
Upcoming Meetups President's Chief Data Scientist and EPA Big
Data Analytics, April 20, 2015. The Wharton DC Alumni Innovation
Summit, April 28-29, 2015. Natural Medicine for Disease and
Wellness Meetup (New Meetup) Data Science for Natural Medicines and
Epigenetics, May 4, 2015. USDA Data Science MOOC Meetup, May 18,
2015. Government Technology & Innovation Incubator for Big Data
Analytics III, late May, 2015. DATA Act Challenge Cup. Data Science
for Homeless Data: QlikView. Tableau, & Spotfire Bakeoff, June
1, 2015. Data Science for USGS Minerals Big Data, June 15, 2015.
Data Science for Cyber Physical Systems-Internet of Things, June
29, 2015. 14
http://www.meetup.com/Federal-Big-Data-Working-Group
Slide 15
Right Brain Business Analytics Business outcomes driven data
analytics RK Paleru Business Intelligence & Systems Executive |
Data, Digital & Analytics Officer | Senior IT Finance Leader
http://informationanalytics.tumblr.com The content of this
presentation is protected under Copyright laws. All data presented
is mocked up and anonymized. Not for public distribution.
Slide 16
Right Brain and Business Analytics You cant solve the problems
using the same thinking that created them in the first place ~
Albert Einstein
Slide 17
Drive Cash Flow Manage Costs Improve Profits Mitigate Risk CFO
FP&A Controller TaxIT CFO priorities do not change in the
analytics era.. .but how they approach has changed
Slide 18
Customer Profitability, an example Who are my profitable
customers? Profits 100% 140% 80% Aggressive Retention Passive
Retention Proactive Profit Oriented Retention Customers Highly
Profitable Customers Profitable Customers Loss Making Customers
Dimensional shift from traditional product to customer accounting
Revenue recognition and cost allocation (including ABC) Customer
Segmentation Targeted Marketing Mix Whale Curve Information
IntelligenceInsightAction
Slide 19
Right Brain Business Analytics - Some Examples Analytics use
cases Revenue Spend Forecasts Products & Services Higher
Education headwinds Competition from MOOCs Falling enrollment
Rising costs Tuition dependence
Slide 20
Revenue Analytics - Promoting Cross Sell / Up Sell
Slide 21
Spend Analytics - Influencing Expense Management
Slide 22
Program Analytics - Optimizing product and service
offerings
Slide 23
Slide 24
Forecast & Variance Analytics - Proactively steering the
business
Slide 25
Operational Analytics - Finding outliers for billing
errors
Slide 26
How are we doing? What should we be doing? Why? Finance Product
Development Operations Human Resources IT/Systems Customer Service
Marketing Sales In Summary Right Brain Business Analytics Plan,
execute and optimize performance
INNOVATION, BIG DATA, AND THE FAMILY CAREGIVER MaryAnne
Sterling Co-Founder, Connected Health Resources @SterlingHIT April
29, 2015
Slide 29
93,000,000
Slide 30
522Billion
Slide 31
2014 CONNECTED HEALTH RESOURCES 31 INFORMATION NEEDS Allergies
Transportation Insurance Medications Assisted Living Diagnosis
Hospice Diseases Immunizations Appointments Doctors Care Plan
Support Group Treatment Medical Equipment Specialists Test Results
ADLs Home Safety Medicaid Respite Care Financial Choices Advocacy
Services Rehab Meals-on-wheels Medicare Mental Health Advanced
Directive Home Health Senior Center Visiting Nurse Social Workers
Assistive Devices Nursing Home Health History
Slide 32
CAREGIVING INFORMATION CYCLE 2014 CONNECTED HEALTH RESOURCES 32
Crisis Accident/injury New Diagnosis Care Transition New Care
Setting New Phase of Recovery/Illness Maintenance Chronic Condition
Permanent Disability
Slide 33
CRISIS 2014 CONNECTED HEALTH RESOURCES 33 Caregivers may need
to provide patient information to healthcare professionals,
including Allergies and health history Family health history
Immunizations Test results/labs/films Health insurance Caregivers
need to gather information, including Diagnosis or injury details
Disease-specific information Care options Next steps Crisis
Accident, injury, or new diagnosis
Slide 34
CARE TRANSITION & MAINTENANCE 2014 CONNECTED HEALTH
RESOURCES 34 The patients care plan Housing/caregiving options
(i.e. rehab, home health, nursing home, hospice) Community
resources (i.e. meals on wheels, transportation) Instructions for
performing caregiving activities Medical equipment Care Transition
new care setting or new phase of recovery/illness Long-term care
supports Financial options Assistive devices Medication regimens
Respite care Support groups Maintenance chronic condition or
permanent disability Caregivers may need to gather information
about
Slide 35
FAMILY CAREGIVERS & TECHNOLOGY 2014 CONNECTED HEALTH
RESOURCES 35 Categories of Activities that Technology can
Support
Slide 36
CRISIS 2014 CONNECTED HEALTH RESOURCES 36 Crisis
CategoryInformation Needed Access allergies, family health history,
medical records, test results, medication lists, insurance
statements/bills, legal documents such as healthcare proxy Track
immunizations, vital signs, blood sugar, weight, food intake, mood,
rest, patient location Managemedication administration, refills,
care plans, insurance, and finances Coordinate doctor appointments
and referrals, in-home care and services, other family caregivers,
transportation, meals-on-wheels, medical equipment Connectwith
other caregivers, providers, family members, friends, and support
groups Learnabout a diagnosis, disease, treatment, or the latest
research; community supports, social services, and housing
options
Slide 37
CARE TRANSITION 2014 CONNECTED HEALTH RESOURCES 37 Care
Transition CategoryInformation Needed Access allergies, family
health history, medical records, test results, medication lists,
insurance statements/bills, legal documents such as healthcare
proxy Track immunizations, vital signs, blood sugar, weight, food
intake, mood, rest, patient location Manage medication
administration, refills, care plans, insurance, and finances
Coordinate doctor appointments and referrals, in-home care and
services, other family caregivers, transportation, meals-on-wheels,
medical equipment Connect with other caregivers, providers, family
members, friends, and support groups Learnabout a diagnosis,
disease, treatment, or the latest research; community supports,
social services, and housing options
Slide 38
MAINTENANCE 2014 CONNECTED HEALTH RESOURCES 38 Maintenance
CategoryInformation Needed Access allergies, family health history,
medical records, test results, medication lists, insurance
statements/bills, legal documents such as healthcare proxy Track
immunizations, vital signs, blood sugar, weight, food intake, mood,
rest, patient location Manage medication administration, refills,
care plans, insurance, and finances Coordinate doctor appointments
and referrals, in-home care and services, other family caregivers,
transportation, meals-on-wheels, medical equipment Connect with
other caregivers, providers, family members, friends, and support
groups Learnabout a diagnosis, disease, treatment, or the latest
research; community supports, social services, and housing
options
Slide 39
TECH CHALLENGES FOR FAMILY CAREGIVERS Very few tools are
designed specifically for family caregivers and their information
needs Availability of these tools does not guarantee access to
information Finding time to incorporate new technology into daily
routines is often prohibitive, along with the applicability of
technology to real-life caregiving scenarios Uncoordinated
technology (e.g. multiple patient portals) may simply create more
silos The language of healthcare is not the language of the average
American Not all caregiving challenges can be solved with
technology 2014 CONNECTED HEALTH RESOURCES 39
Slide 40
DATA BARRIERS Electronic access to personal health data is
spotty. Blue Button is still in its infancy. It is difficult to
obtain medical records. Information on the web is not curated and
written at a high literacy level. It becomes a mine field for
caregivers to find, sift through, and comprehend medical
information. Patient (and Caregiver) Generated Health Data is not
widely accepted and no framework exists for receipt/review/response
of PGHD by providers 2014 CONNECTED HEALTH RESOURCES 40
Slide 41
BLUE BUTTON? Lead by the Office of the National Coordinator for
Health IT (ONC) A way you can access your health records
electronically so you can: Share them with your doctor or trusted
family members or caregivers Check to make sure the information,
such as your medication list, is accurate and complete Plug your
health information into apps and tools that help you set and reach
personalized health goals Healthcare providers or health insurance
companies may offer you the ability to view online, download, and
share your health records via Blue Button but not everyone
participates yet More info:
http://www.healthit.gov/patients-families/blue-button/about-
blue-buttonhttp://www.healthit.gov/patients-families/blue-button/about-
blue-button 2014 CONNECTED HEALTH RESOURCES 41
Slide 42
CONNECTED HEALTH RESOURCES 42
Slide 43
CONNECTED HEALTH RESOURCES Who we areThe services we offer 2014
CONNECTED HEALTH RESOURCES 43 Women-owned start-up led by veterans
in healthcare and caregiving Team comprised of leading technology
and service providers Addressing health literacy, social
determinants of health, and care transitions Community Health
Gateway: Personalized health platform that addresses health and
social services needs across the care continuum Tools to help
patients more easily understand their health information and the
healthcare system One platform for providers, patients, and family
caregivers
Slide 44
2014 CONNECTED HEALTH RESOURCES 44 PERSONAL HEALTH PLATFORM One
platform for providers, patients, and family caregivers
Slide 45
CLINICAL TRANSLATION 45 Low Health Literate Clear, simplified
discharge instructions in patients language and English Plus
patient-specific medication regimen summary 2014 CONNECTED HEALTH
RESOURCES English, Spanish, Mandarin, Cantonese, Korean, Haitian,
Creole, Italian, French, Arabic, Russian, Bengali, Polish, Karen,
Burmese, Somali, Swahili, Vietnamese, Yiddish Coming soon: Farsi,
Brazilian Portuguese, Tagalog
Slide 46
2014 CONNECTED HEALTH RESOURCES 46 COMMUNITY RESOURCE FINDER 1)
Think about your familys needs 2) Learn about available services 3)
Find service providers in your community
Slide 47
CHR FIRSTS (AKA INNOVATION) First to develop a shared platform
where health and social service providers, patients, and family
caregivers ALL contribute information to support the patients
health goals First to use SureScripts pharmacy data via the
Maryland HIE to support medication therapy management First to
tackle a plain-language consent process 2014 CONNECTED HEALTH
RESOURCES 47
Slide 48
WHAT IF Google maps showed us where an Assisted Living facility
was located and if they had a Medicaid bed available CMS made
timely prescription drug information available to patients and
their caregivers online in all federally supported programs
Medicare, Medicaid, and Marketplace CMS enabled
identification/authorization of family caregivers through
Medicare.gov and providers queried to know who represents health
proxy, advocate and spokesperson for patients when needed The
industry moved beyond Blue Button and portals to support easy data
aggregation by patients along with tools for translation Patient
Generated Health Data became part of the fabric of healthcare and
clinical research 2014 CONNECTED HEALTH RESOURCES 48 CMS = Centers
for Medicare and Medicaid Services
Slide 49
2014 CONNECTED HEALTH RESOURCES 49 Healthier Community Easy
access to coordinated healthcare, social services, community
supports Care planning and daily living support for patients and
families in health crisis Patients and families engaged thru plain
language and multilingual information BIG DATA SHOULD ENABLE
Healthcare happens in the community
Slide 50
CONTACT INFO 2014 CONNECTED HEALTH RESOURCES 50 Email:
[email protected] Website:
www.connectedhealthresources.com Twitter: @SterlingHIT